michigan libraries for life training slides

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Partnering to Save and Improve Lives Jennifer Tislerics Special Events & Partnerships Coordinator jtislerics@giftoflifemichigan .org

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For the past two years libraries across Michigan participated in a simple and effective campaign to educate patrons about organ, tissue, and eye donation and offer the opportunity to join the Michigan Organ Donor Registry. This effort was originally spearheaded in 2010 by the University of Michigan's Taubman Health Sciences Library, but has expanded to include libraries on several university campuses across the state; University of Michigan Ann Arbor, Dearborn, and Flint campuses, along with libraries at Eastern Michigan University, and Grand Valley State University. The 2011 collaborative effort resulted in registering 414 new organ donors, reaching over 1500 visitors with information on organ donation and registration information. More than 95% of Americans support organ, tissue and eye donation. In Michigan, only 34% of adults have joined the Michigan Organ Donor Registry, far lower than the 43% average nationwide! That discrepancy is largely due to state residents not knowing how to properly sign up. Michigan Libraries for Life helps to address that informational need. We are excited to bring this life-saving event back in 2012, expanding to include many more public, academic, and special libraries. This year’s 2-day drive will start on Tuesday, October 2nd and run through Wednesday, October 3rd. Participating libraries are welcome to join the effort for as many hours as they are able to staff a registration table, from 2 hours to 2 days. For more information visit: http://sites.google.com/site/michiganlibrariesforlife/

TRANSCRIPT

Page 1: Michigan Libraries for Life Training Slides

Partnering to Save and Improve Lives

Jennifer TislericsSpecial Events & Partnerships Coordinator

[email protected] or 800-482-4881, ext. 1048

Page 2: Michigan Libraries for Life Training Slides

• Federally designated organ and tissue donation program for Michigan since 1971.

• Liaison between 175 critical care hospitals and 8 transplant centers

• Strong partner with the Michigan Eye-Bank and Michigan Secretary of State

• Independent, non-profit based in Ann Arbor

• Maintains the confidential Michigan Organ Donor Registry

What is Gift of Life?

Page 3: Michigan Libraries for Life Training Slides

What is Gift of Life?

Organ & Tissue Recovery

• Obtain consent & work with donor families on-site or by phone

• Locating, matching, tissue typing for organ transplants

• Recover organs & tissues for transplantation, therapy, education and research

Education

Educate hospital staff, funeral homes, driver ed students, the public

Maintain the Michigan Organ Donor Registry, in cooperation with the Secretary of State

Page 4: Michigan Libraries for Life Training Slides

Why Donation Matters

http://youtu.be/U965-6o4WXE

Page 5: Michigan Libraries for Life Training Slides

Which Organs Can Be Donated?

• Heart• Lungs• Pancreas• Liver• Kidneys• Intestines

• More than 119,000 Americans are waiting for a transplant

• 3,200 Michigan residents need an organ transplant

• One donor can save up to 8 lives

Page 6: Michigan Libraries for Life Training Slides

Who Needs Organ Transplants?Organ transplantation is the last available option for people with end-stage organ failure.

Sherry had genetic cardiomyopathy. Thanks to a generous Michigan family

Sherry received a heart transplant, allowing her kids to keep their mom.

Page 7: Michigan Libraries for Life Training Slides

Organ Donation

• 77 patients get a transplant each day in the USA.• However, 18 people die each day while waiting for an

organ transplant.• More than 119,000 people are waiting for an organ

transplant nationally.

That’s enough to more than fill Michigan Stadium!

Page 8: Michigan Libraries for Life Training Slides

Which Tissues Can Be Donated?• Bone• Heart Valves• Veins• Tendons• Nerves• Skin• Cornea• Sclera

• Nearly 900,000 tissue transplants are performed in the United States each year.

• One in 20 Americans will need some type of tissue transplant.

• More than 50 recipients can benefit from one single tissue donor.

Page 9: Michigan Libraries for Life Training Slides

How is Tissue used?

Tissue grafts are widely used in the fields of sports medicine, orthopedic surgery, neurosurgery, cardiovascular surgery, plastic surgery, dentistry and podiatry.

