newsletter - sardaa – schizophrenia and related ... · 12/12/2017  · schizophrenia health...

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Newsletter December 2017 Message from SARDAA, CEO Dear Friends, We wish everyone good health and the best for this holiday season. There is so much stimulus around us throughout December. Even good times bring stress and over exertion, over indulgence and over expectations. So this is a time to help ourselves to some self- care and lower our expectations of our self and others. Our frustrations with unrealized expectations can lead to exacerbation of depression and other triggered symptoms. So, if you set realistic expectations of yourself and others, the frustration can be reduced, even eliminated. Some advice that I’ve found to be helpful include: 1. Manage Expectations Endeavor to be realistic in expectations of yourself and others. This is a time to enjoy your family and friends in a manner that is comfortable not stressful. This is a time to protect yourself and avoid/manage what you have learned is stressful for you.

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Page 1: Newsletter - SARDAA – Schizophrenia and Related ... · 12/12/2017  · Schizophrenia Health Storylines app, then watch your progress over time. ... companies urged me to reconsider

Newsletter

December2017

MessagefromSARDAA,CEO

DearFriends,

Wewisheveryonegoodhealthandthebestforthisholidayseason.ThereissomuchstimulusaroundusthroughoutDecember.Evengoodtimesbringstressandoverexertion,overindulgenceandoverexpectations.Sothisisatimetohelpourselvestosomeself-careandlowerourexpectationsofourselfand

others.Ourfrustrationswithunrealizedexpectationscanleadtoexacerbationofdepressionandothertriggeredsymptoms.So,ifyousetrealisticexpectationsofyourselfandothers,thefrustrationcanbereduced,eveneliminated.SomeadvicethatI’vefoundtobehelpfulinclude:

1.ManageExpectations✓Endeavortoberealisticinexpectationsofyourselfandothers.Thisisatimetoenjoyyourfamilyandfriendsinamannerthatiscomfortablenotstressful.✓Thisisatimetoprotectyourselfandavoid/managewhatyouhavelearnedisstressfulforyou.

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2.SetaBudget✓Berealisticinhowmuchyouareabletospendandsticktoyourpersonalabilities.Remember,thebestgiftscanbeofone’sself:artwork,music,handmadeitems–includingcards,andyourcompanyorphonecall.

3.KeepYourHealthyHabits✓Thisistougharoundthistimewhenfoodseemstobeatheme.Buttrytolimityourindulgences.Apieceortwoinsteadofhalfoftheboxcansatisfyyourtastebuds.

4.StopandBreathe✓Literallytaketimeforrefreshingdeepbreaths.✓Attendthepartyorpartiesthataretrulyenjoyableforyouandyouhavetheenergytoattend.✓Askyourselfthis:“doesattendingthiseventcausemorestressthanhappiness?”

5.Self-Care!✓Journalingandtrackingyourmoodcanreallyhelpdecreaseyourstresslevelovertheholidays.✓Usethe"dailymood"trackerinourSchizophreniaHealthStorylinesappandstarttrackingyourmoodwithonlyafewclicksaday.✓YoucanjournalbysimplyusingourjournaltoolintheSchizophreniaHealthStorylinesapp,thenwatchyourprogressovertime.

Finally,knowthatyouareindeedsomeonewecareaboutandwewishyoupeace,safety,happinessandgoodwill.

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Warmestregards,LindaStalters,MSNCEOSchizophreniaAndRelatedDisordersAllianceofAmerica

MessagefromFFS,FamilyandFriends,

CoordinatorReflectingongratitude,ofwhichmanyareespeciallymindfulofinNovember,I'dliketosaythatI'mnotsureofmuchinlife,butofthisIamsure...I'mgratefulforhavingmetyouonthischallengingpathwhichlifehaschosenforus.I'venotmetastronger,moreloving,committedgroupofpeoplethanwepeers,wefamily.Iwishyou,andthespecialoneinyourlife,loveand

serenityinthecomingholidayseason.

WithHeart,MaryRoss

MessagefromSAStaffSupporter

RequirementstostartanSAgroupBySandyDimiterchik

Friday,December1wasmyfirsttimetoleadaSchizophreniaAlliancegroup.ThemeetingwasheldatTheExtraMilehereinLafayette,LA.The

turnoutwasgood–8people--andallparticipatedwhilewestartedoffwithanaffirmation,readthroughvariouspartsoftheBlueBookaboutSAgroups,andwentovertheSixSteps.EverythingislaidoutintheBlueBook.Allyouneedisempathyandagoodlistener’sear.Well,andacoupleofotherthings.

