maternity services liaison committees (mslcs): a consensus … · 2019. 12. 10. · statement from...
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Maternity services liaison committees (MSLCs): a consensus statement from NCT, RCM and RCOGOur shared views on the importance of engaging with women and their partners in the planning and monitoring of maternity services and the role played by MSLCs
MSLC document FINAL 2013.indd 1 02/04/2013 16:24
Key recommendations
We recommend that MSLCs:
• Continuetoexist,undertheauspicesofanappropriatebodyinthelocalhealthstructure.
• Continuetobethemainmeansofgivingserviceusersaninfluenceovermaternitystrategyanddeliveryoftheservice.
• Areprovidedwitharing-fencedbudgettomakesurethattheycanmeetregularlyinsuitablesettings,andthatchairsandmembershavetheappropriatetrainingandsupport.
• Continuetoactasstrategicadvisorygroupsthathelpcreateandmaintainhighqualitymaternityservices,definedasthosewherewomenandtheirpartnershaveasafetransitiontoparenthoodandanexperiencethatispositiveandlife-enhancing.
• Areconstitutedasatpresentandchairedorco-chairedbyalayuser.
• Continuetohaveresponsibilityforcreatingmechanismstoelicitandcollatebothqualitativeandquantitativeinputfromusers.
Introduction
“No decision about me, without me”1
“Womenandtheirpartnerswantasafetransitiontoparenthoodandtheywanttheexperiencetobepositiveandlifeenhancing.Qualitymaternityservicesshouldbedefinedbytheabilitytodoboth.”2
Asusersoftheservice,womenandtheirpartnerscanmakevaluablecontributionstothedesignandprovisionofmaternitycare.Fornearly30years,MaternityServicesLiaisonCommittees(MSLCs)havebeenthemeansbywhichserviceusershavebeenabletomakethosecontributions.Theyhaveanexcellenttrackrecord:maternityserviceshavechangedtomeettheexpressedneedsofwomen,andtheirpartnersandbabies,morethananyotherservice.Thisisdue,atleastinpart,totheuniqueapproachofMSLCs,andtheirconsensual,multidisciplinaryethos.
ThestructuregoverninghealthcarecommissioninginEnglandhasrecentlychanged,castingintoquestionthecontinuingroleofMSLCs,whichweresetupunderadifferentcommissioningstructure.ThisconsensusstatementsetsoutthereasonswhywebelieveMSLCsshouldcontinuetoexistunderthenewstructure,andwhyweregardthemasthebestmeansoffulfillingtheobligationsofthenewcommissioningbodiestolistentotheviewsofserviceusers.Webelievethatthenewstructure,withitsemphasisonuserinvolvement,providesagoodopportunitytostrengthentheroleofMSLCs.
AlthoughthestatementhasaparticularfocusonEngland,wehavetakenintoaccountuserinvolvementpoliciesandguidanceaboutMSLCsfromallfourcountriesoftheUKinmakingourrecommendations.Scotland,WalesandNorthernIrelandallhaveslightlydifferentcommissioningstructures,butMSLCsplayanimportantroleineachofthosestructures,andwebelievethattheyshouldcontinuetodoso.
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MSLCswereintroducedin1984,asawayofprovidinganeffectivechannelforusersofmaternityservicestoinfluencethelocalprovisionofmaternityservices.EachMSLC,whichmeetsatleastfourtimesayear,iscurrentlymadeupofrepresentativesfromthefollowinggroups:
• Users(localpeoplewhohavehadababyrecentlyorwhoareexpectingababy)
• Thelocalprimarycaretrust(PCT)
• Maternityhealthcareprofessionals,suchasobstetricians,midwives,neonatologists,healthvisitorsandGPs
• Voluntarygroupsrepresentingpregnantwomenandnewparents,suchasNCT
TheroleoftheMSLCistomakesurethatthebodythatcommissionsmaternityserviceslistensto,andtakesaccountof,theviewsandexperiencesofboththeusersandprovidersofthoseservices.Asaresult,MSLCs,sincetheirinception,haveplayedanimportantpartinshapingthedeliveryofmaternityservicestomeettheneedsofusers.
UnderthechangesandnewarrangementsforcommissioningofmaternityservicessetoutintheHealthandSocialCareActEngland2012,6PrimaryCareTrusts(PCTs)havebeenfullydisbandedandClinicalCommissioningGroups(CCGs),formedprincipallyofgroupsofGPs,willtakeovermuchofthecommissioningofhealthcareinEngland.WhilstresponsibilitywillsitwithCCGs,theNHSCommissioningBoardwillsetanationalframeworkforqualityandchoice,andwillrequireCCGstoworkcollaborativelytoensurethisisdelivered.
