in person: activities of daily living (adls) · 2019-02-27 · activities of daily living module in...

In Person: Activities of Daily Living (ADLs)

KADL Activities of Daily Living (ADLs) Module

OVERVIEW

Although new to the 2011 collection wave, the Activities of Daily Living (ADLs)

Module expands upon questions first asked during the 1994 telephone interview,

when participants were prompted to report on their experiences receiving

personal care from a family member or friend. Originally asked within the

Caregiving Module, which primarily focused on the participant’s experiences as

a provider of care, questions about receiving care were moved to the Health

Module for the 2005 collection wave before being reconstituted as the

Activities of Daily Living Module in 2011. Far more detailed and expansive than

what has been administered in previous waves, the 2011 rendition of questions

construed "care" as requiring help with particular daily activities and allowed

participants to name multiple helpers across two distinct activity categories.

For the first of these, basic activities of daily living (BADLs), participants

were allowed to report on up to three people who help them with the following

self-care tasks: dressing; walking across a room; bathing or showering; eating;

getting in or out of bed; and using the toilet. For the second category,

instrumental activities of daily living (IADLs), participants were allowed to

report on up to five people who help them with higher-order tasks necessary to

living independently: using a map to figure out how to get around in a strange

place; preparing a hot meal; shopping for groceries; making phone calls; taking

medications; doing housework or yardwork; and managing money. When addressing

each activity of daily living, participants were asked whether they have any

difficulty performing it due to a health or memory problem and, if so, whether

anyone ever helps them with it; if a helper was mentioned, participants were

also asked how long they have been receiving help. The following information

was then recorded for each of the participant’s helpers: the person’s

relationship to them; the number of days in the past month the person provided

help, as well as the average hours of help provided per occurrence; and how far

away the person lives. Data users should note that there was often overlap

between the people named as helpers with BADLs and IADLs.

BRIEF VARIABLE DESCRIPTIONS

Variable ranges reference dataset/codebook order and are not necessarily

alphabetical.

_____________________________________________________________________

KADLSTAT-KADLREL: Module-Level Status Variables

KX600RE: Number of Unique Individuals or Entities

Reported by Participant as Helpers with

Activities of Daily Living (ADLs)

KX500RE-KX503RE: Dressing Self: Associated Difficulty and Whether

Help Received

KX504RE-KX514RE: Walking Across a Room: Associated Difficulty,

Use of Equipment, and Whether Help Received

KX515RE-KX518RE: Bathing or Showering: Associated Difficulty and

Whether Help Received

- 1 -

Wisconsin Longitudinal Study Codebook

KX519RE-KX522RE: Eating: Associated Difficulty and Whether Help

Received

KX523RE-KX532RE: Getting In/Out of Bed: Associated Difficulty,

Use of Equipment, and Whether Help Received

KX533RE-KX536RE: Using the Toilet: Associated Difficulty and


KX601REA-KX603REF: Information About (Up to Three) People Who Help

Participant with Basic Activities of Daily

Living

KX537RE: Using a Map: Associated Difficulty

KX538RE-KX542RE: Preparing a Hot Meal: Associated Difficulty and


KX543RE-KX547RE: Shopping for Groceries: Associated Difficulty

and Whether Help Received

KX548RE-KX552RE: Making Phone Calls: Associated Difficulty and


KX553RE-KX557RE: Taking Medications: Associated Difficulty and


KX604REA-KX606REF: Information About (Up to Three) People Who Help

Participant with Selected Instrumental

Activities of Daily Living (Preparing Meal,

Shopping, Making Phone Calls, and/or Taking

Medications)

KX558RE-KX560RE: Doing Housework or Yardwork: Whether Help

Received

KX561RE-KX565RE: Managing Money: Associated Difficulty and


KX607REA-KX608REF: Information About (Up to Two) People Who Help

Participant with the IADL of Managing Money

kadlstat: Was the Activities of Daily Living Module completed by

Participant alone, with help, or by proxy?

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: y_adlproxy1, y_adlhelp0, capiproxy, y_proxy, y_ivwloc

- 2 -


Frequencies

Value Label Male Female Total

. System missing - NR 2736 2510 5246

-30 NOT PART OF MOSAQ 72 63 135

1 R COMPLETED ALONE 1394 1644 3038

2R COMPLETED ALONE WITH SOMEONE ELSE IN THE ROOM

167 84 251

3 R RECEIVED A LITTLE HELP 48 20 68

4 R RECEIVED A LOT OF HELP 12 5 17

5 HELPER RESPONDED TO ALL ITEMS 0 3 3

6 MODULE PROXY 1 0 1

7 WHOLE INTERVIEW DONE BY PROXY 7 12 19

Note: For many cases a participant’s spouse or other family member was present during the interview.This sometimes resulted in the participant relying on the other person for help in answering some or manyof the questions. At the end of each module the interviewer indicated the amount of help the participantreceived and who provided that help. That assessment is covered by codes 1 through 5. Additionally, acode of 7 indicates that the entire interview was administered to a proxy while a code of 6 indicates thatthis particular module was answered by a proxy but other modules were answered by the participant.

kadlrel: Relationship of Activities of Daily Living Module helper or

proxy to Participant.

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kadlstat, y_adlproxy1, y_adlhelp0, y_adlhelp1, y_adlhelp2_hfn, y_adlhelp3,y_h1fn-y_h4fn, y_pfn, prxyfnam, y_p1fn-y_p5fn, y_prel, prxyrel, y_p1rel-y_p5rel

- 3 -


Frequencies




-4 NOT ASCERTAINED 0 3 3

-2InappropriateInap, (Sampled skip or kadlstat=1,2,-3)

1561 1728 3289

0 SPOUSE 62 14 76

2 BROTHER 0 2 2

7 CARETAKER 0 1 1

8 DAUGHTER 1 10 11

25 FRIEND 1 0 1

26 GRANDDAUGHTER 0 2 2

41 ROMANTIC PARTNER 1 2 3

43 SISTER 0 3 3

45 SISTER-IN-LAW 0 1 1

48 SON 3 2 5

Note: If this module was administered via proxy or if the participant received help answering the questionsin this module then we record the relationship of the proxy/helper to the participant. Although mostparticipants relied on only one helper or proxy for the interview, some had more than one. Thus the valueof the relationship code may vary across the modules.

kx600re: Number of unique individuals and/or entities reported by

Participant as helpers with activities of daily living (ADLs).

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx501re, kx512re, kx516re, kx520re, kx530re, kx534re, kx540re, kx545re, kx550re,kx555re, kx563re, kx601rea, kx602rea, kx603rea, kx604rea, kx605rea, kx606rea, kx607rea, kx608rea, y_GXXname_:1-8

- 4 -


Frequencies





-2

INAPPROPRIATEINAPPROPRIATE (KX501RE != 1 & KX512RE != 1 &KX516RE != 1 & KX520RE != 1 & KX530RE != 1 &KX534RE != 1 & KX540RE != 1 & KX545RE != 1 &KX550RE != 1 & KX555RE != 1 & KX563RE != 1)

1519 1617 3136

1 71 64 135

2 16 48 64

3 16 29 45

4 4 5 9

5 0 3 3

6 0 1 1

Note: The referenced ADLs may include both BADLs (dressing, walking across a room, bathing orshowering, eating, getting in or out of bed, and/or using the toilet) and IADLs (preparing hot meals,shopping for groceries, making telephone calls, and/or taking medications), depending on which activitiesthe participant reported receiving help with. If the participant did not report receiving help with any ofthese BADLs or IADLs, this variable has been assigned a value of "-2". Note: Since reported helpers were allowed to overlap between BADLs and IADLs, this variable may havea value less than the total number of typified helpers named throughout the ADLs Module (seeKX601REA, KX602REA, KX603REA, KX604REA, KX605REA, KX606REA, KX607REA, andKX608REA). If the participant did not provide information on how a helper is related to them (indicatedthey did not know, refused to answer, or responded in a way that could not be coded into a relationshipcategory), that person was not counted as a unique helper; if the participant did not provide relationshipinformation for any of the people named as helpers, this variable has been assigned a value of "-4". Thereference to "entities" in the variable’s name stems from cases where participants decided to discuss (someof) their helpers as a group or entity (e.g. all of the employees who provide care at a nursing home) ratherthan on an individual basis.

kx500re: Because of a health or memory problem, does Participant have

any difficulty dressing, including putting on shoes and socks?

- 5 -


Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: y_GXX014

Frequencies




-3 REFUSED 0 1 1

1 YES 101 97 198

2 NO 1527 1669 3196

3 CAN’T DO 1 1 2

Note: Dressing is a basic activity of daily living; participants were instructed to exclude any difficultiesexpected to last less than three months.

kx501re: Does anyone ever help Participant dress?

