parkinson's disease foundation annual report 2011: the pdf effect

Annual Report 2011PARKINSON'S DISEASE FOUNDATION

PDFEFFECT

THE

The mission of the Parkinson's Disease Foundation® (PDF®)

is two-fold: to understand and find the cure to Parkinson's disease and related movement disorders; and, for as long as this search continues, to ensure that those individuals and families who live with Parkin son's are able to achieve and maintain the best

possible quality of life.

Cover and inside cover Members of the Parkinson's Support Group of the Mid-Hudson Valley gather at their third annual Parkinson’s Awareness Month walk in Poughkeepsie, NY, which benefited PDF.

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Letter from Leadership

Energizing Science

Empowering People

Improving Care

Our Donors

Our Researchers

Financial Reports

Our People

Table of Contents

Take, for example, the research programs wefund (see the section Energizing Science). We havehighlighted just four research grant recipients

(selected from among thedozens we funded in 2011) toillustrate what we do in thisarea: a young student Fellowfrom Germany; a senior scien-tist at Memorial Sloan-Ketter-ing Cancer Center (MSKCC);a team of scientists at theUniversity of British Colum-bia; and a clinical researcherat the PDF Research Centerat Rush University. Theywere selected through ourrigorous peer-review processbecause of their superiortrack records in the past andhigh potential for creativecontributions in the future.

But what exactly are they accomplishing with themoney we give them?

Well, the student Fellow is working on finding

new “targets” for Parkinson’s treatments in a lab atMassachusetts General Hospital. The MSKCC sci-entist is studying the role of stem cells in potentialParkinson’s treatments. The Canadian team isstudying a specific gene mutation that — thoughrare — may help illuminate a whole area of neu-rodegenerative disease. And the Rush Universityscientist has found a possible “marker” for Parkin-son’s in the colon of people with the disease.

These people and others like them, make upan A-team of scientific explorers, working at theedge of the known universe of neuroscience. Andthey are getting things done — things that will an-swer questions, solve problems and improve lives.

Then there are the ways we work with peoplewho live with Parkinson’s and their loved ones (seethe section Empowering People). Here, “The PDFEffect” is of two main kinds. One is to provide theinformation that people can use to improve theirown lives as “managers” of their Parkinson’s — forexample, our national HelpLine, our portfolio ofpublications and our popular PD ExpertBriefingsonline seminar series.

The other is to provide programs that can em-

2 | Letter from Leadership

The theme of our Annual Report this year is “The PDF Effect.” What does this linemean? To us at the Parkinson’s Disease Foundation (PDF), it means focusing not just onwhat we put into our work, but what comes out of it. Not just the shape and direction ofthe programs we design — and with your help, execute — but the impact of those pro-grams on the pace of science, and on the lives and futures of the people we serve.

Robin Anthony ElliottExecutive Director

power people with leadership potential to serve asadvocates for the development of new researchand treatments. Through our Parkinson’s Advo-cates in Research program, lay advocates aretrained through three-day institutes and more re-cently, through online courses, to play leading rolesin advancing research. The work that these peopledo helps themselves, and it helps their communi-ties. It is all part of “The PDF Effect.”

A third area that carries the stamp of “The PDFEffect” is the quality of care that is provided topeople with Parkinson’s (see the section ImprovingCare). Take for example our innovative onlineParkinson’s course for physical therapists — de-signed by a blue-ribbon committee of leaders inthat profession, and modeled on a course inParkinson’s for nurses that we developed a yearearlier. Or take the network of training initiativeswe provide for future leaders of the movement dis-orders profession, in PDF-funded medical centerslike Columbia and Rush Universities, and throughprofessional organizations like the Parkinson StudyGroup and the American Academy of Neurology.

Of course “The PDF Effect” would not existwithout Our Donors— 41,000 of them in 2011alone. In this report, we list the names of more than1,600 donors who made gifts of $500 or more be-tween July 1, 2010 and December 31, 2011 to sup-port the research and other activities of theParkinson’s Disease Foundation. We thank them forall they have done to make our work possible, and

we recognize the proceeds of their generosity inthe section Financial Reports. From these and allour other sources of revenue, PDF received a totalof $10,284,389 during the fiscal year that endedJune 30, 2011 — an increase of $757,979, or morethan seven percent, over the amount we receivedduring the same period in 2010.

Nor would “The PDF Effect” exist without thepeople who make it all happen, from day to day.These include a devoted Board of Directors andPeople with Parkinson’s Advisory Council; an out-standing network of scientists and educators whovolunteer their services to PDF; and a creative andindustrious professional staff of 24. They are thepeople who make “The PDF Effect” possible. Wethank them, one and all.

Sincerely yours,

The PDF Effect: Annual Report 2011 | 3

Lewis P. Rowland, M.D.President, Board of Directors

Letter from Leadership

Identifying New Targets for Parkinson’s Treatments

Since its founding in 1957, the Parkinson’s Disease Foundation has supported hundredsof research projects throughout the world — furthering Parkinson’s science and improvingthe lives of individuals touched by the disease. PDF's funding philosophy is to empowerstakeholders — Parkinson’s scientists, clinicians and other members of the scientific com-munity — to identify novel questions about, and answers to, the puzzle of Parkinson’s. Theresearch program is guided by PDF’s Scientific Advisory Board, joined by representativesof PDF's Parkinson’s Advocates in Research program.

4 | Energizing Science

Excessive amounts of the protein alpha-synu-clein in neurons can predispose a person toParkinson’s disease (PD). Now a study in the Octo-ber 12, 2011 issue of The Journal of Neurosciencehas identified two distinct cellular path-ways that help neurons dispose of un-wanted alpha-synuclein.

Previous studies on the roles of thetwo recycling mechanisms, the ubiqui-tin-proteasome system (UPS) and theautophagy-lysosome pathway (ALP), inalpha-synuclein degradation have pro-duced conflicting results. To settle thisdebate, Darius Ebrahimi-Fakhari, a med-ical student at the University of Heidel-berg in Germany, undertook a PDF-funded summer student fellowship inthe lab of Pamela McLean, Ph.D., atMassachusetts General Hospital. Using

an advanced imaging technique that provides a“window” on a living mouse’s brain, Mr. Ebrahimi-Fakhari and coworkers showed that both pathwaysrecycle alpha-synuclein. UPS is the main recycling

pathway for alpha-synuclein under nor-mal conditions, whereas ALP kicks inonly when levels of alpha-synuclein arehigh, as in the neurons of some peoplewith Parkinson’s. Enhancing the work ofUPS or making the ALS mechanism kickin sooner (before too much alpha-synu-clein accumulates) should be studied toslow down or even prevent Parkinson’s.

These findings may help scientistsunderstand what causes Parkinson’s(e.g., how the recycling mechanisms arefaulty) and help scientists identify newtargets for Parkinson’s treatments.

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This graph illustrates theaccumulation of alpha-synuclein in the presenceof inhibitors of the cell'stwo recycling pathways.


Energizing Science

Scientists, funded in part by PDF, announced in theNovember 2011 issue of Nature, that they have trans-formed pluripotent stem cells into dopamine neuronsand implanted them into the brains of animals.

Pluripotent stem cells, such as those derivedfrom embryos and more recently induced from adultskin cells, have the potential to develop into nearlyany cell type, but scientists have had trouble trans-forming these stem cells into the desired cell type.For the first time, Lorenz Studer, M.D., at the Memo-rial Sloan-Kettering Cancer Center and his col-leagues appear to have identified the correctconditions necessary to transform pluripotent stemcells exclusively into dopamine neurons that resem-ble those lost from the same brain region affected byParkinson’s, that grow and perform well in animals,and do not produce tumors. The fact that thesetransplanted neurons reduced some Parkinson’ssymptoms in animals is a good sign for potentialtherapeutic applications in people living with PD.

Before stem cell therapy for Parkinson’s be-comes a reality, however, significant challenges re-main. Longer-term experiments in monkeys must bedone to show that the neurons can survive and avoidtumor formation for longer than one month and canalleviate PD symptoms. Animals in these experi-ments were also given immune-suppressing drugs toprevent their bodies from rejecting the transplantedcells. These drugs have substantial side effects whentaken long-term, which must be balanced againstthe benefit of improved PD symptoms. Further-more, stem cells may replace the cells that are af-fected by Parkinson’s, but they will probably not stopthe neurodegenerative process.

Nevertheless, until a safe and effective stem cellreplacement therapy has been demonstrated, thisnew protocol can been used in the laboratory to effi-ciently generate large quantities of the dopamineneurons necessary to screen and test potential drugtherapies currently under investigation.

Clarifying the Role of Stem Cells in Parkinson's Treatments

“The fact that these transplanted neurons reduced some Parkinson’ssymptoms in animals is a good sign for potential therapeutic applica-tions in people living with PD.”

Newly made dopamine-producing neurons derived from stem cells

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6 | The PDF Effect: Annual Report 2011

Energizing Science

Discovering a New Genetic Mutation Linked to Parkinson's

Using a new, cutting-edge technology forgene sequencing, researchers funded in part byPDF have discovered a new gene called vesicularsorting protein complex 35 (VPS35) that is linked toParkinson’s in people with familial PD. The resultsappeared in the July 15, 2011 issue of the Ameri-can Journal of Human Genetics.

In recent years, researchers have identifiedabout a dozen genes that either cause Parkinson'sor increase the risk of developing the disease. Tosearch for a new PD gene, an international team ofresearchers led by Carles Vilariño-Güell, Ph.D., andMatthew J. Farrer, Ph.D., of the University of BritishColumbia, Vancouver, Canada, focused on a familyfrom Switzerland in which 11 people in three gen-erations were diagnosed with PD. They compared the DNA of family members with PD to that of unaffected family members to search for differ-ences that could explain why some members

developed Parkinson’s and others did not.In the past, this type of DNA analysis has been

very difficult, requiring examination and DNA col-lection from large numbers of affected families.The University of British Columbia researchers in-stead used a new and efficient technique calledwhole exome sequencing, which focuses on small,but important, sentence-like sections of DNA.These sections govern the production of proteins.Since mutated proteins are most often the causeof genetic diseases, they reasoned that mutationslinked to inherited PD would be found here.

Like most other genetic causes of PD, thisnewly identified genetic mutation is exceedinglyrare, resulting in very few cases of PD. Neverthe-less, a better understanding of how a VPS35 muta-tion causes cellular processes to go awry may helpscientists to unravel the causes of PD and otherneurodegenerative diseases.

A pedigree of the original Swiss family used to identify the VPS35 mutation. Filled symbols indicate individuals affected with PD and the num-ber below the symbol indicates their corresponding age at disease onset. Individuals are either mutation carriers (M) or have a normal (wt)genome. Square symbols are male and round symbols are females. Diamond symbols are number of children, no sex specified. Slash marksindicate deceased individuals.

Energizing Science | 7

Unlike other conditions that can be diagnosedthrough blood tests or biopsies, there is no definitivetest or "biomarker" that can identify Parkinson's ortrace its development. A study funded in part byPDF and published in the July 2011 issue of Move-ment Disorders suggests that the presence of the alpha-synuclein protein in the colon may be a bio-marker for the disease.

In people with PD, the alpha-synuclein proteinforms abnormal clumps in cells, and these toxic ag-gregates kill dopamine-producing neurons. One hy-pothesis suggests that Parkinson's may actuallybegin in neurons of the intestinal wall and spread bycell-to-cell transfer of alpha-synuclein through thevagus nerve to the brain.

In support of this hypothesis, Kathleen Shannon,M.D., and her colleagues at the PDF Research Centerat Rush University Medical Center detected alpha-synuclein in colon tissue samples of people with earlyParkinson's. This study is the first to demonstratealpha-synuclein aggregation in colon tissue.

Building upon this work, Dr. Shannon and col-

leagues published additional results in the June 2012issue of Movement Disorders suggesting that doc-tors may be able to diagnose early Parkinson's with acolonoscopy. In this study, Dr. Shannon detectedalpha-synuclein in colon tissue samples removed twoto five years before the individuals reported anysymptoms of Parkinson’s (see image below). If thefindings from this very small study are replicated in a

larger number of samples, it may be possible to usecolonoscopy to predict who may develop PD.

Doctors already recommend that people age 50and older have a colonoscopy every three to tenyears for colon cancer surveillance. For those whowould be interested, the same biopsy may be ableto predict their risk for Parkinson’s. Therefore, itwould be relatively easy to test colon tissue biopsiesfor both cancer and the alpha-synuclein protein.