Singlecommissioninggroupsof250,000populationsgeneratingonly3000pregnanciesperyearwillprobablybetoosmalltocommissionthefullrangeofmaternal-fetalmedicineandhigh-riskserviceseffectively.Themostefficientmodeltoadoptisafederatedone,inwhichaleadcommissionertakesresponsibilityforlocalnegotiationswiththemainproviders.Commissioninggroupswithinafederationwillneedtojointlyagree,attheoutset,theprinciplesunderpinninglocalarrangements,whichshouldinclude(amongothers):
• Outreachtovulnerablewomenencouragingthemtoengagewiththeservices
• ContributingtotheJointHealthandWellbeingStrategy3
TheNHSCommissioningBoard’srequirementsareforamaternity servicethat:
• Isflexible,appropriateandaccessibletoallwomen
• Isprovidedinaccordancewithevidenceandbestpractice
• Reflectslocalneedsandpriorities
• Seeksandactsonfeedbackfromwomenandtheirfamilies7,5
Strategic clinical networks
Thenewcommissioningstructurealsoseesthecreationofstrategicclinicalnetworks.Theseareorganisationsthatenablegroupsofhealthprofessionals,hospitalsandotherprovidersandcommissionerstoworktogethertomakeimprovementsintheirlocalarea,eitherinaparticularpathwayorforaparticulargroup ofpatients.
Thestrategicclinicalnetworksaredesignedtoimprovelocalaccountability.Theywillbeexpectedtoinvolvepatientsandthepublicbysupportingrobustengagementprocessesthatwillinformthestrategicdevelopmentofservices.
BecauseMSLCshavebeensosuccessful,therearegoodreasonstokeepthemintheirexistingform:
• MSLCsplayauniqueroleinthehealthservice.WhilematernityservicessharemanyofthechallengesfacedbyotherNHSservices,thesectorisuniqueforthreereasons:amaternityepisodestartswithonewomanandherpartner,andendswithafamilyofthreepeopleormore;themajorityofwomenandbabiesreceivingcarearenotill,butfitandhealthy;andtimingofactivityisunpredictable–itcannotbedemand-managedorcontrolledthroughreferrals.Thereforethedesignandprovisionofthistypeofcarecannotbesupportedbygenericpatient/userrepresentationorfeedback.3
• Effectiveengagementwithusersofservicescanhelptodeliverinclusiveandsuccessfulcommissioning.Aservicesupportedbyawell-functioningMSLCwillbeaccessibleandattractivetowomen,trustedandvaluedbyexpectantandnewparents.Meaningfulengagementisabout
Fourstrategicclinicalnetworkswillbeestablishedimmediately,oneofwhichwillcovermaternity&children.Othersmayfollowatalaterdate.
Thestrategicclinicalnetworkshavealreadybegunclarifyingtheirworkplanandshouldbesettingupaseriesofmeetingstoagreethedetailedmechanismsbywhichtheywillengagewithpatientsandthepublic.TheexistingMSLCsineachareateamshouldbeinvolvedinthisprocess.
Healthwatch
ThenewcommissioningstructurewillseethecreationofHealthwatch,alocalindependentconsumerchampionforhealthandsocialcarethatgivescitizensandcommunitiesastrongervoice.
HealthwatchwillhaveaseatonthenewstatutoryHealthandWellbeingBoards.ItsrolewillbetomakesurethattheviewsandexperiencesofserviceusersaretakenintoconsiderationwhentheJointStrategicNeedsAssessment(JSNA)isbeingundertakenandtheHealthandWellbeingStrategy(HWBS)isbeingdeveloped.ClinicalCommissioningGroupswillneedtotaketheJSNAandHWBSintoconsiderationwhendecidingoncommissioningpriorities.8
HealthwatchwillcarryforwardthefunctionsofLocalInvolvementNetworks(LINks)withsomeadditionalfunctionsandpowers.9 BecauseMSLCshavehistoricallyhelpedinformdecision-makingincommissioningmaternityservices,theroleofLINkshasbeentofocusontheneedsoftheelderlyandpatientswithlong-termmedicalconditions.Ourviewisthat,becauseHealthwatchtakesforwardthehistoricfunctionsofLINks,itisnotcurrentlyinagoodpositiontorepresenttheneedsofpeoplewhousematernityservices.
Specialised services
Previously,specialisedservices,whichtreatpatientswithrareconditions,werecommissionedbyPCTs.Underthenewcommissioningstructure,theywillbedirectlycommissionedatanationallevelbytheNHSCommissioningBoard.
