parenting keeping families close - wakemedhow bad things really were.” when carmencita arrived at...

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FALL/WINTER 2015

Children’s

POSITIVEPARENTINGKEEPINGFAMILIESCLOSEHOLIDAYTOY SAFETY

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Donna Nienstedt,occupational therapistat WakeMed Rehab,works with GabrielaRosales after atraumatic brain injury.

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A P U B L I C A T I O N O F W A K E M E D C H I L D R E N ’ S 3

Home Awayfrom HomeRonald McDonald House

Makes a World of Differencefor Families at WakeMed

When Carmencita Terande Rosales received thecall about her daughterGabriela’s accident, itall seemed unreal and aworld away – it was the

call no parent ever wants to receive. Shehad no idea what was going to happennext. “My family and friends surrounded meand provided me with what I needed tomake the trip from Nicaragua to NorthCarolina.” No one knew she was going tobe away from home for more than 7months!

Gabriela (Gaby) Rosales was a student atElon University last spring when she wasstruck by a car and severely injured. She wasinitially transported by helicopter to UNC,the closest trauma center to the university.“As soon as we heard the news, we were onthe next possible flight but didn’t know justhow bad things really were.”

When Carmencita arrived at the hospital,she recalls Gaby’s doctors telling her not toget her hopes up because they didn’texpect her to live more than 48 hours.


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Among other injuries, she had suffered a traumatic braininjury, and they had to put her in an induced coma. WhenGaby woke up she could hardly open her eyes or move partsof her body.

A Long Road to RecoveryAfter almost six weeks of intensive care, it was time for Gabyto begin inpatient therapy at WakeMed. “It was a miracle thatshe was alive, and she slowly started to progress,” saidCarmencita. “She couldn’t move her right side, and she hadpelvic and scapula fractures in addition to her head injuries.”

“We knew we had a long way to go,” said Carmencita. “And Iwas a long way from home.” Gaby was an inpatient from lateApril until August. “When my sister traveled here to visit andhelp me, she was going to stay in a hotel, but the lady at thedesk suggested that we look into staying at the RonaldMcDonald House instead – it made a world of difference.”

Carmencita was spending long, tiresome and emotional dayswith Gaby. She had no place to shower or get a good night’srest. “I was crying the whole day, and I had no strength – it was really, really hard,” said Carmencita.

Essential Comforts Away from Home“Thanks to WakeMed and the Ronald McDonald House, I wasable to sleep the whole night and get the strength to go backand be strong for Gaby – to help her, to encourage her andhelp her communicate,” said Carmencita. “You have no ideahow much a hot shower helped on those really hard days.”

The Ronald McDonald House at WakeMed provides roomsfor families to stay so they can take turns resting andrecovering and stay healthy and strong for their loved one.They also provide sibling sacks and meal coupons and visitthe WakeMed Children’s Hospital each week with food fromlocal restaurants.

“I really can’t thank everyone at WakeMed enough,” saidCarmencita. “By caring about me and my family, they gave all of us the strength to support Gaby over many months ofhealing.”

Going HomeGaby recently celebrated her birthday while at WakeMed. Her mother says her care and the kindness they’ve allreceived has truly been a gift.

“She suffered a traumatic brain injury, and they thought shewould leave in a wheelchair, but she was discharged walking,”said Carmencita. “The work WakeMed has done with Gabyhas been incredible, and the therapies are the best – I’mreally happy, and we are going home to Nicaragua soon!”



Keeping Families Together at Tough TimesThe Ronald McDonald House at WakeMedhelps families stay close together when theyare going through a difficult medical situation.“We know that children need well-restedparents and family members to help themthrough recovery,” said Oie Osterkamp,executive director of the Ronald McDonaldHouse of Durham & Wake.

WakeMed Children's Hospital has a RonaldMcDonald Family Room that offers a quiet,relaxing space for family members of patientswho are enduring a stressful life experience. It isstaffed with volunteers seven days-a-week andoffers comfortable couches, a microwave,washer and dryer, TV and computers.

Additionally, WakeMed now has five RonaldMcDonald House rooms at the Raleighcampus, and they are assessing the communityneed for the possibility of adding more. “We’vehad more than 750 family night stays sincemid-April 2015,” said Osterkamp. “We are prettymuch staying full.”