Although these initial results are promising, it willbe important to confirm the results in larger popula-tions of people with and without PD, as well as inpeople with Parkinson's-like disorders.

Finding a Biomarker for Parkinson's Disease

“Early detection of Parkinson's,before the significant loss ofdopamine-producing neurons,would help facilitate a search fora cure, or for interventions thatslow disease progression.”

8 | Empowering People

The current process that brings new Parkinson’s treatments to market is very slow. There are manyfactors that may contribute to this delay but PDF believes that in order to speed this process, people withParkinson’s must be primary partners in research alongside scientists, government and industry. PDF'sParkinson’s Advocates in Research (PAIR) program offers intensive in-person trainings, known as LearningInstitutes, and an online course to provide people touched by Parkinson’s with the scientific knowledgeand leadership skills needed to advance research in their communities. Since its launch in 2008, the PAIRnetwork has expanded to include more than 180 Research Advocates from 38 states. In 2011, PDF Re-search Advocates were involved in a wide range of leadership activities including the examples below.

Finding Ways to Speed New Treatments

Central to PDF’s philosophy is the belief that people with Parkinson’s must be key part-ners on initiatives that move the cause forward. To make this happen, PDF recognizesthat the community needs certain tools to effectively make a difference. In recent years,PDF has made a commitment to providing these tools to empower people touched byParkinson’s to become actively engaged in research, education and advocacy efforts intheir communities.

Guiding Parkinson’s Research

A PDF Research Advocate since 2009, Diane Cook was named in 2011 to theBoard of Directors of the Colorado Neurological Institute (CNI) where she assistswith the review of clinical trials. Ms. Cook is also co-investigator with Rajeev Kumar,M.D., of CNI, and Katen McRae, M.D., of the University of Denver, on a researchstudy to determine the efficacy of a model training program she helped to createthat is specifically geared toward people with Parkinson’s disease in a support groupenvironment. The model involves incorporating skills of self-efficacy into the sup-port group’s curriculum. Ms. Cook’s efforts have helped nearly 100 people withParkinson’s get involved with research.


Empowering People

Jay Nutt, M.D.Oregon Health & Science University (OHSU) ParkinsonCenter of Oregon and Movement Disorders Program

“It will be invaluable to have knowledgeable PDF Research Advocatesjoin our team of researchers, doctors and other professionals, in orderto prioritize Parkinson’s disease research and improve studies.”

Educating Their Community About Research Studies

A PDF Research Advocate since 2010, Bernie Snead believes that one of the sim-plest ways to advance research is to let the community know what they can do tohelp. In collaboration with Parkinson Association of the Carolinas (PAC), Mr. Sneadbrought the latest information to support groups in North and South Carolina in 2011.Interweaving the PDF guide, Getting Involved in Parkinson’s Research, with his ownpersonal experiences in volunteering for trials, Mr. Snead presented to 13 supportgroups in six months and was selected to be a member of the PAC Speakers Bureau.Following Mr. Snead’s presentations, the number of support group members whostated that they were likely to participate in a clinical trial increased by 50 percent.

Filling Gaps in Parkinson’s Research

Another PDF Research Advocate from 2010, Ronnie Wanetick collaborates withmajor Parkinson’s research centers in Northern California to address a major barrierto Parkinson’s research: improving the system that informs people of clinical trialstaking place within their community. Working with study coordinators at the Univer-sity of California at San Francisco, The Parkinson’s Institute and the University ofCalifornia at Davis, Ms. Wanetick receives a list of all enrolling studies and she thendistributes this list to support groups in her area. In just over two months, 13 indi-viduals have enrolled in studies because of this system, dramatically reducing thelength of time that it has taken clinical trials at these centers to enroll.

2011 Learning Institute Graduates


Empowering People

Connecting the Parkinson’s Community to Resources

“Thank you for the very usefulinformation you provide. Yourpublications are a staple in theeducational materials that weprovide to our newly diagnosedParkinson’s patients. ”

Lisa H., R.N. Fayetteville, AR

A top priority for PDF remains the disseminationof accurate, accessible information about Parkin-son’s to people with the disease and their families.

The cornerstone of our efforts is our nationaltoll-free HelpLine, which is staffed by trained infor-mation specialists who can answer questions aboutParkinson’s and connect people living with the dis-ease to community resources. In 2011, more than5,000 people from all over the country were advisedthrough our HelpLine.

To address the financial concerns facing manypeople with Parkinson's, PDF once again awarded$50,000 in 2011 to the Melvin Weinstein Parkinson’sFoundation to help individuals who meet certaineligibility requirements pay for a home health aideor visiting nurse and purchase such medical equip-ment as wheelchairs, walkers and canes. Since2008, the Helen M. Lynch Direct Aid Fund of theParkinson’s Disease Foundation and the MelvinWeinstein Parkinson’s Foundation has helped over500 people in the Parkinson’s community.

PDF also offers a growing portfolio of educa-tional materials that are developed in response tocommunity needs. In 2011, over 800,000 print edu-cational publications were distributed worldwide.The Second Edition of our most popular and visiblepublication, the Parkinson’s Disease Resource List,was released in April 2011. The print and onlineversion of this new edition includes over 750 resources for the Parkinson’s community through-out the US and around the world. The concept forthis publication developed from conversations withour People with Parkinson’s Advisory Council.

In response to requests from the community,PDF added 10 fact sheets in 2011 to our line of educational materials. These fact sheets cover arange of topics from Fatigue and Sleep Disordersto Caring for the Care Partner. PDF now has over50 fact sheets that offer in-depth information aboutspecific areas of Parkinson’s treatment and care.They are written by physicians and people livingwith Parkinson’s and many are available in Spanish.

Empowering People | 11

LISTEN

WATCH

LEARN

“I have learned so much fromyour seminars. They have beenclear and understandable forsomeone without a science back-ground. They have made it mucheasier to face the diagnosis andput it in perspective.”

Ann M. Chicago, IL

Providing Access to Leaders in Parkinson’s Research and Care

Recognizing the ongoing need to providepeople with Parkinson's and their families with research updates and strategies for living well withthe disease, PDF continued in 2011 our popularPD ExpertBriefings online seminars. This programprovided people with Parkinson's around thecountry, and the world, with first-hand access tothe insights of some of those who are at the fore-front of Parkinson's research and care. Topics covered in 2011 included:

• Physical Therapy and PD — What You Need toKnow, led by Heather Cianci, P.T., M.S., G.C.S., ofthe Dan Aaron Parkinson’s Rehabilitation Center(Good Shepherd/Penn Partners) at PennsylvaniaHospital in Philadelphia, PA

• Cognition and PD: What You’ve Always Wantedto Know But Were Too Afraid to Ask, led byAlexander I. Troster, Ph.D., of the University ofNorth Carolina at Chapel Hill

• What's in the PD Pipeline?, led by MichaelSchlossmacher, M.D., of the University of Ottawa

• Understanding Pain in Parkinson's, led by JeffreyWertheimer, Ph.D., of Cedars-Sinai Medical Centerin Los Angeles, CA

• Impulsive and Compulsive Behaviors in Parkin-son’s, led by Daniel Weintraub, M.D., of the University of Pennsylvania in Philadelphia, PA

• Caring for a Person with Late Stage Parkinson’s,led by Joan Gardner, R.N., B.S.N. and Rose Wich-mann, P.T., of the Struthers Parkinson's Center inMinneapolis, MN

These seminars are available for viewing fromthe comfort of home, 24 hours a day, seven days aweek. For those who may not have the technologyto watch online, PDF offers DVDs of this series.

Since 2007, PDF has held more than 30 onlineseminars and in 2011, more than 10,000 individualsin 38 countries participated in at least one of our PDExpertBriefings.


Empowering People

Making an Impact During Parkinson’s Awareness Month

In 2011, PDF once again took the lead in helping the Parkinson’s community mark April as Parkinson’sAwareness Month. The theme of our 2011 campaign was “Shatter the Myths” about what it means to live withParkinson’s by spreading the word, educating the community and supporting research for the cure. Thetheme resonated with many individuals across the country as captured in the inspiring highlights below.

• 20 individuals, including Ruth Pearce in Gainesville, GA, displayed theParkinson’s Quilt in 11 states. An estimated 2,500 people visited thequilt during April.

• Many individuals, including PDF Research Advocates Jim Patterson ofDunedin, FL, and Patti Meese of Scottsdale, AZ, successfully hadproclamations signed by local, state, and federal officials. The UnitedStates Senate also proclaimed April as Parkinson’s Awareness Month.

• Chock full o’Nuts helped PDF’s efforts by featuring an awareness message on one million coffee cans, and an advertisement in a nationalSunday circular and on cups and displays in stores in New York City.

Spreading the Word

“It is amazing to experience what people can do to show support for those of us who are living with Parkinson’s disease.” Jerry T.

Mount Vernon, NY

Sample Chock full o’Nuts cup

Members of PDF’s People with Parkinson’s Advisory Council at the 2011 Parkinson’s Unity Walk

Empowering People | 13

• More than 750 individuals helped PDF to raise $200,000, (well over the initial $100,000 goal) for the Irving G. Brilliant Parkinson’s Research Challenge. Because the challenge met its goal, Mr. Brilliant also increased his matching gift to $200,000, which meant that a total of $400,000 wasraised for Parkinson’s research.

• PDF Champions held unique fundraising events across the country raising $38,000. In Ocala, FL, Barbara Hebert brought the first Parkinson’swalk to her community and raised nearly $3,000.

• Gristedes Supermarkets partnered with PDF in the New York area and raised over $5,000 through the campaign, “Tulips Bloom for Parkinson’s.”

Supporting the Cure

Educating the Community

• More than 1,400 individuals wore one of the Parkinson’s AwarenessMonth t-shirts designed by winners of the annual design contest, MarianBumala, of La Honda, CA, and Stephanie Longo, of Cherry Hill, NJ.

• PDF Research Advocates John Baumann of Louisville, KY, and Linda Hin-kle and Mary Yeaman of Indianapolis, IN, partnered with the Indiana Pac-ers to host an event that included a Rock Steady boxing demonstration, educational handouts and a reading of a proclamation during half-time. PDF Research Advocate Carolyn Weaver of Freeland, MI, broughtposters and informational materials to 13 different locations in her state.

• Libraries proved to be a great spot for education. PDF Research Advo-cate Gordie Guist, of Camden, ME, was one of 42 individuals who set upan educational display about Parkinson’s.

Marian Bumala holding an image of herwinning t-shirt design

Barbara Hebert and friends at the firstParkinson’s Walk in Ocala, FL

Although the number of people living withParkinson’s is expected to increase in comingyears, there is a shortage of the physician-scien-

tists necessary to help notonly understand Parkinson’s,but also to carry new discov-eries forward into the clinicto help people living with thedisease. So how can thebest physicians be encour-aged to acquire additionaltraining in Parkinson’s dis-

ease? PDF focuses on this challenge and investsin the training of physicians and researchersthroughout their careers.

One of these physician-scientists is Christo-pher W. Hess, M.D., a Research Fellow at Colum-bia University Medical Center. During the first twoyears of his fellowship, Dr. Hess honed his skills inthe care of people with Parkinson’s and became in-terested in researching how the nervous system af-fects movement in Parkinson’s.

Dr. Hess’s research involves investigating thebrain’s ability to “compensate” in Parkinson’s. Itturns out that the brain — its cells and the billionsof connections between them — shows a limitedability to change and adapt when faced with newexperiences, including injury and illness.

For example, in Parkinson’s, the area of thebrain known as the basal ganglia — which helps toproduce the body’s voluntary movements — stopsworking when it loses dopamine producing cells.When this happens, Dr. Hess speculates that otherparts of the brain may lend a helping hand.

This means that although the basal ganglia arenot working properly, other parts of the brain kick into ensure that a person with PD initially does notexperience any symptoms. In fact, those symptomsmight not be noticeable to a person with PD untilthe time when the brain can no longer help out, orcompensate. Dr. Hess hopes his studies may pavethe way for better objective tests that could help di-agnose Parkinson’s earlier in its course — perhapseven before a person notices any symptoms.

Investing in the Training of Physicians and Researchers

A core component of our mission is ensuring that people with Parkinson’s and theirfamilies have the best quality of life. This is only possible when people living with Parkin-son’s receive the best possible care. For over 35 years, PDF has offered mentorship pro-grams that provide the training needed to ensure that the best minds are recruited toParkinson’s research and care. In recent years, PDF has expanded its training programsto include online courses for healthcare professionals serving people with Parkinson’s.