Thespecificationforeachrelevantspecialistserviceincludesaparagraphsettingouttherequirementsinrelationtospecialistmaternalcare.Whentheyplantheircommissioningformaternalcare,CCGswillneedtomakesurethatthecommissioningincludesspecialistcarefromprovidersdeliveredwithinadedicated,multi-disciplinaryservicestaffedbyamaternal
establishingrobust,userfriendlyandsustainablemechanisms,notaboutone-offactivities.4
• TheMSLCremitistobeamultidisciplinaryindependentadvisorygrouptothecommissioners.5Itisnotausergroup–thesuccessofMSLCsderivesfromtheirroleasadiscussionforumforavarietyofpartiesinvolvedinmaternityservices.Theyenabledifferentviewstobedebatedandfortheresultingconsensustobefullyintegratedintodecision-makinginaneffective,timelyandappropriateway.
• MSLCshavebroadsupportfromallpartiesinvolvedinmaternityservices:midwives,obstetriciansandusers(see‘Intheirownwords’onpage11).
AhistoryofpoliciesaffectingMSLCsisgivenintheappendix.
medicinespecialist,aphysicianandsupportingmulti-disciplinaryteam.
Friends and family test
Thechangestothecommissioningstructureareinformedbyacommitmenttomakingservicesmorepatient-centred.ThemandatetotheNHSCommissioningBoardrequirespatientstohaveapositiveexperienceofcare.EverypatientwillbeabletogivefeedbackontheircareintheformofaFriendsandFamilytest–thiswillbeasimplequestionsuchas,‘Howlikelyareyoutorecommendthisservicetofriendsandfamilyiftheyneededsimilarcareoftreatment?’ThetestwillbeintroducedforusersofmaternityservicesfromOctober2013.ThedataderivedfromthistestcanbeusedtoinformMSLCdiscussionsanddecision-making.
The role of MSLCs – and why we need them
MSLCs and the new commissioning structure in England
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WebelievethatMSLCsrepresentthebestmediumforprovidingavoiceforusersofmaternityservices,andwerecommendthatCCGs,HealthwatchandHealthandWellbeingBoardsexploretheroleMSLCscanplaywithintheirlocality.Thediagramoppositeshowshowwethinkthefourorganisationalroleswouldfittogether.
How MSLCs fit into the new structure in England
TomakesurethatMSLCsareeffective,theyshouldincluderepresentativesfromthekeycommissionerandproviderbodiesrelevanttomaternity.ThesebodiesshouldacknowledgethepivotalroleoftheMSLCanddemonstrateclearlinesofcommunicationandaccountabilityinrelationtotheMSLCwithintheirowntermsofreference.Maternityexperienceevolvesallthetime,andisdependentonboththeshapeofservicesandonthesituationsofwomenandtheirfamilies.Forthatreason,constantfeedbackisneededfroma diverserangeofcurrentserviceusers.
Bylisteningtoserviceusers,andlinkingtheseviewswithwell-informed,evidence-basedinputfrommoreexperienceduserrepresentatives,healthprofessionalsandcommissioners,MSLCshaveanimportantroletoplayinthecommissioningandprovisionofwomen-centred,high-qualitymaternitycare.AllcommissionersinEnglandshouldbemakingarrangementstoimplementaphilosophyof‘Nodecision aboutmewithoutme’,usingtheMSLCas a model.7,3
Department of Health
NHS Commisioning BoardAllocatesresources,overseesCCGs,developscommissioningguidelines.Supportsclinicalnetworks.Isresponsiblefor
neonatalcarecommissioning.
Public Health EnglandResponsibleforhealth
improvement
Local Authorities HostdirectorsofPublicHealth.
FundandholdlocalHealthwatch(formerlyLINks)toaccount.
Clinical Commissioning Groups (CCGs)
Holdbudgetsandcommissionservicesfromvariousproviders.
NHS Commissioning Board LocalAreaTeam
User/parent/ community groups
MSLCAdvisesCCGs.Gathersviewsofserviceusers.
HasstronglinkstoMaternityServiceProviders,StrategicClinicalNetworks,HealthandWellbeingBoardsandlocalHealthwatchregardingJointStrategic
NeedsAssessmentandHealth&Wellbeingstrategydevelopment.
Commissioning Support Service (CSS)
SupportsCCGsin deliveringcommissioning.
Note:ThestructuresinWales,Scotland,NorthernIrelandandtheChannelIslandshavenotchanged.
Health and Wellbeing Boards Co-terminouswithlocalauthorities,theywillscrutiniselocalhealthprovision.Willleadonpublichealthinitiativessuchasteenagepregnancy,smokingcessation.Theyhaveadutyto
ensurecommissioningofhealthandsocialcarejoinupatlocallevel,basedonproperassessmentofneedsandjointstrategies.
