newborn screening caraga

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NEWBORN SCREENING MAJOR ACTIVITY HIGHLIGTS I. Title: Newborn Screening Program Implementation Review among All Newborn Screening Coordinators II. Goal/ Objective/ Rationale Newborn Screening coverage of Caraga on 2009 is only 14% among live births. It has increased to 24% on the following year and had reached 36% last 2011. Though increasing, it is still far below the target coverage of 85%. Newborn Screening facilities were also increasing but 24 out of 129 were inactive, 28 were new and only few active facilities had reached the 85% coverage. These made the region’s newborn screening status to remain low. This PIR is designed aiming to reassess, review and strengthen the program implementation of the facilities. This is also a good venue for participants/ coordinators to exchange experiences, share best practices, raised awareness of current issues and come up with ways to increase coverage and answer gaps. III. Participants Program Implementation Review was attended by 125 newborn screening facility coordinators of Caraga. There were M u n ic ip a l Health Officers, PHNs, C h ie f of Hospitals, Chief Nurses and midwives as well. Dr. Jo Arturo De Jesus of PhilHealth Garaga was also present as guest speaker to give clarifications on the Philhealth claim issues. IV. The activity was held in Luciana Convention Center, Butuan City on October 29 and 30, 2012. The Newborn Screening Facility Coordinators posing with the Regional Newborn Screening Coordinator (left). The participants listening to the updates on Expanded Newborn Screening (right). (Below) Dr. De Jesus of PhilHealth Caraga on Newborn Care Package/ Philhealth claims(lower left) and the participants during the planning workshop (lower right). This activity had resulted to increase in numbers of newborn screened to 48% for 2012.

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Newborn Screening Caraga

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N E W B O R N S C R E E N I N G M A J O R A C T I V I T Y H I G H L I G T S

I . T i t l e : N e w b o r n S c r e e n i n g P r o g r a m I m p l e m e n t a t i o n R e v i e w a m o n g A l l

N e w b o r n S c r e e n i n g C o o r d i n a t o r s

I I . G o a l / O b j e c t i v e / R a t i o n a l e

N e w b o r n S c r e e n in g c o v e r a g e o f C a r a g a o n 2 0 0 9 is o n ly 1 4 % a m o n g l iv e b i r t h s . I t h a s

in c r e a s e d t o 2 4 % o n t h e f o l lo w i n g y e a r a n d h a d r e a c h e d 3 6 % l a s t 2 0 1 1 . T h o u g h

in c r e a s in g , i t is s t i l l f a r b e lo w t h e t a r g e t c o v e r a g e o f 8 5 % . N e w b o r n S c r e e n in g f a c i l i t ie s

w e r e a ls o in c r e a s i n g b u t 2 4 o u t o f 1 2 9 w e r e in a c t iv e , 2 8 w e r e n e w a n d o n ly f e w a c t iv e

f a c i l i t ie s h a d r e a c h e d t h e 8 5 % c o v e r a g e . T h e s e m a d e t h e r e g io n ’s n e w b o r n s c r e e n i n g

s t a t u s t o r e m a in lo w . T h is P I R is d e s ig n e d a im in g t o r e a s s e s s , r e v ie w a n d s t r e n g t h e n

t h e p r o g r a m im p le m e n t a t io n o f t h e f a c i l i t i e s . T h is is a ls o a g o o d v e n u e f o r p a r t ic ip a n t s /

c o o r d in a t o r s t o e x c h a n g e e x p e r ie n c e s , s h a r e b e s t p r a c t ic e s , r a is e d a w a r e n e s s o f

c u r r e n t is s u e s a n d c o m e u p w i t h w a y s t o in c r e a s e c o v e r a g e a n d a n s w e r g a p s .

I I I . P a r t i c i p a n t s

P r o g r a m I m p le m e n t a t io n R e v ie w w a s a t t e n d e d b y 1 2 5 n e w b o r n s c r e e n in g f a c i l i t y

c o o r d in a t o r s o f C a r a g a . T h e r e w e r e M u n ic ip a l H e a l t h O f f ic e r s , P H N s , C h ie f o f

H o s p i t a ls , C h ie f N u r s e s a n d m id w iv e s a s w e l l . D r . J o A r t u r o D e J e s u s o f P h i lH e a l t h

G a r a g a w a s a ls o p r e s e n t a s g u e s t s p e a k e r t o g iv e c la r i f ic a t io n s o n t h e P h i lh e a l t h c la im

is s u e s .

I V .

