indiana’s universal newborn hearing screening program
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Indiana’s Universal Newborn Hearing Screening Program. Weilin Long, M.A., M.P.A. Indiana State Department of Health Newborn Screening Section. Some of the Key Players Who Are With Me Today:. Charlene Graves , M.D., Medical Director of Indiana State Newborn Screening Programs - PowerPoint PPT PresentationTRANSCRIPT
Indiana’s Universal Newborn Indiana’s Universal Newborn Hearing Screening ProgramHearing Screening Program
Weilin Long, M.A., M.P.A.
Indiana State Department of Health
Newborn Screening Section
Some of the Key Players Who Some of the Key Players Who Are With Me Today:Are With Me Today:
Charlene Graves, M.D., Medical Director of Indiana State Newborn Screening Programs
Cindy Lawrence, M.A.T., Assistant Director of Indiana School for the Deaf Outreach Program
Jane Metzger, M.Aud., Regional Consultant
Molly Pope, M.A.T., Regional Consultant Coordinator
Michelle Wagner-Escobar, M.A., Regional Consultant
HistoryHistory
Professional sensibility/concerns Parent/consumer advocacy IPN’s subcommittee - 1998 Public Law 91-1999 Advisory Committee appointed by the
Governor – 1999-2000 Program preparation and full
implementation – hospital screening - 2000
HistoryHistory
Less than 20 hospitals with UNHS program in 1994
46 with UNHS in 199699 with UNHS in 2000 (94%)102 with UNHS in 2001 (100%)105 with UNHS in 2002 (100%)
Including 2 midwife facilities
UNHS LawUNHS Law
Legislatively mandated program
“… every infant shall be given a physiologic hearing
screening examination at the earliest feasible time
for the detection of hearing impairments”
IC 16-41-17-2
5/1999
Program GoalsProgram Goals
Physically screen all infants in Indiana prior to discharge from hospital;
Perform diagnostic evaluation by three months of age; and
Enroll in early intervention by six months of age
Identify Key PlayersIdentify Key Players
ISDHFirst StepsHospitalsPrimary care physiciansSpecialists/audiologistsPublic health nursesParents/families
TechnologyTechnology
Promote communication Encourage collaborationAdopt NBS follow-up modelsOutreach to local communitiesLearn from other statesDevelop tracking and follow-up data
system
Regional Outreach ProgramRegional Outreach Program
Transit the program from hospital-centered screening program (1st year) to community-based, culturally sensitive program
. MCHB funded
First Transition
8/2001
1
2
4
3
65
Ad
am
s
Ad
ams
Co
Mem
Ho
sp
Allen Lutheran Hosp Parkview Mem St Joe Med Cen
– Ft Wayne
DeKalb DeKalb Mem
Hosp
Dubois Memorial
Hosp &Health Care –Jasper
St JosephHosp – Dea-coness –Huntingburg
Blackford Blackford Co
Hosp
Cass Logansport
Mem Hosp
Clinton St Vincent
Franklin Hosp
Delaware Ball Mem
Hosp
Decatur Decatur
Mem Hosp
Bar
tho
lom
ew
Col
um
bus
Reg
Hos
p
Dearborn Dearborn Hosp
Clark Clark Mem
Hosp
Daviess Daviess
Co Hosp
Clay St Vin-
centClay Co
Elkhart Elkhart Gen
Hosp Goshen Gen
Hosp
Fayette Fayette Mem
Hosp
Floyd Floyd Mem Hosp
Fulton Woodlawn
Hosp
Gibson Gibson Gen Hosp
Grant Marion Gen
Hosp
Greene Greene Co Gen Hosp
Hamilton Riverview
Hosp
Hancock Hancock
MemHosp
Harrison Harrison Co
Hosp
Hendricks Hendricks
CommHosp
Henry Henry Co
Mem Hosp
Howard Howard Comm Hosp St Joe Hosp/Health Care
Ctr - Kokomo
Hu
nti
ng
ton
Par
kvi
ew H
ealt
hC
ente
r
Jackson Memorial Hosp –
Seymour
Jasper Jasper Co
Hosp
Jay Jay Co Hosp
Jefferson King’s Daugthers
Hosp
Johnson Johnson
MemHosp
Kn
ox
Go
od S
amar
itan
Ho
sp
Kosciusko Kosciusko
CommHosp
LaGrange LaGrange Hosp
Lake Comm Hosp of Munster Methodist Hosp – Gary Methodist Hosp –
Merrillville Saint Anthony Med Cen
of Crown Point Saint Catherine Hosp of
East Chicago Saint Margaret Mercy –
Hammond Saint Margaret Mercy –
Dyer Saint Mary's Med Cen -
Hobart
LaPorte LaPorte Hosp St Anthony
Hosp –MichiganCity
Lawrence Bedford
Medical Ctr Dunn Mem
Hosp
Madison Comm Hosp of
Anderson St John Med Cen St Vincent Mercy
Hosp – Elwood
Marion Columbia
Women's Hospof Indpls
Comm Hosp ofIndpls1. East2. North3. South
Methodist Hosp -Indianapolis
Nurse Midwives Riley Hosp - Data
ManagementOffice
St Francis Hos-pital Cen
St Vincent Hosp& Health CareCen
Wishard MemHosp
University Hos-pital
Marshall Comm Hosp
of Bremen St Joe Hosp –
Marshall Co
Mia
mi
Du
kes
Mem
Ho
sp
Monroe Blooming-
ton Hosp
Montgomery St Clares Med
Center
Vigo Columbia Terre Haute Union Hosp – Terre
Haute
Noble Parkview Noble
Hosp
Orange Bloomington
Hosp ofOrange Co
Perry Perry Co
MemHosp
Porter Portage
CommHosp
PorterMemHosp
Pulaski Pulaski Mem
Hosp
Putnam Putnam Co
Hosp
Randolph St Vincent
RandolphHosp
Scott Scott Co Mem
Hosp
St. Joseph Ancilla Health
Care Mem Hosp –
South Bend St Joseph Med
Cen – SouthBend
Starke Starke Mem
Hosp
Steuben Cameron
Mem Hosp
Tippecanoe Lafayette
Home HospTipton
Tipton CoMem Hosp
Vanderburgh Deaconess Hosp St Mary’s Med
Ctr – Evansville St Mary’s River-
side Hosp
Vermillion West Central Comm
Hosp
Morgan Morgan Co Mem Hosp St Francis Hosp –