14 | Improving Care


Improving Care

Offering Educational Opportunities to Healthcare Professionals

Nurses and physical therapists play a key role inensuring that people with Parkinson’s have the bestpossible quality of life. Unfortunately, there is littleinformation on the disease designed specifically forthese professionals. PDF believes that offering edu-cational opportunities to healthcare professionals willhelp ensure better care for people with Parkinson’s.

Our free four-part online course, Parkinson'sAcross the Lifespan: A Roadmap for Nurses, was designed to address this need and provides the latest in current treatments and care strategies. Thiscourse is led by Parkinson’s nurse specialists, physicaltherapists and people with Parkinson’s. Continuingeducation credits are available.

In 2011, more than 4,000 nurses from around theworld completed the course. This brings the totalnumber of registrants to more than 9,000 since its

launch in June 2010. This course was designed andhosted by PDF in collaboration with the AmericanParkinson Disease Association and the NationalParkinson Foundation.

Building on the success of this course, PDF ledthe development in 2011 of an online course forphysical therapists entitled, Parkinson’s Disease: APractical Approach to Evaluation and Treatment forthe Physical Therapist. This four-part course was designed by expert physical therapists in the field ofParkinson’s and offers updates in best practice fortreating people with Parkinson’s. Continuing educa-tion credits are available. It was launched in April2012 by PDF in collaboration with the AmericanParkinson Disease Association, the American Physi-cal Therapy Association and the Visiting Nurse Service of New York.

“PDF believes that offering educational opportunities to healthcareprofessionals will help ensure better care for people with Parkinson’s.”

16 | Our Donors

Events that Support PDF

In 2011, events that supported PDF around thecountry grossed over one million dollars for Parkin-son’s research. In New York City, almost 1,000 peoplejoined together to support PDF by attending one ofour three annual events: Bal du Printemps; CelebrateSpring; and Carnaval at the Copa. In total, theseevents grossed approximately $750,000.

In addition, we were joined this year by over 50PDF Champions who gave their time and energy toraise awareness of Parkinson's and funds for PDF in

their local communities. These volunteers helpedto move the cause forward by organizing pancakebreakfasts, joining standup paddle boating events,running in marathons, participating in bike ridesand walk-a-thons and by creating their own per-sonalized pages on the PDF website in honor ofloved ones with Parkinson's. Their efforts raisedalmost $300,000.

PDF is very grateful for the efforts of its generousvolunteers that have made these events possible.

The work of the Parkinson’s Disease Foundation is only possible because of the gen-erous support of numerous individuals, families, foundations and corporations. PDFgratefully acknowledges the following donors who are central to “The PDF Effect” andwho are helping us to improve the lives and futures of people touched by Parkinson’s.

A) Herbert Pardes, M.D. and John Thain at Bal du Printemps.

B) Co-chair Amy Sole and friends at Carnaval at the Copa.

C) Co-chairs G. Pennington Egbert III, Missy Egbert Sheehanand Georgina B. Schaeffer at Celebrate Spring.

D) Rachel Isenberg and Douglas Briller at Mt. Kilimanjaro.

E)Nicholas Tarallo, Belkis Rosario, Jeffrey Miller, Debra Castiglione and Marc Pillinger at the 6th Annual PillingerMiller Tarallo, LLP, (PMT) Golf Outing.

F)Molly Riddick and friends at the Second Annual Pancakesfor Parkinson's benefit.

G) PDF Executive Director Robin Elliott, Board MemberMargo Catsimatidis and John Catsimatidis at Bal du Printemps.

H) PPAC Member Tom Palizzi and family who generously re-placed their Christmas exchange with a donation to PDF.

I) Family and friends celebrate the life of Ernest G. Spence with a New England-style contradance.

J) John Morris and friend at his Bicycle Across New York State event.

K) Edward Barsamian, Cornelia Ercklent and Jeffrey Caldwellat Celebrate Spring.

L)Molly Eger and PPAC Member David Eger at the Ninth Annual Music for Parkinson's Concert.

M) Pam Quinn and Lucy Roucis at Bal du Printemps.

N) Pamela Strom and Susie Prestie at the first Standup to Parkinson's Race.

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Our Donors

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Our Donors

The following individuals, families, foundations and corporations have made cumulativegifts of $500 or more to PDF between July 1, 2010 and December 31, 2011.


Colman and Nancy Abbe

Kyle W. Abel

Robert and Georgean Abels

Andrew Abramson

Andrew and Danielle Abramson

Shirley Abramson

Leslie J. Acherman

Stephen and Marsha Ackerman

Carol H. Adragna

Dr. Avadesh and Uma Agarwal

Sunil Agrawal

Mark A. Ahlemann

Roger E. Ailes

Mr. and Mrs.Thomas S. Alexander

Bill and Diane Allen

George and Jodie Allen

Janet S. Andersen

Eric A. Anderson

Janet Anderson

Mr. and Mrs. Nigel Andrews

Joe Andronaco

Eric Appelbaum

Salvatore Armenio

Daniel Armstrong

Jeffrey and Shari Aronson

Walter E. Arps

Mark E. Arroll

Simon Asselin

Edgar Astrove

Shahid Atcha

John and Anne Atherton

Allan Atmore

Norman and Alison Axelrod

Harry Bailey

Patricia P. Bailey

Robert and Barbara Baker

Sharon and William Baker

Alex Balanevsky

Thelma and Ray Balbes

Byrd and Alice Ball

Florence Barad

Sandi Bartel

Walter Bates

Doris Bato

Peter M. Bauer

Sandra Beal

John and Virginia Beaman

Michael and Marcia Beck

Bernie and Wendy Beiser

Mr. and Mrs. Frank M. Bell, Jr.

Janet and Lawrence Bell

Alfonso C. Bellanca

Marvin Bellin

Mark Belotz

Dr. Gardner and Patricia Bemis

Don and Carol Bender

Tom and Anne Benedict

Alison Benge

Robert Benjamin

Frank A. Bennack

Jack M. Berghuis

James and Suzanne Bergoffen

Donald Berkowitz

Martin Berkowitz

Deborah Berman and Bruce Greenberg

Bernard Berner

Arnie Bernstein

Daniel and Shelolia Bernstein

Josh Bernstein

Richard A. Bernstein

Neil and Marilyn Bersch

Mr. and Mrs. David M. Berwind, Sr.

Morris Berzon

David and Jo Anne Bescherer

Beth Besen

Latchmin Bharat

Mr. and Mrs. Alan L. Bibby

Kevin and Debbie Biddle

Louis Bigliani

Andrea Billhardt

Simran Bindra

Jules and Helen Bingham

Maurice and Sarah Birdwell

Lewis Black

Page Morton Black

James Blackorby

David H. and Mary B. Blair

Cliff and Arlene Blaker

James and Carol Blann

Moshe Blich

Sean and Rosanne Bloodwell

Herschel and Rita Bloom

Theodore and Flora Blumenthal

James Bobo

John and Barbara Bohannon

Richard Bohlen

Rose-Marie Boller

Joan R. Bolling

D. R. Booker

Andrew Bookout

Edward C. Booth

Charles A. Bordner, Jr.

Stephanie E. K. Borynack

Patrick and Martha Boudewyns

Diana Bouton

Dierdra Bowditch

Grace Bowman

James and Michelle Bowman

David Bradford

Mary Ann Bradham

Sandra Brawner

Bill and Terri Breach

Michael and Tracess Brenner

Carol S. Brewer

Hon. Gale Brewer

Irving G. Brilliant

Toby Brimberg

John and Patty Brissenden

Jill and Ken Brodkowitz

Robert and Judith Brody

Doug Brown

Edward and Karen Brown

James S. Brown

Michael Brown

Dr. Russel and Dr. Susanna Brown

David and Susan Brunell

Nancy F. Brunetti

Gregory Bruns

Bunyan Bryant

Amy and Arthur Buckman

Mr. and Mrs. Mark Budd

John and Mary Ann Bumgarner

Individuals

Our Donors | 19

Klaus and Robyn Burckhardt

Pamela B. Burgess

Nancy Burke

Dr. Robert Burke and Dr. Sharon Wardlaw

James and Debbie Burrows

Judy Buyan

Peter and Barbara Bye

Robert and Patricia Caldwell

Marvin S. Caligor

Pete Campbell

William R. Campbell

Joaquin and Angela Campo

James M. Cantrell, Jr.

Jeff and Dieta Cao

Robert and Mary Capaldi

James and Mary Jo Capps

Karen Card

Sharon Cardinal

Peter Cardozo

Mr. and Mrs. Raymond W. Carlin

Martha B. Carlisle

Lisa L. Carnoy

Ed Carson

Benjamin Carter

James and Nancy Casty

Lee S. Casty

Ronald G. Casty

John and Margo Catsimatidis

Mike and Joyce Caudill

Gregory and Amy Cecchi

Mr. and Mrs. Bernard D. Chalfin

A. W. Chandler

George Chang

Robert Chang

Robert Chartoff

Carol and Stephen Chase

Mr. and Mrs. Adam Chasnow

Howard and Shiow Ling Chen

John and Julie Chen

Tom and Shwu Mei Chen

Kang Cheng

Terry and Brooke Cheng

Mr. and Mrs. Thomas Cherner

Shuet-Hing L. Chiu

Albert and Vera Chrone

Richard Churchill

Wayne Citrin and Deborah Arhelger

Carol C. Clark, Ph.D.

Aaron and Wendy Clayton

Marlynn Clayton

Mary Jane and Carleton Cleveland

Ralph Cline

Jean Clovis

Mark Coatney

Andrew Cochrane

Dr. William Coggshall

Norman Cohan

Dayl Cohen

Mendel Cohen

Gerard Cole, Jr.

Maureen Coleman

Debra M. Collins

Arlene and Walter Cooper

Mr. and Mrs. Thomas A. Cooper

Dr. and Mrs. Frank J. Coppa

Katharine T. Cornelius

Arnold S. Corrigan

Betty Cotton

Norman and Helen Coulson

Dr. C. W. Cowles

Matthew and Janice Coyle

Matthew Coz

William Cribbin

Sally S. Cross

Rev. Carol C. Cruikshank

Jose R. Cruz

Jennifer Csorba

Daniel and Maureen Cummings, Jr.

Mr. and Mrs. William Cunningham

Gene and Judi Curry

Barry Curtis

Christopher Curtis

John Czarnecki

Mr. and Mrs. Stephen D'Amato

Mr. and Mrs. Phillip A. Daniel

Philip and Mark Danely, Jr.

John Danstrom

Mr. and Mrs. Alex Darragh

Beverly Dashevsky

Diana H. Davis

Mr. and Mrs. Monty Davis

Ellen R. De Carr

Elizabeth de Lima

Dr. Linton Deck

Thomas Y. Deconcilis

Stephen and Kristine Delay

Guido D'Elia

Rance and Donna DeLong

Cynthia Deluz

Walter Dennis

Deborah DePace

Anthony DePaolo

Virginia Y. Detoy

Max S. Deutsch

Brett DeWolfe

Jerry Diamondstein

Mr. and Mrs. Chris J. Dicharry

Mark Dickinson

Ervin Dieckhoff

Albert L. Diringer

Aida S. Dishman

Lawrence Dobrow

Gary R. Dodman

Kathleen and Eamonn Dolan

Mr. and Mrs. Francis Donnantuono

Michael Donnantuono

Julie Donovan

Christine A. Doyle

Mr. and Mrs. David A. Dray

Lyle Drews

Jennifer Driana

Chris and Jill Drury

Mark and Lorraine Duewiger

Richard and Jane Dunbar

Bob Duncan

Harold Dunlap

Roger C. Dunn

David and Carole Ebner

Brian and Karen Eckhart

Hollis and Sharon Eddins

Arthur and Martha Edelstein

Mark Edie

Loralee Edlund

Abbie Edwards

G. Pennington Egbert III

Mrs. George P. Egbert, Jr.

