plenary round table v: “the ern integration in healthcare ...€¦ · 1 plenary round table v:...
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Plenary Round Table V: “The ERN integration in healthcare systems”
Spanish approach22nd November 2018
4th Conference on ERNs (Brussels)
Laura Marín Calvo (ERN BoMS , ES representative)Ministry of Health, Consumer Affairs and Social Welfare
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Conflict of interest
I have no actual or potential conflict of interest in relation to this presentation
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SPANISH PARTICIPATION IN ERNs
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144
5
77 2
83
24
356
86
2
1
276 CSUR50 HOSPITALS63 diseases
CSUR DESIGNATION COMMITEE
ENDORSEMENT
17 ERN42 CSUR16 HOSPITALS
HCP CSUR-Area of scope of ERN
Autonomous Communities Participation in ERNs
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CSUR DESIGNATION PROCESS
SPECIFIC LIST OF DISEASES/GROUP
OF DISEASESDESIGNATION
CRITERIAASSESSMENT PROCEDURE
CSUR DESIGNATION
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OBJ
ECTI
VES
- Equity in access
- Concentrate experience
- Improve care of lowprevalence diseasesand procedures
CSUR RE-ASSESSMENT/CSUR RE-DESIGNATION
MONITORING SYSTEM
5-10 YEARS
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CSUR AND ERN INTEGRATION
NHS
CSURs NHS
CSUR/CSURsparticipating
in ERN
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ERN PARTICIPATION
BENEFIT PATIENTS EQUALLY
ADAPT NATIONAL MODEL
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INTEGRATION: DESIGNATION CRITERIA CSUR Activity Multidisciplinary team Human and equipment resources Research activities and training Patient Safety Transition from children’s to adults’
services Monitoring System
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INTEGRATION: CSUR ASSESSMENT Multidisciplinary Team work
Transition from children’s to adults’ services
Patient safety
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1
2
3IP
HM
SIN
PBCV
PNAVPITU
LVQ
MAR
PUUP
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CSUR MONITORING SYSTEM Detect deviations Validate and improve standards, designation
criteria and indicators Annual Report to support the CSUR designation
renewal after 5 years. CSUR forum for discussion: support for future
reference networks at national level Indicators:
Activity measures Outcome measures
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020406080
100120140
1 2 3 4 5
TOTAL COMPLEX PEDIATRIC NEUROQUIRURGICAL PROCEDURES
Año 2013
Año 2014
Año 2015
Estándar:15Media: 65,8
2013
2014
2015
Standard:15
Average: 65,8
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INTEGRATION: PATIENT REFERRAL SYSTEM
Fondo de Cohesión Sanitaria
Track patient flows, transfer reasons and waits
Finantial compensation of the care given among Autonomous Communities
Identify potential diseases and procedures to designate CSUR in the NHS
ERN referral – under construction
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PILOT NATIONAL NETWORK HU La Paz as Coordinator of ERN Transplant-
Child: Experience gained with CPMS as the basis
to develop a national platform.
Phases: Starting point: CSURs for transplantation
in children Future: Rest of CSURs progressively
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PILOT NATIONAL NETWORKPAEDIATRIC TRANSPLANTATION
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KIDNEY: 6 LIVER: 4
LUNG: 2 HEART: 4
HSCT: 4INTESTINE: 4
HOSP. UNIV. LA PAZ (liver, kidney, heart, intestine, HSCT)
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CHALLENGES
Financial resources affect to all Cooperation ERN – MSs Complementarity – ERN criteria/
assessment with HCPs requirements at national level
Integration of ERNs within NHSs
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THANK YOU