laura a. siminoff, ph.d. 215-204-5200 dean fax 215-204 ... h. carnell professor ... school of...

February12,2017ToWhomitMayConcern:IampleasedtopresentmycredentialsforthepostofPresidentandViceChancellorofBrockUniversity.IcurrentlyserveasDeanoftheCollegeofPublicHealth,TempleUniversity.LocatedinPhiladelphia,PA,USA,TempleUniversityisapublic-affiliated,four-yearCarnegieR1designatedresearchuniversity,andanationalleaderineducation,researchandhealthcare.Fundedbyapluralityofprivatefunds,theuniversityserves38,000undergraduateandgraduatestudents.TheCollegeofPublicHealthiscommittedtoreimaginingandharnessingpublichealtheducation,researchandpracticeinuniqueways.AttheTempleCollegeofPublicHealth,publichealthproactivelyandpositivelyincorporatesnursing,socialwork,medicalinformatics,physicalandoccupationalhealth,andotherhealthrelevantdisciplinesalongwithtraditionaldisciplinessuchasepidemiology,intoanintegratedCollegeofPublicHealth,inordertofulfillitsmissionofunderstandingthefactorsthatshapethehealthofpopulationsaswellasthewaysinwhichthosefactorsaffectthedesignofhealthcareanditsdeliverytoindividualsandthebroaderpopulation.WearealeaderinthisbroadinterdisciplinaryapproachthatisestablishingtheCollegeasacenterofexcellenceintheproductionofnewknowledgeandeducatingthepublichealthandhealthcareworkforceofthefuture.AsDeanofthiscollegeof6,000studentsandalmost700employees,Inotonlyguideourstrategicvision,butamalsochargedwithmanagingabudgetof$92,000,000,including$22,000,000annuallyinexternallyfundedresearch.Ourchallengehasbeentocontinuetoofferexcellenceineducationwhilemeetingthefinancialrealitiesofthecurrenteconomicenvironmentfacedbyallinstitutionsofhighereducationworldwide.Wearecontinuallyassessingtheeducationalandsocietallandscapestoinnovateandprovidethebesteducationtoourstudents,onethatallowsthemtogrow,achieveintheirfuturecareersandcreatesanenvironmentthatcontinuestonurturetheproductionofnewknowledge.Thisrequiresworkingwithallstakeholders—students,faculty,alumniandourcommunity.Inaddition,IcontinuetobeanactiveresearcherandeducatorwithgrantsfromtheNationalInstitutesofHealthandotherfederalandprivatefunders.Ibelieveincollaborativeleadership,publicengagement,innovationandleadingbyexample.Iwouldbeexcitedtofurtherexplorethisopportunitytobringmyexperience,visionandenergytobearonBrockUniversity.Yours,

LauraA.Siminoff,PhDDeanLauraH.CarnellProfessorCollegeofPublicHealth

Laura A. Siminoff, Ph.D. Dean Bell Building (TECH CENTER) 1101 Montgomery Ave. Philadelphia, PA 19122 [email protected] http://siminoffresearchgroup.org [email protected] http://siminoffresearchgroup.org

Phone 215-204-5200 Fax 215-204-5260 Web www.cph.temple.edu

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Updated 10/25/2016

CURRICULUM VITAE

Laura A. Siminoff, Ph.D.

Home Address: 822 N. American Street Unit 9 Philadelphia, PA 19123 Office Address: Temple University College of Public Health Bell Building Suite 374, 3rd Floor Philadelphia, PA 19121 Telephone: Work: (215) 204-5218 Fax: (215) 204-5450 Mobil: (216) 272-6303

Email: [email protected]

EDUCATION and TRAINING 1975 B.A. in Anthropology, McGill University, Montreal, Quebec, Canada 1978 M.A. in Anthropology, University of New Brunswick, Fredericton, New

Brunswick, Canada 1988 Ph.D. in Public Health, Department of Behavioral Sciences and Health

Education, School of Hygiene and Public Health, Johns Hopkins University

HONORS and AWARDS

1976 – 1978 University of New Brunswick Scholarship 1984 – 1985 Leopold Schepp Foundation Grant 1983 – 1987 Johns Hopkins University Scholarship 1997 – 2006 Million Dollar Professor, Case Western Reserve University, Cleveland, OH 2001 – 2002 Executive Leadership in Academic Medicine (ELAM) Fellowship 2005 Fulbright Specialist (Visiting Professor, University of Sydney, Sydney, AU

2006) 2005 Ranked above the 95th percentile of NIH awardees over the past 25 years

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2008 – 2014 Theresa A. Thomas Memorial Foundation Chair in Cancer Prevention and

Control

2010 Visiting Professor, University of Southampton, United Kingdom 2014 – Laura H. Carnell Professorship, Temple University, Philadelphia, PA 2016 – 2019 Diamond Jubilee Visiting Scholar, University of Southampton, United Kingdom

PROFESSIONAL APPOINTMENTS

1987 – 1988 Research Coordinator, Center for Medical Ethics, University of Pittsburgh, Pittsburgh, PA 1989 – 1996 Director of Research, Center for Medical Ethics, University of Pittsburgh, Pittsburgh, PA 1989 – 1995 Assistant Professor of Psychiatry, University of Pittsburgh School of Medicine, Pittsburgh, PA 1990 – 1995 Assistant Professor of Public Health, University of Pittsburgh, Graduate School

of Public Health, Pittsburgh, PA 1995 – 1996 Associate Professor of Public Health, University of Pittsburgh, Graduate School

of Public Health, Pittsburgh, PA 1996 – 1999 Associate Professor of Medicine and Bioethics, Case Western Reserve University School of Medicine, Cleveland, OH 2000 – 2006 Professor of Medicine, Bioethics, and Oncology, Case Western Reserve

University School of Medicine, Cleveland, OH 2002 – 2006 Professor of Bioethics, Family Medicine and Oncology, Case Western Reserve

University School of Medicine, Cleveland, OH 2006 – 2014 Professor and Chair, Department of Social and Behavioral Health, School of

Medicine, Medical College of Virginia, Virginia Commonwealth University, Richmond, VA

2006 – 2014 Associate Director, Cancer Prevention and Control Program, Massey Cancer Center, Richmond, VA

2014 – Dean and Laura H. Carnell Professor of Public Health, College of Public Health, Temple University, Philadelphia, PA

MEMBERSHIPS IN PROFESSIONAL and SCIENTIFIC SOCIETIES 1983 – American Public Health Association 1989 – Society for Medical Decision Making 1993 – Academy Health 2000 – American Society for Preventive Oncology 2004 – American Psychosocial Oncology Society 2004 – International Psycho-Oncology Society 2004 – European Association Communication and Health 2014 – The Transplant Society

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PROFESSIONAL SERVICE ACTIVITIES

Journal Referee (partial list)

Annals of Internal Medicine Archives Internal Medicine Clinical Transplantation Health Affairs Health Communication Health Psychology Journal of General Internal Medicine Johns Hopkins University Press Journal Health Politics, Policy and Law Journal of Clinical Oncology Journal of Family Medicine Journal of the American Medical Association Journal of the National Cancer Institute Medical Care Medical Decision Making Milbank Quarterly Patient Education & Counseling Qualitative Sociology Social Science & Medicine Psycho-Oncology

Editorial Board 1998 – 2001 Journal of Transplant Coordination 2001 – Progress in Transplantation 2010 – American Journal of Bioethics: Primary Research Study Section (Peer Review) Member 1992 – Dutch Cancer Society 1993 – 1997 Health Services Development Grants Study Section (Agency for Health Care

Policy and Research) 1993 – National Cancer Institute (Ad Hoc Reviewer) 1995 – 1998 National Cancer Institute of Canada 1997 – 2002 Veterans Administration HSR&D (Ad Hoc Reviewer) 1997 – 2000 Agency for Health Care Policy and Research (Ad Hoc Reviewer) 1998 – 1999 American Cancer Society Institutional Grant Review Panel (Ohio) 2000 – 2003 Susan B. Komen Breast Cancer Foundation 2003 National Institute of Health, SNEM-1 study section (Ad Hoc Reviewer) 2004 – 2006 HRSA Division of Transplantation 2007 – Veterans Administration HSR&D Health Disparities Panel

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2011 – 14 NCI Subcommittee F (R25 Reviewer) 2012 – 14 PCORI Study Section 2015 NHGRI CEER study section 2016 NCI P01 study section Institutional Service (local and national) 1988 – 1991 Pittsburgh Cancer Institute Human Subjects Review Committee 1988 – 1997 Associate, Pittsburgh Cancer Institute 1989 – 1996 WPIC Research Committee 1991 – 1992 Bio-behavioral Sciences Teaching in the Medical School Subcommittee,

University of Pittsburgh 1991 – 1996 Research Integrity Committee for the University of Pittsburgh Medical School 1991 – 1993 Women’s Health Care Center Committee, University of Pittsburgh 1992 – 1993 Medicine and Society Course Steering Committee, University of Pittsburgh 1992 – 1995 Provost’s Advisory Committee on Women’s Concerns, University of Pittsburgh 1991 – 1996 University of Pittsburgh School of Nursing Research Committee 1995 – 2001 National Action Plan on Breast Cancer Task Force, Clinical Trials Working

Group (Department of Health and Human Services) 1996 – 2006 Program Leader, Case Comprehensive Cancer Center, University Hospitals of

Cleveland 1996 – 1998 Department of Medicine Research Coordinating Committee, Case Western

Reserve University 1998 – 2006 Women Faculty of the School of Medicine, Case Western Reserve University

(Board Member) 1998 – 2000 Division of General Internal Medicine Leadership Committee, Case Western

Reserve University 1998 – 2000 Faculty Computing and Information Resources Committee, Case Western

Reserve University 1998 – 2002 United Network of Organ Sharing (UNOS) Committee on Council for Organ

Availability Exceptional Requestor Working Group 1999 – 2002 Veterans Administration Research and Development Review Board, Louis

Stokes Cleveland VA 1999 – 2001 Department of Medicine Committee on Appointments, Promotions and Tenure,

Case Western Reserve University School of Medicine 1999 – 2001 Department of Medicine Committee on Research, Case Western Reserve

University School Of Medicine 2000 – Consensus Conference on Living Related Donors, National Kidney Foundation 2000 – 2001 State of the Art Conference on Informed Consent, Veterans Administration

(Steering Committee) 2001 – 2002 Science and Societal Issues Symposium, Case Western Reserve University

Biology Department (Judge) 2001 – Conference on Non-related Living Donors, National Kidney Foundation 2001 – 2002 American Society for Bioethics and Humanities, Membership Survey Committee 2001 – 2006 Minority Organ Tissue Transplant Education Program (MOTTEP), (Advisory

Board Member) 2002 – 2004 Dean’s Women’s Issues Advisory Committee, School of Medicine, Case

Western Reserve University, Cleveland, OH 2002 – 2006 Research Committee, School of Medicine, Case Western Reserve University,

Cleveland, OH

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2002 – 2004 Chair, Committee on Dry Lab Research, School of Medicine, Case Western Reserve University, Cleveland, OH

2002 – 2005 Faculty Senate, Case Western Reserve University, Cleveland, OH 2004 – 2006 Medical Advisory Board Member, LifeBanc, Cleveland, OH 2004 – 2005 Consultant and Speaker for NICHD National Network on Psychosexual

Differentiation 2005 – 2007 Chair, American Society for Bioethics and Humanities Research Affinity Group 2005 – 2006 Chair, Behavioral Protocol Review, Safety and Monitoring Committee, Case

Comprehensive Cancer Center, Cleveland, OH 2005 – 2006 School of Medicine Committee on Appointment, Promotion and Tenure, Case

Western Reserve University, Cleveland, OH 2006 – 2014 Massey Cancer Center, PRMS, Virginia Commonwealth University, Richmond,

VA 2006 – 2014 Women’s Health Institute, Steering Committee, Virginia Commonwealth

University, Richmond, VA 2009 National Kidney Foundation Advisory meeting on Financial Incentives for

Donation. Washington, DC. 2009 Siminoff LA. Invited participant to: The Transplant Society New Key Opinion

Leader Meeting. Jackson Hole, WY 2009 – 2012 National Kidney Foundation, End the Wait Task Force (Task Force Member). 2009 – 2010 National Cancer Institute, Acquisition of Normal Tissues Working Group (Work

Group Member) 2009 – 2010 European Association for Communication in Healthcare. Member, Scientific

Committee of the next International Conference on Communication in Healthcare (ICCH)

2010 – 2014 National Cancer Institute, Genomic Management Program (GMaP) (Region 1 member and Social and Behavioural group leader).