GP PracticesAllGPpracticesmustbe
membersofCCGs.
Providers Hospitalobstetricunits,midwiferyledunits,homebirthservices.
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whentheyspeaktoparents.Thewalkersmeetwithanamedmidwiferymanagertoreceiveabriefingaboutanyclinicalissuesthatmightimpactonthevisit.Userrepresentativesmeetthewomenandtheirpartners,withtheiragreement,withoutstaffmemberspresent.Feedbackfromtheone-to-oneor(sometimes)groupdiscussionsintheclinicalareasvisitedcanbediscussedimmediatelyattheMSLCmeeting.‘Walkingthepatch’feedbackisconsideredahigh-priorityagendaitem.
Commentsfromwalkersinclude:
‘Fantastic to meet mothers in the early postnatal period or antenatally to hear about their experiences first hand.’
‘Good opportunity to meet a truer cross section of the community.’
ManyMSLCshavenowadopted thisactivity.
Tell Your Story and Make a Difference
InHove,theMSLChassetupaparents’groupthatallowstheparentrepresentativesontheMSLCtomeetseparatelyeverytwomonthstodiscussissuesinmaternitycare.TheyagreetheissuestheywouldliketoraiseatthenextMSLCmeeting,andagreewhichoftherepresentativeswillattendthemeeting.
Lunch,travelexpensesandchildcare areprovided.
Using Social Networks to Build a Following
BrightonandHoveMSLCusedagrantfromaDepartmentofHeathfundinginitiativeintheareatodevelopanonlineinformationhubforantenatal,birthandpostnatalservices.Thelaychair,HannahSherlock,obtainedspecialistone-to-onetrainingfromasocialmediaconsultancyabouthowtobuildandmaintainasimplewebsite,createaFacebookpageandbuildafollowingonTwitter.Historicallyithasbeenachallengetoencourageabroadrangeofparentsfromdifferentcommunitiestogetinvolved,butbyusingsocialmediatheyhopetoreachawideraudience.PostingviewsonFacebookonlytakesacoupleofminutes,andismuchlessofacommitmentthangivingupafewhourstoattendacommitteemeetingorfillinaconsultativeresponse.TheviewsfromsocialmediaarethenfedintodiscussionswithprovidersandcommissionersattheMSLCmeetings.HannahSherlockisnowsharinghernewlyacquiredskillswithotherMSLCswithinSussex.
How MSLCs work: someexamplesofgoodpracticeBelowaresomecasestudiesdemonstratinghowMSLCsareableto respondeffectivelytotheneedsofserviceusers.
Talkback: A Strategic Approach To Working With Maternity Service Users
FollowingareviewofuserinvolvementwithinthelocalmaternityserviceinStockport,theMSLCdevelopedastrategicapproachtobuildingthecapacityofserviceuserstoworkwithcommissionersandproviders.Talkbacksessions,fundedbythePCT,werearranged,aimedatgivingmaternityserviceusersanopportunitytofeedbacktheirexperiences.Theseincludedspecificsessionstargetingseldom-heardgroupssuchasteenagers,fathersandMuslims.Over100parentssharedtheirexperienceswithlocalmidwiveswhosolicitedanswerstothefollowingquestions:
• Whatwentwell?
• Whatcouldhavebeenbetter?
• Doyouhaveanysuggestionsforimprovingourservices?
Thiswasthensharedwithstaffandlocalserviceuserswhohadindicatedtheywouldliketobefurtherinvolved.Asaresult,theTalkbackgroupwasformed,withapproximately12membersateachmeetingfromamailinglistof40.TheMSLCwasthenreinstated,withserviceusersforming75%ofthemembership.TheMSLClaychairattendsMaternityServicesBoardmeetings.
InanarticleinPractising Midwife,consultantmidwifeDebbieGarrodwrote,‘Thecontributionofserviceusersinmovingourserviceforwardisinvaluable.Theymakedecisionsthatmatter.’10
In Your Shoes
APCTcommissioningmanagerinNewhamrecruitedafacilitatortorunaneventataninnerLondonChildren’sCentre,toprovideanopportunityforlocalwomentosharetheirstorieswithmidwives.ItwasalsoachanceforlocalwomentofindoutwhatanMSLCisandhowuserinvolvementcouldimprovelocalmaternityservices.
