The Final Chapter & Beyond

Survey•Who• California HealthCare Foundation• Lake Research Partners• Coalition for Compassionate Care of California

•What• 1,669 Californians• 393 lost a loved on in the past 12 months

• Used Knowledge Networks

•When• Fall 2011

Ethnographic Research•Who• CCCC & CHCF with Point Forward•What• Experience with medical decision making• 24 interviews of patients and family

members• Half with patient alive • 6 each white, African American, Latino,

Chinese

Ethnographic Research• Preliminary Findings• Phases of health status effects how

advance care planning is perceived

• Difficult to imagine different health status• When experience a change, create a new

normal

• Healthcare providers and patients are wanting different things

Questions

Coalition for Compassionate Carewww.CoalitionCCC.org

Judy Citko(916)993-7740

jcitko@CoalitionCCC.org