ho ly va ra l 23, is the rig a ge roup for the yau. pictu ... · event of the year, flyer inside....

5
Wardlines Spring 2013 1 In the summer of 2012 the Trust agreed in principle to the necessity of opening a Unit dedicated to the support and health of young adults with cancer. The Unit would support patients between the ages 20 and 29 coping with cancer. Research had shown that when younger people of a similar age are placed together in a dedicated ward their physical health outcomes and their psychological health improved. Equally many teenage cancer patients find the transition into the adult setting very hard and offering a dedicated young adult ward helps them cope with this change. In the autumn of last year the Trust set aside twelve beds on T13 that would become the Young Adult Unit. The cancer management team began working with the different areas within the Trust to gain agreement to support and develop this forward-thinking Unit and the YAU officially opened in February 2013, welcoming young people from across the UK. Having secured funding for a social room from the Teenage Cancer Trust (TCT), our own charity fund, the Leukaemia & Lymphoma Unit agreed to fund the first stage transformation of the surroundings - from a boring general clinical area with white walls and practical spaces - into a young space conducive to the health and well-being of this particular patient group. Together with LALU and the TCT our two-stage vision for a ward offering young people an environment celebrating life in London is becoming a reality. The first stage, funded by LALU, began in April: the walls in the Bay areas, corridors, side rooms and bathrooms will be painted with scenes from the London skyline to brighten the environment - and each bed space will have an electric chair that folds into a bed allowing a family member to stay with their son or daughter. The ward already has Wi-Fi available to all patients, with DVDs and iPads becoming available in the near future. Our thanks also to the TCT for their incredible help with our second stage, the building of a social day room designed for young people to meet and escape their treatment-focused bed space in a comfortable non-clinical space with music, and Sky TV. It is a very exciting time for us on T13 as we push forwards in supporting this new Unit and although I will be leaving as the ward manager for the floor I feel privileged and proud to have been part of the development of the new Young Adults Unit. Jonathan left the Unit in March and we wish him well. Young Adults Unit on T13 By Jonathan Hanbury, Charge Nurse Lauren’s Fund Lauren’s Fund raised an incredible £42,000 to fund a PhD student for four years at the department of haematology, UCL Cancer Institute. Eva Kokalaki was appointed in March and has already begun looking at genetically engineering the body’s immune system - in particular T-Cells - as a more effective and far less toxic approach to treating patients with leukaemia, especially AML. Research carried out at the UCL Cancer Institute is translated at the fastest possible rate to patients in the Leukaemia & Lymphoma Unit UCH. Lauren Murrell (left) and Eva are pictured. Laughing at Lymphoma Thanks to Barry Cryer (right), Robin Ince, Simon Feilder and Alfie Brown for a fabulously hilarious comedy evening at the Comedy Café. Alfie and Imogen Brown put the evening together as a thank you for looking after Peter, Imi’s father. They raised over £2,000 for the Unit. Hopefully there will be a next one… The Leukaemia & Lymphoma Unit Fund supports patient care and staff development within the Unit and is part of UCLH Charity wardlines Newsletter Spring 2013 The Leukaemia & Lymphoma Unit Holly Varrall 23, is the right age group for the YAU. Pictured here with mum Michelle.

Upload: others

Post on 04-Aug-2020

0 views

Category:

Documents


0 download

TRANSCRIPT

Page 1: Ho ly Va ra l 23, is the rig a ge roup for the YAU. Pictu ... · event of the year, flyer inside. Lastly, if receiving Wardlines has inconvenienced you in any way, please accept our

Wardlines • Spring 2013 • 1

In the summer of 2012 the Trust agreed in principle to the necessityof opening a Unit dedicated to the support and health of youngadults with cancer. The Unit would support patients between theages 20 and 29 coping with cancer. Research had shown that whenyounger people of a similar age are placed together in a dedicatedward their physical health outcomes and their psychological healthimproved. Equally many teenage cancer patients find the transitioninto the adult setting very hard and offering a dedicated youngadult ward helps them cope with this change.

