mums and babies survey - hcypf...7 “i was told by family and friends that breast feeding can be...
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1
Mums and Babies
Survey
Highland Children’s Forum
June 2017
2
Introduction
Priority outcomes for maternal and
infant health and wellbeing are part
of For Highland’s Children Service
Plan (FHC). Some of these targets
are missed but the reasons why
are not always clear. Highland
Children’s Forum was keen to hear
from mothers about the support
they received and how it might be
improved. This report asked new
mothers about their experience of
support from pregnancy through to
early parenthood, with particular
interest in the health and wellbeing
of the mother and the
establishment of infant feeding.
FHC target for exclusive
breastfeeding is to achieve 33% at
the 6-8 week review. The current
rate is 31.3% reported in
Performance Report – Children’s
Services June 2017.
Internationally, the UK has one of
the poorest breastfeeding rates
(Lancet 2016). There is an
increasing body of evidence of the
benefits of breastfeeding from the
World Health Organisation, UNICEF
and the Lancet . Breastfeeding
improves the health, intelligence
and social capacity of children and
therefore ultimately is an
investment in the wellbeing of
individuals and the overall
economy of a country (Lancet
2016). Breastfeeding Uncovered
(Brown 2016) considers the
support offered
to mothers and
looks at barriers
to breastfeeding.
Brown presents
steps to improve breastfeeding
rates, summarised in appendix 1.
Some of the barriers described and
proposed solutions are echoed in
the responses from participants in
the survey.
NHS Highland Mental Health
Improvement Group has a priority
to improve perinatal mental health
support. Recent research published
in the Lancet (No health without
perinatal health Lancet 2014)
found that there can be negative
impact of perinatal mental health
issues on the child’s development
and mental health up to
adolescence. In Highland there is a
perinatal mental health nurse to
whom mothers can be referred,
mentioned by some respondents.
Better Mental Health For All
(Faculty of Public Health 2016)
outlines the importance of
universal support of mothers in
pregnancy and early parenting for
the mental wellbeing of the
developing child. The Royal College
of Midwifery (2012) recognises that
supporting women well through the
transition in to parenthood can
improve the mother and child
relationship and therefore the
development of the child.
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Method
A Survey Monkey was designed to
ask:
Where mothers got most
information about their pregnancy,
birth and early parenthood.
About maternal health and the
support participants received, in
terms of both physical and mental
health, during the antenatal,
delivery and postnatal period.
Information and support about
infant feeding.
Support in the ongoing health and
development of their baby.
Lastly respondents had the
opportunity to say what support
had been most helpful, where there
are gaps in support and what might
improve support in the future.
The Survey link was shared with
health managers to cascade out to
practitioners and from there to
mothers. The survey was also
shared via breastfeeding and other
parenting support groups online.
Initial responses tended to be from
a particular range of mothers (in
their 30s, married and home
owners). This particular
demographic is likely to represent
mothers who are in supportive
home situations. The lack of
representation of mothers in less
supportive home circumstances
was concerning, as these are likely
to be the mothers most in need of
support from services.
It was felt that offering the survey
as an online link may have limited
access and so the survey was
produced in hard copy, which
health professionals or others could
pass on to mothers. Stamped
addressed envelopes were provided
to enable anonymous survey
return. Hard copies were
distributed through Family Nurse
Partnerships and Health Visitors
who requested that format. The
deadline for response was
extended meaning the survey was
live for 3 months.
4
Question 1
About Participants
75 mothers returned the survey, 8 as hard copies posted back.
Bar chart comparing maternal age of respondents with maternal age of general
population in Highland (2016).
This is less than 5% of mothers in Highland. The age range of respondents
corresponds to the age range of mothers in Highland in 2016 as shown in the graph above. The greater proportion of mothers in the 30 + group participating
meant there was a consequent lower proportion of mothers in their twenties.
74 respondents indicated their relationship status, 44 were married, 23 in a
relationship and 5 were single.
0
10
20
30
40
50
All ages4 Under 20 20 - 24 25 - 29 30 - 34 35 +
Maternal Age
Percentage Maternal Age Highland 2016 Percentage Maternal Age Mums and Babies Survey
5
Bar chart of the percentage of respondents reporting living in urban, rural or remote
areas of Highland and percentage of respondents in different housing situations.
Respondents were asked to indicate if they lived in an urban, rural or remote
area of Highland (68 responses) and what their housing situation was (70 responses). These responses have been roughly compared to Scottish
Government Urban-Rural Classification for Highland and the Highland Housing Strategy “Housing Tenure”. In both instances, the comparison is not accurate as the classifications were not identical. The Scottish Government have a 6-fold
classification, and respondents were offered a 3-fold classification of urban, rural or remote. Respondents may have had different ideas about what
constituted urban, rural or remote. There is no percentage given in the Highland Housing Tenure for young parents living with wider family, but the
percentage presented is for those in Highland who are living rent free, who might be assumed to be living with family. The larger proportion of respondents
to the general population living in council accommodation could be due to age and stage of respondents.
The high percentage of respondents in their thirties who were married and
home owners are likely to include many planned pregnancies in financially
secure and emotionally supportive environments. Mothers who are in lower
socio-economic groups, are single and or young are more likely to be facing
challenges in terms of emotional support and financial security. It would have
been useful to hear from a greater number of these parents who are likely to be
in more need of support from professionals and services during their pregnancy,
childbirth and early parenting.
0.00
20.00
40.00
60.00
80.00
Urban Rural Remote HomeOwner
Council Private Rent With Family Tied Housing
Housing Situations of Respsondents Compared to Highland
Percentage Highland Percentage Respondents
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Results
Question 2
“During your pregnancy please indicate from where or from whom you
got most of your information?”
Chart showing from where respondents got most of their information
Most information came from health professionals except about meeting baby's
emotional needs, which mostly came from family. However, much information
was also obtained from family and friends or from online. The quality of this
information is likely to be variable in terms of evidence-based messages about
maternal health and infant development (Brown 2016). The availability of apps
to follow different aspects of the child's development may be helpful or may
produce unnecessary anxiety for mothers.
Respondents were able to add comments (full comments in appendix 2). 41
comments were provided referring to information from: the NHS; health
professionals; hypnobirthing; online/books information; family and friends;
breast feeding support workers; Infant Feeding Advisor; breastfeeding support
group/text support and peers.
0 10 20 30 40 50 60 70 80
About your baby’s developmental checks
About your mental health
About your physical health
About meeting your baby’s emotional needs
About meeting your baby’s physical needs
About breastfeeding
About child birth
About ante-natal care
About pregnancy
Where Most Information Came From
Health professionals Family and Friends
Parent Support Groups Natural Childbirth Organisations NCT/hypnobirthing
Online support Other
7
“I was told by family and friends that breast feeding can be very difficult to
begin with but it does get easier. This helped to prepare me and encouraged
me to persevere. The antenatal classes told us the benefits of breastfeeding
and talked about how to latch correctly however I feel if more mums were
prepared to expect it to be difficult to begin with, they might be less likely to
give up so soon.”
“Lots of information available online regarding baby's development e.g.
weekly e-mail updates. Also lots of information on kick counting etc. to
ensure baby safety. Information available on childbirth is very thorough
online and in books, lots on pain relief, choices for delivery etc. This helped
me to formulate my birth plan.”
“Sharing experiences when attending pregnancy yoga, asking questions and
receiving good advice.”
“Midwives teaching hypnobirthing. Breastfeeding meetings with infant feeding
advisor.”
Question 3
Respondents were asked about their health during pregnancy
Chart regarding mental and physical health in pregnancy
0 10 20 30 40 50 60 70 80
How well managed was any mental health conditionduring your pregnancy?
How well managed was any physical health conditionduring your pregnancy?
How well informed did you feel about maintaining yourmental health?
How mentally well did you keep in your pregnancy?
How well informed did you feel about maintaining yourphysical health?
How physically well did you keep in your pregnancy?
