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Disability in Australia Suraksha Maharaj & Kathryn Schenk Disability Ageing and Carers

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Page 1: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Disability in Australia

Suraksha Maharaj & Kathryn SchenkDisability Ageing and Carers

Page 2: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

• What is disability?

• How do we measure disability?

- 3 major ABS sources

• Unmet need for formal assistance

• Disability statistics into the future

Overview

Page 3: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

How is disability defined?

• Limitation, restriction or impairment which restricts everyday activities and has lasted, or is likely to last, for at least 6 months.

• Info about need for assistance, difficulty experienced and use of aids or equipment determines whether a person has a particular limitation or restriction.

• Aligns with the International Classification of Functioning, Disability and Health (ICF).

Page 4: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

3 sources of ABS disability data

• Survey of Disability, Ageing and Carers (SDAC) – ‘Gold standard' in terms of measuring disability; provides

accurate prevalence rates.

• Short Disability Module– 10 questions included in most ABS social surveys; valuable

tool for comparing population characteristics of people with/without disability.

• Census Need for Assistance questions– 4 questions about a person’s need for assistance with

everyday activities and the reason for this need.

Page 5: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

1 - Survey of Disability, Ageing and Carers (SDAC)

• Collected since 1981

• Measures the need for support of those with disability (and older people).

• Provides a demographic and socio-economic profile of people with disability, older people and carers compared with the general population.

• Measures the prevalence of disability in Australia.

Page 6: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Disability prevalence, 2012

312 500 (1.4%)

Page 7: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

0

10

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%

Age group

Disability prevalence by age

1993

2012/13

Page 8: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Prevalence of disability

2012:Prevalence by age

•15-24 year olds around 8%•45-54 year olds 18%•55-64 year olds 29%

Disability over time: Overall prevalence

• 1981 – 13.2%

• 1998 – 19.0%

• 2003 – 20.0%

• 2009 – 18.5%

• 2012 – 18.5%

Page 9: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Three most prevalent disabling conditions

1981 2012

Musculoskeletal diseases (32.8%) Diseases of the musculoskeletal system and connective tissue (55.7%)

Hearing loss (27.4%) Diseases of the circulatory system (39.1%)

Circulatory disease (19.8%) Mental and behavioural disorders (35.3%)

Page 10: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

‘Average’ person with a disability in 2012/13

• Is female (51.6%)• Has a mobility restriction• Has a mild core activity limitation• Is married• Has a disease of the musculoskeletal system and

connective tissue• Median age = 60 years

Page 11: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

• What is unmet need for formal assistance?

• How many people had an unmet need?

• Who is more likely to have unmet need.

Unmet Need for Formal Assistance in Australia

Page 12: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

10 activities of daily living:

• Self-care• Mobility• Communication• Cognitive or

emotional tasks• Health care

• Reading or writing tasks• Transport• Household chores• Property maintenance• Meal preparation

Page 13: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Formal assistance providers

• Organisations or individuals representing organisations; or

• other persons (excluding family, friends or neighbours as described in Informal assistance/providers), on a regular, paid basis, who are not associated with any organisation.

Informal assistance/providers

• Informal assistance is unpaid help or supervision

• Informal assistance may be provided by family, friends or neighbours.

Page 14: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

What is unmet need?

In the 2012 SDAC, people had an unmet need for formal assistance if they:

• Received some formal assistance for that need but not enough, or

• Received no formal assistance for that need.

People may have had more than one unmet need for assistance for different activities.

Page 15: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

How many people had an unmet need?

• 1.5 million people with disability needed formal assistance

• Around half (50.7% or 774,000 people) had an unmet need for formal assistance

Page 16: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Activities for which assistance was needed

Page 17: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Who is more likely to have an unmet need?

Page 18: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Who is more likely to have an unmet need?

Page 19: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Who is more likely to have an unmet need?

Page 20: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

Reasons for not receiving adequate formal assistance

Page 21: Kathryn Schenk & Su Maharaj - Australian Bureau of Statistics - The Unmet Need for Formal Assistance in Australia

What’s coming up….• SDAC 2015 first results – 29th April 2016

• NATSISS 2015 first results – 28th April 2016

• Planning for the 2018 SDAC is underway

• Internationally comparable data… coming soon!