Adele Eger

David and Jane Eger

Ronald A. Eger

Soral Eglowstein

Roberta Ehre

Dr. N. J. Ehrenkranz

Frances Ehrlich

Robert Eidelberg

Charlotte Einstein

Stafford Elias

Robin A. Elliott and Dr. Sheila Gordon

Patricia and Daniel Ellis

Paul Ellis

Ernest Ellison II

Samuel and Maryann Ellsworth


James A. Emanuele

Dr. Renee Epstein

Steven and Linda Epstein

Mr. and Mrs. Jeffery Ettinger

Ellen Fagan

Dr. Stanley and Charlotte Fahn

Fernando U. Fajardo

Paul Falick

John P. Falk

Dr. Andrew Farb

Kenneth H. Fast

John Fatteross

Burt and Noelle Faure

Gian M. Favalli

Leonard and Gloria Fazio

Dr. Daniel Feinberg

Barry A. Feldman, D.D.S.

Mr. and Mrs. Paul Feldman

George F. Fesko

Richard Field

Philip Fierro

Sheldon Fireman

Joseph R. Fisher, Jr.

Mr. and Mrs. John J. Fleps

Margery Z. Flicker

Dr. Ann E. Fordham

Mr. and Mrs. Alan J. Forman

Cathy Forsberg

Dr. and Mrs. Brian Forst

Jack Fortinsky

Dr. and Mrs. Edward F. Fox

Patrick Franc

Jonathan Franzen

Kristina Fresk

Dr. and Mrs. Lawrence Friedman

Elizabeth B. Friou

Dr. Paul A. Fuchs

Mark Funderburk

Russell Furtick

Rose Mary and Dan Fuss

Ronald and Kroupa Galowich

Sarah Belk Gambrell

Alan and Marion Garfield

Diane Garrett

Eleanor Gatto

Mr. and Mrs. William R. Geist

Venita Georgieff

Mr. and Mrs. Daniel Gersen

Brian J. Gettleman

Helen D. Gibbons

Gerald Z. Gibian

Joel Gibson

Nora Gibson

Robert M. Gilhooley

Christopher Gillock

Anthony and Susan Gilroy

Dr. Laura Ginkel

Mr. and Mrs. Myron Ginsberg

Robert and Gail Ginsberg

Don S. Ginsburg

Catherine Giordano

Betty and Max Glass

Carol Glickenhaus

Stephanie Gluck

Morton D. Goetz

Edythe Gold

Nancy Gold

Michael and Anne Golden

Stanley F. Goldfein

Alvin Goldman

Amy Goldman

James and Sarah Goldman

Stephanie Goldman-Pittel and Andrew Pittel

Dr. Thomas R. Goldsmith

Jerome Goldstein

Mr. and Mrs. Benjamin Gomez

Charles E. Good

Richard Goodman

Dr. Robert R. Goodman

Sarah Goodman

Preston Goodrich

Verma Goodwin

Alan L. Gordon

Carol E. Gordon

Mr. and Ms. James A. Gordon

Stephen Gorny

Peter John Goulandris and Dr. Karen E. Burke

Richard Gourdeau

Mr. and Mrs. Thomas G. Grace, Jr.

Stephen L. Graessle

Rachel Granger

Dr. Michael and Dena Granhof

Christine Grant

Patrick J. F. Gratton

Helen W. Gray

Kent Gray

Mr. and Mrs. Alan C. Greenberg

Betty Jo Greenberger

Sherwin Greenwald

Mr. and Ms. Nicholas P. Greville

Mr. and Mrs. John Scott Griffin

Andrea Grillini

Pete and Emily Gross

Sharon Grossman

Lillian M. Grossman-Strater

Leonard and Jennifer Gruenberg

Nicole D. Guidara

William and Ruth Gulick

Geoffrey and Sarah Gund

Sharyn L. Gunderson

Arlen R. Gunner

Shelly Guo

Jon and Stevi Gurkoff

Andrew Gustin

Lydia Gustin

Mark Guzzi

Lois Gwinn

Dr. Ann Rita Hader

Scott D. Hahn

Michael Halchak

Jeffrey Hamer

William Hamilton

Charles Hammer

Norma Hammond

William Haney

Sulabha V. Hardikar

J. Alan and Karen Harding

Katie Harms

Gilbert Haroche

Nancy Harold

Steven G. Harper, M.D.

Benjamin and Doris Harwell

Diane Harwood

Don Haslett

Mr. and Mrs. Jeffrey Havsy

Russell and Wilma Hawk

Jimmie and Kurt Hayek

Susan Heidenberg

Dr. John and Peggy Heilman

Jean Kenna Heins

Sydney and Roslyn Helfen

Mr. and Mrs. Lewis Helfstein

Richard and Rose Henneberger

Troy D. Henry

Michael W. Herlihy

Margaret S. Herold

Philip C. Herr II

Mr. and Mrs. Stuart A. Hersch

Dr. Daniel and Ms. Natalie Hertz

Individuals

Our Donors

Our Donors | 21

Henry G. Herzing

Mr. and Mrs. Steven Herzog

George and Jennifer Heseltine

Steven and Sherry C. Hibshman

John Hickey

William and Mary Hicks

Richard L. Hildbold

Mr. and Mrs. Lane M. Hill

Majorie and William Hill

Sara Hill

Jean Hilton

Nancy E. Hinkley

Mr. and Mrs. Robert F. Hirsch

Anna Ho

George Hoberg

Bryan Hockman

Ian Hodgson

Monty Hoeflein

Elizabeth and Marvin Hoekstra

Robert Hoemeke

Jeffrey A. Hoffman

Mr. and Mrs. Neil Hoffman

Philip and Mary Hogan

Stephen and Margot Holland

Karen Holmes

Alexander Holtzman

Katherine Hopkins

Sandy and Bruce Horn

Mr. and Mrs. Jerry Hornstein

David L. Horwitz

Andrew and Susan Howard and Family

Elmer Hsu

Deborah and Alan Huber

Harold and Pamela Huberfeld

Helen Hudgens

Patricia H. Huggard

Seth Huhnerkoch

Raymond Hull

Helen C. Hutchison

Mr. and Mrs. Mark Indelicato

Dianne C. Isenberg

Cliff Ishmael

John Isley

Nancy L. Isserlis

William and Judith Jackson

Mr. and Mrs. Alan L. Jacobs

Randi S. Jacobs

Selwyn and Marjorie Jacobs

Denny P. Jacobson

Ben Jacoby

Peter H. Jakes

Allan Janoff

Richard N. Jayson

Judi Jecmen

Mr. and Mrs. Arthur P. Jentoft

Dean O. Jeynes

Donald and Marian Johnson

Kevin P. and Laurel E. Johnson-Smith

Mary Johnson

Michael D. Johnson

Rhona B. Johnson

Thad and Suzanne Johnson

Crandall D. Jones

David and Carolyn Jones

Nathanial and Judith Jones

Eleanor N. Jordan

Robert and Sheryl Josephson

Rosemary Joyce

Leslie Kahn

Sherrie Kaiser

Andrew Kampf

Daniel and Susan Kane

Zelma Kangas

Henry Kaplan

Chris and Marnie Kapuscinski

Gary M. Karlitz

George Karnoutsos

Andrew C. Karp

Richard and Jane Karp

Karoly Kasza

Arnold A. Katz

Steven Katz

Mr. and Mrs. Lawrence Katzman

Suzanne M. Kavetas

Lori Kay

Paul Kebabian

Christopher Keber

Judithann C. Keefe

Mr. and Mrs. David C. Kell

Dr. David L. Keller

Mr. and Mrs. Lawrence Keller

Edward Kelly

Kathleen D. Kelly

Mr. and Mrs. Robert Kennedy

Arthur and Nancy Kesselhaut

Fadi Khater

Mary and Franklin Kilgore

Sarah King

A. E. Kinnison

Kaitlyn L. Kinsey

Linda S. Kinzelberg

Clarence Kipps

John Kirrane

Barbara Kirsh

Stephen Kish

Nicholas Kissel

Kevin Kissell

Dr. and Mrs. Francis l. Kittredge

Andy Klein

Gary M. Kleingartner

Mr. and Mrs. Edward Kleinshmidt

Joel N. Klevens

Dr. David L. Klionsky and Eva Youshock

Randolph S. Klueger

James Knowles

Suzanne Knowles

Edgar and Eileen Koerner

Mr. and Mrs. A. Eugene Kohn

Shiro Koike

Patricia Kolb

Isobel R. Konecky

Mr. and Mrs. Robert Kooiman

Kristijan Kordic

Cheryl R. Korth

Kay Kowitt

Mary J. Kraaij

Henry E. Kramer

Phyllis Kravetz

Seymour Kreshek

James Kress

Midge Kretchmer

William Krieg

Mark B. Kristof and Beth V. Ward

Babette E. Krolik

Gloria Kronenberg

Mr. and Mrs. Rhett Krulla

Carol Kuchar

Howard and Gail Kunreuther

Howard C. H. Kuo

Barbara Kyse

Patrick LaGrange

Louise M. Lallier

Lawrence Lam

Gordon Lambert

Family of Ann and Scott Landes

Nancy and Kenneth Landes and Family


IndividualsRobert F. Landy

Mark Lane

Merry and Martin Lapidus

Mr. and Mrs. Manuel Larramendi

Robert and Susan Larson

Roxana Laughlin

Robert O. Laven

Sarah Le Sueur

Mrs. Gene G. Leary

Pauline M. Lecomte

So Young Lee

Brian Leffler

Suzanne M. Leggett

Mark and Gaby R. Lehrer

Mr. and Mrs. Mark Lehrer

Thomas Lehrer

Mike Lein

Jill Leinbach

Laurie Leiner and Morton Katz

Walter F. Leinhardt

Jeffrey and Penelope Leman

Johanna K. Lemlech

Jason Lerman

Dr. Ilan and Dr. Barbara Levi

Dina L. Levin

Francine and Irwin Levine

Jerome and Arlene Levine

Muriel G. Lewis

Constance E. Lieber

Anita and Stanley Liebowitz

Stanley and Susan Liebowitz

Mr. and Mrs. William Lifland

John and Catherine Liguori

Ruth V. Lilley

Betsy Lim

Mr. and Mrs. William M. Linden

Edward and Sylvia Linhares

Richard Linhart

Joan Lipkowitz

Cara Lipshie

Mr. and Mrs. Joseph Liss

Mark and Judith Litt

Stephen Littman

Theresa Lo

William Lockeretz

Marshall Loeb

John T. Loftus

Bruce and Priscilla Long

Mr. and Mrs. Douglas Long

Gloria Long

Jim Long

Mr. and Mrs. Robert Long

Robert D. Lonier

Gilbert Louzoun

Dina Lowy

Anthony and Lillian Lu

Chris P. Lucas

Joseph and Patricia Luetje

Mr. and Ms. Walter Lyczkowski

Hsiang Lin Ma

J. W. and Emily Maallister

Marcia L. Mac Harg

Joanne C. MacCallum

Daniel Maddalena

George R. Mahoney, Jr. and Linda L. Mahoney

Mr. and Mrs. Burton C. Mallory

Larry and Janis J. Malone

William and Catherine Mandi

Ellen H. Manian

On-Hou Mar

Sidney and Phyllis Margolis

Linda Markeloff

Rebecca Markley

Kay Marmorek

Lucille Marquez

Sharon R. Marr

David J. Marx

Yvonne L. Mason

Catherine and Allan Mathis

George and Priscilla Matouk

Mr. and Mrs. Ray Matra

William and Gail Mattsson

Diane Matusiak

William and Natalie Mauskopf

Robert M. Maxwell

Michael and Jessica Mayerson

William McAlee

Robert and Marsha McCleary

Michael and Cynthia McConnell

Everett McCubrey

Erin McGarry Cubero

Charles McGeown

John and Helen McGrath

Kevin M. McHugh

Dr. Guy McKhann

Gordon McLean

Charles A. McMellon

John P. McMichael

Molly McMillan

W. McMillin

Claire A. McNary

Mr. and Mrs. Stephen J.McShane

Mary J. Meehan

Jane Meeker

David Melillo

Merle D. Melvin

Dr. Vincent Memoli

Andrew and Brigittar Menard

Dr. Robert Mencher

Robert and Kathleen Menifree

Craig A. Merdian

S. W. and Joan Metcalf

Joseph W. Metz

Milton and Cheryl Mill

Mr. and Mrs. Doug Millar

Dr. David Miller

Jody Miller

Kendall L. Miller

Michael Miller

Richard and Lois Miller

Mark Milstein

Eugene and Barbara Miltenberger

Christina Milton

Carol M. Miner

Marion and Walter Minton

Dr. Martin Mintz and Ms. Cynthia Mintz

Alan B. Mirken

Zareen Taj Mirza

Lawrence J. Misrok

Dr. Ena E. Mocega, M.D.