Health During Pregnancy
Very well Quite well Well enough Not very well Not at all well Not applicable
8
When comparing physical health with mental health, 54 respondents had kept
quite well or very well physically and 62 had kept quite well or very well
mentally. For respondents with a medical condition through pregnancy, in a
ratio of a medical condition being very/quite well:well enough:not very/not at
all well managed, for physical health conditions the ratio is 43:12:5 and for
mental health 16:6:7, indicating that mental health conditions were less well
managed than physical health conditions. The ratio regarding how well informed
respondents felt in maintaining health during pregnancy also indicated that
women felt less well informed about maintaining mental health (45:13:16)
compared to physical health (54:14:8). This would suggest that improvements
could be made in terms of supporting women to maintain mental wellbeing in
pregnancy and also in managing any mental health condition during their
pregnancy.
Respondents were able to add comments, (full
comments in appendix 3), 32 comments were
received, 12 of which were further information about
medical conditions experienced. There were 7 positive
comments about health support in pregnancy for
conditions including: pre-eclampsia; twin pregnancy;
blood condition; severe morning sickness; mental
health support and early recognition of a potential
problem.
There were 13 negative comments about health
support in pregnancy which included: lack of support
for mental health condition; lack of support for
physical health condition; inconsistent staffing and misdiagnosis.
“I felt that the midwives I saw dealt with any queries I had very well and
listened to me when I had minor concerns. I had an instance where I found that
my skin was very itchy and since this could be linked to a potential complication
the midwife I spoke to made an appointment for me to have a blood test for the
following day (the appointment was made out of hours, after an antenatal
class).”
“Saw peri-natal [mental health] nurse as I was at risk of Post-Natal Depression
(family history). Main help to me was hypnobirthing keeping me calm, positive,
relaxed about birth.”
“I felt that there was poor continuity of care. At each ante natal appointment, I
would see different Midwife's, which I found difficult having to explain issues I
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had regarding medical conditions. I felt that there was also little person centred
practice and often things were more of a tick box exercise and leaflets being
handed out.”
“Saw a series of different community midwives at beginning of pregnancy. Not
really given opportunity to discuss anxieties relating to pregnancy and previous
issues. Ended up arranging to see a psychologist myself.”
“Nobody checked to see if I was ok given that I had lost 3 babies before.”
Question 4
Respondents were asked about their health in the three months
following childbirth
Chart regarding postnatal physical and mental maternal health
Responses indicate that postnatal health was generally good for this cohort,
with only 7 respondents reporting feeling not very or not at all physically well
and 8 respondents feeling either not very well or not at all mentally well.
Information about maintaining health and management of a health condition
were also more likely to be good postnatally with little difference between
mental and physical health.
13 respondents commented (full comments in appendix 4) on this question with
4 positive experiences and 10 negative experiences shared. Negative
experiences tended to be when people had not felt listened to and where help
had been delayed or poorly managed.
0 10 20 30 40 50 60 70 80
How well managed was any mental health condition afterchildbirth?
How well managed was any physical health condition afterchildbirth?
How well informed did you feel about maintaining yourmental health after childbirth?
How mentally well were you in the three months afterchildbirth?
How well informed did you feel about maintaining yourphysical health after childbirth?
How physically well were you in the three months afterchildbirth?
Postnatal Maternal Health
Very well Quite well Well enough Not very well Not at all well Not applicable
10
“The health visitor came to visit me before the birth of my baby so we had
been introduced before the baby arrived. She was very helpful, supportive
and offered a good deal of encouragement during her routine visits.”
“I had high blood pressure after birth and this was well managed by staff
within Raigmore. I remained on ward until it was under control with
medication. Baby was in SCBU after birth for 2 weeks which was traumatic
for me as mum. I dealt with it well enough at the time however I'm unsure
that my upset/struggles were taken seriously by hospital staff.”
“Post-partum rash was treated by GP as allergic reaction separate to
pregnancy. Six week check-up was rushed with GP showing me to baby
changing facilities so I could feed baby (I would have been happy to feed in
appointment so I could discuss issues I wanted to). HV skirted over mental
health issues especially in relation to stress I experienced of baby being re-
admitted to hospital, prior to that community midwives signed us over to HV
without adequately monitoring babies weight, felt rushed through post-
partum process as pregnancy was not problematic, and felt not treated
holistically in any way."
Question 5
Respondents were asked about their experience of their most recent
birth.
Chart regarding respondent experience of most recent birth
0 10 20 30 40 50 60 70 80
How helpful was the preparation you had for the birth ofyour baby?
How helpful were any NHS classes that you attended inpreparation?
How helpful were any natural childbirth classes that youattended in preparation?
If you had a birth plan, how helpful was that to you inthe delivery of your baby?
If you had a birth partner, how helpful were staff insupporting that role?
How helpful were staff in enabling you to make decisionsduring the delivery of your baby?
Birth of latest baby
Very helpful Quite helpful Helpful enough Not very helpful Not at all helpful Not applicable
11
Overall respondents had felt the preparation for childbirth was very or quite
helpful (2/3 of respondents). The usefulness of a birth plan was less well
established, 24 respondents found it not very/not at all helpful. There were
some comments received about the birth plan being ignored, but also about
emergencies arising and processes being too rushed to allow decision making.
There were also comments about feeling poorly prepared. Any of these may
have influenced the usefulness of having a birth plan. This may merit further
investigation.
Comparing the helpfulness of NHS ante-natal classes to natural childbirth ante-
natal classes, while less respondents had accessed natural childbirth classes,
these had been more helpful in preparing them for childbirth. However, as there
is often a cost and a motivation required to opt in to natural childbirth classes,
this might not reflect the situation if all parents had the opportunity to attend
natural childbirth classes.
In terms of staff enabling decision-making for the mother during childbirth over
half of respondents had felt support had been quite or very helpful but a third
had found it only helpful enough or not very/at all helpful. Again this may
reflect emergencies occurring where the delivery progressed quickly and
decision making felt rushed. However, it may be that greater care in
empowering mothers in childbirth to make decisions and enabling them to feel
in control would be beneficial. It would seem that staff were good on the whole
at supporting birth partners to be involved.
28 respondents added a comment (full comments in
appendix 5). There were 10 positive experiences and 30
negative experiences shared. The positive experiences were
mostly about the helpfulness of the midwives and about the
helpfulness of the hypnobirthing classes. One mother had
had a home birth and had found the midwives very
supportive. The negative experiences were about: poor
information or preparation; the birth plan not being
followed; feeling rushed or pushed into decisions. Some of
the other negative experiences referred to the complications
of particular births requiring emergency medical
intervention or the difficulty in travelling across Highland to
Raigmore Hospital.
“At last check before planned section, things had changed and I had option to
go for vbac. Staff allowed plenty of info and time for myself and husband to
make this decision.”
12
“The midwives were very good at offering as much information as possible. I
met the doctor during my labour and she was keen to suggest an epidural,
although I had stated in my birth plan that I would prefer to ask for any pain
management and not be directly offered (in keeping with the hypnobirthing
class I had attended). The midwife in charge however, reassured me that she
had read my birth plan and didn't push me to discuss the epidural any further
and stuck more closely to the hypnobirthing ethos.”
“I didn't feel well informed about was happening (I was transferred to another
hospital to be induced) no one examined me when I arrived at hospital and
the induction process wasn't explained to me."
“I had to travel by ambulance from Caithness general hospital to Raigmore
which didn't lend itself to putting into practice the relaxation methods or pain
relief options that we were taught at the antenatal sessions. The antenatal
classes weren't very informative about what to expect and the
logistics/practicalities of labour on the A9.”
Question 6
Respondents were asked about feeding their baby.
Chart about infant feeding
0 10 20 30 40 50 60 70 80
If you have a partner, how well supported did he or shefeel to be involved in the feeding of your baby?
If you began by bottle feeding, how supported did youfeel in that choice?
If you stopped breastfeeding before 6 weeks, how wellsupported did you feel in making that decision?
If you encountered difficulties such as poor baby-latching, sore nipples or mastitis, how well supported
did you feel through these difficulties?
If you continued to breastfeed, how supported did youfeel in the first month of establishing breastfeeding?
