ndis pre-planning workbook combined. 2016-v2 -...
TRANSCRIPT
©JederInstitute–2016 2
JederInstituteMichaelaKennedy-Director
ABN:61168152869
Tel:0409646665Email:[email protected]:www.jeder.com.au
WelcometotheNDISPre-Planningworkshop.Youwillbe
participatingina2dayworkshopsthatwilltakeyouthroughaseriesofideasandquestionstothinkabout,throughwhichyouwilldevelopaPersonCentredPlanforyourson/daughterwithadisabilityreadytomeettheNDISplannerorLocalAreaCoordinator(LAC).ThisworkbookisaccompaniedbyaPlanningtemplate,intowhichyoucantransfertheinformationgatheredduringtheworkshop.Oncecompletedtheplanwillbereadytousehowyouwishe.g.tomeettheNDISplannerorLAC,toorganisesupports,tosharewithserviceprovidersorfundersoralloftheabove.
Ithasbeenalong-timedreamofminetobeabletofacilitateworkshopsthatprovidetheopportunityforfamiliestobeinthedrivingseatofplanningthefuturefortheirlovedones.Ifeelhonouredandprivilegedtobedoingthistogetherwithcolleaguesandfriends.
IwouldliketothankthemanygreatthinkersofPersonCentredwork;JohnO’Brien,ConnieLyle-O’Brien,JackPearpoint,MarshaForest,LyndaKahn,BethMount,JulieSimpson,MichaelSmullandHelenSandersonaswellastheworldleadersinAssetBasedCommunityDevelopment(ABCD)JohnMcKnight,MikeGreen,RicThompsonandDeeBrooks,plusthemanyotherpassionatepeopleIhavemetwhoinfluencedmyworkovertheyears;toomanytomentionhere,thankyouforyourgenerosityandsharing.Withoutyourongoingsupportthisprogramwouldnotexist.
ThisprojectisaninitiativeoftheNSWGovernmentundertheLivingLifeMyWay–GettingPreparedprojects.Thankyou!Michaela
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FacilitatorsoftheNDISPre-Planningworkshop:
Thefacilitatorsarefamilymembersofapersonwithadisabilityand/orapersonwithadisabilitythatareself-directingtheirsupports;theco-facilitatorissomeonethatisexperiencedworkinginthedisabilityindustry.Allfacilitatorsaretrainedprofessionalsinthedevelopmentanddeliveryofthistrainingpackage.TheyhaveparticipatedintheprogramthemselvesandhavedevelopedPersonCentredPlansforthemselvesand/ortheirson/daughterwithadisability.Ourworkshopsareinthestyleoffacilitativeteaching;wewillshowthepractice,demonstratehowitworks,getyoutodoit,andthenaskyoutoshareanddiscussit.Thefacilitatorsarecommittedtoensuringyougetthemostoutofthisworkshoptobenefityourself/yourfamilymemberwithadisability.Theyarecontactableforsupportandadvicewithplanningandarecommittedtobuildingtrustingrelationshipswithallparticipants.AnyissuesorproblemspleasecontactMichaelaKennedyatJederInstitutewww.jeder.com.auIntroductoryRound:
Pleasesharewithusyourname,whatyouwanttogetoutofthisworkshopandsomethingpositiveaboutyourfamilymemberwithadisability. Settingthegroupculture:
Whatagreementsdowewanttoworkby?Whatdowewantourculturetobetohelpkeepussafeandencourageeveryonetospeakfreely?Howdowewanttobewithoneanotherduringourtimetogether?Comfort,Stretch,Panic:
Taking'a'Stretch'
COMFORT'ZONE'
TAKING'A'STRETCH'
DANGER'ZONE!'
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ComfortZone:Istheplaceofsafetyandcomfort,weknoweverythingandfeelverycomfortable(firmboundaries).Ifwedon’tleavehereeverynowandthen,welosethechancetogrow.DangerZone:Aplaceofexposureandvulnerability(looseornoboundaries).Ifwegetintothisterritoryweleaveourselvesopentobeinghurtordamaged.TakingaStretch:Theplaceofgrowth(flexibleboundaries).Takingastretchallowsustochallengeourthinkinginasafespace,knowingthatwecanreturntoourcomfortzoneifthingsgettoomuch.Ifwereallywanttochangesomethingwewillcontinuetochallengeourselvesandtolearnfromourexperiences.Youcanplanforlearningbyworkingoutwhatwillkeepyouinthestretchzone:Goal-Tobemoreconfidentinridingahorse:
Actiontobetaken Who When
Organisearegularridingopportunities–onceamonthrideandfortnightlylessonstoincreaseskills
Michaela January
TakenotesofhowIfeltridingatatrotandachanteraftereachrideusingskillslearned
Michaela MonthlyfromFebruary
Discussnoteswithteacheratfortnightlylessonsandfigureoutstrategiestoaddressfear
Michaela Eachfortnight
RecognizingEmotionsThroughoutChange:Fear Anger Frustration Excitement
Werecognisethroughouttheseworkshopsanumberofemotionsmayarise.Weencourageyoutobegentlewithyourselfandeachother.Changeaffectspeopleinmanydifferentwaysandeveryonehasauniquesetofcircumstancesandexperiences.Weworkhardatcreatingasafesupportivespacewithintheworkshopsandencourageyoutoexpressyourfeelingsandgetthesupportyouneed.Wewanttoacknowledgethatnoonecanbeamindreader,thereforepleasecomespeaktous(thefacilitatorsoftheworkshops)foranythingwecandotosupportyou.Overviewof2-DayWorkshop:
Day1
HistoryofTheDisabilityInclusionMovement SystemCentredtoPersonCentredFunding–What’schangingundertheNDIS? SelfDirection&SelfManagementofFundingDescriptionoftheperson IntroducingthePerson–viaStrengths&Capacities5ValuedExperiences&VisionStatement VisioningandVisionStatementDVD–LivingaGoodLife GiftsoftheHead,HeartandHand
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Day2
RelationshipMapping,Circles&MicroBoards GoodDay/BadDay/BestDay-Perspectives–LifeAreas&RitualsandRoutines GoalsandwhatsupportisrequiredtogetthemTimetable-weekly Budget–Howmuchwillitcost?IACadviceonreasonable&necessarysupport SuccessionPlanning&SelfCare
HistoryoftheDisabilityInclusionMovement:
FromSystemCentredtoPersonCentred:Person-centeredplanning:withBethMount(1992)http://www.youtube.com/watch?v=y77y7XW8GtE
FromSYSTEMCENTRED–PAST TowardsPERSONCENTRED-FUTURE
Planalifetimeofprograms Craftadesirablelifestyle
Offeralimitednumberofusuallysegregatedprogramoptions
Designanunlimitednumberofdesirableexperiences
Baseoptionsonstereotypesaboutpeoplewithdisabilities Findnewpossibilitiesforeachperson
Focusonfillingslots,beds,placementsandclosures Focusonqualityoflife
Overemphasisetechnologiesandclinicalstrategies
Emphasisedreams,desires,andmeaningfulexperiences
Organisetopleasefunders,regulators,policiesandrules Organisetorespondtopeople
Timelineofsignificantdisabilitymovements JohnO'Brienandthe 'forma1veyears' ofPersonCentred Planning(1979-1992)
BengtNirjecoined BobSchalock(US)MovetowardsthetermandBobCummins(Australia)'Personalisa1on’and‘Normalisa1on'introduce'QualityofLife''Individualised'services
1960s 1980s 2000 2014
1970s1990s2011WolfWolfensbergerfurtherMichaelWehmeyer(US)developedNormalisa1on,whichexplores'SelfDetermina1on'ledto'SocialRoleValorisa1on'acrossthelifespan
UnitedNa1onsCivil/HumanRights&An1-Discrimina1on Conven1ononthe
Movementsincreasing RightsofPeoplewith Disabili1es
Deins1tu1onalisa1onè
Implemen1nganNDIS
Produc1vityCommissionreportonDisabilityCare
andSupport
RichmondReport1983
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DisabilityInclusionAct2014:www.facs.nsw.gov.auTheDisabilityInclusionAct2014andtheDisabilityInclusionRegulation2014commencedon3December2014.TheActreplacedtheDisabilityServicesAct1993.TheActhastwomainroles:
1. CommittingtheNSWGovernmenttomakingcommunitiesmoreinclusiveandaccessibleforpeoplewithdisabilitynowandintothefuture.ThesecommitmentswillcontinueevenwhentheNDISisoperatingacrossNSW.
2. RegulatingspecialistdisabilitysupportsandservicestopeoplewithdisabilityinNSWandintroducingbettersafeguardsfortheseservicesuntilthechangeovertotheNDIS.
http://www.adhc.nsw.gov.au/__data/assets/file/0018/300348/DIA-Factsheet-1-Overview-of-the-Act.pdf
StateFunding–Now:
Whatyoushouldknowaboutyourfunding;availablefunding;applyingforfundingandtheNDIS:Withallofthechangesthatareoccurringatthemoment,thelogicalplacetostartistofindoutaboutyourfunding–orthefundingforthepersonwithdisabilities,iftheyhaveany.Thismaytakeabitofperseverancetofindout,particularlyifthefundshavebeenwithanorganisationforalongtime,orifyouhavenoteverreallythoughtaboutit.Whatisimportanttoknowiswhatsupportsyourfundshavebeendesignedtocovernowandhowtheycanbeused,thisiscalledfundingcriteria.Sometimespeoplefindthatthefundsweretocoverrespitebuttheyhavebeenusingitforin-homesupports,orsituationswherethepersonhasusedsomeoftheircommunityaccessfundstopurchasecalliperssothattheycanmovearoundmoreeasilyathomeaswellasinthecommunity.YourDepartmentalliaisonpersonshouldbeabletoassistyouwithfindingouttheinformationaboutthefundsincludinghowmuchmoneyitis.Ifyouknowthenameofyourfundinge.g.accommodation,respite,communityparticipation,transitiontowork,homecare,supportedlivingfund,etc.Youcanlookupthefundingcriteria,seelinksbelow.Whenyouknowwhatfundshavebeenallocated(nameoffundingpackage)aswellaswhatfor(fundingcriteria),youwillhaveaplacetostart.Whetheryouneedtospendtimeplanningonwhatneedstobedonetohelpthepersonwithdisabilitytohavethebestpossiblelifeorwhetheryouhavethissortofinformation&wanttostartmakingsurethecorrectservices&supportsareputinplace,yourknowledgeaboutthefundinglevel(amountofmoney)andcriteriawillbereallyuseful.Sometimespeoplefindthattheydon’thaveenoughfunding.Whenthishappens,youmayhavetogothroughanotherassessment,applicationorappealprocessorconsiderotheravenuesforfunding.Currently,fundingsitswithinvariousstreamsdesignedtosupportpeoplewithdisabilitiesindifferentareasoftheirlife,forexample,accommodationsupport,lifeskills,communityaccess,employmentservices,respite,earlyintervention,transitiontowork,olderparentcarers,home&communitycare,justtonameafew.SomeofthesearefundedundertheNSWgovernment,whereasothersarefederallyfunded.