Firstofall,youneedtohaveschizophreniaorarelateddisorder(mainlywithanoccurrenceofpsychosis).Thedisordersincludebipolardisorder,schizo-affectivedisorder,anddepressionwithpsychosis.Next,youneedtohaveaplacetoholdthemeeting.Thiscanincludeothernon-profitorganizations(likeIhave),churches,libraries,anywherethatitisfreetoholdameeting.Lastofall,youneedtocontactSARDAAsothatwecansendyouanSAGroupLeaderManual,acoupleofBlueBooks,andsomebrochuresonSAandSARDAA.Onceyouhavecontactedheadquarters,youprobablywillhearfromme,actingasaliaisonandresourceforSAGroupLeaders.

Otherthingsyoumightwanttoconsiderincludeparticipatinginoneofourfiveweeklyteleconferencecalls.Bycallingin,yougetaliveversionofhowyourmeetingswillflow.EverybodyusestheBlueBooktooutlinemeetings.So,allmeetingshavethesimilarformat.Ofcourse,wealsostressthateachgroupisindependentandyoucanholdsocialeventstooifyouwantto.Itisalluptothemembersofthegroup!Also,weareholdingaSAworkshopinApril2018atourannualSARDAAconferenceinHouston,TX.SAGroupLeaders,including

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myself,willtrainyoutoleadSAgroupsusingtheSAGroupLeaderManual.Thisisanexcitingopportunity.Formoreinformationaboutattending,[email protected].

Anotherthingyoumightconsideristakingthingstoanotherdegree,bytrainingtobeacertifiedpeersupportspecialist.Youwillgainskillsthatwillhelpyourunthemeetingsmoresmoothly.Everystatehasitsowncertificationprocess.Contactmeifyouwanttolearnmoreaboutthatoption!Ofcourse,definitelycontactmeifyouwanttostartaSAgroup–[email protected].

PeerSubmissions

AGatheringBySandyDimiterchik

Agatheringofpeoplecanbecalledbydifferentnames.Itisameetingofpeople,sometimestoplaygames,orgettingtogethertofellowshipornetwork.Someeventsarefun,otherstostopajerk.Whattheyhaveincommonisasimilarcause,andforeveryoneinvolvedeachtakesapausefromlifeandone’ssurrounding.Sometimesspiritual,othertimesjustbeingahumanbeing.Itdoesn’tmakeadifferencehowoldthepeopleare,justthattheyagreedtogather,nothingmore.

Wewelcomeyourmessage/artfromSAMembersforinclusioninthenewsletter.Pleasesubmityourmessageto:[email protected],Houston,TX77094-8222forconsiderationfornextmonth'snewsletter.

YourstorymightbeincludedinaSARDAAnewsletterandmightbepublishedinafutureeditionoftheSABlueBook.

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Excitingholidaynews!

SARDAAisparticipatingintheNewman'sOwnFoundation$500KHolidayChallenge.It'safriendlyfundraisingcampaignwhere

nonprofitorganizationscompetetoraisethemostmoneywithtopteamswinninggrandprizecashdonations.

SARDAAisraisingfundstoreclassifyschizophreniatoaneurologicalbraindisorder.Reclassificationwillmeanmorescientificresearch,

accesstohospitalbedsandimprovetreatmentoutcomes.Fundswillhelpsupporttrainings,traveltomeetwithlegislators,educationand

promotionmaterials.

TheCampaignlaunchedonTuesday,November21standatotalof$500KwillbegivenawaytoorganizationsintheChallenge.

SchizophreniaisaneurologicalbraindisorderthatrequirestreatmentNOTincarcerationorresultinhomelessness!

Togetherwecanaccomplishthis!

HOWYOUCANHELP

Joinourteamasafundraiserbysettingupacampaignforourcauseandreachingouttoyournetworkoffriends,familymembers,co-workers,everyoneyouknow.Ittakeslessthan5minutestosetup

yourfundraiser.

Gotohttps://www.crowdrise.com/sardaaandclickJointheTeamandCreateYourFundraisernowanddonate.Thenshareyourpage

withyourcontacts.

Thankyouinadvanceforyoursupport.Everydollarhelps,bigorsmall.

Let'sworktogethertoReclassifySchizophreniaNow!

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SARDAAextendsitsappreciationandgratitudetoBoardMember,Dr.RaymondCho,forenthusiasticallyCo-Chairingthesymposium.

WatchformoredetailsinthenewsletterandontheSARDAAwebsite.Opportunitiestosponsortheconferenceandvendorexhibitsareavailable.ContactFloraDavis,DirectorofExternalAffairsformoreinformationatflora.davis@sardaa.orgorcall817.925.4421.

