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Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

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Page 1: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Neuropsychology and PNES

Robert W. Trobliger, Ph.D.Co-Director Neuropsychology

Northeast Regional Epilepsy Group

Page 2: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

PNES: Psychogenic Non-epileptic Seizures paroxysmal behavioral events without

cerebrum-based electroencephalogram (EEG) changes, associated with a psychological rather than a physiological etiology.

Zaroff, Myers, Barr, Luciano, & Devinsky, 2004

Page 3: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Possible causes: Acute anxiety/panic Impaired affect recognition/interpersonal skills Somatization/Conversion Depression PTSD Reinforced Behavior Patterns

Page 4: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Diagnosis based on EEG findings – the gold standard

Page 5: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

However, NP testing an important service, aiding both diagnosis and treatment.

Page 6: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Neuropsychological Testing

What is it?

-Comprehensive testing of

-Cognitive functioning

-Psychological/Emotional functioning

Page 7: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Neuropsychological Testing

How?

-Cognitive

-Through a series of standardized tests assessing

-Attention

-Memory

-Language

-Visuospatial/Visuomotor Skills

-Executive Abilities

Page 8: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Neuropsychological Testing

How?

-Psychological/Emotional

-Through self-report questionnaires which assess:

-mood symptoms

-anxiety symptoms

-coping skills

-experienced cognitive difficulties

Page 9: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Neuropsychological Testing

Why? NP testing used to confirm the diagnois.

Page 10: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Which is useful for the referring neurologist.

Page 11: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Why? NP Testing also used to further explore the

reasons behind the seizures.

Page 12: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Which is useful for both the client and the therapist

Page 13: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The client to better understand what is going on.

Page 14: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The therapist to better understand how to address it in working with the client.

Page 15: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Why? NP Testing is also important in demonstrating

that the diagnosis is being taking seriously.

Page 16: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Because NP testing involves a great deal of time.

Page 17: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

How much time?

Page 18: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Typically 4 to 5 hours, at times more.

Page 19: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

And financial cost.

Page 20: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

An investment of such time and cost then must be worth it.

Page 21: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

It is.

Page 22: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

This investment combined with a supportive atmosphere sets up some hope regarding the future, introducing the possiblity of improvement.

Page 23: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Which is the reason why the client is sent for NP testing – a step in getting help.

Page 24: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Neuropsychological Testing

-The Interview

-The Evaluation

-The Feedback

-The Report

Page 25: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The Interview A safe place, maybe one of the first

opportunities to bring up prior stressors and trauma.

Which indicates how important it is for the provider to make it a safe place, to acclimiate the client to an atmosphere of trust- critical in therapy.

Page 26: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Comprehensive review of history – developmental, medical, psychological, educational, even vocational.

Page 27: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The Interview

An opportunity to explore developmental and medical history – factors which might contribute to issues with cognitive functioning (which is assessed in NP testing).

Page 28: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The interview

An opportunity to explore psychological history, including prior diagnoses and treatment.

Page 29: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The interview Particularly any history of abuse (physical

emotional or sexual) or trauma.

Page 30: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The interview Stressors may initially be downplayed or not

even mentioned during the interview However, signs of such may come out in

completed quesitonnaires.

Page 31: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The Interview

Educational and employment history helps determine prior levels of functioning for comparison.

Page 32: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The Interview

-Because when patients talk about changes in cognitive functioning, we need to determine where they were before.

Page 33: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The Evaluation NP Testing – Psychological Examining Mood (depression, anger, fear) symptoms Anxiety (including PTSD) Coping tendencies Ability to identify and articulate emotions

Page 34: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Psychological An examination of symptoms is important in

determing a diagnosis.

Page 35: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

All of these questionnaires provide a lot of data, predominantly in the form of indices that demonstrate patterns – patterns which may be significant in that they are outside the norm.

Page 36: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Psychological More than just examining index findings – at

times looking at specific answers.

Page 37: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Which again is part of being comprehensive in examining findings.