If you began with breastfeeding, how supported did youfeel in initiating breastfeeding?
How well supported did you feel before the birth of yourbaby in making your choice over feeding?
Feeding your baby
Very well Quite well Well enough Not very well Not at all well Not applicable
13
Overall, most respondents reported feeling
very well or quite well supported in infant
feeding. Only 2 out of 75 respondents ticked
not applicable to initiating breastfeeding. 10
respondents responded to starting with bottle
feeding, suggesting that at least 8 respondents
quickly turned from breastfeeding to bottle
feeding. The remaining 65 respondents
reported establishing breastfeeding in first
month, 5 of whom had stopped breastfeeding by 6 weeks.
The proportion of respondents breastfeeding at 6 weeks is 80%, much higher
than the 33% target of For Highland’s Children Service plan target or the
reported 31.3% in the Highland Children’s Service performance report of June
2017. This is likely to be because the survey was shared amongst breastfeeding
support groups. It would have been helpful to hear from more mothers who are
not exclusively breastfeeding at 6 weeks.
33 respondents made comment about the experience of feeding. Overall, there
were 26 positive experiences and 42 negative experiences shared.
Positive comments were mostly about good support from the community team
(Midwives and Health Visitors), the Infant Feeding Advisor and other
breastfeeding support.
The most common negative experience shared was that of poor
support in hospital to initiate breastfeeding followed by
comments about the difficulty in establishing breastfeeding,
with people reporting pain, poor latching and tongue-tie not
being identified early enough. Some people felt pushed either to
bottle feed, breastfeed or not to express. Respondents spoke of
guilt and feeling a lack of success was their fault.
“The breastfeeding advisor who came to my home was a god send. The advice
she gave me in the first few weeks was invaluable and I think if it wasn't for
her I couldn't have breastfed for 13months.”
“Poor support in maternity ward, which delayed breastfeeding. Much better
community support (community midwife, infant feeding support workers)
which ultimately helped me to start breastfeeding 2 weeks after birth.”
“Sent home with tongue tied baby. I had cracked nipples and the pain was
horrendous. I questioned why this wasn’t picked up in the hospital. It wasn’t
checked for at my first home visit but then a different midwife on the 2nd visit
14
identified it. I had to wait two weeks to get it snipped when it could have been
done on labour ward before we left.”
“In Caithness there seems to be an anti-breastfeeding mentality with several
health professionals telling me they would not breastfeed if they had kids.
Where I lived previously breastfeeding was the norm and bottles were for
those who struggled with breastfeeding. The support workers here have a
difficult job when their colleagues undermine them.”
“Was told I had caused mastitis by expressing (only done because of bleeding
nipples), made me feel like it was my fault.”
Question 7
Respondents were asked about the health and development of their baby
Chart regarding health and development of baby
There was no option to comment on this question. This
was an accidental oversight in the survey design.
0 10 20 30 40 50 60 70 80
How helpful is the free information given out about childdevelopment (such as Play@Home)?
How helpful is the Red Health Record in keeping track ofyour baby's health?
How helpful is the Red Health Record in keeping track ofyour baby's development checks?
How helpful is your Health Visitor been in supportingyour child's health and development?
How helpful has your Health Visitor been about anyconcerns you have had about your baby's health and
development?
How helpful has the Family Nurse Partnership (formothers under the age of 19 years) been in supporting
your child's health and development?
Health and development of baby
Very helpful Quite helpful Helpful enough Not very helpful Not at all helpful Not applicable
15
Question 8
Respondents were asked to describe the type of support that had been most helpful in becoming a parent.
Chart indicating what support was most helpful
53 respondents commented.
The value of breastfeeding support workers and groups was most frequently
mentioned as the most helpful support. Given the high percentage of
respondents who were breastfeeding at 6 weeks this is perhaps not surprising.
However, given the desire to increase the number of infants exclusively
breastfed at 6 weeks, promoting breastfeeding support and ensuring
breastfeeding workers are available to mothers would seem to be important.
Health Visitors, available to all mothers, scored highest as being most helpful:
positive comments were also made about the more specialised support from the
Infant Feeding Advisor, Hypnobirthing or the Family Nurse Partnership.
“We have an excellent health visitor who is very supportive and encouraging.
Support from family has also been invaluable.”
0
2
4
6
8
10
12
14
16
18
Most Helpful Support Overall
16
“The text breastfeeding support was amazing, I would have stopped without
her.”
“Support from family has been second to none. Also having a friend with a
baby roughly the same age is great for comparing where they are meant to be
in terms of milestones they're reaching or not reaching, what to look out for
etc.”
“Infant feeding support worker - taking time to understand the problem and
ensuring referrals are made.”
“The family nurse partnership has been fantastic! I love learning about my
child's development and having the support of my family nurse. I feel
extremely lucky to be able to have such a lovely family nurse guiding me and
giving me the best information on what is best for my baby. The family nurse
partnership is very useful and I recommend it to every young mum.”
Question 9
Gaps in Support
Chart regarding gaps in support
The chart above indicates the number of comments about each of the identified gaps. 40 respondents commented on perceived gaps in support, (full comments
in appendix 8).
0
2
4
6
8
10
12
Gaps in Support
17
“No breastfeeding support given in hospital (for either of my babies), figured
it out myself with 1st baby but had to look for help with second baby, lot of
support available IF you know where to look or who to ask.”
“Quite long gap between health visitor checks (I know you can call them
anytime). I think should be one visit at 6 months - just when you start to
introduce solids...”
“Lack of useful antenatal classes, lack of support for breast feeding, lack of
support through having 1 named midwife contact, lack of info on
practicalities of getting to and home from Raigmore in/just after labour.”
“Was supposed to be referred at 12 week check for continued mental health
support but midwife/doctors forgot until third trimester. Got the majority of
support on breastfeeding from family and friends.”
“Lack of family close by to provide support, can't fault health service. They've
been fab.”
Question 10
What might improve services in the future?
Chart of suggested improvements to services
0
5
10
15
20
25
30
What might help
18
33 respondents had ideas about what might improve services in the future (full comments in appendix 9).
Overall 25 comments were made about better information, 9 about staff, 6
about specific interventions and 5 comments recognised that experience was the thing that ultimately helped most. The above charts shows the breakdown
of these comments under each category.
“Need a more consistent approach - advice even from same team differs,
health visitors should keep up to date with latest research especially if they
are providing advice on that matter.”
“Encouraging mums to trust their instincts, through pregnancy, birth and
beyond. To increase the support for breast feeding mothers in hospital and
beyond. Less focus on weight and more on how baby thriving. Increased
education about the benefits of breast feeding- it's not just about nutrition;
it's a way of mothering. Responding to baby was the best advice I received.
No schedules or clock watching.”
“Health professionals should warn mothers about the initial problems that
can come with breastfeeding (mastitis, cracked nipples etc.) so they are
better prepared and don't get discouraged.”
“A little more information about other types of normal emotional changes
during pregnancy could be useful. I was very irritable and didn't realise that
"pregnancy rage" was common, so I felt like I was going a little crazy.”
“need for more practical classes antenatally.....how to bathe a child...how to
recognise colic and what to do...how to change nappies and encourage
developmental stages..”
Discussion
Overall, the support mothers received across the questions scored as either “very helpful” or “quite
helpful” for most respondents in all categories except in the usefulness
of a birth plan and in the support for a partner to feel involved in the
feeding of the baby.
Some very useful information came from the comments respondents made. In a survey specifically
seeking ways to improve support, respondents might reasonably be
more expected to comment if they had a negative or mixed experience
which could be improved upon, although many positive comments
were also made.
19
Information: while health professionals provide most
information about becoming a parent, families, friends, peers and
information from books or online contribute greatly. Information
provided by health professionals could be improved. The information
provided is not consistent across health professionals. There are gaps
in the information provided.
When people were in labour, they had a need for honest and clear
information, even in an emergency situation and for parents not to feel
rushed into a decision where possible.
While Community Midwives, Health Visitors and breastfeeding support
workers did provide useful information and support, sometimes
this was inconsistent and could be improved.