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FromtheDeskofJohnP.“HappinessSeries”

Howdowesumupallthisbusinessonhappiness?Firstofall,thoseofuswithmentalillnessneedtobecarefulaboutself-blameifweareunhappy.Scientistsbelievethat50percentoftheequationonhappinessisaresultofinheritedbrainchemistry.AsonescientistinterviewedonABC-Newssaid:"Therearecertainbrainsthataremorepredisposedtoexperiencehappinesscomparedtootherbrains."Itwouldbeadoubleinjustice,ifwepsychologicallybeatuponyourselfoverhabitualunhappiness,ortakeseriouslyotherswhotrytodoso,wheninfactthesourceoftheproblemissomethingbiologicaloverwhichwehavelittlecontrol.

Wecantakeheartthathumanbeingsusuallyadjusttotheircircumstancesandreturntotheiroriginalstateofhappinessafterdifficultperiods.OnestudyattheUniversityofIllinoisshowedthatphysicallydisabledstudentshadthesamereportedlevelsofhappinessasable-bodiedstudents,towithinonepercentagepoint.

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Itmightbeworthrememberingthattherecanbemeaningtoperiodsofunhappiness--thatwemightgrowinunexpectedwaysifwearecalledto"climbagreatmountain"ofdifficulty.

READMORE

PhoneSupportGroups

SAConferenceCallGroupsOnlyforindividualsdiagnosedSundays-7pmEasternTimeMondays-4pmEasternTimeThursdays-7pmEasternTimeFridays-7pmEasternTime

Saturdays-4pmEasternTime

SpiritofSAConferenceCallForSALeadersandPotentialLeaders

FirstWednesdayofEachMonth-7pmEasternTime

FamilyandFriendsSupportGroupNotforindividualsdiagnosedEveryTuesday-7pmEasternTime

Toll-freeCallsCall-ininformation(855)640-8271

EntryCode88286491#InternationalNumber(720)362-6499

FacebookSupportGroupOnlyforindividualsdiagnosedJOINTheFacebookGroupHere

ThisisaClosedgroup,asktobeadded.

***HOWTOSTARTANDGROWANSAGROUP***

ByMargeryWakefieldWelcometoSA(SchizophrenicsAlliance)!IunderstandthatyouwanttostartanSAgroup,andthatisgreat!READMORE

HelpforpeoplewithSchizophreniaandRelated

Disorders.

Nowitiseasytorecorddetailsandspecificsaboutsymptoms,medication,moods,andmore.Choosewhatyouwanttotrack,andseealltheinformationyouneedtohelpyouoryourlovedonewhoislivingwithschizophreniaandrelateddisorders.

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GettheSchizophreniaHealthStorylines™MobileAppToday!ThemobileappisFREEforallusersoniOSandAndroiddevices.Thereisalsoawebversionavailable,accessiblethroughthebrowserofanydesktopcomputerormobiledevice.

SARDAAandSelfCareCatalystshadtheopportunitytoworkwithKristySpeaks,anindividual,likeyou,livingwithschizophrenia.Kristyisamotherof3,whoaftergraduatingfromnursingschoolwasdiagnosedwithschizophrenia.

Shesaidthatoutofalltheappsinthemarket,SchizophreniaHealthStorylinesself-careappwasthemostsupportiveasitallowshertotrackhersymptoms,moods,andjournalherthoughts.

ToshowyoursupportforKristy,wearereachingouttoyoutodownloadtheapptoday!Wehopethatyoubenefitthesamewayshedoes!

DownloadSchizophreniaHealthStorylinestoday!

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AcalltoactionfromaCEOonthefrontlinesoftheopioidcrisisByRICHARDF.POPSDecember7,2017Mycompany,Alkermes,hasbeenatworksincethelate1990sdevelopingandbringingtopatientsamedicinethathelpsthemfightaddictiontoopioids.Aswesetoutonthatpath,CEOsoflargercompaniesurgedmetoreconsiderthatdecision.Theypointedoutthataddictionisadifficultdiseasewithchallengingpatients,afragmentedtreatmentsystem,andplentyofstigma.Wewentaheadanyway,convincedinthepowerofourscienceandthecompellingmedicalneed.READMORE

AripiprazoleMayReduceCocaineCravingsinPeopleWithSchizophreniaNovember2,2017cravingsbetterthanthedopamineblockerperphenazineafteranacclimationperiod,accordingtoasmall,double-blindarandomizedtrial.READMORE

ChangingattitudesaboutschizophreniaturnsTheBlocintoawardwinnerNovember4,2017ThehitskeepcomingforNewYorkCity-basedadagencyTheBloc,whichwasawardedtheBestinShowinthisyear'sHealthcareMarketingIMPACTAwards.TheprizecomesayearafterbeingnamedAgencyoftheYear.READMORE

