kathy hebbeler sri international february 17, 2010 characteristics of children served in part c
TRANSCRIPT
Kathy HebbelerSRI International
February 17, 2010
Characteristics of Children
Served in Part C
Objectives
• Share some information on what we know about children and families receiving Part C services
• Discuss the implications for child find, eligibility criteria and improving systems and services
Data Sources
• National Early Intervention Longitudinal Study (NEILS) (www.sri.com/neils)
• Data States report annually to the U.S. Department of Education (www.ideadata.org)
• Patterns in the Identification of and Outcomes for Children and Youth With Disabilities (http://ies.ed.gov/ncee/pubs/20104005/index.asp)
NEILS
Followed 3,338 children and families from entry to early intervention through kindergarten
Families entered EI in 1997-1998Nationally representative study with data
weighted to represent the nation (but the nation in 1998)
Data collected shortly after family enrolled in EI Service providers --Study enrollment formFamilies – Telephone Interview
Followed 3,338 children and families from entry to early intervention through kindergarten
Families entered EI in 1997-1998Nationally representative study with data
weighted to represent the nation (but the nation in 1998)
Data collected shortly after family enrolled in EI Service providers --Study enrollment formFamilies – Telephone Interview
State Reported Data
• All states submit data annually to Office of Special Education Programs in the U.S. Department of Education
• Provides perspective on change over time
• Not much detail on characteristics of children and families being served.
Number of children has increased
Note: This is a one day count. Number served in a year is higher
Percentage of children has increased
8
HawaiiMassachusetts
West VirginiaRhode Island
WyomingNew York
New HampshireIndiana
New MexicoVermont
PennsylvaniaConnecticut
IllinoisNorth Dakota
MarylandSouth Dakota
IdahoArkansas
New JerseyOhio
DelawareKansas
WisconsinIowa
MaineMichiganKentuckyCalifornia
North CarolinaTexas
OklahomaSouth Carolina
MontanaColorado
AlaskaArizona
UtahOregon
WashingtonNebraska
FloridaMinnesotaTennessee
VirginiaMissouriNevada
AlabamaDistrict of Columbia
GeorgiaLouisiana
MississippiNational
0.0 2.0 4.0 6.0 8.0
Percent
1997
2006Average 1998-2005
Percentage of children served nationally, and in by state (1997, 1998–2005 average, and 2006)
(IES Report)
9
MississippiLouisiana
GeorgiaDistrict of Columbia
AlabamaNevadaMissouriVirginia
TennesseeMinnesota
FloridaNebraska
WashingtonOregon
UtahArizonaAlaska
ColoradoMontana
South CarolinaOklahoma
TexasNorth Carolina
CaliforniaKentuckyMichigan
MaineIowa
WisconsinKansas
DelawareOhio
New JerseyArkansas
IdahoSouth Dakota
MarylandNorth Dakota
IllinoisConnecticut
PennsylvaniaVermont
New MexicoIndiana
New HampshireNew YorkWyoming
Rhode IslandWest Virginia
MassachusettsHawaii
0.0 1.0 2.0 3.0 4.0 5.0 6.0 7.0 8.0 9.0
Broad
Moderate
Narrow
Unknown
Percent
Percentage of children ages birth through 2, by OSEP categorization of eligibility criteria (2006 data)
(IES Report)
National Average
More boys than girls
NEILS found 61% boys - 1998
Most children are White (not Hispanic)
Proportionately more White and American Indian/Alaskan Native Children are served
Differences in trends by race/ethnicity
Over half of the children are over 2
Increase in % served varies by year of age
16
Percentage of Infants & Toddlers Entering Services by Age at Entry *
0
0.5
1
1.5
2
2.5
3
3.5
4
4.5
5
2 4 6 8 10 12 14 16 18 20 22 24 26 28 30 32 34 36Age in Months
Per
cent
* Age at development of the Individualized Family Service Plan (IFSP).
17
Eligibility for Early Intervention Services
At-risk16%
Developmental delay64%
Diagnosedcondition
20%
18
Eligibility by Age at Entry
32
75
91
36
16
6
32
93
0
10
20
30
40
50
60
70
80
90
100
< 12 months 12-24 months > 24 months
Developmental Delay Diagnosed Condition At-risk
19
11
1.8
3.6
1.7
2
20.4
3.9
2.9
1.9
5
1.7
18
9.7
40
24.8
3.8
2.8
3.8
9.1
1.6
2.7
4.4
0 10 20 30 40 50 60 70 80
Delayed development (global)
Physical growth abnormality*
Sensory systems impairment
Vision impairment*
Hearing impairment*
Motor delays
Physiol./neurolog. system imp.