2010 External Advisory Board U54 CCSG: Howard-Hopkins Partnership. 2010 – 2014 European Association for Communication in Healthcare. Deputy National US

Representative 2010 – 2011 Conference Executive Advisory Board, DC Health Communication Conference 2011 Co-chair, 7th Annual Women’s Health Research Day. VCU Institute for

Women’s Health. Richmond, VA 2011 – 2012 Scientific Committee Member, International Conference on Communication in

Health Care 2015 – 16 Chair, Temple University Building Planning Executive Steering Committee 2015 Planning Committee of the Division of Cancer Control and Population Sciences

(DCCPS) at the National Cancer Institute (NCI) & the Division of Extramural Science Programs (DESP) at the National Institute of Nursing Research (NINR), Caring for Caregivers and Patients: Revisiting the Research and Clinical Priorities for Informal Cancer Caregiving

2015 – Differences of Sex Development (DSD) Health Ad Hoc Committee of the Association of American Medical Colleges Advisory Committee on Sexual Orientation, Gender Identity, and Sex Development

2015 Chair, Presidential Committee on Campus Sexual Misconduct 2015 – Research Committee, Association of Schools & Programs of Public Health

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TEACHING and ADMINISTRATION 1. Administrative Positions 1999 – 2006 Co-Director, Program in Cancer Prevention, Control and Population Research,

Case Western Reserve University and University Hospitals of Cleveland, Comprehensive Cancer Center, Cleveland, OH

2001 – 2006 Director, Prevention Research Educational Postdoctoral Training Program (PREP), Case Comprehensive Cancer Center, Case Western Reserve University

2002 – 2006 Program Leader, Behavioral Cancer Prevention and Control Program, Case Comprehensive Cancer Center, Cleveland, OH

2003 – 2006 Director, Doctoral Program in Bioethics, Department of Bioethics, Case Western Reserve University

2006 – 2014 Associate Director, Cancer Prevention and Control Program, Massey Cancer Center, Richmond, VA

2014 – Dean and Laura H. Carnell Professor of Public Health, College of Public Health, Temple University, Philadelphia, PA

2. Courses and Seminars 1988 – 1992 Introduction to Patient Care, Division of Family Medicine, University of

Pittsburgh (Responsible for small group sessions with first year medical students) 1989 – 1994 Clinical Ethics Training Program, Center for Medical Ethics, University of

Pittsburgh (Periodic case conferences with medical house staff and fellows) 1990 – 1996 Research Ethics, Department of Psychiatry, University of Pittsburgh (Survey course in research ethics for post-doctoral students, fellows, and faculty) 1991 – 1996 Research Methods, Ethical Research Concerns: IRBs and Consent Forms Department of Internal Medicine, University of Pittsburgh (Annual seminar with internal medicine fellows) 1991– 1995 Project Coordinator Course, Introduction to Research Ethics, Department of

Psychiatry, University of Pittsburgh (Biannual seminar presents an overview of research ethics pertinent to WPIC

project coordinators and other staff) 1992 – 1994 Medicine and Society, University of Pittsburgh (Member of committee directing this 40-week course for first and second year

medical students: lectures on treatment decision making and ethical issues in a variety of medical areas)

1993 – 1996 Social Science Views of Medicine and Clinical Practice, Center for Medical

Ethics and Department of History and Philosophy of Science, University of Pittsburgh (Seminar series on medical sociology for fellows and graduate students given in conjunction with a clinical practicum)

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1993 – 2005 Integrative Seminar in Health Services Research (HSADM3004), University of Pittsburgh (Lecture: "Studying Hospital Health Care Providers: Going Beyond the Medical Charts")

1993 – 1996 Design of Clinical Trials (EPI2181), University of Pittsburgh (Lecture: "Ethical

Issues in the Conduct of Clinical Trials") 1998 – 2000 Planning Measurements - I (Department of Medicine –– Seminar in Methods,

CWRU SOM (Lecture: “Validity Assessments, Psychometrics, Use of Questionnaires and Surveys and Development of New Instrumentation”)

1999 – 2005 Graduate Seminar in Pediatric Psychology, CWRU SOM (Lecture: “Analyzing

and Managing Qualitative Data”) 1998 – 2005 Bioethics Masters Paper - BETH 402: Preceptor, MA First Year Paper 1998 – 2003 EPBI 460 and 461, Health Services Research Methods I and II (Lecture: ‘Using

Qualitative Methods in Health Services Research”) 1999 – 2001 BETH 401: Organ Transplantation Seminar Series (Fall Semester) 2003 – 2005 BETH 401: Empirical Methods in Bioethics 2005 – 2005 BETH 511: Grant Writing 2006 – 2014 Lectures for several VCU courses including Health Psychology, Health

Communication, and Departmental Seminars 2014 – Lectures for several Temple University Seminars 3. Supervision of Students and Fellows and Others (partial list) Postdocs & Fellows David Scott Miller, MD; MA Department of Medicine, University of Pittsburgh. (1989–1990). Lois Teston, MD Oncology Fellow, Division of Oncology, School of Medicine, Case Western Reserve University 1999–2000). Chris Simon, PhD. Department of Bioethics, Case Comprehensive Cancer Center, School of Medicine, Case Western Reserve University (2001–2003). Catherine Demko, PhD. Department of Epidemiology and Biostatistics, Case Comprehensive Cancer Center, School of Medicine, Case Western Reserve University (2001–2003). Jane Brown, PhD. Department of Sociology, Case Comprehensive Cancer Center, School of Medicine, Case Western Reserve University (2002–2004).

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Christina Saunders Sturm, PhD. Department of Sociology, Case Comprehensive Cancer Center, School of Medicine, Case Western University, (2002–2004). Maghboeba Mosavel, PhD. Department of Bioethics, Case Comprehensive Cancer Center, School of Medicine, Case Western Reserve University, Department of Social and Behavioral Health, VCU (2002–2005). Richard Brown, PhD. Department of Bioethics, Case Comprehensive Cancer Center, School of Medicine, Case Western Reserve University, Department of Social and Behavioral Health, VCU (2003–2005). Esa Washington, MD Department of Family Practice, Case Comprehensive Cancer Center, School of Medicine, Case Western Reserve University, Department of Social and Behavioral Health, VCU (2003–2005). Levi Ross, PhD. Department of Bioethics, Case Comprehensive Cancer Center, School of Medicine, Case Western Reserve University (2004–2006). Jennifer Kraly, PhD. Department of Sociology, Case Comprehensive Cancer Center, School of Medicine, Case Western Reserve University (2005–2007). Mary Step, PhD. Department of Communications, Case Comprehensive Cancer Center, School of Medicine, Case Western Reserve University (2005–2008). Robin Matsuyama, PhD. Massey Cancer Center, School of Medicine, Department of Social and Behavioral Health, VCU (2006–2007). Patricia Edinborough, PhD. Massey Cancer Center, School of Medicine, Department of Social and Behavioral Health, VCU (2007–2008). Heather Marshall Traino, PhD. Department of Social and Behavioral Health, School of Medicine, VCU (2007–2009). Maria Thomson, PhD. Department of Social and Behavioral Health, School of Medicine, VCU (2010 – 2014). Eva Yuen, PhD. Department of Social & Behavioral Sciences, College of Public Health, Temple University (2015 – Present). Graduate Students Beth Chaitin, MSW; MA candidate in Medical Ethics, Center for Medical Ethics and Department of History and Philosophy of Science, University of Pittsburgh. The Ethic of Caring and the Provision of Nursing Care to AIDS Patient (1996). Kata Chillag, M.A.; Ph.D. candidate in Medical Anthropology, Department of Anthropology, University of Pittsburgh. Defining Normal: Representations of Patients’ and Families Experiences after Liver Transplantation (1997). Elisa Gordon, M.A.; Ph.D. candidate in Medical Anthropology, Department of Anthropology, Case Western Reserve University. “If It’s Not Broke, Don’t Fix It”: Patients’ and Clinicians’ Decision Making for Treatment of End-Stage Renal Disease in the United States (1999).

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Christina Saunders, M.A. Ph.D. candidate in Medical Anthropology, Department of Anthropology, Case Western Reserve University. Breast Cancer Illness Narratives: Examining the experience of living with breast cancer (1999–2002). Grace Warner, MS; Ph.D. candidate in Epidemiology and Biostatistics, Department of Epidemiology and Biostatistics, Case Western Reserve University. The Importance of Fatigue in Predicting Disability within a Community-Based Elderly Population (2000). Dean Leahy, MSW; Ph.D. candidate in Social Work, School of Social Work, University of Pittsburgh. Improving the Organ Donation Process: Can Social Work Help? (2002). Melissa Barber, MPH; Ph.D. candidate in Bioethics, Department of Bioethics, Case Western Reserve University. (2004–2006). Aaron Goldenberg. MPH; Ph.D. candidate in Bioethics, Department of Bioethics, Case Western Reserve University (2004–2006). Daniel Baughn, MS; Ph.D. candidate in Psychology, Department of Psychology, Virginia Commonwealth University (2007– 12 ). Laura Slosky, MS; Ph.D. candidate in Psychology, Department of Psychology, Virginia Commonwealth University (2008– 12). Lindsey Dorflinger, MS; Ph.D. candidate in Psychology, Department of Psychology, Virginia Commonwealth University (2009– 12). Lindsey Kurland, MS; Ph.D. candidate in Public Health, Department of Social and Behavioral Health, Virginia Commonwealth University (2011– 13). Jennifer St Claire Russell, MPH; Ph.D. candidate in Public Health, Department of Social and Behavioral Health, Virginia Commonwealth University (2012–2014). Beth Chalick-Kaplan, DNP. Capstone Project. candidate in Nursing, Department of Nursing, College of Public Health, Temple University (2015–2016). Junior Faculty Amy Zhang, Ph.D. Instructor in General Internal Medicine and Health Care Research, Case Western Reserve University. Primary advisor/mentor (Mentor for American Cancer Society Small projects Award for New Investigators 1998-2001; Award received 1999). Said Ibrahim, MD. Assistant Professor of General Internal Medicine and Health Care Research, Case Western Reserve University (Mentor for a career development award: 1999–2004; Award received 2000). Anita Weiss, MD. Assistant Professor of Pediatrics, Case Western Reserve University (Mentor for NIH career development award 2000–2005; Award received 2000). Amy Heneghan, MD. Assistant Professor of Pediatrics, Case Western Reserve University (Mentor for Robert Wood Johnson Generalist Physician Faculty Scholars Award: Award received 2001).

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Carolyn Ievers-Landis, MD. Assistant Professor of Pediatrics, Case Western Reserve University (Mentor for NIH career development award: Award received 2001). Elisa Gordon, Ph.D. Assistant Professor, Loyola University Medical School (Chicago). (Mentor for NIH career development award: Award received 2003). Sana Loue, Ph.D. JD candidate in Medical Anthropology, Department of Anthropology, Case Western Reserve University (2000–2004). Christian Simon, Ph.D. Assistant Professor of Bioethics, Case Western Reserve University (Mentor for NIH career development award: Award received 2004). Robin Matsuyama, PhD., Assistant Professor, Department of Social and Behavioral Health, VCU, (Mentor on American Cancer Society Cancer Control career development award: Award received 2008. Maghboeba Mosavel, Ph. D., Associate Professor, Department of Social and Behavioral Health, VCU, (Mentor on NIH career development award: (K) Award received 2008). Heather Marshall Traino, PhD., Instructor, Department of Social and Behavioral Health, VCU, (Mentor on NIH/NIDDK career development (K) award: Award received 2010). 4. Selected Seminars and Invited Lectureships Siminoff LA. "Development of a Model of Decision-Making Among Breast Cancer Patients." Presented at: Jay Yardley Symposium, The Johns Hopkins Oncology Center, Baltimore, MD; October 1986. Siminoff LA. "Breast Cancer Treatment Decisions: Ethical Implications." Presented at: Ethics for Lunch Series, University of Pittsburgh, Pittsburgh, PA; March 1988. Siminoff LA, Fetting JH. "Facing Medical Uncertainty: Making Breast Cancer Treatment Decisions after Surgery." Presented at: American Public Health Association Annual Meeting, Boston, MA; November 1988. Siminoff LA. "Referral to Cancer Trials: A Population Based Model.” Presented at: Pittsburgh Cancer Institute's Scientific Retreat, Pittsburgh, PA; December 1988. Fetting JH, Siminoff LA. "Description and Perception of Standard Breast Cancer Adjuvant Therapy Benefits: Effect on Clinical Trial Accrual." Presented at: American Society of Clinical Oncologists Annual Meeting, San Francisco, CA; May 1989. Siminoff LA, Fetting JH. "The Reluctance of Physicians to Recommend Clinical Trials: Factors Which May Affect Attractiveness of Trials for Physicians." Presented at: Society for Controlled Clinical Trials, Toronto, ON; May 1990. Siminoff LA, Fetting JH. "Patients and Physicians Talk About Breast Cancer." Presented at: ICA Annual Meeting, Chicago, IL; May 1991. Siminoff LA, Arnold RM, Caplan A, Virnig B. "Required Request: Dilemmas of Organ, Tissue and Corneal Procurement.” Presented at: Nebraska-Dartmouth Ethics Conference: Dilemmas in Organ Transplantation, Omaha, NE; October 1991.

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Siminoff LA, Arnold RM, Miller DS. "Difference in the Procurement of Organs and Tissues by Health Care Professionals." Presented at: Nebraska-Dartmouth Ethics Conference: Dilemmas in Organ Transplantation, Omaha, NE; October 1991. Siminoff LA. "Patients and Physicians: Current Trends in the Treatment of Breast Cancer Patients and the Factors which Effect Treatment Decision-Making." Presented at: University of Illinois at Chicago, Reframing Women's Health: Multidisciplinary Research and Practice, Chicago, IL; October 1992. Siminoff LA. "Recruitment of Breast Cancer Patients to Clinical Trials." Presented at: American Public Health Association Annual Meeting, Washington, DC; November 1992. Erlen JA, Siminoff LA, Dorst SK, Sereika SM. "Quality Nursing Care, Patient Satisfaction, and Patients with AIDS." Presented at: Second Annual National Nursing Research Conference, Charleston, WV; October 1993. Siminoff LA, Arnold RM. "Preliminary Results from a Public Opinion Survey of Attitudes and Projected Behavior About Non-Heart Beating Organ Donation Procurement Techniques.” Presented at: Washington Hospital Consensus Conference on Trauma Victims and Organ Donation, Washington, DC; October 1993. Erlen JA, Siminoff LA, Dorst SK, Sereika SM. "Quality Care and Patients with AIDS: A Challenge for Nursing." Presented at: Scientific Sessions of Sigma Theta Tau International Biennial Convention, Indianapolis, IN: November 1993. Siminoff LA, Arnold RM. "Organ Donation and Procurement: Clinical Issues and Controversies.” Presented at: Allegheny General Hospital Grand Rounds, Pittsburgh, PA; December 1993. Erlen JA, Siminoff LA, Dorst SK, Sereika SM. "Quality Nursing Care and Patient Satisfaction." Presented at: Sixth Annual Scientific Sessions of the Eastern Nursing Research Society, Binghamton, NY; April 1994. Siminoff LA, Arnold RM, Caplan AL, Seltzer DL. "Implementation of Required Request and Its Impact on Organ Donation". Presented at: 3rd Biennial Conference on Psychiatric, Psychosocial and Ethical Issues in Organ Transplantation, Richmond, VA; October 1994. Arnold RM, Siminoff LA, Seltzer DL, Caplan AL, Virnig B. "Estimation and Characterization of the Organ, Tissue and Cornea Donor Pool." Presented at: 3rd Biennial Conference on Psychiatric, Psychosocial and Ethical Issues in Organ Transplantation, Richmond, VA; October 1994. Seltzer DL, Siminoff LA, Arnold RM. "Public Opinion and Attitudes Toward Alternative Methods of Organ Procurement.” Presented at: 3rd Biennial Conference on Psychiatric, Psychosocial and Ethical Issues in Organ Transplantation, Richmond, VA; October 1994. Siminoff LA. "Guiding Public Policy and Empirical Data: The Lesson of Organ Donation." Presented at: American Public Health Association Annual Meeting, San Diego, CA; November 1995. Siminoff LA, Erlen JA, Sereika S, Dorst SK. "The Practice of Avoidance Behaviors by Nurses When Caring for HIV Patients." Presented at: American Public Health Association Annual Meeting, San Diego, CA; November 1995.

