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Learning from the Doctor-Patient Relationship to Improve Quality of Care: Perspectives from Europe, Africa, and the United States March 1–2, 2019 Center in Paris The University of Chicago 6, rue Thomas Mann 75013 Paris, France Sponsored by Bucksbaum Institute for Clinical Excellence Center for Global Health Center in Paris

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Learning from the Doctor-Patient Relationship to Improve Quality of Care: Perspectives from Europe, Africa, and the United States

March 1–2, 2019Center in ParisThe University of Chicago6, rue Thomas Mann 75013 Paris, France

Sponsored byBucksbaum Institute for Clinical ExcellenceCenter for Global HealthCenter in Paris

Welcome

The University of Chicago’s Bucksbaum Institute, Center for Global

Health, and Center in Paris, welcome you to the colloquium “Learning

from the Doctor-Patient Relationship to Improve Quality of Care:

Perspectives from Europe, Africa, and the United States.”

This colloquium will provide a forum to discuss the doctor-patient

relationship and examine ways to improve quality of care from the

perspectives of physicians, researchers, policymakers, and advocates

from Europe, Africa, and the United States.

We have convened a diverse group of international experts to present

and discuss four questions, aimed at improving the quality of health and

patient care.

• Panel 1: What is the doctor-patient relationship?

• Panel 2: How do chronic diseases impact the doctor-patient

relationship?

• Panel 3: What roles do technology and patient satisfaction play in the

doctor-patient relationship?

• Panel 4: Looking to the future, what are ways to improve the doctor-

patient relationship?

We hope that the colloquium will provide an opportunity for attendees

to identify opportunities and challenges facing the doctor-patient rela-

tionship, outline ways of improving care and reducing global health dis-

parities, and expand your professional networks.

Thank you for joining us at the University of Chicago Center in Paris.

Bienvenue

L’institut Bucksbaum, le Centre pour la Santé Globale et le Centre à Paris

de l’Université de Chicago vous souhaitent la bienvenue au colloque :

« Apprendre de la relation docteur-patient pour améliorer la qualité des

soins : perspectives européennes, africaines et américaines ».

Ce colloque veut offrir un cadre pour analyser la relation docteur-patient

et envisager des solutions pour améliorer la qualité des soins selon une

pluralité d’approches présentées par des praticiens, des chercheurs ou

des responsables politiques venus d’Europe, d’Afrique ou des États-Unis.

Nous avons rassemblé un groupe d’experts internationaux qui

échangeront autour de quatre axes de réflexion avec pour objectif

l’amélioration de la santé et des soins prodigués au patient.

• Panel 1 : Qu’est-ce-que la relation docteur-patient ?

• Panel 2 : Comment les maladies chroniques affectent-elles la relation

docteur-patient ?

• Panel 3 : Quels rôles la technologie et la satisfaction des patients

jouent-elles dans la relation docteur-patient ?

• Panel 4 : Demain, comment améliorer la relation docteur-patient ?

Nous espérons que ce colloque permettra aux participants de mieux

cerner les opportunités et les challenges liés à la relation docteur-

patient, d’identifier des moyens d’améliorer les soins et de réduire

les disparités en matière de santé globale, et d’élargir leur réseau

professionnel.

Nous vous remercions d’être présents aujourd’hui au Centre de

l’Université de Chicago à Paris.

2 3

Colloquium Collaborators

service-learning opportunities, and advance novel, transdisciplinary,

and sustainable solutions to improve health and well-being, while

reducing global health disparities and inequities. Our goals are:

• To collaborate with communities and partner institutions worldwide

to advance global health education, research, and clinical care;

• To focus on global health topics that leverage the University’s existing

strengths, including chronic disease across the lifespan, maternal

and child health, genomics and systems biology, climate change, and

urban health services and systems delivery;

• To engage the collective expertise of faculty and students in the

University’s departments of medicine, social sciences, anthropology,

business, law, and public policy to develop interdisciplinary solutions

for complex global health problems;

• To address healthcare disparities and inequities in novel and

sustainable ways; and

• To use genomics to reveal the underlying genetic causes of disease

and health disparities.

The University of Chicago Center in Paris promotes scholarly

collaboration with institutions in both teaching and research, including:

the Institut d’Etudes Politiques (Sciences Po); the University of Paris-IV

(Sorbonne); the University of Paris-VI (Pierre et Marie Curie); the

University of Paris-VII (Diderot); the University of Paris-IX (Dauphine);

the University of Paris-X (Nanterre); and the Ecole Normale Supérieure.

These connections serve as a foundation for partnerships with other

institutions of higher education and research throughout Europe.

The Center in Paris provides a forum for sophisticated exchange,

dialogue and collaboration with our European colleagues, welcoming

a broad range of the public into its intellectual community. The Center

hosts French and American faculty, expanding its connections to centers

of excellence throughout Europe. The Center serves as a dynamic

location for rigorous and innovative academic programs, conferences,

and public events in the context of a cosmopolitan and culturally

rich environment.

The University of Chicago Bucksbaum Institute for Clinical Excellence

was created to improve patient care; to strengthen the doctor-patient

relationship; to enhance communication and decision-making in

healthcare through research and education programs for medical

students, junior faculty and master clinicians; and to reduce healthcare

disparities. Since 2011, the Bucksbaum Institute has worked to achieve

its mission through the appointment of more than 340 Master Clinicians,

Senior Faculty, Junior Faculty, Associate Junior Faculty, Medical Student,

and Undergraduate Student Scholars. The Institute works with these

scholars and the larger University of Chicago academic community in

four key areas:

• Promoting and advancing the practice of collaborative medicine,

where clinical decision-making is shared by the patient and physician.

