migraine in primary care advisors guildford, 24 january 2003, 2-6 pm general practitioners with a...
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MIGRAINE IN PRIMARY CARE ADVISORS
Guildford, 24 January 2003, 2-6 pm
General Practitioners with a special interest in headache (GPSIH)
Introduction and objectives
Dr Andrew Dowson
Kings’ Headache Service, London
Programme
• Dr Andrew Dowson: Introduction and objectives
• Ms Ann Turner: Plans for the future organisation of headache services in the UK: the perspective from Headache UK
• Dr Andrew Dowson: Managing chronic headaches in the clinic
• Break• All: Discussion session: Setting up a primary
care headache clinic: a practical guide • Dr Andrew Dowson: Conclusions
Objectives of today’s meeting
• Review Headache UK’s overall plans for UK headache services
• Discuss the practicalities of setting up a primary care headache clinic
• Discuss the optimal way to manage chronic headaches
Outputs
• Article on how to set up a headache clinic in primary care– Multidisciplinary focus
• Document for RCGP• Article on the management of chronic
headaches– Algorithms for CDH and cluster headache
• MIPCA newsletter• Slide set
Headache UK
Organisation of headache services in the UK
Ann TurnerChairman Headache UK
January 2003
What is Headache UK?
• An umbrella group representing the 5 national charities currently working in headache:
• Migraine Action Association • Migraine Trust• Migraine in Primary Care Advisers• British Association for the Study of
Headache• Organisation of the Understanding of Cluster
Headache
Why do we need it?
• To improve and facilitate communication
• To avoid duplication of effort and waste of resources
• To make best use of increasingly scarce resources
• To lobby government for improvement in headache services
How did it start?
• HW2000 Preliminary discussions
• June 2001 Exploratory meeting
• October 2001 Group formally formed and objectives identified
What has it achieved?
• Representations to government and the Department of Health re. the inclusion of headache in the NSF
• Official launch of HUK at the Houses of Parliament (June 2002)
• Formation of an All Party Parliamentary Group on Primary Headache Disorders (October 2002)
• Headache highlighted in House of Commons debate (January 2003)
• Developed relationships with other agencies for educational purposes e.g. CPPE and University of Bath
Introduction
• Development of primary care-led NHS– PCGs and PCTs– Headache services to be incorporated
• At present, migraine, cluster headache and other headaches are under-estimated, under-diagnosed and under-treated in the UK
• Despite this, the personal and economic burdens of headache are high
• Current NHS spending on the management of headache disorders is inadequate, unevenly distributed and not optimally managed
Current situation
• Overall quality of primary care headache services unknown– Ad hoc services performed on demand
• Present services are neither adequate nor cost effective– No national or local targets– Little research, auditing or benchmarking undertaken– Access to headache care is restricted– Few GPs and neurologists are interested in headache– Few nurses and other professionals are employed– Secondary care neurology departments are overstretched,
exacerbated by inappropriate referrals for headache– The burden of headache remains high
Objectives
• To review the organisation of headache services in primary care and recommend changes necessary to improve headache care
• An initial document was prepared in 2000
• Headache UK will revise the document and use it to lobby government agencies and healthcare providers
BASH 2000
Aims
• To expand the role of primary care in the management of headache disorders
• Improve patients’ access to effective care• Achieve consensus among professional
organisations• Implementation of a multidisciplinary approach to
care• Headache services to be re-organised in a stratified
way– Local general practice– Primary care headache centres– Secondary care headache centres– Tertiary care centres
BASH 2000
Local general practice
Local general practice: principles
• Each GP should provide a first-line headache service
• All GPs should be well educated in headache diagnosis and management
• All GPs should work according to accepted guidelines
• Nurses and pharmacists could take over many roles in headache management with appropriate training– Headache diploma (Leeds Metropolitan
University)
Diagnosis Assess severity
Treatment plan
•Screen for headache type
•Attack frequency and pain severity•Impact on patient’s life •Non-headache symptoms•Patient factors
•Establish goals•Acute therapy•Possible prophylactic therapy
Consultation
•Specific consultation•Treatment history•Patient education, counselling and buy-in
Follow-up