In the autumn of last year the Trust set aside twelve beds on T13that would become the Young Adult Unit. The cancer managementteam began working with the different areas within the Trust to gainagreement to support and develop this forward-thinking Unit andthe YAU officially opened in February 2013, welcoming young people from across the UK. Having secured funding for a social room from the Teenage Cancer Trust (TCT), our own charity fund, theLeukaemia & Lymphoma Unit agreed to fund the first stage transformation of the surroundings - from a boring general clinicalarea with white walls and practical spaces - into a young space conducive to the health and well-being of this particular patientgroup.

Together with LALU and the TCT our two-stage vision for a ward

offering young people an environment celebrating life in London isbecoming a reality. The first stage, funded by LALU, began in April:the walls in the Bay areas, corridors, side rooms and bathrooms willbe painted with scenes from the London skyline to brighten the environment - and each bed space will have an electric chair thatfolds into a bed allowing a family member to stay with their son ordaughter. The ward already has Wi-Fi available to all patients, withDVDs and iPads becoming available in the near future. Our thanksalso to the TCT for their incredible help with our second stage, thebuilding of a social day room designed for young people to meetand escape their treatment-focused bed space in a comfortable non-clinical space with music, and Sky TV.

It is a very exciting time for us on T13 as we push forwards in supporting this new Unit and although I will be leaving as the wardmanager for the floor I feel privileged and proud to have been partof the development of the new Young Adults Unit.

Jonathan left the Unit in March and we wish him well.

Young Adults Unit on T13By Jonathan Hanbury, Charge Nurse

Lauren’s FundLauren’s Fund raised an incredible £42,000 to fund a PhD student forfour years at the department of haematology, UCL Cancer Institute. Eva Kokalaki was appointed in Marchand has already begun looking at genetically engineering the body’s immune system - in particular T-Cells - as a more effective and far less toxic approach to treating patients withleukaemia, especially AML. Research carried out at the UCLCancer Institute is translated at the fastest possible rate topatients in the Leukaemia & Lymphoma Unit UCH. LaurenMurrell (left) and Eva are pictured.

Laughing at Lymphoma Thanks to Barry Cryer (right), Robin Ince,Simon Feilder and Alfie Brown for a fabulously hilarious comedy evening at the Comedy Café. Alfie and Imogen Brownput the evening together as a thank you for looking after Peter, Imi’s father. They raised over £2,000 for the Unit.

Hopefully there will be a next one…

The Leukaemia & Lymphoma Unit Fund supports patient care and staff development within the Unit and is part of UCLH Charity

wardlinesNewsletter Spring 2013

The Leukaemia & Lymphoma Unit

Holly Varrall 23, is the right age group for the YAU. Pictured here withmum Michelle.

Page 2: Ho ly Va ra l 23, is the rig a ge roup for the YAU. Pictu ... · event of the year, flyer inside. Lastly, if receiving Wardlines has inconvenienced you in any way, please accept our

EditorialSara Goldman, Editor

Welcome to the SpringWardlines. We arelooking forward to afun year, starting withour annual RichmondPark Bike Ride on 9June. Come and enjoyan hour’s cyclearound one of London’s most beautiful parks followed by a picnic. Sign up fastas it’s round the corner. June also brings us asummer Harpsichord Recital, at the charminghome of Sir Vernon and Lady Ellis, on the 12th.We are grateful to pianist and harpsichordist,Robyn Koh - Rosslyn Hill Chapel and the RoyalCollege of Music - for donating her time onceagain for what should be a ‘sublime’ evening.

I would like to say a special thank you to Lauren Murrell, who created Lauren’s Fund and raised an amazing £42,000for a PhD student to begin research on the exciting Genetically Engineering T-Cells project. We look forward tosharing with you how this project progresses.

Another special thank you goes to the family of Julia Bayliss,who through the Remembering Julia trust donated £50,000 to replace our Flow Cytometer, which is essential kit for ourresearch teams.

