nbs vylh volunteers copy (july 13.2010)
TRANSCRIPT
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Newborn Screening: Saving Babies of the Future
Aple Dowannie B. TadlasVYLH-Mindanao
Mindanao State University
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Saved
NOT Saved
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Newborn Screening is An essential public health program that prevents catastrophic health
consequences through early detection, diagnosis and treatment.
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What disorders are screened?
• Congenital Adrenal Hyperplasia CAH)• Congenital Hypothyroidism (CH)• Phenylketonuria (PKU)• Galactosemia (Gal)• Glucose-6-Phosphate Dehydrogenase Deficiency (G6PD def)
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Why are these disorders included in the NBS Panel
of Disorders?
• Local Prevalence• Reversible if treated on time• Treatment is available
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33,000 babies can be saved every year
*Assuming a cohort of 2.M newborns
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Alarm Signal
•Babies look normal at birth.
• Waiting for the onset of the signs and symptoms would lead to irreversible effects to the body meaning its too late.
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Disorder Screened
Effect if NOT SCREENED
Effect if SCREENED and
Treated
CH (Congenital Hypothyroidism)
Severe Growth and Mental Retardation
Normal
CAH (Congenital Adrenal Hyperplasia)
Death Alive and normal
GAL (Galactosemia)Death or Cataracts
Alive and normal
PKU (Phenylketonuria) Severe Mental Retardation
Normal
G6PD Deficiency Severe AnemiaKernicterus
Normal
Effects if Not screened
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• Newborn screening is ideally at least 24 hours from birth.
When is newborn screening done?
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Prick here
How is newborn screening done?
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Newborn Screening is Newborn Screening is available in the Philippinesavailable in the Philippines
•Hospitals
•Birthing/lying in centers
•Health Centers/Rural Health Center
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Newborn screening FeeP550 Giving up
1 bottle of coke Every week for 1 year
Giving up 1.5 sticksevery day for 1 year
Giving up 2 bottlesevery monthfor 9 months
Giving up 2 cells cards in 9 months
Missing 55 days ofdaily lotto bet
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METRO MANILAMETRO MANILACapitol Medical CenterCardinal Santos Medical CenterChildren’s Medical CenterChinese General HospitalDe Los Santos Medical CenterDr. Jesus Delgado Memorial HospitalDr. Victor R. Potenciano Medical CenterFEU-NRMFHospital of the Infant JesusJose Reyes Medical CenterLas Pinas Integrated District HospitalMakati Medical CenterManila Doctors HospitalManila Sanitarium and HospitalMary Chiles General HospitalMary Johnston Hospital, Inc.MCU-FDTMFMedical Center ManilaMetropolitan HospitalMPI-Medical Center MuntinlupaNational Children’s HospitalOlivares General HospitalOspital ng MaynilaOur Lady of Lourdes HospitalPerpetual Help Medical CenterPhilippine Children’s Medical CenterPhilippine General HospitalQuezon City General HospitalQuezon City Medical CenterQuirino Memorial Medical CenterRizal Medical CenterSan Juan Medical CenterSanto Tomas University HospitalSt. Luke’s Medical CenterSt. Martin de Porres HospitalThe Medical CityUERMMMCUnited Doctors Medical Center
Started in 18 privateand 6 govt hospitals in 1996
The group of doctors comprised the Newborn Screening Study Group
The pilot project was named the Philippine Newborn Screening Project, a multi-center trial.
Highlights of the Phil Program 1996 24 hosp
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Wao District HospitalWell-Family Midwife Clinic - PakongWell-Family Midwife Clinic - MacabantogWell-Family Midwife Clinic - SabpaWell-Family Midwife Clinic - TabaoWell-Family Midwife Clinic - MonibWell-Family Midwife Clinic - LastimosoWell-Family Midwife Clinic - WombWell-Family Midwife Clinic - AhalulWell-Family Midwife Clinic - AcoonCenter for Health Development - ARMMAmai Pakpak Medical CenterDr. Serapio B. Montañer Jr. Al-haj Memorial HospitalTamparan District HospitalBuluan District HospitalTamontaka Barangay Health Center D.O.S. MaguindanaoWell Family Midwife Clinic - Bulalo, MaguindanaoUnayan Municipal HospitalDr. Jose Maria Torres Memorial Foundation Hospital Inc.
NEWBORN SCREENING IN THE PHILIPPINES
2515 NSF as of December 31, 2009
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Advocacy Activities
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A Hospital Coordinator giving a lecture on newborn screening
Neonatologist Nurse
Nursery Team Community Health Workers
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Door to door Campaign
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PRESIDENT’S HOUR, PRESIDENT’S HOUR, SHOWN IN PHILIPPINE TV CHANNELS 4, 9 AND 13SHOWN IN PHILIPPINE TV CHANNELS 4, 9 AND 13PRESIDENT’S HOUR, PRESIDENT’S HOUR, SHOWN IN PHILIPPINE TV CHANNELS 4, 9 AND 13SHOWN IN PHILIPPINE TV CHANNELS 4, 9 AND 13
Getting Support of political Leaders
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Tools for Advocacy
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Website dedicated to Newborn Screening
www.nsrc-nih.org.ph
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BILLBOARDS in STRATEGIC SPOTS
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Celebrity endorser
In posters and billboards
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TV Commercial
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Enactment of the
Newborn Screening Act of 2004 (April 6, 2004)
Signing of the
Implementing Rules and Regulation of
RA 9288 (October 5, 2004)
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Newborn Screening LawRepublic Act 9288
• Integration in the health delivery system• Includes newborn screening the
licensure requirement of hospitals• Includes newborn screening as a benefit
of the national health insurance
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OCTOBER 2006, REUNION OF SAVED BABIESOCTOBER 2006, REUNION OF SAVED BABIES
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A simple drop of blood saves lives.
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What can we do?