HIT Policy CommitteeConsumer Empowerment Workgroup

Listening Session on Patient-Generated Health Data

July 18, 201310:00 AM– 12:00 PM Eastern

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Agenda

• Welcome • HIPAA Privacy Rule: Right to Amend – David

Holtzman, OCR• NORC: Pilot Study on Patients’ Input to Their

Record – Praschila Dullabh, NORC• Preliminary Results From Provenance Project –

Joy Pritts, ONC• Report From Technical Expert Panel on PGHD –

Jonathan Wald, RTI• Public comment

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Discussion Questions

• What policies are needed to support the flow and use of PGHD by providers, including acceptance of PGHD and expectations of provider review?

• How can we best support inclusion of PGHD for Stage 3 MU to accelerate opportunities for consumers to share data back with providers?

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HIPAA Privacy Rule: Right to AmendDavid Holtzman, OCR

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NORC: Pilot Study on Patients’ Input to Their Record

Praschila Dullabh, NORC

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Preliminary Results From Provenance Project Joy Pritts, ONC

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Report From Technical Expert Panel on PGHD Jonathan Wald, RTI

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Public Comment