information|network|connected|access at the aliss innovation workshop
DESCRIPTION
This service-design outline concerns the tagging and filtering of the sort of information that helps you live well with a long-term condition. The service has a youth focus.TRANSCRIPT
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Information | Network | Connected | Access
Provides a personalised and intuitive service to support and connect people to information about long term health conditions
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The goal of the idea is to get relevant information around LTCs to the right people
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Kate, 19, has eczema and psoriases. She has never really paid much attention to it as it’s never been really bad but it does make her very self consciousEmily, Kate’s cousin is 14 and goes to Newark High School. She is feeling helpless and has turned to the internet to try and find out how she can support her cousin;
“I found this blog on Psoriases about an hour ago while I was trying to read up on psoriasis and psoriatic arthritis , my cousin has both sadly and I wanted to know everything I could about it. She has been like my sister ever since she came into my life and we are extremely close. It kills me that she is in constant pain and that I cant do anything to help her. She’s had this for about fifteen years now , diagnosed when she was 10 she is only 19 now and feeling like she’s 80 . I
would do anything to take the pain away , so I was wondering if anyone who has dealt with this and been through it could give me any advice.. what helped you the most ? and what can I do ? I hate feeling so powerless can anyone help ?”
“I thought maybe people would think I was stupid because I’m so young. I’m only 14 but I care so much and I can’t stand the feeling of not being able to help her because she is always there for me.”
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We give ALISS;
User emailsFeedback (user insights)User mobile numbers
We need from ALISS;
Infrastructure to facilitate all these services in one space(suggestions welcome)
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More relevant and accurate information around the condition
Collects feedback from the users to improve the content of the services
Onestopshop: Brings together a list of relevant and useful websites in one place
All people with LTCs, families, members, carers can interact with the service
Receive regular updates through text and email therefore this is a sustainable service
Rating system shows Inca is helpfulNCA NCA