november is declared alzheimer’s disease awareness month · november is declared alzheimer’s...

November is declared Alzheimer’s Disease Awareness Month

We place a safety net around patients and caregivers every day.™FALL 2013 / WINTER 2014

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contentsFALL 2013 / WINTER 2014

BOARD OF DIRECTORSOFFICERS

CHAIR, Clark D. Benne�VICE�CHAIR, Judith B. Rappaport

TREASURER, James Fragakis GregoryFounding Board Member

ASSISTANT TREASURER, Randy K. Johnson, Sr.SECRETARY, Robert J. Gorman, Esq.

DIRECTORSWilliam ArmsteadLarry E. Butcher

Patrick J. Halperin, Ph.D., Ed.DThornton M. Henry, Esq.Bonney A. Johnson, CTFA

Rick LincolnMichele Poole

G. Mark Shalloway, Esq.Tenna Wiles

Kevin P. Wrenne

PRESIDENT AND CEOMary M. Barnes

STAFFCHIEF OPERATING OFFICER, Mark Corne�

VP OF HUMAN RESOURCES, Kris RiedellVP OF FINANCE, Anne Costello

VP OF CCS, Karen GilbertEDITOR�IN�CHIEF, Rai Masuda

The Publica�on of Alzheimer’s Community Care, Inc., welcomes adver�sers of Alzheimer’s resources and services.Adver�sing rates for this publica�on are available upon request. We have the right to use our discre�on for appropriate ads for our readers.

Contact: Alzheimer’s Community Care800 Northpoint Parkway, Ste. 101-B

West Palm Beach, FL 33407561.683.2700 or [email protected].

Note: Acceptance of adver�sing by this publica�on does not represent endorsement of any product or service.

MAIN OFFICE800 Northpoint Parkway, Suite 101-B

West Palm Beach, FL 33407Tel: 561.683.2700 / Fax: 561.683.7600

alzcare.orgTwi�er: @Alzcareorg

Facebook: Facebook.com/AlzheimersCommunityCarePinterest: Pinterest.com/Alzcare

24 HOUR CRISIS LINE

1.800.394.1771

Alzheimer’s Community Care, Inc. headquarters is proudly located at 800 Northpoint Parkway in West Palm Beach in the Baxter Complex.

Inside . . .

Any statements of fact or opinions expressed here are the sole responsibility of the authors and not Alzheimer’s Community Care, Inc.All rights reserved. Reproduc�on in part or in whole without wri�en permission from Alzheimer’s Community Care, Inc. is prohibited.Alzheimer’s Community Care, Inc. does not endorse any adver�sers.

REGISTRATION #CH7588. A COPY OF THE OFFICIAL REGISTRATION AND FINANCIAL INFORMATION MAY BE OBTAINED FROM THE DIVISIONOF CONSUMER SERVICES BY CALLING TOLL-FREE (800.435.7352) WITHIN THE STATE. REGISTRATION DOES NOT IMPLY ENDORSEMENT, APPROVAL OR RECOMMENDATION BY THE STATE. ALZHEIMER’S COMMUNITY CARE IS A TAX-EXEMPT 501(C)(3) NOt-FOR-PROFIT ORGANIZATION AND RECEIVES 100% OF EACH CONTRIBUTION WITH 0% RETAINED BY A PROFESSIONAL SOLICITOR.

A United Way Member Agency Sponsored by: The State of Florida, Department of Elder Affairs and Area Agency on Aging Palm Beach/Treasure Coast, Inc. Cer�fied by Non-Profits First

The building isnamed in honor of

Mr. and Mrs. C . Kenneth Baxter

ALZHEIMER’S COMMUNITY CARE / FALL 2013 / WINTER 2014 1

Our Leadership.................................... 2-3Remembrances & Celebrations ........... 4-6The Affordable Care Act:What Do We Need to Know? ................... 7Dedication Ceremonies ....................... 8-9Half-Day Care Plan ............................... 10ACC and Joyful Melodies....................... 11Ways to Give ......................................... 13ACC to Receive National Caregivers Award .................................. 14Preparing for a Medical Emergency........ 15Services & Resources ....................... 16-17Thank You to Organizations ................. 20Preview of 2014 Alzheimer’s Educational Conference ....................... 21ACColades ...................................... 22-23ALF Training I and II ....................... 24-25

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11

22 23

2 ALZHEIMER’S COMMUNITY CARE / FALL 2013 / WINTER 2014

Major Achievements in 2013

Clark D. BennettFROM CHAIR OF THE BOARD OF DIRECTORS

The Board of Directorsis very excited as weenter the New Year.Alzheimer’s CommunityCare has achieved accreditation by theJoint Commission as ac o m m u n i t y - b a s e dorganization and this isa critical piece in fulfilling our vision. ThisBoard believes that the

organization was created to make a difference within the lives of our families asthey cope with the effects of Neurocognitive Disorders throughout the duration of the disease.

When Alzheimer’s Community Care wasfounded in October 1996, accreditation wasnot envisioned as being possible. However,in today’s world it became evident that if wewere to make a serious impact on the transformation of care that would be genuinely respected and acknowledged,this step was necessary.

This Board is well aware that the accreditationprocess – achieving the “BehavioralHealth” designation – will lead to the nextstep of achieving disease-specific certification,the most challenging step. This undertakingis very ambitious but the Board of Directorsis committed to achieving this standard as abenchmark to be replicated within the healthcare system.

Another major achievement of this past calendar year was the renovation of the oneand only building the organization ownswhich is located in Pahokee. This would nothave happened if it were not for the generosity of the Leo and Anne Albert Charitable Trust under the guidance of itsvery caring trustee, Mr. Gene Pranzo. Thededication ceremony naming the buildingthe Leo and Anne Albert Alzheimer’s Careand Service Center occurred in October2013.

