interests register chronic obstructive pulmonary disease

Interests Register COPD advisory committee 1 of 12

Interests Register

Chronic Obstructive Pulmonary Disease (COPD) Advisory Committee Publication Date: 21/06/2019

Name Role with NICE

Type of interest

Description of interest Relevant dates Comments

Interest arose

Interest declared

Interest ceased

Andrew Molyneux

COPD committee chair

N/A None

N/A N/A Declare and participate

Katy Beckford COPD committee member, Respiratory Nurse

In direct, financial

Ran a study group for Primary care for Respiratory which was funded by various pharma companies, who collectively paid for the room in the hotel.

4.12.17 Dec 17 Declare and participate

Lauren Hogg COPD committee member, Physiotherapist

Direct, non-financial

Expert reviewer for BLF Exercise Handbook, no payment received.

Ongoing 21.2.18 Declare and participate

Nicholas Hopkinson

COPD committee member, Respiratory Consultant


Principal investigator: The British Lung Foundation: The UKLVR study. Bronchoscopic Lung volume reduction in clinical practice – development and evaluation of a national database

Dec 15 April 17 Declare and participate

Nicholas Hopkinson

COPD committee member,

In direct financial

Principal investigator: The Moulton Charitable Foundation. Dietary nitrate supplementation to enhance pulmonary rehabilitation in chronic obstructive pulmonary disease.

Dec 14 April 17 Declare and participate supplementation not


Respiratory Consultant

in scope of this update.

Nicholas Hopkinson


Direct, non-financial professional and personal

Respiratory lead for the NW London respiratory LCRN. Participate in the national Respiratory CRN helping to develop research priorities and review studies for portfolio inclusion. No expenses or payment

2014 April 17 Declare and participate

Nicholas Hopkinson



Elected to the Council of the British Thoracic Society in 2016 for a 3 year term


Nicholas Hopkinson



Appointed to The British Lung Foundation COPD Research Advisory Board in 2015, assessing grant applications and guiding research policy. As an Honorary Medical Advisor assist the charity with medical matters and act as a spokesperson, including on Newsnight, You and Yours, The Today Programme, Al Jazeera and BBC and Sky News.


Nicholas Hopkinson



Advise the BLF’s regular Health Information Review process.

Ongoing April 17 Declare and participate

Nicholas Hopkinson

COPD committee member,


Member of the European Respiratory Society

Ongoing April 17 Declare and participate


Respiratory Consultant

Nicholas Hopkinson


Direct, financial professional and personal

Thorax Online Editor and an Associate Editor of this journal (IF 8.3) since September 2015. In addition to management of submitted papers write and commission editorials and other content.

Payment received.

Sept 15 April 17 Declare and participate – reviewed prior to each chapter to ascertain if any conflict

Nicholas Hopkinson



Chair the BTS COPD specialist advisory group on COPD. Member of the Council of the society and have served on its Nominations and Science and Research committees.


Nicholas Hopkinson



Member of Steering committee of the Dept of Health’s Sustainable Respiratory Care advisory group.


Nicholas Hopkinson



Chair the Royal Brompton Hospital Trust (RBHT) New Drugs and Clinical Guidelines Committee and serve on the Medicines Management Committee.


Nicholas Hopkinson



Respiratory Specialty Group lead for the London (North West) Local Clinical Research Network (LCRN).



Sarah MacFadyen

COPD committee, lay member

N/A None N/A N/A Declare and participate

Karen O’Hara COPD committee, lay member


Discussion held with CSL Behring regarding future clinical trial and patient/patient group potential for involvement in design for Patient recorded outcomes (PRO’s). December 1st 2017 No monies or expenses received




Teleconference with CSL Behring 6th March to discuss the ASCEND Trial of augmentation therapy. No financial payment or expenses received.

6.3.18 March 18

Declare and participate


Direct, financial (expenses only)

Talk given about alpha-1 antitrypsin deficiency to the Wyre Forest Wheezers group in Kidderminster on 5th April.

5.4.18 March 18




EU Parliamentary Day to raise awareness of alpha-1 antitrypsin deficiency. Spoke about the Alpha-1 UK Support Group and our achievements and key asks. Overnight accommodation paid for by Alpha-1 Global. No other expenses or payment received.