Interpreterswereonhandforfourdifferentethnicgroups(Bengali,Somali,ChineseandPolish),andlunchwasprovided.Theeventwasattendedby39people,includingtheheadofmidwiferyandnumerousmidwivesfromthelocalhospital.Eachwomanwasgivenanopportunitytotellherbirthstorywithoutinterruptionfor10minuteswhileothersinthesmallgrouplistenedtoeachstory.Thegroupwasthenaskedtohighlightthreethingsthattheylikedaboutthematernityservicesandthreethingsthatneededsomeimprovement,andtogethercomeupwithsomesuggestionsforthose
improvements.Discussionbetweenthewomenandthemidwiveswasverylively.
Afterlunch,auserrepresentativefromthelocalTowerHamletsMSLCcametotalkaboutwhyshebecameauserrepresentative,howtheMSGworks,andhowtheusergroupinTowerHamletshadinfluencedchangesinmaternitycarethroughtheMSLC.PeopleinterestedinjoiningtheproposednewlocalMSLCweretheninvitedtogivetheirnamestothePCTcommissioningmanagerandtosuggestdifferentwaysinwhichtheyfelttheycouldbeinvolved.Givingpeoplearangeofoptions,orevenaskingthemtosuggesthowtheymightwanttobeinvolved,offersagreateropportunitytoengageawiderangeofwomenthanaskingthemtofillinaquestionnaireorattendameeting.
Walking the Patch
WalkingthePatchwasanideaoriginallydevelopedbyprofessorofmidwiferyJacquelineDunkley-Bent,headofmidwiferyeducationatLondonSouthBankUniversity,andHazelJones,formerjointchairoftheMSLCatGuysandStThomas’sNHSFoundationTrust.11‘Walkers’areuserrepresentativeswho,onehourbeforeanMSLCmeeting,visitwomenandtheirpartnersonthepostnatalwardsandsometimesinantenatalclinicsandbringtheirviewsdirectlybacktothecommittee.Theyhaveaguidancesheettohelpthem
Tower Hamlets MSLC Project
In2008,TowerHamletsPCTcommissionedSocialActionforHealth,acharitybasedinEastLondon,toengagelocalmothers,especiallyfromtheSomaliandBengalicommunities,toinvolvethemintheirMSLCandconsultthemabouttheirexperiencesofusinglocalmaternityservices.Womenwereengagedthroughanexistingconsultationprocesswithlocalpeople,knownashealthguides.Thesehealthguidesessionswereonehourlong,withupto20people,andfacilitatedbyworkerstrainedtorunsessionsinBengali,Somali,Turkish,Gujarati,Urdu andCongolese.
Thesessionsrecruitedmorethan30interestedwomenfromanumberofdifferentcommunitiesincludingChinese,NigerianandIndian.NinewomenwereselectedtorepresentthesecommunitiesatMSLCmeetings.AnNCTVoicestrainingworkshop,designedtopreparepeopletoworkeffectivelyaspartofacommittee,washeldforcommissioners,healthprofessionalsandthenewuserrepresentativesbeforethefirstMSLCmeeting.(Thisworkshopisshowninthephotographbelow.)
TheMSLCwaslaunchedatapubliceventattendedby91localpeople.ADVDhasbeenproducedwithuserrepresentativesinforminglocalwomen,intheirownlanguages,abouttheMSLCandhowtheycangettheirviewsheard.
Between2009and2011,acollaborationbetweentheMSLCandamothers’networkcalledtheMothersSupportGroup(MSG)resultedin10communityengagementsessionscarriedoutinseveraldifferentlanguagesincludingBengali,Chinese,Somali,LithuanianandUrdu.
TheMSG,nowmadeupof53womendrawnfromthesesessions,aimstocreateasupportivenetwork,developingconfidenceforlocalwomentoattendandspeakupatMSLCmeetingsaswellasincreasingawarenessofhowtheservicesoperate.
Women’sstories,usergroupreflectionsandlocalsurveyswereusedtobringaboutchangetoanaspectoftheservicesthathadconcernedmanywomenfromethnicminoritygroups–thatofstaffattitude.Theirviewswerefollowedupbyaconsultantmidwifewhoworkedoninfluencingmidwivesthroughsupervision,encouragingthemtoreflectontheirbehaviouranditsimpactonwoman’sexperiences.Thisworkresultedinareductioninthenumbersofcomplaintsandincreasedsatisfactionwiththematernityservices.
The way forwardUnderthenewcommissioningstructure,theroleplayedbyMSLCswillbemoreimportantthanever.Below areourrecommendationsforhowMSLCscanbestrengthenedandmaintainedatbothlocalandnationallevel.
Local recommendations
To get the best out of your local MSLC:
• ReviewtheroleofyourlocalMSLCandexplorenewmechanismsforeffectivelyworkingtogetherwithinthecommissioningstructures.