T h e a c t iv i t y w a s h e ld in L u c ia n a C o n v e n t i o n C e n t e r , B u t u a n C i t y o n O c t o b e r 2 9 a n d 3 0 ,

2 0 1 2 . T h e N e w b o r n S c r e e n i n g F a c i l i t y C o o r d in a t o r s p o s in g w i t h t h e R e g io n a l N e w b o r n

S c r e e n in g C o o r d in a t o r ( le f t ) . T h e p a r t ic ip a n t s l is t e n in g t o t h e u p d a t e s o n E x p a n d e d

N e w b o r n S c r e e n in g ( r ig h t ) . ( B e lo w ) D r . D e J e s u s o f P h i lH e a l t h C a r a g a o n N e w b o r n

C a r e P a c k a g e / P h i lh e a l t h c la im s ( lo w e r l e f t ) a n d t h e p a r t ic ip a n t s d u r in g t h e p la n n i n g

w o r k s h o p ( lo w e r r ig h t ) . T h is a c t iv i t y h a d r e s u l t e d t o in c r e a s e in n u m b e r s o f n e w b o r n

s c r e e n e d t o 4 8 % f o r 2 0 1 2 .

I . T i t l e : G l u c o s e 6 P h o s p h a t e D e h y d r o g e n a s e D e f i c i e n c y : P a r e n t ’ s H e a l t h

F o r u m w i t h t h e G e n i t i c i s t

I I . G o a l / O b j e c t i v e / R a t i o n a l e

A m o n g t h e f iv e d is o r d e r s in c lu d e d in t h e N e w b o r n S c r e e n in g p a n e l , G lu c o s e 6

P h o s p h a t e D e h y d r o g e n a s e ( G 6 P D ) D e f ic ie n c y is t h e m o s t p r e v a le n t w i t h t h e

in c id e n c e r a t e o f 1 : 5 0 . A s o f 2 0 1 1 , C a r a g a a l r e a d y h a s 3 7 3 n e w b o r n s t h a t a r e

p o s i t iv e o f t h e s a id d is o r d e r . T h is d is o r d e r is a c o n d i t io n w h e r e t h e b o d y la c k s t h e

e n z y m e c a l le d G 6 P D . B a b ie s w i t h t h is d e f ic i e n c y m a y h a v e h e m o ly t ic a n e m ia

r e s u l t in g f r o m t h e e x p o s u r e t o o x id a t iv e s u b s t a n c e s f o u n d in d r u g s , f o o d s a n d

c h e m ic a ls .

M y t h s a n d f a c t s w e r e a ls o a s s o c ia t e d t o t h e d is o r d e r le a d in g t o p a r e n t ’s c o n f u s io n

le a d in g t o t h e im p r o p e r c a r e g iv e n t o t h e c h i ld a f f e c t e d . T h u s , t h is a c t iv i t y is a g o o d

v e n u e t o c o r r e c t w r o n g b e l ie f s o n G 6 P D a n d i t w i l l a ls o s e r v e a s a a g o o d v e n u e t o

c r e a t e a s u p p o r t g r o u p f o r p a r e n t s w i t h G 6 P D c h i ld r e n .

I I I . P a r t i c i p a n t s

T h e a c t iv i t y w a s a t t e n d e d b y 5 0 p a r t ic ip a n t s w h o in c lu d e m o t h e r s o f G 6 P D p o s i t iv e

c h i ld r e n , S u r ig a o C i t y N e w b o r n S c r e e n in g C o o r d in a t o r s a n d C a r a g a R e g io n a l

H o s p i t a l ’s N B S C o o r d i n a t o r . I n s p i r in g m e s s a g e a n d c h a l le n g e t o t h e p a r t ic ip a n t w a s

d e l iv e r e d b y D r . J a n ic e P a t iñ o o f C a r a g a R e g io n a l H o s p i t a l , D r . C o n c h i t a A b a r q u e z ,

a G e n e t ic is t a n d H e a d o f t h e N e w b o r n S c r e e n in g C e n t e r M in d a n a o , g iv e t h e le c t u r e

o n t h e F a c t s o f F a v a n is m a n d a n s w e r s q u e s t io n s o f t h e p a r t ic ip a n t s o n G 6 P D . A f t e r

t h e d is c u s s io n s a n d o p e n f o r u m , t h e g r o u p h a d d e c id e d t o e le c t o f f ic e r s f o r t h e f i r s t

G 6 P D s u p p o r t g r o u p o f C a r a g a w h ic h is n a m e d S u r ig a o n o n G 6 P D P a r e n t s S u p p o r t

G r o u p .

I V .

T h e a c t iv i t y w a s c o n d u c t e d o n N o v e m b e r 1 9 , 2 0 1 2 a t G a t e w a y H o t e l , S u r ig a o C i t y .

G u e s t a n d p a r t ic ip a n t s a r e w e lc o m e d b y D r . P a t in o o f C a r a g a R e g io n a l H o s p i t a l

( u p p e r le f t ) . D r . C o n c h i t a A b a r q u e z o n t h e F a c t s o f F a v a n is m ( u p p e r r ig h t ) . T h e

p a r t ic ip a n t s a n d g u e s t s ( lo w e r le f t ) a n d t h e o f f ic e r s o f t h e f i r s t G 6 P D S u p p o r t G r o u p .

N E W B O R N N S C R E E N I N G M A J O R A C T I V I T Y

H I G H L I G H T S 2 0 1 2

P r e p a r e d b y :

N A N E T T E F A T - M O N T I L L A , R N

N e w b o r n S c r e e n i n g N u r s e C o o r d i n a t o r