24.4.18 March 18




Alpha-1 Roundtable organised by CSL Behring. Moderated a discussion on the role of ePAGs within the ERN-Lung. Flight and hotel accommodation provided. No payment received.

25.4.18 March 18





Attendance at an ERS Clinical Research Collaboration EARCO (European Alpha-1 Research Collaboration) meeting. Travel and expenses funded by Alpha-1 Global and European Lung Foundation/European Respiratory Society. No honorarium.

15.09.18 – 18.09.18

Sept 18 Declare and participate



Attended Alpha-1 UK Support Group Patient Meeting, 29th September 2018 Attended by CSL Behring, Mereo BioPharma, Arrowhead Pharmaceuticals. Expenses paid, no honorarium.

29.09.18 Nov 18 Declare and participate



Attendance at ERN-LUNG Meetings, EARCO (European Alpha-1 Research Collaboration) Meeting, and various patient related meetings. Travel and expenses funded by Alpha-1 Global and European Lung Foundation/European Respiratory Society. No honorarium

Sept 18 Nov 18 Declare and participate

Tony Perkins COPD committee member, Pharmacist


Phone discussion with Sandoz pharmaceutical rep on 11.1.18. Discussed their product AirFluSal which is another brand of salmeterol / fluticasone inhaler, in preparation for a Devon formulary application meeting taking place on Wednesday 17.1.18 No payment.

Jan 18 Jan 18 Partial exclusion – product in scope, participate in discussion but exclude from recommendations.



Meeting with TEVA pharmaceutical rep 18th December – discuss the “IMPACT” (Improving the Management of Patients’ Asthma and COPD Treatment) service they offer to assess if this is a project

Dec 17 Dec 17 Declare and participate


Devon CCG want to engage with. No payment.



Speaker at an inhaler technique education session on 26th Feb 2018 for Devon CCG. Multiple pharmaceutical companies supporting event cover conference costs only. There is no personal payment to me for the session.

26.1.18 6.2.18 Declare and participate



Talk given to practice based pharmacists in Cornwall on Asthma. Run by Soarbeyond (who would be paid by a pharma company that produces inhalers). Content of presentation not provided by Soarbeyond.

Honorarium paid to employer

May 2018

April 2018



Indirect, financial

Support the development of an education support tool for community pharmacists on asthma with Devon Local Pharmaceutical committee (LPC).

LPC is in receipt of an educational grant from pharmacetical industry AstraZenica. (Astrazenica produce a number of inhalers for COPD and Asthma). The project / grant is non promotional. The grant the LPC have received is educational, and the printing cost of materials will be funded by AZ. The LPC is a not for profit representative body.

May 2018

May 2018




Direct, non –financial

Meeting with pharmaceutical companies (who make inhalers) Chiesi and TEVA to discuss non-promotional nurse services they support. No benefit to me, discussion on behalf of local GP practices / CCG.

July 2018 July 2018




Agreed with GSK to speak at a local meeting on “pharmacists supporting asthma management” meeting date mid-September. No payment to me for the meeting, content presented is my own.

July 2018 July 2018




Agreed to speak at Bath University diploma training day for pharmacists training to be pharmacist prescribers “using independent prescribing to support patients with COPD” Expenses for attendance paid. No pharmaceutical company involvement. No content relates to NICE guidance.

July 2018 July 2018




Arranged to speak at a local meeting Mid October 2018, organised by pharmaceutical company TEVA. The meeting is focused on COPD. Presentation is "The Devon formulary COPD guidance and local prescribing data". Produced the content of the slides and no payment for the meeting. The content of my slides does not relate to NICE guidance or the current draft guidance.

Mid Oct 18


Tony Perkins COPD committee


Speaking at a local meeting for community pharmacists on inhaler technique, smoking cessation and pulmonary rehabilitation.

25.9.18 Sept 18 Declare and participate


member, Pharmacist

This is a small event up to 30 delegates the overall value (£) of support is up to £500 in total, there are two pharmaceutical companies supporting (GSK and Pfizer). No payment for the session. The payment is made directly to the venue to cover food for delegates and conferencing costs only.