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Siminoff LA. "American Attitudes and Beliefs About Death." Presented at: Defining Death in a Technological Age: The Interface Between Medical, Science, and Society Conference, Cleveland, OH; November 1995. Siminoff LA. "Required Request/The Consent Process: Lessons Learned and Directions for the Future.” Presented at: Ortho Biotech Transplant Institute OPO Roundtable, Phoenix, AZ; November 1995. Siminoff LA. "Differences Between Donor and Nondonor Families and the Request Process." Presented at: Division of Transplantation, Annual Meeting; February 1996. Siminoff LA. “Doctor-Patient Communications: Patient Concerns Regarding Anti-estrogens.” Presented at: Fareston Investigators Meeting, Palm Springs, CA; October 1996. Siminoff LA. “An Intervention Study to Increase Older Patients’ Participation in Adjuvant Therapy Decisions for Breast Cancer.” Presented at: Cancer Prevention and Control Conference Series (Ireland Cancer Center/MetroHealth Medical Center), Cleveland, OH; October 1996. Ravdin PM, Siminoff LA, Harvey JA. “Survey of American Women Who Have Received Adjuvant Chemotherapy.” Presented at: 19th Annual San Antonio Breast Cancer Symposium, San Antonio, TX; December 1996. Erlen JA, Sereika SM, Siminoff LA. “The Relationship between Quality of Care and Patient Satisfaction in Patients with AIDS.” Presented at: Nursing Research Conference, Dayton, OH; February 1997. Sutton LB, Glad J, Erlen J, Siminoff LA. “Recruiting Persons With AIDS for Research: Barriers and Strategies”. Presented at: Eastern Nursing Research Society Conference, Philadelphia, PA; April 1997. Erlen JA, Sereika SM, Siminoff LA. “Factors Related to the Quality of Nursing Care of AIDS Patients.” Presented at: Eastern Nursing Research Society Conference, Philadelphia, PA; April 1997. Ravdin PM, Siminoff LA, Harvey JA. “Attitudes of Breast Cancer Patients Who have Received Chemotherapy.” Presented at: Annual Meeting of the American Society of Clinical Oncologists, Denver, CO; May 1997. Siminoff LA. “Patient Understanding and Information Giving: The Effect of Presentation of Graphical Information on the Treatment Decisions of Older Breast Cancer Patients.” Presented at: Ireland Cancer Center Blood Club Seminar, Cleveland, OH; May 1997. Erlen JA, Sereika SM, Siminoff LA. “The Relationship between Outcomes and Quality of Care of AIDS Patients.” Presented at: Sigma Theta Tau International Research Conference, Vancouver, BC; June 1997. Siminoff LA. “Consent to Organ Donation: Who Donates, Who Doesn’t, and What Can We Do About It?” Presented at: Association of Organ Procurement Organizations (Annual Meeting), Chicago, IL; June 1997. Siminoff LA. “How Patients Make Decisions” Approaches in Breast Cancer: Today’s Challenges.” Presented at: University Hospitals of Cleveland, Cleveland, OH; October 1997. Siminoff LA. “Communicating with Alzheimer’s Disease Patients.” Presented at: University of Pittsburgh Alzheimer’s Disease Research Center, Pittsburgh, PA; October 1997.

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Siminoff LA. “African American Perspectives on Organ Donation.” Presented at: Fourth International Society for Organ Donation Congress, Washington, DC; July 1997. Siminoff LA. “Making Decisions with Breast Cancer Patients rather than for Them.” Presented at: Dana Farber Cancer Center, Boston, MA; February 1998. Siminoff LA. “Breast Cancer Adjuvant Decision Making.” Presented at: Case Western Reserve University Medical School (Medical Grand Rounds), Cleveland, OH; March 1998. Siminoff LA. “Communicating with Older Breast Cancer Patients: Challenges and Issues.” Presented at: Cleveland VA Medical Center (Division of Geriatric) Cleveland, OH; April 1998. Siminoff LA, Ravdin PM, et al. “The Psycho-Social Impacts of Breast Cancer.” Presented at: UICC and the Swiss Cancer League, Luzern, Switzerland; April 1998. Siminoff LA, Ravdin PM, et al. “Impact of a Computer-Based Tool for Providing Individualized Estimates of Outcomes Breast Cancer Patients.” Presented at: Annual Meeting of the American Society of Clinical Oncology, Los Angeles, CA; May 1998. Siminoff LA. “Update on the National Organ Procurement Study.” Presented at: Semi-Annual Meeting of the Ohio State Organ Procurement Organizations, Columbus, OH; May 1998. Siminoff LA. “A New Framework for Thinking about Informed Consent: An Empirical Study.” Presented at: Annual Bioethics Summer Retreat, Brewster, MA; June 1998. Siminoff LA. “Consent for Pediatric Organ Donation.” Presented at: LifeBanc Seminar, Cleveland, OH; September 1998. Siminoff LA. “New Results from the National Study into Family Consent to Organ Donation.” Presented at: Fifth Biennial Conference on Psychiatric, Psychosocial and Ethical Issues in Organ Transplantation, Cleveland, OH; October 1998. Siminoff LA, Silverman M. “Telling Patients the Diagnosis is Alzheimer’s Disease.” Presented at: Annual Meeting of the Gerontological Society of America, Philadelphia, PA; November 1998. Siminoff LA. “Organ Procurement and Democracy: Issues and Controversies.” Presented at: Messer Conference Plenary Session in Bioethics and Medicine (University of Pittsburgh), Pittsburgh, PA; April 1999. Siminoff LA “Breast Cancer Patients’ Participation in Adjuvant Therapy Treatment Decision-Making.” (Plenary Speaker) Presented at: International Conference on Treatment Decision-Making in the Clinical Encounter (McMaster University), Hamilton, ON; May 1999. Siminoff LA. “ Decoupling Does Not Work- The Data That Proves It.” (Plenary Speaker) Presented at: 24th Annual Meeting of the National Association of Transplant Coordinators (NATCO), Albuquerque, NM; July 1999. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Perceptions of Quality of Life in Patients with Chronic Knee and Hip Differences Between African-Americans and White Veterans.” Presented at: Society of General Internal Medicine (Midwest Division Meeting), Chicago, IL; September 1999.

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Siminoff LA. “Organ Procurement and Policy.” Presented at: Annual Meeting of the American Nursing Association (Dialysis Nurses Section), Seven Springs, PA; October 1999. Siminoff LA. “Results from the NIH Informed Consent Initiative.” Presented at: Annual Meeting of the American Society for Bioethics and Humanities, Philadelphia, PA; October 1999. Siminoff LA. “Required Request: Determinants of Family Consent.” Presented at: UNOS Region 10 Transplant Forum, Cleveland, OH; April 2000. Siminoff LA. “What the Empirical Data Tells Us are “Best Practices” for Consent to Organ Donation.” Presented at: UNOS Forum on Best Practices, San Antonio, TX; May 2000. Siminoff LA. “Ethical Issues and Organ Transplantation.” (Keynote address) Presented at: The McMahon-Coburn Ethics Colloquium (University of Texas), Dallas, TX; May 2000. Siminoff LA. “Consent Issues.” Presented at: Association of Organ Procurement Organizations 17th Annual Meeting (AOPO), Asheville, NC; June 2000. Siminoff LA. “Informed Consent in Dementia.” Presented at: Clinical, Behavioral and Social Science Research Conference (University Alzheimer’s Center), Cleveland, OH; June 2000. Siminoff LA. “The Future of Organ Procurement: Thoughts for the 21st Century.” (Keynote speaker) Presented at: Mid-America Transplant Services Board Retreat, Colorado Springs, CO; September 2000. Siminoff LA. “Organ Procurement Policy and Its Implications for Hospitals.” Case Western Reserve University Medical School (Department of Medicine-Grand Rounds), Cleveland, OH; October 2000. Siminoff LA. “Informed Consent for Tissue Donation.” Presented at: Ethics of Tissue Banking Project (II), Cleveland, OH; October 2000. Trauth J, Jernigan J, Neal-Ferguson D, Siminoff LA, Weissfeld J. “Recruitment Decisions of African American Women Regarding Participation With the PLCO Cancer Screening Trial.” Presented at: American Public Health Association Annual Meeting, Boston, MA; November 2000. Ang DC, Ibrahim S, Burant CJ, Siminoff LA, Kwoh CK. “Does Perception of the Role of Prayer in Arthritis Treatment Account for the Differential Rates of Joint Replacement between African Americans and Whites.” Presented at: ACR 64th Annual Scientific Meeting, Washington, DC; November 2000. Kwoh CK, Burant CJ, Siminoff LA, Ibrahim SA. “Do African American and White Veterans With Chronic Knee and Hip Pain Differ with Respect to Their Knowledge About Joint Replacement Surgery and Its Risks and Benefits?” (Poster) Presented at: Annual Meeting of the Gerontological Society, Washington, DC; 2000. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Health-related Attitudes/Beliefs Among Elderly, African-American and White Veterans With Chronic Knee and/or Hip Pain.” (Poster) Presented at: VA HSR&D Annual Conference; 2000. Kodish ED, Drotar D, Siminoff LA. “Ethical Implications of Informed Consent: Informed Consent in Pediatric Research.” Presented at: American Society for Bioethics and Humanities Annual Meeting, Salt Lake City, UT; 2001.

15

Siminoff LA. “Optimizing Donation Outcomes.” Presented at: Life Sharing Organ Procurement Organization Annual Meeting, San Diego, CA; April 2001. Siminoff LA. “Decision Aids for Cancer Treatment: What Are They and Do They Work?” Presented at: University of Hawaii (Visiting Professor Lecture), Honolulu, HI; April 2001. Siminoff LA, Ravdin PM, Hewlett J, Parker H, Mercer MB, Davis G. “Evaluation of the Impact of a Communication Tool Generated by the Computer Program “Adjuvant”, on Patients with Early Breast Cancer and Their Doctors.” Presented at: ASCO Annual Meeting, San Francisco, CA; May 2001. Siminoff LA. “Decision Aids and Communicating with Breast Cancer Patients.” Presented at: Ireland Cancer Center Blood Club Seminar, Cleveland, OH; September 2001. Siminoff LA. “Graduate Education in Bioethics: A Ph.D. Program in Empirical Bioethics.” American Society for Bioethics and Humanities, Annual Meeting, Nashville, TN; October 2001. Graham GC, Burant CJ, Kwoh CK, Siminoff LA, Ibrahim SA. “Knee/Hip Osteoarthritis Severity and Depression in Older Patients: Developing and Testing a Causal Model.” (Poster/abstract) Presented at: Annual Meeting of the Gerontological Society of America, Washington, DC; November 2001. Burant CJ, Kwoh CK, Siminoff LA, Ibrahim SA. “Patient Factors Associated with ‘Willingness’ to Undergo Joint Replacement: A Study of Elderly Male Patients with Osteoarthritis.” (Poster/abstract). Annual Meeting of the Gerontological Society of America, Washington, DC; November 2001. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Perceptions of Access to Medical Care Among Elderly African-American and White Veterans Attending Primary Care Clinics.” Presented at: VA HSR&D Annual Conference, Washington, DC; 2001. Siminoff LA. “Factors Influencing Consent to Donate Organs.” Presented at: Scientific Registry of Transplant Recipients (University Renal Research and Education Association) Ann Arbor, MI; April 2002. Siminoff LA. “Decision Aids and Their Use in Clinical Trial Settings.” Presented at: Southwest Oncology Group (SWOG) Spring Group Meeting, Dallas, TX; April 2002. Siminoff LA. “Working in Harmony: What Tissue Donors Want To Know.” Presented at: National Kidney Foundation (Transitions in Transplantation), Orlando, FL; June 2002. Siminoff LA. “Public Understanding of Death.” Presented at: American Society of Bioethics and Humanities, Baltimore, MD; October 2002. Peele P, Siminoff LA. “Value of Information: Women’s Choice of Cancer Treatment.” Presented at: Southern Economic Association Annual Meeting, New Orleans, LA; November 2002. Siminoff LA. “Measurement Issues in the Study of Organ Donation.” Presented at: Second Chance Trust Fund Conference (Ohio Department of Health), Columbus, OH; November 2002. Siminoff LA. “Attitudes and Practices Affecting Organ Donation by the African American Community.” (Keynote Speaker) Presented at: Annual MOTTEP Meeting, Cleveland, OH; November 2002.

16

Siminoff LA. “Family Consent: Developing a Model Intervention to Increase Consent to Organ Donation.” (Plenary Speaker) Presented at: UNOS Research to Practice: A National Consensus Conference, Orlando, FL; April 2003. Siminoff LA. “Decision Aids for Cancer Patients.” Presented at: University of New Mexico Cancer Center, Albuquerque, NM; April 2003. Siminoff LA. “Understanding Consent to Tissue Donation: Knowing Family’s Needs and Engendering Trust.” (Plenary Speaker) Presented at: Association of Organ Procurement Organizations (AOPO), Philadelphia, PA; June 2003. Siminoff LA. “Factors that Affect Consent to Organ Donation: HRSA Expert Panel on Organ Donation.” Washington, DC; June 2003. Siminoff LA. “Comparing Consent Practices to Randomized Controlled Trials for Cancer Patients with Those for Alzheimer’s Disease and Critically Ill Pediatric Patients: A Comparison of Communication Styles and Practices.” Presented at: Panelist for Communication (Medicine and Ethics Conference), Cardiff, Wales, UK; June 2003. Peele PB, Siminoff LA, Xu Y. "The Impact of an Evidence-Based Decision Tool in Adjuvant Therapy for Breast Cancer." Presented at: 5th International Conference on the Scientific Basis of Health Services, Washington, DC; September 2003. Peele PB, Xu Y, Siminoff LA. “Evidence-based Information and Women’s Choice of Adjuvant Breast Cancer Therapy.” Presented at: Southern Economic Association, San Antonio, TX; November 2003. Siminoff, LA. “Comparing Consent Practices to Randomized Controlled Trials for Cancer Patients With Those for Alzheimer’s Disease and Critically Ill Pediatric Patients: A Comparison of Communication Styles and Practices.” Presented at: National Communication Association Convention, Miami, FL; November 2003. Siminoff LA. “Communication and Informed Consent: Empirical Perspectives.” Presented at: European Association on Communication & Health (EACH), Bruges, Belgium; September 2004. Siminoff, LA. “Ethical and Policy Dilemmas with Financial Incentives for Organ Donation: Early Referral Study Results”. Presented at: Mid-America Transplant Services Board Retreat, Williamsburg, VA; October, 2004. Siminoff LA. “A Comparison of the Informed Consent Process in Pediatric and Adult Oncology.” Presented at: American Society of Bioethics and Humanities, Philadelphia, MD; October 2004. Siminoff LA. “Organ Donation Among the African American Community.” Presented at: The Douglas-Satcher Lecture Series, University Hospitals, Cleveland, OH; November 2004. Siminoff LA., Graham G and Gordon N. “Disparities in Doctor-Patient Communication Patterns of Breast Cancer Patients: The Influence of Socioeconomic and Demographic Factors.” Presented at: The American Psychosocial Oncology Society (APOS), Phoenix, AZ; January 2005. Zhang A and Siminoff LA. “Silence and Cancer: Why Do Families and Patients Fail to Communicate?” Presented at: The American Psychosocial Oncology Society (APOS), Phoenix, AZ; January 2005.

