Winter 2013 OhiO Valley Chapter

MS COnneCtiOn neWSletter

inSiDe thiS iSSUe

02letter frOM interiM Manager

04fhlB grant SUCCeSS

12annUal aWarDS CeleBratiOn

14giVe at the OffiCe

eVentS

yOU Can...Manage a hOliDay Dinner Keep the holidays focused on family, friends, feasting and unforgettable memories. Forget the fatigue and stress! Maintaining your regular routine of exercise and mental well-being will help.

Get your “mise en place” together! (French for “everything in its place”)n Plan ahead, shop, gather your ingredients

and tools together well in advance

Check your workspace and toolsn Find a workspace that’s comfor table ,

with good l ight ing and not too high (working with your arms up causes fatigue)

n Kitchen toolboxn Sharp knives—let the blade do the

workn Lucite cutting board—light, inexpensive

and easy to cleann Mini-chopper—light and easy for

quick grating and choppingn Cart on wheels—for moving food

and supplies around

n Cheat!n Assign dishes to other guestsn Buy it in a box, can, bag, or even

frozen!n Cook whatever you can in advance

& freeze it

n K.I.S.S. it! (Keep It Simple, Silly)n Enlist helpers beforehand and on

the day of the partyn Cook only for the number of guests

you’re having—scrap the 20 lb turkey for a turkey breast; easier to cook and clean up

n Have your guests bring storage containers for leftovers

Contributing editors: Beth Bullard, OTR and Baldwin Sanders, RD, Can Do Multiple Sclerosis

02 MS connection: Winter 2013

UpDate

letter frOM interiM ManagerAs we approach the beginning of a new year, I thought you would be happy to see the results of the Society’s Strategic Response for fiscal year 2013.

The National MS Society is the best investment in driving solutions and changing the world for people with MS. Here are a few examples of how the National MS Society worked to change the world in 2013:

n In 2013, the Society committed over $48 million – an increase of over $5 million invested in 2012 - to fund 380 new and ongoing projects focusing on 3 priority areas:n Progressive MSn Nervous system repair, including myelin

repairn Wellness and lifestyle

n The Society has already committed to a record-breaking $50 million investment in these areas for 2014.

n In 2013, the Society recruited 25 new and engaged 130 scientific volunteer experts in total to ensure it makes the best possible research investments.

n The Society created and launched a new program in 2013 to fund training of physicians in MS specialty care at MS centers throughout the country.

n In 2013, MS activists have:n Advanced several critical agenda items by

meeting with over 250 federal legislators and sending nearly 26,000 emails

n Achieved a 30% increase for MS research through the Congressionally Directed Medical Research Program for a total of $5 million in 2013 and $25 million in 5 years

n Increased awareness on Capitol Hill on the importance of funding for progressive forms of MS

These are just a few of the many milestones marked in 2013. We need your continued support to keep our momentum!

Please make your year-end, tax-deductible gift now to help create a world free of multiple sclerosis. Your donation will help fund cutting-edge research, drive change through advocacy, facilitate professional education, and provide programs and services to help people with MS move their lives forward.

Please mail donations to:National MS SocietyOhio Valley Chapter4440 Lake Forest Drive, Suite 120Cincinnati, Ohio 45242

Please have a safe and happy holiday season!

Eddie Rauen has been with the National MS Society for over 7 years. Reach him at eddie.rauen@nmss.org.

03natiOnalMSSOCiety.Org | 1-800-344-4867

VOlUnteerS

thankSgiVing Day raCe

This year, the Ohio Valley Chapter was a proud partner of the Thanksgiving Day Race in downtown Cincinnati. This is one of the oldest and largest 10K races in the country.

We helped provide volunteers to help keep race areas clean and to cheer on the runners. There was an amazing response from friends of the chapter. Over 90 of you took time out on Thanksgiving to volunteer. Not only did we help support a great race, we helped raise awareness of the fight against MS in front of over 15,000 runners. They learned about our own upcoming 5K, Run MS. But more importantly, they saw the passion of our volunteers for the Movement.

Thank you to all of those who volunteered!

