onvergetelijk unforgettable museum tours for people with dementia & their caretakers
TRANSCRIPT
ONVERGETELIJKUNFORGETTABLEMuseum tours for people with dementia & their caretakers
CONTENT
• Introduction• Presentation• Brainstorm• Conclusion
INTRODUCTION
INTRODUCTION
Expected growth in the number of people with dementia:*
NUMBERS
2014 2050
WORLDWIDE 44 million 135 million
EUROPE 11 million 20,7 million
DEMENTIA
*World Alzheimer Report, 2014
• grocery shopping• managing money• using the public transport• cooking• social contacts• orientation• communication• housekeeping activities• self-care• …
DEMENTIA
CONSEQUENCES DAILY LIFEPeople with dementia have problems with:
Disruptions in psychological functioning and behaviour.
• depression• anxiety• aggressive behaviour• rebellious behaviour• agitation• wandering• suspicion• delusions• hallucinations
biological,
psychological,
social factors
stress
CONSEQUENCES DEMENTIA
DEMENTIA
DEALING WITH
DEMENTIA
DEMENTIA
• Feel comfortable
• Enjoy self
• Enjoy environment
• Develop and maintain social contacts
• Feel at home and attached to the environment
• Receive adequate treatment and care in case of illness
• Feel accepted and integrated into society
• Feel safe while maintaining sufficient privacy
• Keep health in good condition
• Give personal meaning to spirituality
• Experience freedom and self-determination
• Feel useful
• Get around financially *Dröes et al., 2006
QUALITY OF LIFE
DEMENTIA
• Movement Positive effect on condition, cognition, mood, social functioning
• Cognitive stimulation therapyPositive effect on cognition and quality of life
WHAT CAN YOU DO?
DEMENTIA
• Art Positive effect on mood, self confidence, communication, social functioning
WHAT CAN YOU DO?
DEMENTIA
*(Marr, 1995; Kahn-Denis, 1997; Johnson & Sullivan-Marx, 2006; Hanneman, 2006
Moody & Phinney, 2012; Arts 4 Dementia, 2013; Phinney et al, 2014)
UNFORGETTABLE
PROGRAM
• Interactive museum tours & workshops for individuals with dementia and their caregivers
• Based on the Meet Me at MoMA- program developed by the Museum of Modern Art (MoMA), New York
MEET ME AT MOMA
PROGRAM
Since 2006 Meet Me at MoMA, a monthly program for individuals with dementia and their caregivers.
• Activity for both the individual with dementia and their caregiver• Look beyond the disease; focus on what people are still capable of• Emphasis on having fun• Social aspect; friendships arise
PROGRAM
WHAT APPEALED TO US?
TRAINING STEDELIJK AND VAN ABBE
• Every month; set time and day• 1,5 hours• 4 à 5 artworks per tour• Theme• Tourguide and volunteer• Nametags• Stools to sit on• Take-home card with artwork from the tour
TOUR
What kind of woman is this? (without telling who it is yet)
Which words would you use to describe this person?
What do the colors tell us?
What is the person on the picture thinking of?
What does she express with her hands?
Would you want to be her?
What would your portret look like?
Observe
Describe
Interpret
Connect
Summarize
ARTIST WORKSHOPS
"The Unforgettable program is something we always look forward to and both really enjoy. We come almost every month! The guides and volunteers at the museum treat the people with dementia with great respect and simultaneously involve the caregivers in the tour.”
Frans en Lies de Vos
REACTIONS
REACTIONS
"Last week we participated in the Unforgettable program with a group of our residents and their caregivers. I received such enthusiastic reactions from all the people who participated. Family members were very impressed with the responsiveness of their loved ones and it was indeed very nice to see what a beautiful conversations arose. "Ellen van Breemen Teammanager Zorg, Klaasje Zevenster, Brentano, Amstelveen
REACTIONS
EXPANSION
• 3 years, 10 museums• National coverage• 2/3 months employee for training and
implementation of the program• Publication and website• Research
EXPANSION
RESEARCH VU MEDICAL CENTREDEPARTMENT OF PSYCHIATRY
RESEARCH
• Iris Hendriks, LL.M• Prof. dr. Rose-Marie
Dröes• Dr. Franka Meiland
Both• More cheerful mood• Increased social support• Increased confidence
Caregiver• Less emotional problems
By visiting a museum, people get inspired to do other activities together.
(37 people with dementia en 37 carers)
EFFECT RESEARCH MoMA
RESEARCH
Research questions
National Implementation of the Alzheimer program in Dutch museums
RESEARCH PROJECT UNFORGETTABLE
RESEARCH
1. What is the impact of the Alzheimer program on the participants, stakeholders, the museum as organization and the society?
How do the participants value and experience and the guided tours?
– Does it matter which art is exhibited?
– What impact does the program have on the museum employees?
– Does the program lead to other initiatives for other groups of people?
Research questions
National Implementation of the Alzheimer program in Dutch museums
RESEARCH PROJECT UNFORGETTABLE
RESEARCH
2. How can we implement the program successfully in (other) museums?
- Facilitating and impeding factors of implementation, with regard to:
a) the execution of the guided tours (micro-level)
b) the museum as organisation and cooperation with other organisations (meso-level)c) laws and regulations (macro-level)
- What could be effective solutions for impeding factors?
EXPECTED OUTCOMES
• Expected outcomes:
– Insight in the experience, impact and implementation of the Unforgettable program
– Practical guide for setting up the Unforgettable program in other museums in The Netherlands
– Scientific-, professional and public publications
RESEARCH
• Duration research: February 2014- February 2017
BRAINSTORM
BRAINSTORM
BRAINSTORM1. Write down the factors that obstruct and promote the implementation of the art and elderly projects you are involved with.
obstruct promote
BRAINSTORM
BRAINSTORM2. Write down possible solutions for the obstructing factors.
solutions
BRAINSTORM
CONCLUSION
CONCLUSION
The main funder of the implementation project and the research is the Gieskes Strijbis Fund.
The implementation of the Alzheimer program in the Stedelijk Museum and in the Van Abbemuseum is financially supported by the RCOAK Foundation and the Sluyterman van Loo Fund.
SHARING = CARING!