Assess outcome of therapy
Principles of headache management in primary care
Referral to specialist
Sinister / Cluster / Chronic
Migraine
Consultation
Taking a careful history is essential– Use of a headache history questionnaire is
recommended
• Patient education– Advice, leaflets, websites and patient
organisations (Migraine Action Association, OUCH [cluster headache], Migraine Trust)
• Patient-centred care– Patients to take charge of their own management– Effective communication between patient and
physicianMIPCA 2002
Diagnosis
• Careful differential diagnosis required• IHS diagnostic criteria are comprehensive,
but may be too complex for everyday use in primary care
• Simple but comprehensive scheme required for the differential diagnosis of headache subtypes
• Diagnosis can then be confirmed with additional questions
MIPCA 2002
Management individualised for each patient
Assess illness severity• Attack frequency and duration• Pain severity• Impact on daily living
– Impact questionnaires (MIDAS/HIT)
• Non-headache symptoms• Patient factors
– History, preference and other illnesses
Individualise care to the illness severity and needs of each patient
MIPCA 2002
Follow-up procedures
• Instigate proactive long-term follow-up procedures
• Monitor the outcome of therapy– Headache diaries– Impact questionnaires (MIDAS/HIT)
• Make appropriate treatment decisions
Individual headaches
• Migraine– In most cases, management can occur in primary
care
• Cluster headache / CDH– Initial diagnosis made in primary care– Initial management probably best conducted in
secondary care (long waiting lists)– Follow-up and long-term management devolved into
primary care
• Sinister headaches– Diagnosis and management in secondary care
Implementation of guidelines: multidisciplinary approach
• Primary care headache team– GP, practice nurse, ancillary staff and sometimes
pharmacist (core team)– Community pharmacist – Community nurses– Optician – Dentist – Complementary practitioners– Specialist physician (additional resource)
Associate team members
MIPCA 2002
Pharmacist
Patient
Primary care physician
Practice nurse
Ancillarystaff
Primary care
Core teamMIPCA 2002
Roles of GP and nurse
• GP– Overall diagnosis and management of the patient
• Nurse– Advice and information– Initial triage assessment– Conduct investigations and tests– Review follow-up assessments– Role in prescribing (from 2003)
• Also possible role for pharmacists in the future
Pharmacist
Community nurse
Optician
Dentist
Complementary practitioner
Patient
Primary care physician
Practice nurse
Ancillarystaff
Primary care
Associate team Core teamMIPCA 2002
Requirements
• Implementation of new diagnostic and management guidelines
• Training for GPs, nurses and pharmacists– Role of specific GP educators?
• User-friendly guide for patients– In association with patient groups– Information on preparation for consultation and
realistic expectations
Issues
• Government target: 75% of practices currently conducted in secondary care will be transferred to primary care within the next 7 years
• Need to change current practices and patterns of behaviour– Most GPs do not practice individualised care– Increased flexibility needed– Role of the ‘specialist patient’
Primary care headache centres
Primary care headache centres
• Headache referral centres established within– Individual GP clinics– PCGs– PCTs– Resource / Interest driven
• Each centre staffed by people with an interest in headache management:– Physicians– Specialist nurses– Physical therapists– Psychologists
BASH 2000
Pharmacist
Community nurse
Optician
Dentist
Complementary practitioner
Patient
Primary care physician
Practice nurse
Physician with expertise in headache:
GP; PCT; specialist
Ancillarystaff
Primary care Specialist care
Associate team Core team
MIPCA 2002
Diagnosis
Assess severity
Treatment plan
Consultation
Follow-up
Headache management
Primary care
Primary care specialist
Secondary and tertiary care specialists
Pathways of care
Uncomplicated migraine and TTH
Migraine; Cluster headache; Chronic daily headache
Sinister, refractory and rare variant headaches
Requirements
• Political and health authority buy in• Sufficient funding• Staff training• Interest / will for service
Secondary care headache centres
Needs
• More specialist care needed for the more complex patient
• Needy patients should be seen rapidly• Symbiosis needed between primary and
secondary care• Audits of the services that headache centres
are offering• More neurologists with a special interest in
headache
Referral services
Secondary care headache centres
• Establish formally– In association with regional neurological centres?
• Services:– Telephone advice to primary care staff/patients?– Emergency– Urgent– Routine – (Education for primary care centres?)