JOhn Barrett, preSiDent anD CeO Of WeStern & SOUthern

VOlUnteer SpreaDS aWareneSS With Bike MS Shirt

raCe Organizer, JUlie iSphOrDing, aDDreSSeS the rUnnerS

Bree harDWiCk anD frienDS Stay WarM in their rUn MS VOlUnteer SWeatShirtS

04 MS COnneCtiOn: Winter 2013

neWS

fhlB grant SUCCeSSfeDeral hOMe lOan Bank hOMe MODifiCatiOn aCCeSSiBility grantThis past summer, the Ohio Valley Chapter was privileged to sponsor funding for our clients in need of home modifications to improve accessibility and address safety issues and overall quality of life to complete much needed emergency repairs. We were pleased to be a sponsoring agency of these funds helping our constituents living with MS to access much needed modifications and repairs.

In 2013, the Chapter sponsored 5 qualifying families, and below we feature and highlight some of the provided improvements and modifications.

If you would like to be considered for a Federal Home Loan Bank (FHLB) grant in the future, Please email Amanda Smith at amanda.smith@nmss.org for details on qualifying, requirements, and restrictions. Funding amounts and numbers are limited.

Client One: Roof replacement: Our client’s home was in serious disrepair. The cost of living alone as well as managing a disease like MS on a restricted income can prove impossible to provide for unexpected home maintenance and even simple improvements. Upon a pre-

inspection, it was critical to replace the roof in order to keep the house safe from the elements and to ensure that any improvements that were made would not be compromised. The client requires constant use of a walker to maintain stability while walking. There was old deep piled carpeting in the home that actually prohibited safe use of the walker as it would get caught and cause serious risk for falls. The carpeting was addressed for safety. Also, special grab bars were installed in the bathroom to enable a safe and stable entry and exit while bathing.

Client Two: Living in a two story home, with his wife and caregiver who also experiences health concerns, client two needed several issues addressed to improve safety and comfort in the home and to be able to access the second floor. First, entry and exit from main doors was addressed with threshhold ramps which reduced the ridge for smoother and easier wheelchair access as well as reducing the likelihood of tripping. All hallways had handrailing installed for stabilization, and a stairlift was included to allow the client to access the second floor. Additionally, safe bathing and toileting had been an issue in their bathrooms. A new raised toilet, three specialty grab bars and a towel bar were also installed.

Client Three: Client three must use a wheelchair, and problems progressed quickly within the past year. Simply entering and exiting the home was a serious issue and incredibly difficult to maneuver even with the assistance of their caregiver. These issues

05natiOnalMSSOCiety.Org | 1-800-344-4867

were addressed with items such as a new screen door, expandable door hinges, new handles/hardware, an automatic opener, and remote door locks. A vertical grab bar, as well as a 4 foot and 9 foot ramp for safe wheelchair use were also installed. The client was able to access their back deck and enjoy a cup of coffee to watch the sunrise this past fall.

Client Four: Client four is focused on maintaining their independence and to keeping their home within their community. The second floor was inaccessible and there were additional safety concerns with entry and exit within the home. New door locks, hinges, and the relocation of a light switch and doorbell improved safety in the home. Accessibility to the second floor was addressed with a stairlift and hallway railing. The bathroom door was widened and grab bars installed to improve safety and functionality for the bathroom facilities.

Client Five: Client five must use a wheelchair. Their spouse is not only the full time caregiver, but also works as well. The client takes pride in their cooking activities, but much of the kitchen was inaccessible due to safety risks of burns, falls, or other accidents. Safety was also a concern within the bathroom, psoing risks while bathing. The kitchen was addressed with a disguised GFCI outlet within easy reach of the client, a touch faucet fixture, accessible pantry drawers and shelving to keep food items within reach, and a custom cutting board to make food preparation safer. A new stove with accessible controls reduced risk of burns. The bathroom floor and cabinet

were modified and repaired for safe self care. Remote door locks were installed for client safety when they are home alone.

We hope you enjoy reading these success stories as much as the Ohio Valley Chapter enjoys facilitating them through this special grant funding.

