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LASA Congress Adelaide, 2019
Kim Thoday, Educator and Senior Consultant, Meaningful Ageing Australia
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Mission To enable access to high quality pastoral and spiritual care for all older people in Australia
Unique, effective resources & education
Advocacy & engagement
Member snap shotArcare
Anglicare SA
Baptcare Vic/Tas
BaptistCare NSW/ACT; WA
Bethanie WA
Blue Care Qld
Bupa Care Services Australia
Calvary Aged Care & Retirement Services
Carrington Centennial Care NSW
Catholic Healthcare Ltd NSW
Churches of Christ Care Qld
ECH
Echuca Community for the Aged
Eldercare Incorporated SA
Kalyra Communities (James Brown)
Maroba Caring Communities NSW
McLean Care
Mercy Health
Mercy Community Services SEQ
Kirkbrae Vic
lllawarra Retirement Trust (IRT) NSW
Outlook Gardens Vic
Multicultural Aged Care Inc, Geelong
Prescare Qld
Resthaven Incorporated SA
Roper Gulf Regional Council, NT
Royal Freemasons’ Benevolent Institution
Southern Cross Care SA/NT, Broken Hill, NSW, Qld, Tas
St Basil’s Homes
St Hedwig Village
SummitCare NSW
The Salvation Army Aged Care Plus NSW
Uniting NSW/ACT
Uniting AgeWell Vic/Tas
Villa Maria Catholic Homes
Warramunda Village
Research Consultants
Ann Harrington Associate Professor - Flinders University
Bruce Rumbold Director - La Trobe University Palliative Care Unit
Bruce Stevens Professor - Charles Sturt University
John Swinton Professor - University of Aberdeen
Richard Egan Senior Lecturer – University of Otago
Richard Fleming Professor – University of Wollongong
Rosalie Hudson Associate Professor – University of Melbourne
What is Spirituality?
What immediately comes to mind for you?
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Spirituality:
The sphere of our
ultimate concerns
Mediated through
Relational:
Community
Intimacy
Service
Nature
God/Spirit Political Activism:
Social Justice
Environment
Gender
LGBTI
New Age:
Inner Journey
Festivals (Burning Man)
Gnostic groups
Astrology
Science Sport
The Arts
Music, art, poetry, drama,
dance
Counter-cultural:
Communal
Alternative lifestyle
Sectarian
Eastern:
Yoga
Meditation
Mindfulness
Monastic
Religion:
Worship
Scripture
Welfare
Theology
Doctrine
© 2016 Kim Thoday, Meaningful Aging Australia – Educator/ Senior Consultant
Spirituality is the way we seek and express meaning and purpose; the way we experience our connection to the moment, self, others, our world and the significant or sacred.
Spirituality VideoSpirituality is more than religion: Meaningful Ageing Australia
New Aged Care Standards
New Aged Care Standards connections with a spiritual
care approach
• Maintain an older person’s identity (Standard 1)
• Help older people to make connections with others (Standard 1)
• Partner with consumers (Standard 2)
• Optimise health and wellbeing (Standard 2, 3, 4)
• Understand what is ‘right’ for each consumer (Standard 3)
• Understands each person’s needs, goals and preferences (Standards 3, 4)
• Optimise quality of life (Standard 4) including Requirement:
(4.2) services and supports for daily living promote each consumer’s emotional, spiritual and psychological well-being
• Creates a sense of belonging, safety and comfort(Standard 5, supported to give feedback 6)
• Have a workforce that is kind, caring and respectful of each person’s identity, culture and diversity (Standard 7)
• Risk management supports consumers to live the best life they can (Standard 8)
Aged Care Quality and Safety CommissionGuidance and Resources for Providers to support the new Aged Care Quality Standards January 2019
“Consumers who need help to stay at home or who live in residential care could also be experiencing a reduced sense of purpose and meaning. Approaches that promote emotional, spiritual and psychological well-being will minimise the risk of stress, depression or anxiety, and help consumers experience meaning and purpose. This could be through specific pastoral care, cultural, or religious activities that are meaningful to the individual consumer, or through everyday encounters that promote a sense of connection and community…. Promoting empathy, compassion and connection between the consumer and members of the workforce in their day to day interactions, will support this approach.” (p78)
Requirement 4.2 Services and supports for daily living promote each consumer’s emotional, spiritual and psychological well-being.