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Youneedtobeawareofthewaythesefundingprogramslookatthesupportthepersonrequires.Thismeansunderstandingthetermsusedinfundingarrangements.Forexample,insteadofsayingyouwantsupportathomesothattheperson’sparentscangoawayonholiday,youmightneedtosaythatthefamilywouldliketogoawayforafewdays,whichmeansthatsomein-homesupportwillberequiredforthepersonwithadisabilitytobuildtheirindependentlivingskills&practicetheseskillsinordertoliveawayfromthefamilyhomeoneday.Anotherexamplemightbethepersonwantstogotoamusicgrouporouttoseelivemusic,thiscanbeframedasthepersonwouldliketomakefriendsandbuildcommunitysupportnetworksthroughsharedinterestsbyattendingamusicgroup,localfestivalsandlivemusicevents.Itreallyhelpstohaveasupporterwhounderstandsthistypeoflanguagedifference&whocanalsohelpyougetusedtousingthislanguageinyourwriting.Ifyouareunsureofanythingyouwriteandwouldlikesupportpleasecontactyourfacilitators.Currentfundingstreamsandcriteria:www.adhc.nsw.gov.au
EarlyChildhood:
https://www.adhc.nsw.gov.au/__data/assets/file/0004/283387/Plain_English_Information_Resource.pdfCommunityParticipation,LifeChoices&ActiveAgeing:http://www.adhc.nsw.gov.au/?a=228283IndividualAccommodationSupport:http://www.adhc.nsw.gov.au/individuals/support/somewhere_to_live/individualised_accommodation_support/individual_accommodation_support_packages
TransitiontoWork:http://www.adhc.nsw.gov.au/__data/assets/file/0003/228288/Transition_to_Work_Guidelines_2013.pdfIndividualisedPrograms:Currently,ADHChasanumberofprogramareas,whichincludeindividualisedfundingoptions:• SupportedLivingFund(SLF)• IndividualAccommodationSupportPackages(IASP)• LeavingCareProgram(LCP)• CommunitySupportProgram(YoungerOnsetDementia[CSP]• YoungPeopleinResidentialAgedCare(In-ReachandIn-Home[YPIRAC]• YoungPeopleinResidentialAgedCare(YPIRACIASP)• ExtendedFamilySupport(EFS)• CommunityParticipation(CP)• FlexibleRespite• BoardingHouseRelocationProgram• LifeChoices/ActiveAgeing(LC/AA)
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Whyisitimportanttoplan?–Adaptedfromhttp://www.inclusionbc.org/parent-s-handbook-inclusive-education/planning-your-child-s-education/why-planning-importantPlanningallowsparentswhosupportpeoplewithdisabilitytoconnecttheirhopesanddreamstodailyactions.Itmakespossibleaninclusivecommunitylifeforyourlovedone,onestepatatime.Planningcanalsoinvolveformingateamtoworktogethertowardbig-picturegoals.Thisteamwillincludeyouandyourlovedoneatthecentreandmayincludefriends,neighbours,extendedfamilyandothercaringcommunitymembers.
Planningshouldbeperson-centred.Itbeginswithyourlovedonesandyourfamily.Itshouldalsorespondtoallaspectsoflife—includingsocialrelationships,recreation,andeducationalopportunities—andincludesbothlong-termandshort-termgoalsforyourson/daughter.Person-centredplanningtoolssuchasMaps,PathandLifestylePlanningmaybehelpfulfordevelopingplans.Communitypartnerscanincludeschoolpersonnel,socialworkers,neighbours,friendsandotherprofessionalsupporters;theycanalsohelpwithdevelopingplansandorganizingtherequiredsupportsandservices.
Planningisanongoing,circularprocess.Asyouidentifynewdreams,goalsandneeds,youwillneedtorevisetheplantoaddressthem.Asgoalsintheplanareachieved,youwillneedtodefinenewgoals.Therearealsomanycrossroadsovertheyears,andtransitionplanningiskeytoensuringgoodoutcomes.Transitionplanscanplanforvisitstoanewenvironmentbeforeanactualmove.Thisallowsstaffinthenewenvironmenttodevelopthebestpossiblestrategiestomakethemoveassmoothaspossibleforyoursonordaughter.Somedistrictshavetransitionteamstosupportpeoplethroughmajorchanges.Planningshouldbeginwellinadvanceofanticipatedtransitions.
Overtime,thewayyouplanmaychange.Forexample,aspeoplegetolder,it’simportanttoincludethemasmuchaspossibleintheplanningprocessandtheplansthemselvesmayrequiremoredetailstobeshared.Ideally,peopleshouldparticipateinplanningmeetings.Planningworksbestwhenbothparentsandthepersonwithdisabilityareactiveandvaluedparticipantsintheprocess.JederInstitutecontinuallyrunspreparationandself-directionworkshopstosupportpeopleandfamiliestohavechoiceandcontrol.www.jeder.com.au
FundingundertheNDIS:
TheNDISrolloutwasannouncedinSeptember2015–seethislinkforthetimeframeandwhichareasarerollingoutwhen.http://www.ndis.gov.au/about-us/our-sites/nswItisplanningthatallofNSWwilltransitiontoNDISby2019.ToentertheNDISseehttp://www.ndis.gov.au/ndis-access-checklist-‘NDISAccesschecklist’OnceyouhavepassedtheeligibilityphaseaLocalAreaCoordinatorwillcontactyouandsendyousomeinformation.Ifyoucurrentlyhavesupportfunding,yourinformationhasalreadybeengiventotheNDISandaLocalAreaCoordinatorwillcontactyou.Findmoreinformationat:https://myplace.ndis.gov.au/ndisstorefront/about-us/our-sites/nsw.1.html
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ThepersoncentredplanyouwillbeworkingonthroughinthisworkshopwillcoverthecomponentsofanNDISplan.Thetemplatethatcomeswiththisworkbookisauser-friendlyplanthatcanbeusedforimplementingthestated,desiredlifestyle,recruitingateamofsupporters,sharingvaluableinformationwithothersandworkingtowardsasharedvisionandtheassociatedgoals.Self-DirectionTheterm‘self-direction’isbeingusedalotthroughoutthedisabilitysectoratthemoment,butwhatdoesitreallymean?Wethinkitisalsobeingconfusedwithfundingarrangementslikeself-managedandeachstateinAustraliaseemstohaveaslightlydifferentinterpretation,sothefollowingdefinitionsareanattempttohelptoexplainthisabitmore:Directpayment: Provisionofadirectpaymenttoapersonwithdisabilityorhis
/hernominatedpersonresponsible,thepersonorthepersonresponsiblemakesarrangementsforsupportsandisdirectlyresponsibletothefundingbody/government.
Self-directed: Apersondirectingtheirownlifefreefromexternalcontrolandconstraint.Directingthewaytheylivetheirlife,decidingonthejourney,futuregoals,howandwhentogetthereandwhenthingschange.Directingtheirownsupports,howitisgivenandwhoisgivingit. Ithasnothingtodowiththefunding.
Self-managedfunding: Thepersonwithdisabilitiesand/ornominatedpersonresponsibleandnominatesignificantotherpeoplemanagealltheaspectsofthefunding,andprovidefinancialacquittalsandreportsdirectlytothefundingbody/government.
Sharedmanagement: Thisapproachisbasedonanagreedsharingofsupports/fundingmanagementresponsibilitiesbetweentheindividualand/ortheirfamilyandaSupport/IntermediaryOrganisation.
State based Flexible funding programs, also referred to as direct payments, individualbudgets, self-directed support, self-management, consumer-directed care, personalassistance, and individualized funding, have been promoted for a number of yearsthroughoutAustralia,andreflectthecontinuationofinternationalpolicytrendsthathavebeen operating in one form or another for at least the past fifty years. While thesearrangements are not new, considerable interest has been placed over the years onspecifying what self-management and flexible funding means to government, servicestructuresandindividuals.
We believe Self-directed support should beviewed as an option in which people withdisabilities with the support of their families and their allies manage and direct theirservicesandsupports,withtheopportunityalsobeingprovidedforpeopletoself-managetheir fundingpackagetodesigntheirownsupportrequirementsandpurchasethese inawaythatsuitsthembest.
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The selfmanagedapproachunder theNDISprovides theopportunity forpeople tohavegreatercontrolovertherecruitment,hiringandmanagementofsupportstaff&tousethefunds flexiblytoaddressotheressentialrequirements. Thisapproachrecasts thepersonwithdisabilities frombeingapassiverecipientofpre-purchasedservices, towardsactivecitizenship where the person has the right to assert and exercise control over theirsupports and their own life. This has been seen as a progressive shift away from a‘professional gift model’ towards a citizen-based approach, which is more in keepingwithwhatisvaluedinmostpeople’slives.
There are many examples of people self-managing their arrangements throughoutAustralia. The following diagram shows one example of the spectrum that self-management of funding covers: (adaptedfromDepartmentofCommunities,ChildSafety&DisabilityServices2013p9)
Asaprocess,self-directionappearstohaveanumberofcommonelements.Theseincludespecific budgets being attached to the individual, with these funds addressing supportcoordination,useof fiscal intermediaries,updating informationtechnology,andadequatetrainingbeingoffered toensureoptimalbenefitsareexperiencedby the individual. Theabilitytousefundsinflexiblewaysiscriticalinpromotingtrueself-determinationaswellasachievingtheimpactsofeffectiveimplementationofself-directedservices.
AdaptedfromReferences:DepartmentofCommunities,ChildSafety&DisabilityServices.2013.YourLifeYourChoice:
Self-DirectedSupportFramework,[online]https://www.communities.qld.gov.au/resources/disability/key-projects/your-life-your-choice/ylyc-self-directed-support-framework.pdf
Apersoncanmoveacrossthisspectrumdependingonwhattheyarecomfortabledoing,theirpreviousexperiencesandcurrentsituation.
SpectrumofSelf-ManagedSupport
Thepersonacceptsfullresponsibilityfortheplanning,budgetingand
organisingoftheirsupport.Fundingisadvancedtotheperson’sbank
account,usuallyonamonthlybasis.
Thepersonacceptsmostofthe
responsibilitiesfortheplanningandorganisingoftheirsupport.Theremainderis
purchased.Fundingmaybeadvanced,reimbursedorheldbytheserviceprovider.
Thepersonacceptssomeresponsibilityfortheplanning,budgetingand
organisingoftheirsupport.Additionalsupportintheseareasispurchased.
30
30
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Rees,K.2012.“It’snotjustaboutthesupport:Exploringthewaysinwhichfamilymembersandpeoplewithdisabilitiesevaluatetheirself-directed/self-managedarrangements”,commissionedbythePracticalDesignFund,FaHCSIA,Canberra,ACT.
Thewaywedescribeourson/daughterwithadisabilityisimportant:Toooftenpeoplewithadisabilityaredefinedanddescribedintermsofdeficits,ratherthanintermsofcapacities.Society’s attitude to disability can be a source of distress to families.Families are often toldwhat is wrong with their child/adult, rather than having their capacities highlighted. Oftenfamiliesareencouragedor forced intopointingout their familymembersdeficits inorder toreceivesupportsorfunding.Communitycanseepeoplethroughstereotypes,andcanexpectpeoplewithdisabilitiestobeincompetent. Findingcapacities inpeoplehelpsotherstoseehowcompetentpeoplecanbewhentheyhavetheopportunitytoexpresstheirgifts.Withpersoncentredplanning,thefocusisonthecapacitiesofpeoplewithadisability,andonbuildingopportunitiesinthecommunityforthesecapacitiestobeexpressed.Inparticularthecontributionpeoplecanmaketotheircommunitythroughsharingtheircapacities,andfindingmoreoftheseopportunities.Firstlylet’slookatdescribingthepersonthroughtheircapacities:Descriptionsofthepersoninmylife(deficitversusstrengths)
PersonA PersonB
• Hashigh-levelquadriplegia&isunabletodoanythingforthemselvese.g.eat,bathe,movearound,etc.
• Hasthementalcapacityofa3yearold• Isbrain-blind,unabletospeak,has
significantintellectualimpairmentbecauseofatraumaticbraininjury
• Significanthealthconcernse.g.multipleformsofepilepsy,neurogenicbladder,significantsleepdisorder,coughingdisorder
• HasaPEGforhydration&medicationadministration
• SometimesneedstousethePEGformeals• Limitedtohomelifebecausewhenthey
areawake,itmaybeat2amsonotsafetogooutinthecommunity
• Unabletousetheirhandse.g.touseacomputerorspeechassistanttool
• Refusestouseacommunicatordevicesohardtoknowwhatthepersonreallywants
• Smallbusinessproprietor• Employerofstaff• Teacher&Mentor• Italy&Spainaresoulhomes• Practicaljoker• Karaokequeen• Changeagent• Traveller• Adventurer&risktaker• Adoresinterestingfashion• Foodconnoisseur• Greatlistenerwithakeeninterestin
people• Meditator&musiclover• Spiritualperson• Homeowner&neighbour• Gardenerespeciallynativegardens• Beekeeper• Lovesrelaxinginthespawithfriends• Baileys&milklover–nottoohappythe
nextdayifthereisahangover!