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx500re, y_GXX015

Frequencies




-3 REFUSED 1 2 3

-2INAPPROPRIATEINAPPROPRIATE (KX500RE = 2)

1527 1669 3196

1 YES 50 48 98

2 NO 51 49 100

kx502re: Numeric component for about how long Participant has had

help dressing.

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx501re, y_GXX015b_a

- 6 -


Frequencies




-3 REFUSED 1 0 1

-2INAPPROPRIATEINAPPROPRIATE (KX501RE != 1)

1579 1720 3299

1 12 12 24

2 9 7 16

3 8 5 13

4 5 3 8

5 6 4 10

6 4 2 6

7 0 1 1

8 0 3 3

9 0 1 1

10 1 3 4

12 1 3 4

14 0 1 1

16 0 1 1

18 1 1 2

20 1 0 1

36 0 1 1

57 1 0 1

kx503re: Units corresponding to numeric component for about how long

Participant has had help dressing.

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx502re, y_GXX015b_b

- 7 -


Frequencies




-2InappropriateINAPPROPRIATE (KX502RE < 1)

1580 1720 3300

1 DAYS 0 1 1

2 WEEKS 2 1 3

3 MONTHS 10 11 21

4 YEARS 37 35 72


any difficulty walking across a room?


Frequencies




-3 REFUSED 1 0 1

1 YES 82 110 192

2 NO 1544 1653 3197

3 CAN’T DO 2 5 7

Note: Walking across a room is a basic activity of daily living; participants were instructed to exclude anydifficulties expected to last less than three months.

kx505re: Does Participant ever use equipment or devices such as a cane,

walker, or wheelchair when crossing a room?


- 8 -


Frequencies




-3 REFUSED 0 1 1

1 YES 112 173 285

2 NO 1517 1594 3111

kx650re: Does Participant ever use a railing when crossing a room?

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx505re, y_GXX018_1

Frequencies





1517 1595 3112

1 YES 25 47 72

2 NO 87 126 213

kx651re: Does Participant ever use a walker when crossing a room?


- 9 -


Frequencies





1517 1595 3112

1 YES 44 83 127

2 NO 68 90 158

kx652re: Does Participant ever use a cane when crossing a room?


Frequencies





1517 1595 3112

1 YES 83 117 200

2 NO 29 56 85

kx653re: Does Participant ever use crutches when crossing a room?


- 10 -


Frequencies





1517 1595 3112

1 YES 4 4 8

2 NO 108 169 277

kx654re: Does Participant ever use orthopedic shoes when crossing a

room?


Frequencies





1517 1595 3112

1 YES 8 15 23

2 NO 104 158 262

kx655re: Does Participant ever use a (leg or back) brace when crossing a

room?


- 11 -


Frequencies





1517 1595 3112

1 YES 6 10 16

2 NO 106 163 269

kx656re: Does Participant ever use a prosthesis when crossing a room?


Frequencies





1517 1595 3112

-1 DON’T KNOW 1 1 2

1 YES 1 2 3

2 NO 110 170 280

kx657re: Does Participant ever use oxygen or a respirator when crossing

a room?


- 12 -


Frequencies





1517 1595 3112

1 YES 8 9 17

2 NO 104 164 268

kx658re: Does Participant ever use furniture or walls when crossing a

room?


Frequencies





1517 1595 3112

1 YES 38 63 101

2 NO 74 110 184

kx659re: Does Participant ever use a wheelchair or cart when crossing a

room?


- 13 -


Frequencies





1517 1595 3112

1 YES 26 47 73

2 NO 86 126 212

kx660re: Does Participant ever use some other form of equipment when

crossing a room?


Frequencies





1517 1595 3112


1 YES 0 1 1

2 NO 110 169 279

Note: Here, "other" signifies a form of equipment distinct from a railing, walker, cane, crutches,orthopedic shoes, (leg or back) brace, prosthesis, oxygen/respirator, furniture/walls, or a wheelchair/cart.

kx512re: Does anyone ever help Participant get across a room?

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx504re, kx505re, y_GXX020

- 14 -


Frequencies





-2INAPPROPRIATEINAPPROPRIATE (KX504RE = 2 & KX505RE != 1)

1487 1569 3056

1 YES 28 56 84

2 NO 114 142 256


help walking across a room.


- 15 -


Frequencies





1601 1712 3313


1 7 8 15

2 3 11 14

3 4 4 8

4 3 6 9

5 3 6 9

6 3 2 5

7 0 3 3

8 0 4 4

9 0 2 2

10 2 2 4

12 0 1 1

14 0 1 1

16 0 1 1

20 0 2 2

36 0 1 1

60 0 1 1


Participant has had help walking across a room.


- 16 -


Frequencies





1604 1713 3317

2 WEEKS 0 1 1

3 MONTHS 5 10 15

4 YEARS 20 44 64


any difficulty bathing or showering?


Frequencies




-3 REFUSED 0 1 1


1 YES 50 77 127

2 NO 1579 1687 3266

3 CAN’T DO 0 1 1

4 DON’T DO 0 1 1

Note: Bathing or showering is a basic activity of daily living; participants were instructed to exclude anydifficulties expected to last less than three months.

- 17 -


kx516re: Does anyone ever help Participant bathe?


Frequencies




-3 REFUSED 0 1 1


1579 1687 3266

1 YES 21 43 64

2 NO 29 37 66


help bathing.


- 18 -


Frequencies





1608 1725 3333

1 3 5 8

2 3 9 12

3 3 3 6

4 2 4 6

5 4 2 6

6 4 2 6

7 0 1 1

8 0 2 2

9 1 3 4

10 1 3 4

12 0 2 2

14 0 1 1

15 0 1 1

16 0 1 1

18 0 1 1

25 0 1 1

30 0 1 1

36 0 1 1


Participant has had help bathing.


- 19 -


Frequencies





1608 1725 3333

2 WEEKS 2 1 3

3 MONTHS 5 11 16

4 YEARS 14 31 45


any difficulty eating, such as cutting up their food?


Frequencies




-3 REFUSED 0 1 1

1 YES 33 31 64

2 NO 1596 1736 3332

Note: Eating is a basic activity of daily living; participants were instructed to exclude any difficultiesexpected to last less than three months.

kx520re: Does anyone ever help Participant eat?


- 20 -


Frequencies




-3 REFUSED 0 1 1


1596 1736 3332

1 YES 15 14 29

2 NO 18 17 35


help eating.


- 21 -


Frequencies





1614 1754 3368


1 2 3 5

2 4 3 7

3 2 0 2

4 2 1 3

5 0 2 2

6 2 1 3

10 1 1 2

12 0 1 1

13 1 0 1

15 1 0 1

18 0 1 1


Participant has had help eating.


- 22 -


Frequencies





1614 1755 3369

2 WEEKS 1 1 2

3 MONTHS 3 5 8

4 YEARS 11 7 18


any difficulty getting in or out of bed?


Frequencies




-3 REFUSED 0 1 1


1 YES 38 55 93

2 NO 1591 1709 3300

3 CAN’T DO 0 1 1

4 DON’T DO 0 1 1

Note: Getting in and out of bed is a basic activity of daily living; participants were instructed to excludeany difficulties expected to last less than three months.

- 23 -


kx524re: Does Participant ever use equipment or devices such as a cane,

walker, or railing when getting in or out of bed?


Frequencies




-3 REFUSED 0 1 1

1 YES 36 59 95

2 NO 1593 1708 3301

kx670re: First piece of equipment Participant mentioned using when

getting in or out of bed.

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx524re, y_GXX027_a

- 24 -


Frequencies





1594 1709 3303

1 RAILING 11 14 25

2 WALKER 7 20 27

3 CANE 9 10 19

4 CRUTCHES 0 1 1

5 ORTHOPEDIC SHOES 0 1 1

9 FURNITURE/WALLS 3 7 10

10 WHEELCHAIR/CART 2 2 4

11 OTHER 3 4 7

kx671re: Second piece of equipment Participant mentioned using when


Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx524re, y_GXX027_b

- 25 -


Frequencies




-2INAPPROPRIATEINAPPROPRIATE (KX524RE != 1 | NO 2ND PIECE OFEQUIPMENT MENTIONED)

1618 1744 3362

1 RAILING 1 1 2

2 WALKER 3 3 6

3 CANE 1 8 9

6 BRACE (LEG OR BACK) 0 1 1

7 PROSTHESIS 1 0 1

8 OXYGEN/RESPIRATOR 1 0 1



11 OTHER 3 5 8

kx672re: Third piece of equipment Participant mentioned using when


Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx524re, y_GXX027_c

- 26 -


Frequencies




-2INAPPROPRIATEINAPPROPRIATE (KX524RE != 1 | NO 3RD PIECE OFEQUIPMENT MENTIONED)

1623 1761 3384

2 WALKER 0 1 1

3 CANE 1 0 1

8 OXYGEN/RESPIRATOR 1 2 3



11 OTHER 0 2 2

kx673re: Fourth piece of equipment Participant mentioned using when


Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx524re, y_GXX027_d

Frequencies




-2INAPPROPRIATEINAPPROPRIATE (KX524RE != 1 | NO 4TH PIECE OFEQUIPMENT MENTIONED)

1626 1767 3393

4 CRUTCHES 1 0 1



- 27 -


kx674re: Fifth piece of equipment Participant mentioned using when


Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx524re, y_GXX027_e

Frequencies





1627 1768 3395


kx675re: Sixth piece of equipment Participant mentioned using when


Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx524re, y_GXX027_f

Frequencies





1629 1768 3397

kx530re: Does anyone ever help Participant get in or out of bed?