Luisa Pettigrew

COPD committee member, GP

N/A

None N/A N/A Declare and

participate

Louise Restrick



Chair of the Camden, Haringey and Islington Responsible Respiratory Prescribing Group – 2000 to present Produce practical guidance on COPD care including prescribing for clinicians


Louise Restrick



Member of the British Thoracic Society New Models of Care Committee

Share information on models and pathways of care with focus on integrated care - includes COPD


Louise Restrick



Member Royal College of Physicians Secondary Care COPD Audit Committee.

Produce guidance to enable Quality Improvement in hospital COPD care



Louise Restrick



Trial Steering Committee member for TANDEM trial: A tailored, psychological intervention for mild to moderate anxiety or depression in people with chronic obstructive pulmonary disease(COPD)


Louise Restrick



Took part in symposium at British Thoracic Society summer meeting, session on ‘Self-management strategies in COPD’ No expenses or fee paid and no meeting or discussion with any representatives. Event took place after self-management recommendations were made, and there were no substantive comments made at consultation therefore was not discussed at the post consultation meeting in September.

June 2018


Ravijyot Saggu

COPD committee member, Pharmacist


Educational sponsorship provided by TEVA to attend the ERS conference in September 2017.

The event is educational (so travel, food, accommodation where relevant is provided).

Sept 17 Sept 17 Declare and participate

Ravijyot Saggu



Attended a severe asthma meeting in June 2017 with sponsorship provided by Teva.

The event is educational (so travel, food, accommodation where relevant is provided).

June 17 June 17 Declare and participate

Ravijyot Saggu

COPD committee


Nov 2017 'how to implement respiratory guidelines' aimed at primary care staff, jointly organised by Napp & TEVA.

Nov 17 Nov 17 Declare and participate


member, Pharmacist

This will cover asthma & COPD, is non-promotional and honorarium diverted to the EY Foundation).

Ravijyot Saggu



Commentator for a Drugs and Therapeutics Bulletin DTB article ‘Single inhaler triple therapy for COPD’ published 13.12.17 (vol 55, issue 12) on triple therapy. No financial gain.


Ravijyot Saggu



Commentator on a second Drug & Therapeutics Bulletin article on ‘Triple inhaler therapy’ relating to GSK Trelegy new product. Published April 2019 (vol 56, issue 4) No financial gain

April 18 April 18 Declare and participate

Ravijyot Saggu


In Direct, financial

Expert panel member for respiratory Q+A session sponsored by TEVA Honorarium given to UCLH charity

1st Feb 18

1st Feb 18


Ravijyot Saggu



Attendance at educational meeting on ‘Trimbow’ triple therapy inhaler sponsored by Chiesi. No honorarium.

7th Feb 18

7th Feb 18

Declare and participate – this took place before the extra work was commissioned.

Ravijyot Saggu



Attendance at an educational event sponsored by Boehringer Ingelheim “Respiratory Academy”. Hospitality only, no monies received.

April 18 Sept 18 Declare and participate


Ravijyot Saggu



Chair of an educational meeting but also speaker at this meeting, sponsored by Roche (Topics - Asthma, Copd & IPF) Honorarium given to charity.

May 18 Sept 18 Declare and participate

Ravijyot Saggu



Membership of UKCPA Respiratory group formalised, no financial implication.


Ravijyot Saggu


Direct, financial

Author of an article about inhaler technique, published in July ‘18 in The pharmacist magazine. Honorarium given to charity. Inhaler technique not in scope of update.

http://www.thepharmacist.co.uk/everything-you-need-to-know-about-inhaler-technique/

July 18 Sept 18 Declare and participate

Ravijyot Saggu



Educational sponsorship provided by NAPP to attend the ERS conference.

The event is educational (so travel, food, accommodation where relevant is provided). No honorarium & they are purely educational & non promotional.


Ravijyot Saggu


In direct, financial)

Took part in “Challenges in introducing a new device into pharmacy” advisory board. Honararium to be given to charity.

11.09.18 Sept 18 Declare and participate

Karen Sennett

COPD committee member, GP





Alan Thomas COPD committee, lay member


GUIDANCE NOTES FOR COMPLETION OF THE INTERESTS REGISTER

Relevant dates: Detail here the date the interest arose, the date it was first declared and when it ceased, if applicable. For example, if an individual has

ceased to hold shares or undertake relevant private practice.

interests register chronic obstructive pulmonary disease

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