Overview of the Community Engagement ProgramA resource for faculty, staff, students, and

community

Nuts & Bolts of Community Based Participatory Research Workshop

April 11, 2014Crystal Evans, MS Program Manager

Presentation Objectives• Provide an overview of the

Community Engagement Program’s mission, goals, and resources.

• Determine how the Community Engagement Program can help you

Community Engagement Program Team

Faculty – Lee Bone, MPH, BSN, Associate Professor, JHU-

SPH– Hae Ra Han, PhD, Associate Professor, JHU-SON– Pamela Ouyang, MBBS, Professor, JHU-SOM

Staff– Crystal Evans, MS, Program Manager

Community Research Advisory Councils– Johns Hopkins East Baltimore – Johns Hopkins Bayview

Community Engagement ProgramMission

1. Build the capacity of researchers and community members to conduct community-engaged research.

2. Create a forum for community members and researchers to collaborate on research activities.

3. Support community driven research and outreach

4. Enhance the dissemination of research to practitioner and lay communities.

Community Engagement Program Activities Activit

yGoal Impact Measure

Consults Provide assistance to faculty, staff, students on CE

research projects

# of consultations6 and 12 month

surveys(Self reported status of project; funding, IRB

approvals)

Trainings

Build the capacity of faculty, staff, students, and community to collaborate on

research

# of attendeesSurveys

(Self reported knowledge; use of info on projects)

Advisory Councils

Promote community &

researcher collaborations

# council driven projectsSurveys

(Membership satisfaction surveys)

Community Engagement Consulting ServiceImpact

# of consultations: Served 800 individual research teams over 6 years

# consultations conducted 2012-2013: 25# 6-12 month follow up surveys: 10

Follow up Survey Findings All respondents were very satisfied with consultationMost common reasons for consultation were:• Feedback on grant prior to submission; • Feedback on project after funding• Identifying community partners80% reported applying feedback to project; Respondent comments; • “Included feedback in grant and got funding”• “Changed interview questions so they were easier to

understand”• “Revamped advisory board; developed bylaws;

recruited members”• “ Invited senior center directors to serve as community

partners.”

Community Engagement Consulting ServiceList of Consultations 9/2013-2/2014

Project, Investigator Service, Impact

1. Neighborhood Influences on Healthy Eating Shari Waldenstein, PhD, University of Maryland

Survey DesignIRB Approved

2. Patients Views of Patient Centered Research

Nancy Kass, ScD, JHU School of Public Health

Survey DesignIRB Approved

3. Hypertension: Comparative Effectiveness Study

Steven Schulman, MD, JHU, School of Medicine

Grant PrepGrant Submitted

4. Older Adults Driving StudyVanya Jones, PhD, JHU School of Public Health

Co-InvestigatorReferral

5. Treatment Preferences of Patients with Diabetes

John Bridges, PhD, JHU School of Public Health

Grant PrepGrant Funded

Community Engagement Program Trainings Event Goal Impact

Nuts & Bolts of Community Based

Participatory Research

Introduce CBPR principles and methods; build knowledge of CBPR

150 attendeesMain Survey Findings- Day of event: 95%

reported increased knowledge of CBPR

- 6 month follow up survey: 70% used knowledge on a CBPR project

Understanding & Evaluating Research: Community

Advisory Board (CAB)Workshop

Introduce research methods and ethics to individuals serving on community advisory boards

35 attendees; affiliated with 10 boardsMain Survey Findings- Day of event: 75%

reported increased research knowledge

- 3 month follow up: 60% used knowledge as part of CAB work

Community Engagement Program TrainingAttendee Affiliations

External Audience

•Alliance of Community Teachers•American Public University•Baltimore City Health Department•Baltimore City Schools•Black Nurses Association•Community Health Initiative•Health Leads•Howard University

•International Rescue Committee•Liberty University•Loyola University•Men and Family Health Center•Morgan State University•University of Maryland•Safe and Sound•Y of Central Maryland

Internal Audience

Johns Hopkins Centers & Institutes•Alzheimer’s Research Center •Center to Eliminate Cardiovascular Disparities•Center to Reduce Cancer Disparities•Center for Urban Environmental Health • Urban Health Institute •Student Resource Center