- 28 -


Frequencies




-3 REFUSED 0 1 1


1591 1709 3300

1 YES 16 32 48

2 NO 22 26 48


help getting in or out of bed.


- 29 -


Frequencies





1613 1736 3349

1 2 3 5

2 1 2 3

3 4 4 8

4 2 2 4

5 5 3 8

6 0 3 3

7 1 2 3

8 0 1 1

9 0 3 3

10 1 4 5

14 0 1 1

16 0 1 1

18 0 1 1

25 0 1 1

36 0 1 1


Participant has had help getting in or out of bed.


- 30 -


Frequencies





1613 1736 3349

3 MONTHS 3 13 16

4 YEARS 13 19 32


any difficulty using the toilet, including getting up and down?


Frequencies




-3 REFUSED 0 1 1

1 YES 44 68 112

2 NO 1584 1698 3282

3 CAN’T DO 1 1 2

Note: Using the toilet is a basic activity of daily living; participants were instructed to exclude anydifficulties expected to last less than three months.

kx534re: Does anyone ever help Participant use the toilet?


- 31 -


Frequencies





1584 1698 3282


1 YES 10 20 30

2 NO 35 49 84


help using the toilet.


- 32 -


Frequencies





1619 1748 3367

1 2 1 3

2 1 3 4

3 2 3 5

4 1 2 3

5 2 0 2

6 0 3 3

7 1 1 2

8 0 1 1

10 1 2 3

16 0 1 1

18 0 1 1

24 0 1 1

36 0 1 1


Participant has had help using the toilet.


- 33 -


Frequencies





1619 1748 3367

3 MONTHS 1 6 7

4 YEARS 9 14 23

kx601rea: Relationship to Participant of person who most often helps

them with selected basic activities of daily living (BADLs).

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx501re, kx512re, kx516re, kx520re, kx530re, kx534re, y_GXX032_1,y_GXX032ng_1_r, c_y_GXX032ng_1_r

Frequencies





-3 REFUSED 1 0 1

-2

INAPPROPRIATEINAPPROPRIATE (KX501RE != 1 & KX512RE != 1 &KX516RE != 1 & KX520RE != 1 & KX530RE != 1 &KX534RE != 1)

1562 1672 3234


1 HUSBAND 0 35 35

3 MALE PARTNER/LOVER 0 4 4

4 SON 1 6 7

9 (GREAT) GRANDSON 0 1 1

31 WIFE 48 0 48

- 34 -


33 FEMALE PARTNER/LOVER 0 1 1

34 DAUGHTER 1 9 10

36 SISTER 0 3 3

39 (GREAT) GRANDDAUGHTER 0 2 2

50 NIECE 0 1 1

73 PARTNER/LOVER, GENDER UNKNOWN 1 1 2

91 FRIEND, GENDER UNKNOWN 3 4 7

107 MULTIPLE CAREGIVERS, FRIENDS 0 1 1

108 MEDICAL PROFESSIONALS 0 2 2

119 CARETAKER, GENDER UNKNOWN 0 1 1

170EMPLOYEE(S) HIRED BY PARTICIPANT OR THEIR SPOUSE

3 2 5

171EMPLOYEE(S) HIRED BY PARTICIPANT’S SON/DAUGHTER

0 3 3

173 EMPLOYEE(S) OF (CARE) FACILITY 7 19 26

Note: The referenced BADLs may include one or more of the following, depending on which activities theparticipant reported receiving help with: dressing (KX501RE), walking across a room (KX512RE),bathing or showering (KX516RE), eating (KX520RE), getting in or out of bed (KX530RE), and/or usingthe toilet (KX534RE). If the participant did not report receiving help with any of these BADLs, thisvariable has been assigned a value of "-2".

kx601reb: Roster identification number of spouse/partner, child, or

sibling who most often helps Participant with selected basic activities of

daily living (BADLs).

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx601rea, y_GXX032_1, y_GXX032na_1, y_GXX032nb_1, y_GXX032nc_1

- 35 -


Frequencies





-2INAPPROPRIATEINAPPROPRIATE (KX601REA != 1, 3, 4, 6, 31, 33, 34, 36,OR 73)

1578 1709 3287

101 1 6 7

103 1 2 3

104 0 1 1

105 0 2 2

106 0 4 4

201 47 37 84

202 1 2 3

301 0 1 1

304 0 1 1

305 0 1 1

Note: The referenced BADLs may include one or more of the following, depending on which activities theparticipant reported receiving help with: dressing (KX501RE), walking across a room (KX512RE),bathing or showering (KX516RE), eating (KX520RE), getting in or out of bed (KX530RE), and/or usingthe toilet (KX534RE). If the participant did not report receiving help with any of these BADLs, thisvariable has been assigned a value of "-2". Note: 100s are Child Roster ID Numbers200s are Spouse/Partner Roster ID Numbers300s are Sibling Roster ID Numbers

kx601reg: Roster identification number of child or sibling who hired

person that most often helps Participant with selected basic activities of


Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx601rea, y_GXX032_1, y_GXX032na_1, y_GXX032nb_1

- 36 -


Frequencies




-2INAPPROPRIATEINAPPROPRIATE (KX601REA != 171 OR 172)

1629 1765 3394

101 0 2 2

103 0 1 1


kx601rec: Does insurance help pay for the hired person who most often

helps Participant with selected basic activities of daily living (BADLs)?

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx601rea, y_GXX032_1, y_GXX032A_1

Frequencies





1619 1747 3366


1 YES 4 9 13

2 NO 4 10 14

Note: This variable is only applicable to participants who receive most of their help with BADLs fromemployees of a facility or people whom they or their spouse hired (see KX601REA). Note: The BADLs referenced by this variable may include one or more of the following, depending on

- 37 -


which activities the participant reported receiving help with: dressing (KX501RE), walking across a room(KX512RE), bathing or showering (KX516RE), eating (KX520RE), getting in or out of bed (KX530RE),and/or using the toilet (KX534RE). If the participant did not report receiving help with any of theseBADLs, this variable has been assigned a value of "-2".

kx601red: Number of days in the past month Participant was helped by

the person who most often helps them with selected basic activities of


Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx601rea, y_GXX070_1

- 38 -


Frequencies




-2InappropriateINAPPROPRIATE (KX601REA < 0)

1565 1673 3238

0 NONE 1 3 4

1 1 1 2

2 4 1 5

3 3 4 7

4 4 6 10

5 0 7 7

6 1 1 2

7 0 1 1

8 1 4 5

10 3 8 11

12 0 2 2

15 3 1 4

18 0 1 1

20 1 3 4

24 1 1 2

25 1 1 2

30 16 25 41

31 24 25 49


- 39 -


kx601ree: Typical hours of help provided per day by person who most

often helps Participant with selected basic activities of daily living

(BADLs).


Frequencies





1565 1673 3238


0 NONE 20 14 34

1 12 25 37

2 9 11 20

3 3 10 13

4 2 7 9

5 2 2 4

6 1 3 4

8 0 2 2

10 1 1 2

12 2 1 3

14 1 1 2

16 0 3 3

24 9 11 20

Note: This variable’s estimate is exclusive to days on which the participant is helped by the referencedperson (see KX601RED for the number of days help was provided in the past month). Note: The BADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: dressing (KX501RE), walking across a room(KX512RE), bathing or showering (KX516RE), eating (KX520RE), getting in or out of bed (KX530RE),

- 40 -


and/or using the toilet (KX534RE). If the participant did not report receiving help with any of theseBADLs, this variable has been assigned a value of "-2".

kx601ref: Distance between Participant’s residence and that of the

person who most often helps them with selected basic activities of daily

living (BADLs).


Frequencies





1565 1673 3238


1 LIVE IN THE SAME RESIDENCE 57 69 126

2 LESS THAN 20 MINUTES APART 1 14 15

3 BETWEEN 20 AND 60 MINUTES APART 2 7 9

4 BETWEEN 1 AND 2 HOURS APART 1 1 2

5 MORE THAN 2 HOURS APART 0 1 1


kx602rea: Relationship to Participant of person who second most

frequently helps them with selected basic activities of daily living

(BADLs).

