information resources - nnlm web viewalso text word search includes a variety of genetic/genomic...
TRANSCRIPT
ABCs OF DNA: Unraveling the Mystery of Genetics Information for Consumers
Information ResourcesResource URL Resource Description
MedlinePlushttps://medlineplus.gov/
Includes several health topic pages on genetic related information such as genetic conditions, genetic testing. Also text word search includes a variety of genetic/genomic information.
Genetics Home Referencehttps://ghr.nlm.nih.gov/
This is a consumer resource to find information about health conditions with a genetic component as well as learning more about genetics.
National Human Genome Research Institutehttps://www.genome.gov/
This is one of the NIH institutes. Lots of information for both professionals and the public including education, ethics, and research.
All of Us Research Programhttps://www.nih.gov/research-training/allofus-research-program
NIH provides information about the All of Us Research Program addressing the goals and the concerns regarding the public’s participation and the role it plays in the Precision Medicine Initiative.
Talking Glossary of Genetic Terms: NHGRIhttps://www.genome.gov/glossary/
From the National Human Genome Research Institute, this site provides help to those without scientific backgrounds to understand terms and concepts used in genetic research.
GTR: Genetic Testing Registryhttp://www.ncbi.nlm.nih.gov/gtr/
Tests for clinical use and genetic research. Individual genes and gene panels. Information submitted by test providers.
My Family Health Portraithttps://familyhistory.hhs.gov/FHH/html/index.html
The family health history tool provided by the Surgeon General.
Carolyn Martin, Consumer Health Coordinator, [email protected] NN/LM/Pacific Northwest Region- https://nnlm.gov/pnr
Resource URL Resource DescriptionDoes it Run In the Family? http://www.geneticalliance.org/publications/fhhtoolkit
A toolkit from the Genetic Alliance to help gather information regarding family health history.
Choosing Wisely http://consumerhealthchoices.org/catalog/making-smart-decisions-about-genetic-testing-acmg/
The American College of Medical Genetics and Genomics and Choosing Wisely campaign collaborated to encourage the general public to dialogue with their doctors regarding genetic testing.
GINA Help (privacy)http://ginahelp.org/
For information about the Genetic Information Non-discrimination Act.
Personal Genetics Education Projecthttp://www.pged.org/
Unlocking Life’s Codehttps://unlockinglifescode.org/
Genetic Literacy Projecthttps://www.geneticliteracyproject.org/
Genetic Alliancehttp://www.geneticalliance.org/
Center for Genetics and Societyhttp://www.geneticsandsociety.org/
Council for Responsible Geneticshttp://www.councilforresponsiblegenetics.org/
Genes in Lifehttp://www.genesinlife.org/
A sampling of websites to learn more about genetics regarding health, societal issues, research, and ethics.
GeneEdhttps://geneed.nlm.nih.gov/
Developed and maintained by the National Library of Medicine (NLM) and the National Human Genome Institute (NHGRI), this resource is for students and teachers in grades 9 - 12 to learn genetics.
CDC Public Health Genomicshttps://www.cdc.gov/genomics/
The CDC provides a whole section on genomics for both the public and professionals.
Carolyn Martin, Consumer Health Coordinator, [email protected] NN/LM/Pacific Northwest Region- https://nnlm.gov/pnr