Kristin received a bone transplant in her arm (replacing cancerous bone) at age 13, allowing her to continue playing sports and

following her dreams.

Thanks to her donor family, Kristen is able to serve her community as a police officer.

Page 10: Michigan Libraries for Life Training Slides

BEFORE AFTER

The Gift of Sight

Page 11: Michigan Libraries for Life Training Slides

After a basketball injury damaged her eye, Gina

received a cornea transplant. Being able to see kept her on the court, and helped her earn both basketball and academic scholarships to college. “I am forever grateful to my cornea donor.”

-Gina Gonzales

The Gift of Sight

Page 12: Michigan Libraries for Life Training Slides

Call to Gift of Life• Organs: When clinical triggers reached, or brain death testing begins• Tissue: After death has been declared

Authorization & Medical Suitability• First Person Authorization, or• Family approached if wishes unknown• Organs: Gift of Life staff go on-site to review files,

determine eligibility, talk to hospital staff• Tissue: Gift of Life staff contact families by phone

Medical/Social History• Family provides• Hospital records• Laboratory testing of blood samples

Matching & Viral Testing• Gift of Life’s

histocompatibility lab

Recovery• Current hospital

or surgical center• After recovery,

the body will be taken to the funeral home

The Donation Process

Page 13: Michigan Libraries for Life Training Slides

Working Across the U.S.A.

Organs are allocated based on:• Severity of illness• Blood type• Size• Antigens (HLA)• Geography• Time Waiting

Page 14: Michigan Libraries for Life Training Slides

First Person Authorization

• Michigan law passed in 2003

• Signing the back of your license or joining the Michigan Organ Donor Registry is a legally binding contract

• Next-of-kin can only override the decision if there is proof that the patient changed his/her mind or did not want to be a donor.

First Person Authorization means that the Donor Registry is binding.

Of course, the family’s comfort and cooperation are still very important.

Page 15: Michigan Libraries for Life Training Slides

Michigan Organ Donor Registry

Page 16: Michigan Libraries for Life Training Slides

Mobile Website

Page 17: Michigan Libraries for Life Training Slides

Why does organ donation affect ethnic minority communities more?

African Americans are more likely to…• Have Increased Risk for:

Heart Disease Diabetes, and Other conditions that can lead to organ failure

• Find a genetically compatible match within their own racial or ethnic group

Chef Oliver recently

received his second kidney

transplant.

Page 18: Michigan Libraries for Life Training Slides

Why does organ donation affect ethnic minority communities more?

African Americans are…• 12% of the U.S. population

• (14% in Michigan)• 12% of the donors nationwide

• (20% in Michigan)• 35% of the national waiting list for kidney

transplants• 47% of the kidney waiting list in Michigan

Andrea received a kidney and pancreas transplant.

Page 19: Michigan Libraries for Life Training Slides

• Provides a positive outcome in response to an unexplainable loss.

• Offers a rare and unique opportunity to save and improve the quality of someone's life.

• Provides an avenue for the decedent to "live on through the lives of others.”

• Leaves a lasting legacy.

Why Do Families Choose to Donate ?

Chase’s brothers created a triathlon team in his memory, promoting

donation in all 50 states.

Page 20: Michigan Libraries for Life Training Slides

Donor Family Follow-Up

• Certificate of Appreciation• Gift of Life medallion• Donor Family Gathering• Donor Family Quilts• Volunteer opportunities• Correspondence with recipients• “The Next Place” book, courtesy of MTF

Page 21: Michigan Libraries for Life Training Slides

Common Misconceptions

Doctors won’t try as hard to save my life

if they know I signed up.

Gift of Life is not contacted until every attempt to save the patient’s life has been tried.

The hospital staff trying to save your life are completely and legally separate from the transplant team.

Page 22: Michigan Libraries for Life Training Slides

Common Misconceptions

I’m too old to donate.

The oldest organ donors (so far) have been 93 years old.

The oldest tissue donor was 103.

