Minority Affairs Committee Update2012 Fall Regional Meetings

Educational Guidelines on Patient Referral to Kidney Transplantation

Default pathway for CKD, ESRD is referral Preemptive transplant is the goal Education must begin early

Committee Project Highlights

Draft guidelines reviewed by transplant organizations

OPTN Committees: Kidney, Patient Affairs, Living Donor, Transplant Administrators

Professional transplant partner organizations: AST, NKF/KDOQUI, STSW

Joint MAC/Organizational Representatives: MOTTEP, ASTS, ASN, AMAT

Educational Guidelines, cont.

NATCO to help with dissemination

Draft document approved by full committee for final review phase

Path Forward: review by CMS, ANNA, APPA, UNOS leadership, and then HRSA

Educational Guidelines, cont.

A2/A2B National VarianceA2/A2B National Variance

Dialysis Facility SurveyDialysis Facility Survey

Kidney and Liver Referral SurveyKidney and Liver Referral Survey

MAC Comprehensive Review Article MAC Comprehensive Review Article

Other Committee Projects

Minority Donor Conversion Education Project Collection and review of conversion data Demographic differences Examination of all variables impacting

conversion Partnering with other groups

New Committee Projects

Survey on Referral to Thoracic Transplantation

Asking questions on: Delays for heart transplant candidates? Are all eligible heart candidates being

referred? What is the population of candidates with

heart failure (N)?

New Committee Projects, cont.

KPSAM simulation modeling presentation Kidney allocation system Evaluation for impact on selected populations

Continued evaluation of CPRA Review of data prepared for

Histocompatibility Committee Impact of CPRA on kidney allocation

Ongoing Data Reviews

Silas P. Norman, MD Chairmanspnorman@umich.edu

Meelie A. Debroy, MD, Vice ChairMeelie.Debroy@UTsouthwestern.edu

Deanna L. Parker, MPA, Committee Liaisondeanna.parker@unos.org

. Questions?