Requirements
• Political and health authority buy in• Sufficient funding
– Currently under-resourced
• Staff training• Interest/will to provide service
Conclusions: overall needs
• Simple to use, rational, evidence-based guidelines for diagnosis and management in primary care– New MIPCA guidelines?
• Implicit role of patient support organisations– Migraine Action Association (MAA)– OUCH (cluster headache)– Educational initiatives for the general public– Specialist patient
• Specific schemes of continuing professional development
• Audit and development of best practice for all levels of care
Managing chronic headaches in the clinic
Dr Andrew Dowson
Chronic headaches
• Chronic daily headache (CDH)– Medication overuse headache (MOH)
• Cluster headache
• Other headaches– Short, sharp headache– Headaches associated with old age
Chronic daily headache (CDH)H
ead
ach
e se
veri
ty
Months
5
10 a. Chronic tension-type headache
1 2 3
Chronic daily headache (CDH)H
ead
ach
e se
veri
ty
Months
5
10 b. Migraine superimposed over CTTH
1 2 3
Chronic daily headache (CDH)H
ead
ach
e se
veri
ty
Weeks
5
10 c. Chronic migraine
1 2 3
CDH - presentation
• A history of headaches lasting >4 hours, occurring on >15 days per month1
• May be associated with overuse of symptomatic headache medications (MOH)2
– Analgesics, opioids, ergots, triptans
• May be associated with a history of head/neck injury3
1. Headache Classification Committee. Cephalalgia 1988;8 (Suppl 7):1-92
2. Diener H-C, Katsarava Z. Curr Med Res Opin 2001;17 (Suppl 1):17-21
3. Couch JR, Bearss C. Headache 2001;41:559-64
CDH – screening / diagnosis
• Specific consultation– Headache history– Provide relevant information– Obtain patient’s engagement with care
• Conduct differential diagnosis– Monitor for sinister headache
• Assess:– Severity (impact, frequency, duration, pain
severity, patient preferences, co-morbidities)– Abuse of symptomatic medications?– Neck stiffness/ restricted movement?
Dowson AJ. Doctor 2003; in press
Patient presenting with headache
Migraine/CDH
low
High
Q1. What is the impact of the headache on the sufferer’s daily life? ETTH
(40-60%)Q2. How many days of headache
does the patient have every month?
> 15 15
CDH(5%)
Q3. For patients with chronic daily headache, on how may days per week does the patient take analgesic medications?
<2 2
No medication overuse
Medication overuse
Migraine (10-12%)
Q4. For patients with migraine, does the patient experience reversible sensory symptoms associated with their attacks?
With aura Without aura
Yes No
Exclude sinister Headache (<1%)
Consider short-lasting Headaches (<1%)
Dowson AJ et al. Curr Med Res Opin 2002;18:414-39
CDH – goals of therapy
• Relieve the pattern of daily or near-daily headaches– Prevent all headaches, or– Resume a pattern of original intermittent
primary headaches
• Reduce the impact on the patient’s daily life
CDH – treatment
• Physical therapy and exercises to the neck– Patients with neck stiffness
• Withdraw offending headache medications– Inpatient or outpatient
• Prophylaxis– Antidepressants– Anticonvulsants– Botox?
