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www.england.nhs.uk Dementia Programme Kevin Mullins Head of Mental Health Services

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www.england.nhs.uk

Dementia Programme

Kevin Mullins

Head of Mental Health Services

www.england.nhs.uk

NHS Mandate 2016/17

2

Overall 2020 goals

Measurable improvement on all areas of Prime Minister’s challenge on dementia 2020, including:

• Maintain a diagnosis rate of at least two thirds

• Increase the numbers of people receiving a dementia diagnosis within six weeks of a GP referral

• Improve quality of post-diagnosis treatment and support for people with dementia and their carers

2016/17 deliverables:

• Maintain a minimum of two thirds diagnosis rates for people with dementia

• Agree an affordable implementation plan for the Prime Minister’s challenge on dementia 2020, including to improve the quality of post-diagnosis treatment and support.

www.england.nhs.uk

Aggregating the indicators

The table to the right shows how the assessments

against the two indicators are aggregated. For

example, a CCG rated as having the greatest need for

improvement against both indicators will receive an

overall rating of Greatest need for improvement.

Diagnosis rate

Top performing Performing

well Needs

improvement Greatest need

for improvement

Care plan

review

Top performing

Top performing

Top performing

Performing well

Needs improvement

Performing well

Top performing

Performing well

Needs improvement

Needs improvement

Needs improvement Performing well Needs

improvement Needs

improvement Greatest need for

improvement

Greatest need for improvement

Needs improvement

Needs improvement

Greatest need for

improvement

Greatest need for improvement

CCGIAF: Dementia Indicators

Rating Proportion of

CCGs with

rating

Description

Top performing 19% At, or above national target

Performing well 36%

Needs improvement 41% No more than 10

percentage points below

target

Greatest need for

improvement

4% More than 10 percentage

points below target

1. Estimated dementia diagnosis rate (65+)

March 2016 data: CCGs assessed against static thresholds for

each rating

2. % of people having a care plan review in preceding

12 months (14/15 data): CCGs put in ranked order of

performance and assessed relative to each other

Rating Proportion of

CCGs with rating

Description

Top performing 25% This half of the

CCGs are doing

ok for this

indicator

Performing well 25%

Needs improvement 25% This half are not

doing ok for this

indicator Greatest need for

improvement

25%

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Overview of performance National Dementia Outliers Mar-16 Apr-16 May-16

Total no. of CCGs below ambition 93 109 111

Adrift by 5% or more 34 48 49

Adrift by 10% or more 8 11 10

North Dementia Outliers Mar-16 Apr-16 May-16

Total no. of CCGs below ambition 13 19 19

Adrift by 5% or more 6 8 9

Adrift by 10% or more 2 2 2

Midlands & East Dementia Outliers Mar-16 Apr-16 May-16

Total no. of CCGs below ambition 39 41 40

Adrift by 5% or more 16 20 21

Adrift by 10% or more 6 7 7

London Dementia Outliers Mar-16 Apr-16 May-16

Total no. of CCGs below ambition 8 9 11

Adrift by 5% or more 1 1 1

Adrift by 10% or more 0 0 0

South Dementia Outliers Mar-16 Apr-16 May-16

Total no. of CCGs below ambition 33 40 41

Adrift by 5% or more 11 19 18

Adrift by 10% or more 0 2 1

The key themes explaining underperformance in these CCGs include:

• Pathway issues which have led to long waits from referral to assessment in

memory clinics;

• Inappropriate referrals which further compounded pathway issues and long

waits;

• Coding issues where practice registers have not been up to date with the

cleansing of their registers to identify cases both within primary and across

secondary care;

• Data reporting issues via the CQRS;

• Undiagnosed cases in care homes.

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Improvement offer

Level 1

Level 2

Level 1 – general advice available to all CCGs

Continuation of the support already available to CCGs e.g.

• Publication of monthly diagnosis rates and letter to CCGs from NCD

• Publication of supporting dementia metrics on PHE Fingertips tool

Additionally:

• Repository of best practice examples

• Letter to CCGs from panel chair (also used to communicate support offer)

• Face to face meeting with senior policy advisor from Alzheimer’s Society

Level 2 – targeted support available to those CCGs that need to make an improvement

In addition to level 1:

• Continued support from NCD to discuss individual CCG concerns about dementia leadership, disseminate

best practice and provide advice

• Peer support - buddying system to pair CCGs needing to improve with high performing CCGs. This will

facilitate sharing best practice and collaborative learning.

Level 3 - bespoke support available to those CCGs with the greatest need to improve

In addition to levels 1 & 2:

• Intensive support - NHS England will work closely with NHS Improvement to provide intensive support to the

CCGs that need to make the greatest improvement

• Resources will be available to support at least one new CCG per month for the remainder of 2016/17, with

2017/18 subject to programme budgets

• Comprises pre-visit discussions, a visit to carry out a diagnostic review to ascertain whether there are any

system/process issues, and subsequent discussions with the CCG to develop recovery strategies with

ongoing support

Level 3

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• Develop commissioning guidance based on NICE guidelines, standards and evidence-based best-practice.