Another major achievement was the dedication ceremony of our new facility onthe campus of Advent Lutheran Church in

Boca Raton on November 14th. The buildingis now named the Phyllis and Julius SiegelAlzheimer’s Care and Service Center. RonSiegel, the son of Phyllis and Julius andlong-time friend and supporter of the organ-ization, is responsible for this significant,caring, and generous gift in memory of hisparents. Ron’s vision is that this center isknown as the provider of choice for administering specialized care throughoutthe duration of the disease. Ceremonies inboth locations were heartwarming and trulyreflective of our community roots. There ismore information on these two significantevents within the pages of this quarterlymagazine.

On behalf of the Board of Directors, we sendyou best wishes for a Happy and Healthy2014.

I remain,

Clark BennettChairperson

ALZHEIMER’S COMMUNITY CARE / FALL 2013 / WINTER 2014 / 3

Public Awareness Projects

Mary M. BarnesFROM THE PRESIDENT AND CEO

The focus of this publication is our publicawareness projects. Asan organization, we advanced our agendaby asking our counties’leadership to presentproclamations fromPalm Beach, Martin,and St. Lucie Counties

acknowledging the presence of our localfamilies who are coping with the effects ofNeurocognitive Disorders. This exercise hasbeen executed for the past 17 years, but forthe past three years we have asked theAlzheimer’s Association Southeast FloridaChapter to join us in the public awarenesscampaign for demonstrating the necessityof specialized care and research.

This year we asked four specific local governments to issue proclamations acknowledging our work and mission.Alzheimer’s Community Care continues toexpand our resources within those communities in order to accommodate morefamilies. The municipalities who were sogracious in issuing proclamations were;

• Palm Beach County• Martin County• St. Lucie County• The City of Boca Raton• The City of Pahokee• The City of Belle Glade• The City of South Bay

The proclamations are on the cover of thismagazine and their wording is highlightedwithin the pages of this magazine.

We are in the process of having all nine ofour Specialized Alzheimer’s Care and Service Centers licensed under the Specialized Alzheimer’s Day Care Act,which was passed by the legislature in2011. At this time we have seven Care andService Centers licensed with two more togo. The remaining Centers will be licensedwithin the first six months of 2014. The Centers that are licensed under the Specialized Alzheimer’s Day Care Act are:

• Leo and Anne Albert Alzheimer’s Care and Service Center

• Phyllis and Julius Siegel Alzheimer’sCare and Service Center

• Ft. Pierce• West Lake Worth• West Palm Beach• Lake Worth• Delray Beach

Why is this license so important? It recognizes the following mandatory standards for administering care and services according to the law, and they are:

1. A nurse is on duty during 75% of theCenter’s hours of operation.

2. All staff must be trained on Neurocogntivie Disorders, and training is updated annually.

3. Must assist caregivers and familieswhen it is necessary for discharge planning.

4. A day care center that advertises Alzheimer’s disease and related disorders care must be licensed. This standard will be fully enforced by January 2015.

At this time there are approximately 20 other centers licensed under the SpecializedAlzheimer’s Day Care Act, and the list isgrowing every day. There are health systems excluded from the law so pleaseask if they are licensed.

As an organization we have been instrumental in achieving the following legislation on behalf of our Alzheimer’s families:

• Alzheimer’s Medicaid Waiver (2005 - 2010)

• Florida Silver Alert Act (2010)• Specialized Alzheimer’s Day

Care Act (2011)

The legislative initiatives are having a positive impact on the care and well-beingof our patients and caregivers. In addition, Ihad the honor of serving on the Florida Purple Ribbon Task Force, which was responsible for creating a three-to-five yearAlzheimer’s plan for the state of Florida.The final plan is listed on the Florida Department of Elder Affairs website.

Former-President of the Florida SenateMike Haridopolos appointed me to theFlorida Purple Ribbon Task Force becauseof my experience with the Baker Act. Representative Matt Hudson, using our recommendations, is creating a legislativeappropriations request to fund a FloridaAlzheimer’s Plan.

Alzheimer’s Community Care wants the following areas funded through this appropriations request:

• More services funded for families copingwith Alzheimer’s diseases and related disorders.• Fund the technology to find someonewithin minutes, as well as more training forstate law enforcement agencies that addresses persons who become lost onfoot. • Disaster preparedness for local communityorganizations like Emergency OperationsCenters and the Health Department so theycan be prepared to assist families who areat-risk because of the disease process. • An alternative to the Baker Act that provides stabilization services within thecommunities. Initially, funds would be usedfor a pilot program that gathers data andmeasures its effectiveness. • Community emergency intervention program that diminishes the need for institutionalization when a caregiver becomes incapacitated.

There are other viable recommendationsthat are stated within the Purple RibbonTask Force’s Report, and perhaps they willbe incorporated within Representative Hudson’s appropriations request.

Our Florida Legislators are very supportiveof the organization’s work and mission, andthat is due to our annual advocacy trip. The2014 advocacy trip will be from February 11-13. Please volunteer for our2014 trip, and if you would like to learn moreabout the significance of this event pleasecall me at 561-683-2700. We hope you willjoin us for a memorable experience.

I want to end my letter by asking you to support our local work and mission by supporting us as one of your top three charities. Remember your financial donationgoes far, but not far away.

Best Wishes for a Healthy 2014!!!!!

