national forum of people with learning disabilities minutes nov 15

8/20/2019 National Forum of People With Learning Disabilities Minutes Nov 15

1/12

- 1 -

National Forum of People with Learning Disabilities4 th and 5 th November, Burleigh Court, Loughborough

Attending:

Craig Hart (co chair) supported by CatherineO’Byrne Karen Flood (co chair) supported by PaulaCamborneKerry Martin (vice chair) supported by Hannah

Leach

Harry Longmoor (North East) supported byMartin GallagherMark Shackleton (North West) supported byJean Smith

Alison Owen (Yorkshire and Humber)supported by Hayley Wilcock

Rasphel Binning (East Midlands) supported byLaura ShahNeil Davies (West Midlands) supported bySarah OffleyCarol Lee MBE (Eastern) supported by AlexMorrisRichard Walker(London) supported byRudolph Nairn

Tina Walker (South East) supported by DebbieJewsburyTammy Peapell (South West) supported by

Amilie BakerChristian Raphael (complex needs) supportedby Matthew Clark and Vicki Raphael

Lucy Virgo, Angela Ellis, Marie Shrewsbury(Inclusion North)


2/12

- 2 -

Guests:Tricia Nicoll

Welcome to the meeting

Craig welcomed everyone to the meeting.

Neil was introduced as the new rep for theWest Midlands. The forum agreed to sendRuby a thank you card for all her hard work.

ACTION

Tina was welcomed back to the forum afterher maternity leave.

Minutes from the last meeting and actions

The minutes were agreed.

Tina asked if the burning issues could be ineasy read.

Mark, Jean and Alison asked for papercopies of the minutes to be sent to them.

All the actions had been done except for one –

Debbie is going to send the SE’s ideas for theregional report template.

Click here to see Herts People First’ssubmission to the Equality Act call forevidence http://goo.gl/hs4n5z

http://bit.ly/1N6FNRe

http://goo.gl/hs4n5zhttp://goo.gl/hs4n5zhttp://goo.gl/hs4n5zhttp://bit.ly/1N6FNRehttp://bit.ly/1N6FNRehttp://bit.ly/1N6FNRehttp://goo.gl/hs4n5z


3/12

- 3 -

Money Report and the results of theelection

We shared the money report with the forum.See attachment. http://bit.ly/1QrdXBF

Do let us know if you find the new formateasier to use.If you have any questions about this docontact Inclusion North.

We shared the results of the co and vice chairelection. Jonathan Hurley has been electedas co-chair and Carrie Ann Beavan has beenelected as vice chair. Both will start their rolesafter the next forum in February.

The forum sent their congratulations toJonathan and Carrie Ann . They also thanked

Harry and David for putting themselvesforward for the posts too.

Regional reports

Links to all the regional reports are attached.

http://bit.ly/1QaKJIy

http://bit.ly/1Qre6F7

http://bit.ly/1TTwxm6

http://bit.ly/1HQAXbT

http://bit.ly/1NRcLIW

http://bit.ly/1XPth0A

http://bit.ly/1QrdXBFhttp://bit.ly/1QrdXBFhttp://bit.ly/1QrdXBFhttp://bit.ly/1QaKJIyhttp://bit.ly/1QaKJIyhttp://bit.ly/1Qre6F7http://bit.ly/1Qre6F7http://bit.ly/1TTwxm6http://bit.ly/1TTwxm6http://bit.ly/1HQAXbThttp://bit.ly/1HQAXbThttp://bit.ly/1NRcLIWhttp://bit.ly/1NRcLIWhttp://bit.ly/1XPth0Ahttp://bit.ly/1XPth0Ahttp://bit.ly/1XPth0Ahttp://bit.ly/1NRcLIWhttp://bit.ly/1HQAXbThttp://bit.ly/1TTwxm6http://bit.ly/1Qre6F7http://bit.ly/1QaKJIyhttp://bit.ly/1QrdXBF


4/12

- 4 -

About our region

Alison gave a brilliant presentation about the

Yorkshire and Humber region which isattached. As this is a very big file, we will get itto you as soon as we can.

Having a good life

Christian was unwell so we agreed that he

would share his presentation at the nextForum meeting.