The physician serves as an adviser, counselor, and navigator who

helps the patient understand complex treatment choices in a medical

relationship that is focused on the patient’s interests.

• Establishing a new and higher standard for training and mentoring

extremely skilled, compassionate and communicative medical students

and physicians.

• Promoting social justice by working to reduce health care disparities

and improving models of delivery and access.

• Focusing on the social sciences and humanities, fields that are often

neglected by traditional medical school programs.

The University of Chicago Center for Global Health (CGH) provides a

unifying framework for students, staff, and faculty across the University

with an interest in global health. CGH reinforces the University of

Chicago’s strengths in fields such as the humanities, life sciences, social

sciences, medicine, public policy, and others. This interdisciplinary focus

encourages innovative approaches to the numerous health challenges

faced by residents of the South Side of Chicago and by people across

the world alike. The mission of the Center is to collaborate with

communities locally and globally to democratize education, increase

4 5

Collaborateurs de la Conférence

transdisciplinaires et durables afin d’améliorer la sante et le bien-être,

tout en réduisant les disparités et inégalités face aux soins, à l’échelle

mondiale. Nos objectifs sont les suivants:

• Collaborer avec les communautés et institutions partenaires dans

le monde afin de faire progresser la santé mondiale au niveau de

l’éducation, la recherche et des soins cliniques

• Se concentrer sur des sujets de santé mondiale qui permettent de

démultiplier les forces vives de l’Université, à savoir: les maladies

chroniques sur la durée de vie, les questions de santé mère/enfant, les

génomes et systèmes biologiques, les changement climatiques, et les

services de santé et systèmes de soins urbains

• Engager l’expertise collective du corps professoral et des étudiants

de l’Université dans les départements de médecine, sciences sociales,

anthropologie, affaires, droit et politiques publiques afin de développer

des solutions interdisciplinaires aux problèmes complexes de santé

mondiale

• Aborder les disparités et inégalités en faisant appel à des approches

nouvelles et durables, et

• Utiliser la connaissance des génomes afin de trouver les causes sous-

jacentes des maladies et disparités sanitaires.

Le Centre à Paris de l’Université de Chicago encourage la collaboration

académique avec des institutions locales, tant en enseignement qu’en

recherche, telles que: l’Institut d’Études Politiques (Sciences Po); l’univer-

sité de Paris-IV (Sorbonne); l’université Paris VI (Pierre et Marie Curie);

l’université Paris-VII (Diderot); l’université Paris-IX (Dauphine); l’université

Paris-X (Nanterre); et l’École Normale Supérieure. Ces relations constituent

de solides fondations pour conclure des partenariats avec des institutions

de recherche et d’éducation à travers toute l’Europe. Le Centre à Paris est

un lieu d’échanges de haut niveau, de dialogue et de collaboration avec

nos collègues européens, invitant un public très varié dans sa communau-

té intellectuelle. Le Centre héberge des professeurs-chercheurs français et

américains, étendant ses connexions vers d’autres centres d’excellence en

Europe. Le Centre représente un lieu dynamique pour la tenue de pro-

grammes académiques, conférences et évènements publics rigoureux et

innovants, dans un environnement cosmopolite et culturellement fécond.

L’Université de Chicago Bucksbaum Institute pour l’Excellence Clinique,

a été fondé afin d’améliorer les soins au patient, renforcer la relation

médecin-patient et réhausser la communication et les processus de

décision en santé par des programmes de recherche et d’enseignement

aux étudiants en médecine, jeunes professeurs et cliniciens-experts.

Depuis 2011, en vue d’atteindre ces objectifs, le Bucksbaum Institute

a recruté plus de 340 cliniciens-experts, professeurs agrégés junior et

senior, professeurs adjoints, étudiants en médecine et étudiants en

début de parcours intéressés par la recherche. L’Institut travaille avec ces

chercheurs et la communauté élargie de l’Université de Chicago afin de:

• Promouvoir et faire avancer la pratique de la médicine collaborative,

définie par un processus de décision clinique partagée patient-médecin.

Le médecin joue un rôle de conseiller et copilote, afin d’aider le patient

à s’y retrouver dans la complexité des choix de traitement et ce, dans

la cadre d’une relation médicale où les intérêts du patient sont centraux

• Établir un nouveau standard d’excellence dans l’éducation et le mentorat

des étudiants en médecine et médecins, en tant que professionnels

faisant preuve de compassion et sachant bien communiquer

• Promouvoir la justice sociale afin de réduire les inégalités sanitaires et

améliorer les modèles d’accès aux soins et leur prestation

• Inclure les sciences sociales et humaines, domaines souvent négligés

par les programmes des écoles de médecine

Le Global Health Center (GHC) de l’Université de Chicago offre un

cadre fédérateur à l’échelle de l’Université aux étudiants, personnel

d’encadrement et corps professoral ayant un intérêt pour les questions

de santé mondiale. GHC consolide les points forts de l’Université de

Chicago dans des domaines tels que les sciences humaines et sociales,

les sciences de la vie, la médecine, les politiques publiques et bien

d’autres. Cet effort interdisciplinaire vise à concevoir des trajectoires

d’innovation en réponse aux défis sanitaires que rencontrent les

résidents du Quartier Sud de Chicago ou d’autres personnes se

trouvant dans des situations semblables dans le monde. La mission

du Centre consiste à collaborer avec les communautés locales et

globales afin de démocratiser l’accès à l’éducation, proposer davantage

d’occasions d’études de service et concevoir des solutions nouvelles,

6 7

Agenda

Day 1: Friday, March 1, 2019

9:00–9:30 a.m. Breakfast and Registration

9:30–9:55 a.m. Welcome

9:30–9:35 a.m. Leora Auslander, University of ChicagoCenter in Paris Welcome

9:35–9:45 a.m. Angela Pace-Moody, University of ChicagoBucksbaum Overview

9:45–9:55 a.m. Funmi Olopade, University of ChicagoColloquium Goals

9:55 a.m.–12:30 p.m. Panel 1: What is the Doctor-Patient Relationship?