Mary M. BarnesPresident and CEO

STATEWIDE ADVOCACY EFFORTS

IN REMEMBRANCE OF DONOR

Mark Menigoz Terese DonohueMark Corne� Leona LoweFrank Yaeger Rubin YaegerThomas Shaughnessy Bert RaschkeMerilyn Diamond Gloria StaelgraeveMerilyn Diamond Robert NewmanMerilyn Diamond Myron EpsteinMerilyn Diamond Alan LustbergJim & Susan Sandberg Celia SandbergJoan Jacober Anne�e GessmanDoris Wolfe Frank BascombDoris Wolfe Diane TobinDoris Wolfe Jimmie Lou GoldbergSelene Fishkin Helene LevanthalJoseph Ackerman Be�y ScardinoArnold Hartz Robert NewmanDorothy Roden Hugh RodenAnonymous Dorothy Duffe�Anonymous Jane MarcellaroAnonymous George F. Bovie, IIIAnonymous William KilmerRichard Adams Jim WellsKathleen Finnerty Olga KaszkoJan Silverman Arthur SteinJan Silverman Lloyd BoehnenJan Silverman Robert BehrmanJan Silverman Roy SchornsteinEdna Bloomer William & Parker GitschierEdna Bloomer Kenneth CokeMcleod From Joseph C. Ryan Memory of Mary LawlessRosalie Klein Herbert MagourneyDale Bruhn Frank BascombHarriet Ballin Arthur SteinLaurence & Susan Diamond Sylvia SeideJoan White Irwin DiamondEileen Michaelson Berek ListwaCharles R. Dorsey Marion EarlineSusan Parks Bernard SeemenSusan Parks Max PerlsonHenry Epstein Robert GoldsteinRoberta Sco� Mary AndersonLaurence Walzer Charles SobonDoris Boehnen Arthur SteinCarmela Davis Filomena Amoia & Catherine WrightLucille Friedman Dr. Harold SelmanBarbaraSavin LowellBarbaraSavin Rose PanischBarbaraSavin Arnold Ginsberg

DONOR IN REMEMBRANCE OF

APRIL - OCTOBER 2013 Remembrances &

WE NEED YOUR HELP.

ALZHEIMER’S COMMUNITY CARErelies on the support of individuals,

corpora�ons and founda�ons to fundour services and resources.

One of the ways you can help us isthrough our Remembrances and

Celebra�ons program.

This is a wonderful way to honor aloved one or friend who has been

touched by the disease.

To make a contribu�on, please contact the Development Department at 561.683.2700 or

visit us at www.alzcare.org.

To make a gi�, please scan the QR Code with your smartphone.

Your gi� will make a true impact on the lives of our

Alzheimer’s families.


Janice Delater Olga PaszkoArnold Mindick Jerome GilbertRobert O'Brien Rita CastelliWilliam Miller Lynn StricklandSeymour & Gail Fried Frank BascombVicki Pugh Mary Jane AndrewsJulius Lazer Lloyd BoehnenMarilyn Glass Lloyd BoehnenPatricia Berman Lloyd BoehnenElayne Feld Lloyd BoehnenRosalind Juster Lloyd BoehnenHarold & Erika Bishins Lloyd BoehnenMillicent Nathan Lloyd BoehnenLucy Kopchinsky Eve ShererLionel & Lucille Goldberg Bernice SavageJoy Binkovits Eugene BinkovitzIra Kistenberg Rita SchultzAllan Weitzman Lloyd BoehnenSylvia Yarckin Nane�e Vitale's

Mother, Grandmother, Great Grandmother

Barbara Henderson Kenneth CokeJoel & Estelle Bendersky Jerry ArfaJoseph Polin Harry ShapiroBarton & Hazel Bird Kenneth CokeBill Michaud Roger C. WilsonChris�ne Anders Roger C. WilsonMary Deviso Joseph Jarre�Cliff Wolfe Diane TobinNancy Spalding Florence May FuchsStacey Moore Joseph Jare�Michele Criser Joseph Jare�Saul & Judy Solomon Chris�na BeyerleRobert Lowe Floerence May FuchsGail Mumpower Dorothy BoehringerJulie Oyler Florence May FuchsMarguerite Cash Joe CashJerry Horowitz Harold SilvermanPatricia Sylvain Tillie Roberts HinsleyPaul & Deborah Roche Joseph M. Brown

Tilly RobertsJim Stanton Robert K. SaundersCharles Rooney Robert SaundersAnn Marie Russell Robert SaundersKarolyn Bair Tillie Roberts HinsleyJeffry Witherill Gloria JonesHarvey Gough Kenneth KiblerCraig & Kris Shaak Lois WetzelSarah Regina Arnold Sondra RosnerEd & Babe�e Rie�erg Ephraim KobayOllie & Evie Bonnert Joe CashDavid & Ann Pope Joe Cash

DONOR IN REMEMBRANCE OF DONOR IN REMEMBRANCE OF

Celebrations APRIL - OCTOBER 2013


Sally Evans Joe CashMurray Tompkins Joe CashPasquale & Joann De Palma Marion DurgoloJoan Hayes Don DrennerRaymond & Janet Hodgert Donald DrennerDelaine Brubaker Hazel HessEric & Francine Smith Donald DrennerArnold & Sonia Portnoy Stanley AronsonJerold & Linda Handschu Donald DrennerAndrea Hanley Donald DrennerPa�y Strobbe Ken KibberBernie & Libby Statsky Donald DrennerNorman Brand Rachel KleinmanBarbaraMark Rachel KleinmanJaime Kramish Schaffer Rachel KleinmanCary Heiman Donald DrennerAmy Moore Rachel KleinmanSusan Emminizer Donald DrennerHarold & Theda Okun Shirley GordonFredi Pearlmu�er Rachel KleinmanLaura Badagliacca Donald DrennerKaty Shafer Donald DrennerAntoine�e Yammarino Peggy Giovane�Robert & Rebecca Drawbaugh Rachel KleinmanKeith & Katleen St. Clair Marion DurgoloCory & Heidi Ackerman Rachel KleinmanRobin Baratz Rachel KleinmanMeryl Sheetz Rachel KleinmanBruce & Virginia Rimay Kenneth KiblerRichard Kavanagh Kenneth KiblerJerry & MarleneCapps Kenneth KiblerDorothy Blackenship Kenneth KiblerJim & Sally Judycki Kenneth KiblerJohn & Anna Lukancic Kenneth KiblerShirley Strini Miller Kenneth KiblerJames Sczepaniak Kenneth KiblerEdward Conley Thomas McMahonPeter & Dolores Hounsell Marion DurgaloNancy Heller Rachel KleinmanPhilip Jasset Thomas McMahonAndrew Allen Thomas McMahonKaren Pascarella Thomas McMahonHilda Gropper Robert NewmanLawrence & Laurie Drago Thomas McMahonDolores Chauvy Roger WilsonSusan Laskowski Joe CashShirley Akman Mar�n PinskyAllison Reckson Rose Ann SchmidtWilma Kibler Kenneth KiblerMargie Ober Rose Ann SchmidtEdward Quann Thomas McMahonCarol Sandblom Thomas McMahonTammy Cleary Rachel Kleinman

