how do you run a charity, when bed-bound with an energy
TRANSCRIPT
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How do you run a charity, when bed-bound with an energy zapping disease?
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“To become chronically ill is to enter a reality inconceivable to the healthy, a reality of exclusion from work, family, friends and the entirety of our previous existence.
As someone who enjoyed what would be considered a full and successful life, experiencing chronic, debilitating disease has transformed how I observe the world and how the world seemingly observes me.”
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What is ME?
Myalgic Encephalomyelitis
is recognised as a neurological disorder by the World Health Organisation (section G 93.3 of ICD10)
August 2018 GP SNOMED system updated to reflect ME as neurological!
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Hope 4 ME & FibroNorthern Ireland
Meetings:
First Tuesday every Month
7pm – 9pm
Mourne Country Hotel, Newry
Livestream specialist speakers out to our bed and house-bound members
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Conferences & Educational Events
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Hope 4 ME & FibroNorthern Ireland
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The PACE Trial
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Hope 4 ME & FibroNorthern Ireland
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Will YOU take the pledge to learn more about M.E?
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Thank you for listening!