• Limited acute medication– e.g. a triptan if the patient has a history of migraine
Dowson AJ. Doctor 2003; in press
Dowson AJ et al. CNS Drugs 2003; in press
CDH – follow-up
• Instigate proactive long-term follow-up procedures to assess pattern of headaches and patients’ response to therapy– Headache diaries– Impact tools
• If successful, withdraw prophylaxis gradually and retain acute medications
• If unsuccessful, refer
Dowson AJ. Doctor 2003; in press
Dowson AJ et al. CNS Drugs 2003; in press
CDH management – key features
• Monitor for sinister headache• Diagnostic assessment• Assess impact on the patient’s daily life• Monitor for medication overuse and
head/neck injury• Proactive, long-term, patient-centred
approach• Most patients can be managed by primary
care specialists or GPs
Dowson AJ. Doctor 2003; in press
Prediction of CDH developing from migraine
• Retrospective, 1-year audit of triptan usage in nine UK clinical practices
• 360 adults with migraine• Patient records and a questionnaire
analysed• Endpoints
– Triptan usage (tablets/yr)– Predictors of high usage
Williams D et al. Curr Med Res Opin 2002;18:1-9
Triptan usage over 12 months
0
10
20
30
40
50
60
70
1 to 36 37 to 53 54 to 94 95 to 149 150+
Pat
ien
ts (
%)
59.8
7.4
15.4
8.87.4
Williams D et al. Curr Med Res Opin 2002;18:1-9
Low
Moderate
High
Predictors of high triptan usage and therefore risk of CDH
• Use of several other non-triptan medications to treat conditions other than migraine
• Patients’ perception of all headaches as migraine
• Lack of concern about taking too much medication
• One triptan dosage reported as sufficient to treat an attack
Williams D et al. Curr Med Res Opin 2002;18:1-9
Decision tree
Number of other medications taken over last 12 months
Do you have concerns about taking too much medication?
Would a single dose normally be sufficient?
Risk of overuse of triptans
1-4 ≥5
No Yes
Williams D et al. Curr Med Res Opin 2002;18:1-9
Recommendations for GPs
• Audits of triptan usage• Patients identified as high triptan users:
– Review of diagnosis– Identification of possible causes of increased
frequency of attacks– Investigation of suspected non-migraine
headaches
• Review high triptan users every 3-6 months
Williams D et al. Curr Med Res Opin 2002;18:1-9
Discussion
Development of an algorithm for CDH management
Cluster headacheH
ead
ach
e se
veri
ty
Weeks
5
10
1
Cluster headache - presentation
• A history of headaches lasting >15-180 min, occurring up to several times per day– Abrupt onset and cessation
• Excruciating pain, with red/watering eyes and/or blocked nose
• Attacks occur in 2-3 month clusters (80-90%) or chronically (10-20%)
• Male prevalence• Induced by alcohol
Headache Classification Committee. Cephalalgia 1988;8 (Suppl 7):1-92
Dowson AJ. Migraine: Your Questions Answered; 2003
Cluster headache – screening / diagnosis
• Specific consultation– Headache history– Provide relevant information– Obtain patient’s engagement with care
• Conduct differential diagnosis– Monitor for sinister headache
• Assess:– Severity (impact, frequency, duration, pain
severity, non-headache symptoms, patient preferences, co-morbidities)
Dowson AJ. Migraine: Your Questions Answered 2003
Patient presenting with headache
Migraine/CDH
low
High
Q1. What is the impact of the headache on the sufferer’s daily life? ETTH
(40-60%)Q2. How many days of headache
does the patient have every month?
> 15 15
CDH(5%)
Q3. For patients with chronic daily headache, on how may days per week does the patient take analgesic medications?
<2 2
No medication overuse
Medication overuse
Migraine (10-12%)
Q4. For patients with migraine, does the patient experience reversible sensory symptoms associated with their attacks?
With aura Without aura
Yes No
Exclude sinister Headache (<1%)
Consider short-lasting Headaches (<1%)
Dowson AJ et al. Curr Med Res Opin 2002;18:414-39
Consider short-lasting Headaches (<1%)
Excruciating
Frequency: several attacks/day
Occurrence:Clusters or chronic
15-180 min
Red/watering eyesBlocked nose
Cluster headache
Frequency/occurrence
Duration
Pain intensity
Non-headache symptoms
Usually male
Cluster headache – goals of therapy
• Prevent the occurrence of the headaches
• Effectively and rapidly treat attacks that occur
• Reduce the impact on the patient’s daily life
Cluster headache – treatment
• Long-term prophylaxis– Verapamil (gold standard): High doses– Lithium