April 12, 2014Cincinnati NorthVoice of America park

DaytonDelco park

Miami CountyTroy Memorial Stadium

Shelby CountyTawawa park

April 26, 2014Butler CountyTri-Community Center

CincinatiSawyer point

MAy 17, 2014Adams CountyNorth Adams High

GallipolisHaskins Memorial park

Northern KentuckyNorthern Kentucky University

SpringfieldBuck Creek State park

West Alexandriapeace park

WAlK MS: loCATioNS

06 MS COnneCtiOn: Winter 2013

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READY TO TELL MS WHAT YOU REALLY THINK?Go to gilenya.com to learn more. And join thousands of peopletaking a stance against their relapsing MS with GILENYA.

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Please see additional Important Safety Information on next page and Brief Summary of Important Product Information on the following pages.

Only GILENYA® combines proven effi cacy to cut MS relapses in half versus a leading injectable in a once-daily* pill.

GILENYA reduced the frequency of relapses by 52% in a 1-year study vs interferon beta-1a IM, and 54% in a 2-year study vs placebo.

IndicationGILENYA is a prescription medicine used to treat relapsing forms of multiple sclerosis (MS) in adults. GILENYA can decrease the number of MS fl are-ups (relapses). GILENYA does not cure MS, but it can help slow down the physical problems that MS causes.Important Safety InformationYou should not take GILENYA if in the last 6 months you experienced heart attack, unstable angina, stroke or warning stroke, or certain types of heart failure. Do not take GILENYA

if you have certain types of an irregular or abnormal heartbeat (arrhythmia), including a heart fi nding called prolonged QT, as seen on a test to check the electrical activity of your heart (ECG) before starting GILENYA. You should not take GILENYA if you take certain medicines that change your heart rhythm.

* GILENYA can result in a slow heart rate when fi rst taken. Your fi rst dose will be given in a medical facility where you will be watched for at least 6 hours. If you stop taking GILENYA for more than 14 days after your fi rst month of treatment, you will need to repeat this observation.

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07natiOnalMSSOCiety.Org | 1-800-344-4867

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Please see Brief Summary of Important Product Information on next pages.GILENYA is a registered trademark of Novartis AG. ©2013 Novartis 2/13 GYA-1244701

GILENYA may cause serious side effects such as:•Slowheartrate,especiallyafteryourfirstdose.AnECG

willbeperformedbeforeand6hoursafteryourfirstdose.Yourpulseandbloodpressureshouldbecheckedeveryhourwhileyoustayinamedicalfacilityduringthistime. Ifyourheartrateslowsdowntoomuch,youmightfeeldizzyortired,orfeellikeyourheartisbeatingslowlyorskippingbeats.Symptomscanhappenupto24hoursafteryourfirstdose.After6hours,ifyourECGshows anyheartproblemsorifyourheartrateisstilltooloworcontinuestodecrease,youwillcontinuetobewatchedbyahealthcareprofessional.Ifyouhaveanyserioussideeffectsafteryourfirstdose,especiallythosethatrequiretreatmentwithothermedicines,youwillstayinamedicalfacilitytobewatchedovernightandforatleast6hoursafteryourseconddoseofGILENYAthenextday.Ifyouhavecertaintypesofheartproblems,orifyouaretakingcertaintypesofmedicinesthatcanaffectyourheart, youwillbewatchedovernightafteryoutakeyourfirstdose.Ifyouexperienceslowheartrate,itwillusuallyreturntonormalwithin1month.Callyourdoctororgo tothenearestemergencyroomrightawayifyouhave anysymptomsofaslowheartrate.IfyoustoptakingGILENYAformorethan14daysafteryourfirstmonth oftreatment,youwillneedtorepeatthisobservation.

•Increasedriskofseriousinfections.GILENYAlowers thenumberofwhitebloodcells(lymphocytes)inyourblood.Thiswillusuallygobacktonormalwithin2monthsofstoppingGILENYA.YourdoctormaydoabloodtestbeforeyoustartGILENYA.Increasedriskofinfectionwasseenwithdoseshigherthantheapproveddose(0.5mg).Twopatientsdiedwhotookhigher-doseGILENYA(1.25mg)combinedwithhigh-dosesteroids.Callyourdoctorrightawayifyouhavefever,tiredness,bodyaches,chills,nausea,orvomiting.