Maternal Physical Health: Some
mothers felt they had received the health support they needed for
physical ante and postnatal health. However, some mothers felt that
they had not been listened to and as a result there was a delay in
recognition of health issues and consequent delay in treatment.
Sometimes referrals had not been timely and communication between
different health professionals had been insufficient.
Maternal Mental Health: The responses would suggest that while
fewer respondents experienced mental health issues or had a
mental health condition, the response was more likely to be not
very or not at all helpful than for physical health issues or conditions.
Given the growing evidence for the potential of long term impacts of
perinatal mental disorders on the child (Lancet 2014) and the
resultant cost to society, the support of the perinatal mental health of
mothers is hugely important (Faculty of Public Health 2016). Management
of a mental health condition and any medication needs to balance the
impact on both mother and child (Gask et al 2009). However, the
potential risks to the foetus/child are not inevitable and early intervention
and both psychological support for mothers and parenting support can
ameliorate these effects (Stein et al 2014). The importance of timely
support for perinatal mental health is clear.
Antenatal care: Improvements to
antenatal classes could be made in terms of preparation for the practicalities of early parenting and
also a more honest discussion about breastfeeding, its short-term
challenges and its long-term benefits.
The only natural childbirth classes
mentioned were Hypnobirthing/Wise Hippo. Parents who had accessed
these spoke positively of them with comments saying the classes had
been helpful in childbirth but also in breastfeeding. The course fee starts
at £250 and so is not accessible to all parents-to-be. Comparing the
very positive response from parents who had accessed hypnobirthing
classes and the less positive response regarding the NHS
antenatal classes, it may be worth considering wider access to hypnobirthing so that all parents
who choose this might be able to attend.
Childbirth: The data is not clear
about how to improve the use of birth plans to support mothers in
feeling in control during childbirth. It may be that mothers need to be
supported to develop more flexible birth plans or that health
20
professionals should be more respectful of the choices made by
parents in the birth plan. It may be inevitable that as birth is a dynamic
process things can change suddenly altering the options for the birth
plan.
Infant Feeding: This topic brought the most comments from
respondents, although it should be noted that the respondents were
predominately breastfeeding mothers. The overwhelming
message was that breastfeeding can be difficult to establish and that
there is insufficient support in hospital to get this process off to a
good start. Only one mother had used SCBU, but she had felt breastfeeding support was lacking
there.
While breastfeeding can be difficult to establish, those mothers who had
continued to breastfeed were glad to have made that choice and wanted
other mothers to know that while it might be difficult to start with, it
was well worth the effort.
Some mothers felt pressurised one way or another about feeding. It
was an issue where mothers spoke of “guilt”, “blame” and “fault” as well
as sometimes feeling pressurised by health professionals.
Breastfeeding support outside of
hospital received a lot of positive comments. The breastfeeding support workers, support groups,
peer support and online/text support was truly valued by mothers. The
Infant Feeding Advisor was also seen as a huge support by those
who had accessed this service.
The issue of babies who are tongue tied was raised several times,
usually with the perception that it caused latching difficulties and
therefore increased pain for the mother and increased difficulty in
establishing breastfeeding. The delay in the diagnosis and treatment
of tongue tied babies was seen as a potential barrier to successful
breastfeeding.
In Breastfeeding Uncovered, Amy Brown (2016) emphasises the
importance of supporting mothers to breastfeed by being honest about
both the benefits and challenges of breastfeeding to mothers, families
and society as a whole. Staff: The experience of health
professionals, while mostly good, was not always positive. There was
a perception from some that health professionals were time pressured,
especially hospital staff, and that this meant they were unable to
provide appropriate support. Respondents were seeking
consistent care from health professionals that was kind and
person-centred, where they were listened to, provided with
appropriate information and then supported in their choices.
Continuity of professionals and timely referral were also mentioned.
Peer and family support: The
support from peers and family was mentioned many times along with a recognition that becoming a parent
was an experience that was not easily prepared for, people just had
to go through it.
21
Conclusion
Childbirth is both an intensely personal experience and one which is set in the
heart of family and community: it is unique each time a baby is born, but is also
common to all humanity. This creates a lot of expectations from mothers-to-
be/new mothers of themselves as well as from perceived pressures from the
family/community. There will be varied expectations from mothers, partners
and wider family about the support needed and provided from health services.
For any parent, it is a strongly emotive subject.
Highland Children’s Forum is very grateful to all the mothers who took the time
to complete the survey and share those very personal experiences to contribute
to improved services in the future. Thanks to the those parents who provided
photographs for the report.
The majority of respondents to the survey felt the support they received during
pregnancy, childbirth and postnatally quite or very helpful across most factors.
There are however some areas of improvement that could be made to support
the delivery of better outcomes for mums and babies in Highland.
• Support in the maternity ward to enable mothers to initiate breastfeeding,
ensuring the baby has a good latch before discharge.
• Health professionals who listen to the parents, are person-centred and
provide consistent messages.
• All Health Professionals should be consistent in their message about infant
feeding and sensitive to the deep emotional response of mothers in terms of
feeling blamed or guilty in the choices that they make.
• Reviewing antenatal classes to reflect the content requested by parents and
consider equity of access to specific interventions such as "hypnobirthing".
• Improve information and support for maternal mental health and wellbeing
including timely intervention and appropriate support for any mental health
medical condition.
Becoming a parent is a life-changing time in anyone’s life. There are significant
information and support needs for the physical, mental, emotional and practical
changes that will be experienced. Partners, other family members, friends and
peers are important in providing that information and support along with Health
professionals. The focus of this report has been on services for mothers, but
22
support for mothers is also about working with co-parents and the wider family
who offer much of that support.
This report would suggest that there is much to celebrate in the services offered
in Highland to help mothers with the transition to parenthood. In recognition of
the long-lasting impact of "getting it right" for new parents to enable "getting it
right" for every child, this report has hopefully demonstrated the benefit of
listening to mothers in planning continued improvement to services.
23
Appendix 1 Breastfeeding Uncovered (Amy Brown 2016)
(summary from 18 steps to improve support for breastfeeding in book)
1. Promote breastfeeding as normal in society: challenge unhelpful public ideas
about breast milk and the female body.
2. Promote the normality of breastfed babies feeding frequently and why this is important and about normal infant weight loss and gain.
3. Promote understanding of normal baby sleep patterns and enable mothers to find other ways of getting rest.
4. Be aware of how the experience of childbirth impacts breastfeeding. Give staff more time with mothers in childbirth to reduce interventions and improve
success in breastfeeding.
5. Ensure the hospital experience is “Baby Friendly” with expert support to all
breastfeeding mothers at the start of breastfeeding.
6. Mother the mother, provide all the emotional and practical support they need. Educate fathers to be the practical support they can be.
7. Promote “feed and cuddle your baby whenever you both want” rather than expectations of early routine being adopted.
8. Support employers to be breastfeeding friendly.
24
Appendix 2 Comments from question 2
1. breastfeeding support
2. I have a family nurse and I found all the information she provided extremely
useful
3. Other parents
4. Midwives antenatal support and after having baby
5. Most info from midwives
6. Pregnancy info
7. breastfeeding support workers
8. Online support
9. I was told by family and friends that breast feeding can be very difficult to begin
with but it does get easier. This helped to prepare me and encouraged me to
persevere. The antenatal classes told us the benefits of breastfeeding and talked about how to latch correctly however I feel if more mum's were prepared to
expect it to be difficult to begin with, they might be less likely to give up so soon
10. Hypnobirthing
11. Lots of information available online regarding baby's development e.g. weekly e-
mail updates. Also lots of information on kick counting etc to ensure baby safety.
Information available on childbirth is very thorough online and in books, lots on pain relief, choices for delivery etc. This helped me to formulate my birth plan.
12. the information about baby's health checks
13. The info from community midwives was fantastic.
14. Hypnobirthing and books
15. Midwife and health visitor support in the first few weeks/months
16. Infant feeding advisor
17. Support from community midwife and keeping in touch with Parentcraft group
18. highland breastfeeding support. Mainly Facebook group but also peer support
19. Sharing experiences when attending preganancy yoga, asking questions and receiving good advice.
20. Wise hippo classes taken by local community midwives
21. Advice from a midwife friend not currently working.
22. Hypnobirthing
23. Health professionals
24. midwifes, health workers, breastfeeding support workers...