Thanks and well done to our 2013 London Marathon Runners, Tracy Bullot our silver bond place, together withBeth Ettinger, Kevin Newman, second timer runner WayneVallentine and Sophie Ward. Thanks also to Gaby Stace andMark Fincher on the successful completion of their JordanTrek. Read more about these in this edition of Wardlines.

A huge thank you to all of you who support the fund, youhave enabled us to make a significant contribution to theLeukaemia & Lymphoma Unit and the patient experience. We are very proud of our achievements this year - in addition to our new PhD student and the Flow Cytometer -being able to fund the first stage of the new Young AdultsUnit on T13, offering age-appropriate environment for patients aged 20-29.

If anything in this issue inspires you to support our Unitplease get in touch, details on the back page. We really hopeto see you at one of our events soon. Don’t forget to sign upfor the annual London Bridgathon, our largest fundraisingevent of the year, flyer inside. Lastly, if receiving Wardlineshas inconvenienced you in any way, please accept our apologies.

2 • Spring 2013 •Wardlines Wardlines • Spring 2013 • 3

ECG tip locationMany chemotherapy patients at UCLH are offered a long-term intravenous line called a PICC (peripherally inserted centralcatheter). A generous donation from the Leukaemia & LymphomaUnit fund has helped reduce delays for these patients.

A PICC is a fine, flexible tube put into a vein in the patient’s upperarm. The PICC is threaded up through the veins so that its tip is positioned in a large vein just above the heart. This allowschemotherapy and other intravenous treatments to be given without using a needle every time. The PICC can stay in for anythingfrom a few days to several months, depending on the treatment required. Until recently patients had to have a chest x-ray to checkthat the PICC was in the correct position before it could be used.Now, the majority of patients will be able to avoid an x-ray thanks to the introduction of ECG-guided tip location.

The ECG tip location technique was first discovered as long ago as1949 and has been used in Italy and Germany since the 1980s. It isonly now catching on in the UK. The technique involves using thePICC itself as an internal ECG lead. An ECG monitors the electricalactivity of the heart and shows it on a screen. As the PICC getscloser to the heart, the tracing of the electrical activity looks bigger and bigger on the screen, which means the nurse insertingthe PICC can tell when it reaches the desired position. The application of this technique has been made much easier by the recent development of dedicated equipment and software which the team was able to purchase thanks to funding from the LALU.This will avoid the need for a chest x-ray for the majority of patients which will mean they can start their treatment straightaway.

Most PICCs are put in by a small team of specialist nurses based in the new Cancer Centre. Clinical Nurse Specialist Liz Simcock, who set up the team in 2001, says:

“ECG tip location is a really exciting step forward for the PICC service. In the last 12 years there have been many improvements in PICC care but two advances in particular stand out. The first was in 2004 when we started using ultrasound to insert PICCs, whichmeant the line could be placed in the upper arm instead of the inner elbow. This reduced complications and improved comfort,

allowing patients to use their arms freely. The second most significant change is ECG tip location. Patients having outpatienttreatment save about an hour on average which is great. Even better, if we put in a PICC for a patient who is unwell on the ward,their line can be used straight away without the discomfort anddelay of a trip to the x-ray department. My team have worked really hard to make this happen and we are so grateful to LALU forenabling us to move forward with this.”

Full Time Counselling ServiceThe haematology counselling service has resumed as a full timeservice since the arrival of Mike Fox in January. Mike and SheilaHegarty, haematology counsellors are available to haematology

patients and relatives. Mike came from the voluntary sector specialising with people with dementia and older people with alcohol problems.

Counselling offers an opportunity in which to explore emotionalissues in confidence, providing a place to talk in a safe settingabout feelings connected to diagnosis, treatment and recovery. It can also provide an opportunity to look at coping skills andmechanisms and how to make best use of them. In acknowledgment that relatives play a crucial role for patients the counselling service is offered to both patients and relatives.Patients are seen as inpatient or outpatient.

Haematology inpatients, outpatients and relatives can be referred to the counselling service via their CNS, ward nurse orConsultant, or can self-refer. For further information or to make an appointment please contact Macmillan Support & InformationService on 020 3447 8663.