While parents can typically stay in the patientroom with their children, sometimes they trulyneed to get away from the alarms and getnecessary rest. Dr. Stephen Leinenweber,executive medical director for WakeMedChildren’s Services, said, “The family-focusedrooms at the Ronald McDonald House providea little respite.”

Children receiving care in the hospital oftenhave complex and complicated needs. “It’s hardto know how long they might need to stay, andmany families are coming from far away,” saidDr. Leinenweber.

The Ronald McDonald House team is atWakeMed regularly and gets to know all thefamilies so they can provide as much supportas possible. “They are great friends to our staffand our families,” said Dr. Leinenweber. “Theircommitment grows every year, and it trulyhelps us take care of the children becauserested parents can make better decisions.”


Carmencita Teran de Rosalesand her daughter Gabyon one of their final daysat WakeMed before goinghome to Nicaragua.



What is your biggest concern or passionwhen it comes to caring for children?We are facing a mental health crisis in ourstate, and it directly affects children.WakeMed is committed to promoting goodmental health and providing appropriate crisismanagement and treatment. WakeMedPhysicians Practices – Pediatrics is building ateam of trained professionals that will helpsupport families beyond physical health andoffer positive parenting resources for thehealthy mental, social and emotionaldevelopment of our community’s children.

What’s in the future for WakeMed’sservices for children? We have a long record of providing care forfamilies and children here at WakeMed, andwe continue to grow to meet the needs ofthe community, adding specialty andsubspecialty services along the way sochildren can receive the care they need closeto home.

We are actively expanding pediatricsubspecialty care into western Wake County.We now offer Pediatric Surgery, PediatricGastroenterology, and PediatricEndocrinology in Cary. Expansion plans for2016 include more services in North Raleigh.

As we learn about community needs, whichis truly an ongoing process, our focus is tomake sure the pediatric services families needmost are available and easily accessibleacross Wake County.

As a doctor and a Dad, what’s your visionand hope for our community? I’m focused on giving families the bestpossible care and nothing less. I’mcommitted to working with new and existingcommunity partners such as the YMCA, WakeCounty Public School System and key leadersto accomplish more together and create acommunity that collaboratively supports theeveryday needs of parents and children as webuild the future for our community.

Stephen Leinenweber, MD, recentlytransitioned into a key role as theexecutive medical director ofWakeMed Children’s Services.

Dr. Leinenweber’s extensive experience as apediatric critical care physician includes anemphasis on traumatic brain injury,communication, bioethics and teaching. He hasa genuine passion for children and is focused onmeeting the needs of his community.

As a father and physician, he wants to ensurethat the families in his community receive thebest possible care. One of his initial steps in thisrole includes outreach and communityconversations with pediatricians and caregiversacross the county to assess needs and planaccordingly for the expansion of specialty andsubspecialty pediatric services in Wake County.

Q & A W I T H D R . L E I N E N W E B E R

Meet WakeMed Children’sNew Medical Director



WakeMed Physician Practices -Pediatrics to Launch Family-Centered Care withPositive Parenting Program



Let’s face it, parenting isn’t always as straightforward as it sounds, and sometimes it canbe extra challenging in the early years at the time when children need the right supportfor healthy mental, social and emotional development. That’s why WakeMed PhysicianPractices - Pediatrics is implementing Project LAUNCH (Linking Actions for UnmetNeeds in Children's Health), a family-centered collaborative care approach that includesTriple P – Positive Parenting Program® training for its team.

“We are focused on strengthening local families and promoting the social and emotional well-being of children,” said Dr. Rasheeda Monroe, medical director, WakeMed PhysicianPractices – Pediatrics. “We are building a team that will be able to support parents and provideresources as needed.”

“Thanks to grant support from the John Rex Endowment, we have the resources to add twofull-time, bilingual LAUNCH team members to our practice team,” said Dr. Monroe. “An earlychildhood mental health specialist and a family navigator will help identify needs and supportboth physicians and families in developing a care plan for the social and emotional health of a child.”

An early childhood mental health specialist might provide ongoing therapy. The familynavigator will be a layperson who has navigated the school system and health care system as a parent and can help steer families to resources to help their child.

“The whole team will be trained in Triple P – Positive Parenting Program ,” explained ®

Dr. Monroe. “When a families come in with toddlers who are having tantrums or discipline issuesin preschool, our team will be able to provide consistent, positive parenting tips and tools.”