•Macularedema,avisionproblemthatcancausesome ofthesamevisionsymptomsasanMSattack(opticneuritis),ornosymptoms.Macularedemausuallystartsinthefirst3to4monthsafterstartingGILENYA.YourdoctorshouldtestyourvisionbeforeyoustartGILENYA;3to4monthsafteryoustartGILENYA;andanytimeyounoticevisionchanges.Visionproblemsmaycontinueaftermacularedemahasgoneaway.Yourriskofmacularedemamaybehigherifyouhavediabetesorhavehadaninflammationofyoureye(uveitis).Callyourdoctorrightawayifyouhaveblurriness,shadows,orablindspotinthecenterofyourvision;sensitivitytolight;orunusuallycoloredvision.

•Breathingproblems.Somepatientshaveshortness ofbreath.Callyourdoctorrightawayifyouhave troublebreathing.

•Liverproblems.YourdoctorshoulddobloodteststocheckyourliverbeforeyoustartGILENYA.Callyourdoctorrightawayifyouhavenausea,vomiting,stomachpain,lossofappetite,tiredness,darkurine,orifyourskinorthewhitesofyoureyesturnyellow.

•Increasesinbloodpressure(BP).BPshouldbemonitoredduringtreatment.

GILENYAmayharmyourunbornbaby.Talktoyour doctorifyouarepregnantorplanningtobecomepregnant. WomenwhocanbecomepregnantshoulduseeffectivebirthcontrolwhileonGILENYA,andforatleast2monthsafterstopping.IfyoubecomepregnantwhiletakingGILENYA,orwithin2monthsafterstopping,tellyour doctorrightaway.WomenwhotakeGILENYAshouldnotbreastfeed,asitisnotknownifGILENYApassesintobreastmilk.ApregnancyregistryisavailableforwomenwhobecomepregnantduringGILENYAtreatment.Call1-877-598-7237orvisitwww.gilenyapregnancyregistry.comformoreinformation.Tellyourdoctoraboutallyourmedicalconditions,includingifyouhadornowhaveanirregularorabnormalheartbeat;historyofstrokeorwarningstroke;heartproblems;ahistoryofrepeatedfainting;afeverorinfection,orifyouareunabletofightinfections;eyeproblems;diabetes;breathingorliverproblems;orhighbloodpressure.Alsotellyourdoctorifyouhavehadchickenpoxorhavereceivedthevaccineforchickenpox.Yourdoctormaydoatestforthechickenpoxvirus,andyoumayneedtogetthevaccineforchickenpoxandwait1monthbeforestartingGILENYA.Tellyourdoctoraboutallthemedicinesyoutake,includingmedicinesforheartproblemsorhighbloodpressureorothermedicinesthatmayloweryourheartrateorchangeyourheartrhythm;medicinesthatcouldincreaseyourchanceofinfections,suchasmedicinestotreatcancerorcontrolyourimmunesystem;orketoconazole(anantifungal)bymouth.IftakenwithGILENYA,serioussideeffectsmayoccur.YoushouldnotgetcertainvaccineswhiletakingGILENYA,andforatleast2monthsafterstopping.ThemostcommonsideeffectswithGILENYAwereheadache,flu,diarrhea,backpain,abnormallivertests,andcough.YouareencouragedtoreportnegativesideeffectsofprescriptiondrugstotheFDA.Visitwww.fda.gov/medwatch,orcall1-800-FDA-1088.

Please see additional Important Safety Information on previous page.

(CONTINUEDFROMPREVIOUSPAGE)

Important Safety Information

08 MS connection: Winter 2013

ADVERTISEMENTMEDICATION GUIDEGILENYA™ (je-LEN-yah) (fingolimod) capsules Read this Medication Guide before you start using GILENYA andeach time you get a refill. There may be new information. This information does not take the place of talking with your doctorabout your medical condition or your treatment.What is the most important information I should know aboutGILENYA?GILENYA may cause serious side effects, including: 1. Slow heart rate (bradycardia or bradyarrhythmia) when you

start taking GILENYA. GILENYA can cause your heart rate toslow down, especially after you take your first dose. You willhave a test to check the electrical activity of your heart (ECG)before you take your first dose of GILENYA.