9:55–10:05 a.m. Funmi Olopade, University of ChicagoPanel Introduction

10:05–10:35 a.m. Mark Siegler, University of ChicagoUnited States

10:35–11:05 a.m. Sylvie Fainzang, La Personne en MedecineEurope

11:05–11:35 a.m. Léon Tshilolo, Centre Hospitalier MonkoleAfrica

11:35 a.m.–12:05 p.m. Dominique Stoppa-Lyonnet, Genetics UniteEurope

12:05–12:25 p.m. Funmi Olopade, University of ChicagoModerated Panel and Q&A

12:30–2:00 p.m. Lunch

2:00–3:30 p.m. Panel 2: How do Chronic Diseases Impact the Doctor-Patient Relationship?

2:00–2:10 p.m. Sola Olopade, University of ChicagoPanel Introduction

2:10–2:30 p.m. Monica Peek, University of ChicagoDiabetes—United States

2:30–2:50 p.m. Kamal El Bissati, University of ChicagoHepatitis B and Toxoplasmosis—North Africa

2:50–3:10 p.m. Marina Cavazzana, University of ParisSickle Cell—Europe and Diaspora

3:10–3:30 p.m. Sola Olopade, University of ChicagoModerated Panel and Q&A

3:30–3:50 p.m. Afternoon Break

3:50–5:00 p.m. Panel 3: What Roles do Technology and Patient Satisfaction Play in the Doctor-Patient Relationship?

3:50–4:00 p.m. Sola Olopade, University of ChicagoPanel Introduction

4:00–4:20 p.m. Wei Wei Lee, University of ChicagoTechnology—United States

4:20–4:40 p.m. Luke Slawomirski, OECDPatient Satisfaction—Europe

4:40-5:00 p.m. Sola Olopade, University of ChicagoModerated Panel and Q&A

5:15–6:00 p.m. ReceptionCenter in Paris

7:30 p.m. DinnerLe Train Bleu

8 9

Day 2: Saturday, March 2, 2019

9:00-9:30 a.m. Breakfast and Registration

9:30-9:40 a.m. WelcomeMark Siegler, University of ChicagoWelcome and Colloquium Review

9:40-11:30 a.m. Panel 4: Looking to the Future, What are Ways to Improve the Doctor-Patient Relationship?

9:40-9:50 a.m. Funmi Olopade, University of ChicagoPanel Introduction

9:50-10:10 a.m. Monica Peek, University of ChicagoHealth Care Disparities—United States

10:10-10:30 a.m. Rotimi Jaiyesimi, Basildon University HospitalSurgery—Europe

10:30-10:50 a.m. Wei Wei Lee, University of ChicagoMedical Education—United States

10:50-11:10 a.m. Serigne Magueye Gueye, University Cheikh Anta DIOP DakarSurgery—Africa

11:10-11:30 a.m. Funmi Olopade, University of ChicagoModerated Panel and Q&A

11:30 a.m.-12:00 p.m. Summary Discussion

12:00 p.m. Adjourn

Speaker Bios

Leora Auslander, PhDUniversity of ChicagoArthur and Joann Rasmussen Professor of Western Civilization

in the CollegeFounding Director, Affiliated Faculty and Member of the Board,

Center for Gender and Sexuality StudiesMember, Chicago Center for Jewish Studies2018–19 Academic Director, Center in Paris

Center in Paris Welcome

Dr. Leora Auslander is a Professor of European Social

History and the Arthur and Joann Rasmussen Professor

of Western Civilization at the University of Chicago.

While her primary research focus is on modern France,

she has found herself intrigued by research problems

best treated transnationally. In her most recent book,

Cultural Revolutions, Dr. Auslander moves across the Atlantic world from

Britain, to colonial and early national America, and finally eastwards again

to France. Her ongoing pair of projects, Strangers at Home and

Conundrums of Commemoration, stay on the European continent but

involve a comparative analysis of Paris and Berlin in the twentieth century.

Additionally, although not yet published extensively in the area, she main-

tains an active interest in and regularly teaches the history of European

colonialism and the postcolonial world it left behind.

Conceptually, Dr. Auslander’s work focuses on the intersection of

material culture, everyday life, and politics as she seeks to explain how

and why everyday things have become catalysts for conflict, means

of expressing identities and constructing selves, vehicles for dissent-

ing opinions, and sites of unexpected state intervention. Her research

agenda is based on the hypothesis, informed by phenomenology and

feminist theory, that key to answering these questions is the close and

careful study of material culture, but a close and careful study that

always links the concreteness of everyday goods to the abstractions of

polity, society, and economy.