APRIL - OCTOBER 2013

Remembrances & Celebrations

Herbert Sicular Herb Sicular's 91st Birthday & 66th Wedding Anniversary

Harriet Ballin Millicent Nathan

Doris Boehnen Millicent Nathan

Stanley Rader Edward Coleman

BarbaraSavin Mar�n Zelman

Be�e For�nsky Albert For�nsky

Frederick & Norma Moberg Grace Alessi

Sylvia Newman Edward Coleman

Jack For�nsky Albert For�nsky

Blanche Cohen Nora Ruth

Paul Neilson Jean Tilton

DONOR IN CELEBRATION OF


The Affordable Care Act was signed into law in March, 2010.We are all aware of the many debates about this comprehensivelaw, however, there are many provisions that provide new andinnovative benefits for our patients and families. The overallgoals of the Act include:

1. Expanding access to health insurance for all Americans2. Increasing protections for consumers3. Emphasizing wellness and preventive care4. Improving quality of health care5. Increasing the health care work force6. Curbing the rise in health care costs

Let’s look at each of these goals and how the Affordable Care Act addresses them.

1. Expanding access to health insurance• Expands Medicaid (in states that agree to

expansion) to cover those with incomes below 133% of federal poverty guidelines

• Requires employers (with 50 or more employees) to cover workers, or pay penalties

• Creates state-based insurance exchanges to help individuals and small businesses purchase insurance

• Eliminates the “pre-existing condition” barrier to purchasing affordable insurance

2. Increasing protections for consumers• Eliminates lifetime caps on insurance coverage• Prohibits insurance plans from cancelling coverage• Establishes state-based reviews for unreasonable

insurance premium increases• Links Medicare and Medicaid payments to medical

providers to quality of care• Creates a national process for developing health

care quality initiatives3. Emphasizing wellness and preventive care

• Establishes a national prevention and health promotion strategy

• Increases access to preventive care• Provides for Medicare coverage of annual wellness

visits with NO deductible or copayments• Awards grants for agencies promoting community

health• Provides funding to examine best

prevention practices

Expert Adviceby KAREN GILBERT, Registered Nurse and Alzheimer’s Community Care’s Vice President of Community Care Services

The Affordable Care Act:What Do We Need To Know?

4. Improving quality of health care• Creates projects to reduce medical errors• Improves care coordination for patients qualifying

for both Medicare and Medicaid• Promotes research to study the effectiveness of

various medical treatments• Initiates projects to develop payment mechanisms

designed to improve efficiency of health care and health care outcomes

5. Increasing the health care work force• Provides for grants to strengthen nursing education

and improve retention of nurses and nursing assistants

• Encourages innovation in training, recruitment and retention of health care workers

• Establishes a national commission to review the health care workforce and project workforce needs

• Establishes grants to enable states to engage in comprehensive workforce planning and to develop new strategies

• Expands training programs for family medicine, general internal medicine, long term care, geriatric care

6. Curbing the rise in health care costs• Increases oversight of health insurance premiums• Fosters competition between insurance carriers• Provides for new payment structures for Medicare

and Medicaid (as above, tied to outcomes)• Emphasizes preventive care• Reduces health care fraud and abuse

There are extensive additional provisions in the AffordableCare Act and its emphasis on prevention and qualitypaves the way for cost-effective care.


by RAI MASUDA, Communications Manager

Expert Advice

Leo and Anne Albert Dedication CeremonyBarbara Williams exhales a big breath of air beforeshe recalls her decision to bring her mother to theLeo and Anne Albert Alzheimer’s Care and ServiceCenter in Pahokee, Florida.

“I’m a retired teacher so sometimes I like to go backand substitute, so that I can mingle with the peoplethat I’m use to mingling with for the past 40 years.On those days I’d always wonder, ‘Where’s mother,how is she doing?’ ”

Mrs. Williams worried because her mother oftenwalked down the alleyway by their house, leavingMrs. Williams to try to communicate to her that people were not the same anymore. The decisionto bring her mother to the Leo and Anne AlbertAlzheimer’s Care and Service Center has left themboth smiling.

“When my mother leaves this place she leaves witha smile, she kisses everybody here,” said Mrs. Williams.

Alzheimer’s Community Care started its community-based, dementia specific outreach inthe Glades Community in 1993. In 2004, the Pahokee Women’s Club donated their property toAlzheimer’s Community Care which now serves asthe Leo and Anne Albert Alzheimer’s Care andService Center, providing therapeutic Day Care forpatients and respite for family caregivers. In 2011,Gene Pranzo visited the Pahokee facility with thegoal of making the care center a pillar of the community. Mr. Pranzo worked tirelessly to ensurethat the architectural changes were done to Leoand Anne Albert’s standards. The Leo and Anne Albert Alzheimer’s Care and Service Center illustrates the love Leo and Anne Albert had for theGlades Community.

Mr. Pranzo’s efforts cumulated in a celebration thatwas held on October 17, 2013. The ribbon cuttingbrought together distinguished guests includingMrs. Williams and her mother, former President ofthe Florida Senate Ken Pruitt, Senator JosephAbruzzo, Pahokee Mayor Colin Walkes, ReverendJohn Mericantante, Paul Razza, Upendo-Shabazz-Phillips and Pastor Patti Aupperlee.