Gina Modica

Gretta and Lee Mogel

Andrea Moletteri

John P. Molloy, Sr.

Louis Monaco, Jr.

Donna Mondani

Elena Mondini

Christopher Montgomery

Jan M. Montgomery

Mr. and Mrs. George E. Moore

Mr. and Mrs. Robert E. Moore

Mr. and Mrs. David Moorman

Miriam Moran

Howard and Ginger Morgan

Peter A. Morgan

Florence Morris

Jay B. Morrow

Pam Moshe

Steve Mount

Paul V. Mrugacz

Our Donors

Our Donors | 23

Thelma R. Balbes

James and Suzanne Bergoffen

Rose-Marie H. Boller

Irving G. Brilliant

Mr. and Mrs. Mark Budd

Robert Chartoff

William Cunningham

The DuBose Family Foundation

Bob Duncan

Paul Ellis

Epstein, Becker & Green, P.C.

Ferguson Family Trusts

Ronald H. Galowich

Stanley F. Goldfein

Preston Goodrich

Wilma P. Hawk

Majorie and William Hill

Eleanor N. Jordan

Light of Day Foundation, Inc.

Mark D. Litt

Burton Mallory

Ellen H. Manian

Andrew Menard

MetLife Alico

Joseph W. Metz

Marion Minton

Andrea Moletteri

Sunil Nayar

Robert Northington

Dorothy S. Oda

Rick Oddo

John and Marnie Olson

Michael Opalak

Monica Reed

Stephen Reed

Ezra and Nilofer Reese

Henry Richmond

Sherie Ritzler

Christopher Rohwetter

St. Jude Medical Center

Stan M. Sandberg

Arnold and Marie Schwartz Fund

Clyde W. Smith

John W. & Laura S. Stewart Foundation

Rebecca C. Swan

Martin Typer

U.M.R. Foundation

Mark Viviano

Irving G. Brilliant Research Challenge Supporters

We thank these contributors to the Irving G. Brilliant Research Challenge 2011 who gave $500 or more and whose gifts were matched by

Mr. Brilliant for a total of $400,000 raised for Parkinson's research.

Diane M. Mueller

Kenneth N. Munsen

Mr. and Mrs. Michael Murphy

Elizabeth Murray

Kenneth Musen

Frances F. Musser

Jean Myers

Melissa Nace

Sarita Narson

Paul and Marcy Nathan

Sunil Nayar

Douglas C. Nelson and Jean A. Douglas

Ruth K. Nelson

Bernard and Sandra Newman

Maggie Nicholas

Pearl Nicholls

Magda Nieuweboer

Sally L. Nightingale

Agnes Nixon

Jim and Marla Nock

Edward J. Noha

Lloyd Noland

Robert Northington

Sabato Noto

Allan Novak

Mr. and Mrs. Eugene A. Nowell

Carol Noymer

Mr. and Mrs. Lawrence C. Nussdorf

Terrence C. O'Bar

Bernice S. Oberndorf

Mr. and Mrs. George O'Connor

Thomas and Dorothy Oda

Rick Oddo

Debra Oden

Robert Ogden

Kathleen O'Grady

Christopher and Lilla Ohrstrom

Carol Okane

Aksel Olesen

Donald Olson

John and Marnie Olson

Mr. and Mrs. Timothy Onders

Michael Opalak

James Orsini

Neal Ortenberg

Debra Osburne

Mila A. Ostin

Don Oswald

Mr. and Mrs. Robert Paglia and Family

David and Judy Pahren

Arthur Palik

Tony Pallagrosi

James Palmer

Dr. Pasqual J. Pantone

Blaine Parkin and Maralee Chase Parkin


IndividualsAlan Patricof

Hugh L. Patterson

Randall and Mary Payne

Sandy Payne

Melba Pearlstein, Esq.

Dr. and Mrs. Timothy Pedley

Deborah Pelle

Val R. Pemberton

William S. Penick

John C. Pepples

Shirley Perez

Theresa D. Perl

Dr. Carolyn Perla

Harvey and Irene Pessar

Mr. and Mrs. Frank A. Petitti

George Petras

Col. and Mrs. John Phelps

Eleanor and Richard Phillips

Stephen and Patricia Pickering

Donna Pickett

Colin G. Pitt

Nina Platt

Carol Pogash

Marilyn J. Polansky

Drs. John and Susan Pollack

Richard and Anita Pollak

Ruth Pollack and Martin Bressler

Deborah Pollard

Sheng-Shung Pong

Carlyn G. Poole

Mr. and Mrs. Henry A. Pope, Jr.

James and Sandra Porter

Louisa and Henry Porter

Margaret Posthumus

Ruth Ann Potts

Dr. Matthew Power

Arjun Prabhu

Jack and Pamela Preston

Frederick Prince

Ronald D. Provost

Dana C. Puddy

Bhaskar Pulikal

The Roland T. Quade Family

Marjorie Quaife

William Rabbe

Mickey and Ellen Rabina

Jeffrey Rabinowitz

W. Matt and Amelia Ralls

Gerald and Barbara Ranzal

Cathy Raphael

John Raphael

Debra Raskin and Michael Young

Michael and Kristin Reed

Dr. Monica Reed and Stanton Reed

Stephen Reed

Mr. Ezra and Dr. Nilofer Reese

Ralph and Barbara Reis

Aleks and Stacy Renshaw

David and Nancy Resnick

Dr. Margaret E. Rice

Harold V. Richard

Anthony and M. Allison Richards

Paul and Tanako Richards

Henry and Renee Richmond

Mr. and Mrs. Alan B. Richstein

William and Sandra Richter

Mr. and Mrs. Michael A. Riddick

Sandra L. Rigopoulos

William F. Ringier

Frank Ritchey

Sherie Ritzler

Drs. Lawrence J. and Carol L. Rizzolo

Brenda G. Roberts

Dawn Roberts

Mr. and Mrs. Jeffrey D. Roberts

Thomas and Brenda Roberts

David Robinson

Sally Robinson

Dr. Jean-Christophe Rochet

Karin Rodgers

Hazue T. Rogers

Fritz Rohrlich

Christopher Rohwetter

Robert and Heddie Romanoff

The Romero Family

John Rosecky

Mark Rosen

Charles A. Rosenbaum

Jean Rosenberg

Mr. and Mrs. Edward Rosenblum

Carol Rosensweig and Charlene D. Grant

Melvin S. Rosenthal

David and Nadine Ross

Dr. Harley A. Rotbart

Dr. Deborah C. Roth and Jack Roth

Melissa Roth

Mr. and Mrs. Steven Rourke

Dr. and Mrs. Lewis P. Rowland

Robert Rozak

Hedda Rublin

Carl Russell

Ken W. Ryder

Jamie Saccardo

Mr. and Mrs. Paigualina Sacchetti

Steven B. Sadler

Albert and Jane Safer

Saul M. Salka

Stan M. Sandberg and Stacey J. Mayesh

David Sands

Hellyn L. Sarek

Lawton Sargent

Scott Sassa

Mr. and Mrs. Gary Satterthwaite

Andath L. Saunders

Daniel C. Savitsky

Anand R. Savur

John and Deborah Scanlon

Mr. and Mrs. David S. Schaefer

Donald A. Schaefer

Heather Schaefer

Matthew J. Schaeffer

Dr. Neil Schiff and Patrice L. Schiff

Keith E. Schilder

Susan Schindler

Steven Schirripa

John Schlarbaum

Dr. Gregory and Patricia Schlegel

Dr. Herbert Schlesinger

Carole Schlessinger

Robert E. Schmitt

Fredrick and Karen Schneider

Marriane Schnell

Jay and Suzette Schochet

Charles and Kathren Schreck

Dr. Thomas J. and Jean Schreiber

Michael Shrimmer

Mr. and Ms. Craig Schrock

Shelley and Blair Schrum

David M. Schuld

Brian and Kathy Schultz

Eric Schwartz

Howard and Phyllis Schwartz

Marie D. Schwartz

Martin Schwartz

Max and Nancy Schwartz

Our Donors

Our Donors | 25

Gertrude S. Bell

Roger M. Bowman

Ann Cavalli

Aila G. Dawe

Jean Dewdney

Guy Estes

Elizabeth A. Geiser

Matilda Goodman

Eleanor N. Jordan

Annette Korn

Viola B. Marshall

Edith Perman-Allen

Marie D. Schwartz

Stephanie and BernardSchwartz

Mr. and Mrs. Robert W. Smith

Charles L. Thomas

Lucy Veneble

M. R. Weingardt

James B. Wittrock

James Parkinson Legacy Society

We thank these members of the James Parkinson Legacy Society who have included PDF in their estate plans or have established

a charitable gift annuity with us.

If you have made estate plans which include PDF or wish to establish a charitable gift annuity which provides you withincome for life, please contact Eddie Pelto, Director of Development, at (800) 457-6676.

Dr. Regina Schwarz andDr. David Aftergood

Ethel L. Schwarzman

Mr. and Mrs. Frederick Schwarzmann

Thelma J. Scott

Joel and Kathy Segall

Ethel Seife

B. Semmel

Edward and Cynthia Seretan

Dr. William D. Severinghaus and Mary C. Severinghaus

Douglass and Julie Shands

Brenda M. Shapiro

Jerome Shapiro

Leslie C. Shapiro

Ronald and Evelyn Shapiro

Candy G. Shaw

Felice K. Shea

Dr. Sam Shelanski

Debbie J. Shepherd

Roger and Ewanna Sherburne

John Sheridan

Jack and Paula Sherman

Dr. and Mrs. Thomas Shiftan

Gary I. Shimoda

R. L. Shoemaker

James and Susan Show

Rose L. Shure

Stanley Sidel

Ms. Janice Siegel and Dr. Lloyd Marks

Arthur and Dr. Sandra Siler

Julie Silva

David Silverman

Paul Silverman

Mr. and Mrs. Mark K. Silverstein

Robert and Kathleen Simione

Ian Simmonds

J. Robert and Linda Sims

Phillip S. Sirianni, Jr.

Samuel J. Sirota

Arline B. Slepoy

Catherine Slivinske

Jeffrey Sloan

Mr. and Mrs. Richard Sloan

John F. Slusser

Dr. and Mrs. Bernard E. Small

Alexa Smith

Clyde W. Smith, Jr.

James Smith

Kathryn Smith

Steve Smith

Mr. and Mrs. Marcellus Snow

Mr. and Mrs. Paul W. Snyde, Jr.