• Celebrateandbuildonpast MSLCsuccesses.
• Highlighttheirroleandstatus andestablishsoundcommunicationlinkswithincurrentandnewlydevelopingstructuresforcommissioningmaternityservices.
• ReviewtheirmembershiptotakeaccountofthelocalpopulationinlinewithHealthcareCommissionindicatorsforsuccess(seeappendix).
• Reviewtheeffectivenessoftheiruserengagementmodelsand,whereappropriate,drawonbestpracticetodevelopthese.Inparticular,findwaysofsolicitingtheviewsofthosefamiliesnewtotheUK,non-Englishspeakers,oldermothers,teenagers,fathers,disabledwomen,womeninprisonandotherfrequentlyoverlookedgroups.
• Reviewanddevelopthelinkswiththelabourwardforumorotherrelevantclinicalforumsornetworks.
National recommendations
• AttentionshouldbepaidtothewayinwhichMSLCscanbeintegratedintoanyfuturematernitynetworksorotherpotentialnewstructuresdevelopedforcommissioningservices.
• Guidelinesregardingpaymentofexpensesforserviceusersshould bestrengthened.Theabilitytomakepromptpaymentofexpensesislikelytoimprovetheinvolvementofserviceusersfromdisadvantagedbackgrounds.
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• ‘Iwouldn’twanttolosetheMSLC.Itispartofthewaywework.Itisamoreefficientwayofworkingindevelopingservicesandchangingpractice.Toloseitwouldbearetrogradestep.’ Head of midwifery and former LSA Midwifery Officer
• ‘Asacommissionerofmaternityservices,IhavefoundtheMSLCtobeaninvaluableresourceintermsofdrivingforwardchangeandserviceimprovement,anditformsakeyelementofthePCT’sgovernanceframeworkinrelationtomaternityservices.TheMSLCofferscommissionersofmaternityservicesavitallinktothepeopleaccessingandusingtheservicesforwhichtheyareresponsible.Realandeffective
user-ledengagement,throughthemultidisciplinaryteamthatformstheMSLC,providesbothcommissionersandproviderswithaforumfordebatinglocalmaternityservices.’ Maternity Services Commissioner
• ‘Ijoinedthecommitteeasawayoftryingtogivebacksomethingtothecommunityandhelpingtoimprovethecareforusersofmaternityservicesat…...[Hospital].’User representative
• ‘Involvingpatients/serviceusersallowsaccesstoexpertisethatcliniciansandmanagersdonothave,asnotonlydoserviceusersbringtothetabletheirunique,individualexperienceofhavingusedaspecifichealthservicebutalsoawiderangeofotherexperiences
andexpertisefromtheirownworldofwork.Serviceuserstendtohaveanoverallviewofhowawholepathwayofcareworksratherthanjustseeing,thesometimes,isolatedaspectsofcarethatindividualhealthprofessionalsareawareof.Theyareabletohighlighttheimpactofcareonfamilylife.’Healthcare Commission
• ‘MyroleontheMSLCistorepresenttheBlack&MinorityEthnicCommunitybyhighlightingissuesthatareinthecommunitywhichwouldberelevanttotheMaternityServices. User representative
Appendix: LegislationandguidanceonMSLCs fromtheUKhealthadministrationsandother healthbodiesTheDepartmentofHealthGuidelinesforMSLCs,producedforEnglandandlargelyadoptedforMSLCsinNorthernIreland,ScotlandandWales,clearlyidentifyMSLCSasplayinganimportantroleinadvisingonandmonitoringallaspectsofmaternitycare.Despitechangesofgovernment,policiesandsystemssincetheywerefirstintroducedin1984,thereisnoreasontosupposethatMSLCsareneededanylessnow.
A2007reviewofmaternityservicesinEnglandbytheHealthcareCommissionstatedthatPCTshaveadutytoensurethatMSLCsareinplaceandfunctioningproperlyiftheyaretomeettheirobligationofengagingstakeholderstoimproveservices.ThereviewputinplacefourindicatorstomeasurethesuccessoftheMSLCs:
• Atleast40%ofcommitteemembersareuserrepresentatives.
• AtleasttwominoritygroupsarerepresentedoneachMSLC.
• AtleastfourMSLCmeetingsareheld ayear.
• MSLCstosharerecommendationswithtrustboardorappropriatesubcommitteeatleastonceayear.12
Despitetheabundanceofpolicydrivinghealthservicestoinvolveusers,the2008reportTowardsBetterBirthsfoundamixedpicturewhenitcametothefunctioningofMSLCs.13Themajorityoftrusts(72%)hadcommitteesthathadmetatleastfourtimesinthepastyear,butonly41%oftrustsreportedsharingrecommendationsfromtheircommitteewiththetrustboard.WhilemostMSLCshaveaboutfouruserrepresentatives,seventrustsreportedhavingnouserrepresentativesontheMSLC.