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Activity:Describeyourselforyourlovedonewithadisability:
Deficit/Labels Strengths&Capacities
GlassHalfEmptyorGlassHalfFullPerspective:
Wedecidehowwelookatthings.
People/ Communities
have deficiencies and needs
People/Communities
and its citizens Have capacities
and assets
PEOPLE/COMMUNITIES
HAVEDEFICIENCESANDNEEDS
PEOPLE/COMMUNITIES
ANDIT’SCITIZENSHAVECAPACITIESAND
ASSETS
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Writinganintroduction:
Anintroductiongivesothersasnapshotabouttheperson.Theintentionheristosetthesceneand bring the person to life, the human being-ness of the person. In general, a goodintroductionwill,introducethepersonandgiveabitofbackgroundinformation,setthescopeofdiscussion,bringattentionto thekeyelement (strengthsandcapacities)of thepersonandincludetheperson’sname,age,gender (ifnotobvious)andthepositiveattributesabout theperson.Theintroductionshouldbeshort,notmorethan2–3shortparagraphs.ExampleIntroduction:HelloI’mBrenton,Iama24-year-oldyoungmanandliveinWoonona,asuburbofWollongong. I love lifeandbeingwithmyfamilyandfriends. I lovemy life inmycommunity;I’macoachfortheWoononaBushrangers,playfootballwithmylocalDragonsandwatchthelocalTigersplayeveryweek.IgototheWoononaBowlingclubprettymucheveryFriday and Saturday night unless I have a party or other event to go to. I have beenvolunteeringinsportsatschoolsfor5yearsnow.IlovemysportandwatchingtheFootyShoweveryweek.IlivewithmyMum,Grandma,AuntandUncleinourlargefamilyhome.Wealllookaftereachotherandenjoyspendingallspecialoccasionstogetherwhenmorefamilyandfriendsvisitandspendtimewithus.MyMumhelpedme towrite thisplanandhelpsme toorganisemy life, ImakeallmydailydecisionsofwhatI’mgoingtodoetc.andIchoosemyownstaff.MumandIarenowlookingintodevelopingabusinesssothatIhavesomethingtodoforworkthatfitswithmypassionsandinterests.Activity:UsingthenotesyouhavemadeinthepreviousactivityintheStrengthsandCapacitiessectionwriteashortIntroduction.
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The5ValuedExperiencesgivesusalanguagetodiscussaperson’sdevelopmentandfocusesourattentiononthequalityofaperson’sexperiences.Itresultsinasharedsenseofdirectionandprioritywhichguidestheselectionofpersonalandserviceobjectivesandactivities,formstheessential linkbetweenplansandactionandprovidesthemeansforregularfollow-upandrevision.Itprovidesawaytogetthingsdone.Thosewhomakeimportantdecisionsaboutanotherperson’sfutureneedausefulvocabularyfordiscussingtheeffectsoftheirdecisionsonthequalityofthatperson’slifeexperiences.The5valuedexperiencesarehelpfulindescribingaperson’ssituation,identifyingopportunitiesforimprovement,andevaluatingthemeritofproposedactivities.Five related termsdefine thisway to lookat thequalityofaperson’s lifeexperiences. Eachpointstoexperiencesthatmakesenseforapersontoseekmoreof;togetherthey indicateabalanceof experiences thatmakeeffortworthwhile. History shows that peoplewith severedisabilitiesarelikelytomisstheseordinarypositiveexperiencesunlessthepeopletheyrelyonwork hard to provide them. These valuable experiences come from cooperation betweenindividualsandtheirallies.Theybringoutthequalityofallpeople’slivesbecausetheyaretheresultofpersonal investment, focusedattentionand learning throughaction; theycannotbemanufacturedthroughamechanicalprocess.(O’Brien2002)Everyone’sworldgrowsricherandmoreinterestingwhenpeoplehavemoreopportunitiesforthesevaluedexperiences.Belonging:Beingamemberofagrouporanassociationoracongregation;beingafriend;beingafamilymember;beingapartner.Havingavarietyofrelationshipsandmembershipsincludingassociationswithbothpeoplewithdisabilitiesandpeoplewithoutdisabilities,bothpaid,staff,volunteersandothercitizens.Beingrespected:Beingseenandtreatedwithdignity;beingseenandtreatedasawholeperson;beingseenandtreatedinwaysthathonourthebestinyourculture;beingseenandtreatedasapersonwithrights;beingseenandtreatedinwaysthatfityourage.Sharingordinaryplaces:Makingthesameuseofcommunitysettingsasanyothercitizendoes,atthesametimesandforthesamepurposesasothercitizensdo:living,working,learning,andplayingconfidentlyinordinaryplaces.Contributing:Makingapositivedifferencetootherpeople,tocommunitygroups,andtothecommunityatlargebydiscovering,developing,andgivingindividualgiftsandusingpersonalcapacities.Therearegiftsofbeingandgiftsofdoing:contributionscanincludeinterestedpresenceaswellascapableperformance;insomesituationssimplybeingpresentandinvolvedmakesarealdifference.Contributionscanbefreelygivenorearnpay.
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Choosing
Choosing:Havingthefreedomandsupportandassistancetomakethesamesortsofchoicesasotherpeopleofyourageandtolearntomakewiserchoicesovertime.Asanadult,makingbigdecisions(suchaswhereandwithwhomtoliveandwork)andsmallerdecisions(likewhattoeatandwhentogotobed).Atanyage,beingencouragedtouseandstrengthenyourvoice(inwhateverwayworksforyoutocommunicate),toclarifywhatreallymatterstoyou,tomakethoughtfuldecisions,andtolearnfromexperience.O’Brien,J.&LyleO’Brien,C.(2002,3rdPrinting).AlittlebookaboutPersonCentredPlanningInclusionPressActivity:Identifywhereandhow,inyourlifeoryourson/daughter/familymemberwithadisability,dothese5ValuedExperiencesshowup,rightnow.Thenidentifywhereandhowyouwouldlikethemtoshowupinthefuture.Putaboxorcirclearoundthedreamsforthefuture.
Belonging
BeingRespected
SharingOrdinaryPlacesContributing
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Developingavision:
Whywouldwedothis?Surelythatsoundslikesomethingpeopledoinbusinessorintheorganisationsthatsupportpeoplewithdisabilities?Whileyouwouldbeabsolutelycorrectinthinkingthis,familymembers&peoplewithdisabilitieshavesometimesfoundthatthissortofapproachcanreallyhelpthemwithintheirdailylives.Avisionisadreamorhopeofsomefuturestatethatwemayachieve.Itisthe‘bigpicture’&answersquestionssuchas:
• Whatisourlong-termgoaloraspiration?• Howdoweseeoursituationin2years’time?5years’time?• Whatisouridealfuturestate?
Thisisthesortofstatementthateveryonewhosupportsyou/thepersonshouldbeabletoidentifywithaswell.Overtime,youwillbeabletoreviewthisstatementtoseeifitstillfitsthecurrent&reflectwhereyouareuptoinlifenow.Thefollowingisanexampleofthesestatements:
VISIONSTATEMENT
Our vision is that Jenny is continually enabled to live a lifestyle she chooses, is used to andentitled to. That Jennymaintains the right tomake her own decisions and experience risk,withinanenvironmentthatensuresthathersafetyissafeguarded.ThatJennyhasvaluedroleswithinherlocalcommunityandsocialnetworks,ensuringthatherpersonaldignityisrespectedatall times. Thatpeople Jennychoosesand thatchoose tobewithher inmutual reciprocalrelationshipregularlysurroundher.
VISIONSTATEMENT:
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GiftsoftheHead,HeartandHands:
Inanycommunity,themostfundamentalbuildingblockisindividualpeople’scapacitytojoinincontributingtheirgiftstostrengthentheircommunity.Everyindividualhasmanygifts–knowledge,skills,andinnatetalents;giftsofthehead,handandheart.Averypowerfulwaytobuildastrongercommunitytapsunrealizedpotentialintwosteps.Askingpeople;Whatareyourgifts?Thenconnectinggiftstoopportunitiesforcontribution.Whenpeoplepurposefullylookforgifts,thereareamazingdiscoveries.Thekeyisasking.Themostfundamentalactionofcommunitybuildingisconversation,peopleturningtooneanotherandaskingeachotherwhatisimportanttothemandwhattheyhavetooffertoacommoneffort,toworktogetwhatisimportant.
Activity:Askthefocuspersontotellyouastoryaboutatimewhenheorshewasathisorhervery
best,atimewhenheorshemadeapositivedifferencetootherpeopleandfeltgoodtobeinvolvedindoingso.Itcanbeasmallthingorabigthing,whatmattersisthatthefocuspersonfeltgoodaboutdoingit.(Ifyoucannotcommunicatewellenoughwiththefocuspersontoheartheirstory,youwillneedtoaskpeoplethatknowandcareaboutthefocusperson.)Reflectonthestorybyasking,‘Whatqualitiesorgiftsdoesthisstoryshowthefocusperson
tohave?’Putawordorafewwordswheretheyseemtobelongtoidentifythefocusperson’sgifts.Thenask‘Arethereanyothergiftsorcapacitiesthefocuspersonhas,thataren’tinthestory?’Addtheanswers.Thinkabout:
• Giftsofthehead–knowledge,questions,experience,andinformationthatthefocuspersoncancontribute(forexample:figuringpeopleout,organizingandclassifyingthings,travelroutes,sportsnews,faninformation,gossip,localhistory,abilitytospotabargain,abilitytodebate,salesability,creativethinking,math,solvingpuzzles,interestsinpolitics,desiretothinkandtalkaboutbigquestions)pleasenote;thisdoesnotmeantheyneedtobeanexpertinthearea,justknowaboutitandliketotalkaboutit.
• Giftsofthehand(andfeetandvoice)–abilitiesandskillsthatthefocuspersoncancontribute(forexample:recognizingpeopleandrememberingnames,dancing,fixingthings,singing,typing,drawing,arrangingshapesandcolours,usingacomputer,decorating,acting,composingmusic,figuringoutthebestwaytodoajob,sewing,workinghardusingphysicalstrength,abilitytosign,abilitytospeakorunderstandanotherlanguage)
• Giftsoftheheart–interests,enthusiasms,personalpassions,andtherewardsofrelationshipthatthefocuspersonbringstoothers(forexample:welcomingpeople,patience,courage,impatiencetomovefromtalkintoaction,sensitivitytoothers,highenergy,desirefororder,abilitytolisten,passionforjustice,loveofnature,abilitytodrawothersout,spiritualgifts)
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Reference:O’Brien,J.&Pearpoint,J.,(2004)Person-CenteredPlanningwithMapsandPath–AworkbookforFacilitators.InclusionPressGreen,M.,Moore,H.,&O’Brien,J.(2006).Whenpeoplecareenoughtoact–AssetBasedCommunityDevelopment2ndEdition.InclusionPress(pg31)
Head Hands Heart
Activity:
Thinkaboutopportunitiesforthefocusperson’sgiftsandcapacitiestobegiventothecommunity.Whatwouldhelpthecommunitybeabetterplacebythecontributionoftheperson’sgiftsandcapacities?Whatisoneideathatwouldhelpthecommunitybebetteroffbyknowingthefocusperson
throughhis/hergifts?