Transforming Care regional work

Tricia is working with Inclusion North to deliverthis work. The slides Tricia used to outline the

project are included with these notes. Triciaoutlined the work to date:

The proposal that Inclusion Northsubmitted to the Department of Health

The design day that people from bothforums attended and Tricia facilitated

Tricia supported the forum members to thinkabout:

How we can make this happen in ourregion

Is this something we can do in our region,or is there someone else better placed?

What is already going on that we might


5/12

- 5 -

build on

What other support is needed

The notes from this session are included here:

http://bit.ly/1IA1TwH

Jane Alltimes update on Hospitals notHomes and the ‘Building good support’

work

The forum talked to Jane via Skype.

She told us that the Hospitals not Homesbooklet would be ready soon. It is a veryimportant piece of work that both the forumshave helped to do.

The booklet will help with the TransformingCare regional work.

Jane talked to the forum about the new report‘Building the Right Support’.

The link to the easy read is here

http://bit.ly/1QaLnWz

It says that the number of people beingsupported in hospital (with a mental healthcondition) should be halved. There will be workto make sure they get the right support in thecommunity.

http://bit.ly/1IA1TwHhttp://bit.ly/1IA1TwHhttp://bit.ly/1QaLnWzhttp://bit.ly/1QaLnWzhttp://bit.ly/1QaLnWzhttp://bit.ly/1IA1TwH


6/12

- 6 -

People with learning disabilities who arelesbian, gay, bisexual or transgender(LGBT)

We talked about a report that Switchboard inBrighton had written about the challenges forpeople with learning disabilities who are LGBT.

You can see the report herehttp://goo.gl/AKKD8X

It caused lots of discussion amongst forummembers.

We wanted to play a film about these issuesthat was made by Richard Blake, but itwouldn’t work.

The film is about Richard, Richard is the ex co-

chair of the National Forum of People withLearning Disabilities.

We are coming up to the second anniversaryof Richard’s death. I’m sure Richard would bepleased to know the work he did is being used.Please do share the film with your regions – here is the link.

http://goo.gl/wyQNZn

We also shared some information aboutresources available http://goo.gl/izisbU

And here is Lucy’s presentation

http://bit.ly/1Tw0w2J

http://goo.gl/izisbUhttp://goo.gl/izisbUhttp://goo.gl/izisbUhttp://bit.ly/1Tw0w2Jhttp://bit.ly/1Tw0w2Jhttp://bit.ly/1Tw0w2Jhttp://goo.gl/izisbU


7/12

- 7 -

Thursday 5 th November

Welcome back

Karen welcomed everyone back to themeeting.

The forum spent some time thinking if therewere any other questions about TransformingCare that they thought it was important for the

regions to ask.

Update since the last meeting

Craig, Karen and Kerry updated everyoneabout the Learning Disability Board,Transforming Care Assurance Board, theministerial green paper roundtable, NHS

England’s Expo conference and the PoliticsFirst article. Their slides can be found here.

http://bit.ly/21JFjrP

http://bit.ly/1HQBNFy

http://bit.ly/1NBzTci

Tammy was given a hard copy of Politics Firstto share with Justin Tomlinson at theirmeeting.

The forum discussed the Learning Disability Alliance. In the past the forum has agreed tosupport the alliance. Recently, Simon Duffy

from the alliance has asked the forums tostrengthen their involvement and is clear that

http://bit.ly/21JFjrPhttp://bit.ly/21JFjrPhttp://bit.ly/1HQBNFyhttp://bit.ly/1HQBNFyhttp://bit.ly/1NBzTcihttp://bit.ly/1NBzTcihttp://bit.ly/1NBzTcihttp://bit.ly/1HQBNFyhttp://bit.ly/21JFjrP


8/12

- 8 -

the alliance many not continue if this supportisn’t giv en. ACTION Kerry to find out next steps forthe Alliance.

At the same time, a meeting has happened tolook at the setting up of Learning DisabilityEngland . This group would also like thesupport and involvement of both forums.There was a discussion about both thesegroups and how the forums will work withthem. The forum agreed that they besupportive of Learning Disability England andlook to find out their next steps, but not commitformally to being part of a steering group.See the Actions sheet for the agreement.