Wheretheyareacknowledgedasvaluableandsupportedbycommissioners,theyoperateeffectivelyandcanhaveakeyroleintheplanning,monitoringandimprovementofhighquality,women-centredmaternityservicesintothefuture.Inotherlocalitiestheyneedreviewingandstrengthening.CurrentlywehaveauniqueopportunitytorenewmaternityserviceuserengagementandtheroleandremitofMSLCsforthefuture.
Inthe2010consultationdocument,LiberatingtheNHS:Commissioningforpatients,thecoalitiongovernmentfullysupportstheprinciplesofuserengagement,and states the need to:
• PutpatientsattheheartofeverythingtheNHSdoes.
• Focusoncontinuouslyimprovingthosethingsthatreallymattertopatients-theoutcomeoftheirhealthcare.
• Empowerandliberateclinicianstoinnovate,withthefreedomtofocusonimprovinghealthcareservices.14
Northern Ireland
NorthernIrelandguidelines,issuedinMay2009,statethatmaternityservicesneedtobeappropriate,acceptableandaccessibletothelocalpopulation.15Forthisreason,usersneedtobeinvolvedintheserviceimprovement,planningandmonitoring ofservices.
AllMSLCmembersshouldrecognisethepositivecontributionthatserviceusermemberscanmake.Theyshouldstrivetoensurebroadrepresentationandimprovetheireffectivenessthroughtheprovisionofsupportandtraining.ThismayincluderepresentationfromthePatientandClientCouncilbutshouldnotberestrictedsolelytotheirinputandshould,wherepossiblereflectthenatureanddemographyofthechildbearingcommunity.
IneachHealthandSocialCareTrust(HSCT)offeringmaternityservices,theremustbeaneffectivemultidisciplinaryMaternityServicesLiaisonCommittee(MSLC),wherecommissioners,providersandusersofmaternityservicesbringtogethertheirdifferentperspectives,toplan,monitorandimprovelocalmaternityservices.WherethereismorethanoneMaternityUnitwithintheTrusts,theTrustwiththeCommissionerwillneedtodecidethenumberofMSLCs.
Scotland
TheScottishHeathCouncilpublishedagoodpracticedocumentin2011highlightingtheresultsofvariousreviewsofUserInvolvementinMaternityServices,goodpracticeandmakingaseriesofrecommendationsforinvolvingwomenmoreeffectivelyinimprovingtheircare.16
WhilstacknowledgingtheroleoftheMSLCsinthepast,thereportalsohighlightedsomeoftheconstraintsofthiswayofworking,inparticulartheissueofnotalwaysengagingwiththe‘seldomheard’groups.ItsuggestsavarietyofdifferentmechanismsofengagementthatNHSBoardscould alsoutilizewhileemphasizingkeymessagesofaccessibility,meaningfulandsustainedengagement:
• Boardsshouldencouragetheuseoftoolswhichencouragewomentoprovidefeedbackduringhospitalvisitsor
treatmentmakinguseofwhatthewomencalled‘statictime’.
• Boardsshouldencourageuseofnewtechnologiessuchassocialnetworkingsitesandvirtualmeetingroomswhilerecognisingthatnoteveryonehasaccesstoweb-basedresources.
• Boardsshouldconsiderworkingmorecloselywiththirdpartyagenciessuchasexistingparentandcommunity,employmentoreducationgroups.
• BoardsshouldconsiderhowexistingNHScontactwithmaternityserviceuserscouldbeusedtowidenparticipation,suchasthroughhandheldrecordsandappointmentorreferralletters.
TheyconcludethattheintroductionofaParticipationStandard,coveringpatientfocus,publicinvolvementandrelatedgovernanceissues,shouldsupportthenecessaryculturechangewithinNHSScotlandtosupportsustainableinvolvement.
Wales
TheStrategicVisionforMaternityServicesinWalesstatesthatmaternityservicesshouldbedeliveredinpartnershipwithwomenandtheirfamilies,playingacentralroleinplanninganddevelopingmaternityservices,includingaddressingareasofweaknessandmonitoringprogress.17
MSLCsshouldhavemembersthatrepresentalltheprofessionalswhocomeintocontactwithwomenandtheirfamiliesduringthetransitiontoparenthoodandonethirdofmembersoftheMSLCshouldbeuserrepresentatives.Avarietyofmeansmaybeusedtoinvolvepeopleandfindoutabouttheirexperiencesandconcerns,includingengagementwithdifferentcommunitiesandvoluntarysectorgroups,usingformalandinformalmethodstogatherevidenceandfeedback.InWales,headsofmidwiferyarecurrentlyexploringwaystoeffectivelystrengthenuserinvolvementinmaternityservicemonitoringandplanningthroughdevelopmentofMSLCsacrossWales.