The ceremony was filled with emotional speechesdescribing the impact of Alzheimer’s disease onthe Glades Community. Providing an environmentwhere people like Mrs. Williams’ mother can remainin the community with safety and dignity is the reason we dedicate 90 cents of every dollar donated to our care centers. As a 501 (c) 3 non-profit we rely on the goodwill of trustees, donorsand community leaders.

“Alzheimer’s Community Care has made a permanent investment in the Glades communitywith this building, and that’s something that cannotbe minimized,” said Senator Abruzzo.


Pahokee Mayor Colin Walkes leads the Leo and Anne Albert Alzheimer’sCare and Service Center ribbon cutting on October 17, 2013.

Pictured (left to right): Ken Pruitt, Father John Mericantante, Paul Razza, Barbara Williams, Arneze Finney, Colin Walkes, Randy Johnson, Joe Kyles, Dan Liftman, Mary M. Barnes,

James Fragakis Gregory, Joseph Horvath


Expert Advice

Phyllis and Julius Siegel Dedication Ceremony 2013 was a wonderful year as we not only held aceremony in Pahokee, but also in Boca Raton,Florida.

On June 27, 2013 the Alzheimer’s CommunityCare Board of Directors voted to accept a$250,000 donation in memory of Phyllis and JuliusSiegel to rename the newly renovated Boca Ratoncare and service center in their honor. Alzheimer’sCommunity Care’s relationship with AdventLutheran dates back to 1987, and this longstandingpartnership gave the organization the opportunityto renovate the building owned by the church. Thedonation was made by their son, Ronald M. Siegel,a social worker and former employee ofAlzheimer’s Community Care. The renovations resulted in a beautiful home-like care center forAlzheimer’s and Neurocognitive Disorder patients.

“We are so fortunate to have Ron Siegel. Here is aselfless man who is committed to helping others,and who volunteers to lead a men’s only supportgroup for Alzheimer’s patients, a safety net thatprovides the patients with much needed support,”said Mary M. Barnes, President and CEO.

Mr. Siegel is the first to admit that the community-based care model is one of the reasons he tirelessly supports Alzheimer’s Community Care.

“I worked at this center as an employee and I havenow been volunteering there for several years. Ihave never failed to be impressed by the staff andthe quality of care and dignity that is shown to theprogram’s participants and their caregivers. I haveseen this with my own eyes week in and week out.It brings me great pride that this center will carrymy parents’ names.”

The ribbon cutting dedication ceremony was heldon November 14, 2013, and featured speechesfrom Representative Bill Hager and City of BocaRaton Deputy Mayor Susan Haynie. With a tremen-dous outpouring of support, audience memberswere treated to stories and a tour of the new facility.

Mr. Siegel concluded the ceremony by explaininghow he couldn’t think of a more fitting cause for a donation.

“My parents were always interested in helpingthose most in need. Their parents came to thiscountry with nothing, and through the assistanceof others were able to build a foundation that allowed our family to achieve success.”

Alzheimer’s Community Care is eternally thankfulfor all of those who have helped us along the way.We truly enjoy providing a safe, dignified and compassionate environment for those who need itmost.


Alzheimer’s Community Care Benefactor Ron Siegel leads the Phyllis and Julius Siegel Alzheimer’s Care and Service Center

ribbon cutting on November 14, 2013.

Pictured (left to right): Steve Abrams, Clark Bennett, Susan Haynie, Ron Siegel, Representative Bill Hager,

Mary M. Barnes and Mark Cornett.


Expert Advice

Half-Day Care PlanSince 1996, Alzheimer’s Community Care has prioritized specialized, quality, and compassionate carefor patients and caregivers. The organization is always self-evaluating and soliciting feedback from itscaregivers. This feedback uncovered a need that would provide financial relief, an option for caregiversto bring patients to the Specialized Care and Service Centers for half-a-day.

“One of our caregivers is so grateful for this option because she was previously paying for a full-daywhen she came at 1 p.m.,” said Denise Douglas, Program Manager for the Phyllis & Julius SiegelAlzheimer’s Care and Service Center in Boca Raton, Fla.

Program Manager’s meet with families, and assess their individual needs. The Program Manager thenrecommends a plan that works best for their schedule and budget. Beginning Aug. 7, 2013, Alzheimer’sCommunity Care began offering half-day care plans for $40. The half-day can be utilized in the morningor afternoon, depending on the family’s needs.

“Caregiver’s need support too, and it’s important that Alzheimer’s Community Care meets not only thepatient’s needs, but also those of our caregivers,” said Mark Cornett, COO.

It is extremely important for caregivers to take personal time to run errands, socialize or just relax. AtAlzheimer’s Community Care a place exists where patients receive cognitive stimulation with others ina similar situation.

“We’ve had this request for years,” said Cornett.


Program Nurse Willie Mae

photo by Tim Stepien


Expert Advice

Alzheimer’s Community Care and Joyful Melodies

Tino Negri arrives with maracas, tambourines,American flags, and most importantly, smiles. Buthe isn’t the only one smiling. The patients atAlzheimer’s Community Care’s Specialized Careand Service Centers are full of smiles becauseNegri cares so deeply for them.

“My biggest highlight is when I am able to walk intoa community and pull someone out of a bad state,make them smile and be happy,” said Negri.

Negri starts by going around and personally greetingeach patient. The personalized touch allows him toconnect with patients before they break into song.The one-on-one interaction doesn’t end there because Negri sings with each patient individually,and even has a few of them join him for dancing.

“He brings out the very best in our patients. Whenhe comes they just sing and smile, it’s a wonderfulthing,” explains Kathy Peterson, Alzheimer’s Community Care Program Manager for North Stuart.