Saying thank you to Karen

Craig presented Karen with a thank you fromthe forum. Lots of people wanted to tell Karenwhat a fantastic job she had done. Forummembers all agreed she will be greatly missed!

Green paper update

Chris Cox from the Department of Healthmade a short film providing an update to theGreen Paper for the forum. This is attachedwith these notes. http://bit.ly/1Rm1akG

http://bit.ly/1Rm1akGhttp://bit.ly/1Rm1akGhttp://bit.ly/1Rm1akGhttp://bit.ly/1Rm1akG


9/12

- 9 -

Chris set out the 3 main parts to the plannedwork around the Green Paper:

things that can happen now, likechanging how the NHS buys services

how the law might need to be amended,around how people can have the right tochallenge, detention under the MentalHealth Act

bigger changes that need to happenlonger term

The forum felt that the information was a bitvague. They would like more information aboutwhat the plans are.

PLEASE NOTE: the green paper responsefrom the Government has now been published

– please let Lucy know if you would like hardcopies of the easy read paper for your region

Regional report recap

We agreed the 3 big issues to go to theProgramme Board:

Cuts to services and support

Health Homes not Hospitals

See photo

http://bit.ly/1SJhdre

and presentation attached

http://bit.ly/1Nq3t4C

http://bit.ly/1SJhdrehttp://bit.ly/1SJhdrehttp://bit.ly/1Nq3t4Chttp://bit.ly/1Nq3t4Chttp://bit.ly/1Nq3t4Chttp://bit.ly/1SJhdre


10/12

- 10 -

Loneliness

We ran out of time following Karen’s

presentation and the group photo to run thissession.

We were going to talk to members of the forumabout what loneliness is, and how they stopthemselves being lonely.

Two of the forum’s priorities are ‘Being heard’

and ‘Being safe’. If you are lonely, you haveless chance of being heard, and are moreisolated with fewer people looking out for youand making sure you are safe.

The workshop was going to be based on workthat the Joseph Rowntree Foundation did onloneliness.

Here is the link https://goo.gl/Abc4e6

PLEASE NOTE! You need to scroll down tothe bottom of the page for the resources

http://bit.ly/1TvZjZ1

http://bit.ly/1OPVBs7

http://bit.ly/1TvZjZ1http://bit.ly/1TvZjZ1http://bit.ly/1OPVBs7http://bit.ly/1OPVBs7http://bit.ly/1OPVBs7http://bit.ly/1TvZjZ1


11/12

- 11 -

Plans for the next meeting and actions totake away

Lucy reminded the forum of their threepriorities:

Helping people to have a voice Understanding Welfare Reform Keeping Safe

The forum agreed that these were still thethings they felt were most important to peoplewith learning disabilities.

The forum agreed the focus of our nextmeeting should be on these priorities.

We discussed starting the working groupsagain.

ACTION – forum members to let Lucy knowwhich priority they are most interested in

Lucy reminded everyone that Craig would bestepping down at the next meeting which willbe the 16 th and 17 th February at BurleighCourt in Loughborough.

We had a number of actions – see action sheet

http://bit.ly/1lohzcv

And here are our priorities for the year ahead

http://bit.ly/1IBUT2j

http://bit.ly/1lohzcvhttp://bit.ly/1lohzcvhttp://bit.ly/1IBUT2jhttp://bit.ly/1IBUT2jhttp://bit.ly/1IBUT2jhttp://bit.ly/1lohzcv


12/12

- 12 -

Burning Issues/AOB

Tina asked if the forum could write a letter to

David Cameron about the cuts.

All the burning issues are attached

http://bit.ly/1XWbK1L

PLEASE NOTE: The next National Forum of People withLearning Disabilities meeting is on the 16 th and 17 th February .

The meeting following this will be the 7 th and 8 th June .The first part of the meeting on the 7 th June will be a jointmeeting with the National Valuing Families Forum.

Both meetings will be held at Burleigh Court inLoughborough.
http://bit.ly/1XWbK1Lhttp://bit.ly/1XWbK1Lhttp://bit.ly/1XWbK1L

national forum of people with learning disabilities minutes nov 15

Documents