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LEND Directors MeetingDay One
June 7, 2018
Overview
Goal: To promote program-level growth and
network-level capacity building through:
• Facilitated networking opportunities
• Sharing ideas/strategies/approaches
• Supported action planning
Day One
• MCHB update
• ITAC update
• Peer small group check-in
• Interactive Workshop A
• Summary of transition activities
• Choose your adventure!
– Transition interest meeting, Autism CARES reauthorization Q&A, or Director-generated “Open space” discussions
Day Two
• Overview of new AUCD strategic priorities and related business
• Peer small group check-in
• Developing leaders with ASD/DD
• Interactive Workshop B
• LEND Regional meetings
• Peer small group check-in (cont.)
• Conclusion and evaluation
Housekeeping
• Communication best practices
– Wait for the microphone
– State your name and program
• Attend the workshops you signed up for
(indicated on name badges)
• Write ideas for “Open space” discussions
on mural paper during breaks
MCHB Update
Lauren Raskin Ramos, MPH
Director, Division of MCH Workforce Development
Maternal and Child Health Bureau and Division of MCH Workforce Development UpdatesLEND Directors MeetingJune 7, 2018
Lauren Raskin Ramos, MPHMaternal and Child Health Bureau (MCHB)Health Resources and Services Administration (HRSA)
Presentation Outline
• HRSA/MCHB Updates
• DMCHWD Activities
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Priority Areas
• Behavioral/mental health
• Telehealth
• Opioid misuse
• Childhood obesity
• Dissemination of programs and impact
• Innovation
• Collaboration
9
FY 2018 MCHB Appropriations
FY 2018 Total Budget - $1.29 Billion
Existing Programs With Funding Increases
• Title V
• Healthy Start - Autism, EMS-C, and Heritable Disorders
• Family-to-Family Health Information Centers
Newly Funded Programs
• Screening and Treatment for Maternal Depression Program
• Pediatric Mental Health Care Access Program
• Infant-Toddler Court Teams
10
Anticipated DMCHWD and Autism Competitions
FY18• Developmental Behavioral Pediatrics Program• MCH Nutrition Training Program • Childhood Obesity Challenge • Pediatric Mental Health Care Access ProgramFY19• Healthy Tomorrows Partnership for Children Program • Autism Secondary Data Analysis Research Program• Autism State Systems Development Program
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Upcoming DMCHWD Activities
• MCH Leadership Competencies release
• Childhood obesity
• Behavioral and mental health
• Telehealth
• Program impact
• DGIS measures implementation
• Autism CARES virtual grantee meeting
• DMCHWD virtual grantee meeting
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MCH Training Programs: By the Numbers
In Fiscal Year 2015, DMCHWD awarded over 150 grants – a $47 million investment
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29,520
5,772 2,208
Short-term trainees
Medium-term trainees Long-term trainees
FY 2015 DGIS data
292,460 MCH professionals received continuing education
LEND Long-Term Trainees by Discipline
Audiology5%
Dentistry2%
Education/Special Education
4%Epidemiology
0%
Family/Parent/Youth Advocacy
6% Genetics/Genetic Counseling
3%Health Administration
1%Law0%
Medicine8%
Nursing3%Nutrition
2%
Occupational Therapy6%
Other8%
Physical Therapy6%
Psychiatry1%
Psychology29%
Public Health2%
Respiratory Therapy0%
Social Work7%
Speech-Language Pathology
9%
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Former LEND Trainees
81%
83%
87%
FY 2015 DGIS data
75%
Work in an Interdisciplinary Manner
Working with MCH Populations
Demonstrate Field Leadership
Working with Underserved or Vulnerable Populations
81%
83%
87%
75%
LEND NCCs
• The LEND programs recently completed their Non-Competing Continuations (NCCs) and we were able to gain network wide information on:
o Transition activities in the networko Opioid/Neonatal Abstinence Syndrome (NAS)- clinical, didactic, curricular enhancements in
programs.o Supplement activities around Zika and Audiologyo Emerging issues in the field of NDDo Technical assistance needs of programs for AUCD and MCHB to address
• Some of the information was summarized and shared with AUCD for this LEND Directors’ meeting to:
o Help get the conversations goingo See if any gaps exist that the network wants to tackleo Ascertain next steps in terms of new workgroups, products needed, and so forth
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Questions
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Contact Information
Lauren Raskin Ramos, MPH
Division of MCH Workforce Development
Maternal and Child Health Bureau (MCHB)
Health Resources and Services Administration (HRSA)
Email: [email protected]
Phone: (301) 443-6091
Web: mchb.hrsa.gov
Twitter: twitter.com/HRSAgov
Facebook: facebook.com/HHS.HRSA
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Connect with HRSA
To learn more about our agency, visit
www.HRSA.gov
FOLLOW US:
Sign up for the HRSA eNews
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ITAC Update
ITAC Update
• Key Staff
• ITAC Goals, revisited
• Activity Highlights
– Evaluation and Needs Assessment
– Trainee Engagement
– Data Management and Reporting
• Strategic TA Priorities for 2018-2019
• What’s Coming Next?
