loeffler writing sample 2_cpnn presentation__evaluating cancer survivorship care models
TRANSCRIPT
Cancer Survivorship in Washington, DC
Oct. 21, 2014
City-wide Patient Navigation NetworkDeena Loeffler, MA
Objectives
• Define survivorship
• Describe challenges for survivors in DC
Survivorship
NCI definition:
“In cancer, survivorship focuses on the health and life of a person with cancer post-treatment until the end of life.”
Source: National Cancer Institute Dictionary of Cancer Terms. Retrieved from: http://www.cancer.gov/dictionary?cdrid=445089
Main Survivorship Challenges
Physical/ Medical
Psychological
Social
Spiritual
Financial
Informational
Breast Cancer Survivor Focus Group: Washington, DC
• Major barriers: physical issues, practical life support, psychological and emotional support, interaction with clinicians
“We need to know what to expect.”
Survivor Barriers
• Ongoing issues with late effects
• General physical issuesPhysical issues
• Navigating financial, insurance and employment issues
Practical life support
• Increased access to psychosocial resources
Psychological & Emotional Support
• Sensitivity from providers
• Quality of communicationInteractions with
Clinicians
Effects for Breast Cancer Survivors• Cardiac issues• Fatigue• Lymphedema• Musculoskeletal
symptoms• Joint pain• Chronic pain,
including neuropathy
• Reproductive and sexual issues
• Recurrence, new breast cancers or other cancers
• Skin changes (due to radiation)
• Anxiety• Depression• Cognitive dysfunction• Decreased satisfaction with
life• Fear of recurrence• Poor body image• Post-traumatic stress disorder
• Employment and financial concerns
• Need for post-treatment education
Post-Treatment Care
Care management
Non-clinical resources
Survivorship care plans
Survivorship care delivery
Evaluating Cancer Survivorship Care Models: Project Overview
• Goal: Compare effectiveness of cancer survivorship models of care on patient-centered outcomes
Compare care models
according to survivor needs
Identify survivor
needs and gaps
Identify current
survivorship practices
Completed Project Activities
Secondary data analysis
Focus groups with survivors
Environmental Scan of
Commission on Cancer-
accredited programs
National Cancer Survivor Survey
Focus Groups
• Focus groups conducted in California, Montana, Illinois, South Carolina, New Jersey and Washington, DC
• Survivors of non-metastatic breast, colorectal or prostate cancer, 1-5 years post diagnosis, had completed active treatment and were diagnosed with cancer at 18 years or older
Identified Needs• Psychological Support
• Social Support
• Support to empower Patients
• Information and Resources
• Productive interaction with clinicians
• Coordination of and transitions in care
• Communication with clinicians
• Provision of full spectrum of care
• Medical home
• Practical life support
CPNN Connection
• Do your patients experience similar issues?
• What do you do to help them navigate these barriers?
• How can we disseminate information from our project to your patients?
Questions?
Thanks!
Deena Loeffler