In their own words serviceusersandhealthprofessionals
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8. HumphriesR,BuckD,HenwoodM,etal.DevelopingaJointHealthandWellbeingStrategy:frameworksforaction.TheLondonHealthandWellbeingPartnershipSupportProgramme.Availablefrom:http://www.kingsfund.org.uk/publications/articles/joint-health-and-wellbeing-strategy-guide
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AcknowledgementsOurthanksgotothemanypeoplewehaveconsultedinthepreparationofthisstatement.
DeniseBoulter–aNorthernIrelandCommissioner
ElisabethBuggins–ChairofBirminghamWomen’sHospitalandformerlyChairofBirminghamandtheBlackCountryStrategicHealthAuthority
MaxineBullen–ProjectLeadonMSLCsacrossSussexGeoffBurgess–SeniorNetworkProgrammeManager,SussexManagedClinicalNetworks
AshleyBrooks–PatientandPublicEngagementandPatientInvolvementCo-ordinator,SouthWarwickshireCCG
ElizabethDuff–SeniorPolicyAdviserNCT
GinnyEdwards–ServiceImprovementandKnowledgeManagementLead,HealthandWellbeingBoardImplementation,SocialCare,LocalGovernmentandCarePartnershipsDirectorateattheDepartmentofHealth
JanetFyle-ProfessionalPolicyAdviser, RoyalCollegeofMidwives
SineadHughes–PatientandPublicInvolvementLeadSouthernTrust,NorthernIreland
AnnJudges–formercommissioningmanagerofMaidstonePCT
LisaMarch–HeadofQualityLeicester,Leicestershire andRutlland
HeatherMellows–FRCOGProfessionalAdvisertotheDepartmentofHealth
JillMorrell–PublicCommunicationsLeadat CareQualityCommission
PaulaMurphy–HammersmithandFulhamLINksaHealthWatchPathfinder
HelenO’Dell–AssociateChiefNurse,WomenandChildren’sDirectorateandHeadofMidwifery,BrightonandSussexUniversityNHSTrust
LesleyPage–PresidentofRoyalCollegeofMidwives
JamesRansome–CommissioningManager,Kent
JessicaRead–LSAOfficer,NHSLondon
HeadsofMidwiferymeetinginWalesJuly2012– personalcommunication
DavidRichmond–VicePresident,RoyalCollegeofObstetriciansandGynaecologists
NicolaStevenson–PolicyResearcheratNHSConfederation
MelanieThwaites–AssistantDirector,ChildrenandFamiliesTeam.Leicester,LeicestershireandRutland
SylviaTidy–ChairofShadowHealthandWellbeingBoard,EastSussex
DrSuzanneTyler–StrategicMaternityLead,NHSSouthofEngland
JeremyTaylor–ChiefExecutive,NationalVoices
DavidWells–CHIMATDeputyDirectorandLocalNetworklead(http://www.chimat.org.uk/mslc)
JudithWright–DirectorofPublicHealth,WestSussexCountyCouncil
Chairs of several MSLCs:
PhilippaBennett–Chair,WestEssexMSLC
CynthiaClarkson–ExperienceduserrepLothianMSLC
LouiseGriew–Chair,SouthWarwickshireMSLC
RichardHallett–Chair,CrowboroughBirthingCentreMSLCandCoChairofEastbourneMSLC
GitteLindberg–Chair,Plymouth,WestDevon,EastCornwallandtheSouthHamsMSLC
AlisonLedward–Chair,MidSussexMSLC
HannahSherlock–Chair,BrightonMSLC
SeanaTalbot–Chair,SouthernMSLCNorthernIreland
CatherineTugnait–JointChair,HillingdonMSLC
Author GillianFletcherMBE–NCTVoicesco-ordinator
RegisteredCompanyName:NationalChildbirthTrust Registeredaddress:AlexandraHouse,OldhamTerrace,Acton,LondonW36NH.RegisteredCompanyNo:2370573 RegisteredCharityNo(EnglandandWales):801395 RegisteredCharityNo(Scotland):SC041592
©NCT2013maintainscopyrightonallcontentincludedinthisdocument.
Reprintorreproductionisnotpermittedwithout priorconsent.
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