Johns Hopkins Schools •Business•Education•Engineering •Medicine•Nursing•Public Health

Community Research Advisory Council at East Baltimore

Year

Timeline

2009

Formed as part of the Community Engagement Program Initial focus on ethics & safety

Designated advisor to the IRB on exception to informed consent studies and projects impacting community

Reviewed 5 exception to informed consent studies

2010

Mission revised by members to reflect commitment to increasing community trust and involvement in research

Bylaws developed: term limits, roles, decision making process

2011

Committees formed to guide: Board Development, Community Education, and Research Reviews

2013

Committee Chairs Elected

Community Research Advisory Council at East Baltimore

Committee Accomplishments Board Development

Maintain active, engaged, & diverse membership.

Major Accomplishments •Recruited new members•Organized new member orientations &trainings•Developed &administered member satisfaction survey•Recommended strategies to enhance member satisfaction •Helped develop bylaws that guide how C-RAC business

Research Review Provide community input on research projects and policies.

AccomplishmentsIn 2012-2013, conducted 5 research reviews. - Hepatitis C Study- Family Health History Study - Treatment Preferences of Patients with Diabetes- Use of Community Engagement to Improve Health- Use of Patient Health Info to Recruit Study Participants- Conducted survey to measure impact of research reviews

Community Research Advisory Council at East Baltimore

Committee Accomplishments

Community EducationProvide information about health issues facing the local community and Hopkins research related to those health issues

Major Accomplishments • Partnered with 4 churches to develop & conduct

survey to identify research priorities of congregation & community members.

• Clergy & health ministry leaders led data collection • Survey completed by 847 people. • Johns Hopkins researchers presented on the top health

priorities High Blood Pressure, Heart disease, Diabetes, and Asthma.

Faith and Community-Based Partners• Memorial Baptist Church• New Shiloh Baptist Church of Turner Station• St. Martin Church of Christ• Zion Baptist Church• Druid Heights Neighborhood Association

Community Research Advisory Council at East Baltimore

Founding PartnersCommunity

•AARP•Alzheimer’s Association•Baltimore City Schools•Baltimore City Health Department•Civic Works •Environmental Justice Partnership

•Family and Children Services•Light Health Foundation•Mental Health Association•University of Maryland School of Medicine •Sojourner Douglas College•The Door Urban Leadership Foundation

Johns Hopkins

Johns Hopkins University School of Medicine - Center to Eliminate Cardiovascular Health Disparities

- Office of Diversity and Cultural Competence Johns Hopkins University School of Nursing

Johns Hopkins University School of Public Health- Berman Institute of Bioethics

- Center for Urban Environmental Health - Department of Health, Behavior, and Society

Community Research Advisory Council at Bayview

Year

Timeline

2011

Formed to create a forum for community members, faculty, and staff to discuss Bayview Research

At inaugural meeting participated in focus group to identify community perceptions of Bayview research- Noted that local residents willing to

participate - Did not understand why research was

conducted- How to access research opportunities or

findings

After meeting, Council decided to focus on educating local residents and patients about the research process

2013

Formed committees: Board Development, Community Education, and Research Review

2014

Planned Activities: Revise Mission, Recruit New Members, Identify research projects for Council to work on

Community Research Advisory Council at Bayview

Major Accomplishments

2012• Developed clinical research booklet • Distributed at 20 community event• Posted on Bayview Website• Plan to modify for East Baltimore campus

2013• Helped revise Trials at Bayview Website• Advised to use less words; more photos• Organize studies by health condition• Feedback was incorporated site

http://www.hopkinsmedicine.org/johns_hopkins_bayview/research_clinical_trials/clinical_trials/

Community Research Advisory Council at BayviewFounding Partners

Community •Angelesea to Kane Streets •Baltimore Public Defenders Office•Baltimore Guide Newspaper•Baltimore Medical Systems

•Bayview Business Association•Dundalk Renaissance Corporation•Healthy Community Partners•Zion Baptist Church

Johns Hopkins Bayview

Institutional Review Board Office of Community and Government Relations

Community Health Library Pastoral Care

Public Affairs and Communication President’s Office

Community Engagement Program

For more information contact

Crystal Evans, MS Program Manager

cevans20@jhmi.edu or 410-550-2281