Ben Kaufman, MSW
Sr. Manager, MCH
Technical Assistance
Sarah DeMaio, MSW
Program Manager, MCH
Technical Assistance
Christine Liao, MSW
Sr. Program
Specialist, MCH
Technical
Assistance
Luis Valdez, MPH
Program
Specialist, MCH
Technical
Assistance
Natalie Martinez, BA
Data Support
Manager
Dawn Rudolph, MSEd
Sr. Director, Technical
Assistance and
Network Engagement
Joined February 2018!Joined March 2018!
Key Staff
Key Staff
Sylvia DeMaio
Jr. Giggle Specialist
Caroline Martinez
Manager, Fun
Goals
• Provide comprehensive technical assistance (TA) to LEND and DBP programs, audiology supplement recipients, and other CARES/MCH Training partners.
• Collaborate with and coordinate efforts among key public and private stakeholders who seek to improve the health and well-being of people with ASD/DD and create optimal systems of care.
• Perform data management and analysis to support the ongoing development and achievement of training program goals.
• Engage in program coordination.
• Respond to emerging issues in interdisciplinary training and public health, particularly as it relates to ASD/DD.
Activity Highlights
• This year, we broke from tradition and did a separate ITAC Evaluation (October-November 2017) and LEND/DBP Needs Assessment (February-April 2018)
• Comprehensive process that involved input from the Project Advisory Committee (PAC) and coordination with MCHB
• The key ITAC Evaluation takeaway was that the most positively rated TA (“very useful”) were:– Facilitating information sharing (e.g. webinars, newsletters,
meetings)
– Opportunities for collaborative problem-solving (e.g. SIGs, workgroups)
– Development of specific resources to meet program needs (e.g. Genetics competencies, NDD Curriculum Resources)
Needs Assessment Overview
LEND respondents (n=40) and DBP Respondents (n=5)
Part 1: Overview of network programmatic trends
Part 2: Strengths/ challenges / TA needs
1. Funding (33.3%)
2. Opioids and Substance Abuse (31.1%)
3. Geographically Isolated Populations (31.1%)
4. Recruitment of Diverse Clinicians and Trainees
(24.4%)
5. Transition Care / Services (22.2%)
What do you see as critical and/or emerging
issues for the LEND and/or DBP networks over
the next five years?
What needs are your stakeholders prioritizing?
1. Quality Behavioral/Mental Health Services (40%)
2. Transition Services (33.3%)
3. Early Detection/Intervention (26.7%)
4. Access to Resources and Education in Rural Settings
(22.2%)
5. Lack of Specialists for Racial/Ethnic Groups (17.8%)
What are the barriers that your program experiences
in meeting those needs?
1. Funding Limitations (37.8%)
2. Time Restrictions (22.2%)
3. Balancing Addressing Community Needs with Program
Requirements/Regulations (20%)
4. Lack of Diverse Workforce (15.6%)
5. Limited Workforce to Meet the Needs of the
Population (11.1%)
TA Example Requests
Creative ways to keep alumni engaged and responsive
to survey requests
Learning opportunities for all trainees (clinical and
non-clinical) to develop knowledge and skills about
interdisciplinary clinical practice
Increasing cultural accessiblity
Instructional tools for providing distance training
How to best capture and disseminate the impact and
importance of LEND work
Incorporation of self-advocacy and family trainees into
program cohorts
Expanding policy and advocacy education experiences
for trainees
Establishing and sustaining an interdisciplinary
research agenda
Trainee Engagement
• Leadership Opportunities for Trainees– AUCD Emerging Leaders Interns (formerly Virtual
Trainees) – applications due June 22
– Trainee Liaison recruitment begins in August
– AUCD Trainee Scholarships available for 2018 AUCD Conference
• Resources (new and forthcoming)– AUCD Trainee Orientation Modules
– AUCD Emerging Leaders Map
– AUCD Emerging Leaders Community: separate website specifically designed for current/former trainees and early career professionals
Data Management
• The current fiscal year ends on June 30. All data
(including trainee follow up surveys) should be
entered by this time.
• In early July, all MCH programs will receive Excel
files with their specific data to be exported from
NIRS to EHB for your Performance Reports (due
in October).
• Data cleaning for the current fiscal year will be
allowed in NIRS through July 31 at 5:00pm ET.