17

Appelt CJ, Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Arthritis-Specific Health Beliefs among Older Male Patients with Knee/Hip Osteoarthritis”. Presented at: Plenary Paper Session. VA HSR&D Annual Conference, Baltimore, MD; February 2005. Siminoff LA. ”Systematic Approaches for Obtaining Consent to Organ Donation”. Presented at: 2nd Annual Michigan Conference on Organ Donation, International association for Organ Donation. April, 2005. Siminoff LA. “Determinants of Organ Donation”. Presented at: Workshop on Increasing Rates of Organ Donation. Institute of Medicine, Washington, DC; June, 2005. Siminoff LA. “Perception of Brain Death and Organ Donation.” Keynote Speaker for Swiss Science Foundation Conference on Psychological Issues of Organ Donation. Bern, Switzerland; September, 2005. Siminoff LA. “Empirical Bioethics: Can Empirical Approaches be used to understand consent to Organ Donation.” Presented at: American Society for Bioethics & Humanities. Washington DC; October, 2005. Siminoff LA, Graham G, Gordon N. “Cancer Communication Patterns and the influence of Patient Characteristics: Disparities in Information-Giving and Affective Behaviors.” Presented at: EACH and AAVP Joint Meeting. Chicago, IL; October, 2005. Siminoff LA. “Setting a Research Agenda for Clinical Decision Making Tools.” Panelist for Special NCI – Sponsored Symposium at the annual meeting Society for Medical Decision Making. San Francisco, CA; November, 2005. Siminoff LA. “Informed Consent: Ethical and Empirical Consideration.” Center for Values, Ethics and the Law in Medicine, University of Sydney. Sydney Australia; March, 2006. Siminoff LA. “Coding Conversations: Opening the Black Box of Decision – Making to Improve Cancer Patient Care.” Presented at: Cancer Council of New South Wales (Australia), Sydney, Australia; March, 2006. Siminoff LA. “ Organ Donation: Ethics, Policy and Behavior in Conflict.” School of Psychology, University of Sydney. Sydney, Australia; April, 2006. Siminoff LA. “Coding Conversations: Research Tools to Understand and Improve Cancer Communication.” Presented at: Grand Rounds, Memorial Sloan Kettering, New York City, NY; May, 2006. Siminoff LA. “Issues in Organ Donation.” The President’s Council on Bioethics, Washington, DC; June 2006. Siminoff LA. “Making Optimal Treatment Decisions: Communicating with and Listening to Cancer Patients.” Presented at: MCV Annual Alumni Association Continuing Education Program, Richmond, VA; April, 2007. Siminoff LA. “Shared Decision Making, Ethics and Communication: What do oncologists need to know?” Presented at: American Society of Clinical Oncology Annual Meeting, Chicago, IL; June, 2007.

18

Siminoff LA. “Specialist to Patient: Effective Communication Strategies.” Presented at: Physician Education Resource Cancer Conferences, Hilton Head, SC; September, 2007. Step MM; Rose J; Siminoff LA. “Differences in Oncologist Initiated Relational Communication Messages toward Middle Aged and Older Breast Cancer Patients.” Presented at: International Conference on Communication in Healthcare, Charleston, SC; October, 2007. Siminoff LA; Bowen G; Marshall HM. “Results from the Early Referral and Request Model Study.” Presented at: HRSA Division of Transplantation, Nashville, TN; October, 2007. Siminoff LA; Step M; Rose J. “Coding Conversational Data: Approaches, Challenges and a New System for Data Coding.” Presented at: IPOS 10th World Congress of Psycho-Oncology, Madrid, Spain; June, 2008. Siminoff LA and Step M. “Importance of Relational Communication to Cancer Care: Measurement and Outcomes.” Presented at: EACH International Conference on Communication in Healthcare, Oslo, Norway; September, 2008. Siminoff LA. “Overcoming Obstacles to Conducting Effective Clinical Trials.” Presented at: National Commission on Cancer, Baltimore, Maryland; July, 2008. Siminoff LA, Rogers H, and Maghboeba M “Influence of Gender and Race on Diagnostic Delay in Colon Cancer.” Presented at: Cancer Health Disparities Summit, Bethesda, Maryland; July, 2008. Siminoff LA. “Communicating with Cancer Patients: Challenges and Approaches” Presented at: Wampler Lecture, Internal Grand Rounds, Virginia Commonwealth University School of Medicine, Richmond, VA; September, 2008. Siminoff LA. “Understanding Consent to Tissue Donation. NATCO/AATB Tissue Webinar, April, 2009. Robbins N, Haddad E, Siminoff LA, Quittner A, Rogan B, Speiser P, Mercer MB, Sandberg DE. “Parental Decision Making: A Contextual Analysis.” Presented at: Midwest Conference on Pediatric Psychology, Kansas City, MO; April, 2009. Robbins, N, Haddad E, Siminoff LA, Quittner A, Kogan B, Speiser P, Mercer MB, Sandberg DE. “Parental Medical Decision Making: A Contextual Analysis” Presented at: Midwest Conference on Pediatrics Psychology, Kansas City, MO; April, 2009. Siminoff LA. “Consenting Patients to Randomized Clinical Trials.” Presented at: American Society of Clinical Oncology Annual Meeting, Orlando, FL; June, 2009. Siminoff LA. “Organ and tissue donation in the USA: Using multimethod research to understand and address the organ shortage”. Presented for the: International Distinguished Lecture Series and the National Health Service, University of Southampton, School of Health Sciences, Southampton, United Kingdom; October, 2009. Siminoff LA. Rogers H, and Maghboeba M. Predictors of Diagnostic Delay in Colorectal Cancer. Presented at: American Public Health Association Annual Meeting, Philadelphia, PA; November, 2009. Siminoff LA. Psychiatry Grand Rounds: “Interpersonal Communication and Organ Donation,” Presented at: Virginia Commonwealth University, Richmond, VA, February, 2010.

19

Ford ME, Siminoff LA, Pickelsimer E, et.al. “Enhancing Diversity in Clinical Trials; Solutions from Community Members.” Presented at: American Association for Cancer Research, Washington DC, April 2010. Brown RF, Penberthy L, Siminoff LA, Shickle L, Dahman BA. “The Impact of Race on Reasons for Ineligibility and Refusal to Cancer Clinical Trials.” Presented at: International Psycho-Oncology Society (IPOS), Quebec City, PQ; May, 2010. Siminoff LA, Rogers HL. “A Qualitative Study of Diagnostic Delay in 50 Recently Diagnosed Colorectal Cancer Patients,” Presented at: International Psycho-Oncology Society (IPOS), Quebec City, PQ; May, 2010. Siminoff LA. Pilot Workshop on Behavioral and Social Sciences Research: Engaging Patients and Providers in Patient-Centered Primary Care. “Effective Patient-Centered Clinical Communication.” National Institutes of Health, Centers of Medicare and Medicaid Services, Baltimore, MD; June, 2010. Stern M, Lamanna, Russell C, Siminoff L, Dillion R, Godder K. “Communication of Adolescents with Cancer and their Health Care Providers During an End of Active Treatment Medical Appointment.” Presented at: The 11th International Conference on Long-Term Complications of Treatment of Children and Adolescents for Cancer, Williamsburg, VA; June, 2010. Siminoff LA, Rogers, HL. “Factors Related to Appraisal and Diagnostic Delay: A Qualitative Study of Colorectal Cancer Patients.” Presented at: International Congress of Behavioral Medicine, Washington, DC; August, 2010. Zhang AY, Strauss GJ, Siminoff LA. “Effects of Combined Pelvic Floor Muscle Exercises and Support Group on Urinary Incontinence and Quality of Life of Patients with Prostatectomy.” Presented at: World Cancer Congress of International Union Against Cancer (UICC), Shenzhen, China; August 2010. Zhang AY, Siminoff, LA. “Differential Patient Opinions of Treatment and Care for Advanced Lung Cancer Patients.” Presented at: World Cancer Congress of International Union Against Cancer (UICC), Shenzhen, China; August, 2010. Siminoff LA, Rogers, HL. “Factors Associated with Diagnostic Delay in Patients Recently Diagnosed with Colorectal Cancer.” Presented at: European Association Communication and Health (EACH), Verona, Italy; September, 2010. Siminoff, LA. “Making the Diagnosis: the Role of Communication in Colorectal Cancer.” ICTS Visiting Professor, University of Iowa. November, 2010. Siminoff, LA. “Diagnostic Delay and Colorectal Cancer.” Presented at: Karmanos Cancer Institute Grand Rounds. Detroit, MI: April, 2011. Siminoff, LA. “Coding Conversational Data for Content and Affect.” Presented at: DC Health Communication Conference, George Mason University, Fairfax, VA: May, 2011. Siminoff, LA. “Consent to Organ Donation: It’s more than Just Knowing How to Talk – What’s the Evidence?” Keynote Address at the Art and Science of Authorization for Organ Donation, Chicago, IL: May, 2011.

20

Siminoff, LA. “Early Referral and Approach (ERRA) Model to Improve Consent: Process, Progress, and Interim Results.” Presented: Association of Organ Procurement Organizations, Denver, CO: June, 2011. Siminoff, LA. “Recruiting subjects for clinical research outside the academic setting.” Presented at: VCU 5th Thursday for Human Research Ethics, Richmond, VA: September, 2011. Siminoff, LA, Shafer, T, Traino, H, Alolod, G. “The Early Referral and Request Approach (ERRA) Model.” Presented at: AOPO Annual Meeting, Fort Worth, TX: November, 2011. Siminoff, LA. “Responding to NIH Summary Statements.” Presented at: VCU CTSA Seminar, Richmond, VA: December 2011. Siminoff, LA. “Creating Health Care Policy about Organ Donation through Empirical Data.” Presented at: VCU Public Health Seminar, Richmond, VA: January 2012. Siminoff, LA. “Strategies to Secure NIH funding in the Age of Scarcity.” Presented at: Race, Ethnicity, and Disabilities Conference, Arlington, VA: March, 2012. Siminoff, LA. “US Strategies to Increase Consent.” Presented at: DonateLife Network Forum, Brisbane, Australia: March, 2012. Siminoff, LA. “Communication in Health Care Settings. Presented at: DonateLife Network Forum, Brisbane, Australia: March, 2012 Siminoff, LA. “Organ Donation and End-Of-Life.” Presented at: DonateLife Network Forum, Brisbane, Australia: March, 2012 Siminoff, LA. “Evaluation of Hospital Processes of Organ Donation Activities in the Hospital Setting: Integration and Organizational Challenges.” Presented at: DonateLife Network Forum, Brisbane, Australia: March, 2012. Thomson MD, Siminoff LA. “The influence of patient characteristics on symptom recognition and appraisal by patients diagnosed with colorectal cancer (CRC)”. Presented at: 2012 Canadian Association of Psychosocial Oncology Conference, Vancouver, British Colombia, Canada: April 25-28, 2012. Siminoff, LA. “Consent to Organ & Tissue Donation: US Policies & Strategies to Increase Consent.” Presented at: British Association for Tissue Banking XXth annual Scientific Meeting, Oxford, UK: May 2012. Siminoff, LA. “Tissue Donation and the Research Enterprise: Genotype Tissue Expression Initiative, the Ethical, Legal and Social Issues (ELSI) Sub-Study.” Presented at: British Association for Tissue Banking XXth annual Scientific Meeting, Oxford, UK: May 2012. Siminoff, LA and Long-Sutehall, T. “Tissue Consent Workshop.” Presented at: British Association for Tissue Banking XXth annual Scientific Meeting, Oxford, UK: May 2012. Siminoff, LA. “Making Decisions When You Disagree with the Doctor: The Social/Family Context” Presented at: The John M. Eisenberg Center for Clinical Decisions and Communications. 2012 White Paper Series Meeting, Rockville, MD: September 2012.