25. Breastfeeding support workers
26. Development checks/stages
27. Midwives teaching hypnobirthing. Breastfeeding meetings with infant feeding
advisor. 28. Both from the NHS and my own research at the library and parenting books.
Personal favourite is Aletha Solter and aware parenting 29. Had my baby while maternity/labour suite busy did not feel supported to
breastfeed felt baby was put in breast for me instead of having someone to
spend a bit of time to support and show me ways to breastfeed especially needed extra support having had an emcs discharged myself due to lack of
support from staff and community midwife were no more supportive and lack of
health visitor visits. Would be really nice to be able to have offered an infant feeding advisor while in hospital instead of days later after baby had lost weight.
25
My first home visit midwife made me feel like I had failed already as a mother so I pumped and gave up on breast milk after one month. In the hospital although I
expressed wishes to breastfeed I was offered formula top ups. Breastfeeding needs more advocation and support to mothers.
30. Family 31.
32. Ante-natal care info
33. Breastfeeding text support was amazing
34. I like how helpful they all were midwifes were amazing support to me as a first
time mum
35. Online search engines
36. Child birth 37.
38. Online support
39. information about labour
40. Hypnobirthing
41. Info from family and friends
42. Health visitor very supportive with latching difficulties
43. Nhs guidelines and handout info was simple to follow and not overwhelming
Appendix 3 Comments from question 3
1. pelvic pain - nothing helped
2. twin pregnancy meant high risk. However, felt well supported by health
professionals and condition well monitored reducing my fear/anxiety and
improved mental and emotional wellbeing.
3. Inadvertantly given unnecessary antibiotics following mix up of test results
4. I had a low platelet count but it was monitored closely and did not cause any
problems 5. I suffered severe morning sickness during 1st & 2nd trimester. This was well
managed by GP and midwife. No information given regarding mental health or
pre-natal depression, or where to access help if required. Also I had an allocated midwife however I only met her once during pregnancy, all other
appointments were with an alternative midwife within that area. I had pre-eclampsia and baby was delivered at 36 weeks, this was found at my 36 week
check by midwife. Was sent straight to Raigmore and baby delivered naturally
(after induction) 3 days later. 6. eventually diagnosed with class 1 hellp syndrome and had a crash section
under GA at 35 weeks
7. I had a condition that meant I was housebound and isolated and because this was out of the ordinary a lot of the staff couldn't or wouldn't accommodate my
condition when giving advice, arranging appointments etc.
8. Very thorough care by midwife and hospital consultant
9. I felt that the midwives I saw dealt with any queries I had very well and
listened to me when I had minor concerns. I had an instance where I found
that my skin was very itchy and since this could be linked to a potential complication the midwife I spoke to made an appointment for me to have a
blood test for the following day (the appointment was made out of hours, after an antenatal class).
10. No antenatal classes. Lacking some of appointments I should have had due to
staff shortages. Fobbed off and passed between midwives. Felt wholly unsupported throughout until I was admitted to Raigmore where all staff were
exemplary.
26
11. During first pregnancy I had major back problems. I saw the physio through self referral on the advice of the midwife and although they couldn't sort the
issue while I was pregnant they gave it a good bash ?? 12. I was very low during first 3 months. HV was grea in terms of physical
symptoms and signed me off work. However I lacked knowledge about
depression during pregnancy which would really have helped.
13. Preeclampsia during few final weeks...
14. Saw Laura Patience peri-natal nurse as I was at risk of PND (familly history).
Main help to me was hypnobirthing keeping me calm, positive, relaxed about
birth.
15. I had a straight forward pregnancy
16. twice spells of bleeding was told to go back to normal life and if i miscarried so
be it ( i did bed rest as i found out a lot of other countries get women to do this plus i paid for 2 private scans to check how things were going). i was in a lot of
pain, but no body followed up either- not pubic girdle pain, kept telling
everyone it wasnt in my pelvis- turns out my uterus had flipped back to front and was only discovered at c-section
17. Nobody checked to see if I was ok given that I had lost 3 babies before
18. Needed physio for bad hip
19. Saw a series of different community midwives at beginning of pregnancy. Not really given opportunity to discuss anxieties relating to pregnancy and previous
issues. Ended up arranging to see a psychologist myself.
20. I felt that there was poor continuity of care. At each ante natal appointment I would see different Midwife's, which I found difficult having to explain issues I
had regarding medical conditions. I felt that there was also little person centred practice and often things were more of a tick box excersies and leaflets being
handed out.
21. Have mental health issues, was not referred until end of pregnancy.
22. I was fine and no further information given
Appendix 4 Comments from question 4
1. Felt very fragile emotionally - scored bordeline on post natal depression questionniare then didn't see my Health Visitor again for a few months (sent
community Nurse instead) so felt let down 2. After a c section the physio turned up 2 days later with a leaflet. This would be
of more use before the section.
3. I had high blood pressure after birth and this was well managed by staff within Raigmore. I remained on ward until it was under control with medication. Baby
was in SCBU after birth for 2 weeks which was traumatic for me as mum. I dealt with it well enough at the time however I'm unsure that my upset/struggles
were taken seriously by hospital staff.
4. had to ask for review by consultant re ongoing liver issues post hellp syndrome
5. I was upset my the effect my underlying condition was having on my ability to care for my child however this was overlooked during the post natal checks I
had. The team looking after my condition were great.
6. I struggled to get help with a skin condition after birth.
7. Post partum rash was treated by Gp as allergic reaction separate to pregnancy, Six week check up was rushed with Gp showing me to baby changing facilities so
I could feed baby (I would have been happy to feed in appointment so I could discuss issues I wanted to), HV skirted over mental Heath issues especially in
relation to stress I experienced of baby being re-admitted to hospital, prior to
that community midwives signed us over to HV without adequately monitoring babies weight, felt rushed tho post partum process as pregnancy was not
27
problematic, and felt not treated wholisticly in anyway
8. The health visitor came to visit me before the birth of my baby so we had been introduced before the baby arrived. She was very helpful, supportive and offered
a good deal of encouragement during her routine visits.
9. Only now after nearly 9 months an I receiving much needed support.
10. Little infection - antibiotics. Start of gallstones problems...
11. I have a prolapse which my GP didn't want to examine at first, when I went back
even after an internal exam she said it was all normal. Thank goodness you can
self refer to physio who have been great. 12. was in pain after birth but not around scar area, ended up with sepsis, in
hospital 3 weeks after birth, then recurrent infections. Not much info was passed
back to GP from hospital 13. No information given in regards to these issues
Appendix 5 Comments from question 5
1. Due to pre-eclampsia i was scheduled to have epidural, however baby came
too quickly and natural birth was only option. Therefor staff couldn't really
allow me to make decision/follow birthing plan. Birth plan changed a couple of times between being admitted and baby arriving.
2. had a crash section under GA at 35 weeks so husband not present for birth and limited discussions around same
3. I had to travel by ambulance from Caithness general hospital to raigmore
which didn't lend itself to putting into practice the relaxation methods or pain relief options that we were taught at the antenatal sessions. The antenatal
classes weren't very informative about what to expect and the
logistics/practicalities of labour on the A9
4. I had a home birth. The midwives present were fantastic.
5. I was only contacted about any classes on the day of the class by that time I
was already at work. I had a c section no one told we what I needed to do or expect in regards of not showering that morning shaving etc. Was
embarrassing. I was told that I wouldn't need a birth plan because she was
still breech and I'd be likely having a c section. 6. Midwife was very helpful during labour. As it was my first I was not sure what
was best to do to be comfortable so she made suggestions and went from there.
