January 2011

NFADB’s Mission

NFADB exists to empower the voices of families of individuals who are deaf-blind and to advocate for their unique needs.

It is family that is there when their eyes first open for the day and then close for rest at night. Family is the first circle of support, the first circle of influence, and the direct source for data that defines needs and prioritizes issues.

Who does NFADB serve? The National Family Association for Deaf-Blind

(NFADB) is the only national organization created by families with deaf-blind members to support families with deaf-blind members.

NFADB is the only organization that serves all children and families affected by deaf-blindness across the nation.

Who does NFADB serve? State DB projects

Professionals working with individuals who are deaf-blind

State Parent Family Organization

What types of services does NFADB provide? Parent to parent networking (1:1 family matching and

groups) Family listserv

Training for families – Presentations at parent weekend – Ohio Presentations at State Project PLT – NY

Information sharing – toll free number, website, newsletter

Develop and disseminate materials for families – newsletter, transition paper, Rowland booklet, national surveys

Referrals to other organizations and agencies

Services continued…National advocacy efforts

National Coalition on DB

National networking & collaboration Affiliate Network – CA NY PA PR WI interpreter Task Force AADB Liaison NAPVI Conference 2009 OSEP Family Leadership Forum 2009 OSEP Fall Leadership Meeting 2010 CHARGE International Conference 2009, 2011

There’s something new about NFADB: Awarded TERP Grant Summer, 2010

Helped the organization to examine its goals and future direction

Facebook, Website calendar, Newsletter, Family Connect

Exciting Symposium planned for 2011-2012

New Board Composition – profile, numbers, geography

Contact InformationNational Family Association for Deaf-Blind141 Middle Neck RoadSands Point NY 110501-800-255-0411www.nfadb.orgnfadb@aol.com