21

Siminoff LA, Rogers, HL, Sonja Harris-Haywood, MD, Maria Thompson, PhD. “Facilitating cancer diagnoses: the role of task versus relational communication during primary care consultations”. Presented at: European Association Communication and Health (EACH), St. Andrews, Scotland; September, 2012. Traino Heather M & Siminoff LA. Broaching the Unexpected: “The Impact of Relational and Instrumental Communication in the Introduction of Unanticipated Conversations”. Presented at: European Association Communication and Health (EACH), St. Andrews, Scotland; September, 2012. Step M & Siminoff LA. “Observational Measure of Doctor’s Verbal Confirmation and Disconfirmation of Patients’ in Cancer and Primary Care”. Presented at: European Association Communication and Health (EACH), St. Andrews, Scotland; September, 2012. Siminoff LA, Rogers, HL, Sonja Harris-Haywood, MD, Maria Thompson, PhD. “Facilitating cancer diagnoses: the role of task versus relational communication during primary care consultations”. Presented at: European Association Communication and Health (EACH), St. Andrews, Scotland; September, 2012. Thomson MD, Siminoff LA. “Age-related differences in colorectal cancer symptom recognition and communication with physicians”. Presented at: European Association Communication and Health (EACH), St. Andrews, Scotland; September, 2012. Thomson MD, Siminoff L.A. “Influence of insurance status on patterns of care-seeking among colorectal cancer patients”. Presented at: American Public Health Association 2012 Annual Conference, San Francisco, USA; October 27-31, 2012. Siminoff LA, Rogers, HL, Sonja Harris-Haywood, MD, Maria Thompson, PhD. “Diagnostic delay in colorectal cancer: Sociodemographic and communication factors.” Presented at: IPOS World Congress of Psycho-Oncology, Brisbane, Australia; November, 2012. Traino, HM., & Siminoff, LA. “Keep it going: maintaining health conversations using relational and instrumental approaches” [poster]. Presented at: National Communication Association 99th Annual Convention, Washington, DC; November 2013. Thomson MD, Siminoff LA. “Exploring the association of patient age and symptom presentation on physician diagnostic decisions for colorectal cancer.” Presented at: 15th World Congress of Psycho-Oncology, Rotterdam, The Netherlands; November 4-8, 2013. Siminoff LA. “The Value of Empirical Research to Bioethics: Methods and Examples” Bioethics Weekly Conference President’s Bioethics Commission, Washington, DC; December 5, 2013. Siminoff LA. “Successfully Managing your R01” Presented at: NCI Division of Cancer Control and Population Sciences 20114 New Grantee Workshop, Rockville, MD; January 6, 2014. Siminoff LA. “Shared Decision Making in DSD” Presented at: The Transplantation Society, Paediatric Donor Meeting, Geneva, Switzerland; March 21, 2014 Siminoff LA. “Communicating Effectively About Donation (CEaD): Results and New Developments. (Abstract #738)” Presented at: World Transplant Congress, San Francisco, CA; July, 28, 2014 Siminoff LA. “Communicating Effectively About Donation (CEaD): Results of the National Randomized Trial and New Developments.” Presented at: NATCO, San Antonio, TX; August 11, 2014

22

Siminoff LA. “Primary Care Physicians Communication Differences Based on Unannounced Standardized Patient Gender and Race.” European Association for Communication in Healthcare, International Conference on Communication in Healthcare, Amsterdam, NL; September 2014. Siminoff LA. “NIH Opportunity for Funding.” Presented at the University of Deusto, Bilbao, Spain; October 2014. Siminoff LA. “Authorization and Why Families Say Yes.” Texas Transplantation Society Annual Meeting, San Antonio Texas; July 2015. Siminoff LA. Keynote Address. Women in Transplant Breakfast, Texas Transplantation Society Annual Meeting, San Antonio Texas; July 2015. Siminoff LA. “Authorization and Why Families Say Yes.” International Society for Organ Donation and Procurement, Webinar; April 28, 2015 Siminoff LA, KL. Barker. “It’s all about donors: Attitudes towards donations for research purposes.” Presented at NIH GTEx Symposium: All Things Considered---Bio specimens, ‘omics data, and ethical issues, Bethesda, MD; May 20, 2015 Siminoff LA. “Race and Gender Effects on Timely Colorectal Cancer Diagnosis: Methods and results from a Standardized Patient Study.” Moffitt Cancer Center, Tampa, FL. Grand Rounds in Population Science; March 10, 2016 Siminoff LA. “Examining Gender and Employment in Caregiving Burden.” SBM; March 31, 2016 Siminoff LA. “Direct Observation – Informal Caregiver Burden in Advanced Cancer: Economic and Health Outcomes.” Diamond Jubilee Visiting Fellow. University of Southampton, United Kingdom; May 2016 Siminoff LA. “Research in Complex and Varied Environments.” University of Southampton, United Kingdom; May 2016 Siminoff LA. “Family-Patient Communication and Economic Outcomes.” Fox Chase Cancer Center, Philadelphia, PA. Hematology Oncology Research Meeting; July 7, 2016

RESEARCH

Grant Number

Project Title

Role in Project

Duration of Project

Funding Source

HS0545 Description and Correlates of Breast Cancer Adjuvant Treatment Decisions

Principal Investigator $10,000

1986–1987 National Center for Health Services Research

N/A Health Services Improvement Fund Grant Dissertation Research


1986–1987 Blue Cross and Blue Shield of Greater New York

N/A Decision-Making When Entering the

Co-Investigator 1990 MacArthur Foundation

23

Hospital R01 CA49641 Referral to Cancer

Trials: A Population Based Model


1990–1993 National Cancer Institute

R01 HS06579 Organ Procurement: Dilemmas of Required Request

Principal Investigator $1.2 Million

1990–1993 Agency for Health Care Policy and Research

R01 NR02664 AIDS and the Quality of Nursing Care

Co-Principal Investigator

1992–1995 National Institute for Nursing Research

R25 MH50549 Adult Science Literacy for Mental and Addictive Disorders

Co-Investigator 1992–1995 ADAMHA

N/A Study of the Attitudes and Outcomes of Non Heartbeating Organ Donation


1994–1996 Department of Anesthesiology and Critical Care Medicine Seed Money Grant, University of Pittsburgh

N/A Disclosing a Diagnosis of Alzheimer's Disease


1995–1996 University of Pittsburgh Alzheimer's Disease Research Center, NIA Seed Money Grant

R01 AG1HS 12899

Health Care Responses of Older African Americans

Co-Investigator 1994–1997 National Institute on Aging

R03 CA73340 Women and Minority Recruitment to Clinical Trials



R01 HS08209 Required Request: Determinants of Family Consent

Principal Investigator $2,066,243

1994–1999 Agency for Health Care Policy and Research

R01 CA71104 Breast Cancer Adjuvant Therapy in Older Women


1996–2001 National Cancer Institute/National Institute on Aging

ECV 97-014 Ethnic/Cultural Variations in the Care of Veterans with Osteoarthritis


1997–2001 VA HSR&D

RG3 96-022 Revealing a Diagnosis of Alzheimer’s Disease to Patients and Subsequent Decision for Treatment and Care


1997–1999 Alzheimer’s Association

R01 CA78210 Therapeutic Research Consent: Empirical and Ethical Analysis



R01 DK51472 Overcoming Barriers to Adequate Delivery of


1998–2001 National Institute of Diabetes, Digestive,

24

Hemodialysis and Kidney Diseases ECV 98-082 Ethnic Differences in

the Management of Patients with Ischemic Heart Disease


1999–2003 VA HSR&D

N/A Public Attitudes Toward the Definition of Death and Organ Procurement Policy

Co-Director $270,941

1999–2002 Greenwall Foundation

R01-HS10047 Public Attitudes Toward Death and Organ Procurement


1999–2002 Agency for Health Care Policy & Research

N/A Model Intervention to Increase Consent to Organ Donation


1999 Wyeth-Ayerst Pharmaceuticals

R13 H510074 Developing A Model Intervention to Increase Consent to Organ Donation


1999–2000 Agency for Health Care Policy & Research

18-4-01-QDP-5D6 Model Intervention to Increase Consent for Organ Donation


1999–2000 Second Chance Trust Fund, State of Ohio

R01 CA78517 Characteristics of Long Term Breast Cancer Survivors

Co-Principal Investigator $487,163


18-4-002-4-DP Developing a Model Intervention to Increase Consent for Organ Donation



R01 CA89513 Family Conflict and Decision Making for Advanced Cancer



R25-CA90355 Prevention Research Educational Postdoctoral Training Program

Program Director $2,011,227


18-4-001-4-DP Developing a Model Intervention to Increase Consent for Organ Donation



R01 HS-13152 Understanding Consent to Tissue Donation


2002–2007 Agency for Healthcare Research and Quality

R39 OTO 1126 Testing the Early Referral and Request Approach (ERRA) Model


2003–2007 Healthcare Resources and Services Administration (Division of Transplantation)

25

R01 CA124607 Appraisal and Diagnostic Delay in Colon Cancer



R01 CA134280 Appraisal Delay and Disparities in Timely Cancer Diagnosis



R39 0T1 0581 ERRA Intervention to Increase Consent to Organ Donation


2008–2012 Health Resources & Services Administration

R01 DK081118 A Randomized Trial of the ERRA Intervention to Increase Consent to Organ Donation


2009–2013 National Institute of Diabetes and Digestive and Kidney Diseases

R25 CA142520-01 (relinquished grant on

move to Temple University)

Training Program in Behavioral and Health Services Cancer Control Research

Co-Principal Investigator $2,322,816

2011–2016 National Institutes of Health/ National Cancer Institute

R01 CA168647 Family-Patient Communication and Economic Outcomes



NIH Common Fund Contract Number

HHSN261200800001E Siminoff

GTEX Substudy of the Ethical, Legal and Social Issues of the Gene Expression Project (Scale-Up)

Principal Investigator 1,995,911


R39 OT25728 Communicating Effectively about Donation: An Effectiveness and Implementation Study


2013–2016 HRSA

PCORI

Decision Support for Parents Receiving Genetic Information about Child’s Rare Disease

Site Principal Investigator $400,629

2013–2016 PCORI

R01CA196576 Informal caregiver Burden in Advanced Cancer: Economic and health outcomes


2015-2020 National Institutes of Health/ National Cancer Institute

26

LIST OF CURRENT RESEARCH INTERESTS

• Cancer prevention and control • Treatment decision making, general • Treatment decision-making, breast cancer and organ donation • Policy issues of organ and tissue procurement • Delivery of care/services to patients • Recruitment of patients to clinical trials • Access to care • Health disparities • Qualitative and multi-method research • Empirical bioethics • Instrument development/psychometrics • Family-Caregiver interactions and outcomes • Health communication • Decision aids

PUBLICATIONS 1. Refereed Articles

1. Siminoff LA. Competition and Primary Health Care: Separating Fact from Fancy.

International Journal of Health Services, 16(1): 57-69, 1986. 2. Siminoff LA, Fetting JH. Effects of Outcome Framing on Treatment Decisions in the Real

World: Impact of Framing on Adjuvant Breast Cancer Decisions. Medical Decision Making, 9(4): 135-45, 1989.

3. Siminoff LA, Fetting JH, and Abeloff MD. Doctor-Patient Communication about Breast

Cancer Adjuvant Therapy. Journal of Clinical Oncology, 7(9): 1192-1200, 1989. 4. Siminoff LA. Cancer Patient and Physician Communications: Progress and Continuing

Problems. Annals of Behavioral Medicine, 11(3): 108-112, 1989. 5. Fetting JH, Siminoff LA, Piantadosi S, Abeloff MD, Damron DJ, Sarsfield AM. Effect of

Patients’ Expectations of Benefit With Standard Breast Cancer Adjuvant Chemotherapy on Participation in a Randomized Clinical Trial: A Clinical Vignette Study. Journal of Clinical Oncology, 8(9): 1476-1482, 1990.

6. Parker L, Arnold RM, Meisel A, Siminoff LA, Roth LH. Ethical Factors in the Allocation of

Experimental Medical Therapies: The Chronic Left Ventricular Assist System. Clinical Research, 38(3): 537-44, 1990.

7. Siminoff LA, Fetting JH. Factors Affecting Treatment Decisions for a Life-Threatening

Illness: The Case of Medical Treatment of Breast Cancer. Social Science & Medicine, 32(7): 813-818, 1991.

8. Siminoff LA, Erlen JA and Lidz CW. Stigma, AIDS and Quality of Nursing Care: State of

the Science. Journal of Advanced Nursing, 16: 262-269, 1991.

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9. Adams JG, Arnold RM, Siminoff LA, Wolfson AB. Ethical Conflicts in the Prehospital

Setting. Annals of Emergency Medicine, 21(10): 1259-1265, 1992. 10. Siminoff LA. Improving Communication with Cancer Patients. Oncology, 6(10): 83-87,

1992. 11. Sheldon JM, Fetting JH, Siminoff LA. Offering the Option of Randomized Clinical Trials to

Cancer Patients Who Overestimate their Prognoses with Standard Therapies. Cancer Investigation, 11(1): 57-62,1993.

12. Goold SD, Arnold RM, Siminoff LA. Discussions About Limiting Treatment in a Geriatric

Clinic. Journal of the American Geriatrics Society, 41(3): 277-81, 1993. 13. Siminoff LA, Arnold RM, Virnig B, Caplan A. Can We Ever Solve the Shortage Problem?

American Public Policy and Organ, Tissue, and Corneal Procurement from Cadaver Sources. Journal of Transplant Coordination, 3(2): 51-59, 1993.

14. Hoge SK, Lidz C, Mulvey E, Roth LH, Bennett N, Siminoff LA, Arnold R, Monahan J.

Patient, Family, and Staff Perceptions of Coercion in Mental Hospital Admission: An Exploratory Study. Behavioral Sciences and the Law, 11: 281-293, 1993.

15. Siminoff LA, Arnold RM, Miller DS. Differences in the Procurement of Organs and Tissues

by Health Care Professionals. Clinical Transplantation, 8(5): 460-465, 1994. 16. Siminoff LA, Arnold RM, Caplan AL, Virnig BA, Seltzer DL. Public Policy Governing

Organ and Tissue Procurement in the United States: Results from the National Organ and Tissue Procurement Study. Annals of Internal Medicine, 123(1): 10-17, 1995.

17. Siminoff LA, Arnold RM, Caplan AL. Health Care Professional Attitudes Toward Donation:

Effect on Practice and Procurement. Journal of Trauma, 39(3): 553-559, 1995.

18. Arnold RM, Siminoff LA, Frader J. Ethical Issues in Organ Procurement: A Review for Intensivists. Critical Care Clinics, 12(1): 29-48, 1996.

19. Siminoff LA, Arnold RM, Caplan AL. Asking for Altruism When Death Occurs: Who Asks

for Organ Donation and Why? Transplantation Proceedings, 28(6): 3632-3638, 1996. 20. Siminoff LA. Withdrawal of Treatment and Organ Donation. Critical Care Nursing Clinics of

North America, 9(1): 85-95, 1997. 21. Erlen JE, Siminoff LA, Sereika SM, Sutton LB. Multiple Authorship: Issues and

Recommendations. Journal of Professional Nursing, 13(4): 262-270, 1997. 22. Ravdin PM, Siminoff LA, Harvey JA. Survey of Breast Cancer Patients Concerning Their

Knowledge and Expectations of Adjuvant Therapy. Journal of Clinical Oncology, 16(2): 515-21, 1998.

23. Siminoff LA, Erlen JE, Sereika S. Do Nurses Avoid AIDS Patients? Avoidance Behaviors

and the Quality of Care of Hospitalized AIDS Patients. AIDS Care, 10(2): 147-63, 1998.

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24. Siminoff LA, Saunders Sturm CM. Nursing and the Procurement of Organs and Tissues in the Acute Care Hospital Setting. Nursing Clinics of North America, 33(2): 239-251, 1998.

25. Fischer GS, Tulsky JA, Rose MR, Siminoff LA, Arnold RM. Patient Knowledge and

Physician Predictions of Treatment Preferences After Discussion of Advance Directives. Journal of General Internal Medicine, 13: 447-454, 1998. PMCID: PMC1496983

26. Siminoff LA, Nelson RA. The Accuracy of Hospital Reports of Organ Donation Eligibility,

Requests, and Consent: A Cross-Validation Study. Joint Commission Journal on Quality Improvement, 25(3): 129-135, 1999.

27. Siminoff LA, Arnold RM. Increasing Organ Donation in the African American Community:

Altruism in the Face of an Untrustworthy System. Annals of Internal Medicine, 130(7): 607-609, 1999.