You should stay in a medical facility for at least 6 hours afteryou take your first dose of GILENYA.

After you take your first dose of GILENYA: • Your pulse and blood pressure should be checked every hour. • You should be watched by a healthcare professional to see if

you have any serious side effects. If your heart rate slowsdown too much, you may have symptoms such as:

• dizziness • tiredness • feeling like your heart is beating slowly or skipping beats • If you have any of the symptoms of slow heart rate, they will

usually happen during the first 6 hours after your first doseof GILENYA. Symptoms can happen up to 24 hours after youtake your first GILENYA dose.

• 6 hours after you take your first dose of GILENYA you willhave another ECG. If your ECG shows any heart problems orif your heart rate is still too low or continues to decrease, youwill continue to be watched.

• If you have any serious side effects after your first dose ofGILENYA, especially those that require treatment with othermedicines, you will stay in the medical facility to be watchedovernight. You will also be watched for any serious side effects for at least 6 hours after you take your second dose of GILENYA the next day.

• If you have certain types of heart problems, or if you are tak-ing certain types of medicines that can affect your heart, youwill be watched overnight after you take your first dose ofGILENYA.

Your slow heart rate will usually return to normal within 1 monthafter you start taking GILENYA.

Call your doctor or go to the nearest emergency room rightaway if you have any symptoms of slow heart rate.

2. Infections. GILENYA can increase your risk of serious infec-tions. GILENYA lowers the number of white blood cells (lym-phocytes) in your blood. This will usually go back to normalwithin 2 months of stopping treatment. Your doctor may do ablood test before you start taking GILENYA. Call your doctorright away if you have any of these symptoms of an infection:

• fever • tiredness • body aches • chills • nausea • vomiting3. A problem with your vision called macular edema. Macular

edema can cause some of the same vision symptoms as anMS attack (optic neuritis). You may not notice any symptomswith macular edema. Macular edema usually starts in the first

3 to 4 months after you start taking GILENYA. Your doctorshould test your vision before you start taking GILENYA and 3 to 4 months after you start taking GILENYA, or any time you notice vision changes during treatment with GILENYA. Your riskof macular edema may be higher if you have diabetes or havehad an inflammation of your eye called uveitis.

Call your doctor right away if you have any of the following: • blurriness or shadows in the center of your vision • a blind spot in the center of your vision • sensitivity to light • unusually colored (tinted) vision What is GILENYA?GILENYA is a prescription medicine used to treat relapsing formsof multiple sclerosis (MS) in adults. GILENYA can decrease thenumber of MS flare-ups (relapses). GILENYA does not cure MS,but it can help slow down the physical problems that MS causes.It is not known if GILENYA is safe and effective in children under age 18.Who should not take GILENYA? Do not take GILENYA if you: • have had a heart attack, unstable angina, stroke or warning

stroke or certain types of heart failure in the last 6 months • have certain types of irregular or abnormal heartbeat

(arrhythmia), including patients in whom a heart findingcalled prolonged QT is seen on ECG before starting GILENYA

• are taking certain medicines that change your heart rhythmIf any of the above situations apply to you, tell your doctor.What should I tell my doctor before taking GILENYA?Before you take GILENYA, tell your doctor about all your medicalconditions, including if you had or now have: • an irregular or abnormal heartbeat (arrhythmia) • a history of stroke or warning stroke • heart problems, including heart attack or angina • a history of repeated fainting (syncope) • a fever or infection, or you are unable to fight infections. Tell

your doctor if you have had chicken pox or have received the vaccine for chicken pox. Your doctor may do a blood test for chicken pox virus. You may need to get the vaccinefor chicken pox and then wait 1 month before you start tak-ing GILENYA.

• eye problems, especially an inflammation of the eye calleduveitis.

• diabetes • breathing problems, including during your sleep • liver problems • high blood pressure • Are pregnant or plan to become pregnant. GILENYA may

harm your unborn baby. Talk to your doctor if you are preg-nant or are planning to become pregnant.