• purpose and identity p79
• meaningful relationships p80
• meaningful activities p78,79
• connection with other organisations to meet needs for meaning and purpose p85
• organisation’s meaning and purpose p137
Also…
And…
Definition – identity – includes spiritual needs p5
1.1 Consumers’ spirituality accepted p10
2. Consumers say they have been listened to and their care and services are planned around what is important to them, such as …spirituality p31
2.6 How does the organisation monitor that a consumer’s assessment and care planning includes the consumer’s social, cultural, language, religious, spiritual, psychological and medical needs? p31
3.1, 3.2 and 3.3 intent optimising the consumer’s health and wellbeing including spiritual and emotional life p48
timely response at end of life if in spiritual distress p55
4.2 services and supports for daily living…spiritual wellbeing p70
How does the workforce build and maintain trust with each consumer? p77
Do interactions …meet their emotional, psychological and spiritual needs, goals and preferences? p77
How does the organisation help consumers access a diverse range of spiritual care practitioners to meet their needs, goals and preferences? This may include community leaders, cultural or religious communities, chaplains or pastoral care practitioners. p77
And…
Strategic documents, policies and procedures show how the organisation provides services and supports to help consumers’ emotional, psychological and spiritual wellbeing. p78
5.1 Consumers say they have spaces to interact with others and spaces for quiet reflection. They also have spaces for religious or cultural practices and private spaces if they need p97
7.1 Workforce has the right blend of skills p122
7.2 Evidence of the organisation’s recruitment processes that consider value based requirements such as a caring and compassionate nature.p124
7.3 Consumers say the workforce is able to meet their social, cultural, religious, spiritual, psychological and medical care and support needs.p125
And…
https://www.agedcarequality.gov.au/sites/default/files/media/Full%20Standards%20Guidance%201-8%20Updated%20180119.pdf
Message for Boards, CEOs and Executive Staff
ConnecToA tool for spiritual screening & exploring what is meaningful
Inviting a deeper conversation
Self Reflection
You are going on a journey
…maybe never to return home, and could only take three things with you, what would they be?
Why?
The process of transition into a residential facility.
Imagine yourself in the situation
What might you be feeling?
What things confront you?
Transitioning from the familiar to the unknown is a great challenge
Remember for new residents, it’s a strange place. They are confronted by all these new faces. You might have to introduce yourself a few times! Introduce yourself and your role.
Its all about the R word: RELATIONSHIP
But relationships take time and: listening, observing, understanding
and kindness; when vulnerability meets kindness, restoration begins
Ultimate concerns begin to emerge:
Identity, Relationships and Belonging
Meaning and Self-worth
A Message for Personal Carers
Meaningful Ageing Australia resources to support your work
Most are free for members
Thank you especially to:- the older people who reflected on their experience of
frailly with us: May, Dennis, Margaret, John, Helen and Rosa
- the following organisations for their input and feedback: Aurrum Aged Care, Baptcare,Brightwater, Churches of Christ Care QLD, Multicultural Services Centre of Western Australia, Nurse Watch, Tanunda Lutheran Home, The Salvation Army Aged Care Plus and Uniting AgeWell
- Meaningful Ageing Australia Research Consultants Bruce Stevens, Bruce Rumbold, John Swinton, Richard Egan; and also to Elizabeth MacKinlay.
Launch 2019
“very valuable”
“all staff and volunteers should go through this”- trial participants
Spiritual Care Considerations
• Aboriginal and Torres Strait Islanders• Catholics and end of life care• Intellectual disability• Jehovah’s Witness spirituality • Jewish end of life care• Lesbian, gay, bisexual older people• Muslims in home based care• Muslims in residential aged care• Staff mutual support with grief • Transgender and intersex older people• Transition into residential aged care• If someone says they want to die…and more
“Thank you for your outstanding work. Your resources haves become a fundamental part of our work.”Member survey Nov 2017
Intergenerational Reminiscence:A Leader’s Guide for Aged Care Organisations & Secondary Schools. Our 2016 Award winner
Dementia-specific Christian Worship Services Handbook
“Since beginning with Dementia Services, our staff are noticing a reduction in disruptive behavioursat meal times and less anxiety between residents.”