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx601rea, y_GXX035_1, y_GXX032_2, y_GXX032ng_2_r, c_y_GXX032ng_2_r

- 41 -


Frequencies




-2

INAPPROPRIATEINAPPROPRIATE (KX501RE != 1 & KX512RE != 1 &KX516RE != 1 & KX520RE != 1 & KX530RE != 1 &KX534RE != 1 | NO 2ND HELPER REPORTED)

1611 1729 3340


1 HUSBAND 0 5 5

4 SON 4 3 7

6 BROTHER 1 1 2


11 BROTHER-IN-LAW 1 0 1

20 NEPHEW 0 1 1

31 WIFE 2 0 2

34 DAUGHTER 3 8 11

36 SISTER 0 1 1


40 DAUGHTER-IN-LAW 0 2 2


51 FEMALE FRIEND 0 1 1




2 1 3


Note: The referenced BADLs may include one or more of the following, depending on which activities theparticipant reported receiving help with: dressing (KX501RE), walking across a room (KX512RE),bathing or showering (KX516RE), eating (KX520RE), getting in or out of bed (KX530RE), and/or usingthe toilet (KX534RE). If the participant did not report receiving help with any of these BADLs, this

- 42 -


variable has been assigned a value of "-2".


sibling who second most frequently helps Participant with selected basic

activities of daily living (BADLs).


Frequencies





1619 1750 3369

101 0 4 4

102 3 5 8

103 1 1 2

104 2 0 2

105 1 1 2

201 2 5 7

302 1 1 2

305 0 1 1


- 43 -



person that second most frequently helps Participant with selected basic



Frequencies





1629 1768 3397


kx602rec: Does insurance help pay for the hired person who second most

frequently helps Participant with selected basic activities of daily living

(BADLs)?


- 44 -


Frequencies





1625 1766 3391

1 YES 2 1 3

2 NO 2 1 3

Note: This variable is only applicable to participants who second most frequently receive help withBADLs from employees of a facility or people whom they or their spouse hired (see KX602REA). Note: The BADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: dressing (KX501RE), walking across a room(KX512RE), bathing or showering (KX516RE), eating (KX520RE), getting in or out of bed (KX530RE),and/or using the toilet (KX534RE). If the participant did not report receiving help with any of theseBADLs, this variable has been assigned a value of "-2".


the person who second most frequently helps them with selected basic



- 45 -


Frequencies





1611 1730 3341


0 NONE 0 2 2

1 2 4 6

2 0 6 6

3 2 1 3

4 3 3 6

5 0 2 2

6 1 2 3

7 0 1 1

8 3 3 6

10 1 3 4

12 0 1 1

15 1 0 1

20 1 2 3

30 0 3 3

31 3 5 8


- 46 -


kx602ree: Typical hours of help provided per day by person who second

most frequently helps Participant with selected basic activities of daily

living (BADLs).


Frequencies





1611 1730 3341


0 NONE 1 7 8

1 6 12 18

2 4 7 11

3 1 2 3

4 2 3 5

5 0 2 2

6 1 1 2

7 0 1 1

18 0 2 2

24 1 1 2

Note: This variable’s estimate is exclusive to days on which the participant is helped by the referencedperson (see KX602RED for the number of days help was provided in the past month). Note: The BADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: dressing (KX501RE), walking across a room(KX512RE), bathing or showering (KX516RE), eating (KX520RE), getting in or out of bed (KX530RE),and/or using the toilet (KX534RE). If the participant did not report receiving help with any of theseBADLs, this variable has been assigned a value of "-2".

- 47 -



person who second most frequently helps them with selected basic



Frequencies





1611 1730 3341








kx603rea: Relationship to Participant of person who third most

frequently helps them with selected basic activities of daily living

(BADLs).

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx601rea, kx602rea, y_GXX035_2, y_GXX032_3, y_GXX032ng_3_r, c_y_GXX032ng_3_r

- 48 -


Frequencies




-2

INAPPROPRIATEINAPPROPRIATE (KX501RE != 1 & KX512RE != 1 &KX516RE != 1 & KX520RE != 1 & KX530RE != 1 &KX534RE != 1 | NO 3RD HELPER REPORTED)

1621 1749 3370

4 SON 4 6 10


10 SON-IN-LAW 0 1 1

20 NEPHEW 1 0 1

34 DAUGHTER 2 4 6



50 NIECE 0 1 1

79 (GREAT) GRANDCHILD, GENDER UNKNOWN 0 1 1


107 MULTIPLE CAREGIVERS, FRIENDS 0 1 1



sibling who third most frequently helps Participant with selected basic



- 49 -


Frequencies





1623 1758 3381

101 3 2 5

102 0 3 3

103 2 4 6

105 0 1 1

106 1 0 1



person that third most frequently helps Participant with selected basic



Frequencies





1629 1768 3397

- 50 -



kx603rec: Does insurance help pay for the hired person who third most

frequently helps Participant with selected basic activities of daily living

(BADLs)?


Frequencies





1629 1768 3397

Note: This variable is only applicable to participants who third most frequently receive help with BADLsfrom employees of a facility or people whom they or their spouse hired (see KX603REA). Note: The BADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: dressing (KX501RE), walking across a room(KX512RE), bathing or showering (KX516RE), eating (KX520RE), getting in or out of bed (KX530RE),and/or using the toilet (KX534RE). If the participant did not report receiving help with any of theseBADLs, this variable has been assigned a value of "-2".


the person who third most frequently helps them with selected basic



- 51 -


Frequencies





1621 1749 3370

0 NONE 1 4 5

1 1 3 4

3 1 1 2

4 1 3 4

5 0 2 2

6 0 2 2

7 0 1 1

8 0 1 1

15 1 1 2

31 3 1 4


kx603ree: Typical hours of help provided per day by person who third

most frequently helps Participant with selected basic activities of daily

living (BADLs).


- 52 -


Frequencies





1621 1749 3370


0 NONE 1 3 4

1 3 3 6

2 1 5 6

3 1 5 6

4 0 1 1

5 1 0 1

7 0 1 1

10 1 0 1

Note: This variable’s estimate is exclusive to days on which the participant is helped by the referencedperson (see KX603RED for the number of days help was provided in the past month). Note: The BADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: dressing (KX501RE), walking across a room(KX512RE), bathing or showering (KX516RE), eating (KX520RE), getting in or out of bed (KX530RE),and/or using the toilet (KX534RE). If the participant did not report receiving help with any of theseBADLs, this variable has been assigned a value of "-2".


person who third most frequently helps them with selected basic activities

of daily living (BADLs).


- 53 -


Frequencies





1621 1749 3370








any difficulty using a map to figure out how to get around in a strange

place?


- 54 -


Frequencies




-3 REFUSED 0 1 1


1 YES 34 105 139

2 NO 1581 1585 3166

3 CAN’T DO 3 8 11

4 DON’T DO 9 63 72

Note: Participants were instructed to exclude any difficulties expected to last less than three months.


any difficulty preparing a hot meal?


Frequencies




-3 REFUSED 0 1 1


1 YES 25 45 70

2 NO 1533 1696 3229

3 CAN’T DO 2 4 6

4 DON’T DO 66 22 88

Note: Preparing a hot meal is an instrumental activity of daily living; participants were instructed toexclude any difficulties expected to last less than three months.

- 55 -


kx539re: Is a health or memory problem the reason Participant cannot

or does not prepare hot meals?


Frequencies




-2INAPPROPRIATEINAPPROPRIATE (KX538RE != 3 OR 4)

1561 1742 3303

1 YES 7 14 21

2 NO 61 12 73

kx540re: Does anyone help Participant prepare hot meals?


Frequencies




-3 REFUSED 0 1 1

-2INAPPROPRIATEINAPPROPRIATE (KX538RE = 2 | KX539RE = 2)

1594 1708 3302


1 YES 23 38 61

2 NO 11 21 32

- 56 -



help preparing a hot meal.


Frequencies





1606 1730 3336


1 - 2 4 9 13

3 - 4 3 11 14

5 - 10 6 8 14

12 - 36 3 9 12

39 - 99 6 1 7


Participant has had help preparing a hot meal.


- 57 -


Frequencies





1607 1730 3337

2 WEEKS 0 1 1

3 MONTHS 3 8 11

4 YEARS 19 29 48


any difficulty shopping for groceries?


Frequencies




-3 REFUSED 0 1 1


1 YES 35 80 115

2 NO 1539 1646 3185

3 CAN’T DO 3 5 8

4 DON’T DO 50 35 85

Note: Shopping for groceries is an instrumental activity of daily living; participants were instructed toexclude any difficulties expected to last less than three months.