• Tell your doctor right away if you become pregnant whiletaking GILENYA or if you become pregnant within 2 monthsafter you stop taking GILENYA.

• If you are a female who can become pregnant, you shoulduse effective birth control during your treatment withGILENYA and for at least 2 months after you stop takingGILENYA.

Pregnancy Registry: There is a registry for women who becomepregnant during treatment with GILENYA. If you become preg-nant while taking GILENYA, talk to your doctor about register-ing with the GILENYA Pregnancy Registry. The purpose of thisregistry is to collect information about your health and yourbaby’s health.

09natiOnalMSSOCiety.Org | 1-800-344-4867

ADVERTISEMENT For more information, you can call the GILENYA Pregnancy

Registry at 1-877-598-7237 or visit www.gilenyapregnancyregistry.com.

• Are breastfeeding or plan to breastfeed. It is not known ifGILENYA passes into your breast milk. You and your doctorshould decide if you will take GILENYA or breastfeed. Youshould not do both.

Tell your doctor about all the medicines you take, including pre-scription and non-prescription medicines, vitamins, and herbalsupplements. Know the medicines you take. Keep a list of your medicines withyou to show your doctor and pharmacist when you get a newmedicine. Using GILENYA and other medicines together may affect eachother causing serious side effects. Especially tell your doctor ifyou take: • Medicines for: • heart problems or • high blood pressure or • other medicines that may lower your heart rate or change

your heart rhythm • Vaccines. Tell your doctor if you have been vaccinated within

1 month before you start taking GILENYA. You should not getcertain vaccines while you take GILENYA and for at least 2 months after you stop taking GILENYA. If you take certainvaccines, you may get the infection the vaccine should haveprevented. Vaccines may not work as well when given duringGILENYA treatment.

• Medicines that could raise your chance of getting infections,such as medicines to treat cancer or to control your immunesystem.

• ketoconazole (an antifungal drug) by mouthAsk your doctor or pharmacist for a list of these medicines if you arenot sure.How should I take GILENYA? • Your first dose of GILENYA will be given in a medical facility

where you will be watched for at least 6 hours after your firstdose of GILENYA. See “What is the most important informa-tion I should know about GILENYA?”

• Take GILENYA exactly as your doctor tells you to take it. • Take GILENYA 1 time each day. • Take GILENYA with or without food. • Do not stop taking GILENYA without talking with your doctor

first. • If you start GILENYA again after stopping for 2 weeks or

more, you will start taking GILENYA again in your doctor’s office or clinic.

What are possible side effects of GILENYA?GILENYA can cause serious side effects. See “What is the most important information I should knowabout GILENYA?”Serious side effects include: • Breathing Problems. Some people who take GILENYA have

shortness of breath. Call your doctor right away if you havetrouble breathing.

• Liver problems. GILENYA may cause liver problems. Yourdoctor should do blood tests to check your liver before youstart taking GILENYA. Call your doctor right away if you haveany of the following symptoms of liver problems:

• nausea • vomiting • stomach pain • loss of appetite

• tiredness • your skin or the whites of your eyes turn yellow • dark urineThe most common side effects of GILENYA include: • headache • flu • diarrhea • back pain • abnormal liver tests • cough Tell your doctor if you have any side effect that bothers you orthat does not go away. These are not all of the possible side effects of GILENYA. Formore information, ask your doctor or pharmacist. Call your doctorfor medical advice about side effects. You may report side effectsto FDA at 1-800-FDA-1088.How do I store GILENYA? • Store GILENYA in the original blister pack in a dry place. • Store GILENYA at room temperature between 59°F to 86°F (15°C

to 30°C). • Keep GILENYA and all medicines out of the reach of children.General information about GILENYAMedicines are sometimes prescribed for purposes other thanthose listed in a Medication Guide. Do not use GILENYA for a con-dition for which it was not prescribed. Do not give GILENYA toother people, even if they have the same symptoms you have. Itmay harm them.This Medication Guide summarizes the most important informa-tion about GILENYA. If you would like more information, talk withyour doctor. You can ask your doctor or pharmacist for informa-tion about GILENYA that is written for healthcare professionals. For more information, go to www.pharma.US.Novartis.com or call 1-888-669-6682.What are the ingredients in GILENYA?Active ingredient: fingolimod Inactive ingredients: gelatin, magnesium stearate, mannitol, tita-nium dioxide, yellow iron oxide.This Medication Guide has been approved by the U.S. Food andDrug Administration.GILENYA is a trademark of Novartis AG.Manufactured by:Novartis Pharma Stein AGStein, SwitzerlandDistributed by:Novartis Pharmaceuticals CorporationEast Hanover, New Jersey 07936© NovartisT2012-109May 2012

