ne family carers network presentation april 16
TRANSCRIPT
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www.england.nhs.uk
North East and Cumbria
Learning Disability Network
Reducing premature mortality
of people with learning
disabilities
Judith Thompson, NE&C Learning Disability Network Manager,
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Learning Disabilities Mortality Review
(LeDeR) Programme
Pauline HeslopProgramme Manager
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Key Programme aims
• To drive improvement in the quality of health and social care
service delivery for people with learning disabilities.
• To help reduce premature mortality and health inequalities
in this population.
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.
Geographic ‘footprint’
NHS England architecture,
basing the work in four
regional teams (London,
Midlands and East,
North, South).
NE& C identified as the firstnational pilot site
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• Local reviews of deaths
• Series of additionalprojects
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Two key elements of the Programme
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Local reviews of deaths
Purpose:
To help health and social care professionals and policy
makers to• Identify the potentially avoidable contributory factors related to
deaths of people with learning disabilities.
• Identify variation and best practice in preventing premature
mortality of people with learning disabilities.
• Develop action plans to make any necessary changes to health
and social care service delivery for people with learning
disabilities.
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www.england.nhs.uk
Initial reviews - results
26 initial reviews – 15 men, 11 women
Ages at death ranged from 24 to 88 (median 54)
Capacity rarely mentioned (7/26) or tested (
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www.england.nhs.uk
Issues for North East and Cumbria
• Capacity – Regional Co-ordinator, Local Reviewers,local participation in review process
• Steering Group – established. Overseen andmanaged by Learning Disability Network but broader
membership required• Regional accountability arrangements – QSGs?
• Local governance arrangements – SABs?
• Aligning & embedding with other functions/bodies e.g.
safeguarding, Serious Case Reviews, Child DeathOverview Panels?
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www.england.nhs.uk 11
Local context – Expected numbers of
deaths of people with learning disabilitieseach year
NHS England Local Area Age 0-17 Age 18-
74
All ages
Cumbria and the North East 5 164 220
England total 78 2,209 2,976
These are estimates of people with learning disabilities identified on GP
registers.
On average, in England, we estimate that half as many people with learning
disabilities die each year than children aged 0-17.
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www.england.nhs.uk
The BIGGEST challenge ….
Information sharing …. Why? …. We share informationfor other issues eg Serious Case Reviews
The GMC makes it clear that confidentiality is animportant duty, but it is not absolute. Doctors candisclose personal information if:
• it is required by law
• the patient consents – either implicitly for the sake of
their own care or expressly for other purposes• it is justified in the public interest
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www.england.nhs.uk
What are we doing about it?
• Section 251 agreement pending
• Bespoke locality support from the LEDER team
• Wide range of supportive materials developed for use
across the health and social care sector• Information on the BMA, GMC & RCGP website
• Guidance from local Caldicott Guardians
• Steering Group discussing and debating important
issues for NE&C constantly seeking resolutions
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Thank you – any questions?