Data Management
• AUCD is making updates in the back end of NIRS so that data is exported to EHB in a way that works for MCHB and their data contractor (these changes are minor and will not impact your data entry in any way).
• AUCD will work with MCHB to run test exports in July and send your final cleaned data in August.
• Exported data will show up in your Performance Report (in EHB) in September; NIRS standard reports for FY18 can help with other required pieces of the report.
Strategic TA Priorities
• Developing medium- and short-term training experiences
• Expanding access to (and strengthening existing) interdisciplinary clinical and community-based opportunities for trainees
• Addressing university-level barriers to trainee and faculty engagement
• Including and supporting self-advocacy trainees across program components
• Leveraging technology
What’s Coming Next?
• Follow up from Needs Assessment regarding
individualized TA needs (one-on-one calls for those
that did not submit information)
• RFA release for the 2018-2019 cycle of Focused
Assistance to Support Training (FAST) projects
• “Directors Corner” portion of the ITAC website with
resources from MCHB and AUCD, plus useful
materials and templates from other programs
• Autism CARES Act educational module (collaborative
effort with AMCHP)
• New mechanisms for disseminating network research
What’s Coming Next?
• Autism CARES Grantee Webinar Series
– “Autism in the Context of Ableism”
– Dates TBD (September – November)
• MCH Workforce Development Meeting
– Topic TBD
– September 26, 12:30pm – 3:30pm ET
• AUCD Annual Conference
– “We All Belong Here: Achieving Inclusive Communities”
– November 11-14 (includes LEND Directors Meeting)
Peer Small Groups
• Participants grouped based on a variety of factors:
experience, geography, program strengths and
needs identified, etc.
• Meet once today and twice tomorrow
• Check name badge and agenda (pg. 4) for your
specific assignment
Peer Small Groups
• Which aspect of your LEND program are you most
proud of?
• In what ways would you like to see your program
change and/or grow?
• How would you like to grow as a LEND leader?
• What are you hoping to take away from this
meeting?
Please select a Day Two meeting location before
wrapping up at 2:25pm.
Please return to Cabinet / Judiciary promptly at
2:45pm to start the next activity.
Interactive Workshop A
• How can Directors learn from each other
to more effectively work toward their
program-level objectives?– Review action planning template, break into groups
– Primary challenges and existing efforts (20 min.)
– Individual brainstorming and action planning (15 min.)
– Sharing ideas, strategies, and approaches (45 min.)
Interactive Workshop A
Group Topic Location AUCD Staff
1Creating policy/education/advocacy training
opportunitiesCabinet/Judiciary Denise Rozell
2Infusing diversity, cultural and linguistic competency, and
multiple perspectives across training componentsCabinet/Judiciary Ben Kaufman
3Promoting effective mentorship and mentoring
relationshipsCabinet/Judiciary Sarah DeMaio
4Establishing and maintaining interdisciplinary clinical
experiences for “non-clinical” traineesExecutive Boardroom Jalyn Marks
5
Balancing interdisciplinary practice with the pressure to
see more patients through reimbursement and funding
innovation
Diplomat Dawn Rudolph
6Making training meaningful for individuals with different
interdisciplinary backgrounds, skills, and career interestsCongressional Luis Valdez
7Expanding program reach to rural or otherwise
underserved areasAmbassador Natalie Martinez
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Marketing LEND as an institutional, community, and
statewide resource for workforce development, topical
expertise, etc.
Congressional Christine Liao
Please return to Cabinet / Judiciary promptly at
4:40pm to start the next activity.
Summary of Network
Transition Activities
LEND Directors Meeting
June 7, 2018
Outline
Summary of collective network
activities addressing transition from
the past ten years
Examples (program function) of how
LEND programs are currently
engaged in transition-focused
efforts
2004: Joint Interdisciplinary
Training Meeting
LEND, LEAH, PPC, Schools of Public Health presented their
inventory of activities
Input from 35 LEND programs:
LENDs know and teach that medical homes and transition plans
are keys to successful transitions.
LEND programs train future practitioners around these and other
key transition areas.
Most LENDs include both didactic content and clinical
experiences related to transition.
Some were partnering with high schools around IEP development,
and others were developing curricula for medical students.
Identified a need for additional training and collaborative efforts
on transition.