10 11

Christine Berling, PhDMinistry of Solidarity and HealthHead of International and European Affairs, Director General

for Health

Dr. Christine Berling is the Head of International &

European Affairs at the Directorate General for Health,

Ministry of Health & Social Affairs. Prior, she worked at

the National Cancer Institute where she developed and

coordinated INCa’s international portfolio and commit-

ments in European and international projects. Dr. Berling

has worked at the European Commission, DG RTD Health Directorate,

on the setting up the Innovative Medicine Initiative Joint Undertaking,

a public-private partnership between the European Commission and the

European Federation of the Pharmaceutical Industry Associations. With

over 15 years of experience of working in public-private partnership and

technology licensing, she served as Deputy Director of the Technology

Licensing Department of INSERM—the French National Institute of Health

and Medical Research. Throughout her career, Dr. Berling has additionally

served as a board member of various French Health agencies and as an

ad-hoc reviewer for granting agencies, the Belgian Ministry of Research

and Technology, the French Court of Justice on litigation cases, and with

the European Commission. She has also contributed to stakeholder pan-

els for preparing the IPR policy of the 7th European Framework Program

for RTD. Dr. Berling held a counsel position with the General Secretary

Office of the French Institute for Development Research. Dr. Berling

received a Ph.D. in biophysics from the University Pierre-and-Marie-Curie

in Paris and completed a postdoctoral fellowship at the University of

Cambridge, UK.

Marina Cavazzana, MD, PhD University of Paris—DescartesProfessor of Hematology

SPEAKER: The Doctor Patient Relationship and Sickle Cell Disease (Europe)

Marina Cavazzana is a paediatrician, Professor of

Haematology since 2000, Director of the Department

of Biotherapy at Hospital Necker, University Paris

Descartes. She is the Director of the Inserm/Assistance

Publique—Hôpitaux de Paris GHU Ouest Biotherapy

Clinical Investigation Center and leads a research

Laboratory at Imagine Institute. She studied medicine in Padua, Italy and

received the degree of Doctor of Medicine in 1983, her certification in

Paediatrics in 1987 and a PhD in Life Sciences in 1993 (University Paris VII).

Her main research and clinical interests are development of the

immune system, genetic diseases of the haematopoietic system and

cell and gene therapy. She has initiated several clinical trials based on

the use of ex vivo gene modified cells to treat patients with inherited

disorders, the preliminary clinical results of which are encouraging. This

work was rewarded by the American Society of Hematology (Award

on Clinical Research in Gene Therapy in 1999), by the French Academy

of Sciences (Special Medical Award in 2000 and Jean-Pierre Lecocq

Award on Gene Therapy in 2004). She was awarded the title of Officier

de l’Ordre National de la Légion d’honneur in 2011, given the Irène Joliot

Curie 2012 award “Scientific Women of the Year” (Science Academy and

French Ministry of Education and Research). She was also awarded with

the French National Academy of Medicine in 2016 and the 2017 Ernest

Beutler Lecture and Prize for Clinical Science (American Society of

Hematology).

12 13

Kamal El Bissati, PhD University of ChicagoOphthalmology and Visual Sciences Researcher

SPEAKER: The Doctor-Patient Relationship and Hepatitis B & Toxoplasmosis (North Africa)

Dr. Kamal El Bissati is a microbiologist and an interna-

tional expert on toxoplasmosis and malaria. He is a

Fulbright US Scholar for Medical Sciences in Morocco

and MENA regions, a program funded by the US

Department of State. He is working with the health min-

istry of Morocco to implement a National Research

Program on Toxoplasmosis in Rabat, Morocco. Dr. Kamal El Bissati

received his PhD from the University of Pierre and Marie Curie and Ecole

Normale Superieure, Ulm, Paris. He was a postdoctoral fellow at the

University of Connecticut Medical School from 2003-2008. His pioneering

work has led to the development of live attenuated strains for malaria

vaccination. He expanded his scientific career at the Biodefense

Proteomics Center at Albert Einstein College of Medicine in New York,

where he was appointed as Instructor in the Department of Pathology. He

is currently a member of the Department of Ophthalmology and Visual

Sciences and serves on the Expert Panel on Promoting Maternal and Child

Health at the University of Chicago Medical Center. His major research

interests are to develop novel vaccines and medicines to prevent or treat

the parasitic infection, toxoplasmosis. His work is also contributing to our

basic understanding of the epidemiology of this parasite and the global

implications of this parasite for public health. Dr. El Bissati has received

numerous awards, including the NIH PRIDE Award (Programs to Increase

Diversity Among Individuals Engaged in Health Related Research),

National Science and Research Foundation of Morocco, and prestigious

foundation awards. He is a regular reviewer for many international jour-

nals. He is a Reviewer for NIH (NIH Scientific Review Panel for AIDS and

AIDS Related Research), Italian Ministry of Health Reviewer for AIDS

Related Research Panel, and National Science Foundation of the

Government of Poland. Dr. El Bissati holds five US patents in the area of

malaria and toxoplasmosis.

Sylvie Fainzang, HDRCermes/Inserem, University of Paris—DescartesDirector of ResearchMember of the Board, “La Personne en Medecine”

SPEAKER: The Doctor-patient Relationship in Europe

Sylvie Fainzang is a French medical anthropologist,

Director of Research at INSERM in the Cermes3 (Center

of research, medicine, science, health, mental health,

society/CNRS/Inserm/EHESS/University of Paris-

Descartes), and a member of the Board of the program

“La Personne en médecine.” She is the editor-in-chief of

the international Journal Anthropologie & Santé, the scientific coordinator

of the international network of medical anthropologists (MAAH), and the

author of several books in the field of health, illness and medicine, includ-

ing: An Anthropology of Lying Information in the Doctor-patient

Relationship, Routledge, 2015 and Self-Medication and Society. Mirages of

Autonomy, Routledge, 2016.