10 MS COnneCtiOn: Spring 2013

fOx 19’S frank MarzUllO anD BUtCh patriCk WCpO’S kenDall herOlD anD BUtCh patriCk

lOCal 12’S Jen DaltOn anD BUtCh patriCk

eVentS

eDDie MUnSter retUrnSThis past October, Butch Patrick (TV’s Eddie Munster) returned to the Haunted Garage in Tipp City. Butch and the Haunted Garage raised both funds and awareness for the fight against MS.

The crowd this year brought in a record amount of fundraising dollars, $2,245.

Butch also made the rounds at local media outlets, raising awareness across the region.

Thank you Butch and Haunted Garage hosts, Charline Werts and Keith Allen, for all you do for the National MS Society.

11natiOnalMSSOCiety.Org | 1-800-344-4867

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DOnate

DriVe MS aWay By DOnating a VehiCleThe donation of your car, truck, motorcycle or trailer can be used to help fund critical research for multiple sclerosis. We make donating your vehicle simple. To begin the process or learn more, visis us at www.AUTO4MS.org or call our office at 1-877-672-8864.

Unlike other auto donor programs, the National MS Society receives 100% of the

proceeds from the sale of your vehicle. Proceeds fund programs and services for people living with MS and research that will get us closer to a cure.

Your vehicle donation is tax deductible. The National MS Society is a non-profit, 501 (c)(3) corporation, so your donation is tax deductible to the extent allowable by law. Please refer to your tax professional for specific details.

12 MS COnneCtiOn: Spring 2013

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annUal aWarDS CeleBratiOnf U n D r a i S e r S a n D V O l U nte e r S CeleBrateD By natiOnal MS SOCietyDozens of fundraisers and volunteers were recognized Saturday, November 16th, by the Ohio Valley Chapter of the National MS Society.

Highlights from the Annual Awards Celebration at the Sharonville Convention Center:n Belinda Lane received the Dean Winkelman

Volunteer of the Year Award. Ms. Lane is a longtime volunteer for the Ohio Valley Chapter. She was recognized for her exemplary work on Walk MS, MuckFest MS, and especially Bike MS.

n Mike Rathsack received the Joseph D. Miller, Bike MS Top Fundraiser Award. Mr. Rathsack raised $17,936 for Bike MS: Venture the Valley 2013.

n Bari Thornberry was the top fundraiser for

MuckFest MS, raising $1,750 for MuckFest MS 2013.

n The Gerald W. Fitzgerald, Walk MS Top Fundraiser Award was given to Michael Barron who raised $25,700 for Walk MS 2013.

SaMUel BO pOWel, ChUCk kOhl, anD SteVe O’neill BelinDa lane

Marian engel anD Shari Barnett-engel

aMy VanDergrift, JO ann BODenMiller, anD BrOOke BODenMiller

13natiOnalMSSOCiety.Org | 1-800-344-4867

MOney MatterS

WhiCh inSUranCe plan iS BeSt fOr yOU?The National MS Society has some great tools to help with Health Care Reform.

They include:

n Key Considerations for Choosing a Health Plan

n Application Checklist for Health Insurance

Marketplace (this lays out questions to determine if someone needs to shop for plans and what documentation they should have ready to start the application)

n Buying Individual Insurance

n Changes to Job-based Insurance Coverage

n Changes to Medicare

n Help for People with High Medical Expenses

Plus – a section on frequently asked questions.

Please visit http://www.nationalmssociety.org/government-affairs-and-advocacy/health-care-reform-resources/index.aspx for more details.