Page 23: Michigan Libraries for Life Training Slides

Common Misconceptions

I have [insert name of any disease], you don’t want my organs.

Your medical history at the time of donation will determine what can be transplanted.

People with cancer, hepatitis, HIV, diabetes and lupus have become donors!

Page 24: Michigan Libraries for Life Training Slides

Common Misconceptions

I signed the back of my license, so I’m all signed up.

Page 25: Michigan Libraries for Life Training Slides

Donation Facts

• There is no cost to donate.

• Funeral arrangements and open casket viewings need not be affected by donation.

• Most major religions approve of donation and consider it an act of charity.– Almost all others support the individual’s right to decide

Page 26: Michigan Libraries for Life Training Slides

• Wealth and social status do not play a factor in the waiting list.

• The donor’s family can designate a particular waiting list candidate to receive the organs or tissues, if it’s a good medical match.

Donation Facts

Page 27: Michigan Libraries for Life Training Slides

FAQs

• I'm only 17, do I need parental consent? – Minors can join the Donor Registry. If still a minor at the time of

donation, LNOK can override that decision.

• My home is in [state/country] and I am only here for 2 years for school, can I still join the registry? What does that mean once I go home?– Donor Registries are state-by-state, but we work cooperatively.

People from all 50 states and Canada are in the Michigan Organ Donor Registry.

Page 28: Michigan Libraries for Life Training Slides

FAQs

• Can I specify which organs I want to donate?– The Donor Registry is not able to track specifications like these, because

medical technology advances rapidly and what can be donated in the future may not be known today.

However, a “Peace of Mind Registry” is being developed, where you can upload all your end-of-life decisions, including limitations to organ, tissue or eye donations.

• Can I get off the registry at a later date? – Sure, just send us a letter in writing.

Page 29: Michigan Libraries for Life Training Slides

More Information

We publish a monthly list

of Michigan patients

currently waiting for

organ transplants, and

many other statistics.

GiftOfLifeMichigan.org

Page 30: Michigan Libraries for Life Training Slides

Running a Drive in Your Library

Page 31: Michigan Libraries for Life Training Slides

Volunteer Suggestions

• Librarians and library staff

• High school students

• Local Gift of Life volunteers

• Greek system – service clubs

• FRIENDS of the library

• Boy/Girl Scouts seeking community service

Page 32: Michigan Libraries for Life Training Slides

Registration Tables

• Computer connected to the internet• Volunteer to assist registration process• Literature about organ, tissue & eye donation• Table FAQs and materials to help volunteers

answer questions• Paper registration forms• Swag (hearts, cups, pens, etc.)• Donor quilts

Page 33: Michigan Libraries for Life Training Slides

Table Setup Ideas

Page 34: Michigan Libraries for Life Training Slides

Table Setup Ideas

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Table Setup Ideas

Page 36: Michigan Libraries for Life Training Slides

Table Setup Ideas

Page 37: Michigan Libraries for Life Training Slides

Table Setup Ideas

Page 38: Michigan Libraries for Life Training Slides

Table Setup Ideas

Page 39: Michigan Libraries for Life Training Slides

Donor Quilts

• Donor families have an opportunity to create a quilt square to honor their family member.

• Quilts and stands can be shipped to your library free of charge

• Contact Jennifer Tislerics to reserve a quilt

www.giftoflifemichigan.org/donor_quilts/

Page 40: Michigan Libraries for Life Training Slides

Donor Quilts

Page 41: Michigan Libraries for Life Training Slides

Registration URL

http://bit.ly/ML4Life

Page 42: Michigan Libraries for Life Training Slides

Website

https://sites.google.com/site/michiganlibraries4life/

Page 43: Michigan Libraries for Life Training Slides

Facebook

www.facebook.com/ML4Life

Page 44: Michigan Libraries for Life Training Slides

Tracking Statistics

• Registered at the table

• Already registered

• Just picked up information or asked questions

Send the above stats to Kate at the close of your drive ([email protected])

Page 45: Michigan Libraries for Life Training Slides

Thank You for Giving the Gift of Hope!