pediatric palliative care waiver
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Pediatric Palliative Care Waiver. Outcome Data Evaluation Subcommittee. Outcome Data Evaluation Subcommittee. Purpose Evaluate the impact of the Pediatric Palliative Care (PPC) Pilot Projects Identify quantitative evaluations qualitative surveys - PowerPoint PPT PresentationTRANSCRIPT
Pediatric Palliative Care Waiver
Outcome Data Evaluation
Subcommittee
Outcome Data Evaluation Subcommittee
PurposeEvaluate the impact of the Pediatric Palliative Care (PPC)
Pilot Projects
Identify quantitative evaluationsqualitative surveysquality care indicators
Meeting Dates February 1, March 15, April 18
Outcome Data Evaluation Subcommittee
Committee Members
Marian Dalsey, M.P.H., M.D., Chief, CMS Branch
Pam Christiansen: Nurse Consultant, CMS Branch
Jan Burrow: Nurse Consultant, CMS Branch
Galynn Plummer-Thomas: Nurse Consultant, CMS Branch
Xavier Castorenas: Social Work Consultant, CMS Branch
Carmen Romo: Research Analyst, DHS, MCP-RDB
Kathy Bissell-Benabides: Health Program Specialist, MCP-RDB
Outcome Data Evaluation Subcommittee
Committee Members
Ann Pomper: Hospice of Santa Cruz
Christy Beaudin: Chief Quality Officer-CHLA
Devon Dabbs: Children’s Hospice & Palliative Care Coalition
Lori Butterworth: Children’s Hospice & Palliative Care Coalition
John Golenski: George Mark Children’s House
Jenny Mann Francis: U.C. Davis Medical Center
Joan Tanzer: George Mark Children’s House
Joyce Shefren: Pathways Home Health, Hospice & Private Duty
Margaret Clausen: California Hospice Organization
Outcome Data Evaluation Subcommittee
Committee Members
Ann Pomper: Hospice of Santa Cruz
Christy Beaudin: Chief Quality Officer-CHLA
Devon Dabbs: Children’s Hospice & Palliative Care Coalition
Lori Butterworth: Children’s Hospice & Palliative Care Coalition
John Golenski: George Mark Children’s House
Jenny Mann Francis: U.C. Davis Medical Center
Joan Tanzer: George Mark Children’s House
Joyce Shefren: Pathways Home Health, Hospice & Private Duty
Margaret Clausen: California Hospice Organization
Outcome Data Evaluation Subcommittee
Plan: Use the same evaluation tools other states are using to improve consistency of evaluations.
Possible sources:• Quality of Life Scale (PedsQL)
• Warwick Child Health Morbidity Profile
• Pain and Symptom Scales
• School Attendance (Florida Waiver)
• Impact of Family Scales (Stein and Jessup)
• Family Functioning assessment
• Economic Impact on Family
• Provider Satisfaction Survey / NHPCO Family Satisfaction Survey
Outcome Data Evaluation Subcommittee
Identify methods to access the impact of enhanced therapies such as Child Life and Art Therapy
Federal Waiver Reporting Requirements
# of CCS Clients potentially eligible for the Waiver
# of CCS Clients offered enrollment into the pilot project
# of CCS Clients who were offered enrollment and accepted
Diagnoses of Clients including ICD-9 codes
Paid Claims for waiver services