Serigne-Magueye Gueye, MD Universite Cheikh Anta DIOP de DakarProfessor of Urology

SPEAKER: The Doctor-Patient Relationship and Surgery (Africa)

Dr. Serigne Gueye is a Professor of Surgery and Urology

at University Cheikh Anta DIOP Dakar; Head of Urology

and Chief Medical Officer at Grand Yoff General Hospital;

and Adjunct Dean for Research at the St. Christopher-

Iba Mar DIOP School of Medicine. In addition, Dr. Gueye

serves as Director of the I’Institut de Formation et de

Recherche en Urologie et Santé Familiale (IFRU-SF), a non-profit organi-

zation dedicated to building capacity and developing research in Urology

and community health throughout Africa. Dr. Gueye is a former Fulbright

Scholar, who studied at the University of Pennsylvania School of Medicine.

An active clinician, teacher, and researcher, Dr. Gueye is an expert

in medical education, co-initiator of the Men of African Descent

14 15

and Carcinoma of the Prostate Consortium (MADCAP), and serves as

PI and CO-PI on many research projects.

Dr. Gueye additionally serves on numerous national and international

advisory boards. He is Board member of AMREF Health Africa West

Africa Region, Past-President of African Organization of Research and

Training in Cancer (AORTIC), and President of West African College of

Surgeons (WACS). He is Director of the Societe Internationale d’Urologie

(SIU)-accredited Dakar Center offering fellowship training in general

urology, endourology, uro-oncology, and reconstructive and female urol-

ogy of residents from Africa and globally.

Recognized for his work, Dr. Gueye has been awarded many national

and international medals in Senegal, France, Chad, and the United

Nations’ Medal for Peace in Rwanda.

Rotimi Jaiyesimi, MBBS, MBA, LLM Basildon University HospitalMedical Director for Patient Safety and Consultant Gynaecologist

SPEAKER: The Doctor-Patient Relationship and Surgery (Europe)

Professor Rotimi Jaiyesimi has been in active clinical

practice for 37 years and has worked as a Consultant

Obstetrician and Gynaecologist for over 22 years. He has

worked in Nigeria, Ireland, Saudi Arabia, and the United

Kingdom. Professor Jaiyesimi is a Fellow of both the

West African College of Surgeons and the Royal College

of Obstetricians & Gynaecologists (RCOG). At the RCOG, Professor

Jaiyesimi serves as an assessor for performance and service reviews and

is also a member of the Council of Hospital Consultants and Specialists

Association.

Professor Jaiyesimi serves as a member of the United Kingdom’s

General Medical Council Fitness to Practice Panels and the regulatory

body for allied medical professionals. He is also a dedicated medical

educator who has lectured world-wide, and was appointed a visiting

professorship at the University of Sunderland, England in 2014. Professor

Jaiyesimi has published numerous peer-reviewed journal articles, is a

member of the Editorial Board of Perspectives in Public Health, and is a

peer reviewer for scientific journals and research organisations.

Professor Jaiyesimi has also demonstrated his ability to be an agent

of change. After 20 years at North Umbria NHS Hospital, Newcastle,

Professor Jaiyesimi joined the Basildon University Hospital in 2012 as the

Associate Medical Director for Patient Safety. His work has resulted in

reduced mortality rates and improved patient experiences. His commit-

ment to promoting quality care extends beyond the UK to Africa where

he has been involved in medical skill and knowledge development in

Nigeria.

Professor Rotimi Jaiyesimi earned his medical degree in 1978 from

the University of Ibadan Medical School, Nigeria, and has an MBA from

the University of Newcastle and a Master’s degree in Medical Law (LLM)

from Northumbria University, Newcastle, England.

Wei Wei Lee, MD, MPH University of ChicagoAssociate Professor of MedicineAssistant Dean of StudentsDirector, Wellness Programs

SPEAKER: The Doctor-Patient Relationship and Technology (United States); The Doctor-Patient Relationship and Medical Education (United States)

Dr. Lee is the Assistant Dean of Students at the Pritzker

School of Medicine and Director of Wellness Programs.

She is an Associate Professor of Medicine with an active

primary care practice serving underserved patients. She

earned her medical degree from New York University

School of Medicine and a Masters of Public Health from

the Harvard School of Public Health. She completed her residency in

Internal Medicine at New York Presbyterian Hospital-Weill Cornell, where

she served as an ambulatory chief resident. Dr. Lee’s academic interests

focus on improving patient-doctor communication in the computerized

setting and developing innovative patient-centered models of care.

16 17

Funmi Olopade, MD University of ChicagoWalter L. Palmer Distinguished Service Professor of Medicine and

Human GeneticsAssociate Dean, Global HealthDirector, Center for Clinical Cancer Genetics

Welcome MessageMODERATOR: What is the Doctor-Patient Relationship?; Looking to the Future, What are Ways to Improve the Doctor-Patient Relationship?

Dr. Olufunmilayo I. Olopade, MD, FACP is the Walter L.