• Short-term prophylaxis– Prednisolone– Methysergide– Ergotamine– Gabapentin (future)
• Abortive– Subcutanous sumatriptan (gold standard)– Inhaled oxygen
Matharu M, Goadsby PJ. Pract Neurol 2001;1:42-9
Cluster headache – follow-up
• Long-term prophylactic and abortive therapies needed
• Proactive long-term follow-up– Headache diaries
• Long-term snapshot
– Impact tools
• If unsuccessful, refer
Dowson AJ. Migraine: Your Questions Answered 2003
Cluster headache management – key features
• Monitor for sinister headache
• Diagnostic assessment
• Assess impact on the patient’s daily life
• Proactive, long-term, patient-centred approach
• Most patients can be managed by primary care specialists
Discussion
Development of an algorithm for cluster headache management
Other chronic headaches
• Short, sharp headaches• Sinus headaches• Trigeminal neuralgia• Post-herpetic neuralgia• Temperomandibular dysfunction
Can all be managed using the same strategies as for migraine, CDH and cluster headache
Conclusions
• The same strategies can be used to manage all headache subtypes– Careful screening– Differential diagnosis– Assessment of severity– Tailoring of treatment to the individual– Proactive follow-up– Multidisciplinary care team
General Practitioners with Special Interests - GPwSI
Dr Jerry Sender
Merrow, Guildford
General Practitioners with Special Interests-GPwSI
• Background
• Areas for GPwSI
• Threats vs opportunities
• General principles
• Local experience
• Funding
GPwSI
• Background
• NHS Plan July 2000
• Improving access
• Reducing waiting times
• 1,000 GPwSI by 2004
• Recognise pre-existing expertise
GPwSI
• Areas for GPwSI
• Non clinical – Education - Research/Academia - Appraisal/Mentoring - Management
GPwSI
• Clinical – ENT - Dermatology - Substance misuse - Rheumatology - Minor surgery - Endoscopy / Cystoscopy - Sports medicine
GPwSI
• Models for GPwSI in clinical practice
• Provides local service for PCT
• Provides local service within 1ry/2ry care team – usually based in 2ry care
• Provides service within 2ry care team
GPwSI
• Opportunities
• Enhancing patient careaccess/communication
• GP career development
• Improved relationship with 2ry care
• Efficiency / Costs
GPwSI
• Threats
• Degrade generalism
• Reduce capacity for GMS work/access
• Sacrifice quality – ease W/L pressures
• Risk – increased at expense of patient and GPwSI
GPwSI
• General principles• Enhance service. Not substitute or duplicate• Local flexibility meeting local needs• Adequate resources• Contract• Training / Support• Define areas of competence / standards• Clinical governance / CME
GPsWI
• Local experience
• Setting up
• Negotiate
• Identify time
• Supervision
• Audit
• Remuneration
Discussion session:
Setting up a primary care headache clinic: a practical guide
Overview
• Strategy: Principles of care
• Tactics: Key tasks
• Organisational structure
• Development of the service– RCGP framework
Strategy: differences in philosophy
Primary care:
• Emphasis on management
Secondary care
• Emphasis on diagnosis
Strategy: Principles of care - 1
MIPCA / HCPC principlesScreening and diagnosis• Almost all headaches are
benign/primary and can be managed by all practising clinicians.
• Use questions / a questionnaire assessing impact on daily living for diagnostic screening and to aid management decisions.
Strategy: Principles of care - 2
Management• Share management between the clinician and the
patient.• Provide individualised care and encourage
patients to treat themselves.• Follow-up patients, preferably with headache
diaries.• Assess the success of therapy using specific
outcome measures and monitor the use of acute and prophylactic medications regularly.
• Adapt management to changes that occur in the illness and its presentation over the years.
Strategy: Principles of care - 3
Treatments: Migraine• Provide acute medication to all migraine patients
and recommend it is taken as early as possible in the attack.
• Provide rescue medication / symptomatic treatment if the initial therapy fails.
• Prescribe prophylactic medications to patients who have four or more migraine attacks per month or who are resistant to acute medications.
• Consider concurrent co-morbidities in the choice of appropriate prophylactic medication.
• Work with the patient to achieve comfort with the treatment recommended and that it is practical for their lifestyle and headache presentation.