Joyful Melodies began in February 2013 whenComForcare, Negri’s company, was searching for amusician to create a music program. As a

percussionist Negri began working on incorporatingrhythm into an engaging and interactive sing-a-longprogram. He developed an activity-based musictherapy program that emphasizes positive interaction, not only between the musician and thepatients, but also between the patients themselves.

“When they clap their hands and tap their feet tothe rhythm while shaking the maracas I give them,it has multiple benefits. It gets people to exercisejust by keeping them moving, singing, and maybeeven getting up to dance,” said Negri.

Exercise is a major benefit of Joyful Melodies, butremembering lyrics and bringing back memories isthe core of the program. Negri chooses songs thatare familiar to the patients, and is always happy totake special requests.

“The patients really love him, he knows what to doand how to react to each individual patient and theirspecific needs,” adds Peterson.

Joyful Melodies continues to be one of the mostpopular therapeutic activities offered at Alzheimer’sCommunity Care. Cognitive stimulation is vital forpatients with Neurocognitive Disorders. Florida hasmore residents over the age of 65 than any otherstate in the U.S, and approximately half a millionFloridians are affected by Alzheimer’s disease according to the Florida Department of Elder Affairs. As the Baby Boomer population ages, thenumber of Florida residents with Alzheimer’s disease is projected to rise by nearly one-third between 2010 and 2025.


Tino Negri and the North Stuart Care Center staff

Ways to Give92 cents of every dollar donated goes directly to resources

and care for the organization’s patients and caregivers.

There are many ways you can make a difference in the lives of others by making a donation to Alzheimer’s Community Care.

In Memory Of: One of the ways to keep the memory of someone alive is tomake a gift in remembrance of them.

In Celebration: Making a gift to honor someone is a special way of sharingtheir memory with the community.

Alzheimer’s Community Care offers many forms of In Memory of and In Celebration donations:

Monetary Donations

Matching Gifts

Flowers

Wills and Estate Planning

Sponsorship Opportunities

Volunteer Opportunities

Gifts-In-Kind

For more information on ways you can help make an impact in the local community call (561) 683-2700 or visit the Alzheimer’s Community Care website at www.alzcare.org. All donations are received over an encrypted, secure server. Alzheimer’s Community Care will never rentor sell your information to third parties.

In lieu of flowers, give a gift that supports Alzheimer’s families in the local community.

Alzheimer’s Community Care Acknowledges a Donation In Loving Memory of Your Husband

Joseph DoeBy Mr. and Mrs. William Smith

“There is no more meaningful way to remember one than by making a contribution which will directly help others.”


by KATHLEEN HERD

Alzheimer’s Community Careto Receive National Caregivers Award

Expert Advice

On March 12-13, 2014, Alzheimer’s Community Care COO Mark Cornett and Grants Administrator Kathleen Herd will travel to San Diego to receive the 2013 Rosalinde Gilbert Innovations inAlzheimer’s Disease Caregiving Legacy Award on behalf of the organization. The award will be presented at the 2014 Annual Conference of the American Society on Aging and recognizes outstandingand innovative care practices, specifically, for the organization’s “Diverse/Multicultural Communities”work and mission within the Glades’ Communities.

Each year, the Family Caregiver Alliance National Center on Caregivers conducts a national solicitationfor competitive proposals from non-profit organizations and governmental agencies. Three organizationsare then selected to receive awards of $20,000 each, recognizing unique programs that address theneeds of Alzheimer’s caregivers.

“I am very proud of what we stand for and for our achievements. Together we continue to make thoseimportance differences that have long lasting effects on our communities, our families and society,” statesMary Barnes, President and CEO at Alzheimer’s Community Care.

Special appreciation is extended to the organization’s major supporters - Allegany Franciscan Ministries,Mr. Gene Pranzo and the Walter and Adi Blum Foundation - who, over the years, have been instrumentalin the expansion of specialized care and services to the Glades Community. Alzheimer’s CommunityCare is honored and humbled to receive this distinguished award.


Pastor Patti Aupperlee blesses the Leo and Anne Albert Alzheimer’s Care and Service Center. The center is the recipient of the 2014 Rosalinde Gilbert Innovations in Alzheimer’s Disease Caregiving Legacy Award.

by JANET ZWEIBACK, RN, Education Program Coordinator

Preparing for aMedical Emergency

Expert Advice

A trip to the emergency room can be a traumatic event. To make these visits less traumatic, plan aheadand have an emergency packet readily accessible at all times.

This packet should include, at minimum, the following for both you and your loved one:

Be sure that your emergency contacts are aware that you’ve listed them, and that they know of any specific requests you may have. If you have a home health agency that is assisting you in the home, ora long term care policy, include this information as well. You may have met with a home health agencythat has your information, however, in-home care may not have begun. It is a good idea here, to alsoinclude the agency’s name and #. This will make the process smoother if in-home care needs to be initiated quickly, and your loved one will need the in-home care if you are the patient. As with any legaldocuments, give a copy to someone listed as an emergency contact(s), or named as DPOA and/orhealth care surrogate.

In the event your loved one is being taken to the ER, alert hospital staff of a memory loss disease; besure to give as much information about your loved one that will assist in their care. Some hospitals mayrequire a private sitter for your loved one if you are unable to stay with them; be sure to ask.

As always, contact a Family Nurse Consultant if you have questions or need additional information on emergency planning.

1. A list of all current medications (prescribed and over-the-counter, including vitamins).

2. Allergies to food or medication.

3. Name and # of physicians.

4. Emergency contact information.

5. Copies of legal documents (Living Will, DPOA, Do Not Resuscitate Order (DNR).

6. If you have a cell phone, program I-C-E into it (in case of emergency) with the name and phone # of someone who knows you, your loved one, and your medical histories.