• Agree minimum standard service specifications, set business plans, mandate and resources.

• Work with ADASS, PHE & other ALBs on co-commissioning strategies to provide an integrated service.

COMMISSIONING GUIDANCE:

• Develop Quality, Access and Prevention metrics to form the basis of the CCG assessment framework.

• Identify data sources and agree with HSCIC, et al on the extraction processes.

• Set ‘profiled’ ambitions for each metric, to form the basis of the transformation plan.

MEASUREMENT:

• Transformation: using CCG scorecard to set & achieve a national standard for Dementia services.

• Intervention: Intensive Support Team to provide ‘deep-dive’ support and assistance for CCGs that fall short.

• Innovation: Intel from Research, Patient involvement, best-practice and technology to influence change.

TRANSFORMATION, RESEARCH, INNOVATION, TECHNOLOGY, PATIENT ENGAGEMENT AND BEST-PRACTICE:

Prevention(1)

Risk Reduction(5)

STANDARDS:

NHS ENGLAND TRANSFORMATION FRAMEWORK – THE WELL PATHWAY FOR DEMENTIA PREVENTING WELL DIAGNOSING WELL SUPPORTING WELL DYING WELL

Risk of people

developing

dementia is

minimised

Timely diagnosis,

integrated care

plan, and review

within first year “I was given information

about reducing my

personal risk of getting

dementia”

“I was diagnosed in a

timely way”

“I am able to make

decisions and know what to

do to help myself and who

else can help”

People living with

dementia die with

dignity in the place

of their choosing “I am treated with dignity &

respect”

“I get treatment and

support, which are best for

my dementia and my life”

“I am confident my end of

life wishes will be

respected”

“I can expect a good death”

Access to safe high

quality health & social

care for people with

dementia and carers

Diagnosis(1)(5)

Memory Assessment(1)(2)

Concerns Discussed(3)

Investigation (4)

Provide Information(4)

Care Plan(2)

Choice(2)(3)(4)

BPSD(6)(2)

Liaison(2)

Advocates(3)

Housing (3)

Hospital Treatments(4)

Technology(5)

Health & Social Services (5)

Palliative care and pain(1)(2)

End of Life(4)

Preferred Place of Death(5)

References: (1) NICE Guideline. (2) NICE Quality Standard 2010. (3) NICE Quality Standard 2013. (4) NICE Pathway. (5) Organisation for Economic Co-operation and Development (OECD)

Dementia Pathway. (6) BPSD – Behavioural and Psychological Symptoms of dementia.

STANDARDS: STANDARDS: STANDARDS:

LIVING WELL

“Those around me and

looking after me are

supported”

“I feel included as part of

society”

People with dementia

can live normally in

safe and accepting

communities

Integrated Services(1)(3)(5)

Supporting Carers(2)(4)(5)

Carers Respite(2)

Co-ordinated Care(1)(5)

Promote independence(1)(4)

Relationships(3)

Leisure(3)

Safe Communities(3)(5)

STANDARDS:

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Getting there……

7

Programme Aim: Establish an evidence-based treatment pathway for

dementia, to be implemented by 2020

• National Collaborating Centre for Mental Health commissioned to

design pathways for a range of mental health areas and dementia

• Expert Reference Group convened to advise and guide this

process

• Publication expected Autumn 2016

www.england.nhs.uk 8

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Dementia pathway

9

• Evidence-based treatment pathway for dementia

• Timeliness of diagnosis

• Care plan, agreement, initiation & review

• Care across the domains of the well-pathway

• Rationale for implementing a standard

• Implementation guide due to be published autumn – winter 16/17

• Incorporating:

• Technical guidance eg on clock starts/stops for assessment/treatment

• Quality standards & self assessment

• Workforce requirements

• Metrics

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Implementing the pathway

10

• On-line self-assessment tool to be deployed Autumn-Winter 2016

• Annual assessment required from all providers?

• MSNAP Alignment

• CQC Alignment

• CCGIAF Alignment

• Potential baseline data collected via a survey in May 2016

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Costed implementation plan

11

• Builds on implementation guide for pathway

• Where are we now?

• Where do we need to be?

• Identify/quantify the gap

• What do we need to do to fill the gap

• What are the costs/benefits?

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Next steps…

12

• Secure clearance & publish the guidance

• Undertake audit of service standards via CCQI

• Develop a more coherent view on most effective service models

• Establish formal governance & engagement processes

• Continue to scan horizon and look for opportunity to drive implementation

www.england.nhs.uk 13

Thank You & Questions?

Kevin Mullins

[email protected]