Tactics: Key tasks
• Counselling and education for patients and primary care professionals
• Differential diagnosis• Tailoring of care to the individual’s
needs• Proactive follow-up• Headache team
– Liaison with primary care– Liaison with specialist physicians
Counselling and education
• Engagement with the patient– Develop good communication skills
• Information sources– Books– Leaflets– Websites– Patient organisations
Counselling and education
• Links with professional groups– IHC– MIPCA– Migraine Trust– BASH
• Links with patient support organisations– Migraine Action Association– OUCH
Headache UK
Headache UK
Differential diagnosis
• Simple diagnostic screen– MIPCA algorithm
• Confirmatory diagnostic appraisal– IHC criteria: 92-page document!– Simpler algorithms needed for specific headache
subtypes
Patient presenting with headache
Migraine/CDH
low
High
Q1. What is the impact of the headache on the sufferer’s daily life? ETTH
(40-60%)Q2. How many days of headache
does the patient have every month?
> 15 15
CDH(5%)
Q3. For patients with chronic daily headache, on how may days per week does the patient take analgesic medications?
<2 2
No medication overuse
Medication overuse
Migraine (10-12%)
Q4. For patients with migraine, does the patient experience reversible sensory symptoms associated with their attacks?
With aura Without aura
Yes No
Exclude sinister Headache (<1%)
Consider short-lasting Headaches (<1%)
Dowson AJ et al. Curr Med Res Opin 2002;18:414-39
Migraine diagnosis: IHS criteria
• Five or more lifetime headache attacks lasting 4-72 hours each and symptom-free between attacks
• Two or more of the following headache features:– Moderate-severe pain– Unilateral– Throbbing/pulsating– Exacerbated by routine activities
• One or more of the following non-headache features:– Aura– Nausea– Photophobia/phonophobia
• Exclusion of secondary headachesHeadache Classification Committee of the IHS. Cephalalgia 1988;7 (Suppl 7):19-28
Diagnosing sinister headaches
Is the headache new onset (<6 months)?
Is the patient very young or elderly?
Does the patient have atypical or non-reproducible symptoms?
Indicating
not
sinister
Indicating
possibly
sinister
Is the headache very acute?
Symptoms: Rash; Non-resolving neurological deficit; Vomiting, Pain or tenderness, Accident or
head injury; Infection; Hypertension
No
No
No
No
No
Yes
Yes
Yes
Yes
Yes
Tailoring of care
• Assessment of illness severity– Impact on the patient’s daily life– Headache frequency– Headache duration– Pain intensity– Any non-headache associated symptoms– Patient factors
• Prescribe therapy appropriate to the presenting illness severity – Good evidence-base for therapeutic effect
Assessing illness severity
• Headache history questionnaires
• Headache diaries
• Impact questionnaires– MIDAS– HIT
Therapies - migraine
• Acute treatments– Triptans– Simple or combination analgesics
• Prophylaxis– Beta-blockers– Serotonin antagonists– Sodium valproate– Amitriptyline
Therapies - CDH
• Withdrawal of overused medications
• Physical treatments to the neck
• Prophylaxis– Tricyclic antidepressants (e.g.
amitriptyline)– Anticonvulsants (e.g. sodium valproate)– Botox
• Limited use of acute medications
Therapies – cluster headache
• Acute medications– Subcutaneous sumatriptan– Oxygen inhalation
• Prophylaxis– Prednisolone– Methysergide– Ergotamine– Verapamil– Lithium
Short-term
Long-term
Proactive follow-up
• Regular monitoring of patients– Headache diaries– Impact questionnaires
• Review of medication– Switch if necessary
• Long-term review throughout evolution of illness– e.g. for overuse of acute medications by migraine
sufferers and consequent development of CDH
Organisational structure
• Overall pyramid of care
• Primary care headache team
• Primary care specialist (GPSIH) team
• Pathways of care
Primary caren = 36,000
Primary care Specialist
n = 600
Specialist caren = 350
Patient
Overall pyramid of care
n = 15 approx interested in
headache
Primary care headache team
Pharmacist
Community nurse
Optician
Dentist
Complementary practitioner
Patient
Primary care physician
Practice nurse
Physician with expertise in headache:
GP; PCT; specialist
Ancillarystaff
Primary care Specialist care
Associate team Core team
Dowson AJ et al. Curr Med Res Opin 2002;18:414-39
Primary care specialist (GPSIH) team
GPSIH
Specialist nurse
Clinical psychologist
NeurologistPrimary care
teamPatient
Physical therapist
Pathways of care
Diagnosis
Assess severity
Treatment plan
Consultation
Follow-up
Headache management
Primary care
Primary care specialist
Secondary and tertiary care specialists
Pathways of care
Uncomplicated migraine and TTH
Migraine; Cluster headache; Chronic daily headache
Sinister, refractory and rare variant headaches
Patient
Patients not needing to see a GPSIH
• Patients with episodic tension-type headaches
• Patients with uncomplicated migraine
Appropriate patients for GPSIH - 1