28. Silverman M, Musa D, Kirsch B, Siminoff LA. Self Care for Chronic Illness: Older African

Americans and Whites. Journal of Cross-Cultural Gerontology, 14: 169-189, 1999. 29. Siminoff LA, Chillag K. The Fallacy of the “Gift of Life.” Hastings Center Report, 29(6):

34-41, 1999. 30. Siminoff LA, Leonard MD. Financial Incentives: Alternatives to the Altruistic Model of

Organ Donation. Journal of Transplant Coordination, 9(4): 250-256, 1999. 31. Shafer TL, Schkade L, Siminoff LA, Mahoney T. Ethical Analysis of Organ Recovery

Denials by Medical Examiners, Coroners, and Justices of the Peace. Journal of Transplant Coordination, 9(4): 232-249, 1999.

32. Siminoff LA, Ravdin PM, Colabianchi N, Saunders Sturm CM. Doctor-Patient

Communication Patterns in Breast Cancer Adjuvant Therapy Discussions. Health Expectations, 3(1): 26-36, 2000.

33. Siminoff LA, Zhang A, Colabianchi N, Saunders Sturm C, Shen QS. Factors That Predict the

Referral of Breast Cancer Patients Onto Clinical Trials by Their Surgeons and Medical Oncologists. Journal of Clinical Oncology, 18(6): 1203-11, 2000.

34. Siminoff LA, Saunders Sturm C. African-American Reluctance to Donate: Beliefs and

Attitudes about Organ Donation and Implications for Policy. Journal of the Kennedy Institute of Ethics, 10(1): 59-74, 2000.

35. DeVita MA, Snyder JV, Arnold RM, Siminoff LA. Observations of Withdrawal of Life-

Sustaining Treatment from Patients Who Became Non-Heart-Beating Organ Donors. Critical Care Medicine, 28(6): 1709-1712, 2000.

36. Trauth JM, Musa D, Siminoff LA, Jewell IK, Ricci EM. Public Attitudes Regarding

Willingness to Participate in Medical Research Studies. Journal of Health and Social Policy, 12(2): 23-43, 2000.

37. Siminoff LA, Zhang A, Saunders Sturm C, Colabianchi N, Shen QS. Referral of Breast

Cancer Patients to Medical Oncologists After Initial Surgical Management. Medical Care, 38(7): 696-704, 2000.

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38. Ubel PA, Bryce CL, Siminoff LA, Caplan AL, Arnold RM. Pennsylvania’s Voluntary

Benefits Program: Evaluating an Innovative Proposal for Increasing Organ Donation. Health Affairs, 19(5): 206-11, 2000.

39. The Authors for the Live Organ Donor Consensus Group. Consensus Statement on the Live Organ

Donor. Journal of the American Medical Association, 284(22): 2919-2926, 2000. 40. Seltzer DL, Arnold RM, Siminoff LA. Are Non-Heart Beating Cadaver Donors Acceptable to

the Public? Journal of Clinical Ethics, 11(4):347-357, 2000. 41. Siminoff LA, Mercer MB. Public Policy, Public Opinion, and Consent for Organ Donation.

Cambridge Quarterly of Healthcare Ethics, 10(4): 377-386, 2001.

42. Siminoff LA, Arnold RM, Hewlett J. The Process of Organ Donation and its Effects on Consent. Clinical Transplantation, 15(1): 39-47, 2001.

43. Ravdin PM, Siminoff LA, David GJ, Mercer MB, Hewlett J, Gerson N, Parker HL.

Computer Program to Assist in Making Decisions about Adjuvant Therapy for Women with Early Breast Cancer. Journal of Clinical Oncology, 19(4):980-91, 2001.

44. Siminoff LA, Gordon N, Hewlett J, Arnold RM. Factors Influencing Families’ Consent for

Donation of Solid Organs for Transplantation. Journal of the American Medical Association, 286(1):71-77, 2001.

45. Ibrahim SA, Siminoff LA, Burant CJ, Kwoh K. Variation in Perceptions of Treatment and

Self-Care Practices in Elderly With Osteoarthritis: A Comparison Between African American and White Patients. Arthritis Rheum, 45(4):340-345, 2001.

46. Ibrahim SA, Siminoff LA, Burant CJ, Kwoh CK. Understanding Ethnic Differences in the

Utilization of Joint Replacement for Osteoarthritis: The Role of Patient-level Factors. Medical Care, 40(1 suppl): I44-I51, 2002.

47. Sehgal AR, Leon JB, Siminoff LA, Singer ME, Bunosky LM, Cebul RD. Improving the

Quality of Hemodialysis Treatment: A Community-Based Randomized Controlled Trial to Overcome Patient-Specific Barriers. Journal of the American Medical Association, 287(15): 1961-1967, 2002.

48. Siminoff LA, Lawrence RH, Zhang A. Decoupling: What is it and Does it Really Help

Increase Consent to Organ Donation? Progress in Transplantation, 12(1): 52-60, 2002. 49. Delmonico FL, Arnold RM, Scheper-Hughes N, Siminoff LA, Kahn J, Youngner SJ. Ethical

Incentives – Not Payment – For Organ Donation. New England Journal of Medicine, 346(25): 2002-2005, 2002.

50. Ibrahim SA, Siminoff LA, Burant CJ, Kwoh CK. Differences in Expectations of Outcome

Mediate African American/White Patient Differences in “Willingness” to Consider Joint Replacement. Arthritis and Rheumatism, 46(9): 2429-2435, 2002.

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51. Ibrahim SA, Burant CJ, Siminoff LA, Stoller EP, Kwoh CK. Self-assessed Global Quality of Life: A Comparison between African-American and White Older Patients with Arthritis. Journal of Clinical Epidemiology, 55(5): 512-517, 2002.

52. Ang DC, Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. Ethnic Differences in the

Perception of Prayer and Consideration of Joint Arthroplasty. Medical Care, 40(6): 471-476, 2002.

53. Adams PL, Cohen DJ, Danovitch GM, Edington MD, Gaston RS, Jacobs CL, Luskin RS,

Metzger RA, Peters TG, Siminoff LA, Veatch RM, Rothberg-Wegman L, Bartlett ST, Brigham L, Burdick J, Gunderson S, Harmon W, Matas AJ, Thistlethwaite JR, Delmonico FL. The Non-Directed Live-Kidney Donor: Ethical Considerations and Practice Guidelines: A National Conference Report. Transplantation, 74(4): 582-589, 2002.

54. Siminoff LA, Lawrence RH. Knowing Patients’ Preferences about Organ Donation: Does it

Make a Difference? The Journal of Trauma: Injury, Infection, and Critical Care, 53(4): 754-760, 2002.

55. Siminoff LA, Lawrence RH, Arnold RM. Comparison of Black and White Families’

Experiences and Perceptions Regarding Organ Donation Requests. Critical Care Medicine, 31(1): 146-151, 2003.

56. Nathan HM, Conrad SL, Held PJ, McCullough KC, Pietroski RE, Siminoff LA, Ojo AO.

Organ Donation in the United States. American Journal of Transplantation, 3(Suppl. 4): 29-40, 2003.

57. Ibrahim SA, Burant CJ, Mercer MB, Siminoff LA, Kwoh CK. Older Patients’ Perceptions of

Quality of Chronic Knee or Hip Pain: Differences by Ethnicity and Relationship to Clinical Variables. Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 58(5): M472-M477, 2003.

58. Sutton LB, Erlen JA, Glad JM, Siminoff LA. Recruiting Vulnerable Populations for

Research: Revisiting the ethical issues. Journal of Professional Nursing, 19(2): 106-112, 2003.

59. Redline S, Larkin EK, Kercsmar C, Berger M, Siminoff LA. Development and Validation of

School-Based Asthma and Allergy Screening Instruments for Parents and Students. Annals of Allergy, Asthma & Immunology, 90(5): 516-528, 2003.

60. Simon C, Zyzanski SJ, Eder M, Raiz P, Kodish ED, Siminoff LA. Groups Potentially at Risk

for Making Poorly Informed Decisions About Entry into Clinical Trials for Childhood Cancer. Journal of Clinical Oncology, 21(11): 2173-2178, 2003.

61. Brehaut JC, O’Connor AM, Wood TJ, Hack TF, Siminoff LA, Gordon E, Feldman-Stewart

D. Validation of a Decision Regret Scale. Medical Decision Making, 23(4): 281-292, 2003. 62. Siminoff LA, Mercer MB, Arnold R. Families’ Understanding of Brain Death. Progress in

Transplantation, 13(3): 218-224, 2003. 63. Zhang AY, Siminoff LA. Silence and Cancer: Why Do Families and Patients Fail to

Communicate? Health Communication, 15(4): 415-429, 2003.

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64. Zhang AY, Siminoff LA. The Role of the Family in Treatment Decision Making by Patients

With Cancer. Oncology Nursing Forum, 30(6): 1022-1028, 2003. 65. Siminoff LA. Toward Improving the Informed Consent Process in Research with Humans.

IRB, 25(5):S1-S3, 2003. 66. Sachs GA, Hougham GW, Sugarman J, Agre P, Broome ME, Geller G, Kass N, Kodish E,

Mintz J, Roberts LW, Sankar P, Siminoff LA, Sorenson J, Weiss A. Conducting Empirical Research on Informed Consent: Challenges and Questions. IRB, 25(5):S4-S10, 2003.

67. Broome ME, Kodish E, Geller G, Siminoff LA. Children in Research: New Perspectives and

Practices for Informed Consent. IRB, 25(5):S20-S23, 2003. 68. Hougham GW, Sachs GA, Danner D, Mintz J, Patterson M, Roberts LW, Siminoff LA,

Sugarman J, Whitehouse PJ, Wirshing D. Empirical Research on Informed Consent with the Cognitively Impaired. IRB, 25(5):S26-S32, 2003.

69. Simon CM, Siminoff LA, Kodish ED, Burant C. Comparison of the Informed Consent

Process for Randomized Clinical Trials in Pediatric and Adult Oncology. Journal of Clinical Oncology, 22(13): 2708-2717, 2004.

70. Kodish ED, Eder M, Noll RB, Ruccione K, Lange B, Angiolillo A, Pentz R, Zyzanski S, Siminoff LA, Drotar D. Communication of Randomization in Childhood Leukemia Trials. Journal of the American Medical Association, 291(4): 470-475, 2004.

71. Siminoff LA, Caputo M, Burant C. The Promise of Empirical Research in the Study of Informed Consent Theory and Practice. HEC Forum, 16(1): 53-71, 2004.

72. Siminoff LA, Burant C, Youngner SJ. Death and Organ Procurement: Public Beliefs and

Attitudes. Social Science & Medicine, 59: 2325-2334, 2004. 73. Lopez JPF, Burant CJ, Siminoff LA, Kwoh CK, Ibrahim SA. Patient Perceptions of Access to

Care and Referrals to Specialist: A Comparison of African-American and White Older Patients with Knee and Hip Osteoarthritis. Journal of the National Medical Association, 97(5): 667-673, 2005. PMCID: PMC2569351

74. Peele PB, Siminoff LA, Xu Y, Ravdin PM. Decreased Use of Adjuvant Breast Cancer

Therapy in a Randomized Controlled Trial of a Decision Aid with Individualized Risk Information. Medical Decision Making, 25: 301-307, 2005.

75. King LP, Siminoff LA, Myer DM, Yancy CW, Ring WS, Mayo TW, Drazner MH. Health

Insurance and Cardiac Transplantation: A Call for Reform. Journal of the American College of Cardiology, 45(9): 1388-91, 2005.

76. Gordon EJ, Prohaska T, Siminoff LA, Minich PJ, Sehgal AR. Needed: Tailored Exercise

Regimens for Kidney Transplant Recipients. American Journal of Kidney Diseases, 45(4):769-774, 2005. PMCID: PMC1242115

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77. Gordon EJ, Prohaska T, Siminoff LA, Minich PJ, Sehgal AR. Can Focusing on Self-Care Reduce Disparities in Kidney Transplant Outcomes? American Journal of Kidney Diseases, 45(5):935-940, 2005. PMCID: PMC1249519

78. Siminoff LA and Step MM. A Communication Model of Shared Decision Making.

Accounting for Cancer Treatment Decisions. Health Psychology, 24(4 Suppl):S99 –S105, 2005.

79. Trauth JM, Jernigan JC, Siminoff LA, Musa D, Neal-Ferguson D, Weissfeld J. Factors

Affecting Older African Women’s Decisions to Join the PLCO Cancer Screening Trial. Journal of Clinical Oncology, 23(34): 8730-8738, 2005.

80. Siminoff LA and Ross L. Access and Equity to Cancer Care in the US: A Review and

Assessment. Postgraduate Medical Journal, 81: 674-679, 2005. PMCID: PMC1743395 81. Bryce CL, Siminoff LA, Ubel PA, Nathan H, Caplan A, Arnold RM. Do incentives mater?

Providing benefits to families of organ donors. American Journal of Transplantation, 5:2999-3008, 2005.

82. Mayo T, Siminoff LA, Drazner MH. A heartfelt story for the rich. North Carolina Medical

Journal, 67(1):93, 2006. 83. Perloff RM, Bonder B, Ray GB, Ray EB, Siminoff LA. Doctor-Patient Communication,

Cultural Competence, and Minority Health: Theoretical and Empirical Perspectives. American Behavioral Scientist, 49(6): 835-852, 2006.

84. Simon C, Eder M, Kodish E, Siminoff LA. Altruistic Discourse in the Informed Consent

Process for Childhood Cancer Clinical Trials. The American Journal of Bioethics, 6(5): 40-47, 2006.

85. Siminoff LA, Rose JH, Zhang A, Zyzanski SJ. Measuring Discord in Treatment Decision

Making: Progress toward Development of a Cancer Communication and Decision-making Assessment Tool. Psycho-Oncology, 15(6):528-540, 2006.

86. Siminoff LA, Burant CJ, Ibrahim SA. Racial Disparities in Preferences and Perceptions

regarding Organ Donation. Journal of General Internal Medicine, 21(9):995-1000, 2006. PMCID: PMC1831604

87. Siminoff LA, Graham G, Gordon NH. Cancer Communication Patterns and the influence of

Patient Characteristics: Disparities in Information-Giving and Affective Behaviors. Patient Education & Counseling, 62(3):355-60, 2006.

88. Zhang AY, Strauss GJ, Siminoff LA. Intervention on Urinary Incontinence and Quality of

Life Outcome of Prostate Cancer Patients. Journal of Psychosocial Oncology, 24 (2): 17-30, 2006.