- 58 -



or does not shop for groceries?


Frequencies





1576 1728 3304

1 YES 18 25 43

2 NO 35 15 50

kx545re: Does anyone help Participant shop for groceries?


Frequencies




-3 REFUSED 2 1 3


1574 1661 3235


1 YES 35 74 109

2 NO 16 29 45

- 59 -



help shopping for groceries.


Frequencies





1594 1694 3288


1 10 12 22

2 - 3 7 16 23

4 - 6 9 20 29

7 - 15 4 17 21

18 - 42 5 8 13


Participant has had help shopping for groceries.


- 60 -


Frequencies





1594 1695 3289

2 WEEKS 0 1 1

3 MONTHS 5 12 17

4 YEARS 30 60 90


any difficulty making telephone calls?


Frequencies




-3 REFUSED 0 1 1

1 YES 34 34 68

2 NO 1592 1731 3323

4 DON’T DO 3 2 5

Note: Making telephone calls is an instrumental activity of daily living; participants were instructed toexclude any difficulties expected to last less than three months.


or does not make telephone calls?


- 61 -


Frequencies





1626 1766 3392

1 YES 3 1 4

2 NO 0 1 1

kx550re: Does anyone help Participant make telephone calls?


Frequencies




-3 REFUSED 0 1 1


1592 1732 3324

1 YES 29 22 51

2 NO 8 13 21


help making telephone calls.


- 62 -


Frequencies





1600 1746 3346

1 9 5 14

2 3 6 9

3 3 4 7

4 3 1 4

5 5 1 6

6 2 1 3

7 1 0 1

8 0 1 1

10 1 1 2

12 0 1 1

15 1 1 2

18 1 0 1


Participant has had help making telephone calls.


- 63 -


Frequencies





1600 1746 3346

2 WEEKS 0 1 1

3 MONTHS 3 3 6

4 YEARS 26 18 44


any difficulty taking medications?


Frequencies




-3 REFUSED 0 1 1

1 YES 32 25 57

2 NO 1568 1713 3281

3 CAN’T DO 0 2 2

4 DON’T DO 29 27 56

Note: Taking medications is an instrumental activity of daily living; participants were instructed toexclude any difficulties expected to last less than three months.

kx553rea: Would Participant have any difficulty taking medications if

they needed to do so?


- 64 -


Frequencies





1600 1741 3341

1 YES 0 1 1

2 NO 29 26 55

Note: Taking medications is an instrumental activity of daily living; participants were instructed toexclude any difficulties expected to last less than three months.


take medications or would have difficulty if they needed to do so?

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx553re, kx553rea, y_GXX052

Frequencies




-2INAPPROPRIATEINAPPROPRIATE (KX553RE != 3 OR 4 | KX553RE = 4 &KX553REA != 1)

1629 1765 3394

1 YES 0 1 1

2 NO 0 2 2

kx555re: Does anyone help Participant with taking medications?

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx553re, kx553rea, kx554re, y_GXX053

- 65 -


Frequencies




-3 REFUSED 0 1 1

-2INAPPROPRIATEINAPPROPRIATE (KX553RE = 2 | KX553REA = -3, -1, OR2 | KX554RE = 2)

1597 1741 3338

1 YES 19 16 35

2 NO 13 10 23


help taking medications.


- 66 -


Frequencies





1610 1752 3362

1 3 1 4

2 2 5 7

3 3 3 6

4 2 0 2

5 2 1 3

6 1 2 3

7 0 1 1

8 1 1 2

10 2 1 3

14 0 1 1

15 1 0 1

24 1 0 1

25 1 0 1


Participant has had help taking medications.


- 67 -


Frequencies





1610 1752 3362

3 MONTHS 1 2 3

4 YEARS 18 14 32


them with selected instrumental activities of daily living (IADLs).

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx540re, kx545re, kx550re, kx555re, y_GXX054_4, y_GXX054ng_4_r, c_y_GXX054ng_4_r

- 68 -


Frequencies





-2INAPPROPRIATEINAPPROPRIATE (KX540RE != 1 & KX545RE != 1 &KX550RE != 1 & KX555RE != 1)

1562 1671 3233

1 HUSBAND 0 36 36

4 SON 4 10 14

31 WIFE 47 0 47

34 DAUGHTER 3 22 25

36 SISTER 1 4 5




95 OTHER NON-RELATIVE, GENDER UNKNOWN 0 1 1




1 1 2

171EMPLOYEE(S) HIRED BY PARTICIPANT’S SON/DAUGHTER

0 3 3


Note: The referenced IADLs may include one or more of the following, depending on which activities theparticipant reported receiving help with: preparing hot meals (KX540RE), shopping for groceries(KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). If theparticipant did not report receiving help with any of these IADLs, this variable has been assigned a valueof "-2". Note: Some of the people participants reported as helping them with IADLs may also have been named ashelpers with BADLs (see KX601REA, KX602REA, and KX603REA). For a count of the uniqueindividuals or entities reported as helpers with activities of daily living (ADLs), please see KX600RE.

- 69 -



sibling who most often helps Participant with selected instrumental

activities of daily living (IADLs).


Frequencies





1574 1696 3270

101 3 14 17

102 2 5 7

103 1 7 8

104 0 1 1

105 1 1 2

106 0 3 3

107 0 1 1

201 47 35 82

202 0 1 1

301 1 2 3

302 0 1 1

309 0 1 1

Note: The referenced IADLs may include one or more of the following, depending on which activities theparticipant reported receiving help with: preparing hot meals (KX540RE), shopping for groceries(KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). If theparticipant did not report receiving help with any of these IADLs, this variable has been assigned a valueof "-2". Note: 100s are Child Roster ID Numbers200s are Spouse/Partner Roster ID Numbers300s are Sibling Roster ID Numbers

- 70 -



person that most often helps Participant with selected instrumental



Frequencies





1629 1765 3394

101 0 1 1

102 0 1 1

103 0 1 1


kx604rec: Does insurance help pay for the hired person who most often

helps Participant with selected instrumental activities of daily living

(IADLs)?

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx604rea, y_GXX054_4, y_GXX054a_4

- 71 -


Frequencies




-3 REFUSED 0 1 1


1624 1757 3381

1 YES 2 6 8

2 NO 3 4 7

Note: This variable is only applicable to participants who receive most of their help with IADLs fromemployees of a facility or people whom they or their spouse hired (see KX604REA). Note: The IADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: preparing hot meals (KX540RE), shoppingfor groceries (KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). Ifthe participant did not report receiving help with any of these IADLs, this variable has been assigned avalue of "-2".


the person who most often helps them with selected instrumental



- 72 -


Frequencies





1562 1672 3234


0 NONE 2 4 6

1 0 1 1

2 1 6 7

3 1 4 5

4 2 12 14

5 3 5 8

6 3 0 3

7 0 1 1

8 0 8 8

10 0 5 5

12 1 1 2

14 1 0 1

15 3 2 5

16 0 1 1

20 4 2 6

24 0 1 1

25 0 1 1

30 17 23 40

31 24 17 41

Note: The referenced IADLs may include one or more of the following, depending on which activities theparticipant reported receiving help with: preparing hot meals (KX540RE), shopping for groceries(KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). If theparticipant did not report receiving help with any of these IADLs, this variable has been assigned a value

- 73 -


of "-2".


often helps Participant with selected instrumental activities of daily living

(IADLs).


Frequencies





1562 1672 3234


0 NONE 8 3 11

1 19 31 50

2 8 18 26

3 2 12 14

4 2 4 6

5 1 4 5

6 3 4 7

8 2 5 7

12 1 1 2

14 1 0 1

16 1 2 3

24 12 8 20

Note: This variable’s estimate is exclusive to days on which the participant is helped by the referencedperson (see KX604RED for the number of days help was provided in the past month). Note: The IADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: preparing hot meals (KX540RE), shoppingfor groceries (KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). If

- 74 -


the participant did not report receiving help with any of these IADLs, this variable has been assigned avalue of "-2".


person who most often helps them with selected instrumental activities of

daily living (IADLs).


Frequencies





1562 1672 3234







Note: The referenced IADLs may include one or more of the following, depending on which activities theparticipant reported receiving help with: preparing hot meals (KX540RE), shopping for groceries(KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). If theparticipant did not report receiving help with any of these IADLs, this variable has been assigned a valueof "-2".


frequently helps them with selected instrumental activities of daily living

(IADLs).


