Indianapolis Discovery Network for Dementia

Malaz Boustani, MD, MPH

Decision Making Process&

Governing in IDND

www.indydiscoverynetwork.com

IDND VISION

• The vision of the Indianapolis Discovery Network for Dementia is to become the international authority in unifying clinical care and clinical research in dementia; thus, decreasing the global burden of dementia (Aging Brain related disability) for future generations.

www.indydiscoverynetwork.com

IDND Mission

• Building a local, diverse, and sustainable Aging Brain “Think-Tank”.

• (a) facilitate conducting dementia (aging brain) implementation research & clinical research activities that meet the local research, clinical, and community needs;

• (b) promote a culture of discovery, cooperation, and team work among its diverse members; and

• (c) disseminate knowledge and innovations in dementia care (aging brain).

www.indydiscoverynetwork.com

IDND Values

• The members of the IDND value – excellence, cooperation, creativity, Integrity, – the role of clinical research as a tool to

enhance the quality of life for individuals suffering from dementia (aging brain).

• They strive to create an environment that facilitates information exchange among diverse, autonomous, and collaborative individuals.

Agenda

• Within the RI support, explore various options to – Group based decision making in IDND– Operational positions within IDND– Leadership positions within IDND– Processes to govern IDND

• Discuss the process of writing the Bylaw of IDND

Ideal Group-Based Decision Making

• Participation: Every member is a stakeholder with a voice

• Transparency: Free flow of information

• Consensus: Nurture diversity

• Responsiveness: Rapid, loud, and clear decision

• Equity: All have opportunities to become involved

• Effectiveness: Resource reallocation to produce best results

• Accountability: Decision-makers responsible to stakeholders

• Strategic vision: Sensitive to the ever-changing local needs

Why?

• Our success as effective and innovative social network

• Local and national Institutions are watching

• Growing number of initiatives and projects

• Maintaining IDND members’ trust

• Directing and leading IDND future

• Prioritizing and managing IDND time and resources

• Managing and sustaining our success

• Preventing or managing future crisis

• Keeping IDND a life for another decade

Next steps

• Conversation and interaction– Email based communication– Consultancy in Nov

• Filling the positions• Writing the Bylaw• Voting• Start governing by January 2011

Governance Models

• Strategic Governance Model

• Policy Governance

• Constituent Governance model

• Business Governance model

Operational Positions within IDND

• Executive Director– Part time to full time paid position– Role– Responsibility– Qualification

• Executive Secretary– Part time to full time paid position– Role– Responsibility– Qualification

Leadership Positions within IDND

• President (volunteer)• Chief Operation Officer (Volunteer)• Chief Research Officer (Volunteer)• Chief Educational Officer (Volunteer)• Chief Community Advocacy Officer (Volunteer)• Chief Information Officer (Volunteer)

Processes to Govern IDND

• Board of Directors– Election process to positions– Serving terms– Voting– Strategic planning– Responsibility

Tools for Collaboration

– Need to establish clear goals (reports addressing achievement of each goal)

– Newsletters, emails keep all parties informed– Link to agency websites– Seamless access to network resources– Multiple organizations-keep own identity– Define organization: who are we & how do people see us– New partners late in the game when already developed; see end

outcome and bring in ALL partners even if not utilized right away (grantee-expectations)

– Terminology– Be open minded and transparent, recognize cultural differences