Describethegoal–
WhatAction/sneedtobetaken Who When
Thingstothinkaboutanddountilwemeetagain:1. Sharewhatyouhavedevelopedherewiththepersonwithadisabilityand/orothers
thatknowandcare,askfortheircontribution
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WelcomeRound:
Sharesomethingpositiveaboutyourselforyourfamilymemberwithadisabilitythathashappenedsincewelastmet.Reviewlastsession’swork:Addanynewinformationyoulearnedfromothersthatknowandcareaboutyourselforyourfamilymemberwithadisability.Askquestionsthathavecomeup.RelationshipMapping:http://www.iidc.indiana.edu/?pageId=411
Sincebirth,wehavebeencreatinganintricatenetworkofpeopleinourlives,friendsand/orfamilywhoarethereforusintimesoftrouble,sorrow,andcelebration.Thosefriendstakeaninterestinourlivesandusbecausewesharecommonthreadsthatbindustooneanother.ThisgroupiscalledourCircleofSupportorFriends.Theyarepeoplewevalueinourliveswhohelpusachieveourdreamsorlendahandwhenweareinneed.Wecancountonthemtobethereforus.Theserelationshipsareformedinmanyways,butgenerallycomefrommeetingpeopleindifferentplacesandenvironments.Meetingpeople,formostofus,occursnaturallyandfortheentiretyofourlives.
JudithSnow,awomanwithasignificantdisability,explainsitfurtherandhasdescribedfourdifferentcirclesofrelationshipsthateveryonehasintheirlives.
CircleOne:TheCIRCLEOFINTIMACYismadeupofthosewhowesharegreatintimacy,oursecrets,andheartfeltemotions.Thesearepeopleorperhapsanimalsorobjectsthataresodeartousthattheirabsencewouldimpactusgreatly.Thismayormaynotincludefamilymembers.
CircleTwo:TheCIRCLEOFFRIENDSHIPismadeupofthosepeoplewhoarefriendsorrelativeswhowecallupontogoouttodinner,seeamovie,butarenotthosewhoweconsiderourmostdearfriendsorthosewemustseeregularly.
CircleThree:TheCIRCLEOFPARTICIPATIONiswhereyoubelongandincludesthenamesofthepeopleororganizationsyouparticipatewithinlife.Thiscouldcontainspiritualgroups,whereyouwork,whereyouwentorgotoschool,clubs,organizations,athleticteams,orwhereyouparticipateandinteractwithpeople.SomeoftheseindividualsmaylaterbeinCircleoneortwo!CircleThreeisthegardenforsowingfuturerelationships.
CircleFour:TheCIRCLEOFEXCHANGEismadeupofpeoplewhoarepaidtobeinourlives.Doctors,teachers,dentists,socialworkers,therapists,hairdressers,carmechanics,andthelikemakeupthenumbershere.
JudithSnowexplainsthatwhenwelookatthefourcirclesforpeoplewithoutdisabilities,wecanseethatthereisafairnumberineachcircle.However,ifweweretolookatthecirclesforpeoplewithdisabilities,wewouldseeaVERYDIFFERENTPATTERN.Generallyforpeoplewithdisabilities,theremaybepeopleinCircleOneandCircleFour.Inmanyinstances,circlefourexplodeswithpeoplepaidtobeintheirlives.CircleThree,thekeycircle,hasminimalorganisationsorsocialopportunitiesavailableforthemandthus,peoplewithdisabilitiesareexcludedfromcreatingconnectionstoothersanddevelopingatruecircleoffriendsorsupport.
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Thissortofdivisioncanputahugefinancialandemotionburdenonfamilies.ACircleofSupportcanbegintoalleviatesomeofthatstrainandburdenforthefamily;howeveritdoestakeworkandplanning.
Activity:DevelopyourownCircleMap;addnamesintotheappropriatecircle.Makesureyoudothisfromtheperspectiveoftheperson,i.e.wheretheywouldwanttheminthemap.Sometimespeoplewillwanttoaddpetsorpeoplethataredeceased,youmayadddefiningdetailsinbracketstohelpothersunderstandwhopeopleare.Onceyouhavecompletedthemap,putaheartnexttothoseyou/thefocuspersonlovesorcaresdeeplyabout,putastarnexttothosewhoknowanimportantpartofyour/thefocusperson’sstory,putacirclearoundthosethatknowalotofpeopleinthecommunityandputaticknexttothoseyou/thefocuspersonwouldinvolveinplanning.
Intimacy
Friendship
Participation
Exchange
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TheRelationshipmaphelpstoidentifyopportunitiesforpersonalsupportandassistance.• Whatarethemainpatternsandthemesintherelationshipsnetwork?• Whatareasofrelationshiparemissing?Whatwouldbeimportanttobuild?• Arethereoldfriendsoracquaintancesfromthepast,withwhomthepersonwouldlike�to
reconnect?• Aretherefriendsoracquaintancesfromthecommunitythatcanbeinvitedtojointhecircle?• Wherecouldcommunitymemberswhowouldliketogettoknowthispersonbefound?
Buildinganetworkofsupport(circleofsupport),invitationandagenda-JudithSnowHowdoesonegoaboutcreatingacircleofsupport/friends?Whatarethestepstofollow?Therearemultiplefactorstoconsiderandeachiscrucialtothesuccessofthecircle.Firstandforemostistoestablishwhothefocuspersonis.Thispersonistheonewhowillbethedrivingforce;thecenterofalldiscussionandplanning.Oncethishasbeenestablished,theplanningbegins.Theremustbea‘champion’orsomeonewhowillseetoitthatthiscircleisformedandthattherewillbefollowthroughfromtheplanningtotheimplementationstages.Inmanyinstances,thisisoneoftheparentsoracaregiverfortheindividual.Astimepassesandacircledevelops,thisrolemaybetakenonbyothers.
Decidewhomtoinvite.(ItisbestifCirclemembersarenotpaidtobethere,itisvoluntary!)Thefocuspersonhasagreatdealofsayaboutwhotoinvite.Createalistofindividualscommittedtochange,whobelieveinthefocusperson,andwhowouldbecommittedforthelonghaul.Memberscanbeneighbors,family,communitymembers,fellowchurchgoers,ormembersofclubs.Therearenolimits,butbeselective.Invitethosepeoplewhoarewillingtotakeachanceandavoidthepeoplewhoareskepticalorunsureofchange.
Obtainfacilitators.Itisbesttohavetwofacilitators;onetoleaddiscussionandonewritedowntheinformationanddographics.Interviewthemasneededtofindonethatthefocuspersoniscomfortableusing.
Decideonalocationandtime.�Meetingscanbeheldinahome,church,school,library,backyard,conferenceroom,oranybigmeetingspacethatisavailable.Thedayoftheweekandthetimecanvarydependingupontheavailabilityofpotentialmembers.Potentialtimescanbeimmediatelyafterwork/school,overthedinnerhour,orduringtheweekend.SometimesCirclemembersmaywanttoorganizeaspecialeventandgotoapark,gobowling,orhaveapizzaparty!Itisalwaysgoodtoincludesomerefreshmentsforthemeeting:makethemeetingassimpleorasinvolvedasthefocuspersondesires!
CreateandmailinvitationstoalloninvitationlistwithRSVPdate.�Theinvitationcanbeassimpleorascomplexasthefocuspersondesires.Somecircleshaveincludedthereasonforthemeeting,inasimpleandtothepointfashion.
Decideonanagendaformeetingwithfacilitator.�Whatwillbediscussed?Dopeopleneedtounderstandacircleofsupportortolearnmoreabouttheindividual?Therearenorealrulesaboutagendas,butitshouldbediscussedaheadoftime.
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Hereisonesuggestedagendaforaninitialcirclemeeting:• Introduceallcirclemembers.Howlonghaseachpersonknownthefocuspersonandhowdid
theymeet?Otherquestionsthathelppeoplegettoknowoneanother.• Reviewtheindividual’slifeasitisnowtobuildapictureandaddtoexistinginformation.• Clarifyideasaboutthefuture.Reviewobstaclesandopportunities,discussthesedirections,
andselectapriority.• Recordobstaclesandopportunitiesastheyarise.• Makecommitmentsforaction.• Setthenextmeetingtimeandplace.
AccordingtoJudithSnow,listeningtothedreamsofthefocuspersonistheprimaryfunctionoftheCircleofSupport(PUSH,2001).Onthedayofthemeetingthefocusperson,facilitator,and“champion”willwanttoarriveearlytoensuretheroomissetupforthecircle,whichmeanschairsinacircleorsemi-circle.Thisensuresthatmembersofthecirclecanallseeeachotherduringthediscussion.Thisearlyarrivalwouldalsoprovidetimeforpreparationforthemeetingbyreviewinganyquestionsthatwillbeaskedofthefocuspersonandtobesurethatpersonhashadtimetothinkoforgeneratetheanswers.(Thiswouldbetrueespeciallyifthepersonisnon-verbalorusesaugmentativecommunicationandwouldneedtimetoprepareanswers).Thefacilitatorswouldopenthemeetingandfollowtheagendathathasbeencreatedinatimelymanner.Mostcirclemeetingsarenolongerthan2–3hours.Atthecloseofthemeeting,membersmayleavewithassignmentsthatwouldsupportthecircle’seffortstosupportthefocusperson.Examplesofwhatcirclemembersmayvolunteertodoare:helpingsomeonemoveintotheirownhome,orhelpingthemtodevelopmorerelationshipsbymeetingpeopleinthecommunity,schoolorothercommunitysettings.Progresswouldbereportedonatthenextmeeting,whichisalwayssetattheendofeachCirclegathering.Thatwayeveryonewillknowwhentheywillbesharingwhattheylearnanditislesscumbersometoplan.OncetheCirclehasbeencreatedandthefirstmeetinghashappened,itwillbecomeeasiertoestablishtheagendasforfuturemeetingsandthenumberofmeetingsthatwillbeneeded.Somecirclesmayinitiallymeetfrequentlyandthentaperoff,othersonlymeetquarterlyandstillothersmeetonlyasneeded.Itisbesttomaintainaconsistentmeetingpatterntoensurequalityandkeeptheinterestandcommitmentofthecirclemembers.ACircleofSupportcancreatemanywonderfulrelationshipsandopportunitiesforindividualswithdisabilities.Realfriendshipscanstartandleadtoamorefulfillingandrichlife.ItisnevertooearlyornevertolatetocreateaCircleofSupport.http://www.iidc.indiana.edu/?pageId=411
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Anidealperson-centeredplanninggroup(circle)consistsofavarietyofpeopleandroles:
• Familymembers–providesahistoricalperspective,strongalliancewiththefocuspersonHomemaker–istheguardianofhospitalityforthecircle�personalassistants–areresponsibleforday-to-dayresponsivenesstotheperson�
• Warrior–focusesonimmediateandlong-rangeactionstohelpimplementtheplan�• Teacher–providesinformationandskillstothecircletohelpimplementtheplan�• Communitybuilder–mayhavemanyconnections,invitesandbringsothersintothe
circleandtheperson’slife,bothtostrengthenthecircleandhelpinimplementingtheplan
• Administrativeally–canseeandadvocateforadministrativechangesthatmightbeneededbothforthisfocuspersonandforlong-termchange�
• Mentor–canprovideinformation,guidanceandinsightthatwillhelpinlong-termchangeBenefactor–mayassistinprovidingwhat’sneededforlong-termchange�
• Spiritualadvisor–renewsthefaithofthepersonandthegroupovertime�• Facilitator–providesfocus,keepstheprocessgoing,keepsthegroupfocusedonand
clearaboutthevisionandactiontoimplementit
IdealCircleofSupport
CommonDream
CommunityBuilder/sHome-maker
TeacherWarrior
Administrator
Mentor
CheeringTeam,Family,Friends
PersonalAssistants
SpiritualAdvisor
Facilitator
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ParticipationThroughSupportCircles–JudithSnowTheverynatureofourculturallygivenperceptionofdisabilityandourresponsetoitseemstoobscureourperceptionofthepeoplebehindthelabels.Whatcanaconcernedpersondo?Becomingacirclebuildermayprovideopportunitiestoactuallymakeadifferenceinthelivesofsomepeople.Supportcirclesbreakthroughthedisabilityfocusinseveralways.Mostsignificantly,circlesarepowerfulbecausetheyexisttohonor,supportandmakeavailableaperson’scapacitiesandinterests,nothisorherdeficits.Supportcirclesareformedtobevehiclesforpeopletodiscoverandtotalkaboutwaysinwhichapersoncouldbecontributiontothewidercommunitythrough,interestsandtalents.Theyworktocommunicatetoawiderworldwhatcapacitythefocuspersonhastoenrichothers.Theydiscoverorcreateplaces,supportsandcontactsthatwillmakethisperson’sparticipationgrowanddevelop.Secondly,supportcirclesarepowerfulbecausetheirfocusisonrelationshipsandnotindividuals.Circlesfunctionprimarilybybringingthefocuspersonintoaricher,morediversenetworkoflisteningpeople.Theperson’snatureandabilityisunfoldedbythelisteningpeople.Theperson’snatureandabilityisunfoldedbytheinteractionsfosteredbythenetwork.Disabilitylosesitspowertofocuspeople’stimeandenergy.Disabilityisdisempowered.Asupportcirclebelongstotheworldofparticipation.Justtheinitialestablishmentofacircleisalreadyastepforwardtohavingsomeoneparticipateinthecommunity.Thefocusisononepersonyetallthemembersofthecircletypicallywillexperiencetheirparticipationinthecircleasavehicleforexaminingandimprovingtheirowncontributionstosociety.Althoughasupportcircleisnotalwaysnecessary,ithasauniquepowerforrapidlychangingthelifeexperienceofanindividualwhoisfacinggreatbarrierstoinclusion.Acircleisacreationintheareaofrelationship,meaningandinteraction.Peopleexperiencebeingpartofacircleas‘natural’andthey‘know’howtoofferbothformalandinformalsupporttoeachother.Circlesalsoempowercirclemembersandbuildersbecausetheyareunpredictable.Energizedbymultiple,complexrelationshipstheyoftenbecomemagnetsofsynergy,takingadvantageofopportunitiesthatcannotbepredictedorbureaucraticallymanagedintoexistence.Thislivingessenceofcirclesdrivesoutthedeadeningspiritofdisabilitythinking.Thelivesofpeoplewhohavebeen‘helped’areusuallyscarredbydisrespect,physicalandemotionalabuse,andbrokenrelationships.Atthebeginningandthroughout,itisimportanttorecognizethatsupportcircleshavepower–bothtosupportortohinder.Thepersonwhoisinterestedinstartingcirclescanstillbedrawnintodisabilityasafocus.Apersonaldisciplinewillhelprestrainthemfromdoingthisharminavulnerableperson’slife.Thispracticeisoutlinedbelow.