- 75 -


Frequencies




-2

INAPPROPRIATEINAPPROPRIATE (KX540RE != 1 & KX545RE != 1 &KX550RE != 1 & KX555RE != 1 | NO 2ND HELPER REPORTED)

1616 1722 3338

1 HUSBAND 0 3 3

4 SON 3 6 9

6 BROTHER 0 1 1


10 SON-IN-LAW 0 1 1

15 STEP-SON 0 1 1

34 DAUGHTER 4 13 17

36 SISTER 1 1 2


50 NIECE 0 1 1

51 FEMALE FRIEND 1 0 1


114 COUSIN 0 1 1



0 3 3


Note: The referenced IADLs may include one or more of the following, depending on which activities theparticipant reported receiving help with: preparing hot meals (KX540RE), shopping for groceries(KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). If theparticipant did not report receiving help with any of these IADLs, this variable has been assigned a valueof "-2". Note: Some of the people participants reported as helping them with IADLs may also have been named ashelpers with BADLs (see KX601REA, KX602REA, and KX603REA). For a count of the unique

- 76 -


individuals or entities reported as helpers with activities of daily living (ADLs), please see KX600RE.


sibling who second most frequently helps Participant with selected

instrumental activities of daily living (IADLs).


Frequencies





1621 1744 3365


101 3 7 10

102 3 6 9

103 1 2 3

104 0 1 1

105 0 3 3

201 0 3 3

301 0 1 1

305 0 1 1


- 77 -



person that second most frequently helps Participant with selected



Frequencies





1629 1768 3397


kx605rec: Does insurance help pay for the hired person who second most

frequently helps Participant with selected instrumental activities of daily

living (IADLs)?


- 78 -


Frequencies





1628 1763 3391

1 YES 1 3 4

2 NO 0 2 2

Note: This variable is only applicable to participants who second most frequently receive help with IADLsfrom employees of a facility or people whom they or their spouse hired (see KX605REA). Note: The IADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: preparing hot meals (KX540RE), shoppingfor groceries (KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). Ifthe participant did not report receiving help with any of these IADLs, this variable has been assigned avalue of "-2".


the person who second most frequently helps them with selected



- 79 -


Frequencies





1616 1722 3338


0 NONE 1 2 3

1 1 4 5

2 1 6 7

3 2 5 7

4 2 5 7

5 1 5 6

6 0 1 1

8 0 1 1

10 1 3 4

12 0 2 2

18 0 1 1

20 0 1 1

30 1 4 5

31 0 4 4



most frequently helps Participant with selected instrumental activities of


- 80 -



Frequencies





1616 1722 3338


0 NONE 1 4 5

1 5 16 21

2 1 7 8

3 1 8 9

4 1 2 3

6 1 2 3

7 0 1 1

9 0 1 1

10 0 2 2

18 0 2 2

Note: This variable’s estimate is exclusive to days on which the participant is helped by the referencedperson (see KX605RED for the number of days help was provided in the past month). Note: The IADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: preparing hot meals (KX540RE), shoppingfor groceries (KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). Ifthe participant did not report receiving help with any of these IADLs, this variable has been assigned avalue of "-2".


person who second most frequently helps them with selected


- 81 -



Frequencies





1616 1722 3338







kx606rea: Relationship to Participant of person who third most

frequently helps them with selected instrumental activities of daily living

(IADLs).

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx604rea, kx605rea, y_GXX035_5, y_GXX054_6, y_GXX054ng_6_r, c_y_GXX054ng_6_r

- 82 -


Frequencies




-2

INAPPROPRIATEINAPPROPRIATE (KX540RE != 1 & KX545RE != 1 &KX550RE != 1 & KX555RE != 1 | NO 3RD HELPER REPORTED)

1624 1751 3375

1 HUSBAND 0 1 1

4 SON 1 2 3

10 SON-IN-LAW 0 1 1

34 DAUGHTER 2 6 8

36 SISTER 0 1 1


50 NIECE 1 1 2



Note: The referenced IADLs may include one or more of the following, depending on which activities theparticipant reported receiving help with: preparing hot meals (KX540RE), shopping for groceries(KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). If theparticipant did not report receiving help with any of these IADLs, this variable has been assigned a valueof "-2". Note: Some of the people participants reported as helping them with IADLs may also have been named ashelpers with BADLs (see KX601REA, KX602REA, and KX603REA). For a count of the uniqueindividuals or entities reported as helpers with activities of daily living (ADLs), please see KX600RE.


sibling who third most frequently helps Participant with selected



- 83 -


Frequencies





1626 1758 3384


101 1 3 4

102 2 2 4

103 0 1 1

105 0 1 1

201 0 1 1

303 0 1 1



person that third most frequently helps Participant with selected



- 84 -


Frequencies





1629 1768 3397


kx606rec: Does insurance help pay for the hired person who third most

frequently helps Participant with selected instrumental activities of daily

living (IADLs)?


Frequencies





1629 1768 3397

Note: This variable is only applicable to participants who third most frequently receive help with IADLsfrom employees of a facility or people whom they or their spouse hired (see KX606REA). Note: The IADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: preparing hot meals (KX540RE), shoppingfor groceries (KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). Ifthe participant did not report receiving help with any of these IADLs, this variable has been assigned avalue of "-2".

- 85 -



the person who third most frequently helps them with selected



Frequencies





1624 1751 3375


0 NONE 1 0 1

1 2 1 3

2 0 4 4

3 0 3 3

4 0 2 2

5 0 1 1

7 0 1 1

8 0 1 1

10 1 2 3

30 0 1 1

31 0 1 1


- 86 -


kx606ree: Typical hours of help provided per day by person who third

most frequently helps Participant with selected instrumental activities of



Frequencies





1624 1751 3375


0 NONE 1 0 1

1 1 5 6

2 1 3 4

3 0 6 6

4 0 1 1

6 0 1 1

7 1 1 2

Note: This variable’s estimate is exclusive to days on which the participant is helped by the referencedperson (see KX606RED for the number of days help was provided in the past month). Note: The IADLs referenced by this variable may include one or more of the following, depending onwhich activities the participant reported receiving help with: preparing hot meals (KX540RE), shoppingfor groceries (KX545RE), making telephone calls (KX550RE), and/or taking medications (KX555RE). Ifthe participant did not report receiving help with any of these IADLs, this variable has been assigned avalue of "-2".


person who third most frequently helps them with selected instrumental


- 87 -



Frequencies





1624 1751 3375






kx558re: Because of a health problem, does Participant get any help with

work around the house or yard?


Frequencies




-3 REFUSED 1 1 2


1 YES 198 311 509

2 NO 1430 1454 2884

- 88 -


Note: Participants were instructed to exclude any previously reported help (at KX501RE, KX512RE,KX516RE, KX520RE, KX530RE, KX534RE, KX540RE, KX545RE, KX550RE, and/or KX555RE).


help with work around the house or yard.


Frequencies




-3 REFUSED 2 0 2


1431 1457 2888


1 - 2 76 103 179

3 - 4 38 68 106

5 - 8 43 62 105

9 - 30 30 69 99

35 - 64 4 3 7


Participant has had help with work around the house or yard.


- 89 -


Frequencies





1438 1463 2901

1 DAYS 1 2 3

2 WEEKS 3 4 7

3 MONTHS 26 38 64

4 YEARS 161 261 422


any difficulty with managing money, such as paying bills and keeping

track of expenses?


Frequencies




-3 REFUSED 0 1 1

1 YES 34 35 69

2 NO 1549 1704 3253

3 CAN’T DO 1 3 4

4 DON’T DO 45 25 70

Note: Managing money is an instrumental activity of daily living; participants were instructed to excludeany difficulties expected to last less than three months.

- 90 -



or does not manage money?


Frequencies





1583 1740 3323

1 YES 9 11 20

2 NO 37 17 54

kx563re: Does anyone help Participant manage their money?


Frequencies




-3 REFUSED 0 1 1


1586 1721 3307

1 YES 28 32 60

2 NO 15 14 29


help managing their money.

- 91 -



Frequencies





1601 1736 3337


1 1 2 3

2 1 3 4

3 7 7 14

4 4 2 6

5 1 2 3

6 3 4 7

7 1 2 3

9 1 0 1

10 2 3 5

11 1 0 1

12 0 1 1

14 0 1 1

15 0 1 1

16 0 1 1

20 2 2 4

24 1 0 1

27 0 1 1

39 1 0 1

45 1 0 1

- 92 -



Participant has had help managing their money.


Frequencies





1602 1736 3338

3 MONTHS 4 5 9

4 YEARS 23 27 50


them manage their money.