Triple P is designed to provide parents and caregivers with the knowledge and resources theyneed to manage childhood behavior and raise confident, healthy children. “It’s one of thetools we’ll now have in our toolbox,” said Dr. Monroe. “We can help parents deal with thecommon woes of raising children and link them with community resources.”

The pediatricians at WakeMed Physician Practices will be doing even more than before towatch and provide guidance related to mental, social and emotional health. If kids aren’t well,they want to meet the family where they are and provide support where and when it isneeded.

“The goal of Project LAUNCH is to identify the social and emotional stressors early for familiesto prevent things such as school failure and child abuse,” said Dr. Monroe. “Traumaticexperiences as a child absolutely impact your development and outcomes as an adult.”

The Project LAUNCH model in other areas of North Carolina was initially federally funded andhas been very successful,” said Dr. Monroe. “We are fortunate to have the local funding supportfrom the John Rex Endowment for thisinnovative health model that integratesmental health care providers into thepractice and provides added layers ofsupport – it’s the future direction of health care.”


Learn more about Triple P – PositiveParenting Program workshops in thecommunity! See page 12 for upcomingworkshops and programs just for parents.



Throughout the year, WakeMed is fortunate to receivecountless gifts that help bring comfort and care to patientsand their families. As the holidays approach, many familiesand community groups make an extra commitment togive a little more to support kids and families who are indifficult situations.

“We are so grateful for the kind gifts we receive to help patients,” saidBrad Davis, executive director of the WakeMed Foundation. “It’s awonderful expression of love and support to give something that willhelp bring a little cheer to another family.”

The gifts come in all shapes and sizes. From blankets to toys, books,crafts and monetary donations, each gift that comes to the hospitaladds to the story of a patient who probably needed a little extra careand cheer at a particularly tough time.

Expressions of Generosity



Local families and community groupswho take the time to collect andbring gifts and financial contributionsare making a big difference.

“Many people who choose to giveback to help patients at WakeMed tellus that they are thankful for care theyreceived or an experience a loved onehad at the hospital – it is a genuineexpression of gratitude,” said Davis.“For some, it is part of a healingprocess.”

“I’m blown away by the generosity wewitness, especially from children – itgives me hope for the future becausewe get to see how big their heartsare, and we can all learn from theirexample,” said Davis. “We can’t saythanks enough!”

WakeMed Foundation HolidayDrive for WakeMed Children’sInterested in donating a new toy, book,game or stuffed animal to a child who isin the hospital over the holidays? TheWakeMed Foundation is happy toaccept your gift and encourages allgroups and individuals to stop by theMain Visitor Lobby of WakeMed’sRaleigh Campus at 3000 New BernAvenue.

Make your donation on one of thefollowing days:

Monday, December 711 am to 1 pm

Wednesday, December 96 to 8:30 pm

Tuesday, December 155:30 to 7:30 pm

Thursday, December 175:30 to 7:30 pm

Please keep in mind that many of thepatients in the hospital are acutely illand unable to receive visitors. In aneffort to prevent the spread of illness,we ask that all donations be directed tothe above-noted drop off times. If youare unable to deliver items during thedesignated time or have questions,please contact the WakeMedFoundation at 919-350-7656.

Items donated to WakeMed Children’sare provided to patients who are in thehospital over the holidays as well asthroughout the year.

For a complete list of preferreddonation items, please visitwww.wakemedfoundation.org/wish-list

To

WakeMed



Calendar FALL/WINTER 2015

Memories for Marcus(benefiting WakeMed Children’s)Wednesday, December 26 to 9 pmDaily Planet Café121 West Jones Street, Raleigh

By making a $20 donation to Memories forMarcus or bringing in a new unwrapped toy,you will receive a delicious buffet meal courtesy

of The Daily Planet (drinksnot included). All proceedswill benefit WakeMedChildren’s through theWakeMed Foundation. Toys will be given tochildren hospitalized duringthe holiday season. Pleasemake checks payable toWakeMed Foundation andspecify “Memories for

Marcus” in the memo line of your check. Tolearn more, including a list of suggest gift items, please visit wakemed.org or [email protected] or call Margie at (919) 906-0156.