Intellect./cognitive imp. or delay
Social/behavioral imp.or delay
Speech/communication
Delay in self help skills
Congenital disorders
Down syndrome*
Prenatal/perinatal abnormalities
Low birth weight*
Prenatal exposure*
Illness or chronic disease
Musculosketal disorders
Central nervous sys. disorders
Cerebral palsy*
Medical trtmt., disorder not ID'd
Social environment risk factors
Reasons for Eligibility for EI: 0 to < 12 months
20
Reasons for
Eligibility for EI: 12
to <24 Months
14.8
2.1
4
1.1
2.3
21.9
1.9
7.3
3.3
48.5
2.5
4.9
1.3
9.4
4.3
1.1
1.2
1.4
8.6
4.1
1.1
4.6
0 10 20 30 40 50 60 70 80
Delayed development (global)
Physical growth abnormality*
Sensory systems impairment
Vision impairment*
Hearing impairment*
Motor delays
Physiol./neurolog. system imp.
Intellect./cognitive imp. or delay
Social/behavioral imp.or delay
Speech/communication
Delay in self help skills
Congenital disorders
Down syndrome*
Prenatal/perinatal abnormalities
Low birth weight*
Prenatal exposure*
I llness or chronic disease
Musculosketal disorders
Central nervous sys. disorders
Cerebral palsy*
Medical trtmt., disorder not ID'd
Social environment risk factors
Reasons for Eligibility for EI: 12 to < 24 months
21
11.60.9
2.30.331.5
10.60.7
11.96.2
75.43.5
20.8
3.110.91.4
0.42
1.30.2
2.3
0 10 20 30 40 50 60 70 80
Delayed development (global)
Physical growth abnormality*
Sensory systems impairment
Vision impairment*
Hearing impairment*
Motor delays
Physiol./neurolog. system imp.
Intellect./cognitive imp. or delay
Social/behavioral imp.or delay
Speech/communication
Delay in self help skills
Congenital disorders
Down syndrome*
Prenatal/perinatal abnormalities
Low birth weight*
Prenatal exposure*
Illness or chronic disease
Musculosketal disorders
Central nervous sys. disorders
Cerebral palsy*
Medical trtmt., disorder not ID'd
Social environment risk factors
Reasons for Eligibility for EI: 24 to 36 months
22
Average Age for Events Leading to Beginning Early Intervention
7.4 1.4 3.1 2.1 1.7
0 3 6 9 12 15 18
Age in Months
Concerns Diagnosis Looked for EI Referral IFSP
23
Over 1/3 children in EI are low birth weight
10
0.77
0.7
15
6.1
68
92.5
0
10
20
30
40
50
60
70
80
90
100
Children entering EI 1997-98 National Live Births 1997*
Perc
ent
< 1000 g 1000-1499g 1500-2499g >2500 g
*Source: Bloom and Tonthat (2002).
EI serving only a fraction of low birth weight babies in US
• 22% began EI after 12 months; 8% between 24 and 30 months (NEILS)
• According to CDC, in 2002: 314,077 LBW births occurred (7.8% of all
births) 58,544 of these were VLBW (1.46% of all
births).
• 39,000 children younger than age 1 were being served in EI in December 2002
24
25
Health Status at Entry to EI
*Source: Bloom and Tonthat (2002).
40.3
12
2
23
14
2527
36
57
0
10
20
30
40
50
60
Children in EI Children 0-4 in U.S. 1997*
Perc
ent
Poor Fair Good Very Good Excellent
26
Household Characteristics
• 91% live with biological/adoptive mother.
• 69% live with biological/adoptive father.
• 7% are in foster care.
• 16% live in single parent households.
• 43% have household incomes less than $25,000.
• 20% have another child with special needs in the household.
Issues to Ponder
• Differences across states in percent served
• Differences by race/ethnicity
• Growth over time in the 2 to 3 year olds
• Timeline to IFSP• Services to low birth
babies27