Data source: Sibling Participant or Proxy Collected in: 2011 Mode: In person & telephoneSource variables: kx563re, y_GXX061_7, y_GXX062ng_7_r, c_y_GXX062ng_7_r

- 93 -


Frequencies





1601 1736 3337

1 HUSBAND 0 8 8

4 SON 4 9 13

6 BROTHER 0 2 2

31 WIFE 17 0 17

32 FORMER WIFE 1 0 1

34 DAUGHTER 3 5 8

36 SISTER 0 1 1


65 ALL CHILDREN 0 1 1




1 1 2

Note: Some of the people participants reported as helping them with the instrumental activity of dailyliving (IADL) of managing money may also have been named as helpers with other IADLs (seeKX604REA, KX605REA, and KX606REA), as well as BADLs (see KX601REA, KX602REA, andKX603REA). For a count of the unique individuals or entities reported as helpers with activities of dailyliving (ADLs), please see KX600RE.


sibling who most often helps Participant manage their money.


- 94 -


Frequencies





1605 1743 3348

101 0 7 7

102 4 3 7

103 1 1 2

104 1 1 2

105 1 0 1

106 0 1 1

107 0 1 1

201 17 8 25

301 0 1 1

302 0 1 1

308 0 1 1

Note: Managing money is an instrumental activity of daily living (IADL); see KX604REA, KX605REA,and KX606REA for information about people who may help the participant with other IADLs. Note: 100s are Child Roster ID Numbers200s are Spouse/Partner Roster ID Numbers300s are Sibling Roster ID Numbers


person that most often helps Participant manage their money.


- 95 -


Frequencies





1629 1768 3397



the person who most often helps them manage their money.


- 96 -


Frequencies




-3 REFUSED 0 1 1


1601 1736 3337


0 NONE 0 2 2

1 2 5 7

2 0 2 2

3 1 3 4

4 2 2 4

5 0 3 3

6 1 2 3

10 1 3 4

15 2 0 2

20 1 1 2

30 7 5 12

31 9 3 12

Note: Managing money is an instrumental activity of daily living (IADL); see KX604REA, KX605REA,and KX606REA for information about people who may help the participant with other IADLs.


often helps Participant manage their money.


- 97 -


Frequencies




-3 REFUSED 0 1 1


1601 1736 3337


0 NONE 2 1 3

1 9 14 23

2 3 5 8

3 1 2 3

5 1 2 3

6 1 0 1

7 0 1 1

8 0 2 2

16 1 0 1

18 0 1 1

24 7 2 9

Note: Managing money is an instrumental activity of daily living (IADL); see KX604REA, KX605REA,and KX606REA for information about people who may help the participant with other IADLs. Note: This variable’s estimate is exclusive to days on which the participant is helped by the referencedperson (see KX607RED for the number of days help was provided in the past month).


person who most often helps them manage their money.


- 98 -


Frequencies




-3 REFUSED 1 0 1


1601 1736 3337









frequently helps them manage their money.


- 99 -


Frequencies




-2INAPPROPRIATEINAPPROPRIATE (KX563RE != 1 | NO 2ND HELPER REPORTED)

1625 1759 3384

1 HUSBAND 0 1 1

4 SON 1 1 2

34 DAUGHTER 1 4 5



95 OTHER NON-RELATIVE, GENDER UNKNOWN 1 0 1


Note: Some of the people participants reported as helping them with the instrumental activity of dailyliving (IADL) of managing money may also have been named as helpers with other IADLs (seeKX604REA, KX605REA, and KX606REA), as well as BADLs (see KX601REA, KX602REA, andKX603REA). For a count of the unique individuals or entities reported as helpers with activities of dailyliving (ADLs), please see KX600RE.


sibling who second most frequently helps Participant manage their

money.


- 100 -


Frequencies





1627 1762 3389

101 1 1 2

102 1 3 4

103 0 1 1

201 0 1 1



person that second most frequently helps Participant manage their

money.


Frequencies





1629 1768 3397


- 101 -



the person who second most frequently helps them manage their money.


Frequencies






1625 1759 3384

10 0 1 1

30 0 1 1

31 0 1 1



most frequently helps Participant manage their money.


Frequencies






1625 1759 3384

1 0 1 1

6 0 2 2

- 102 -


Note: Managing money is an instrumental activity of daily living (IADL); see KX604REA, KX605REA,and KX606REA for information about people who may help the participant with other IADLs. Note: This variable’s estimate is exclusive to days on which the participant is helped by the referencedperson (see KX608RED for the number of days help was provided in the past month).


person who second most frequently helps them manage their money.


Frequencies






1625 1759 3384




- 103 -


Table of Contents

............ 1In Person: Activities of Daily Living (ADLs)kadlstat: Was the Activities of Daily Living Module completed by Participant alone, with help,

.................. 2or by proxy?

. 3kadlrel: Relationship of Activities of Daily Living Module helper or proxy to Participant.kx600re: Number of unique individuals and/or entities reported by Participant as helpers with

.............. 4activities of daily living (ADLs).kx500re: Because of a health or memory problem, does Participant have any difficulty

........... 5dressing, including putting on shoes and socks?

.......... 6kx501re: Does anyone ever help Participant dress?

... 6kx502re: Numeric component for about how long Participant has had help dressing.kx503re: Units corresponding to numeric component for about how long Participant has had

.................. 7help dressing.kx504re: Because of a health or memory problem, does Participant have any difficulty walking

.................. 8across a room?kx505re: Does Participant ever use equipment or devices such as a cane, walker, or wheelchair

................ 8when crossing a room?

...... 9kx650re: Does Participant ever use a railing when crossing a room?

...... 9kx651re: Does Participant ever use a walker when crossing a room?

....... 10kx652re: Does Participant ever use a cane when crossing a room?

...... 10kx653re: Does Participant ever use crutches when crossing a room?

.... 11kx654re: Does Participant ever use orthopedic shoes when crossing a room?

... 11kx655re: Does Participant ever use a (leg or back) brace when crossing a room?

..... 12kx656re: Does Participant ever use a prosthesis when crossing a room?

... 12kx657re: Does Participant ever use oxygen or a respirator when crossing a room?

.... 13kx658re: Does Participant ever use furniture or walls when crossing a room?

.... 13kx659re: Does Participant ever use a wheelchair or cart when crossing a room?

. 14kx660re: Does Participant ever use some other form of equipment when crossing a room?

....... 14kx512re: Does anyone ever help Participant get across a room?kx513re: Numeric component for about how long Participant has had help walking across a

.................... 15room.kx514re: Units corresponding to numeric component for about how long Participant has had

............... 16help walking across a room.kx515re: Because of a health or memory problem, does Participant have any difficulty bathing

.................. 17or showering?

.......... 18kx516re: Does anyone ever help Participant bathe?

... 18kx517re: Numeric component for about how long Participant has had help bathing.kx518re: Units corresponding to numeric component for about how long Participant has had

.................. 19help bathing.kx519re: Because of a health or memory problem, does Participant have any difficulty eating,

............... 20such as cutting up their food?

.......... 20kx520re: Does anyone ever help Participant eat?

... 21kx521re: Numeric component for about how long Participant has had help eating.kx522re: Units corresponding to numeric component for about how long Participant has had

................... 22help eating.

- i -


kx523re: Because of a health or memory problem, does Participant have any difficulty getting................... 23in or out of bed?

kx524re: Does Participant ever use equipment or devices such as a cane, walker, or railing when................. 24getting in or out of bed?.. 24kx670re: First piece of equipment Participant mentioned using when getting in or out of bed..25kx671re: Second piece of equipment Participant mentioned using when getting in or out of bed... 26kx672re: Third piece of equipment Participant mentioned using when getting in or out of bed... 27kx673re: Fourth piece of equipment Participant mentioned using when getting in or out of bed... 28kx674re: Fifth piece of equipment Participant mentioned using when getting in or out of bed... 28kx675re: Sixth piece of equipment Participant mentioned using when getting in or out of bed......... 28kx530re: Does anyone ever help Participant get in or out of bed?.29kx531re: Numeric component for about how long Participant has had help getting in or out of bed.

kx532re: Units corresponding to numeric component for about how long Participant has had help................. 30getting in or out of bed.

kx533re: Because of a health or memory problem, does Participant have any difficulty using the.............. 31toilet, including getting up and down?.......... 31kx534re: Does anyone ever help Participant use the toilet?... 32kx535re: Numeric component for about how long Participant has had help using the toilet.

kx536re: Units corresponding to numeric component for about how long Participant has had help................... 33using the toilet.

kx601rea: Relationship to Participant of person who most often helps them with selected basic............... 34activities of daily living (BADLs).

kx601reb: Roster identification number of spouse/partner, child, or sibling who most often helps........ 35Participant with selected basic activities of daily living (BADLs).

kx601reg: Roster identification number of child or sibling who hired person that most often helps........ 36Participant with selected basic activities of daily living (BADLs).

kx601rec: Does insurance help pay for the hired person who most often helps Participant with............ 37selected basic activities of daily living (BADLs)?

kx601red: Number of days in the past month Participant was helped by the person who most often........ 38helps them with selected basic activities of daily living (BADLs).