Check List


Services & ResourcesIMPORTANT PHONE NUMBERS

PALM BEACH,MARTIN & ST. LUCIE

COUNTIES

Emergency Numbers & Special Needs Shelters

Palm Beach CountyEMERGENCY 911Emergency Management 561-712-6400Telecommunications Device for the Deaf 561-712-6343Resource and Crisis Counseling 211Special Needs Shelter Registration 561-712-6400American Red Cross 561-833-7711Consumer Assistance Hotline 800-227-8676FEMA 800-621-3362Fire Rescue – Non-Emergency 561-712-6550Health Department 561-840-4500Price Gouging Hotline 866-966-7226Public Safety Department 561-712-6470Salvation Army 561-686-3530Emergency Repairs 24 hrs 561-740-4600

Martin CountyEMERGENCY 911Special Needs Shelter Registration 772- 287-1652Martin County Fire Rescue Department 772- 288-5710Martin County Emergency Management/Emergency Operations Center 772- 287-1652Martin County Sheriff's Office 772- 220-7170Red Cross (Martin County chapter) 772- 287-2018 or

772- 287-2002To report suspicious activity or non-emergency concerns 772- 220-7170Neighborhood Watch 772- 220-7011

St. Lucie CountyEMERGENCY 911Special Needs Shelter Registration 772- 462-8100St. Lucie County Division of Emergency Management 772- 462-8100Red Cross Port St. Lucie chapter 772- 878-7077


Family NurseConsultantsSOUTH PALM BEACH COUNTY(BOYNTON BEACH, DELRAY BEACH& BOCA RATON)Eileen Pantoliano, RN, BSN15200 Jog Rd, Suite 206 - Delray Bch, FL 33446561.381.0231

CENTRAL & WESTERN PALM BEACH COUNTYAurora Tancillo, RN, BSN2164 Jog Road - Greenacres, FL 33415561.432.0668

WEST PALM BEACH & NORTHERN PALM BEACH COUNTYMaurine Hyland, RN800 Northpoint ParkwaySuite 101-A - West Palm Beach, FL 33407561.683.2700 ext. 142

THE GLADES - (PAHOKEE, BELLE GLADE,SOUTH BAY)Barbara Beshere, LPN 470 East First Street - Pahokee, FL 33476561.924.7283

MARTIN COUNTYChristine Brannigan, RN, BSNTowers Building - 1111 S. Federal Hwy., #116Stuart, FL 34994772.223.6351

ST. LUCIE COUNTYErika Turke, RN, BSNSt. Peter Lutheran Church2900 South Jenkins Road - Fort Pierce, FL 34981772.460.9166

PALM BEACH COUNTYSOUTHERN PALM BEACH COUNTY

Boca RatonEvery Wednesday, 10:00-11:30 a.m.Advent Square - 4798 North Dixie Hwy. Boca Raton, FL 33431Respite provided, call ahead 561.391.6955

Boca Men’s Only Group1st & 3rd Thursday 10:00-11:30 p.m.Advent Square - 4798 North Dixie Hwy.Boca Raton, FL 33431Eileen Pantoliano, RN, BSN 561.381.0231Respite provided, call ahead 561.391.6955

Delray BeachEileen Pantoliano, RN, BSN 561.381.0231

1st, 3rd & 5th Wednesdays, 2:00-4:00 p.m.Betty Kroll Specialized Adult Day Service Ctr.Seacrest Presbyterian Church2703 Seacrest Blvd. NorthDelray Beach, FL 33444Respite provided, call ahead 561.330.3541

CENTRAL PALM BEACH COUNTYAurora Tancillo, RN, Family Nurse Consultant 561.432.0668

Lantana and Lake WorthEvery Wednesday 1:30-3:00 p.m.Our Savior Lutheran Church1615 Lake AvenueLake Worth, FL 33160Aurora Tancillo, RN, Family Nurse Consultant 561.432.0668

NORTHERN PALM BEACH COUNTY& WEST PALM PALM BEACHMaureen Hyland, RN 561.683.2700Senior Family Nurse Consultant561.683.2700

JupiterEvery Wednesday, 2:15-4:00 p.m.First United Methodist Church815 E. Indiantown Rd.Jupiter, FL 33477

West Palm BeachEvery Tuesday, 1:30-3:30 p.m.800 Northpoint Pkwy. Suite 101-BWest Palm Beach, FL 33407Respite provided, call ahead561.683.2700

Frontal Temporal Lobe Support GroupFirst Friday of Each Month 1:30-3:00 p.m.800 Northpoint Pkwy. Suite 101-BWest Palm Beach, FL 33407Respite provided, call ahead561.683.2700

WESTERN PALM BEACH

Belle GladeBarbara Beshere, LPN 561.924.7283

Pahokee4th Tuesday of the month 2:00-3:30 p.m.470 Barack Obama Boulevard (Formerly East First Street)Pahokee, FL 33476Respite provided, call ahead 561.924.7283

MARTIN COUNTYChristine Brannigan 772.223.6351

Stuart Every Thursday, 1:00-3:00 p.m.Children’s Services Council101 SE Central ParkwayStuart, FL 34994Respite not provided for this location

North StuartEvery Wednesday, 2:00-4:00 p.m.Prince of Peace Lutheran Church2200 North Federal Hwy.Stuart, FL 34994Respite provided, call ahead 772.692.6981

ST. LUCIE COUNTYErika Turke, RN, BSN 772.460.9166

Fort Pierce1st & 3rd Fridays,10:30-12:00 noon St. Peter Lutheran Church2900 South Jenkins RoadFort Pierce, FL 34981Respite provided, call ahead 772.466.3261

Services &Resources

Boca RatonPhyllis & Julius Siegel Alzheimer’s Care & Service Ctr. 4680 N. Dixie Hwy.561-391-6955License #9252

Delray Beach/Betty Kroll CenterSeacrest Presbyterian Church2703 Seacrest Blvd. North561.330.3541License #9128