Page 38: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Questions of validity

Page 39: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing Psychological Underreporting may be helpful- indicating a lack

of awareness or denial, which can be further explored in therapy.

Page 40: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Psychological Overreporting can be helpful – indiating a cry

for help. It is still worth looking at what types of symptoms are endorsed.

Page 41: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Psychological

Involving emotions, determining how do I feel?

Page 42: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Not uncommon for those with a history of PNES to have difficulty identifying and/or articulating their emotions.

Page 43: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Which is important to address in therapy.

Page 44: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Because understanding how you feel is in important step in understanding why you feel a certain way.

Page 45: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Which in turn is related to understanding how to cope with these emotions and related difficulties.

Page 46: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – psychological Coping tendencies can be ineffective or

maladaptive.

Page 47: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Which can account at least in part for why these seizures are occuring.

Page 48: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The Evaluation NP Testing – Psychological Strategies can be practical expressive avoidant All are done by all of us.

Page 49: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

However, for some, there is a need for help in developing practical strategies for coping with overwhelming stressors.

Page 50: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing- Psychological This is an important part of testing – to identify

how the person deals with stressors, as the person may not be completely aware of such.

Page 51: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Psychological

Examing coping strategies is also helpful for any therapist working with the person in determining what strategies need practice.

Page 52: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing

The findings are useful not only at present but also for the future.

Page 53: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing Psychological Can be particualry important in setting up a

baseline before treatment. Certainly a decrease or the absence of seizures as reported by the patient is an important barometer.

Page 54: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing Psychological But using pre and post testing measures is

another means of describing real change in the person. Numbers and data can be helpful in marking the changes.

Page 55: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing Cognitive Why?

Page 56: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing Cognitive

Reported difficulties typically involve problems with attention and memory, similar to those with epileptic seizures.

Page 57: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Cognitive

Exploring these defictis helps underline the seriousness of the condtion.

Page 58: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Cognitive

Such testing results are also supportive to the diagnosis – as deficits than cannot be accounted for by underyling organic issues (developmental history, prior TBI, ongoing chronic medical issues such as migraines, hypertension) can be attributed to PNES.

Page 59: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Cognitive Which gets back to the prior idea of hope. If the

problems with attention and memory have no underlying organic causes, then changes in psychological functioning should result in changes in cognitive functioning.

Page 60: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Cognitive

Results combined with the person's complaints can be used to generate recommendations

Page 61: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Recommendations of real, practical strategies the person can use from day one in working around their difficulties.

Page 62: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The Feedback

An opportunity to go over the results of all the above testing.

Page 63: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Cognitive

An opportunity to examine a person's strengths and weaknesses.

Page 64: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Cognitive

An opportunity to examine any possible discrepancies between performances on the evaluation and the types of complaints the person has.

Page 65: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Cognitive

As noted, an opportunity to discuss strategies for dealing with any experienced difficulties.

Page 66: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Psychological

An opportunity to discuss how the diagnosis is confirmed (or not).

Page 67: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Psychological

An opportunity to discuss the diagnosis (What does this mean?)

And

The prognosis (what now?)

Page 68: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Psychological

An opportunity to discuss how the diagnosis was determined – based on the findings.

An opportunity to discuss those findings in detail

Page 69: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

NP Testing – Psychological

As noted

Signs of depression, anxiety (including PTSD), conversion tendencies, anger issues, coping problems, difficulty articulating feelings

Page 70: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

The Report

Page 71: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Who is it for?

- The referring neurologist

- Any therapist working with the person

- The individual

Page 72: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Conclusion

Page 73: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Neuropsychological Testing

-Why?

Confirm diagnosis

Examine psychological/emotioning functioning

Examine coping strategies

Provide compensatory strategies

Provide information for therapist

Page 74: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

A great of time on both parts which yields a great deal of useful results.

Page 75: Neuropsychology and PNES Robert W. Trobliger, Ph.D. Co-Director Neuropsychology Northeast Regional Epilepsy Group

Thank you.

[email protected]