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Buildasafecoursebyfollowingthesesteps.– Giveupdisability,itslanguageanditsforms.Peopleareopportunitiesandpeoplehave
opportunitiestoenrichcommunity.Learntoseethese.– Practiceinclusiontolearninclusion– Dream.Invitepeopletolistentoyourdreams– Listentootherpeople’sdreams– Say“Yes”– Listen– Giveupdoingwhatdoesn’twork– Invitediversityintoyourownlife– Recruitacoach.Beacoach.Togethersupporteachothertolearncirclebuildingmore
deeply.Inthegatheringofthecircletheintentionisestablishedtolistentoaperson’sdreamandtocreatetheresourcesandopeningsrequiredtobringthisperson’sdreamintothecommunity.Thefocusremainsonthepersonwhoisvulnerabletobeingisolatedandtobeinganonparticipant.Thefollowingarethestepsrequiredtocreateasupportcircle:
1. Figureoutwhothecircleisfor2. Invite3. Ensurethatdreaming,storytellingandlisteninghappenateverycirclemeeting4. Keepthecirclemeeting5. Makesurethatthefocuspersonsays‘yes’tosomethingthatthecircleoffers
Itcanoftenbealittlemind-bendingfiguringoutwhothecircleisfor.Inthesituationwherethefocuspersonisanadultwhospeaksforthemselves;thescenarioisfairlystraightforward.Suchasituationisrare.Moretypicallyonepersonisthenamedfocusbuttherealfocusisonaparentoranadvocatewhotypicallyspeaksforthisperson.Thereisnothingwrongwithaparentoranadvocatebeingthefocus.Infactwhenthecircleinvolveschildrenitisessentialthatthecirclebeformedaroundtheparent(s).Theissueissimplythatwhenthefocusisconfusedtheprocessgetsunclearandactionsstall.Thereforeitisessentialthatthisissuebesortedout.Occasionallythefocusofthecirclewillshiftforashortperiodoftime.Thisisagoodthingunlessforsomereasonitisdifficulttoreturnthefocustotheperson’thecirclestartedfor.Insuchasituationconsiderstartingtwocirclesthatareinterconnectedbyhavingsomejointmembership.Invitingisacriticalstage.Peopletypicallysaythattheydonotknowanyonetoinvite.Thisisabsolutelynottrue,yetinacertainsensetheexperienceisquitereal.Itisusualthattheperson’slifeisfullofpaidpeopleandothersfocusedontherapyandadvocacypluslotsofotherpeoplewhohavebeencarefullytrainedbysocietytoseethisindividualaslimitedandinneedoffixing.Thedynamicsofthedisabilityfocusmakeitalmostacertaintythatallthesepeoplehavebeeninteractinginwaysthatpusheachotheraway.Itdoesn’toccurtotheindividualinquestionthatsomeoftheseverysamepeopleareabletoandinfactwouldlovetohaveanopportunitytofosterparticipationandinclusion.
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Keepthedreaming,storytellingandlisteningaliveisnotdifficult.Yetsomeonemustalwayswatchthatdreamsdon’tdropofftheagenda.Wehaveallbeencarefullytrainedtobecomebusyplannersandbehaviorpolice.Listenfordreaming,storiesandlisteningandkeepthecirclegoingneedsintentionintheinitialstages.Itusuallytakestimeforpeopletocatchtherhythmofdreaming,storytellingandlistening.Infactthepersonisincludedassoonasthecirclebeginstomeetsinceitisthejourneyofinteractionsandmeaningandthelisteningtodreamsthatcountsmuchmorethantheoutwardsuccesses.Intime,asthecircleexperiencestheinventionofitsownstoryandassuccessesemergefromunexpecteddirectionstheintentionofgatheringbecomeslesscritical.Thepointisthatthesupportcircleisthevehicleoflisteningtodreams.Thelisteningmustcontinueuntilthereareenoughotherpossibilitiesoflisteningintheindividual’srelationshipnetwork.Eventhen,lifeisveryfragile,andthecirclemayneedtobecalledtogetheriftheghostof‘disability’raisesitsheadagain.Insummary,circlebuildingisaprocessliberatingaperson’sparticipationandinclusionincommunity.Likeallsimplethingsinlifethereisanunderlyingintegritywhichmustbehonoredifsupportcirclesaretobeeffective.Thisintegrityrequiresacommitmenttogiveupdisabilityandit’sfocusonfixingpeople.Buildingrelationships,buildinginclusionandbuildingcommunitytaketimeandcommitment.Theyareaslowprocessthatoftentakesyearstoreachfullfruition.Yet,paradoxically,inclusionsandrelationshiparetheroadtotrulysupportingvulnerablepeople.Nothingelseworks.O’Brien,J.&LyleO’Brien,C.(2002,3rdPrinting).AlittlebookaboutPersonCentredPlanningInclusionPress(page83-87)Microboards:http://microboard.org.au/our-work
AMicroboard™isasmall(micro)groupofcommittedfamilyandfriends(generallyaminimumof5people)whojointogetherwiththepersontocreateanon-profitsociety(board).Together,theyhelptheindividual:
• Planhis/herlife;• Brainstormideas;• Advocateforwhattheyneed;• Monitorservicesandensuretheyaresafe;• Connecttohis/herwidercommunity;and• Dofunthingstogether.
InthefutureinAustraliaMicroboardsmayalsoplayaroleinmanagingfundinganddeliveringtheservicesthattheindividualneeds.Togetheryoucancreateservicesthatarecreative,flexibleandreflecttheneedsoftheindividual.
WewillnowstartworkingthroughtheJederNDISpre-planningworkbooktemplateandbeingpreparedtomeetyourNDISplanner.Wewillstartwithlookingatwhatmakesupagooddayandabaddayforthepersonwhoseplanitis.Usingwhatcomesupfromthegoodday/baddaylisttodescribethewaylifeisrightnow,howhe/shewantsittoliveinthefuture,thegoalstowardsitandwhatsupportisneededtoachievethefuturegoals.
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GoodDays/BadDays:Bylookingatwhatmakesupagoodday,whatmakesupabaddayforyou/thepersonandwhatmakesupthebestday,wecanstarttoidentifywhatisimportanttoyou/theperson,howtobestsupportyou/thepersonandwhatthegoalsarethatweneedtofocuson.GothroughtheLifeAreastothinkaboutonthenextpageplusritualsandroutines.Thinkaboutthegoodday/badday/bestdaythingsfromdifferentperspectives,firstlythepersonthenthefamiliesandappropriateotherse.g.otherfamilymembers,paidsupport,friends.
GoodDay BadDay BestDay
From
thepe
rson
’spe
rspe
ctive
Goingout–movies,meals,theatre,shows,festivals,gym,swimmingBeingatfamilycelebrations,havingapartywithfamilyandfriendsLivingnearmumanddadandhavingaflatmatethatIlikeCookinglotsofnewrecipesandgettinghelptokeepmyflatcleanGoingshoppingwhenIlike
Nothavinganythingtodo,especiallysomeeveningsandweekendsDoinghouseworkbymyselfNotseeingMumeverydayNothavingajobNothavingenoughmoneytobuyeverythingIwant/needespeciallydataandphonecreditGettingconfusedwithtimeandmoneyNotbeingabletoreadwellNothavingapartner/relationship
HavingsomethingfuntodoHavingpositiverelationshipswithpeoplethatsheliveswith,everyoneisgoingwellinlifeandgettingonwell.Tryingsomethingnew,whetheritisanewrecipeornewactivityormeetingsomeonenewBeinginanintimaterelationshipHavingenoughmoneytobuywhatIwantHavingheapsofphonecreditanddataSeeingpeoplewhenoutinthecommunitythatIknowandlikeNotgettinghassledabouthousework
From
thefamiliesperspectiv
e
HavingaplaceofherownGettingthesupportsheneedsMummanagingthesupportswithJennyBeingclosetoherfamilyBeingavaluedmemberinthecommunity,beingknowne.g.movies,swimming(winningcomps),shopsChoosingherownactivitiesandsupportersHavingamobilephone&beingabletocallMumeveryday
Nothavingenoughsupport,eveningsandweekends–needmorefundingDoinghouseworkwithoutsupportHavingajob&havingenoughmoneyHavingtocallMumeveryday(uptoadozenormoretimes)HavingfriendstodothingswithandmakinggoodchoicesaboutfriendsGettingembarrassedinpublic(aboutmakingmistakeswithmoneyandreading)
Positive,supportiverelationshipswithfamilyandfriendsHavinganintimaterelationshipHavingajobanddoingsomethingpurposefulandofvaluetoothersHavingflexibilityinherdayKeepingherunitcleaninsideandoutManagingherbudgetandhavingenoughphonecreditanddataHavingenoughsupporttobeindependentindailytasksandinthecommunity
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LifeAreastothinkabout:Whenthinkingabouttheselifeareasanddescribingthemintheplanmakesureyouaddthedetailsofwhat,whowith,howlongorhowoften,when,whereandanythingelsethatwillhelpmaketheinformationcleartoothersthatreadit.DailyLivingTobeindependentanddoingordinaryday-to-daythings
• Doingmorethingsforyourself/themselves• Learningnewlifeskillsandbecomingmoreindependent• Helpwithpersonalcare,gettingreadyorgoingtobed• Gettingtowhereyouneedtogointheday,travel/transportand/orlearninghowto
dothismoreindependently• Gettingouttoappointmentsandordoingshopping,payingbillsetc.• Equipmentorassistancetoengageindailyliving
SocialandCommunityParticipationAboutdoingthingsinyourcommunity
• Spendingmoretimewithotherpeopleinyourcommunity• Makingmorefriendsorspendingmoretimewithfamily• Tryingnewactivities,likejoiningacluborgroup• Sportactivities,hobbiesand/orleisureactivitiesyouenjoy• Beingmoreabletoattendeventsorspecialoccasionsinyourcommunity
RelationshipsAroundbuildingrelationshipswithfamilyandfriends
• Areyou(oryourson/daughter)happywiththerelationshipsinyour(their)life?• Areyou(oryourson/daughter)havingdifficultyinsocialsituationsorwithgettingalong
withyour(their)friends,familyorotherpeopleinyour(their)life?• Whatwouldyou(oryourson/daughter)likeyourrelationshipstolooklike?• Learnsocialskillsandwaystobuildnaturalsupports
HomeTobeindependentathome
• Doesyourcurrenthomesuityour(oryourson/daughter’s)needs?• Doyouneedtochangewhereyou(oryourson/daughter)live?• Doyouneedsomehelptomakesureyou(oryourson/daughter)staylivingwhereyou
are?• Arethereanymodificationsthatwouldhelpmaintainaqualityoflife?• Supportaroundthehometokeepitclean,insideandout?