Spirituality of Dying Workshop: Facilitator’s Guide
• Introduction
• Exploring personal experiences of dying and their impact
• Identifying the terminal phase of dying
• Refreshed understanding of spirituality and spiritual care
• Cultural considerations
• Communication skills with a focus on listening
• Resources
• Conclusion including self-care ideas
• Evaluation
Partners: UnitingCare Qld, Uniting NSW/ACT, Uniting Vic/Tas, Uniting AgeWell
Due for launch 2019
Hard copy with PPT
Tech Connect: Staying Meaningfully Connected in Aged Care – A Leader’s Guide
“Very clear presentation, and easy to follow. The document articulates well both the rationale and the practical application aspects. It also makes for good reading to have Pat’s story woven throughout” - Member review
Modules available for you to use, or we can deliver them:
- Qualities and values- Presence and listening skills- Understanding spirituality and religion- Learning about the relational spirituality model- Working with the relational spirituality model- Spiritual care for the person with dementia- Spiritual Care as intentional, empathic, responsive listening - Listening to stories
“This manual lays it out so clearly that even the newest person creating a robust and high functioning spiritual care volunteer team has every chance of success”- Volunteer Program Manager
Launched at Parliament House Canberra by Hon Ken Wyatt, Minister for Aged Care & Senior Australians
Prayers and poems for the bedside
Newsletter – open access
• Monthly public newsletter plus occasional other updates
empowerment campaign – questions for aged care
Select Page
See me. Know me.
I believe family is the most important thing.
If you’re looking for aged care, make sure they not only see you but know you
As we age, some people only see lines and grey hair rather than the
stories, feelings, beliefs and experiences that make us who we are.
When choosing the right aged care it’s important to find an organisa-
tion that will see beyond the surface and get to know who you are –
know what gives you purpose, know what you believe and know what
connects you to life. If you or a loved one are looking for the right
aged care make sure they not only see you but know you.
www.seemeknowme.org.au
References
Berman, A, Snyder, S, Levett-Jones, T, Dwyer, T, Hales, M, Harvey, N,
Luxford, Y, Moxham, L, Park, T, Parker, B, Reid-Searl, K & Stanley, D (eds.)
(2012). Kozier and Erb's Fundamentals of Nursing, Vols 1-3, 2nd Australian
ed, Pearson, Australia.
Fletcher, J. (2016). Understandings and perceptions of spirituality held by
multidisciplinary professionals involved in a community-based palliative care
organization: Implications for professional practice. (Unpublished doctoral
dissertation). Australian Catholic University, Aquinas Campus: Ballarat,
Australia.
Meaningful Ageing Australia (2016). National Guidelines for Spiritual Care in
Aged Care. Meaningful Ageing Australia: Melbourne.
Puchalski, C., Ferrell, B. (2010). Make health care whole: integrating
spirituality into patient care. West Conshohocken: Templeton Press.
Further reading• Agli, O., Bailly, N. Ferrand, C. (2015). Spirituality and religion in older adults with dementia: a systematic review. International Psychogeriatrics. 27(5):715-725
• Ballard C.G., O’Brien J. (2001) Dementia: Management of Behavioural and Psychological Symptoms. Oxford University Press, Oxford.
• Beuscher, L. and Grando, V. T. (2009). Using spirituality to cope with early-stage Alzheimer’s disease. Western Journal of Nursing Research, 31: 583–598
• Carr, T., Hicks-Moore, S., Montgomery, P. (2011). What’s so big about the ‘little things’: A phenomenological inquiry into the meaning of spiritual care in dementia. Dementia, 10(3) 399–414
• Daly, L., & Fahey-McCarthy, E. (2014). Attending to the spiritual in dementia care nursing. British Journal of Nursing. 23(14), 787-791.
• Katsuno, T. (2003). Personal spirituality of persons with early-stage dementia. Dementia: The International Journal of Social Research and Practice. 2:315–335
• Killick J., Allan K. (2001). Communication and the Care of People with Dementia. Open University Press, Buckingham.
• Killick, J., (2004). Dementia, Identity, and Spirituality, Journal of Religious Gerontology, 16:3-4, 59-74.
• Lawrence R.M. (2003). Aspects of spirituality in dementia care: when clinicians tune into silence. Dementia. 2:393–402
• Koenig, H. (2007). Religion, spirituality and medicine in Australia: research and clinical practice. Medical Journal of Australia, 186(10): S45-S50
• MacKinlay, E. (2012). Palliative Care, Ageing and Spirituality: A Guide for Older People, Carers and Families. London: Jessica Kingsley
• MacKinlay, E., & Trevitt, C. (2010). Living in aged care: Using spiritual reminiscence to enhance meaning in life for those with dementia. International Journal of Mental Health Nursing. 19(6):394-401
• Shamy E. (2003) A Guide to the Spiritual Dimension of Care for People with Alzheimer’s Disease and Related Dementias. More Than Body, Brain and Breath. Jessica Kingsley Publishers, London & New York.
• Snyder L. (2003) Satisfactions and challenges in spiritual faith and practice for persons with dementia. Dementia. 2:299-313
• Vance D, Moore B, Farr K, Struzick K. (2008) Procedural memory and emotional attachment in Alzheimer disease: implications for meaningful and engaging activities. J Neuroscience Nursing. 40:96-102
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