Palmer Distinguished Service Professor in Medicine and

Human Genetics and Director of the Center for Clinical

Cancer Genetics and Global Health at The University of

Chicago. She is a practicing breast medical oncologist

and cancer geneticist and a pioneer in cancer genetics

whose seminal research has focused on the molecular genetics of breast

cancer progression and illuminated the root causes of aggressive breast

cancer in young women, especially those of African ancestry. Her labora-

tory was the first to describe recurrent BRCA1 mutations in extended

African American families, a study she broadened to include indigenous

West African women. She identified BRCA1 methylation as an alternative

mechanism for inactivating BRCA1 gene and showed in ground-breaking

papers that epigenetic regulation of BRCA1 occurs early in sporadic

breast cancer, especially the triple negative subtype that disproportion-

ately effects African American women. She was awarded a 2005

MacArthur Fellowship (“genius grant”) for “translating findings on the

molecular genetics of breast cancer in African and African-American

women into innovative clinical practices in the United States and abroad.”

Dr. Olopade has a distinguished record of accomplishment in mentor-

ing bright young trainees (undergraduate to fellows to junior faculty), cli-

nicians and scientists, leading teams of scientists in translational cancer

research, and training scholars for a 21st century oncology workforce.

She has been recognized as an exceptional mentor by the Doris Duke

Medical Research Foundation and has served as program director for

US National Cancer Institute-funded T32 and K12 training grants and a

Fogarty International Center D43 training program.

Dr. Olopade is an elected member of the National Academy of

Medicine, the American Academy of Arts and Sciences, and the

American Philosophical Society. She serves on the board of directors for

the MacArthur Foundation, Lyric Opera of Chicago, and Cancer IQ.

Sola Olopade, MD, MPH University of ChicagoProfessor of Medicine and Family MedicineDirector of International Programs

MODERATOR: How do Chronic Diseases Impact the Doctor-Patient Relationship?; What Roles do Technology and Patient Satisfaction Play in the Doctor-Patient Relationship?

Dr. Sola Olopade is Professor of Medicine and director

of international programs at the Pritzker School of

Medicine, University of Chicago. Dr. Olopade graduated

from the University of Ibadan Medical School, Nigeria

in 1980. He completed his residency in Internal Medicine

at Cook County Hospital and fellowship in Pulmonary,

Critical Care and Sleep Medicine at the Mayo Clinic. Dr. Olopade holds a

Master of Public Health degree in Health Policy and Administration from

the University of Illinois at Chicago. He completed an ethics fellowship

at the MacLean Center and now teaches responsible conduct of research

and ethics of international medicine and research. He assisted the

University of Ibadan in developing their Ethics Board with federal-wide

assurance certification. Dr. Olopade is an environmental scientist and

experienced clinical investigator. His research is focused on the impact

of household and environmental pollution on individual and population

health, with particular emphasis on women and children in Nigeria,

Bangladesh and the USA. Dr. Olopade has received many honors, includ-

ing the American College of Chest Physicians Humanitarian Award in

2006 and 2010 and Chicago Magazine’s Top Doctor since 2011.

18 19

Angela Pace-Moody, MSUniversity of ChicagoCenter Director, Bucksbaum Institute for Clinical Excellence

WELCOME: Bucksbaum Institute Overview

Angela Pace-Moody, MS is the Center Director of the

Bucksbaum Institute for Clinical Excellence at the

University of Chicago. Ms. Pace-Moody is responsible for

the financial, programmatic, and administrative

leadership of the Institute’s thirty programs, which

include local, national, and international initiatives.

Ms. Pace-Moody has more than two decades of management

experience in the corporate, nonprofit, government, philanthropy, and

academic sectors. Angela’s management expertise includes projects

in healthcare, community development, energy efficiency, and urban

planning throughout the United States. She has also worked with

the Columbia University Earth Institute and the United Nations on an

international development plan for the city of Accra, Ghana.

Angela earned her B.A. from the University of Chicago in an inter-

disciplinary Social Science program: Law, Letters & Society; she earned

her M.S. in Urban Planning from the Graduate School of Architecture at

Columbia University in New York City; and she has taken several leader-

ship development courses at the University of Chicago Booth School

of Business. Also, through her board work, Angela has provided stra-

tegic leadership to more than 10 non-profit organizations over the last

15 years.

Monica Peek, MD, MPH University of Chicago Associate Professor of MedicineAssociate Director, Chicago Center for Diabetes Translational

Research

SPEAKER: The Doctor-Patient Relationship and Diabetes (United States); The Doctor-Patient Relationship and Health Care Disparities (United States)

Dr. Monica Peek is an Associate Professor in the Division of General Internal Medicine at the University of Chicago where she provides clinical care, teaches and does health services research in the area of health disparities. She received her medical degree and master’s degree in public health from the Johns Hopkins University and

completed her residency training at Stanford University Hospital. She then worked for the National Health Service Corps for two years at a community health center for the medically underserved in Ohio before relocating to Chicago.

As a member of the Robert Wood Johnson Foundation (RWJF) pro-gram office, Finding Answers: Disparities Research for Change, Dr. Peek led a systematic review of health care interventions to reduce dispari-ties in diabetes care and outcomes. She has been funded by RWJF and the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) to explore racial differences in patient/provider communica-tion and to pilot patient-empowerment interventions to enhance such communication among blacks with diabetes. She is the Co-Principal Investigator of grants from the Merck Company Foundation and NIH/NIDDK to improve diabetes care and outcomes among residents on the South Side of Chicago, a predominantly African-American, working class community with significant disparities in diabetes health outcomes such as lower extremity amputations. Dr. Peek was part of the NIDDK stra-tegic planning committee whose 2010 report “Advances and Emerging Opportunities in Diabetes Research” set forth the diabetes research agenda for the next 5–10 years.