kx601ree: Typical hours of help provided per day by person who most often helps Participant with............ 40selected basic activities of daily living (BADLs).

kx601ref: Distance between Participant’s residence and that of the person who most often helps them........... 41with selected basic activities of daily living (BADLs).

kx602rea: Relationship to Participant of person who second most frequently helps them with selected.............. 41basic activities of daily living (BADLs).

kx602reb: Roster identification number of spouse/partner, child, or sibling who second most.... 43frequently helps Participant with selected basic activities of daily living (BADLs).

kx602reg: Roster identification number of child or sibling who hired person that second most.... 44frequently helps Participant with selected basic activities of daily living (BADLs).

kx602rec: Does insurance help pay for the hired person who second most frequently helps Participant........... 44with selected basic activities of daily living (BADLs)?

kx602red: Number of days in the past month Participant was helped by the person who second most...... 45frequently helps them with selected basic activities of daily living (BADLs).

kx602ree: Typical hours of help provided per day by person who second most frequently helps........ 47Participant with selected basic activities of daily living (BADLs).

kx602ref: Distance between Participant’s residence and that of the person who second most

- ii -


...... 48frequently helps them with selected basic activities of daily living (BADLs).kx603rea: Relationship to Participant of person who third most frequently helps them with selected

.............. 48basic activities of daily living (BADLs).kx603reb: Roster identification number of spouse/partner, child, or sibling who third most frequently

....... 49helps Participant with selected basic activities of daily living (BADLs).kx603reg: Roster identification number of child or sibling who hired person that third most

.... 50frequently helps Participant with selected basic activities of daily living (BADLs).kx603rec: Does insurance help pay for the hired person who third most frequently helps Participant

........... 51with selected basic activities of daily living (BADLs)?kx603red: Number of days in the past month Participant was helped by the person who third most

...... 51frequently helps them with selected basic activities of daily living (BADLs).kx603ree: Typical hours of help provided per day by person who third most frequently helps

........ 52Participant with selected basic activities of daily living (BADLs).kx603ref: Distance between Participant’s residence and that of the person who third most frequently

........ 53helps them with selected basic activities of daily living (BADLs).kx537re: Because of a health or memory problem, does Participant have any difficulty using a map to

............ 54figure out how to get around in a strange place?kx538re: Because of a health or memory problem, does Participant have any difficulty preparing a

.................... 55hot meal?56kx539re: Is a health or memory problem the reason Participant cannot or does not prepare hot meals?.......... 56kx540re: Does anyone help Participant prepare hot meals?.57kx541re: Numeric component for about how long Participant has had help preparing a hot meal.

kx542re: Units corresponding to numeric component for about how long Participant has had help.................. 57preparing a hot meal.

kx543re: Because of a health or memory problem, does Participant have any difficulty shopping for .................... 58groceries?59kx544re: Is a health or memory problem the reason Participant cannot or does not shop for groceries?.......... 59kx545re: Does anyone help Participant shop for groceries?.60kx546re: Numeric component for about how long Participant has had help shopping for groceries.

kx547re: Units corresponding to numeric component for about how long Participant has had help................. 60shopping for groceries.

kx548re: Because of a health or memory problem, does Participant have any difficulty making................... 61telephone calls?

kx549re: Is a health or memory problem the reason Participant cannot or does not make telephone ..................... 61calls?......... 62kx550re: Does anyone help Participant make telephone calls?.62kx551re: Numeric component for about how long Participant has had help making telephone calls.

kx552re: Units corresponding to numeric component for about how long Participant has had help................. 63making telephone calls.

kx553re: Because of a health or memory problem, does Participant have any difficulty taking .................... 64medications?.. 64kx553rea: Would Participant have any difficulty taking medications if they needed to do so?

kx554re: Is a health or memory problem the reason Participant cannot take medications or would.............. 65have difficulty if they needed to do so?........ 65kx555re: Does anyone help Participant with taking medications?.. 66kx556re: Numeric component for about how long Participant has had help taking medications.

kx557re: Units corresponding to numeric component for about how long Participant has had help

- iii -


.................. 67taking medications.kx604rea: Relationship to Participant of person who most often helps them with selected instrumental

............... 68activities of daily living (IADLs).kx604reb: Roster identification number of spouse/partner, child, or sibling who most often helps

....... 70Participant with selected instrumental activities of daily living (IADLs).kx604reg: Roster identification number of child or sibling who hired person that most often helps

....... 71Participant with selected instrumental activities of daily living (IADLs).kx604rec: Does insurance help pay for the hired person who most often helps Participant with

.......... 71selected instrumental activities of daily living (IADLs)?kx604red: Number of days in the past month Participant was helped by the person who most often

....... 72helps them with selected instrumental activities of daily living (IADLs).kx604ree: Typical hours of help provided per day by person who most often helps Participant with

.......... 74selected instrumental activities of daily living (IADLs).kx604ref: Distance between Participant’s residence and that of the person who most often helps them

......... 75with selected instrumental activities of daily living (IADLs).kx605rea: Relationship to Participant of person who second most frequently helps them with selected

............ 75instrumental activities of daily living (IADLs).kx605reb: Roster identification number of spouse/partner, child, or sibling who second most

... 77frequently helps Participant with selected instrumental activities of daily living (IADLs).kx605reg: Roster identification number of child or sibling who hired person that second most

... 78frequently helps Participant with selected instrumental activities of daily living (IADLs).kx605rec: Does insurance help pay for the hired person who second most frequently helps Participant

......... 78with selected instrumental activities of daily living (IADLs)?kx605red: Number of days in the past month Participant was helped by the person who second most

.... 79frequently helps them with selected instrumental activities of daily living (IADLs).kx605ree: Typical hours of help provided per day by person who second most frequently helps

....... 80Participant with selected instrumental activities of daily living (IADLs).kx605ref: Distance between Participant’s residence and that of the person who second most

.... 81frequently helps them with selected instrumental activities of daily living (IADLs).kx606rea: Relationship to Participant of person who third most frequently helps them with selected

............ 82instrumental activities of daily living (IADLs).kx606reb: Roster identification number of spouse/partner, child, or sibling who third most frequently

..... 83helps Participant with selected instrumental activities of daily living (IADLs).kx606reg: Roster identification number of child or sibling who hired person that third most

... 84frequently helps Participant with selected instrumental activities of daily living (IADLs).kx606rec: Does insurance help pay for the hired person who third most frequently helps Participant

......... 85with selected instrumental activities of daily living (IADLs)?kx606red: Number of days in the past month Participant was helped by the person who third most

.... 86frequently helps them with selected instrumental activities of daily living (IADLs).kx606ree: Typical hours of help provided per day by person who third most frequently helps

....... 87Participant with selected instrumental activities of daily living (IADLs).kx606ref: Distance between Participant’s residence and that of the person who third most frequently

....... 87helps them with selected instrumental activities of daily living (IADLs).kx558re: Because of a health problem, does Participant get any help with work around the house or

..................... 88yard?kx559re: Numeric component for about how long Participant has had help with work around the

................... 89house or yard.

- iv -


kx560re: Units corresponding to numeric component for about how long Participant has had help............... 89with work around the house or yard.

kx561re: Because of a health or memory problem, does Participant have any difficulty with managing......... 90money, such as paying bills and keeping track of expenses?.91kx562re: Is a health or memory problem the reason Participant cannot or does not manage money?......... 91kx563re: Does anyone help Participant manage their money?.91kx564re: Numeric component for about how long Participant has had help managing their money.

kx565re: Units corresponding to numeric component for about how long Participant has had help................. 93managing their money..93kx607rea: Relationship to Participant of person who most often helps them manage their money.

kx607reb: Roster identification number of spouse/partner, child, or sibling who most often helps............... 94Participant manage their money.

kx607reg: Roster identification number of child or sibling who hired person that most often helps............... 95Participant manage their money.

kx607red: Number of days in the past month Participant was helped by the person who most often............... 96helps them manage their money.

kx607ree: Typical hours of help provided per day by person who most often helps Participant manage.................... 97their money.

kx607ref: Distance between Participant’s residence and that of the person who most often helps them.................. 98manage their money.

kx608rea: Relationship to Participant of person who second most frequently helps them manage their ..................... 99money.

kx608reb: Roster identification number of spouse/partner, child, or sibling who second most............ 100frequently helps Participant manage their money.

kx608reg: Roster identification number of child or sibling who hired person that second most............ 101frequently helps Participant manage their money.

kx608red: Number of days in the past month Participant was helped by the person who second most............. 102frequently helps them manage their money.

kx608ree: Typical hours of help provided per day by person who second most frequently helps............... 102Participant manage their money.

kx608ref: Distance between Participant’s residence and that of the person who second most............. 103frequently helps them manage their money.

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in person: activities of daily living (adls) · 2019-02-27 · activities of daily living module in...

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