info sheet - about cure + signature programs
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About CURE
Citizens United for Research in Epilepsy
Our Mission is to CURE epilepsy, transforming and saving millions of lives. We identify and fund
cutting-edge research, challenging scientists worldwide to collaborate and
innovate in pursuit of this goal. Our commitment is unrelenting.
www.CUREepilepsy.org 312.255.1801
CURE has once again received the coveted Four-Star Charity distinction from
Charity Navigator. More than 90% of expenditures directly support our mission.
is the leading nongovernmental agency fully committed to funding research in epilepsy,
raising more than $40M to funding research and other initiatives that are leading the way to a cure for
epilepsy. CURE was founded in 1998 by Susan Axelrod and a small group of mothers of children with
epilepsy who, unwilling to sit back while their children suffered unending seizures and medication therapy,
joined forces to spearhead the search for a cure for epilepsy.
CURE
A global organization, CURE has funded over 200
research projects for emerging and established
researchers in 15 countries around the world.
Since its inception, CURE has been at the forefront
of epilepsy research, funding initiatives targeting
Priority Areas in epilepsy and an innovative
investigator-initiated grant program.
Tireless in its determination, CURE will not stop
until a cure has been found.
Our commitment to epilepsy research
CURE: GLOBAL IMPACT IN EPILEPSY RESEARCH
4% Administration
5% Fundraising
of CURE’s expenditures are
invested in our mission. This is
among the highest percentage
of charities nationwide.
91%
ANNUAL ECONOMIC COST OF EPILEPSY IN THE US
Approximately
~$20 BILLION
CURE
Signature Programs
Our Mission is to CURE epilepsy, transforming and saving millions of lives. We identify and fund
cutting-edge research, challenging scientists worldwide to collaborate and
innovate in pursuit of this goal. Our commitment is unrelenting.
Since its inception, CURE has been at the forefront of epilepsy research, raising more than $40 million
to fund research and other initiatives that will lead the way to a cure for epilepsy.
TREATMENT AND PREVENTION OF
POST-TRAUMATIC EPILEPSY (TAPTE)
EPILEPSY GENETICS
INITIATIVE (EGI) SUDDEN UNEXPECTED DEATH IN
EPILEPSY (SUDEP) INITIATIVE
INFANTILE SPASMS (IS)
INITIATIVE
Pioneering a grant program to inform
future studies, CURE is the leader in
SUDEP research, and has awarded
$3.75M to researchers studying Sudden
Unexpected Death in Epilepsy.
An interactive database where patients'
genetic data is repeatedly analyzed in
hopes to identify the causes of epilepsy,
EGI is bridging the gap between
patients, clinicians and researchers.
In partnership with the U.S. Department
of Defense (DoD); a ‘team science’
program to benefit all affected by post-
traumatic epilepsy (PTE) as a result of
traumatic brain injury (TBI).
To advance new understandings,
therapies and breakthroughs in this
critical space, CURE has awarded over
$4M to Infantile Spasms researchers.