7. The wise hippo hypnobirthing classes were amazing
8. I had a very fast labour this time so wasn't really an option for me to make
many decisions! 9. We had wanted a natural birth, but ended up induced and lead to assisted
delivery. As per birth plan I did this with minimal drugs but was in pain for
several hours. My partner didn't feel supported by midwife and felt I the way during labour. I think in hindsight I should have accepted more pain relief and
it may have been a better experience for all
10. Had unplanned induction so few options open
11. I did not want the injunction after birth to deliver the placenta as I was
worried about haemorrhaging and a few other reasons. I felt pushed and
rushed into having it. 12. Parent craft classes felt rushed, at birth initial midwife was respectful of birth
plan - which we had written without input or interest from community midwives, after shift change during birth felt like birth plan was less
importnant/used and partner not supported as much, felt like learning
28
experience for student, staff all friendly and nice but felt like some of the decisions we faced were not included in or were forced on us,
13. The midwives were very good at offering as much information as possible. I met the doctor during my labour and she was keen to suggest an epidural,
although I had stated in my birth plan that I would prefer to ask for any pain
management and not be directly offered (in keeping with the hypnobirthing class I had attended). The midwife in charge however, reassured my that she
had read my birth plan and didn't push me to discuss the epidural any further
and stuck more closely to the hypnobirthing "ethos" 14. No antenatal classes due to staffing issues. Birth plan was not looked at at all
by local midwives despite asking to go through it with them on several occasions.
15. Very supportive of us as hypnobirthing parents
16. At last check before planned section, things had changed and I had option to
go for vbac. Staff allowed plenty if info and time for myself and husband to make this decision.
17. Nobody can prepare you for childbirth really - need to experience it... Forceps birth.
18. The consultant I had when I arrived in hospital after the delivery of my baby
(in the ambulance) was not clear why I was having to be taken away from my baby to have surgery to remove the placenta. I was devastated.
19. I was well supported but due to induction I didn't get to follow my plan & wasn't really asked about music etc
20. I didn't feel well informed about was happening (I was transferred to another
hospital to be induced) no one examined me when I arrived at hospital and the induction process wasn't explained to me.
21. Things were done such as an epidural in my case which I did not feel informed
about and now suffer back pain 22. Health visitor and breastfeeding support worker were far too pushy and
insisting on visits pre and post-natal especially considering it was my third baby. I didn't feel that they told me anything new and thought their visits
were complete overkill. A waste of time and resources surely they can assess
who they need to see more often than others.
23. It was all a blur in the end, I didn't really realise what was going on
24. Staff were amazing and explained all that was happening they were reassuring
and lovely 25. I was (falsely) made to believe that things went moving on and i wasn't
dialating, because there was no room for me in the labour ward.
26. Felt some staff didn't stick to my birth plan in supporting my decisions.
27. Classes were in Wick baby was delivered in Raigmore so you are not prepared or familiar with the unit. Birthing plan was not even looked at and ended up
with a section. Staff in Raigmore were stretched to breaking point and hadn't
no time to offer adequate care
28. No advice provided by midwives.
Appendix 6 Comments from question 6
1. In hospital I was encouraged to introduce bottle feeding within 24 hours and
regularly encouraged to do this thereafter despite making my wishes clear that I planned to exclusively breastfeed. Community midwife and health visitor very
supportive. 2. Poor support in relation to breastfeeding until referred to Karen Mackay - Infant
Feeding Specialist, then received excellent support and enabled to continue
breastfeeding
29
3. Very Poor breast feeding support in Raigmore
4. wouldve stopped bf in 1st week if not for the help from the infant feeding support workers, still feeding at nearly 10months
5. Sent home with tounge tied baby. I had cracked nipples and the pain was horrendous. I questioned why this wasnt picked up in the hospital. It wasnt
checked for at my first home visit but then a different midwife on the 2nd visit
identified it. I had to wait two weeks to get it snipped when it could have been done on labour ward before we left.
6. My baby had a tongue tie and difficulty latching and caused a lot of pain. The
first community midwife I saw was the most helpful in dealing with the issue, got us referred and nipples shields to get us through.
7. Baby was delivered early and had little sucking reflex but could latch, therefore breastfeeding was difficult. I didn't feel there was much support in SCBU for
mums who were struggling to breast feed naturally and staff on ward were not
really involved with mums who's babies were in SCBU. So mum is stuck in the middle with little support. Would have been helpful to have someone in SCBU
to discuss feeding options, how to pump milk properly, positions, ways of encouraging baby etc. I really struggled with the decision to move to bottle
feeding due to feeling of guilt, would have been good to have someone to
discuss this with and help us make an informed choice as parents. 8. emphasis all on breasts feeding...little to no information given on bottle
feeding. I am unable to breastfeed due to previous surgery therefore knew I would be bottle feeding
9. In Caithness there seems to be an anti breast feeding mentality with several
health professionals telling me they would not breast feed if they had kids. Where I lived previously breast feeding was the norm and bottles were for
those who struggled with breast feeding. The support workers here have a
difficult job when their colleagues undermine them. 10. I have had a horrendous experience with support and help with breast feeding.
The only reason i have managed to continue and hopefully finally after 11 weeks achieve it is due to sheer determination and self study and research. I
have been completely let down my the NHS on this front.
11. After birth baby was jaundiced so had to be fed a lot. The support was great but I felt that the advices varied from midwife to midwife. It was a very difficult
3 days in hospital. After discharge community my were so helpful and supportive.
12. This being my second baby I didn't need any breastfeeding support as I was
confident in my own abilities and baby lached on and fed well. With my first I needed a lot of help and support to establish feeding and received it from the
staff in hospital, my community midwives, online support and local mothers at
baby group. 13. We're still breastfeeding at 1. Had tongue tie fixed at 7 weeks, we had wanted
to introduce 1 bottle feed of expressed milk , but were advised to wait until 13 weeks following tongue tie until feeding established. Baby never took to bottle
and parter has felt left out of feeding and that aspect of night time routine
14. Highland bf support and peer suppporters are great
15. Asked for initial support in hospital with feeding, felt unsupported that partner not able to stay on ward in night after birth. Experienced problems with feeding
initially due to undiagnosed tongue tie - hospital and community midwives missed - helped with latch only a couple of times. When baby admitted to
hospital with TT it was a matter of luck in finding correct support from those
with BF expertise/knowledge, felt pressured to give formula and felt struggle to insist keeping bf and expressing, little help provided with bottle feeding advice/
practical support for top up feeds, no long or short term plan in place with
feeding and top ups.
16. One of the midwives in the hospital was very bossy over the feeding of my
30
baby in the first hours. He was a sleepy baby and as such wasn't keen to feed, so the midwife essentially insisted he would need a formula feed. We had to
resort to a cup feed (as I was particularly reluctant to skip straight to bottle feeding) and he still wasn't keen to feed, so I felt she was pushy and had taken
over. She did later apologise if I felt she had been pushy. The midwives in
Caithness General, the community midwives, the health visitor and the infant feeding support worker all made me feel that they had time for me and were
available to answer any feeding related questions and offered a good deal of
encouragement. 17. I have breastfed all my children I think the assumption was made that I didn't
need advice or information. Leaflets and a DVD were given but no discussion held.
18. Poor support in maternity ward, which delayed breastfeeding. Much better
community support (community midwife, infant feeding support workers) which ultimately helped me to start breastfeeding 2 weeks after birth.
19. Infant support peer was a major help with establishing breastfeeding
20. I have ebf so partner not really involved. But he felt health care staff always included him effectively.
21. Partner couldn't wait to bottle-feed. Never happen really... Was sorry for him...
22. Some midwives in the hospital were extremely helpful, others really unhelpful.
The breastfeeding support workers were very helpful and my community midwife Fiona was brilliant.
23. I would have benefited from more support & advice about the reality of breast feeding, how hard it can be & the difficulties faced if you have a section as my
milk was late & we ended up back in hospital & I then had to use shields.
24. Excellent support with breast feeding in local hospital where I returned to after giving birth in raigmore, where I didn't feel I was supported enough to breast
feed.
25. I did not feel that staff had time to support breastfeeding even when at home
26. In the hospital the advice was rushed and they moved the baby into position and i struggled to copy as I had a section and found it hard to move.