Dr. Peek also does research on the development and evaluation of community-based, culturally-tailored interventions to promote healthy behaviors and preventive care, including women’s health (e.g., breast cancer screening), physical activity and diabetes self-management.

20 21

Mark Siegler, MD University of ChicagoLindy Bergman Distinguished Service Professor of MedicineFounding Director, MacLean Center for Clinical Medical Ethics Executive Director, The Bucksbaum Institute for Clinical Excellence

SPEAKER: The Doctor-Patient Relationship and Shared Decision Making in the United States

Dr. Siegler, who has practiced and taught internal medi-

cine for more than forty-five years, is the Lindy Bergman

Distinguished Service Professor of Medicine and Surgery

at the University of Chicago and Founding Director of

the University of Chicago’s MacLean Center for Clinical

Medical Ethics. In 2011, he was appointed as Executive

Director of The Bucksbaum Institute for Clinical Excellence, a new insti-

tute that aims to improve patient care and patient outcomes.

After graduating with honors from Princeton University in 1963, he

received his medical degree in 1967 from the University of Chicago

where he was an intern, resident and Chief Resident in Medicine. This

was followed by a year of advanced training at the Hammersmith-

Royal Postgraduate Hospital in London, England. In 1972, he joined the

University of Chicago faculty, organizing and directing one of the earli-

est medical intensive care units. This experience with critically ill patients

introduced him to a range of ethical problems that he continues to inves-

tigate, teach, and write about. In 1974, he created and named the field of

clinical medical ethics.

In 1984, the University of Chicago established the MacLean Center for

Clinical Medical Ethics, the first program in the nation devoted to study-

ing “practical everyday ethical issues in medicine.” In its first decade, the

MacLean Center was chosen by U.S. News and World Report for three

consecutive years as the leading medical ethics program in the United

States. Since then, the MacLean Center, under Dr. Siegler’s direction, has

become the largest fellowship program in clinical ethics in the world,

with five endowed University chairs in clinical ethics. More than 450

physicians and other health professionals have trained at the MacLean

Center, many of whom now direct ethics programs in the U.S., Canada,

and Europe, as well as Australia, Africa, South America and China. In

2013, the MacLean Center received the prestigious Cornerstone Award

from the American Society for Bioethics and Humanities for “outstand-

ing contributions from an institution that has helped shaped the direc-

tion of the fields of bioethics.”

In 2016, Dr. Siegler received a bioethics award from Johns Hopkins

University in recognition of his extraordinary leadership within the field

of bioethics. The award stated, “The training programs established by

you, including more than 350 clinical fellows across almost 35 years,

have had a greater impact than any other clinical ethics training program

in the world.”

Dr. Siegler has written more than 200 journal articles, 50 book

chapters and five books. His textbook, co-authored with Al Jonsen

and William Winslade, Clinical Ethics: A Practical Approach to Ethical

Decisions in Clinical Medicine, 8th Edition (2015), has been translated

into eight languages. A ninth edition is planned for 2020. In April 2017,

Springer Publishing released Dr. Siegler’s most recent book, “Clinical

Medical Ethics: Landmark Works and Legacy of Mark Siegler, MD.”

This book was co-edited with Dr. Laura Roberts, chair of psychiatry at

Stanford University.

Luke Slawomirski, MScOrganisation de Coopération et de Développement Économiques

(OECD)Health Economist

SPEAKER: Doctor-Patient Relationship and Patient Satisfaction (Europe)

Luke Slawomirski is a health economist and policy ana-

lyst with the OECD Health Division in Paris, France. His

areas of focus include eHealth and knowledge-based

health systems, patient safety and the Patient-Reported

Indicators Survey (PaRIS). Luke co-authored the recent

report ‘New Health Technologies: Managing Access,

Value and Sustainability’ and the OECD working paper ‘The Economics of

Patient Safety’. He is a former clinician and holds a Master’s Degree in

Health Economics. His interests include clinical quality improvement and

the political economy of health. In his previous role at the Australian

22 23

Commission on Safety and Quality in Health Care he advanced a number

of national initiatives including studies of geographical healthcare varia-

tion, incentives for quality in healthcare pricing, and a national policy

framework for incident disclosure. Prior to that he held a range of policy

and clinical roles in Australia and the United Kingdom.

Dominique Stoppa-Lyonnet, MD, PhDUniversity of Paris–DescartesProfessor of GeneticsGenetics Unite

SPEAKER: The Doctor-Patient Relationship in Europe

Physician Dominique Stoppa-Lyonnet is a professor of

genetics at Paris Descartes University and heads up the

Department of Genetics at Institut Curie. She sits on the

Oncogenetics Board of the French National Cancer

Institute (INCa). She was a member of the Scientific and

Medical Board of the French Biomedicine Agency (ABM)

from 2005 to 2015 and the French National Consultative Ethics

Committee (CCNE) from 2005 to 2013.

Prof. Stoppa-Lyonnet specializes in the diagnosis of predisposition

to cancer, particularly breast and ovarian cancer. She works in clini-

cal genetics and in the laboratory, where her research focuses on rare

DNA repair disorders and the genetic epidemiology of predisposition to

breast and ovarian cancer, as well as the treatment of women at high risk

of these cancers. She played a key role in opposing the patents of the

BRCA1 and BRCA2 genes awarded by the European Patent Office.