NC Symphony Young People’s ConcertsPresented by WakeMed Children’s

Mark your calendar for these exciting programs:

> Emily Saves the OrchestraSaturday, January 9 at 1 pm and 4 pm

> Lemony Snicket’s The Composer is DeadSaturday, March 12 at 1 pm and 4 pm

Learn more and purchase tickets atncsymphony.org or call 919-733-2750

Positive Parenting ProgramsBeing a parent can be incredibly rewarding...and incredibly challenging. Triple P – PositiveParenting Program® workshops can help youmanage the big and small challenges of raisingkids. Equip yourself to create a family life withmore fun and fewer struggles.

All programs held at Marbles Kids Museum,201 East Hargett Street, Raleigh, NC 27601

> Power of Positive ParentingJan. 12: 6:30-8:30 pm; Jan. 24: 3-5 pm

>

Raising Confident, Competent Children

Feb. 9: 6:30-8:30 pm; Feb. 21: 3-5 pm

> March 8: 6:30-8:30 pm; March 20: 3-5 pm

In partnership with Triple P Raleigh, MarblesKids Museum offers these workshops to parentsFREE of charge. Pre-registration is required. Nochildren, please. Register atwww.marbleskidsmuseum.org/parentworkshops

Triple P Discussion GroupsAll programs held at Project Enlightenment,501 S. Boylan Avenue, Raleigh, NC 276036:30 - 8:30 pm

> Hassle Free Shopping with ChildrenJan. 14

> Developing Good Bedtime RoutinesFeb. 11

> Managing Fighting and AggressionFeb. 23

Call Project Enlightenment at 919-508-0811 fordetails about fees, participation, location andregistration for Triple P Discussion Groups. Forinformation about Triple P - Individual Services,call 919-856-7800 or visitprojectenlightenment.wcpss.net


Raising

Confident,

Competent

ChildrenRaising

Confident,

Competent

ChildrenRaising

Confident,

Competent

ChildrenRaising

Confident,

Competent

Children

Raising Resilient ChildrenRaising Resilient Children


WakeMed is pleased to offer Birth & Parenting Education classes at locations throughout Wake County. Birthing classes help expectant parents successfully prepare for the arrival of their new baby. Our parenting education offerings also include safety, first aid and fitness classes. A few of our classes:

Labor & Pregnancy Classes

> Labor & Birth Education> Multiples Labor & Birth Class> Labor & Birth Review> Preparation for Cesarean Birth> Doula Services> Pregnancy & Diabetes

Caring for Baby Classes

> Baby Basics Class: Bringing Home Baby> Breastfeeding: Getting a Great Start> Breastfeeding Support Groups> Choosing & Using Quality Child Care

Caring for Families

> CPR – Infant, Child & Adult> Grandbabies> Safety First Aid for the Family

Baby Body Total Fitness

> Baby Body Yoga> Baby Body Fitness

Labor & Delivery Tours

> WakeMed Raleigh Campus> WakeMed Cary Hospital> WakeMed North Family

Health & Women’s Hospital

Visit events.wakemed.org for detailed class descriptions and registration information.

TMf

b i r t h & p a r e n t e d u c a t i o n

classes



toy safety

With all the holiday hustle and bustle, it’simportant to slow down and think twice to avoidinjuries. New toys, visitors and an overall hurriednature can all contribute to serious accidents andunintentional harm to children. To keep thingscheerful and safe, pause and take note of a fewtips to prevent some common childhood injuries.

Safety Tips Toys and games are tons of fun for kids andadults. Whether your kids are working on apuzzle, playing with building blocks or eveninventing their own games, here are a few thingsto think about to help them stay safe and have a blast.

Find the Perfect Toy for the Right Age • Consider your child’s age when purchasing a

toy or game. It’s worth a second to read theinstructions and warning labels to make sure it’sjust right for your child.

• Before you’ve settled on the perfect toy, checkto make sure there aren’t any small parts orother potential choking hazards.

Don’t Forget a Helmet for Riding Toys • If your children have their hearts set on a new

bike, skateboard, scooter or other ridingequipment, be sure to include a helmet to keepthem safe while they’re having fun.

• Learn more bike safety tips and watch ourhelmet safety video.

Store Toys After Play • After play time is over, use a bin or container to

store toys for next time. Make sure there are noholes or hinges that could catch little fingers.

Published by the WakeMed Public Relations Department. Call 919-350-8120 with comments or suggestions.