2010-2011: Interdisciplinary
Transition Work Group
Representatives from LEND, LEAH, and PPC training programs
Goal: Address gaps in MCH trainee preparation to facilitate successful transitions for individuals with ASD/DD
Objectives: Identify and disseminate transition-related resources, as well as promising practices and transition-related competencies
2011: Surveyed all DMCHWD training programs regarding the extent to which transition content was incorporated into curricula
Poster Presentation Carl Cooley and Patience White from Got Transition were
invited to participate in the in-person meeting at AMCHP
Percentage of Programs with Training Activities Addressing Specific Transition Topics
2011-present: Live Broadcast of
Baylor Transition Conference
Baylor College of Medicine’s Annual Chronic
Illness and Disability: Transition from Pediatric
to Adult-Based Care Conference
AUCD, through its cooperative agreement with MCHB,
enables a webcast of the Conference; staff serve on the
planning committee, connect Conference organizers to
network leaders that can speak on priority topics,
encourage LENDs and UCEDDs to host broadcast sites with
Title V and other community partners, and reports
evaluation data related to this activity.
Increased from 15 broadcast sites in 2011 to more than 40 per
year in 2016 and 2017
2013-2014: Continued
Collaboration with Got Transition
Worked with Got Transition / National
Alliance to Advance Adolescent Health on
a transition program assessment
Examined LEND programs’ implementation of the Six
Core Elements of Health Care Transition
2013-2016: Jamie Perry, AUCD’s former
MCH Technical Assistance Director, served
as an advisory group member for the
Center for Health Care Transition
Improvement.
Key Assessment Findings
Does the didactic course work focus mostly on health care
transition or on transition broadly?
Does your transition curriculum include the “Six Core Elements
of Health Care Transition?”
Key Assessment Findings (cont.)
2016: Autism CARES Virtual
Meeting
ITAC (in collaboration with MCHB and
AMCHP) hosted a virtual meeting for all
CARES grantees entitled, “Integrated,
Person-Centered Approaches to
Transition” in July 2016.
This involved a keynote speaker from the
A.J. Drexel Autism Institute, brief
recorded presentations from grantees
doing work in this area, and breakout
discussions.
2017: HHS Report to Congress
In September 2017, HHS released a report
to Congress focusing on young adults and
transition-age youth with ASD. The report
summarizes existing federal initiatives
(across agencies) focused on transition
and identifies gaps in research, programs,
and services.
AUCD developed an abbreviated summary
of key findings as a resource for the LEND
and DBP networks.
Examples of Current LEND
Program Activities
Transition Topics Covered
Education
Employment
Independent Living
Health Care
Family and Professional Support
LEND Program Functions
Didactic Sessions
Clinical Services and Support
Collaboration
Resource Development and Dissemination
Research
Didactic Sessions
Parent and self-advocate panels (Delaware)
Three-session module covering health care,
education, and parent perspectives (Colorado)
Joint didactic with HRSA-funded social work
training grant program at University (Pittsburgh)
Transition-focus during spring semester, with
trainee-led book club (New Mexico)
Seminars led by faculty with first-hand transition
experience, with related practicum
opportunities (Oklahoma)
Clinical Services and Support
Rotation with Gillette Lifetime Specialty
Clinic (Minnesota)
Launch of an Interdisciplinary Transition
Training Clinic (Ohio – Nisonger)
Special Needs Dentistry Program (New York –
Rose F. Kennedy)
Trainee-provided evaluation and short-term
behavioral supports based on referrals from
local Title V-funded program (Indiana)
Transition in Action Clinic (South Dakota)
Collaboration
Co-host Baylor conference broadcast site with
state Title V (Arkansas)
Transition rotation with local high school,
facilitated by school staff (Hawaii)
Discussion with Title V Youth Health Care
Transition Initiative coordinator regarding
field experience (Louisiana)
Close work with state DD Council and Title V
agency to implement systematic training
approach (Miami)
Resource Development and
Dissemination
Think College / Think Work (Massachusetts –
Boston Children’s Hospital)
Center for Autism Resource Dissemination: Parent
Information Packet for Newly Diagnosed Children,
Transition Guide for Teens with Autism, and the
CCSN Essential Autism Resource Guide for
Families (Massachusetts – Shriver Center)
Health transition customizable NDD curriculum
resource module (Washington)
Trainee leadership project providing resources to
providers and families regarding sexual,
reproductive, and healthy relationship issues
(Utah)
Research
Survey of primary care providers to identify
barriers to support patients (Colorado)
Trainee participation in projects such as
“Transitioning Together” and “Working
Together” (Wisconsin)
Trainee participation in the Volunteer
Advocacy Program-Transition (Tennessee -
Vanderbilt)
Trainee/faculty leadership research proposals
to the Organization for Autism Research (New
Jersey)
For More Information
Luis Valdez, MPH
Program Specialist, MCH Technical Assistance
E-mail: [email protected]
Choose Your Adventure!
Transition work group / task force interest meeting
Autism CARES reauthorization Q&A
Director-generated “open space” discussions
Congressional
Cabinet / Judiciary
Executive Boardroom