HumanitarianAwardsNomineeNovember2017Drivenbyitsmissionto"BeGreattoDoGood,"TheBlociscommittedtopromotingpositivechangeinoursociety.READMORE

MedicationAdherenceandHospitalizationCostsinSchizophreniaMedicationadherenceisessentialtomanageacutesymptomsandreduceriskofrelapseinadultswithschizophrenia.READMORE

ThePM360TrailblazerAwardWinners

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AcuteandchronicpainarearealityformillionsofAmericans.READMORE

SchizophreniaOriginatesEarlyinPregnancyNovember20,2017Summary:Usingmini-brainsgrowninthelab,researchershavediscoveredschizophrenialikelybeginstowardtheendofthefirsttrimesteroffetaldevelopment.Researchersbelieve,basedontheirfindings,schizophreniacouldpotentiallybetreatedinutero.READMORE

ResearchfindingswillhelpidentifygeneticcausesofbraindisordersNovember27,2017Newfindingswillhelptoidentifythegeneticcausesofbraindisorders:researchersattheUniversitiesofBasel,BonnandColognehavepresentedasystematiccatalogofspecificvariablelocationsinthegenomethatinfluencegeneactivityinthehumanhippocampus,astheyreportinthejournalNatureCommunications.READMORE

Genome-WideStudiesAidInvestigationofDualDiagnosisofSchizophreniaandSubstanceUseDisorderNovember28,2017Severalnewgenome-wideinvestigationsofschizophreniaandsubstance-usedisordersarehelpingresearchersunderstandhowthesetwoconditionsmayberelated,accordingtoapaperpublishedinGenomeMedicine.READMORE

DonatetoSARDAA

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BrainCampaign:TakethePledge

IwillchangemylanguagefromBehavioralorMentaldisordertoBraindisorder.Iwilleducateotherstochangetheirlanguagefrommentalillnessestobrainillness.Iwillnotusestigmatizing,discriminatoryorderogatorylanguagerelatedtobraindisorders.Iwillencouragemypeers,familymembers,andcolleaguestoadvocatewhentheyseediscriminatorylanguageorpracticesinthemediaorinpublic.Iwilladvocatethatpeoplewithbraindisordershaveequalandcomprehensivehealthcare.Iwilltreatallpeoplewithbraindisorderswithrespectandcompassion.

HelpSupportSchizophreniaandRelatedDisordersAllianceof

America

AmazondonatestoSchizophrenia&RelatedDisordersAlliance.Shopforgreatdealsatsmile.amazon.com/ch/33-1213657

EasystepstosupportSchizophreniaandRelatedDisordersAllianceofAmericathroughAmazonSmile:

SignintoyourAmazonaccountatsmile.amazon.com.

SelectSchizophreniaandRelatedDisordersAllianceofAmericaSearchforandselectSchizophreniaandRelatedDisordersAllianceofAmericaasyourcharity.Onceselected,youwillreceiveaconfirmationemail.

ShopandcheckoutasyouwouldonAmazon.Noextracostispassedontoyou,butAmazonwillautomaticallydonate0.5%ofyourpurchasestoSchizophreniaandRelatedDisordersAllianceofAmerica.

PleasesharewithyourfriendsandfamilytojoinyoutosupportSchizophreniaandRelatedDisordersAllianceofAmerica!

BychoosingSchizophreniaandRelatedDisordersAllianceofAmericaasyourcharityonsmile.amazon.com,Amazonwilldonate0.5%ofyoureligiblepurchasestoSchizophreniaandRelated

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DisordersAllianceofAmerica.

PleasetakeamomenttofindouthowyoucanhelpsupportSARDAA,notonlytodaybuteveryday-atnoextracosttoyou!!

IT'SSOSIMPLE:justbookmarkthislinkhttp://smile.amazon.com/ch/33-1213657,startshoppingandsupportuseverytimeyoushop.

ShopwithPayPalandchooseSARDAAtoDonatewithPayPalGivingFundtohelpsupportSARDAA.

TexasandLouisianaFriends:

Re-EnrollYourKrogerPlusCards

YoucansupportSARDAAwithoutspendingapenny!Register

SchizophreniaandRelatedDisordersonyourKrogerPlusCardandtheywilldonateapercentagetoSARDAAeachtimeyouuseyour

card.

Pleaseregisteronlineatwww.krogercommunityrewards.com

Linkto:SchizophreniaandRelatedDisorders–KrogerPlusCard90425

HelpChangeLives--DonateNow

ThankyoutothosewhoalreadymadeadonationEverycontributionmakesadifference.

Sincerely,AngelWhite,EditorJordanHelwig,CreativeDesigner