Mooresville
Wa
ba
sh
Wab
ash
Co
Ho
sp
Washington Washington Co
Mem Hosp
Wayne Reid Hosp &
Healh CareCtr
Wells Bluffton Reg
Med Ctr Caylor-Nickel
Hosp
White White Co Mem
Hosp
Whitley Whitley
Co MemHosp
Ripley Margaret
MaryCommHosp
Sullivan Sullivan Co
CommHosp
Newton
BentonCarroll
Lake
St. Joseph
Wells
Black-ford
Howard
Boone
Warren
FountainMadison
MarionParke
MorganShelby
Rush
Martin
Vigo
UnionFayette
Pike
Owen
Ver
mil
lio
n
Warrick
Vander-burgh
Posey
Dubois
Spencer
Brown
Crawford
Franklin
Floyd
Scott
Jennings
Switzerland
Ohio
Dearborn
Regional Outreach ProgramRegional Outreach Program
Involve community/familyEnsure technical assistance available
to local communitiesPromote timely diagnostic evaluation
and early interventionRefine Indiana’s UNHS through
outreach activities
Centralized Follow-up SystemCentralized Follow-up System
Full-time nurse consultant positionFollow-up with hospital, PCP, PHN,
parent . Not screening . Screening not completed
. Unauthorized refusal . Lost of follow-ups
. Transferred without screening
Second TransitionRonnie Reuveny
3/2002
Current Status Current Status (January – December 2002(January – December 2002))
100% hospitals/birthing institutions participated and reported
98% infants were screened 9.7% did not pass initial screenings 97.5% of those who did not pass initial screening received
repeat screening 1.4% (1131) did not pass repeat screening 1709 referrals were made for not passed screenings - 967
to First Steps; 551 to PCPs; and 191 to specialists 422 referrals were made due to high risk factors – 422 to
First Steps, 203 to PCP, and 73 to specialists
Current Status Current Status (January – December 2002)(January – December 2002)
Out of 967 babies who did not pass hearing screening and were referred to First Steps, 922 have received follow-up services
Age at Authorization Authorized for Hearing
Services
0-3 Month 566 (61%)
4-6 Month 186 (20%)
7-9 Month 170 (18%)
?…?…?…??…?…?…?
What happened to those who did not pass hearing screening before they left the hospital?
Did they receive adequate information about early intervention services?
Were they informed of audiologic resource available in their area?
What happened to those who chose not to use First Step early intervention services?
Third Transition
Another Transition …Another Transition …
Formed a Parent Focus Group
- Develop a Parent Satisfaction Survey
_ Evaluate program and identify needs and gaps
Surveyed 320 licensed audiologists in Indiana
- Identify audiologists available in Indiana
- Outreach, educate and implement audiologic assessment evaluation and report system
10/2002
UNIVERSAL NEWBORN HEARING SCREENING
PARENTS SATISFACTION SURVEY
The purpose of this survey is to find out how satisfied you are with the universal newborn hearing screening
process. Please respond to all questions. Your input is important to continued success of this program. The
information you provide here is strictly confidential and is used for quality assurance purposes only.
Name of Hospital where your baby was born
Baby’s date of birth
Please circle either “yes” or “no” as answer to these questions.
BEFORE THE SCREENING:
1. Was the procedure for the hearing screen explained to you? YES NO
2. Did you understand why your baby was being screened? YES NO
3. Were your questions answered in a way you could understand? YES NO
DURING THE SCREENING:
1. Were you able to observe the screening? YES NO
(if no, please explain why)
2. Were you comfortable with the procedure? YES NO
(if no, please explain why)
AFTER THE SCREENING:
1. Were you given the results of the screen before you left the hospital? YES NO
2. Did you understand the results of the screen? YES NO
(if no, please explain why)
IF YOUR CHILD DID NOT PASS THE SCREENING:
1. Did the screener explain “why” your baby did not pass the hearing screen? YES NO
2. Did the screener appear sensitive, friendly, patient, and neutral while explaining the results?
YES NO
3. Was a follow-up appointment made for further testing? YES NO
4. Was FIRST STEPS information explained to you? YES NO
5. Was the information about FIRST STEPS clear? YES NO
6. Were you given a phone number / person’s name for FIRST STEPS? YES NO
Audiologic Evaluation and Audiologic Evaluation and Report SystemReport System
GuidelinesReport forms and instructionsSystem by regionsTracking and follow-ups
1/2003
Audiologic Evaluation and Audiologic Evaluation and Report SystemReport System
Encourage audiologists to provide information to the ISDH UNHS
- history
- degree and type of hearing loss
- referral informationHelp to identify those who chose not to use
First Steps early intervention services
Ensure FundingEnsure Funding
Increase state NBS fee to include budget for UNHS
Rule change is in process
10/2002 -
Next Transition…Next Transition…
Medical homes
Early intervention to accessible schools
For More Information…For More Information…
Please visit our display booth
THANK YOU!