B. Robert and Mary A. Snyder

Glenn Snyder

J. Clifton Snyder and Lillian Gordon Snyder

Amy Sole

Dr. Stanley Sollie

Dr. and Mrs. Marvin Solomon

Phyllis Sonnega

Douglas Spaniol

Stacie Spector

Sue Sperger

Jerry I. Speyer

Joseph and Louise Spiezio

Earl and Dolores Spurrier

Matt and Barbara Stanek

Alice M. Starr

Roger and Marianne Staubach

Carolyn Stearns

Carol Stegink

Dr. Philip Stein and Bonnie Stein

Rita R. Steinberg

Gail Stelter

Jonathan and Sydney Stern

Louis and Freya Stern

Russell and Meryl Stern

Sandra and Evan Stern

Todd D. Stewart

Mr. and Mrs. Abbott Stillman

Dr. Alvin M. Stinson and Annette Stinson

Rev. F. Barry Stipp and Colette Stipp

Scott Strickland

Warren and Frances Stricoff

Richard Strobel

Christianna L. Strohbeck and Dr. Ramaswamy Murari

Lindsey Strubhar


Alberto and Lynda Ann Strulovic

Yves T. Struye

Jessica Stuart

Christopher and Mary Jo Studwell

Sharon Sturges

Laura Sudar

Vivian and Charles Sukenik

Anthony and Sylvia Summa

Ram and Preethi Sundaram

Rebecca C. Swan

James and June Swartz

Edward and Nancy Sweeney

Diane Swonk

Kevin V. Symmons

Laura J. Taff

Charles Talcott

James and Mary Talmage

Gordon Tannura

Catherine Targowski

Carol and Melvin Taub

Mary Elizabeth Taylor

Michael Tedesco

Louis Teitelman and Family

Nathan and May Teitelman

Rocky and Cindy Terrel

John and Carmen Thain

Ann Thompson

Mr. and Mrs William S. Thompson

Melvin and Charlotte Timm

Mr. and Mrs. David Timony

Zane G. Todd

John and Patricia Toebe

Maureen Tokar

Mr. and Mrs. David Tolli

Rhonda Tomashefsky

Alison Torres

Marshall and Gloria Tucker

Francine Turk

David and Sharon Turner

Martin Typer

Dr. Richard and Gail Ullman

Rodolfo Urbina

Johanna M. Utrecht

Lester and Antonette Vaccari

Louis Vaccaro III

Russell and Whitney Van Nuis

Leslie Van Meir

Benjamin and Deborah Varat

Craig Varrelman

Mr. and Mrs. Jeffrey D. Varsa

Yvonne Vasicek

Marshall Vass

Richard N. Vaughan

Mary Ann Veitch

Renzo Vescio

Edward M. Vietor

Joseph Virgilio

Mark Viviano

Frederick and Toni Von Zuben

Matthew and Sonja Vorwald

Jules and Florine Wachter

Richard and Cheryl Wade

Doris C. Wages

Mr. and Mrs. Alan S. Waldenberg

Dan Walsh

Regina Wang

Mary Wardell

Audrey Warfield

Sandi Wasch

Lori L. Wasserman

Toshi Watanabe

John W. Watkins

Eliot R. Wax

Betty Weber

Jane and James Webster

Evelene Wechsler

Audrey and John Wee

James M. Weichert

Kenneth and Susan Weil

Andrew Weinrich

Herbert and Judith Weintraub

Sally W. Weintraub

Mr. and Mrs. Bernard W. Weiser

Beverly Weiser

Dr. James Weiss

John Wellsandt

Delores E. Westphal

Nancy M. Wheeler

Jennifer and Robert Wheelock

Lawrence E. White

Pamela White

Mary Wiebke

Robert and Sherry Wiener

Robert and Carol Wilder

Jeffrey and Lise Wilks

Kenneth and Kimberly Williams

Wendy Williams

Dr. Philip J. Wilner

Kenneth R. Wilson

Belinda Windsor

Dorothy Winkey

Michael Witter

Joel Wojnilower

Adam Wolfberg

Ann Wolfe

Eve Wolff

Fred and Mary Woodlief

Rosalind Woolf

Walter E. Woolsey

Dave Wopat

Terry and Karen Wright

Jerome and Selma Yaguda

Yi Tien Yang

Pamela Yin

Beverly Yoder

Susan and Nathan Yost

Jeanne Young

Larry Young

Peter M. Young

Kathy Younkins

Pat Younts

Lou and Gail Zaccheo

Jed and Brenda Zachs

Edward Zajac

Rose Zaretsky

Christine Zeisler

Mr. and Mrs. Robert Zelnick

Mr. and Mrs. Robert M. Zemsky

Judy Zendell

Louis G. Zimmerman

Cynthia Zirinsky

Melvin and Esther Zirkes

Donald and Lynn Zucker

Susan Zwick

Individuals

Our Donors

PDF Champions

We thank our PDF Champions whose efforts from July 1, 2010 to December 31, 2011 helped us fund promising research and also raised awareness in communities around the US.

Our Donors | 27

3 4 Fighting PD

Alethea Bancale – Niagara Falls International Marathon

Diane Banks – Sycamore Hills Golf Fundraiser

Natasha Brown

Tomee Brown

Gary Chard – Gary's 60th Birthday Party

Matthew Coz – Burning River 100 Mile Endurance Run

Lindsay Borsack Cruz – More Magazine Fitness Half Marathon

Jason Davis – Bill Lowery Memorial Fund

Brian DeFord – DeFord Mountain Hike

Maria De Leon, M.D.

Cindy DeLuz

Deana DeModena

Brett DeWolfe – Iron Man Challenge

Naomi Diep

Theresa Donahoe

John D'Onofrio

David J. Eger, Ph.D. – Music for Parkinson's Research

Jeni Forshier-Jenkins – Shuffle and Shake – Parkinson's Awareness

Ashley Garrett

Antoinette & Ken Geraci

Linda Giorgilli-Rice

John Gollisz

Alexandria Gorski – Gorski PD Month

Andrea Grillini – Car Wash For PD

Hillary Hackett –Wake Forest Run/Walk in Honor of Uncle Barry

Jay Hebert – Parkinsons In the Park

Clayton Henderson Memorial

Michael Hornung – Splash for a Cause

Rachel Isenberg – Half-Marathon Philadelphia; Pittsburgh to Philly Bike; Mt. Kilimanjaro Climb

Randi S. Jacobs

Becky Jarnagin

Elizabeth Keshish

June Keszeg

James Knowles

Tammy Kozumplik – Cut-a-Thon

Ivory Latta – 1st Annual Ivory Latta Celebrities for Parkinson's

Adrienne, Peter and Miranda Lee

Rachel V. Loeser

Jill Markey – Doug's Wild Ride

Julee Masters – Cakes Creations and Co

Charles F. McGeown – McGeown Golf Tournament

Kayla McKibben – Dancers Who Care

Kristian Melby – NYC Marathon

David P. Melillo – Zwick Pro Am Golf Tournament

Jesus John Scott Michael – Poker for Jesus

Greg Mocarski – Running for Faye

John Morris – Bicycle from Montauk Point to Niagara Falls

Lori Morrow – Chicago Marathon

Paul V. Mrugacz – Chili Cook Off

Denise Mullineaux

Jennifer Neathery – Neathery Nashville Marathon

Tom Palizzi – Tom Palizzi and Family Holiday Giving

Parkinson's Support Group of the Mid-Hudson Valley Inc –Walk Over the Hudson

Marina Parrish

Jim Patterson – Pints for Parkinson’s

Crystal Penney –Wedding of Crystal & Tom

Rita Peters – Oklahoma City Marathon

Lisa Piccirillo

Debra Pinon

Tanya Puckett – Albany, GA Marathon

Deb Rabinowitz – Every Day Sundays with Mollie

Alexander Ranieri and Kristina Mazzone – Long Island Half Marathon

Don Rempher – Hiking the Pacific Coast

Molly Riddick – Pancakes for Parkinson's Benefit

Teresa Riffle – Circleville, OH Walk for a Cure

Michael Roush – Parkinson's Walk for a Cure/In Memory of Lloyd Roush

Frank Rumoro – 1st Annual "Stepping Out" Fundraising Walk

Wendy A. Schreiber

S. Jane Schrick

Michael Showstead – Phillips Boston Banquets

Julie Silva – San Francisco Half Marathon

Angela Sipes

Kathy Smith – Change for Parkinson’s

Megan Smith

Bella Somelofske – Newport, RI Marathon

Linda Spence – Ernie's Favorites

Mel Stewart – Cape Epic

Pamela Strom – Stand Up to Parkinson’s Race

Danielle Surace – Vincent Fillingeri Memorial

Carol Tahsuda

Pillinger Miller Tarallo, LLP

Cynthia Taylor

Doris Vasquez

K. C. Veitch – Kappa Delta Phi Sorority/ Sigma Pi Fraternity

Linda Walsh – Run In Honor of Dad

Emily Walter

Madelyn Weingart and Alison Magistrali

Brittany West – Find a Cure in Our Lifetime

Gillian Woods – Keeping the Pace with PD: NW Arkansas

Yacso-Meyer – Stuart Meyers Champions Event

Pat Younts – Pat Younts Versus Parkinson's Golf Tournament

Zogsports – Zogsports Play for a Cause


A&M Label

Abbott Laboratories

ADM Information Services

Kenneth Aidekman Family Foundation

The Shana Alexander Charitable Foundation

Alexandra and Martin Symonds Foundation, Inc.

The George and Jodie Allen Charitable Fund

Allstate Giving Campaign

The Allyn Foundation, Inc.

Altria Matching Gifts Program

American Society of Appraisers

America's Charities

Amicus Therapeutics

Apple Matching Gifts Program

Applied Materials

Archer and Greiner, P.C.

AT+T United Way

The Atmos Foundation

Automatic Data Processing, Inc.

BAE Systems

The Bane Foundation

Bank of America

Bank of America United Way Campaign

Bart and Associates, Inc.

Alvin H. Baum Family Fund

Beck and Masten Buick-GMC, Inc.

Bell-Mark Sales Company, Inc.

The Bendheim Foundation

The Berner Charitable and Scholarship Foundation

Big Y Foods, Inc.

Biotechnology Industry Organization

Bisgeier Family Foundation

Page and William Black Foundation

BlackRock Kelso Capital

The David H. and Mary B. Blair Charitable Fund

BNSF Foundation TX

Employees Community Fund of the Boeing Company

Bonner Family Private Foundation, Inc.

Booz | Allen | Hamilton

Boucher Charitable Foundation

Bowman, Monaco and Black, PC

Bristol-Myers Squibb Company

Brookhill Planning, LLC

Brooklyn Mechanical Corp.

Brown Charitable Foundation

BT Americas Corporate Matching Funds

Budwitz and Meyerjack, PC

Burgundy Foundation, Inc.

The Caliban Foundation

California Community Foundation

Cambrex Corp.

Campbell, Inc.

Canata Family Foundation

Cardinal Engineering Associates, Inc.

Cardinal Health Foundation

Caribbean Enterprises, Inc.

Castle Harlan, Inc.

James and Nancy Casty Charitable Foundation

Lee S. Casty Philanthropic Fund

Ronald G. Casty Family Foundation

Cedar Grove Lutheran Church

Cemex Materials, LLC

Check Point Software Technologies

Terry Cheng Gift Fund

The Cimino Group, Inc.

Citizens Bank

Louis and Virginia Clemente Foundation, Inc.

The Clorox Company Foundation

The Betsy and Alan Cohn Foundation, Inc.

Jerome and Ilene Cole Foundation, Inc.

The George Coleman, Jr. Foundation

Simon and Eve Colin Foundation, Inc.

Colligas Family Markets, LP

The Color Fund

Columbia University Medical Center

Community Health Charities

Consumer Electronics Association

Cox Communications

CSX Corporation

Cumberland Community Foundation, Inc.

Edna Williams Curl and Myron R. Curl Endowment for Parkinson's

The Dana Foundation

DCH Montclair, LLC D/B/AMontclair Acura

Diamantine Family Foundation,Inc.

The Dinan Family Foundation

Eamonn and Kathleen Dolan Charitable Fund

Don Ayers Pontiac

The Dopkin-Singer-Dannenberg Foundation, Inc.

Dorf Associates

Dreiseszun Family Foundation

The DuBose Family Foundation

Dupont Systems, Inc.

Eagel Sports Promotions, Inc.

Echlin Foundation

El Paso Corporation

Eli Lilly and Company Foundation, Inc.

Encana Oil and Gas (USA), Inc.

Epic Systems Corporation

Epstein, Becker and Green, P.C.

Ernst Foundation, Inc.

Fairchild Martindale Foundation

Arthur and Eve Fastenberg Philanthropic Fund

Ferguson Family Trusts

Feuerring Foundation

Fidelity Charitable Gift Fund

Firstgiving, Inc.

Harriet Ford Dickenson Foundation

Forest Family Foundation

Fox Family Charitable Trust

The Connie Frank Foundation

Fred Siegel Foundation

The Fremont Foundation

Gap, Inc. Giving Campaign

GE Foundation

General Electric Co.

Give With Liberty

Ruth and Jack Glantz Family Foundation Inc.

Glickenhaus Foundation

Joseph H. Goldberg Family Foundation

Edward and Marjorie Goldberger Foundation

Goldman Sachs Gives

Sol Goldman Charitable Trust

Google Matching Gifts Program

The Samuel and Grace Gorlitz Foundation

Lee Gottlieb Fund, Inc.

The Gottwald Foundation

The Tom and Bonnie Grace Family Foundation

Gracie Square Hospital

Foundations/Corporations/Organizations

Our Donors

Our Donors | 29

Grand Council of Cryptic Masons

Grand Chapter O.E.S.

Mabel Burchard Fischer Grant Foundation

Eugene and Emily Grant Foundation

The Jack Webster Grigsby Foundation

H&R Block

The Gwendolyn Halsey-Albertson Foundation

Harrah's North Kansas City, LLC

George W. Harris Foundation

The Harte Auto Group

Hauser Family Foundation, Inc.

The Hearst Corporation

Leona M. and Harry B. Helmsley Foundation, Inc.

HighVista Strategies, LLC

IHS Foundation

Homestead Foundation, Inc.

