keeping our eyes on a cure: patients as leaders and advocates
TRANSCRIPT
Keeping Our Eyes on a Cure: Patients as Leaders and Advocates
Lauren Johnston, Sam Biurski, Tim Turnham
Staying Engaged With MRF and CURE OM
·Miles for Melanoma·Unite! Campaign·Wings of Hope Galas·Education and Advocacy Opportunities·Social Media: Instagram, Facebook, Twitter
2
2016 Miles For Melanoma
· 20+ States· CURE OM Teams– Attend in person or virtually
· All Monies Raised by CURE OM Teams will be restricted to CURE OM Programming
· Opportunity to join the greater MRF community and educate the public and raise awareness for Ocular Melanoma through CURE OM Teams
4
Unite! Campaign 2015
5
Miles for Melanoma Event Amount Raised
Denver $1,225
DC $3,580
Cleveland $3,425
Philadelphia 12,586
San Antonio $8,442
Florida-Sun Coast $5,885
Chicago $2,625
Nashville $802
New York 17,901
TOTAL 55,511
TOTAL RAISED IN 2015
TYPES OF FUNDS AMOUNT RAISED
Miles for Melanoma $55,511
Grassroots and Online Donations $10,000
Matching Donation $100,000
MRF Match $35,000
TOTAL $200,000 over 2 Years
6
Next Steps for Unite!
·Patient Review Committee–Participate in a multi-step process to review and
rate proposals–Will be taking place in the next few months–Stay tuned for information on how to be involved
8
Wings of Hope Galas
The annual events celebrates leaders in the melanoma medical community, recognizes individuals who are bravely battling melanoma and shares some of the exciting medical breakthroughs that are on the horizon for this disease.
10
2016 Locations
·Denver- April 2016–Vision of Hope Award: Scott Oliver, MD
·San Francisco- May 2016–Vision of Hope Award: Bertil Damato, MD, PhD
·Chicago·New York·Philadelphia- Dr. Sheilds (2015)·DC
11
Getting Involved
·Serving on the Planning Committee·Volunteer the night of the event·Ask Friends and Family to attend·Ticket Price and other donations to CURE OM
12