89. Siminoff LA, Gordon NH, Silverman P, Budd T, Ravdin PM. A decision aid to assist in

adjuvant therapy choices for breast cancer. Psycho-Oncology, 15(11):1001-13, 2006.

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90. Appelt CJ, Burant CJ, Siminoff LA, Kwoh CK, Ibrahim SA. Arthritis-Specific Health Beliefs among Older Male Patients with Knee/Hip Osteoarthritis. Journal of Gerontology Biological Sciences Series A: Biological Sciences and Medical Sciences, 62A:184-190, 2007.

91. Gordon NH, Silverman P, Lasheen W, Meinert J, Siminoff LA. Thirty-year follow-up of

chemo/hormonal therapy in node-positive breast cancer. Breast Cancer Res Treat, 102(3):301-12, 2007.

92. Siminoff LA, Mercer MB, Graham G, Burant C. The Reasons Families Donate Organs for

Transplantation: Implications for Policy and Practice. The Journal of Trauma, Injury, Infection and Critical Care, 62(4):969-78, 2007.

93. Zhang AY, Strauss GJ, Siminoff LA. Effects of Combined Pelvic Floor Muscle Exercise and

a Support Group on Urinary Incontinence and Quality of Life of Post Prostatectomy Patients. Oncology Nursing Forum, 34(1): 47-53, 2007.

94. Barnato A, Llewellyn-Thomas H, Peters, E, Siminoff LA, Collins D, Barry M.

Communication and Decision Making in Cancer Care: Setting Research Priorities for Decision Support/Patients’ Decision Aids. Medical Decision Making, 27(5):626-34, 2007.

95. Howard DH, Siminoff LA, McBride V, Lin M. Does Quality Improvement Work? Evaluation

of the Organ Donation Breakthrough Collaborative. Health Services Research, 42(6 pt 1): 2294-323, 2007. PMCID: PMC2151398

96. Gordon EJ, Prohaska TR, Gallant MP, Siminoff, LA. Adherence to Immunosuppression: A

Prospective Diary Study. Transplantation Proceedings, 39(10): 3081-5, 2007. PMCID: PMC2361155

97. Siminoff LA, Hausmann LR, Ibrahim S. Barriers to Obtaining Diagnostic Testing for

Coronary Artery Disease Among Veterans. American Journal of Public Health, 98(12):2207-2213, 2008. PMCID: PMC2636512.

98. Siminoff LA. Why Learning to Communicate with Our Patients is So Important: Using

Communication to Enhance Accrual to Cancer Clinical Trials. Journal of Clinical Oncology, 26(16): 2614-5, 2008. PMID: 18509171

99. Siminoff LA, Zyzanski SJ, Rose JH, Zhang AY. The Cancer Communication Assessment

Tool for Patients and Families (CCAT-PF): A New Measure. Psycho-Oncology, 17(12):1216-24, 2008. PMCID: PMC2830149

100. Zhang AY, Galanek, J, Strauss GJ, Siminoff LA. What it would Take for Men to Attend and

Benefit from Support Groups after Prostatectomy for Prostate Cancer: A Problem Solving Approach. Journal of Psychosocial Oncology, 26(3):97-112, 2008.

101. Brown RF, Hill C, Burant C, & Siminoff LA. Satisfaction of Early Breast Cancer Patients

with Discussions During Initial Oncology Consultations with a Medical Oncologist. Psycho-Oncology, 18: 42–49, 2009. PMCID: PMC4839191

102. Siminoff LA, Marshall HM, Dumenci L, Bowen G, Swaminathan A, Gordon N.

Communicating Effectively about Donation (CEaD): An Educational Intervention to Increase Consent to Donation. Progress in Transplantation. 19:35-43, 2009.

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103. Siminoff LA, Traino HM. Improving Donation Outcomes: Hospital Development and the

Rapid Assessment of Hospital Procurement Barriers in Donation (RAPiD). Progress in Transplantation, 19:180-187, 2009.

104. Vickers AJ, Elkin EB, Peele PB, Dickler M, Siminoff LA. Long-Term Health Outcomes of a

Decision Aid: Data from a Randomized Trial of Adjuvant! in Women with Localized Breast Cancer. Medical Decision Making, 29:461-67, 2009. PMCID: PMC3540794

105. Siminoff LA, Marshall HM. The Rapid Assessment of Hospital Procurement Barriers in

Donation (RAPiD): Assessing Hospitals for Change. The Journal of Healthcare Quality, 31(4): 24-33, 2009. NIHMSID: 175891 PMID: 19753805

106. Step MM, Rose JH, Albert JM, Cheruvu VK, Siminoff LA. Modeling Patient-Centered

Communication: Oncologist Relational Communication and Patient Communication Involvement in Breast Cancer Adjuvant therapy decision-making. Patient Education & Counseling, 77(3):369-378, 2009. PMCID: PMC2787652

107. Step MM, Siminoff LA, Rose JH. Differences in Oncologist Communication Across Age

Groups and Contributions to Adjuvant Decision Outcomes. Journal of American Geriatrics Society, 2:S279-82, 2009. PMID: 20122030

108. Kiviniemi MT, Hay JL, James AS, Lipkus IM, Meissner HI, Stefanek M, Studts JL, Bridges

JF, Close DR, Erwin DO, Jones RM, Kaiser K, Kash KM, Kelly KM, Craddock Lee SJ, Purnell JQ, Siminoff LA, Vadaparampil ST, Wang C. Decision Making About Cancer Screening: An Assessment of the State of the Science and a Suggested Research Agenda from the ASPO Behavioral Oncology and Cancer Communication Special Interest Group. Cancer Epidemiology, Biomakers & Prevention, 18(11):3133-7, 2009. PMCID: PMC2810193

109. Gordon EJ, Prohaska TR, Gallant MP, Sehgal AR, Strogatz D, Yucel R, Conti D, Siminoff

LA. Longitudinal Analysis of Physical Activity, Fluid Intake, and Graft Function Among Kidney Transplant Recipients, Transplant International, 22(10):990-8, 2009. PMCID: PMC2925536

110. Gordon EJ, Prohaska TR, Gallant M, Siminoff LA. Self-care Strategies and Barriers among

Kidney Transplant Recipients: A Qualitative Study, Chronic Illness, 5(2):75-91, 2009. PMCID: PMC3540789

111. Gordon EJ, Gallant M, Sehgal AR, Conti D, Siminoff LA. Medication-Taking Among Adult

Renal Transplant Recipients: Barriers and Strategies. Transplant International, 22(5):534-45, 2009. PMCID: PMC3540791

112. Gordon NH, Siminoff LA. Measuring Quality of Life of Long-Term Breast Cancer

Survivors: The Long Term Quality of Life-Breast Cancer (LTQOL-BC) Scale. Journal of Psychosocial Oncology, 28:589-609, 2010. PMCID: PMC3540802

113. Gordon EJ, Prohaska TR, Gallant MP, Sehgal AR, Strogatz D, Conti D, Siminoff LA.

Prevalence and Determinants of Physical Activity and Fluid Intake in Kidney Transplant Recipients. Clinical Transplantation, 24(3):E69-E81, 2010. PMCID: PMC2925539

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114. Brown R, Bylund CL, Siminoff LA, Slovin SF. Seeking Informed Consent to Phase I Cancer

Clinical Trials: Identifying Oncologists’ Communication Strategies. Psycho-Oncology, 20:361-68, 2010. PMID: 20878842

115. Siminoff LA, Wilson-Genderson M, Baker S Jr. Depressive Symptoms in Lung Cancer

Patients and their Family Caregivers and the Influence of Family Environment. Psycho-Oncology, 19(12):1285-93, 2010. PMCID: PMC2891398

116. Zhang AY, Zyzanski SJ, Siminoff LA. Differential Patient-Caregiver Opinions of

Treatment and Care for Advanced Lung Cancer Patients, Social Science & Medicine, 70(8):1155-8, 2010. PMCID: PMC2840198

117. Baughn D, Auerbach SM, Siminoff LA. Roles of Gender and Ethnicity in Procurement

Coordinator-Family Communication During the Organ Donation Discussion. Progress in Transplantation, 20(3): 247-55, 2010. PMID: 20929109

118. Quillin JM, Bodurtha JN, Siminoff LA, Smith TJ. Exploring Hereditary Cancer Among

Dying Cancer Patients—A Cross-Sectional Study of Hereditary Risk and Perceived Awareness of DNA Testing and Banking. Journal of Genetic Counseling, 19(5):497-525, 2010. PMID: 20680422

119. Davis DS, Gerson N, Ponsaran R; Siminoff LA. Ashkenazi Jews: Overburdened and

Overexposed? New Genetics and Society, 29(3): 241-260, 2010. 120. Siminoff, LA Traino HM, Gordon N. Determinants of Family Consent to Tissue Donation,

The Journal of Trauma: Injury, Infection, and Critical Care, 69(4):956-63, 2010. PMCID: PMC3530615

121. Siminoff, LA and Step, MM. A Comprehensive Observational Coding Scheme for Analyzing

Instrumental, Affective and Relational Communication in Healthcare contexts. Journal of Health Communication. 16(2): 178-197, 2011. PMCID: PMC3147015

122. Siminoff LA, Rogers HL, Waller AC, Harris-Haywood S, Epstein RM, Borrell Carrio F,

Gliva-McConvey G, Longo DR. The Advantages and Challenges of Unannounced Standardized Patient Methodology to Assess Healthcare Communication. Patient Education and Counseling, 82: 318–324, 2011. PMCID: PMC3064426

123. Siminoff LA, Traino HM, Gordon N. An Exploratory Study of Relational, Persuasive, and

Nonverbal Communications in Requests for Tissue Donation. Journal of Health Communication, 16(9):955-75, 2011. PMCID: PMC3183146

124. Siminoff LA, Rogers HL, Thomson MD, Dumenci L, Harris-Haywood S. Doctor, what's

Wrong with Me? Factors that Delay the Diagnosis of Colorectal Cancer. Patient Education and Counseling, 84: 352–358, 2011. PMCID: PMC3159771

125. Belkora JK, Hutton DW, Moore DH, Siminoff LA. Does Use of the Adjuvant! Model

Influence Use of Adjuvant Therapy Through Better Risk Communication. Journal of National Comprehensive Cancer Network, 9: 707–712, 2011. PMCID: PMC3528013

126. Zhang, A, Zyzanski, SJ, Siminoff, LA. Ethnic Differences in the Caregiver’s Attitudes and

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Preferences for the Treatment and Care of Advanced Lung Cancer Patients. Psycho-Oncology, 21(11): 1250-1253, 2011. PMCID: PMC3612394

127. Quillin JM, Bodurtha JN, Siminoff LA, Smith TJ. Physicians' Current Practices and Opportunities for DNA Banking of Dying Patients with Cancer. Journal of Oncology Practice, 7(3): 183-187, 2011. PMCID: PMC3092660

128. Thomson MD, Siminoff LA, Longo DR. Internet Use for Prediagonsis Symptom Appraisal

by Colorectal Cancer Patients. Health Education & Behavior, 39(5): 583-588, 2012. PMCID: PMC3521844

129. Rosenblum AM, Horvart LD, Siminoff LA, Prakash V, Beitel J, Garg AX. The Authority of

Next-of-Kin in Explicit and Presumed Consent Systems for Deceased Organ Donation: An Analysis of 54 Nations. Nephrology, Dialysis Transplantation, 27(6): 2533-2546, 2011. PMCID: PMC3363979

130. Siminoff LA, Traino, HM. Consenting to Donation: An examination of Current Practices in

Informed Consent for Tissue Donation in the US. Cell Tissue Bank, 2012. [Epub ahead of print] PMCID: PMC3568202

131. Siminoff LA, Dorflinger L, Agyemang A, Baker S, Wilson-Genderson M. Oncologists’

Assessments of Lung Cancer Patient and Family Disagreements Regarding Treatment Decision Making. Lung Cancer, 77:212-216, 2012. PMCID: PMC3368070

132. Shay A, Dumenci L, Siminoff LA, Flocke SA, Elston Lafata J. Factors Associated with

Patient Reports of Positive Physician Relational Communication. Patient Education and Counseling, 89(1): 96-101, 2012. PMCID: PMC3431455

133. Dorflinger L, Auerbach SM, Siminoff LA. The Interpersonal Process in Tissue Donation

Requests with “Undecided” Next of Kin. Progress in Transplantation, 22(4): 427-35, 2012. PMCID: PMC3526067

134. Penberthy L, Brown R, Wilson-Genderson M, Dahman B, Ginder G, Siminoff LA. Barriers

to Therapeutic Clinical Trials Enrollment: Differences between African-American and White Cancer Patients Identified at the Time of Eligibility Assessment. Clinical Trials, 9(6): 788-97, 2012. PMID: 23033547

135. Traino HM, Alolod GP, Shafer T, Siminoff LA. Interim Results of a National Test of the

Rapid Assessment of Hospital Procurement Barriers in Donation (RAPiD). American Journal of Transplantation, 12(11): 3094-3103, 2012. PMCID: PMC3532942

136. Tilley BC, Mainous AG, Elm JJ, Pickelsimer E, Soderstrom LH, Ford ME, Diaz VA,

Siminoff LA, Burau K, Smith DW. A Randomized Recruitment Intervention Trial in Parkinson’s Disease to Increase Participant Diversity: Early Stopping for Lack of Efficacy. Clinical Trials, 9(2): 188-197, 2012. PMID: 22496398 NIHMSID: 430401

137. DuBay D, Redden D, Haque A, Gray S, Fouad M, Siminoff LA, Holt C, Kohler C, Eckhoff

D. Is Decedent Race an Independent Predictor of Organ Donor Consent or Merely a Surrogate Marker of Socioeconomic Status? Transplantation, 94 (8): 873-8. October 2012.

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138. Traino HM, Siminoff LA. Attitudes and Acceptance of First Person Authorization: A National Comparison of Donor and Nondonor Families. The Journal of Trauma and Acute Care Surgery, 74(1): 294-300, 2013. PMCID: PMC3540811

139. Dorflinger L, Auerbach SM, Siminoff LA. Predictors of Consent in Tissue Donation:

Interpersonal Aspects and Information Provision During Requests by Phone. Patient Education and Counseling, 91(2): 161-6, 2013.

140. Ford ME, Siminoff LA, Pickelsimer E, Mainous AG, Smith DW, Diaz VA, Siderstrom LH,

Jefferson MS, Tilley BC. Unequal Burden of Disease, Unequal Participation in Clinical Trials: Solutions from African American and Latino Community Members. Health Social Work, 38(1): 29-38, 2013.