She was co-rapporteur of two CCNE opinions on the ethical issues

relating to pre-natal and pre-implantation genetic diagnosis, and non-

invasive prenatal testing. Finally, she coordinated a report on the role

of pre-natal and pre-implantation testing for hereditary forms of

cancer, at the request of the ABM and INCa.

In March 2014, she became a Paris city councilor for the fifth

arrondissement, and has been a metropolitan councilor since

January 2016.

Léon Tshilolo, MD, PhD Centre Hospitalier MonkoleMedical Director

SPEAKER: The Doctor-Patient Relationship in Africa

Léon Tshiolo, MD, PhD is Medical Director at Centre

Hospitalier Monkole in Kinshasa, Democratic Republic of

the Congo; Medical Director at Centre de Formation et

d’Appui Sanitaire; and Principal Coordinator at Centre

Hospitalier Monkole. Dr. Thilolo’s research interests

include Pediatric Hematology, primarily treating the

effect of Sickle Cell Anemia. An expert in his field, Dr. Tshilolo played an

integral role in the successful introduction of a safe treatment for sickle

cell anemia. Titled Project REACH, an acronym for Realizing Effectiveness

Across Continents with Hydroxyurea, Dr. Tshilolo successfully introduced

a safe hydroxyurea treatment for children with sickle cell disease in

sub-Saharan Africa. As a result of this success, Dr. Tshilolo hopes that

Hydroxyurea therapy will be made available so that sickle cell disease

can be treated worldwide.

Sheryl van der Poel, MD, PhDWorld Health Organization (WHO)Scientist, Medical Officer

Dr. Sheryl van der Poel is Medical Officer in the

Reproductive Health and Research Department at the

World Health Organization (WHO) in Geneva

Switzerland where she has worked since 2007. Dr. Van

der Poel is recognized as an expert in the field of infertil-

ity and reproductive health. Her research focuses on

infertility in developing countries. Dr. Van der Poel is a prolific researcher

and writer, publishing extensively on reproductive health topics.

24 25

Directory

Leora Auslander, PhDUniversity of [email protected]

Christine Berling, PhDMinistry of Solidarity and

Health, [email protected]

Marina Cavazzana, MD, PhDUniversity of Paris–[email protected]

Arnaud Coulombel, PhDUniversity of Chicago [email protected]

Kamal El Bissati, PhDUniversity of [email protected]

Sylvie Fainzang, HDRUniversity of Paris–[email protected]

Élaine Gluckman, MD, [email protected]

Serigne Magueye Gueye, MDUniversite Cheikh Anta DIOP [email protected]

Rotimi Jaiyesimi, MBBS, MBA, LLMBasildon University [email protected]@obs-gyn.org

Wei Wei Lee, MD, MPHUniversity of [email protected]

Funmi Olopade, MDUniversity of [email protected]

Sola Olopade, MD, MPH University of Chicago [email protected]

Angela Pace-Moody, MSUniversity of [email protected]

Monica Peek, MD, MPHUniversity of [email protected]

Claire Rieux, MDMSF [email protected]

Mark Siegler, MDUniversity of [email protected]

Luke Slawomirski, [email protected]

Dominique Stoppa-Lyonnet, MD, PhDGenetics [email protected]

Léon Tshilolo, MD, PhD Centre Hospitalier Monkole [email protected]

Sheryl Van der Poel, MD, PhDWorld Health Organization (WHO)[email protected]

François Villa, PhDUniversity of Paris–[email protected]

Jennifer Moriatis Wolf, MDUniversity of [email protected]

Notes

26 27

Notes

Notes

28

Agenda At-a-GlanceFor detailed agenda, see pages 6–8.

Day 1: Friday, March 1, 2019

9:00–9:30 a.m. Breakfast and Registration

9:30–9:55 a.m. Welcome

9:55 a.m.–12:30 p.m. Panel 1: What is the Doctor-Patient Relationship?

12:30–2:00 p.m. Lunch

2:00–3:30 p.m. Panel 2: How do Chronic Diseases Impact the Doctor-Patient Relationship?

3:30–3:50 p.m. Afternoon Break

3:50–5:00 p.m. Panel 3: What Roles do Technology and Patient Satisfaction Play in the Doctor-Patient Relationship?

5:15–6:00 p.m. ReceptionCenter in Paris

7:30 p.m. DinnerLe Train Bleu

Day 2: Saturday, March 2, 2019

9:00-9:30 a.m. Breakfast and Registration

9:30-9:40 a.m. Welcome

9:40-11:30 a.m. Panel 4: Looking to the Future, What are Ways to Improve the Doctor-Patient Relationship?

11:30 a.m.–12:00 p.m. Summary Discussion

12:00 p.m. Adjourn

Bucksbaum Institute for Clinical ExcellenceThe University of Chicago Biological Sciences5841 South Maryland AvenueRm. W-737, MC6098Chicago, IL 60637United StatesPhone: (773) 702-3906Website: bucksbauminstitute.uchicago.edu

Center for Global HealthThe University of Chicago Biological Sciences5841 South Maryland AvenueSuite G-120, MC 2121Chicago, IL 60637United StatesPhone: (773) 702-5038Website: cgh.uchicago.edu

Center for Global Health

Center in ParisThe University of Chicago6, rue Thomas Mann75013 Paris, FrancePhone: +33 (0) 1 53 94 78 80 Website: centerinparis.uchicago.edu

Center in Paris