WakeMed Health & Hospitals3000 New Bern Avenue Raleigh, North Carolina 27610

© WakeMed, 2015

Advisory Panel for Families First

Jerry Bernstein, MD, Raleigh Pediatric Associates, PA

Amy Griffin, MD, Wake Emergency Physicians, PA

Melissa Johnson, PhD, Pediatric Psychologist, WakeMed Physician Practices - Pediatrics/Neonatology

Bill Lagarde, MD, Director, WakeMed PediatricEndocrinology

Debra Laughery, Vice President of Public Relations

Stephen Leinenweber, MD, Executive Medical Director,WakeMed Children’s Services

Courtney Mann, MD, Wake Emergency Physicians, PA



Sign Up to Receive Product Recalls • Safe Kids compiles product recalls specific to

children and sends twice-monthly e-mail alertsfor recent recalls. Sign-up for the latest recallinformation.

• Go to www.recalls.gov for additionalinformation about product recalls related tokids.

In 2011, 188,400 children under the age of 15years were seen in emergency departments fortoy-related injuries. That's 516 kids every day.More than a third of those injured were children 5 and under.

Beware of Button Batteries!Many new toys, gadgets and everyday householditems include a small but lethal danger forchildren. They're shiny and tiny so kids are likely tobe curious about the coin-sized lithium batteriesthat keep many things powered up. They can getstuck in a child’s throat and trigger an electricalcurrent that causes a chemical reaction andsevere damage.

Call 911 or take your child to the emergencydepartment immediately if you think they mayhave swallowed a battery. Kids can still breathewith the coin lithium battery in their throat sowatch for the following symptoms:

• Coughing

• Drooling

• Throat Discomfort

Common Items to Keep Out of ReachThis is only a sample list and is notcomprehensive. Parents should check all batteryoperated devices and store them out of reach.

• Remote Controls

• Calculators

• Watches

• Key Fobs

• Flameless Candles

• Musical Cards

• Digital Scales

• Thermometers

• Flashing Jewelry

• Holiday Decorations

• Hearing Aids

Source: Safe Kids Worldwide www.safekids.org

J. Duncan Phillips, MD, Surgeon-in-Chief/Director, WakeMed Pediatric Surgery

Mark Piehl, MD, MPH, Pediatric Intensivist, WakeMed Children’s Hospital

Ivy Pointer, MD, Pediatric Intensivist, WakeMed Children’s Hospital

Karen Chilton, MD, Medical Director, Pediatric Critical Care and Hospital Medicine, WakeMed Children’s Hospital

Chris Schmidt, Editor

Leesa Brinkley, Design

Children’s

How You Can HelpOngoing support for the growing healthcare needs of the patients at WakeMedChildren’s is made possible through thegenerous donations of readers like you tothe WakeMed Foundation.

To learn how you can support theexpansion of WakeMed Children’s services,please visit the WakeMed Foundation atwww.wakemedfoundation.org or call 919-350-7656.


Children’s

Nonprofit OrganizationU.S. PostageP A I DRaleigh, NCPermit NO. 1307

3000 New Bern Avenue Raleigh NC 27610

www.wakemed.org

Families First is published for membersof the WakeMed Families First Club.Reproduction or use, withoutpermission, of editorial or graphiccontent in any manner is prohibited.Information in this publication is not asubstitute for medical advice ortreatment. Please see your doctor ifyou have any questions about yourmedical care.

Comments and requests forsubscription or removal from themailing list may be sent to:WakeMed Public Relations3000 New Bern Ave.Raleigh, NC 27610 or [email protected]

Wednesday, December 9, 6 to 8:30 pmWakeMed Raleigh Campus Courtyard, 3000 New Bern Avenue, Raleigh

We’ve combined two great events for one fantastic evening! You and your family areinvited to join us for the 30th anniversary of the annual Love Light Tree Ceremony –our special tree-lighting ceremony. Lights and Stars on the Love Light Tree representdonations in honor or in memory of loved ones. Following the tree lighting, we’ll join Twinkle, WakeMed Children’s mascot, for Trim the Tree with Twinkle.

It’s a festive evening of singing, holiday goodies, ornament making and a special visit from Santa and Mrs. Claus! Help bring holiday cheer to pediatric patients bydecorating a tree that will be displayed in the WakeMed Children’s Hospital.

Free parking is available in the P1 Green Visitor Deck. Take the sky bridge to the MainVisitor Lobby to access the courtyard. Both events are free! No registration required.

Love Light & Trim the Treewith Twinkle

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