kerala: rare surgery changes this tribalamritahospitals.org/pdffiles/rare surgery changes this...
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Nupur Jha
June 30, 2017 21:29 IST
Manikandan, a 13-year-old tribal boy hailing from Parambikulam, Palakkad wasdiagnosed with a rare medical condition – encephlocele – because of which he got abizarre appearance.
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In this condition the brain matter oozes out of gap present in the skull and forms a sac-like structure. In Manikandan's case, the structure was fist-sized and it hung from hisnose.
His vision got hindered because of thestructure which had also deformed his face.His horrible condition bettered after a team of10 surgeons at Amrita Institute of MedicalSciences (AIMS) removed the structure afterconducted an 11-hour-long surgery.
As Manikanda's parents -- Selvan and Ramata -- are poor plantation workers, KeralaGovernment agencies aided them by fundingthis operation.
Kerala: Rare surgery changes this tribalboy's lifeEncephlocele is a condition the brain matter oozes out of gap present in the skull and formsa sac-like structure.
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RELATED "It was a complex surgery. Manikandan'sencephlocele was very large which had pushedthe bone of his right eye outwards. Forsurgery, his skull was opened and the normalbrain isolated from the sac of non-functioningbrain matter hanging from his face. Theremoval of the deformity left a defect in theskull, a portion of which had to bereconstructed," said Dr Subramania Iyer, Head,
Plastic & Reconstructive Surgery, Amrita Institute of Medical Sciences (Amrita Hospital).
The patient's eye sockets were repositioned to remove the deformity in the right eye, andthe nose was also remodeled. All these were huge surgical challenges. Manikandan hasrecovered fully from the surgery and is ready for discharge. He will now be able to attendschool and participate in all social activities like any other child of his age. The surgerywas carried out by the combined efforts of the paediatric craniofacial departmentconsisting of more than 12 surgeons and anesthetists," Iyer added.
The surgical team that operated on Manikandan consisted of paediatric neurosurgeons,craniomaxillofacial surgeons and plastic surgeons, assisted by neuro anaesthetists and apaediatric neuro ICU nursing team. It was led by Dr. Suhas Udaykumar, Dr. PramodSubhash and Dr. Subramania Iyer, helped by the anesthetic team led by Dr. Gokuldasand Dr. Mathew.
"We belong to the Marasar tribe and work in a plantation. I have five children, who are allnormal and healthy, except Manikandan who was born with a swelling on the nose whichkept growing. Because of the huge deformity on his face, he never went to school ormingled with other children, as people used to make fun of his appearance," said Selvan,Manikandan's father.
After surgery, he is eager to go back home, start school and make friends. I thank thedoctors of Amrita Hospital from the bottom of my heart for enabling my son to lead anormal life," Selvan said further.
The district administration of Palakkad and the tribal welfare department stepped in tofund Manikandan's surgery. Mr.Suresh, District Tribal Welfare Officer, Palakkad, broughtthe plight of the boy to the attention of Dr P Pugazhenthi (IFS), Director, Scheduled TribesDevelopment Department, Kerala. He, in turn, escalated the issue to Mr AK Balan, Hon.Minister for Welfare of Scheduled Castes, Scheduled Tribes and Backward Classes, Govt.of Kerala. The Minister took keen interest in the matter and sanctioned funds forManikandan's surgery. Ms P Marykutty (IAS), District Collector, Palakkad, providedlogistical support to liaison between the various Government departments and visitedManikandan at Amrita Hospital to monitor his progress.
Encephalocele is a rare congenital disorder – found in 1 in 5,000 births – in which bones
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of a baby's skull do not close completely in the mother's uterus. This creates an openingthrough which brain tissue and cerebro-spinal fluid protrude out of the head in a sac-likestructure. The condition can be fatal if the encephalocele hampers brain development.Once past infancy, patients usually live an isolated life, ashamed to show their face inpublic.
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