Honeywell International Charity Matching Gift Program

IBM Employee Services Center

Independent Charities of America

ING Charitable Giving Program

Ipsen

Isermann Family Foundation

Isidore C. Myers-Joseph A. Erickson Properties, Inc.

The JCT Foundation

J. M. Smucker Company

Jacoby Family Fund

The Janus Foundation

Jewish Communal Fund

John Wojtowicz, Inc.

Johnson & Johnson Family of Companies

Jordan Family Foundation

Dr. Rudolph and Mildred Joseph Foundation

Just Give

Greater Kalamazoo United Way

The Kandell Fund

Jerome A. Kaplan and Deena L. Kaplan Family Foundation, Inc.

Fred Kassner Family Foundation

Kastle Greens Corp.

Robert and Florence Kaufman Foundation, Inc.

Harry L. Kavetas Family Fund

Kelly Refrigeration and Freezer, Inc.

Kelly Family Foundation

Kesselhaut Family Foundation

Elmer P. Kinnamon Trust

The Richard E. and Marianne B. Kipper Foundation

Sam W. Klein Charitable Foundation

Sharon Klein Graphic Design

Kniffin Family Foundation

The Kortschak Family Foundation

The Kosher Nosh

The Kraus Family Foundation

Seryl and Charles Kushner Family Foundation

Latham and Watkins, LLP

Lawrence Livermore National Laboratory

Hortley G. Leblang Charitable Trust

Legatus Foundation

Dana and Jesse Lehman Foundation

The Eileen and Peter LehrerFamily Foundation, Inc.

Anita and Stanley Liebowitz Fund

William and Nancy Lifland Fund

Light of Day Foundation, Inc.

Litterman Family Foundation

Loeb and Loeb, LLP

Lovinger Family Foundation

Macquarie Bank, LTD

MAERSK, Inc.

Mahoney Donor Fund

Ann S. and Albert L. Maltz Foundation

Mar-Ber Development Corp.

Mazur, Carp, Rubin and Schulman, P.C.

McCormick Company, Inc.

The McGraw-Hill Companies

Medtronic, Inc.

Merck Partnership For Giving

MetLife Alico

Microsoft Giving Campaign

Mid-Atlantic Center for the Performing Arts

Midstate Radiology Associates, LLC

The Millison Foundation

The Mirapaul Foundation

Jeffrey Modell Foundation, Inc.

Morgan Stanley

Motorola Foundation

Mount Sinai Hospital

Nanell Foundation

National Sound Industries, Inc.

Thomas Neal Foundation, Inc.

The Netter Foundation, Inc.

Network Consulting, Inc.

Network For Good

The New York Community Trust

New York Life Insurance Company

New York Presbyterian Hospital

The New York Times

New York University

New York Yankees Foundation

Sally Nightingale CharitableFund

Nine Thirty Capital Management, LLC

Employees Charity Organization of Northrop Grumman

Northwest Hills Credit Union

Northwoods League Foundation

The Calvin Flavia Oak Foundation, Inc.

Thomas P. and Patricia A. O'Donnell Foundation

Office Automation Systems

Ogden Cap Properties, LLC

OH Local

Richard and Harriet Orkand Charitable Fund

PEC United Charities, Inc.

Regina Pargament Trust Fund

Parkinson Network of Mount Diablo

Parkinson's Unity Walk, Inc.

Hyman and Bessie Passman Family Charitable Foundation, Inc.

Patton Holdings, Inc.

PBM Products

Pearson Education

Pfizer Foundation MatchingGifts Program

Pfizer, Inc.

PG&E Corporation

Philip Holzer and Associates, LLC

The Phillies

Davis Phinney Foundation


Pillinger Miller Tarallo, LLP

Pitney Bowes Employee Giving Program

Play For Your Cause

The Bernard Plotkin Fund

The Portmann Family Charitable Fund

Premiere Paddle Surf

The David C. and Jeannie Price Fund

Prince Charitable Trusts

Quadel Consulting Corp.

Qualcomm Matching Gift Program

R.A. Novia and Associates, LLC

R.C. Bigelow, Inc.

Ralph J. Duffie, Inc.

Razoo Foundation

Red Apple Group

Kristin and Michael Reed Family Foundation, Inc.

Regions Morgan Keegan Trust

The Donald Reich Family Charitable Fund

Re-Steel Supply Co., Inc.

Retired Public Employees Association of California

Rheem Manufacturing Company

The Andrew and Lisa Rodman Foundation

Ropes and Gray, Inc.

Eli and Mae Rosen Foundation

Joseph Rosen Foundation

The Benjamin M. Rosen Family Foundation

The Irene Herbert Ross and Harper Grant Ross Foundation

Ross-Kolmerten Fund

Royal Neighbors of America

Dianne H. Ruthman FamilyFoundation

S&S Realty

SAD Foundation

Edmond J. Safra Foundation

Sanky Communications, Inc.

Schering-Plough

The Jean and ThomasSchreiber Philanthropic Fund

Schulte Roth and Zabel, LLP

Schwab Charitable Fund

Phyllis and Howard Schwartz Philanthropic Fund

Arnold and Marie Schwartz Fund

Secure Real Estate Management, LP

Semmes

The Shafir Family Fund

Leslie C. and Leonard A. Shapiro Family Foundation, Inc.

The Ron Shapiro Charitable Foundation

The Shubert Organization, Inc.

Siegel, O'Connor, O'Donnell and Beck, PC

The Sierra Fund

The Oscar and Edith Simon Foundation

The Herbert and Arline Slepoy Charitable Fund

Smith Haven Ministries, Inc.

Society of the Transfiguration

The Spurlino Foundation

St. Irene's Philoptochos Society

St. Jude Medical Center

Frank and Domna StantonFoundation, Inc.

John W. and Laura S. Stewart Foundation

The Dorothy Strelsin Foundation

Sullivan and Cromwell, LLP

Sullivan Solar Power

Suplove, Inc.

Henry and Marilyn Taub Foundation

Judy and Warren Tenney Foundation

The David Tepper Charitable Foundation

Teva Neuroscience, Inc.

Three Swallows Foundation

Timber Creek Capital Management, LLC

Tishman Speyer Properties, LP

TJM Investments

Toshiba Business Solutions

Truist

The Trukenbrod Family Foundation

Tumi, Inc.

Turnaround Management Association

UCB, Inc.

Richard and Gail Ullman Charitable Fund

The Ullmann Family Foundation

U.M.R. Foundation

United Refining Company

United Technologies

United Way of Central Indiana, Inc.

United Way of New York City

United Way of Rhode Island

United Way of Somerset County

United Way, Inc.

U.S. Charitable Gift Trust

The V & L Marx Foundation

Vanguard Charitable Endowment Program

Visa Givingstation

Vision Equities, LLC

Wachovia

Shirley Waldbaum Witkin Foundation, Inc.

Wasily Family Foundation

Weiden Schwartz Fischler Family Foundation

Weill Cornell Medical College

J. Weinstein Foundation, Inc.

Wellpoint Associate Giving Campaign

Wells Fargo Community Support Campaign

Wellspeak, Dugas and Kane

WESTAT

Westchester Hills Golf Club

Mark and Muriel Wexler Foundation

The Wheeler Family Foundation

WithumSmith + Brown

The Yaspan Unterberg Foundation, Inc.

Zankel Charitable Lead Trust

Mary and George H. Zimmerman Foundation

Zoe's Best Friend, Inc.

Foundations/Corporations/Organizations

Our Donors

Our Donors | 31

Succession of Verble Mary Augustine

Gloria Broward

George Bruno

Elizabeth Kellogg Crouch

J. B. Daiches

Nelson C. Doland, Jr.

Lillian Dursht

Ernest C. Geiger

James C. Harnden

Ruby Jefferson

Dorothy Bauer Jochem

Anthony Klempa

Dolly Koler

Marie Langlois

Kenneth W. Law

Virginia N. Lowry

Irene M. Matto

Appolonia Mayer

John D. Mazzarella

Paul Edwin Melcher

Joan P. Metcalf

Velma R. Nagel

John J. Robinson

Anne J. Schaff

Florence Schwartz

Helen Sisko

Lawrence Stchur

Martha Valchich

Irene A. White

Allyne Whitlock

M. R. Wiegandt

Edward Zotter

Planned Giving Estates

Isabellea M. Amell Revocable Trust

Evelien Auerhamer Trust

Adele Blank Charitable Lead Trust

Dorothy M. Booth Charitable Trust

BettyLou Burton Trust

Mae C. Clegg Trust

Ruth D'Atri Trust

Trust of Edith Eisler

Lida Ferguson Testamentary Trust

Gladys Field Charitable Lead Annuity Trust

Dorcile R. Fowler Trust

Evan A. Fradenburgh Trust

Millie & Jesse Fusfeld Charitable Trust

Bettie D. Gallagher Irrevocable Trust

Annette Goodrich Revocable Trust

Hudson Charitable Trust

Gladys T. Hyman Trust

Charles Irwin Trust

J. Bert Jones Trust

Rose A. Kalns Trust

Kniffin Charitable Remainder Trust

Trust of Virginia Ladensohn

Toni Lieberman Family Charitable Trust

Margaret D. Lienemann Charitable Trust

Irene M. Matto Trust

Gordon McLean Trust

Trust of L. M. McOmie

Henry A. Morris and Marian C. Morris Revocable Living Trust

The Melba M. O'Connell Trust

Joseph M. and Eva M. Perasso 2000 Trust

Powers Revocable Trust

Richard P. Rost Trust

Esther Ruddick Trust

Frances Marie Smith Revocable Living Trust

Wesley L. Southerland Revocable Living Trust

Lester W. Stevenson, Jr. Trust

Esther Stykel Living Trust

Esther Wright Trust

Planned Giving Trusts

Center Grants | $2.62 Million

Allow talented scientists the flexibility and long-termsupport to collaborate on basic, translational and clinical research.

Columbia University Medical CenterRoy N. Alcalay, M.D., Robert Burke, M.D., Lorraine N. Clarke,Ph.D., Stanley Fahn, M.D., Blair Ford, M.D., Lloyd Greene,Ph.D., Paul E. Greene, Ph.D., Elan D. Louis, M.D., M.S., KarenMarder, M.D., M.P.H., Pietro Mazzoni, M.D., Ph.D., SergePrzedborski, M.D., Ph.D., Seth Pullman, M.D., Yaakov Stern,Ph.D., David Sulzer, Ph.D., Jean Paul Vonsattel, M.D., CherylWaters, M.D., Nancy Wexler, Ph.D., Ai Yamamoto, Ph.D.

Rush University Medical CenterBrandon R. Barton, M.D., Bryan A. Bernard, Ph.D., Cynthia L. Comella, M.D., Jennifer G. Goldman, M.D., M.S., Christopher G. Goetz, M.D., Deborah A. Hall, M.D.,Katie Kompoliti, M.D., Jeffrey Kordower, Ph.D., Kathleen M. Shannon, M.D., Glenn T. Stebbins, Ph.D., Leo Verhagen, M.D., Ph.D.

Weill Cornell Medical CenterM. Flint Beal, M.D., Claire Henchcliffe, M.D., D.Phil., Melissa J. Nirenberg, M.D., Ph.D.

*Denotes second year of funding

Additional Research Programs | $189,000

Fund innovative collaborative programs, such as the Advancing Parkinson’s Treatments grant to the ParkinsonStudy Group to facilitate the movement of treatmentsfrom “bench to bedside.”

International Research Grants | $825,000

Promote innovative research projects that have high poten-tial to significantly advance the knowledge of Parkinson’s.

Evaluating the Role of Mitochondrial Dynamics in Parkinson'sDisease in an In Vivo Vertebrate Model: Real-Time Live Imaging of Mitochondrial Dynamics in Dopamine Neurons in Whole ZebrafishSarah Berman, Ph.D., M.D., and Edward Burton M.D., D.Phil., F.R.C.P., University of Pittsburgh

Impact of Low- and High-Frequency Electrical Stimulation on the Inputs, Integrative Properties and Output of the Subthalamic NucleusMark Bevan B.Sc., Ph.D., Northwestern University, Chicago

Telomere Biology in Patients with Incident Parkinson’s Disease*Tobias Kurth, M.D., Sc.D., and Robert Y. L. Zee, Ph.D., M.P.H., Brigham and Women’s Hospital, Boston

Identification of Neuroprotective Factors in Tobacco*Leo J. Pallanck, Ph.D., University of Washington

Small Aromatic Molecules as Novel Inhibitors of Alpha-Synuclein AggregationDaniel Segal, Ph.D., Tel Aviv University, Israel

Identification of Genes for Parkinson's Disease in an Isolated Greek Community and a Greek Population CohortGeorgia Xiromerisiou Ph.D., M.D., and Henry Houlden M.D., M.R.C.P., Ph.D., University of Thessaly, Greece and University College London, England

In 2011, PDF awarded $5.5 million for Parkinson’s research. This included 40 awardsfor projects and mentored fellowships initiated by individual investigators from the globalscientific community and collaborative projects conducted by research teams at major institutions. We thank the following grant recipients for their commitment to improvingthe lives and futures of people touched by Parkinson’s.