27. Was made to feel that breastfeeding was the only option and if I stopped then I was doing wrong I had a bad time breastfeeding and was told to persevere
instead of helping me
28. Ushered home from hospital without proper latch despite requesting help, no peer support assigned, had to request health visitor to aid feeding/provide
feeding support as no help offered
29. Breastfeeding support was excellent.
30. Was told I had caused mastitis by expressing (only done because of bleeding
nipples), made me feel like it was my fault.
31. Staff at Raigmore had no time to help what so ever. Infant support worker Kerri Ann and my health visitor Theresa were very helpful, practical and
supportive
32. The breast feeding advisor who came to my home was a god send. The advice she gave me in the first few weeks was invaluable and I think if it wasn't for
her I couldn't have breastfed for 13months.
Appendix 7 Comments from question 8
1. One to one support with health visitor and breastfeeding advisor
2. The family nurse partnership has been fantastic! I love learning about my child's development and having the support of my family nurse. I feel extremely lucky to be able
to have such a lovely family nurse guiding me and giving me the best information on
what is best for my baby. The family nurse partnership is very useful and I recommend it
31
to every young mum.
3. i have found the family nurse partnership absolutely invaluable and feel that I am a better parent for it.
4. Peer support from other parents
5. Availability of health visitor
6. Community midwife support
7. I think midwives have the most support
8. Midwife support after the birth
9. Support with difficulty breastfeeding
10. Health visitor / online groups
11. infant feeding support worker - taking time to understand the problem and ensuring referrals are made
12. Health visitor.
13. We have an excellent health visitor who is very supportive and encouraging. Support
from family has also been invaluable 14. Baby books/online communities and HV in early days of parenting, but mainly
grandparents/siblings who are parents and other mums. The importance of being
surrounded by other people in the same position as you cannot be underestimated.
15. Peer support
16. health visitor
17. We've not seen a health visitor due to lack of staff, only a EYP.
18. For me reading books that support my way of parenting have helped. Family support and
my partner have been essential. The midwives and health visitors have been ok but often stuck in guidelines. People have been quick to point out problems but little support has
been there to back up and help. I have often felt quite bullied and disrespected despite
having my own childs best interests at heart. The staff always seem tiered and overworked and this causes mistakes, rudeness and taking shortcuts.
19. My family
20. Health care workers in the local area have been amazing. I also had friends who have also recently had babies which has been a life saver for the little questions and also
support. BF peers can offer this support but it is hard as you don't have the personal
relationship with them.
21. Local baby groups.
22. The mum and baby groups led by midwives held on weekly basis and breastfeeding
support group
23. Online suppport - Facebook group
24. The support of bf and the issues I had with latching, tongue tie, no milk etc.
25. Bf support
26. The support of my family and my husband's family and the local health professionals
(e.g. HV and midwives) all offered a good deal of support
27. My own experience from previous births and the Internet.
28. Infant feeding support
29. Support from family has been second to none. Also having a friend with a baby roughly the same age is great for comparing where they are meant to be in terms of milestones
they're reaching or not reaching, what to look out for etc
30. Breastfeeding support
31. Health professionals
32. Midwifes, health visitors, support groups...
32
33. Breast feeding support workers and Hypnobirthing
34. Visits from professionals, breastfeeding support group, family support
35. Local Breast feeding support group. Online 'the milk meg'.
36. Looking things up online and others experience
37. local midwives and health visitors were lovely and very supportive
38. Family
39. Midwife visits/ consultant visits prior to birth
40. The text breastfeeding support was amazing, I would have stopped without her
41. Midwife visits in first days at home an health visitor
42. Family and friends
43. Consultant clinic
44. Being able to access a health visitor
45. I have got a lot of support from friends and family. I feel that professionals involved in mine and baby's care are very stretched.
46. Breastfeeding support but not from health visitor
47. From HV
48. family support
49. Hypnobirthing classes and support from family and friends.
50. This is 2nd baby and felt well prepared
51. Reading provided and on call support for breastfeeding
52. Marie the Breastfeeding Advisor
53. Online groups
Appendix 8 Comments from question 9
1. There needs to be more breastfeeding support from the midwives
2. Lack of info pre-birth especially around breastfeeding, lack of face-to-face support in local srea
3. Poor support in Raigmore
4. I felt that I didn't see a health visitor as often as I would have liked
5. Feeding information before birth & support between 3months & 1 year
6. Encouraging breastfeeding and midwives not having time to help in hospital.
7. no breastfeeding support given in hospital (for either of my babies), figured it out
myself with 1st baby but had to look for help with second baby, lot of support available IF you know where to look or who to ask.
8. Not being told the truth about how tough breastfeeding was going to be.
9. Infrequent support from health visitor
33
10. Not enough groups about for mums with newborns. The first 3-6 months can be
extremely lonely and there is not enough about to encourage mums who may be needing support. Also no help for couples, becoming a dad is as big a change as
becoming a mum. This can cause issues within a relationship and it would be good if
there was help available for couples do discuss these problems.
11. too much emphasis on birth and not the practicalities of after
12. Lack of useful antenatal classes, lack of support for breast feeding, lack of support through having 1 named midwife contact, lack of info on practicalities of getting to
and home from raigmore in/just after labour
13. There is a lots of emphasis on breast feeding but not enough experienced and
knowledgeable staff to back it up. I felt there was not enough education before the
birth. After the birth i was given detrimental advice and when there were problems later i was referred to the wrong professionals for help.
14. i have been attending classes through CALA which has been great but have only just
started. It would be good to see midwife led baby groups. Often there are silly
questions but you don't want to take up doctor/hv/mw time a class/group would be easier for asking these questions.
15. Lack of family close by to provide support, can't fault health service. They've been fab
16. Hv always very busy and hard to get hold of
17. A diagnosis of reflux, milk protein/lactose intolerance and months of dithering over meds and dairy free. If I'd been told to go have completely no dairy I wouldn't have
had half the problems.
18. Mental health, long term plan for feeding baby,
19. None
20. I have unfortunately found all services seriously lacking in one respect or another. Local midwifery services were poor and I dread to think how I would have coped if I
was a less experienced mother.
21. Support in ward was poor, staff were inconsistent and overstretched.
22. Don't think there is any. HV is available every week at the clinic if I have any concerns.
23. All focused on first few months then not so much support/information for later stages
24. It should be made clearer that breast feeding is really hard at first even if you are doing it right.
25. Quite long gap between health visitor checks (I know you can call them anytime). I
think should be one visit at 6 months - just when you start to introduce solids...
34
26. A weaning class would be great for both food & breast.
27. A class on how to bathe a baby, how to hold, swaddle and change a babies nappy
would've been helpful!
28. I didn't realise I was a bit depressed. Until afterwards when I was over it. Very sleep
deprived
29. After care of my physical health such as excercises for emac and breastfeeding
explaining the actual process of an induction before starting step by step
30. not sure if there is enough support to help with breast feeding problems
31. None
32. Health visitor admitted forgetting about me and my baby and we missed a couple of checks. More classes needed about positions for feeding. Possible practice with
dummy
33. Making new mums feel awful about bottle feeding
34. Breastfeeding support in the community
35. Slow referral to peadiatrics, lack of support in baby's developmental problems
36. very rarely heatd from health visitor.
37. Was supposed to be referred at 12 week check for continued mental health support but midwife/doctors forgot until third trimester. Got the majority of support on
breastfeeding from family and friends.
38. Nil
39. No information given about Caesarean sections; I had an emergency section after failed induction and felt lost and overwhelmed the whole time as I had no information
or preparation.
40. Nhs support lacking as in rural and apparently affluent area
Appendix 9 Comments from question 10
1. health visitors should be giving out the same information as the family nurse parternship. Also there needs to be more emphasis on car seat safety as a lot of
parents are clueless when it comes to this.
2. I think everyone should have a family nurse they are so helpful.
3. Additional antenatal classes - parents in my area (Badenoch and Strathspey) only have access to 3 classes pre birth; consistency of care (I saw 4 different midwives during
my pregnancy so wasn't able to build a good relationship; peer support invaluable e.g.
