Live well with Dementia:

an achievable goal

Age UK Brent ConferenceCarolyn Denne

October 2013

What I will cover

• SCIE, NICE and NCCSC – roles in quality improvement

• Supporting people to live well with Dementia

• Resources that can help

The ‘Mum (in-law) test’

Driving up quality to improve health and well-being of people living with dementia

What is SCIE?

Independent national charity since 2001 Identify and spread knowledge about ‘what works’ in

social care – adults, children, families in the UK Improvement support for practice - personalised

services - practitioners, managers & sector leadership

Co-production - experience and expertise of people using services at the centre of our work

How health and social care work together to enable best outcomes for people

http://www.scie.org.uk/

What is NICE?

Non Departmental Public Body (NDPB) - national guidance and advice to improve health and social care.

Estbl.1999 - National Institute for Clinical Excellence - special health authority to reduce variation in the availability and quality of NHS treatments and care

From 2005 - public health guidance to help prevent ill health and promote healthier lifestyles.

April 2013 - Health and Social Care Act 2012 - became a NDPB and took on responsibility for developing guidance and quality standards in social care (NB name change)

http://www.nice.org.uk/

NICE role in social care

Guidance based on best available evidence – with comprehensive set of recommendations

Quality standards based on guidance – prioritised set of statements designed to drive quality improvements across pathway of care (‘aspirational but achievable’)

Markers of high quality, cost-effective care - interfaces across NHS, Public Health, Social care

Early topics – include Quality Standard on Supporting people to live well with dementia

NICE Collaborating Centre for Social Care - NCCSC

Partnership, led by SCIE: Rooted in the social care sector – specialists Good stakeholder knowledge and networks Reputation for working with people using services,

their families, carers and networks Dissemination and adoption (evidence into

practice) built in from start of the guidance development process Includes Quality Standards.

NICE Social Care Guidance(Referred to NICE by DH)

Home care Older people with long-term conditions Transitions between health and social care Transitions from children’s to adults’ services Child neglect (TBC)

Quality Standards

Dementia Looked-after children and young people Mental wellbeing of older people in care

homes Autism in children, young people and adults

Short guidance Managing medicines in care homes

1. Can discuss concerns and options re seeking diagnosis

2. Choice and control in decisions affecting care and support.

3. Participate in review of needs and preferences when things change

4. Enabled to take part in activities during their day based on choice

5. Enabled to maintain and develop relationships

Quality statementsPeople with dementia – involving carers

Contd...

Quality statements (II)People with dementia – involving carers

6. Enabled to access services that help maintain physical and mental health and wellbeing.

7. Live in housing that meets their specific needs.8. Have opportunities to participate in and

influence design, planning, evaluation and delivery of services.

9. Enabled to access independent advocacy services

10.Enabled to maintain and develop involvement in and contribution to community.

Dissemination and adoption support (NCCSC)

Awareness – new initiative for the social care Practical support – evidence into practice – examples

& signpost Key audiences

public/ people affected by dementia ‘Professionals’ Commissioners Providers

Work closely with them to produce resources Providers; carers, friends and advocates (Dec/Jan)

xxxxxxxxxSCIE Resources

Dementia Gateway: advice, information and training materials

Social Care TV films

eLearning: The Open Dementia Programme

Dementia Gateway features

SCIE’s Dementia Gateway is: focused on understanding the person with

dementia as an individual evidence based, reliable and practical comprehensive covering over 70 topics written in Plain English

SCIE’s Dementia Gateway is:

focused on understanding the person with dementia as an individual

evidence based, reliable and practical written in plain English.

Gateway features 2

regularly updated and written and quality assured by experts

accessible – information is presented in a range of formats including print and film, and can be found by topic or by audience (New feature)

mapped to the Qualifications Credit Framework, thereby supporting training and development. (New feature)

regularly updated and written and quality assured by experts

accessible – information presented in a range of formats including print and film, and can be found by topic or by audience (New feature)

mapped to the Qualifications Credit Framework, thereby supporting training and development. (New feature)

Gateway features 2

regularly updated and written and quality assured by experts

accessible – information is presented in a range of formats including print and film, and can be found by topic or by audience (New feature)

mapped to the Qualifications Credit Framework, thereby supporting training and development. (New feature)

Focus on topics that people with dementia and carers have told SCIE are important.

Redeveloped Gateway – launching soon – will cover over 70 topics/ aspects grouped under three main headings:

Understanding dementia Living with dementia Dementia-friendly environments

Gateway features 2

regularly updated and written and quality assured by experts

accessible – information is presented in a range of formats including print and film, and can be found by topic or by audience (New feature)

mapped to the Qualifications Credit Framework, thereby supporting training and development. (New feature)

Other SCIE Resources to support improvement for people living with dementia include:

Integration tool – to help assess joined – up working

Co-production Mental Capacity End of Life Care Consultancy support

The ‘Mum Test’ and Dementia Challenge in Brent

Thank you!!

Carolyn.denne@scie.org.uk