LearningLearningsomethingneworimprovingskills• Likeanewskillorqualification?• Areyou(oryourson/daughter)startingormovingtoanewschoolorotherformof
education?
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• Whatdoyou(oryourson/daughter)wanttoachieve?• Arethereanytrainingprogramsorconferencesthatwillbenefit?
ChoiceandControlLearningsomethingneworimprovingskillstomakedecisions• Areyouhappywiththecontrolthatyou(oryourson/daughter)haveoverthechoicesyou
(they)makeindailylife?• Doyou(oryourson/daughter)needhelptomakechoicesaboutwhosupportsyouand
when?• Helpwithlearninghowtomakewiserchoices• Learninghoworteachingothershowyou(oryourson/daughter)communicatesyour
(their)choices• Supporttoimplementyour(yourson/daughter’s)plan
HealthyandWellbeingImprovingormaintaininghealthandwellbeing:• Doyou(oryourson/daughter)wanttogethealthier,changeyourdietordomore
physicalactivity,liketakingupasport?• Whatisityou(oryourson/daughter)wanttochangeorachieve?• Arethereanytherapists,specialistsorprofessionalsthatcouldhelpinbeinghealthyand
well?WorkandEducationFinding,gettingandkeepingajob(paidorvolunteer)orstudying:
• Doyou(oryourson/daughter)wanttogetajob,volunteerorstudy?• Doyouwanttoincreaseyourworkorvolunteerhours?• Doesanythingneedtohappenbeforeyou(oryourson/daughter)arejobready?• Doyou(oryourson/daughter)needanythingtokeepyoubeingabletoworkorschool,
college?• Doyou(oryourson/daughter)needanythingtohelpyoutogettowork,volunteerwork
orplaceofstudy?ManagingthePlanHowyou(yourson/daughter)wanttheplantobemanaged
• Selfmanagedofwholeplantohavefullcontrolandchoice• Engageaplanmanagertoprocessinvoicesandmanageexpenses• Coordinatorofsupportstohelporganisethesupportsandemploypeople• Planmanagertosupportimplementationoftheplan• NDISorserviceprovidermanaged
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RitualsandRoutinestoThinkAbout:
Weallhavesomekindofregularritualsand/orroutinesinourlives.Theyhelpustomakesenseofourday/weekandhavecontroloverhowandwhenwedothings.Somepeople’sroutinesareexactlythesameeveryday/weeke.g.thewaywegetupinthemorningandgetreadyfortheday,whileforotherstheyaredifferentinthedetailofwhenthingshappen,butusuallythehowithappensisthesame.Forexample;thinkaboutthewayyoubrushyourteeth,everythingfromthetypeoftoothbrushyouprefer,toothpaste,temperatureofthewater,whichpartsoftheteethgetbrushedfirstandlast,wewillalldothisactivityinourownindividualway,tryanddoitdifferentlytomorrowmorningandseehowitfeels.Forpeoplethatrequiresupport,keepingroutinesthesameprovidespredictabilityandifthingshappeningdifferentlyallthetime,cancauseconfusionandupset.Thinkthroughwhatritualsandroutinesareimportanttotheperson:
Daily:• Gettingup&gettingready• Goingtobed• Arrivingatwork,school,ordaytime
activity• Arrivinghome• Whensleeping
WeekendsWeeklyMonthly
CelebratingwhensomethinggoodhappensComfortyourselfwhenthingsaren’tgoingsowellBirthdaysHolidays:
• Food• People• Places
Culture&Religion
Activity:LookingovertheLifeAreasandRituals&Routinesandmakealistofallthethingsthatmakeupagooddayandabaddayfromthedifferentperspectives.
GoodDay BadDay BestDay
From
thepe
rson
’spe
rspe
ctive
©JederInstitute–2016 33
From
thefamiliesperspectiv
e
From
otherpeo
ple’sp
erspectiv
e
Activity:Tellingthestory:Putacirclearoundthepointsthataregoalsforthefutureandusingallthepointsthatreflectthecurrentlifesituationaddinformationtothebelow.Usingwhatyouhavelearnedaboutwhatmakesupagoodday,abaddayandabestdayfromeveryone’sperspectives.CompletetheAboutMesectionoftheNDISpre-planningworkbook(handout)describing:
• Whereyou/thepersonlivesandwhoyou/theylivewith• Peopleinyour/theperson’slifewhosupportsyou/theperson• Your/theperson’sdailylife
Makesureallpointsfromthegoodday/badday/bestdaylistsarecoveredwithaddedexplanations.Thisisabouttellingthestory,howlifeisrightnow,howyouwouldlikeittobe,thegoodthings,thechallengesandwhatchangesyouwouldliketomake.
©JederInstitute–2016 34
GoalSettingfortheNDIS:Goalsettinghelpsustotakeourdreamsandturnthemintoreality.Identifyingthegoals(steps)neededtoachieveadreamandmovingthroughthesestepshelpsustokeepmotivatedandcontinueonthejourneyofachievingourdreams.Goalsettingcanhelpyouorganiseyourtimeandyourresources.Bysettinggoalsyoucanmeasureyourprogressandcelebrateyourachievements.
Goal:Describetheactualgoal–thiscancomestraightfromthethingsyouhavepreviouslydocumented(in5valuedexperiences)oritcanbeapartofalargerdreame.g.adreamcanhaveanumberofgoals.DuringthisplanIwant:–broadlydescribewhatyouwanttoachieveorworkoninthenext12monthswhileworkingtowardsthisgoal.Goal:Describetheactualgoal:ToimprovemyabilitytocommunicatewithotherssoIcanspeaktomorepeopleandmaintainrelationshipswithmyfriends,family,colleaguesandcommunitymembersDuringthisplanIwant:TomaintainandincreasemycommunicationskillsbyusingAUSLAN,Proloquo2goIncreasemywritingandtextingskillssothatIcanmaintaincontactwithmyfriendsandfamilyMysupportstaff,family,friendsandcolleaguestohavetraininginAUSLAN,Proloquo2goandthewayIcommunicateThatalltheplacesIgotoe.g.footy,cafes,thelocalclub,thegymunderstandsthewayIcommunicateandcancommunicatewithme
Activity:Usingwhatyouhavedocumented(circled)in–Goodday/Badday/BestDayandthe5ValuedExperiences(future)startthinkingaboutthegoals.
Goal:Describetheactualgoal:
DuringthisplanIwant:
©JederInstitute–2016 35
Goal:Describetheactualgoal:
DuringthisplanIwant:
Goal:Describetheactualgoal:
DuringthisplanIwant:
Goal:Describetheactualgoal:
DuringthisplanIwant:
©JederInstitute–2016 21
WeeklyActivityTimetableWeallusesometypeoftimetabletoorganiseourlivese.g.calendaronthekitchenwall,ourdiaries,onlinediariessharedwithothers,etc.Theweeklyactivitytimetablewillhelpustoorganisetimestoworkonourgoals,dothingsinlifethatkeepushealthy,funthingswewanttodowithourfamilyandfriendsandmore.Settingoutthetimesthingshappenhelpsustoorganisethingsforthepeoplewesupportinanumberofways:
• Tofigureoutabudgetforpaidsupport• Scheduleactivitiesforfunandforlearning• Scheduleactivitiesforthingsthatneedtobedonetohelpthepersonstayhealthy• Sharingwithotherswhatishappeningintheweek• Organisingsupportfortimesit’sneeded• Knowingthetimesthatpersonwantstoandcanbealone• Knowingthetimesthatneedpaidsupportandthetimesthataresupportedbyfamilyandfriends
Activity:Completethetimetablebelowwithwhathappensonausualweek;addthedetailsofthetimese.g.Mondaymorning,7.30am–9am,gettingupandgettingready.Shadethedifferentsectionstoindicatepaidsupportandunpaidsupport.Iftherearesomethingsthathappensregularlybutnoteveryweek,makeanoteaboutthate.g.Fridayevening,8.30pm–11pm,onceamonthvisitsCousinsfordinnerandgames.Anythingthathappenslessthanonceamonth,e.g.onceayearholiday,addnotesontotheJederNDISpre-planningtemplateintheSometimesIdo….Usethetemplateonthenextpagetodocumenthowlifeiscurrently.UsthetemplateontheJederNDISpre-planningtemplatetodocumenthowitwillbeinthefuture.
©JederInstitute–2016 22
Monday Tuesday Wednesday Thursday Friday Saturday Sunday
EarlyMorning
Morning
Midday
EarlyAfternoon
LateAfternoon
Evening
Overnight
©JederInstitute–2016 23
Example Timetable Teenager’s activities calendar TIME Monday Tuesday Wednesday Thurs Friday Saturday Sunday
Earlymorning
7.00am-8am
Supported
PersonalCare
>SchoolTransport
7.00am-8am
Supported
PersonalCare
>SchoolTransport
7.00am-8am
Supported
PersonalCare
>SchoolTransport
7.00am-8am
Supported
PersonalCare
>SchoolTransport
7.00am-8am
Supported
PersonalCare
>SchoolTransport
8am-9am
Supported
PersonalCare
>pickupforSport
8am-9amPersonal
supportcare>
readyforChurch
Morning
8:30am-12:00pm
Highschool
Socialactivities
1hour
8:30am-12:00pm
Highschool
SPEECH
PATHOLOGYSocialactivities
1hour
8:30am-12:00pm
Highschool
Socialactivities
1hour
8:30am-12:00pm
Highschool
Socialactivities
1hour
8:30am-12:00pm
Highschool
PSYCHOLOGYSocialactivities
1hour
10:00am-12pm
FitnessClub.
10am-12pm
Churchwithmy
family
Earlyafternoon
12:00-3:15pm
Highschool12:00-3:15pm
Highschool
12:00-3:15pm
Highschool
12:00-3:15pm
Highschool
12:00-3:15pm
Highschool
Lunch,laundry,
vacuuming,
mowingor
brushingdogs
12:30–1:30pm
LunchwithChurch
friends
LateAfternoon
4:30pm-6:30pm
supportedCricket
Trainingwithmy
friends
3:30pm-6:00pm
BusTraveltraining
fromschoolto
FitnessClub
4:30pm-6:30pm
TenPinBowling
withmyfriends
thenborrowbooks
Library.