• Migraine patients unable to be managed in primary care– Refractory to treatment with acute and
prophylactic medications– Specific migraine patient sub-groups
• Side effects• Contraindications• Co-morbidities• At-risk women and children• At-risk of developing CDH
Appropriate patients for GPSIH - 2
• Chronic daily headache (CDH) / medication overuse headache (MOH)
• Cluster headache
• Short, sharp headaches
• Headaches associated with old age
• Refractory ‘sinus’ headaches
Appropriate patients to refer
• Patients with suspected sinister headaches
• Patients refractory to repeated treatments
• Patients with rare headache subtypes
• Patients requiring specific investigations?– Should be available to GPSIH
Development of the service: RCGP framework
RCGP framework*
• Core activities
• Competencies
• Facilities available
• Governance, accountability, monitoring and audit
• Training, induction and support
• Local guidelines
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Core activities - 1*
• Clinical leadership in developing headache services for primary care
• Support and improve care of patients by GPs and PCHTs
• Lead development of shared care services
• Develop pathways of care
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Core activities - 2*
• Develop skills and knowledge of primary care– Education
• Provide a limited clinical service– Special groups or conditions
• Provide templates for patient annual reviews and practice audits
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Core activities - 3*
• Support primary care teams to enhance care– Annual drug reviews– Female patients– Support practices– Sources of information on education and
social aspects
• Training to develop skills and knowledge
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Competencies - 1*
• Accurate diagnosis
• Appropriate referral (two-way)
• Knowledge of pharmaceutical treatments
• Optimal management with modern therapies
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Competencies - 2*
• Understand psychosocial aspects
• Understand natural history of headache
• Able to provide follow-up
• Understand roles of support organisations
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Facilities*
• Access to specialist support and specialist investigations
• Access to peer support• Access to educational material (e.g. courses
and conferences)• Access to shared care services, including
multidisciplinary team members (e.g. specialist nurses)
• Access to clinical psychology services• Membership of MIPCA specialisation group?
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Governance, accountability and monitoring*
• Accountable to the PCT board• Clinical responsibility to the GPSIH• Governance follows that used for the PCT
– Clinical audit– Communications standards– Event monitoring– Complaint handling
• Quality assessed using RCGP Quality Team Development (QTD) Programme
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Monitoring / clinical audit*
• Locally convened group to oversee development, monitoring, governance and audit– PCO Clinical Governance lead– GPSI– LMC– PCO– Specialist clinical representative– Patient representative
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Locally dependent
Training- basic*
• At least 2 years’ experience in general practice– MRCGP or equivalent
• Relevant experience– Clinical assistant / equivalent diploma
• Baseline competencies– Assessment, investigation and treatment of
patients with headache– Appropriate referral– Roles of support organisations– Knowledge of modern treatments– Psychosocial aspects
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Training- ongoing*
• Annual appraisal• Portfolio / log book of clinics• Diploma in headache
National headache organisations (MIPCA / Headache UK?) should consider developing a core syllabus for a Diploma in Headache for GPs (2-3 days’ work)
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Induction and support - 1*
• Appropriate system of mentoring and continuing professional development
• Induction– Risk management– Networking– National clinical networks– Clinical governance– Audit and reporting
• Continuing professional development
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Induction and support - 2*
• Continuing professional development– Multi-professional team meetings– Audit events– Courses– Conferences– Funding needed
• Mentor / peer support– Local neurologist– Headache specialist– GPSIH
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Local guidelines*
• Referral to GPSIH• Direct referral to consultant neurologist• Response time• Exclusion criteria• Treatment and monitoring• Care for women
* Based on the draft GPSI framework on epilepsy; RCGP 2002
Summary*
• Core competencies, facilities and training• Defined activities• Support and ongoing training• Governance, monitoring and audit• Adapting to local needs and practices
* Based on the draft GPSI framework on epilepsy; RCGP 2002