Breastfeeding support group on Facebook; knowledge of midwives and health visitors around issues such as breastfeeding, allergies, reflux etc needs to be improved to
ensure referrals into the right services and support at the right time
35
4. Needs to be easy to access services. Lots of people post on social media now rather than getting professional advice. Think it'd be useful to combine both to make
professional pages available
5. Provide practical information on feeding options & problems during pregnancy
6. need a more consistant approach - advice even from same team differs, health visitors should keep up to date with latest research especially if they are providing advice on
that matter
7. Nhs highland should offer the wise hippo to everyone.
8. I really think it would help if people knew to expect the first few weeks of breast
feeding to be difficult, that it's normal but it will get easier. Knowing lots of friends who breast fed and hearing they had difficulties at the start but got through them gave me
to confidence to believe that we too would get through it and we did
9. My only complaint would be the night midwives at raigmore hospital were not helpful or kind. With me being a first time parent their attitude really upset me and I could not
wait to leave the hospital because of this. They need to be kinder and more helpful.
10. Its very hard in the early days and will change your life in ways you never expected. There is lots said about how wonderful it is to become a parent (which it is) but as a
society we still don't address how difficult this transition can be.
11. need for more practical classes antenatally.....how to bathe a child...how to recognise colic and what to do...how to change nappies and encourage developmental stages..
12. Much more respect for the mother is required and birthing options better explained
including laws and rights.
13. As I said above groups for babies. Playgroups can be daunting as a new parent and
often there are no other young babies there.
14. Do an intolerance test to rule out anything straight away! Too quick to diagnose as reflux. Being told s baby will grow out of being in horrendous pain is not good enough.
You wouldn't leave a fog in pain for a week never mind a year!!
15. More wholistic approach, felt fell between gaps of responsibility of midwives, HV and Gp - seemed to be misunderstanding/ lack of communication of who responsible for
what at each stage
16. A little more information about other types of normal emotional changes during pregnancy could be useful. I was very irritable and didn't realise that "pregnancy rage"
was common, so I felt like I was going a little crazy.
17. Better information for rural mothers postnatally to avoid isolation. More online forums
or parent and child groups. Ensure everyone has access to antenatal classes to encourage supportive friendships and avoid post natal isolation. Don't make
assumptions that people are ok because they've done it before ensure they have
adequate support.
18. More focus on basic baby care/the first few weeks in parentcraft classes - birth was easy in comparison!
36
19. Find out about Group B Strep! It's not covered in any literature given by the midwives
(a national directive not highland). Our baby girl nearly died as we never knew she was
ill or could become ill with meningitis the way she did. We were very lucky we saw that something wasn't right and sought help. Awareness of GBS will save babies lives.
20. Trust in yourself to know your baby
21. Like I've said - nothing can prepare you for that. No groups, no conversations... You need to experience it yourself. But support and information that was provided was
enough... :-)
22. I find the percentile lines on the charts in the red book unhelpful. They make you
worried if the baby isn't tracking a line. It's hard to focus on 'reading the child' when the line says he's not putting on weight as he should. Could Health Visitors have a
record of where they are in relation to the lines but parents not be made aware of it unless it becomes a problem?
23. weaning
24. Encouraging mums to trust their instincts, through pregnancy, birth and beyond. To
increase the support for breast feeding mothers in hospital and beyond. Less focus on weight and more on how baby thriving. Increased eduction about the benefits of breast
feeding- it's not just about nutrition; it's a way of mothering. Responding to baby was the best advice I received. No schedules or clock watching.
25. If I won the lottery I would supply every new mum with a copy of The Aware Baby by Aletha Solter it saved my sanity. My child is fab too very grounded and understanding
of her emotions
26. I found a lot of whispering between staff in labour suite just before emcs just being
honest with parents that there is worries or complications and for mothers/parents to be given all information consequences of decision to be able to make fully informed
choices
27. when i ended up back in hospital i had to leave my EBF 3 weeek old with my parents as there was no help for me to keep her with me in the hospital and that few days
apart were very hard
28. I feel that support should be offered instead of you feeling obliged to have to have
these people come and visit! The level of support offered now is far more than when I had my eldest 2 children but I feel as a third time mum it was too much, had it been
offered when I had my first I would of found it helpful but not now!
29. Perseverance is the key
30. Honest information about the pressures and struggles of breastfeeding
31. More regular developmental check up(s) between 3 and 6 months, better offered support with breastfeeding without mother having to seek it herself.
32. Health professionals should warn mothers about the initial problems that can come with breastfeeding (mastitis, cracked nipples etc) so they are better prepared and
don't get discouraged.
33. Better advice for people who have to travel to urban areas from rural areas a state at
present there is nothing in place
37
References Brown A. (2016) Breastfeeding Uncovered Who really decides how we feed our babies?
Printer and Martin, UK Facvulty of Public Health and Mental Health Foundation (2016) Better Mental Health for
All. [internet] available from:
http://www.fph.org.uk/uploads/Better%20Mental%20Health%20For%20All%20FINAL%20low%20res.pdf
Gask, L., Lester, H., Kendrick T. and Peveler, R (2009) Primary Mental Health Care.
Royal College of Psychiatrists [internet] available from: https://books.google.co.uk/books?hl=en&lr=&id=Jxfm86wOR8UC&oi=fnd&pg=PA198&d
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Highland Council (2014) For Highland’s Children Service Plan 2014-2019 [internet]
Available from: http://www.forhighlandschildren.org/pdf/forhighlandschildren.pdf Highland Council (2017) Local Housing Strategy 2017-2022 [internet] available from:
file:///Users/PolicyLead/Downloads/Highland_Local_Housing_Strategy___Committtee_Version__31_January_2017.pdf
Highland Council (2017) Performance Report – Children’s Services June 2017. [internet]
available from:
http://www.highland.gov.uk/meetings/meeting/3822/education_children_and_adult_se
rvices_committee ISD Scotland(2016) Data Tables Maternity and Birth, ISD Scotland and NHS National
Services Scotland. [internet] available from: http://www.isdscotland.org/Health-
Topics/Maternity-and-Births/Publications/data-tables.asp Lancet (2016) Breastfeeding Series [internet] available from:
http://www.thelancet.com/series/breastfeeding
Lancet (2016) Breastfeeding 2 Why invest and what will it take to improve breastfeeding practices? Vol 387 January 30, 2016 [internet] available from
http://www.thelancet.com/pdfs/journals/lancet/PIIS0140-6736(15)01044-2.pdf
Lancet 2016 Breastfeeding: a smart investment in people and in economies [internet] available from http://www.thelancet.com/pdfs/journals/lancet/PIIS0140-
6736(16)00012-X.pdf Lancet (2014) No health without perinatal health [internet] available from:
http://www.thelancet.com/pdfs/journals/lancet/PIIS0140-6736(14)62040-7.pdf
Royal College of Midwives (2012) Emotional Wellbeing and Infant Development A good practice guide for midwives [internet] available from:
https://www.rcm.org.uk/sites/default/files/Emotional%20Wellbeing_Guide_WEB.pdf
UNICEF (nd) Breastfeeding in the UK [internet] available from: https://www.unicef.org.uk/babyfriendly/what-is-baby-friendly/breastfeeding-in-the-uk/
World Health Organisation (2015) 10 facts on breastfeeding [internet] available from: http://www.who.int/features/factfiles/breastfeeding/en/
Scottish Government Scottish Government Urban Rural Classification 20113-2014
[internet] available from: http://www.gov.scot/Publications/2014/11/2763/5 Solte, A.J. (2001) The Aware Baby, Shining Star Express, USA.
Stein, A., et al (2014) Effects of perinatal mental disorders on the fetus and child. Lancet Volume 384, No. 9956, p1800–1819, 15 November 2014 [internet] Available
from: http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(14)61277-
0/fulltext Useful Link: Hypnobirthing http://www.highlandhypnobirthing.co.uk/
Human Milk, Tailor-made for Tiny Humans
https://m.youtube.com/watch?v=2adrIKweZTE