3:30pm-6:00pm
FitnessClub
&
Cookasimplemeal
forfamily
6:30pm
Mealoutwithmy
friends
3:00pm–4:30pm
Technology
SupportforVisual
Scheduling&social
storybookmaking
ondevices.
Athomeorvisiting
Familyfriends,
swimatCluborgo
tandembike
riding.
Evening
6:30pm-8:00pm
Dinner,Shower
GuidedReading
TV,laptop,iPad
6:30pm-8:00pm
Dinner,Shower
GuidedReading
TV,laptop,iPad
6:30pm-8:00pm
Dinner,Shower
GuidedReading
TV,laptop,iPad
6:30pm-8:00pm
Dinner,Shower
GuidedReading
TV,laptop,iPad
9:30pm
YouthClub
Fellowship
4:30pm-9:30pm
Occasionallive
SportorPlay,or
Movieordinner
6:30pm-8:00pm
Dinner,Shower
TV,laptop,iPad
OvernightAthomewith
family
Athomewith
family
Athomewith
family
Athomewith
family
Occasional
sleepoverat
friendsplace.
Athomewith
family
Athomewith
family
OnceamonthPersonwillsleep-overatfriends’homestohavetimeawayfromfamilyanddeepenhissocialconnectionswithotherfamilies.
DuringSchoolholidaysPersonwillgoonYouthWorkscampsandsupportedDayExcursionswithfriends(beach,liveevents,bushwalks).
Paid Support Unpaid support Family Support
©JederInstitute–2016 24
TheBudgetUsetheweeklyactivitytimetabletofigureoutthehoursofsupportrequiredforyourselforthepersonwithadisability.Thisbudgetisayearlybudget,sostartwithfiguringoutthehoursperweekthenmultiplybythenumberofweeksintheyearthesupportisrequired.Whenconsideringthebudgetlookat:TheNDISPricinglisthttp://www.ndis.gov.au/providers/pricing-and-paymentSocial&CommunityServicesindustrypayrates-http://www.fairwork.gov.au/pay/minimum-wages/social-and-community-services-industry-pay-rates
Staffcosts:• PersonalAssistant• LivingSkillsAssistant• Mentor• CommunityLinker
TravelExpensesOccasionalstaffcosts:
•
Weekday7am-8pm$?+9.5%super=$?p/hxhrs.p/yWeekday8pm-12pm$?+9.5%super=$?p/hxhrs.p/ySaturdayallday$?+9.5%super=$?p/hxhrs.p/ySundayallday$?+9.5%super=$?p/hxhrs.p/yMileage:78cperkmwithanaverageof?kmperweekEveningmonthly–1pm–10pm$?+9.5%super=$?p/hxhrs.p/y
$$$$$$
Activitycostexpenses $?perweekx?weeksperyear $Therapists $?perweekx?weeksperyear $Oneoffpurchasese.g.continence,modifications,conferences
$
Planmanagement• Financialintermediarysetupcosts• Co-ordinatorofsupports• Monthlyprocessing• Serviceactivities• Training
$?Peryear$?Perhourx?hoursperyear$?Permonthx12months$?Perhourx?hoursperyear$?Perhourx?hoursperyear
$$$$
Insurancese.g.publicliability&workerscomp. $Sub-Total $Total-Annual $
©JederInstitute–2016 21
Youngpersonleavingschool,livingathome
Staffcosts:• IndependentLivingskills
• CommunityAccess
TravelTraining
ExercisePhysiology
PersonalTraining
Findingajob
0011Weekday-$41.18x13.5hoursperweekwhileatschoolx21.5weeks
Weekday-$41.18x10.5hoursperweekpostschoolx25.8weeks
Weekend(Sat)-$57.13x5hoursperweekx48weeks
Weekend–(Sun)$73.11x4hourspermonthx48weeks
Weekday-$41.18x20hoursperweekwhileatschoolx21.5weeks
Weekday-$41.18x19.5hoursperweekpostschoolx25.8weeks
Weekend–(Satnight)$57.13x7hourspermonthx12months
Weekday-$41.18x11hoursperweekx48weeks
Weekend-$140.06–2hoursperweeksx4weeks
Weekend-$52.48–2hoursperweekx48weeks
0010Weekday-$18.16x18hoursperweekx25.8weeks
$11,952.50
$11,155.66
$13,711.20
$14,037.12
$17,707.40
$20,717.65
$4,798.92
$21,743.04
$1,120.48
$5,038.08
$8,433.50
Activitycostexpenses $35perweekx48weeksperyear $1,680.00
Therapists 0004-$172.13
SpeechTherapist2hourspermonthx12months
Psychologist2hourspermonthx12months
Nutritionist2hourspermonthx12months
$4,131.12
$4,131.12
$4,131.12
Oneoffpurchases Orthotics $800.00
Planmanagement• Financialintermediarysetupcosts• Monthlyprocessing• Co-ordinationofsupports• TransitionPlanningsupport
$209.92Peryear
$31.49Permonthx12months
$90.46Perhourx2hoursperweekx48weeks
$55.50perhourx4hourspermonthx12months
$209.92
$377.88
$8,684.16
$2,664.00
Total-Annual $157,224.87
©JederInstitute–2016 22
IACadviceonreasonableandnecessarysupportacrossthelifespan:Anordinarylifeforpeoplewithdisability:http://www.ndis.gov.au/about-us/governance/IAC/iac-reasonable-necessary-lifespan#exec
ExecutivesummaryTheNationalDisabilityInsuranceScheme(NDIS;theScheme)hasbeenestablishedtoprovide
‘reasonableandnecessarysupports’toindividualswithasevereandpermanentdisability.
‘Reasonableandnecessarysupport’referstothenatureandquantumofsupporttoenablea
participanttopursuegoalsandaspirations.ItmustgiveeffecttoAustralia’sobligationsunderthe
UnitedNationsConventionontheRightsofPersonswithaDisability(UNCRPD)bysupporting
peoplewithdisabilitytoliveindependentlyandbeincludedinthecommunity,todeveloptheir
capacitiesandtoenablethemtoexercisechoiceandcontrol.Reasonableandnecessarysupport
mustalsobevalueformoney,effectiveandbeneficialfortheparticipant,whiletakingintoaccount
whatisreasonabletoexpectfamilies,carers,informalnetworksandthecommunitytoprovide
andbemostappropriatelyfundedbytheNDISratherthanthroughothergovernmentsystemsof
servicedelivery.
Thepapertakesan‘ordinarylife’in21stcenturymulticulturalAustraliaasitsstartingpoint
becausepeoplewithdisabilitysharetheordinaryaspirationsoftheirpeerswithoutdisabilitybut
needreasonableandnecessaryNDISsupporttoachievethem.Theordinarylifeprovidescluesas
tohowtheseaspirationswouldtypicallybemetprovidingausefulbenchmarktoguide
understandingofreasonableandnecessarysupport.
Itishopedthatthisdocumentisused:
• bytheNDIAinitsongoingdevelopmentoftheScheme• byparticipantsinconceptualisingtheirgoalsandaspirations• aspartofconversationswithmainstreamserviceprovidersaboutassistingpeoplewithdisabilitytoachieveanordinarylife,and
• asaneducationaltoolforthebroaderAustraliancommunityontheroleandpurposeoftheNDIS.
Inreadingthispaper,thereadershouldbeawarethatcoretotheNDISaretheinsurance
principlesandschemesustainability.Thismeansthatinprovidingreasonableandnecessary
supports,theNationalDisabilityInsuranceAgency(NDIA;theAgency)takesalong-term
investmentapproach,notingthatearlyinterventionandothersupportcanincreasefunctioning,
independence,andeconomicandcommunityparticipation.TheNDISisonlyonepartofabroader
disabilitysystemthatrequiressystemicchangestoensuretheNDIScanflourish.Theprovisionof
‘reasonableandnecessarysupport’willbyitselftransformthelivesofpeoplewithdisability.It
requirescommunityinvolvement,theremovalofstructuralbarrierstoeconomicandcommunity
participation,theprovisionofservicesbymainstreamprovidersandthedevelopmentofadeep
androbustmarket,whichwillonlydevelopwithtime.
©JederInstitute–2016 23
Thinkingaboutsupports:
Thesearethesupportsthathelpme/thepersontoworktowardsmygoals,you/theymight
havealreadylistedsomeoftheminthe‘AboutMe’sectionand/orgoalssection.Nowyou/they
canbringthemalltogetherandseeifthereisanymissing.
Familyandfriends
ThisiswhattheNDIScall‘informal’supports.Tellusabouttheinformalsupportsyou/the
personhave/hasthatyouthinkcouldhelptoachievethegoalsnowandintothefuturee.g.
parents,friends,siblings,grandparents,neighbours,extendedfamily.
Whowillprovidethesupport? Now/future
Typeofsupport
Example:Mum Now Organisesallmyactivities/drivesme
toschool
Addmorerowsifrequired.
ServicesandCommunityGroups
Thesesupportsmightincludethingslikehealthormentalhealthcareservices,schoolsor
educationservices,communitygroups,sporting,recreationorhobbyclubsorothergovernment
services.ThisiswhattheNDIScall‘mainstreamandcommunity’supports.
Tellusaboutthecommunityandmainstreamsupportsyouhavenowandtheonesthatyouthink
couldhelptoachievethegoalsandthingsyouwantduringthisplantoworktowardsthegoals.
Whowillprovidethesupport? Now/future
Typeofsupport
Example:YouthGroup,RSLClub Now Socialgroup,Disco,
Addmorerowsifrequired.
©JederInstitute–2016 24
AnythingElse
Anythingelseyouwouldlikeustoknowaboutyourneedsincludingtheareasyouneedsupport
orhavedifficultieswith,duetoyourdevelopmentaldelayordisability.
TellusaboutthePaidsupportsyouhavenowtohelpwithyourneedsandtheonesthatyouthink
couldhelptoachievethegoalsandthingsyouwanttododuringthisplantoworktowardsthe
goals.E.g.Therapy,MobilityAssistance,HomeandVehicleModifications,PersonalCare,
Equipment,CommunicationAssistance,Helpingwithdomestictasks,Interactingwithothers,
BuildingRelationships,etc.
Whowillprovidethesupport? Now/future
Typeofsupport
Example:OccupationalTherapy Now Tohelpbuildmusclestrengthinlegsto
walkanddance
SuccessionplanningWhatneedstobedonenext?WhathappenswhenIamnotaround?Thesearequestionsthat
everyoneasksfromtimetotime.Thesequestionsalsocanleadtothebeginningsofsuccession
plans.However,thinkingaboutwhatneedstobedonewhentheprimarycarerisnolonger
aroundcanbechallengingtodo.Insomecases,peopleassumeafamilymemberwillstepinto
providesupportormanagementofsupports.Thisprocessneedstobere-visitedfromtimeto
timee.g.whenfamilymemberschangeoracquirenewpartners,orasfamilymembersthemselves
becomeillorhavetomoveinterstateoroverseas.Lifechanges–andweneedtothinkaboutthis
withinthesuccessionplanningprocesses.
Asafamilymemberofapersonrequiringextrasupport;oneimportantelementtoconsideris
yourwill.Youwillneedtofindasolicitorwhohasagoodappreciationforyoursituation&whois
alsomindfulofthewayyousupportthepersonwithdisabilitiestoliveifyouarenotableto
providecare&support,whetherthroughyourownill-healthordeath.Findingasolicitorwith
thislevelofexperiencecanmakeagreatdealofdifferenceinmakingsureyourswillcoverthe
requirementsofthepersonwithdisabilities,aswellasotherbeneficiariesyoumayhave.This
sortofsolicitormaynotbethesolicitoryouwouldusuallygotoe.g.whenbuyingorsellingyour
home,orforaverygeneralwill.