32 | Our Researchers


Our Researchers

Rush University Medical CenterSheila Rane, M.D.Houman Homayoun, M.D.

Fellowship and Career Development Grants | $1.22 Million

Prepare leaders in Parkinson’s research and clinical practice.

Research Fellowship Projects | $190,000Development of a Progressive Neurodegenerative Mouse Model of Parkinson's DiseaseAne Korff, Ph.D., St Jude Children's Research Hospital

Evaluating Pedunculopontine Nucleus Stimulation as a Treatment for L-DOPA-Resistant Gait Disorders in Advanced Parkinson's DiseaseAbirami Muralidharan, Ph.D., University of Minnesota

The Role of Parkin in Regulating Mitochondrial Dynamics and Homeostasis in Cortical and Dopaminergic NeuronsVictor Van Laar, Ph.D., University of Pittsburgh

The Locus Coeruleus as a Substrate for Parkinsonian Cognitive InflexibilityElena Vazey, Ph.D., Medical University of South Carolina

Post Residency Fellowship Training | $720,000Columbia University Medical CenterDavid Arkadir, M.D., Ph.D.Christopher W. Hess, M.D.Sheng-Han Kuo, M.D., Ph.D.Alexander Shtilbans, M.D.Sirinan Tazen, M.D.Mary Ann Thenganatt, M.D.Tuhin Virmani, M.D., Ph.D.

Summer Student Fellowship Projects | $45,000Identifying the Natural and Functional Progression of PDRachel Boehm; mentor Quincy Almeida B.Sc., M.Sc., Ph.D., Wilfrid Laurier University, Canada

R2* Changes in Substantia Nigra and Dentate Nucleus Related to Tremor-and Akinetic/Rigid-Predominant Parkinson’s DiseaseChristopher DiMaio; mentor Mechelle Lewis, Ph.D., Penn State College of Medicine

The Effects of Autophagy Enhancement on Alpha-Synuclein In VivoDarius Ebrahimi-Fakhari; mentor Pamela J. McLean, Ph.D., Massachusetts General Hospital/Harvard Medical School

Instability in Persons with Parkinsonism: Assessment and Interventions in a Community Setting David Galaso; mentor Lee Dibble, P.T., Ph.D., A.T.C., Universityof Utah

β oscillations in the STN and SNr of Parkinson’s Disease Patients Vahagn Karapetyan; mentor William D. Hutchison, Ph.D., University of Toronto

Cardiovascular Autonomic Dysfunction as an Early Biomarker for Parkinson’s DiseaseSung Kim; mentor Sheila Fleming, Ph.D., University of Cincinnati College of Medicine

Cognitive Profiles of PD: Implications for DementiaIvy Miller; mentor Alice Cronin-Golomb, Ph.D., Boston University

Effectiveness of O4 in the Regulation of Toxicity Levels inParkinson's Disease ModelsAnna Norton; mentors Erich Wanker, Ph.D., and Jan Bieschke,Ph.D., Charité Medical School of Humboldt University, Germany

Role of Beta-Band Activity within the Internal Segment of theGlobus Pallidus in Non-Human Primates During a Command/Countermand Motor TaskShaun Patel; mentor Emad Eskandar, M.D., MassachusettsGeneral Hospital

In Vivo and In Vitro Assessment of Urate Modulation by PyrazinamideMatthew Pearce; mentor Michael A. Schwarzschild, M.D., Ph.D., Massachusetts General Hospital

GABAa Receptor Expression Profile and Function in the Globus PallidusRuth Quintana; mentor C. Savio Chan, Ph.D., NorthwesternUniversity, Chicago

Effect of Forced Exercise on Resting State Functional Connectivity in Parkinson’s DiseaseChintan Shah; mentor Michael D. Phillips, M.D., ClevelandClinic Foundation

Examination of PGC-1�and SIRT3 Pathways in LRRK2 and Alpha-Synuclein Models of Parkinson’s DiseaseAarthi Subramanian; mentor M. Flint Beal, M.D., Weill Cornell Medical College

Potential Abnormalities of Brain Circuits of Parkinson’s DiseaseLirong Tan; mentor Jing-Huei Lee, Ph.D., University of Cincinnati

The Effect of Wii Fitness Training on Postural Imbalance in Patients with Parkinson’s Disease Megan Trager; mentor Helen Bronte Stewart, M.D., StanfordUniversity

Collaborative Fellowships | $265,000PDF-AANF Clinician-Scientist Development Award | $165,000 (three years) (co-sponsored with American Academy of Neurology Foundation)Mechanisms of Cell Type-Specific Vulnerability in Synucleinopathy: A Yeast-Stem Cell Dual Discovery PlatformVikram Khurana, M.D., Ph.D., Massachusetts General Hospital

PDF-PSG Mentored Clinical Research Award | $100,000(Funded by a grant from PDF to the Parkinson Study Group)Behavioral Treatment of Anxiety in Parkinson’s (BEHTA-PD): A Pilot StudyJessica Calleo, Ph.D.; mentors Laura Marsh, M.D., and Melinda Stanley, Ph.D., Baylor College of Medicine

Genetic and Transcriptional Analysis of Susceptibility for PD NeuropathologyJoshua Shulman, M.D., Ph.D.; mentors Philip De Jager, M.D.,Ph.D., Lewis Sudarsky, M.D. and Clemens Scherzer, M.D., Harvard/Brigham and Women’s Hospital

Cash and cash equivalents

Contributions and other receivables

Other current assets

Investments, at fair value

Fixed assets, net

Other noncurrent assets

Life Estate Gift

Investments — restricted as to use

Total assets

Liabilities and net assets

Accounts payable and accrued expenses

Grants payable

Deferred compensation plan

Total liabilities

Net assets

Unrestricted

Temporarily restricted

Permanently restricted

Total net assets

Total liabilities and net assets

$670,883

1,055,553

81,764

11,045,254

327,069

56,540

236,935

201,024

$13,675,022

$823,380

1,368,427

201,024

2,392,831

9,547,208

1,734,983

11,282,191

$13,675,022

June 30

20102011

In 2011, PDF was awarded both a four-star rating from CharityNavigator (the highest) and the Charity Seal of Approval fromthe Wise Giving Alliance of the Better Business Bureau (BBB).

$779,578

550,651

74,161

12,446,070

235,521

56,540

-

210,723

$14,353,244

$766,321

1,327,440

210,723

2,304,483

8,608,353

1,073,946

2,366,462

12,048,761

$14,353,244

Assets

Statement of Financial Position

34 | Financial Reports

Research60%

15%

20%

5%

Advocacy

Education

80%

Percentage of our dollars spent on our

programs and our missionHOWOur Funds Were Spent2011

Administration & Fundraising


Financial Reports

$610,493

-

-

-

(273,709)

336,784

-

-

-

-

-

-

336,784

1,398,199

$1,734,983

$4,752,060

3,761,136

207,828

805,386

-

9,526,410

5,626,735

2,071,164

7,697,899

574,680

1,227,820

1,802,500

9,500,399

26,011

11,256,180

$11,282,191

$4,195,159

4,764,782

348,050

976,398

-

10,284,389

5,671,135

1,990,591

7,661,726

586,536

1,269,557

1,856,093

9,517,819

766,570

11,282,191

$12,048,761

$ 4,141,567

3,761,136

207,828

805,386

273,709

9,189,626

5,626,735

2,071,164

7,697,899

574,680

1,227,820

1,802,500

9,500,399

(310,773)

9,857,981

$9,547,208

$172,277

-

-

-

(833,314)

(661,037)

-

-

-

-

-

-

(661,037)

1,734,983

$1,073,946

$ 4,022,882

2,398,320

348,050

976,398

833,314

8,578,964

5,671,135

1,990,591

7,661,726

586,536

1,269,557

1,856,093

9,517,819

(938,855)

9,547,208

$8,608,353

Year ended June 30, 2010

Year ended June 30, 2011

UnrestrictedTemporarilyRestricted TotalUnrestricted

TemporarilyRestricted Total

Contributions

Bequests

Special events revenue, net

Investment income

Net assets released from restrictions

Total operating support and revenue

Operating expenses:

Program services:

Research

Public information/patient information and referral services

Total program services

Supporting services:

Management and general

Fundraising

Total supporting services

Total operating expenses

Change in net assets

Net assets, beginning of year

Net assets, end of year

Statement of Activities

Operating support and revenue:

PermanentlyRestricted

-

$2,366,462

-

-

-

2,366,462

-

-

-

-

-

-

2,366,462

$2,366,462

36 | Our People

Our People

OfficersPage Morton BlackChairman

Lewis P. Rowland, M.D.President

Timothy A. Pedley, M.D.Vice President

Stephen AckermanTreasurer

Isobel Robins KoneckySecretary

Stanley Fahn, M.D.Scientific Director

DirectorsConstance Woodruff Atwell, Ph.D.Karen Elizabeth Burke, M.D., Ph.D.Margo CatsimatidisBarbara CostikyanPeter DornGeorge Pennington Egbert IIIDavid J. Eger, Ph.D.Stephen B. Flood, Esq.Sarah Belk GambrellStephanie Goldman-PittelArlene LevineMarshall LoebHoward DeWitt MorganMarie D. SchwartzDomna Stanton, Ph.D.Sandra Feagan Stern, Ed.D.Melvin S. TaubMartin Tuchman

Executive DirectorRobin Anthony Elliott

Board of Directors

Maria De Leon, M.D. Steve DeWitteHao Dong, Ph.D.David J. Eger, Ph.D.*, Co-Chair�Eric HellingerRhona B. Johnson*Daniel J.B. Kiefer, J.D.*Linda M. Morgan, M.B.A., R.Ph.Michael O’Leary*Tom Palizzi Marc Sherman, J.D.Ann Wasson*, Co-Chair�Peggy WillocksFred Woodlief, D.D.S.* founding members

People with Parkinson'sAdvisory Council

Constance Woodruff Atwell, Ph.D.�M. Flint Beal, M.D.�Robert Burke, M.D.�Cynthia L. Comella, M.D., F.A.A.N.�David Eidelberg, M.D.�Stanley Fahn, M.D., Chair�Christopher Goetz, M.D.�Lloyd Greene, Ph.D.� J. Timothy Greenamyre, M.D., Ph.D.�Danna Jennings, M.D.�Katie Kompoliti, M.D.�Jeffrey H. Kordower, Ph.D.�J. William Langston, M.D.Karen Marder, M.D., M.P.H.�Serge Przedborski, M.D., Ph.D. �Kathleen Shannon, M.D.�Yaakov Stern, M.D.�David Sulzer, Ph.D.��G. Frederick Wooten, M.D. �Anne B. Young, M.D., Ph.D.

Scientific Advisory Board

Image Credits: Page 2 Ben Hide Photography (top); Page 4 Janet Charles (top);

Page 4 Modified from Ebrahimi-Fakhari et al., The Journal of Neuroscience; Page 5 Courtesy of Lorenz Studer, M.D.; Page 6 Modified from Vilariño-Güell at al.,

American Journal of Human Genetics; Page 7 Modified from Shannon et al., Movement Disorders;Page 10 Janet Charles; Page 13 Lars Howlett, The Half Moon Bay Review (top); Page 16 Janet Charles (top); Page 17 Patrick McMullan (B); Patrick McMullan (C);

Janet Charles (G); Patrick McMullan (K); Cynthia Servais (N)

1359 Broadway, Suite 1509 | New York, NY 10018P: (212) 923-4700 F: (212) 923-4778

© 2012 Parkinson’s Disease Foundation

(800) 457-6676 | www.pdf.org | [email protected]

parkinson's disease foundation annual report 2011: the pdf effect

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