insulin affordability in wisconsininsulin my father needed to stay alive. the cost shouldn’t...
TRANSCRIPT
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Gary DoughertyDirector, State Government Affairs July 22, 2020American Diabetes Association
INSULIN AFFORDABILITY IN WISCONSIN:Consumer Experiences & Policy Recommendations
Governor‘s Task Force on Reducing Prescription Drug Prices
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INSULIN AFFORDABILITY
Insulinisn’t
optional
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INSULIN AFFORDABILITY
“I watched my parents struggle to afford the insulin my father needed to stay alive. The cost shouldn’t impact someone’s ability to maintain an acceptable quality of life”
J. H., Eau Claire
“I’ve lost my job twice in recent years. Both times I lost my health insurance. The first time, I had to go door to door with different doctors asking for insulin samples. (My husband and I) had to ask really difficult questions like ‘Do we sell the house?’ ‘Do we skip meals to spend less on groceries?’”
D.W-R., Fitchburg
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INSULIN AFFORDABILITY
“The cost of insulin is a real big part of my budget and is a hardship for me to afford on a limited income. This is legal robbery what the big pharmacy companies are doing to us.”
M.L., Milwaukee
“I just recently moved out on my own and often have had to choose between getting my insulin I need to survive and eating dinner. I shouldn’t have to choose between staying alive and treating my incurable illness.”
R.L., Oak Creek
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INSULIN AFFORDABILITY
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INSULIN AFFORDABILITY
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INSULIN AFFORDABILITY
• 439,000 adult Wisconsinites have diagnosed diabetes
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INSULIN AFFORDABILITY
• 439,000 adult Wisconsinites have diagnosed diabetes
• 135,000 more have diabetes, but don’t know it
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INSULIN AFFORDABILITY
• 439,000 adult Wisconsinites have diagnosed diabetes
• 135,000 more have diabetes, but don’t know it• 1,560,000 have prediabetes
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INSULIN AFFORDABILITY
• 439,000 adult Wisconsinites have diagnosed diabetes
• 135,000 more have diabetes, but don’t know it• 1,560,000 have prediabetes• 34,000 newly diagnosed each year
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INSULIN AFFORDABILITY
• 439,000 adult Wisconsinites have diagnosed diabetes
• 135,000 more have diabetes, but don’t know it• 1,560,000 have prediabetes• 34,000 newly diagnosed each year• 2.3x higher medical expenses
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INSULIN AFFORDABILITY
• 439,000 adult Wisconsinites have diagnosed diabetes
• 135,000 more have diabetes, but don’t know it• 1,560,000 have prediabetes• 34,000 newly diagnosed each year• 2.3x higher medical expenses• $4.1 billion in direct medical expenses
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INSULIN AFFORDABILITY
• 439,000 adult Wisconsinites have diagnosed diabetes
• 135,000 more have diabetes, but don’t know it• 1,560,000 have prediabetes• 34,000 newly diagnosed each year• 2.3x higher medical expenses• $4.1 billion in direct medical expenses• $1.4 billion in indirect medical
expenses
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INSULIN AFFORDABILITY
Approximately 5-10% of people with diabetes have type 1
22,000 – 44,000people
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INSULIN AFFORDABILITY
Our Mission:
To prevent and cure diabetes and to improve the lives of all people affected by diabetes
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INSULIN AFFORDABILITYADA Board of Directors resolution (11/2016)
• Substantially increase transparency in pricing
• Ensure no person with diabetes is denied affordable access to insulin.
• Congressional hearings to identify the reasons for the increases in insulin prices and to ensure that all people who use insulin have affordable access.
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INSULIN AFFORDABILITY
+523,000+
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INSULIN AFFORDABILITY
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INSULIN AFFORDABILITYSummary of Key Conclusions:• The current pricing and rebate system
encourages high list prices.• There is a lack of transparency throughout the
insulin supply chain.• People with diabetes are financially harmed by
high list prices and high out-of-pocket costs.• Patient medical care can be adversely affected
by formulary decisions.• The regulatory framework for development and
approval of biosimilar insulins is burdensome for manufacturers.
https://care.diabetesjournals.org/content/diacare/41/6/1299.full.pdf
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INSULIN AFFORDABILITYSummary of Key Recommendations:• Increase pricing transparency throughout the
insulin supply chain.• Lower or remove patient cost-sharing for insulin.• Streamline the biosimilar approval process.• Increase access to health care coverage for all
people with diabetes.
https://www.diabetes.org/sites/default/files/2019-10/insulin-affordability-one.pdf
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INSULIN AFFORDABILITY
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INSULIN AFFORDABILITY
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INSULIN AFFORDABILITY
How much does a vial of insulin cost?
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INSULIN AFFORDABILITY
How much does a vial of insulin cost?
± $300
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INSULIN AFFORDABILITY
How much does it cost to manufacture a vial of insulin?
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INSULIN AFFORDABILITY
How much does it cost to manufacture a vial of insulin?
$3.69 - $6.16
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INSULIN AFFORDABILITY
Why is the cost of insulin so high?
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INSULIN AFFORDABILITY
Why is the cost of insulin so high?
• Lack of transparency
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INSULIN AFFORDABILITY
Why is the cost of insulin so high?
• Lack of transparency• Current pricing and
rebate system
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INSULIN AFFORDABILITY
Why is the cost of insulin so high?
• Lack of transparency• Current pricing and rebate
system• No real competition
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INSULIN AFFORDABILITY
http://main.diabetes.org/dorg/PDFs/2018-insulin-affordability-survey.pdf
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INSULIN AFFORDABILITY
www.insulinhelp.org
If you’re struggling to pay for insulin, ADA can help. We’ve consolidated all the
resources you need so that you can find help, fast.
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INSULIN AFFORDABILITY
States are NOT waiting for the federal government to act
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INSULIN AFFORDABILITY
Colorado Governor Jared Polis signing “first-in-the-nation” insulin co-pay cap bill into law.
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INSULIN AFFORDABILITYCOLORADO - $100 capILLINOIS - $100 capNEW MEXICO – $25 capMAINE – $35 capWEST VIRGINIA – $100 cap UTAH – $30 capWASHINGTON – $100 capNEW YORK – $100 capVIRGINIA - $50 cap
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INSULIN AFFORDABILITY
SB 340Sen. Dave Hansen
AB 411Rep. Jimmy Anderson
Wisconsin
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INSULIN AFFORDABILITY
Common Questions
• Why insulin and not other medications?
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INSULIN AFFORDABILITY
Common Questions
• Why insulin and not other medications?
• Won’t a cap result in higher premiums?
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INSULIN AFFORDABILITY
Legislative Recommendations:
• Ensure access to adequate and affordable health insurance
• Require transparency throughout the insulin supply chain
• Lower or remove patient cost-sharing for insulin• Cap co-pays for insulin• Exempt insulin from the deductible
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INSULIN AFFORDABILITY
Legislative Recommendations:
• Ensure value of co-pay assistance programs apply toward a patient’s deductible
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INSULIN AFFORDABILITY
#EveryDayReality
• More than 34 million Americans have diabetes
• Nearly 7 million of them rely on insulin
• Average price of insulin has nearly tripled between 2002-2013
• One in four are using less insulin than prescribed due to high costs
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