West Lake Worth(Se Habla Español)Pines Plaza 3680 Lake Worth Rd. 561.432.0668License #8998

Lake Worth Our Savior Lutheran Church1615 Lake Ave.561.585.7781License #8852

Specialized Adult Care Service Centers

PALM BEACH COUNTY PahokeeLeo & Anne AlbertAlzheimer’s Care & Service Center470 Barack Obama Blvd.561.924.7283License #9032

Palm Beach GardensNativity Lutheran Church 4075 Holly Drive561.630.4724License #8940

West Palm Beach/Baxter Complex800 Northpoint Pkwy.Suite 101-A561.683.2700, ext. 45License #8837

North StuartPrince of Peace Lutheran Church2200 North Federal Hwy.772.692.6981License #8928

MARTIN COUNTY

ST. LUCIE COUNTY

Ft. Pierce St. Peters Lutheran Church 2900 South Jenkins Road772.466.3261License # 9046

17

Caregiver Support Groups

WHEN: Tuesday, February 4, 2014

11:00 am

WHERE:The Colony Hotel

Palm Beach

$150 Per PersonIncludes Luncheon and

Silent Auction


Thank YouWe truly appreciate the following foundations and organizations for providing recent grantfunding that really makes a difference! Thank you for joining with us to place a safety netaround patients and caregivers every day.

Addison Hines Charitable TrustAllegany Franciscan MinistriesAnna A. Moldrup Foundation

C. Kenneth and Laura Baxter FoundationThe Batchelor Foundation

The Bay Branch FoundationCity of Boca Raton

Christian FoundationCommunity Foundation for Palm Beach and Martin Counties

Cultural Council of Palm Beach CountyFeig Family Foundation

Fleming and Fleming, PLLCThe Fortin Foundation of Florida

Frances Langford FoundationGoogle AdWords Grant

Jarden Consumer SolutionsJohn & Nellie Bastien Memorial Foundation

Junior League of Boca RatonKiwanis Club of Riviera BeachKroll Family Charitable Fund

Loblolly Community FoundationLottie French Lewis Fund

Martin County Board of County CommissionersMary Alice Fortin Foundation

Lee Millman Respite Care FoundationNordstrom

Palm Beach County Sheriff’s OfficePalm Beach Post: Season to Share

Palm Healthcare Foundation Publix Super Markets Charities

Phyllis & Julius Seigel Living TrustRaymond George and Ruth Bitner Fisher Foundation

Vitas Community ConnectionW. Bradford Ingalls Charitable Foundation

The Walter & Adi Blum Foundation, Inc. Walter E. & Barbara A. Bauke FoundationWestside West Palm Beach Kiwanis Club

The William and Helen Thomas Charitable Trust


ACColadesby KRIS RIEDELL, MBA, Vice President of Human Resources/Volunteer Service Department

“Coming together is a beginning. Keeping together is progress. Working together is success” - Henry Ford

Alzheimer’s Community Care is proud to dedicate this section to recognizing, honoring, encouraging andsupporting those individuals who have received special distinction over the past two quarters of 2013.Each of these employees has been identified by their peers based on superior job performance, dedication, teamwork and cooperation.

Employee of the Third Quarter 2013

Mariam KhanWest Lake Worth/Program Nurse

Mariam started with the organization as a Per Diem Nurse in August 2012, she was promoted to a full-time Program Nurse in October 2012.

Mariam was nominated by her peers for the Employee of the Quarter honor for the following reasons:

• Her accomplishments since becoming the Program Nurse. Mariam has an eagerness to learnand ask questions about the organization, not being content for basics and wanted to learn more aboutthe services, patients and caregivers that we served. Also she is able to fill in and assume a larger job responsibility when the Program Manger has been out of the building at meetings.

Mariam has a great work ethic and is always willing to help out, always cheerful with a smile and neverexpresses a negative mood or comment. She can do the hula and get back to the care plan in 5 notes,and the patients and caregivers love her.

ACC salutes Mariam Khan for her excellent job performance and for being EMPLOYEE OF THE 3rd QUARTER 2013.



ACColadesby KRIS RIEDELL, MBA, Vice President of Human Resources/Volunteer Service Department

Employee of the Second Quarter 2013

Marilyn SilvestriFamily Nurse Consultant Assistant - Treasure Coast

Marilyn started employment with the organization on June 29, 2013.She originally started as the Activities Coordinator at Stuart DayCenter. In December 2012, Marilyn was promoted to the role ofFamily Nurse Consultant Assistant.

Marilyn was nominated by her peers for the Employee of the Quarter honor for the following reasons:

• Her ability to grow and flourish while performing her current job responsibilities. Her Commitment to team work and always showing willingness to assist others and work in unison when aproject is presented to her.

Marilyn is a true professional and is a plus to the organization. She has been facilitating Support Groupsand is enjoying her role and listening to caregivers while directing them to staff and resources that aremost appropriate to meet their concerns.

ACC salutes Marilyn Silvestri for her excellent job performance and for being EMPLOYEE OF THE 2rd QUARTER 2013.

Volunteer Department

In the words of Robert “Sargent” Shriver, creator of the Peace Corps, father of Maria Shriver, whodied of complications from Alzheimer’s disease at age 95.

“It is well to be prepared for life as it is, but it is better to be prepared to make life better than it is.”

Alzheimer’s Community Care is currently recruiting for volunteers to serve in the following capacities: General office/ clerical assistants, day care assistants for all Specialized Adult DayCenter programs, Support Group Facilitators and co-facilitators, special events and health fair representation.

If you are interested in volunteering for ACC, please contact me at [email protected].

NON-PROFIT ORGUS POSTAGE

PAIDWEST PALM BEACH, FL

PERMIT NO. 3750800 Northpoint Parkway, Suite 101-BWest Palm Beach, Florida 33407

november is declared alzheimer’s disease awareness month · november is declared alzheimer’s...

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