living well' conference 2013: extending our services: reaching out from our national centre
DESCRIPTION
The development of Penny Brohn Cancer Care's 'Living Well' services nationally. Georgia Diebel, Head of Living Well Services (External), Penny Brohn Cancer CareTRANSCRIPT
Extending our Services: Reaching out from our National Centre
Georgia Diebel Head of Living Well Services (External)
Penny Brohn Cancer Care
Principle 8: Supporting self management
Supporting self management is about helping people help themselves
through taking action to maximise their recovery and helping them to
sustain that recovery.
Cancer patients should be better informed about the choices they make
to have a positive impact on their future health and wellbeing.
Innovation to Implementation: Stratified pathways
of care for people living with or beyond cancer A ‘how to guide’ 2013
In 1987 Penny wrote…
“If we shift the responsibility for health so that it is
no longer exclusively in the doctor’s hands, but
allow the patient to play a part as well, we go a
long way towards relieving feelings of
helplessness and futility.”
All people affected by cancer can access the
support they need as close to them as possible.
Living Well – our aim
Regional hubs
We established 4 regional hubs in 2012
South West
Midlands
North
London & South East
Support for people affected
by cancer and their loved ones
Living well course design
Living Well aims to help people manage the, psychological emotional, financial, physical, social and spiritual impacts of cancer.
The approach is patient-centred with emphasis on informed choice, personal control and making sustainable lifestyle improvements.
We can design our Living Well course to meet the needs of a specific group; for example courses for prostate, breast and colorectal cancer patients.
We deliver the course in a choice of formats – weekly over 4 or 7 weeks, over 3 days delivered together or 3 days over weeks.
Living well course design
Each course is facilitated by our trained facilitators.It offers peer support, lifestyle recommendations, self-help
tools, and action plan goal setting focussing on:
Nutrition Exercise Relaxation / stress management Emotional support Managing the impact on close relationships Financial / welfare issues
Cancer impacts the whole person
Psychological
Spiritualpurposemeaning
Financial welfare
Relationships
Emotions
Physical
Impact on Whole person
43 trained Facilitators
Training & Development Manager
Attaining Open College Network Accreditation (OCN)
Facilitator training and accreditation
Service implementation
Induction Project planning Identify potential partner(s) Develop partnership opportunity Agree terms Scope venues Notification submitted Central administration Minimum 12 week lead-in time to delivery
Third sector services – part of the personalised care pathway and cancer aftercare services
Part of the responsibility of the team is to build and develop relationships through cross boundary working; in order to foster an understanding and respect for each other’s roles
Cross boundary professional working
Cancer Teams in NHS Trusts & Networks - Hull, Arden, Stafford, Stoke, Swindon, Yeovil, Northwick Park, Southampton and Isle of Wight
Cancer Information Centres -The Mulberry Centre at West Middlesex University Hospital, Dimbleby Cancer Care Centre at St Thomas’ Hospital
Hospices – Great Oaks in the Forest of Dean, St Mary’s in Birmingham, Thames Hospice in Ascot
Local charities e.g Cancerwise in Chichester, The Cancer Support Centre in Sutton Coldfield, Her Breast Friends in Hull and East Riding of Yorkshire
Supra-regional charity - It’s in the Bag, Bristol and South West National charities – Prostate Cancer UK, Target Ovarian Cancer Private health care - Spire
Venues
Social enterprise & local community buildings Training & conference centres Cancer information centres Hospital education centres Hotels
Challenges & learning
Unfamiliar organisation and product HCPs are busy Local LWDM - out of area courses more challenging Local champion(s) to promote/recruit Rural versus central venues Ensure adequate lead-in time Central administration Unpredictable client circumstances
Total no. bookings No. cancellations No. clients accessing follow-on services
No. attendees
Nu
mb
er
of
booki
ng
s
600
500
0
Bookings for external courses
September 2012 to October 2013
400
300
200
100
569
392
177
41
Overall course attendance
September 2012 to October 2013
Very good attendance (9 or more)
Good attendance (7 or 8)
Adequate attendance (5 or 6)
Low attendance (4 or less)
Patient experience
“I attended the Living Well course in January 2013 in Hull. I believe that it was the first Living Well course to be held in the City. I have to admit that I had never heard of Penny Brohn Cancer Care and I had to do a little research on line beforehand. Although I didn’t know it at the time, I was about to embark on an inspirational journey of discovery and I am so thankful that I was given the opportunity to do so. If the course had not been offered in the North, I don’t think I would ever have learned about Penny Brohn Cancer Care and it’s complementary support.”
Funding
18 month project May 2012 to Oct 2013
Funding for minimum of 32 courses
Aim to deliver 40 courses if additional funding secured
Midlands South West London & South East
South Coast ScotlandNorth
Nu
mb
er
of
cou
rses
12
10
8
6
4
2
0
Seed funding Partnership or new funding
Funding of external Living Well courses
September 2012 to October 2013
Funding of external Living Well courses
November 2013 onwards
Midlands South West London & South East South CoastNorth
Nu
mb
er
of
cou
rses
6
5
4
3
2
1
0
Seed funding Partnership or new funding
External Living Well course costs
Number of courses
Living Well courses began in January 2010
By end October 2011 45 courses August 2012 100 courses October 2013 223 courses
Regional Living Well courses
Carolyn Foster-RichardsNorth
CottinghamHullSheffield
Nicky BancroftMidlands
Coventry
Sutton Coldfield
Birmingham
Nuneaton
Stafford
Leamington Spa
Stoke-on-Trent
Forest of Dean
Cheltenham
Swindon
Yeovil
South West
Southampton
Chichester
Isle of Wight
Portsmouth
Kathy Adams/Moira BremnerSouth Coast
Harrow
WestminsterIsleworth
Hackney
Croydon
Purley
Chesham
Ascot
Supriya MoreLondon & South East
Patient experience
“The Living Well course has shown me how I can help and support myself physically, emotionally and spiritually. It has placed me on a pathway of learning and understanding and allowed me to make choices which have had a positive benefit on my health and which keep my body and mind well.…. And the best thing is, I feel amazing.
Cancer has made a massive impact on my life. So has Penny Brohn Cancer Care”.