Pet/House Sitting

Play Time

Pet Chauffeur Medical Care

Pet Pharmacy Scheduled Feeding

Pet Waste Cleanup

Dog Walking

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14 MS COnneCtiOn: Spring 2013

MOney MatterS

Making health inSUranCe ChOiCeS Starting Oct. 1, most people who didn’t already have health insurance had new options for coverage when the Health Insurance Marketplace—a component of the Affordable Care Act—began enrollment for coverage to begin Jan. 1, 2014.

The Web-based Health Insurance Marketplaces, (sometimes called “exchanges”) are a new way of shopping for health insurance coverage, allowing people to compare plans, get tax credits and other cost help. The program also includes government-certified “navigators,” who are expert health insurance counselors funded by the marketplaces to provide unbiased information, education and enrollment help to consumers at no cost. Coverage through marketplace plans is guaranteed regardless of pre-existing conditions, such as multiple sclerosis, and covers preventive and needed care, such as doctor’s visits, hospitalizations, maternity leave, emergency room care and prescriptions.

All plans that participate in the marketplace have to show costs and what is covered in simple, understandable language that allows people to make “apples to apples” comparisons be tween p lans . Enro l lment i s open a t www.healthcare.gov. Call the Society at 1 - 8 0 0 - 3 4 4 - 4 8 6 7 o r v i s i t www.nationalMSsociety.org/ACAkickin for more information.

WayS tO giVe

giVe at the OffiCe Every year, people nationwide help create a world free of multiple sclerosis by contributing through their employer’s charitable giving campaign.

Most campaigns kick off in the fall, so if you’ve been looking for an easy and efficient way to join the movement, act now. Simply designate your annual pledge to the National MS Society. Your donation will be automatically deducted from each paycheck to fund cutting-edge research and provide programs and services to help people affected by MS move their lives forward.

Federal government employees and military personnel are eligible to participate in the Combined Federal Campaign (CFC), the nation’s largest workplace giving program. If you participate in the CFC, designate your gift to the Society using CFC#67300.

If your company offers a workplace giving program, look for the Society listed under Community Health Charities. If your employer doesn’t offer a giving program, talk to your benefits administrator or call us at 1-800-344-4867, option #2, to see if we can help.

15natiOnalMSSOCiety.Org | 1-800-344-4867

hOnOrS

CirCle Of DiStinCtiOnOhiO Valley Chapter fUnDraiSerS r e C e i V e nati O nal M S S O C i ety reCOgnitiOnTwo top fundraisers for the Ohio Valley Chapter became members of the Circle of Distinction during the National Multiple Sclerosis Society’s November Leadership Conference in Denver, Colorado.

PowerBar and Western & Southern Financial Group received the honor for their extraordinary financial leadership and generosity to the National MS Society’s mission.

Ohio Val ley Chapter Interim Chapter Manager and Executive Vice President,

Eddie Rauen, says, “Over the years, each of these great organizations has given or raised $1 million or more to bring us closer to a world free of MS. PowerBar and Western & Southern realize the National MS Society is the best investment in driving solutions and changing the world for people with MS!”

natiOnal MS SOCiety natiOnal BOarD ChairperSOn, eli rUBenStein; pOWerBar SpOrtS Marketing Manager, DaViD paterSOn; Bike MS teaM Captain, Bill gOetz anD Mike rathSaCk; preSiDent anD CeO Of the natiOnal MS SOCiety, CynDi zagieBOylO

natiOnal MS SOCiety natiOnal BOarD ChairperSOn, eli rUBenStein; WeStern & SOUthern’S DeniSe SparkS anD CarOl tOSChlOg; preSiDent anD CeO Of the natiOnal MS SOCiety, CynDi zagieBOylO

Ohio Valley Chapter4440 Lake Forest Drive, Suite 120Cincinnati, OH 45242

Walk MS, rUn MS, anD Bike MSOnline regiStratiOn nOW Open!

April 12th & 26th & May 17th, 2014www.WalkMSOhioValley.org

April 26th, 2014www.RunMS.org

August 23-24th, 2014www.BikeMSVentureTheValley.org