patient empowerment: training the person on dialysis 18... · patient empowerment: training the...

Patient Empowerment: Training the person on dialysis

Catarina Cunha

Valencia, September 19, 2016

EDTNA/ERCA 17-20.09.2016 Patient Empowerment: Training the person on dialysis, Catarina Cunha © Copyright

Presentation outline

Introduction 1

Objectives 2

Methods 3

Results 4

Conclusions 5


• Patients on hemodialysis have to live daily with the

conditions of their disease and with many changes in

their daily lives1.

• The survey of patient satisfaction emanated in 2012

refers that 8.8% of our patients showed a lack of

information 2.

Introduction

1 Caiuby A.V.S, Lefêvre F., Pacheci-Silva A. (2004). Análise do discurso dos doadores renais - abordagem da psicologia social. J Bras Nefrol. 26(3), pp. 137-44.

2 Satisfação do doente em hemodiálise nas unidades de diálise . NephroCare 2012 – RELATÓRIO GLOBAL / FAFE. Fresenius Medical Care.


• Therefore we recognized that there was a need of

making information available3.

• Our clinic team plans to train the patient in order to

improve their autonomy and their knowledge in

decision-making.

Introduction

3 Wallerstein, N. & Bernstein, E. (1988). Empowerment education: Freire’s ideas adapted to health education. Health Education Quarterly.



Introduction 1

Objectives 2

Methods 3

Results 4

Conclusions 5


• To improve the independence of people with CKD on

hemodialysis.

• To identify training needs.

• To describe the implementation of an educational

programme.

Objectives



Introduction 1

Methods 3

Objectives 2

Results 4

Conclusions 5


Methods

Nome Janeiro Fevereiro Março Abril Maio Junho Julho Agosto Setembro Outubro Novembro Dezembro

Anemia

Transplante

Princípios Básicos de

Fluidos corporais +

Responsabilidades

Acessos Vasculares e Técnicas de Canulação

Higiene e Controlo de

Infeção + Higiene das

mãos + Lavagem do Membro da

FAV

HTA + Peso Seco + Cadeiras

Tipos de Diálise + Diálise

Domiciliária Dose de Diálise

Complicações da DRC

Estilo de Vida, Férias e

Exercício Físico

Dieta e alimentação +

Xerostomia

Colheitas + Hepatite A e

Vírus transmitidos pelo sangue

Complicações Intradialíticas +

Medicação Intradialíticas

XXXXXXXXXXXXXXXXXX

XXXXXXXXXXXXXXXXXX

XXXXXXXXXXXXXXXXXX

XXXXXXXXXXXXXXXXXX

XXXXXXXXXXXXXXXXXX

XXXXXXXXXXXXXXXXXX

XXXXXXXXXXXXXXXXXX

XXXXXXXXXXXXXXXXXX

XXXXXXXXXXXXXXXXXX

XXXXXXXXXXXXXXXXXX



Introduction 1

Results

4

Methods 3

Objectives 2

Conclusions 5


• Throughout 2015, 14 training courses were held with the

duration of approximately 30 minutes each for 84

patients. Each person performed a total of 7 hours over

12 months.

Results


Results


Results

4 Sousa, CN; Apóstolo, JLA; Figueiredo, MHJS; Dias, VFF; Teles, P; Martins, MM (2015). Construction and validation of a scale of assessment of self-care behaviors with arteriovenous fistula in hemodialysis. Hemodialysis International 19, 2: 306 - 313.


Results

0,00

10,00

20,00

30,00

40,00

50,00

60,00

70,00

80,00

90,00

100,00

Global score Prevention of

complications

Signs and symptoms

management

Control Study


Results

0

0,5

1

1,5

2

2,5

3

3,5

4

4,5

5

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16

Study group Control group


Beginning:

•2012

10 people

•5

•3

•2

Learning time

•6 months

Results



Introduction 1

Conclusions

5

Methods 3

Results 4

Objectives 2


• Patient empowerment is associated with few

complications and increases self-esteem, independence,

self-responsibility, treatment compliance and quality of

life.

• Nurses, as important links in patient care on regular

hemodialysis programme, should promote patients’

autonomous decision making and adherence for the

treatment regimen.

Conclusions


Research Team

Ana Paula Martins RN Fresenius Medical Care, Nephrocare Fafe, Fafe – Portugal Célia Cunha RN Fresenius Medical Care, Nephrocare Fafe, Fafe – Portugal Cristiana Matias RN Fresenius Medical Care, Nephrocare Fafe, Fafe – Portugal Marta Cunha RN Fresenius Medical Care, Nephrocare Fafe, Fafe – Portugal Teresa Magalhães RN Fresenius Medical Care, Nephrocare Fafe, Fafe – Portugal Vânia Silva RN Fresenius Medical Care, Nephrocare Fafe, Fafe – Portugal Manuela Fonseca Head Nurse Fresenius Medical Care, Nephrocare Fafe, Fafe – Portugal Joaquim Pinheiro Medical Director Fresenius Medical Care, Nephrocare Fafe, Fafe – Portugal João Fazendeiro Matos Country Nursing Care Director, Fresenius Medical Care, Nephrocare Portugal Maria Teresa Parisotto Care Value Management EMEA, Fresenius Medical Care , Bad Homburg, GermanyMedical Care, Bad Homburg, Germany.


Acknowledgments

Marisa Agostinho RN Fresenius Medical Care, Nephrocare Coimbra, Coimbra – Portugal Alexandra Seabra Head Nurse Fresenius Medical Care, Nephrocare Coimbra, Coimbra – Portugal Telmo Carvalho Head Nurse Fresenius Medical Care, Nephrocare CAV Lisboa – Portugal

patient empowerment: training the person on dialysis 18... · patient empowerment: training the...

Documents