141. Siminoff LA, Agyemang A, Traino HM. Consent to Organ Donation: A Review. Progress in

Transplantation, 23:99-104, 2013. PMID: 23448829 142. Siminoff LA. Incorporating Patient and Family Preferences into Evidence-Based Medicine.

BMC Med Inform Decis Mak, 2013;13 Suppl 3:S6. doi: 10.1186/1472-6947-13-S3-S6. Epub 2013 Dec 6. PMID: 24565268

143. Brown RF, Cadet DL, Houlihan RH, Thomson MD, Pratt ED, Sullivan A, Siminoff LA.

Perception of Participation in a Phase I, II, or III Clinical Trial Among African American Patients with Cancer: What Do Refusers Say? Journal of Oncology Practice, 9(6): 287-93, 2013.

144. Cartwright LA, Dumenci L, Siminoff LA, Matsuyama RK. Cancer Patients' Understanding

of Prognostic Information. J Cancer Educ, 2014 Jan 10. [Epub ahead of print] PMID: 24402976

145. Dumenci L, Matsuyama RK, Kuhn L, Perera RA, & Siminoff LA. On the Validity of the

Rapid Estimate of Adult Literacy in Medicine (REALM) Scale as a Measure of Health Literacy. Communication Methods and Measures, 7, 134-143, 2013. PMID: 23935770

146. Haun MW, Sklenarova H, Winkler EC, Huber J, Thomas M, Siminoff LA, Woll M, Brechtel

A, Herzog W, Hartmann M. Assessing Patient-Caregiver Communication in Cancer-A Psychometric Validation of the Cancer Communication Assessment Tool (CCAT-PF) in a German sample. Support Care Cancer, 22(9):2473-8, 2014. PMID: 24722779

147. Siminoff LA, Thompson MD, Dumenci L. Factors Associated with Delayed Patient

Appraisal of Colorectal Cancer Symptoms. Psycho-Oncology, 23(9): 981–988, 2014.

148. DuBay DA, Ivankova N, Herby I, Wynn TA, Kohler C, Berry B, Foushee H, Carson AP, Redden DT, Holt C, Siminoff L, Fouad M, Martin MY. African American Organ Donor Registration: A Mixed Methods Design Using the Theory of Planned Behavior. Progress In Transplantation, 24(3): 273-83. 2014 September.

149. Dumenci L, Matsuyama R, Riddle DL, Cartwright LA, Perera RA, Chung H, Siminoff LA.

Measurement of Cancer Health Literacy and Identification of Patients with Limited Cancer Health Literacy. Journal of Health Communication, 19 Suppl. 2:205-24. 2014. PMID: 25315594

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150. Traino HM, Siminoff LA. Keep it going: maintaining health conversations using relational and instrumental approaches. Health Commun. 2016;31(3):308-19. doi:10.1080/10410236.2014.950020. Epub 2015 Sep 1. PubMed PMID: 26325602.

151. Thomson MD, Siminoff LA. Finding medical care for colorectal cancer symptoms:

experiences among those facing financial barriers. Health Educ Behav. 2015 Feb;42(1):46-54. doi: 10.1177/1090198114557123. Epub 2014 Nov 12. PubMed PMID:25394821; PubMed Central PMCID: PMC4604569.

152. Siminoff LA, Traino HM, Genderson MW. Communicating Effectively about Organ

Donation: A Randomized Trial of a Behavioral Communication Intervention to Improve Discussions about Donation. Transplant Direct. 2015 Mar;1(2). doi:10.1097/TXD.0000000000000513. PubMed PMID: 26146659; PubMed Central PMCID: PMC4486302.

153. Thomson MD, Siminoff LA. Perspectives on mammography after receipt of secondary

screening owing to a false positive. Womens Health Issues. 2015 Mar-Apr;25(2):128-33. doi: 10.1016/j.whi.2014.11.003. Epub 2015 Jan 31. PubMed PMID: 25648490; PubMed Central PMCID: PMC4355242.

154. Lafata JE, Wunderlich T, Flocke SA, Oja-Tebbe N. Dyer KE, Siminoff LA. Physician use of

persuasion and colorectal cancer screening. Transl Behav Med. 5(1):87-93, 2015. PMID: 25729457

155. Siminoff LA, Traino HM, Mosavel M, Barker L, Gudger G, Undale A. Family decision

maker perspectives on the return of genetic results in bio-banking research. Genet Med. 2016 Jan;18(1):82-8. doi: 10.1038/gim.2015.38. Epub 2015 Apr PubMed PMID: 25856669; PubMed Central PMCID: PMC4600004.

156. Siminoff LA, GTEx Consortium. Human genomics. The Genotype-Tissue Expression

(GTEx) pilot analysis: multitissue gene regulation on humans. Science. 2015 May 8.

157. Siminoff LA, Molisani AJ, Traino HM. A Comparison of the Request Process and Outcomes in Adult and Pediatric Organ Donation. Pediatrics,136(1):e108-14, 2015. PMID: 26034251

158. Siminoff LA, Sandberg DE. Promoting. Shared Decision Making in Disorders of Sex

Development (DSD): Decision Aids and Support Tools. Hormone Metab Res, 47(5):335-9, 2015. PMID: 25853896

159. Siminoff LA, Rogers HL, Harris-Haywood S. Missed Opportunities for the Diagnosis of

Colorectal Cancer. Biomed Res Int. 2015; 2015:285096. doi:10.1155/2015/285096. Epub 2015 Oct 4. PubMed PMID: 26504796; PubMed Central PMCID: PMC4609372.

160. Rogers HL, Siminoff LA, Longo DR, Thomson MD. Coping With Prediagnosis Symptoms

of Colorectal Cancer: A Study of 244 Individuals with Recent Diagnosis. Cancer Nurse, 2016 Apr 1. [Epub ahead of print]. PMID: 27044057

161. Siminoff LA, Traino HM, Mosavel M, Barker L, Gudger G, Undale A, the GTEx

Consortium. Family decision-maker perspectives on the return of genetic results in biobanking research. Genetics in Medicine, 8(1):82-8, 2016. PMID: 25856669

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162. Alolod GP, Traino HM, Siminoff LA. Utility and Usability of the Rapid Assessment of Hospital Procurement Barriers in Donation (RAPiD) as a Tool for OPO Hospital Development Staff. Prog Transplant. 2016 Jun 19. pii: 1526924816655960. [Epub ahead of print] PubMed PMID: 27323955.

2. Books and Book Chapters, and Other Publications.

1. Siminoff LA. “A Study into the Physical Abuse of Women in Fredericton.” New Brunswick (New Brunswick Government Publication); 1978.

2. Siminoff LA. “The Reluctance of Physicians to Recommend Clinical Trials to Breast Cancer

Patients.” Proceedings of the Society for Clinical Trials; 1990.

3. Siminoff LA. “A Feasibility Study Into the Need for a Centre for Health Education for Women in the Hamilton-Wentworth Area.” Ontario Government Publication; 1980.

4. Caplan A, Siminoff LA, Arnold BM, Virnig B. “Increasing Organ and Tissue Donation: What are

the Obstacles; What are our Options?” in: Surgeon General's Workshop on Increasing Organ Donation. US Dept HHS: Washington, DC; 1991.

5. Siminoff LA, Arnold RM, Sear M. “Death.” in: Encyclopedia of U.S. Biomedical Policy, pp. 51-

53, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT; 1996.

6. Siminoff LA, Arnold RM, Sear M. “Organ Procurement.” in: Encyclopedia of U.S. Biomedical Policy, pp. 215-221, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT; 1996.

7. Siminoff LA, Arnold RM, Sear M. “Organ Transplantation.” in: Encyclopedia of Biomedical

Policy, pp. 221-223, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT; 1996.

8. Siminoff LA, Arnold RM, Sear M. “Uniform Anatomical Gift Act.” in: Encyclopedia of Biomedical Policy, pp. 311-312, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT; 1996.

9. Siminoff LA, Arnold RM, Sear M. “Artificial Heart” in: Encyclopedia of Biomedical Policy, pp.

15-16, ed. RH Blank and JC Merrick. Greenwood Press, Westport, CT; 1996.

10. Ravdin PM, Siminoff LA, Harvey JA. “Survey of American Women Who Have Received Adjuvant Chemotherapy.” Breast Cancer Research and Treatment, 41, 219; 1996.

11. Siminoff LA. "Society's Choices: Social and Ethical Decision Making in Biomedicine." (Book

Review) Medical Decision Making, 16(1) 93; 1996.

12. Siminoff LA, Arnold RM. Consent to Donation: A Review. Tissue and Cell Report, 3(1): 19-26, 1996.

13. Ravdin PM, Siminoff LA, Harvey JA. “Survey of American Women Who Have Received

Adjuvant Chemotherapy.” Proceedings of the American Society Clinical Oncology, 16, 44a; 1997.

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14. Arnold RM, Siminoff LA. “Organs and Tissues--Making Good from Bad.” in: Good Physicians: A Physician's Guide to Medical Communication Competencies in the Nineties, ed. P.A. Rowland-Morin, (Oxford University); 1999.

15. Siminoff LA. “American Beliefs and Attitudes about Death.” in: Defining Death in a

Technological Age, pp. 183-193, ed. S. Youngner, R. Arnold, R. Shapiro. Johns Hopkins University Press, Baltimore, MD; 1999.

16. Siminoff LA. “Some Elements of Prognosis in Terminal Cancer.” (Book Review). Oncology,

13(8) 1174; 1999.

17. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Perceptions of Quality of Life in Patients with Chronic Knee or Hip Pain: Differences Between African-Americans and White Veterans.” Journal of Investigative Medicine, 47(7) 249A; 1999.

18. Siminoff LA. “The Ethics of Organ Transplants: The Current Debate.” Quarterly Review of

Biology, 75(1) 41-42; 2000.

19. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Do African-American and White Patients with Chronic Knee/Hip Pain Differ With Respect to Their Awareness of Joint Replacement and its Benefits and Risks.” Journal of Clinical Epidemiology, 240(4) 441; 2000.

20. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Do African-American and White Patients

With Chronic Knee/Hip Pain Differ With Respect to Their Awareness of Joint Replacement and its Benefits and Risks.” Journal of General Internal Medicine, 15(1 Suppl) 73; 2000.

21. Ang DC, Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Role of Prayer in the Treatment of

Arthritis: Is There an Ethnic Difference in Perception.” Journal of General Internal Medicine, 15(1 Suppl) 51; 2000.

22. Siminoff LA. “Money and the Research Subject.” American Journal of Bioethics, 1(2), 65-66;

2001.

23. Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. “Outcome Concerns Mediate Racial Differences in Attitudes Toward Joint Replacement.” Journal of General Internal Medicine, 16(1 Suppl) 141; 2001.

24. Siminoff LA. “The Dead Donor Rule: Not Dead Yet.” The American Journal of Bioethics, 3(1)

32; 2003.

25. Siminoff LA. (supplement editor). Toward Improving the Informed Consent Process in Research with Humans. IRB: Ethics & Human Research, Supplement 25(5), S1-S3; 2003.

26. Siminoff LA. “Empirical Methods in Bioethics,” in: The Encyclopedia of Bioethics, pp. 746-48, ed. SG Post, McMillan Reference, New York, NY; 2004.

27. Siminoff LA. “The Armstrong/Holland Article Reviewed.” Oncology, 18(3), 373-75; 2004.

28. Siminoff LA, Morse RE. “An Ethicist’s Analysis,” in: Moral Dilemmas in Community Health

Care (Cases and Commentaries), pp. 194-196. ed. Cox White B and Zimbelman JA, Pearson Education, Inc.; 2004.

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29. Youngner SJ, Shapiro R Siminoff LA. “Guest Editor” of: Kennedy Institute of Ethics Journal

14(3): John Hopkins University Press, 2004.

30. Youngner SJ and Siminoff LA. “Introduction” in: Kennedy Institute of Ethics Journal 14(3): 211-215, 2004.

31. Siminoff LA, Burant C, Youngner SJ. “Death and Organ Procurement: Public Beliefs and

Attitudes.” Kennedy Institute of Ethics Journal 14(3): 217-234, 2004.

32. Siminoff, LA. “Health Care at the Crossroads: Strategies for Narrowing the Organ Donation Gap and Protecting Patients.” JCAHO, 2004.

33. Siminoff LA, Graham G, Gordon N. “Disparities in Doctor-Patient Patterns of Breast Cancer

Patients: The Influence of Socioeconomic and Demographic Factors” Psycho-Oncology 14(Suppl. 1): S12-13, 2005.

34. Zhang AY, Siminoff LA. “Silence and Cancer: Why Do Families and Patients Fail to

Communicate?” Psycho-Oncology 14(Suppl. 1): S13, 2005.

35. Siminoff LA & Shafer T. “Requesting Organ Donation: Effective Communication,” in: A Clinician’s Guide to Donation and Transplantation, pp791-804. ed. Rudow DL, Ohler L, Shafer T, Applied Measurement Professionals, Inc: 2006.

36. Siminoff, LA. “Family Discussion Regarding Organ Donation,” in Organ Donation:

Opportunities for Action, pp. 68. ed. Childress JF, Liverman CT, National Academies Press: May 2006.

37. Appelt CJ, Ibrahim SA, Burant CJ, Siminoff LA, Kwoh CK. Determinates of Arthritis-Related

Health Beliefs Among Male Veterans with Osteoarthritis. Osteoarthritis Cartilage, 12(Suppl B): S113, 2007.

38. Jacoby L (ed) & Siminoff LA (ed). Empirical Methods for Bioethics: A Primer. Elsevier Science

Ltd, December, 2007.

39. Siminoff, LA. “The Ethical Context,” in: Handbook of Communication in Oncology and Palliative Care, ed. Kissane DW, Bultz BD, Butow P, Finlay I, Oxford University Press: 51-64, 2010.

40. Rogers, H., Longo, D., Siminoff, L., and Thomson M. Coping with symptoms of colorectal

cancer: Socio-demographic differences in strategies that influence care seeking delay. Psychology and Health, 28 (Sup. 1), 142. 2013.

41. Siminoff, LA. “Empirical Methods in Bioethics,” in: Encyclopedia of Bioethics, 4th Edition (ed. B

Jennings); Macmillan Reference USA / Cengage Learning. 2014.

42. Siminoff LA & Thomson MD “Decision Making in the Family,” in: Handbook of Health Decision Science ed. Diefenbach MA, Miller-Halegoua S, Bowen DJ. Springer: 171-80, 2016.

laura a. siminoff, ph.d. 215-204-5200 dean fax 215-204 ... h. carnell professor ... school of...

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