Anotherimportantpersonyouwillneedtoincludeinthesuccessionprocessisyouraccountant.
Thispersonshouldalsounderstandyourfinancialwishes,aswellasthoseofthepersonwith
©JederInstitute–2016 25
disabilities.Somepeoplecanbesupportedtoobtainadisabilitytrustwiththeguidanceofan
accountant–andperhapsalsothesolicitor.ContactinganagencysuchasPavetheWayin
Queensland,aswellaslocalcommunityserviceswouldbeagoodhelp.
Youmayalsohavetothinkaboutwhowillimplementyourinstructions.Thismayormaynotbe
peopleinyourimmediatefamily.Theyneedtoknowwheretofindyourwill,whatitcontains
(evenroughly)&wheretofindthepracticaldetailsassociatedwithsupportingthepersonwith
disabilitiesintheirday-to-daylife.
Thefollowingisanexampleofasuccessionplan&someofthecomponentsthathadtobethought
oftoensurethepersonwithdisabilitiescontinuestoenjoyagoodlife,regardlessofwhetherthe
primarycarerisaroundornot:
AnexampleofasuccessionplanthatIhaveinplacecoverswhathappensifIdiebeforemy
daughter.Ihavehadtothinkaboutthisalot,particularlywhenIrealisedthatmyassumption
relatedtomyadultchildrensupportingthestaffwasproventobewayofftrackafewyearsago.
Therewerevalidreasonsforthewaymyotherchildrenthink&believe–thatisOK.However,I
sawrealproblemsformydaughterwithdisabilitiesifIsimplyassumedpeoplewould‘dotheright
thing’byherifsomethinghappenstome.Toaddressthisgap,Italkedtosomepeoplewhoknow
mereallywell&alsoknowmydaughterreallywell.Theyagreedtobemyadministrators.This
basicallymeansthattheywouldstepin&makedecisionsaboutfunding&keepmydaughter’slife
goinginitsusualcalmway,regardlessofwhetherIwasthereornot.Theyagreedtotakeonthe
foundationrole,whichiswhatIhavebeendoingformanyyears–meaningthattheyareactively
addressingissuesinmydaughter’slifebuttheyarenotgoingtobe‘inherface’aboutit.Myother
childrencanmakehealthdecisionsforme,ifneeded,buttheydon’thavetoworryabouttheir
sister&whatsheneedsovertime.Doingthissortofback-upplangavemetimetothinkofallthe
safeguardsthatcouldbeneededifIwasn’taround.ThishasnowmeantIcangetonwithmylife,
knowingthatmydaughter’sneedswillbeaddressedthewaythatIwouldwant–andnothaveher
onlyoptionbeinganimmediatemoveoutofherhomeintoaresidentialfacility.Ithinkthatthe
timeattendingtothesafeguardshasbeentimewellspent.
SelfCareActivity(DaphneHewson,2011)
Physically Emotionally Mentally SpirituallyWhatcurrentlyenergisesme?
©JederInstitute–2016 26
Whatsapsmyenergy?
Whatwouldhelptoenergisememore?
Whatholdsmebackfromdoingthethingsthatwouldhelptoenergisememore?
Someexamplesthatyoumightenterintoeachcolumn:Physicalenergy:Eating;Drinking;Sleeping;Exercise;Breaks;RelaxationEmotionalenergy:Relationships;Intimacy;Empathy;ProcessingEmotions;Balance;Safety;Down-timeMentalenergy:Timemanagement;Creativity;Thinkingskills;Challenge;Mentalpreparation;ReflectionSpiritualenergy:Commitment;enthusiasm;Values;Adeeperpurpose;Prayer/meditation;Givingtoothers;Nature;StillnessResilience:Resilience-whataninterestingterm!Doweeventhinkaboutourlevelsofresiliencewhenexhaustingsituationsareoccurringonadailybasisoryoufeelyouliveinacontinualblenderofcrisis&mayhem?Orwhenlifeisontrack&thingsaregoingreallywellforourfamilymemberwithadisabilityaswellasforourfamilyingeneral?Resilienceisprobablysomethingwetakeforgrantedinmanyways,butissomethingthatisincrediblyimportantinpeople’slives.Resilienceincludesthoseresourceswecancalloninchallenging&stressfultimes,orwhenwearelearningnewskillsorneedtoremainpositive.Resiliencehasoftenbeendescribedastheabilityto‘bounceback’whenadversitystrikes,ortheabilitytoturnadversityintoanadvantageornewopportunity.Weactuallyneedresiliencetomanageeverydaypressuresaswellasthriveinapositive&sustainableway.
©JederInstitute–2016 27
Thefollowingaresomethoughtsaboutenhancingyourownpersonalresilience.Nodoubtthereismanyothers,buthereisastart:v Dothingsthatyouenjoy.Findthingsthathelpyoutobere-vitalised&tofeelgoodabout
yourself–andthendothemonaregularbasis.v Developyourself-awareness.Considertheroleofreflectionwhenyouarelearning,asthiswill
helpyoutogainsomenewperspectivesaboutthingsthatyoumaynothaveconsideredbefore,ortothinkofnewwayswhenyouthoughtyouknewalltherewastoknow.Lookbackthroughmemorable&challengingexperiences(positive&negative)&lookatwhatyouhavelearnedovertime.
v Getplentyofsleep.Soundsobvious,doesn’tit?Butwhenyouarestressed,itisveryeasytoneglectyouownneeds.Whenyouloseyourappetite,don’tgetoutinnatureorexerciseverymuch,ordon’tgetregularsleep,yourabilitytonavigatethroughcrisiscanbecompromised.Bytakingcareofyourownhealth&wellbeingneeds,youcanboostyourownresiliencelevels&becomemoreabletofacelife’schallenges.
v Embracechange.Beingflexible&adaptabletothechangesthatoccurthroughoutlifeisanessentialcomponentofbeingresilient.Sometimesgettingoutofyourcomfortzonethroughdoingthingsdifferently(eventravellingtothesameplaceviadifferentroadseverytime)canhelpyoutolookatdifferent&challengingsituationsasanopportunitytodosomethingsdifferently.
v Developyourownproblemsolvingabilities.Everyonehastheseabilities,butsometimesitismoreabouthowweperceiveproblems&situationsthatcanshowhowresilientweare–ornot.Thinkabouttakingastepback,considerhowyouapproachdifficultissues,whetheryouarelogicalinthewayyouconsideryourresponsesorwhetheryourjudgementiscontinuallycloudedbyemotionalresponsesorirrationalthinking.Perhapsthereareotherwaystolookatthesituation–ifyoudid,whatotherpossibilitiesmighttherebe?
v Findyourownsenseofpurposeinlife.Often,resilientpeoplefindthathavingsomestructure,meaning&commitmentintheirlifehelpsthemtoassesssituationswithinaframeworkthatincludesthe‘biggerpicture’.
v Becomeadedicated‘lifelonglearner’.Learningnewskills,gainingunderstandingindifferentways,allhelptobuildyourresiliencelevels&helpyoutoadaptthroughtimesofchange.Sometimesyouhavetofacethefactthattheoldwaysyoudothingsactuallydon’tworkthesamewaythattheyalwaysdid–sonowmightbeagoodideatostartlearning&practicingsomenewskills.
v Developastrongnetwork.Whetheryouareamanorawoman,havingsupportive&caringpeoplearoundyoucanreallyhelpwhenyouareincrisis.Thesepeoplemustbeindividualsyoucantrust&caneasilyconfidein.True,thecrisisortroublewon’tgoawayasifbymagic,butbysharingyourfeelings,hearingyourselftalkabouttheissue&gettingfeedbackcanhelpyoutofindpossiblesolutionstoyourissues.
v Buildpositivebeliefsinyourabilities.Remindyourselfofyourstrengths&accomplishments–theseallhelpyoutohaveagoodself-esteem.Ifyourself-esteemissound,youwillfindthatyourabilitytocopewithstress&subsequentlyrecoveringfromstressfuleventscanbeimportantcomponentsthatbuildyourresilience.
©JederInstitute–2016 28
v Beoptimistic.Yes,thiscanbedifficult,especiallywhenyouareinthemiddleofacrisisoradifficultchallenge,butmaintainingapositiveoutlookisanimportantaspectofresiliency.Onewaytodothisistomaintaina‘gratitudejournal’whereyourecordthethingsthatyouaregratefulforeveryday.Therealityisthatdifficulttimesaretransient&ebb&flowthroughourlives,butremainingpositive&gratefulabouttodayaswellasthepossibilityofabrighterfutureiswhathelpsourresilienceaswell.
v Establishgoals&takestepstosolveproblems.Everycrisisisdaunting&youcanfeeloverwhelmedaboutyourabilitytocope.Whenthesetimesoccur,resilientpeoplefindtheycanviewthesesituationsinarealisticway,thensetsomereasonablegoalstodealwiththeproblembeforetakingsmallstepstowardssolvingtheproblem.
References:Zolli,A.&Healy,A.2012.Resilience:Whythingsbounceback,HeadlineBusinessPlus,London,UK.What’snext:ShareanddiscusswiththegroupwhatyouhavelearnedwhiledevelopingtheJederNDISPre-
planningforyourselforfamilymember.
Discussanddecide:-
• Areyouinterestedinmeetingwithothersthathavecompletedthisworkshop?
• BasedonwhatyoulearnedwhatisonethingyoucandoonMonday?
ActionPlan Who ByWhen
©JederInstitute–2016 29
Ten Principles to Live by in Fiercely Complex Times - Tony Schwartz http://blogs.hbr.org/2011/07/ten-principles-for-living-in-f/ Here are ten that work for me: 1. Always challenge certainty, especially your own. When you think you're undeniably right, ask yourself "What might I be missing here?" If we could truly figure it all out, what else would there be left to do? 2. Excellence is an unrelenting struggle, but it's also the surest route to enduring satisfaction. Amy Chua, the over-the-top "Tiger Mother," was right that there's no shortcut to excellence. Getting there requires practicing deliberately, delaying gratification, and forever challenging your current comfort zone. 3. Emotions are contagious, so it pays to know what you're feeling. Think of the best boss you ever had. How did he or she make you feel? That's the way you want to make others feel. 4. When in doubt, ask yourself, "How would I behave here at my best?" We know instinctively what it means to do the right thing, even when we're inclined to do the opposite. If you find it impossible, in a challenging moment, to envision how you'd behave at your best, try imagining how someone you admire would respond. 5. If you do what you love, the money may or may not follow, but you'll love what you do. It's magical thinking to assume you'll be rewarded with riches for following your heart. What it will give you is a richer life. If material riches don't follow, and you decide they're important, there's always time for Plan B. 6. You need less than you think you do. All your life, you've been led to believe that more is better, and that whatever you have isn't enough. It's a prescription for disappointment. Instead ask yourself this: How much of what you already have truly adds value in your life? What could you do without? 7. Accept yourself exactly as you are but never stop trying to learn and grow. One without the other just doesn't cut it. The first, by itself leads to complacency, the second to self-flagellation. The paradoxical trick is to embrace these opposites, using self-acceptance as an antidote to fear and as a cushion in the face of setbacks. 8. Meaning isn't something you discover; it's something you create, one step at a time. Meaning is derived from finding a way to express your unique skills and passion in the service of something larger than yourself. Figuring out how best to contribute is a lifelong challenge, reborn every day. 9. You can't change what you don't notice and not noticing won't make it go away. Each of us has an infinite capacity for self-deception. To avoid pain, we rationalize, minimize, deny, and go numb. The antidote is the willingness to look at yourself with unsparing honesty, and to hold yourself accountable to the person you want to be. 10. When in doubt, take responsibility. It's called being a true adult.