Haematology Lifeby Stephen Rowley, Lead Cancer Nurse UCLH, Divisional Cancer Nurse Haematology

Supporting the Education FundJohn and Eliza Thornton are pictured with CNSs Amelia Stokes (left)and Sam Derby who were sponsored by the Julia Thornton Education Fund for their postgraduate education. Over £19,000 wasraised in memory of Julia Thornton by family and friends. They also sponsored complementary therapy and decoration of the QuietRoom on T13, where the photograph was taken.

This is our Spring edition and it’s been a relief to be writing this insome sunshine at last. In March I was contemplating this year’sRichmond Park Charity Bike Ride and London Bridgathon takingplace in snow!

LALU has been busy of late in discussions with UCLH regarding theorganisation of fundraising in Cancer Services. This simply reflectssignificant changes in the service such as the opening of the excellent Cancer Centre and the formation of the Macmillan Information & Support Service. We look forward to working collaboratively with our partners at UCLH to the ongoing benefit ofpatients and their families.

This process has presented an opportunity to reflect on LALU’sacheivements over a period of 20 years. The fund has grown from afledgling to a professionally run organisation raising significantfunds. This has enabled us to start up or support some very excitinginitiatives over the last year, such as the funding of PhD student and the purchase of expensive and badly needed flow cytometer aswell as two apheresis machines which are used to deliver a range of critical treatments.

Perhaps most heartening has been the opportunity to reflect onLALU’s core values from inception. Namely, striking a balance between raising funds, whilst also creating a sense of a supportivecommunity, for patients. When one attends any of the regular annual events such as the Bike Ride (9th June), the HarpsichordRecital (12th June) the Bridgathon (22nd September) and the Christmas Party (date TBC), it is heartening to see so many past patients mixing with new patients its good evidence that we are remaining true to our values.

Wishing everyone a happy and sunny summer.

The PICC team: Karen McInerney, Daniel Putensen, Selena Sandeluss, Bhavika Patel and centre, Liz Simcock, CNS for Central Venous Access.

How LALU supports theHaematology Unit 2012/13 -Highlights• Cardiac Monitor for transferring patients from the Cancer

Centre to ICU

• PhD student for T-Cell engineering project

• Flow Cytometer based at UCL

• 5 Oxygen Saturation monitors

• Recliner chair and TVs for T13

• ipads for T13 and T16 (for younger patients)

• Five complementary therapists and an Aroma Diffuser

• Seed funding for the Patients Support Group

• Contribution to the Wig Fund and wig storage

Page 3: Ho ly Va ra l 23, is the rig a ge roup for the YAU. Pictu ... · event of the year, flyer inside. Lastly, if receiving Wardlines has inconvenienced you in any way, please accept our

4 • Spring 2013 •Wardlines Wardlines • Spring 2013 • 5

Adults with Haemoglobin DisordersBy Dr Sara Trompeter Consultant Haematologist and Paediatric Haematologist, Joint Red Cell Unit

The first ever peer review programme to services for adults withhaemoglobin disorders is completed and the review is finalised. Visits to services started in May 2012 through to March 2013. TheQuality Standards used for the programme were agreed by the UKForum on Haemoglobin Disorders and are based on the nationalguidance: ‘Standards for the clinical care of adults and children with thalassaemia in the UK’ [2005 and 2008] and ‘Standards for the Clinical Care of Adults with Sickle Cell Disease in the UK’ [2008]. The visits were coordinated by the West Midlands QualityReview Service. The UCL/Whittington Joint Cell Unit Visit will bepublished on their website www.wmqrs.nhs.uk/review-programmes/view/adults-with-haemoglobin-disorders.

UCLH performed at an extremely high level with adherences to standards at almost every level. The Red Cell Team were very appreciative of all the support they received from the wider multidisciplinary team as well as from the patients and management team. The draft report included the following:

“This was an excellent service providing world-class care particularly for patients with thalassaemia. The team was workingas a national and international resource providing support for hospitals and patients across the UK and beyond via tertiary consultations as well as through e-mail and phone advice. The patient feedback about medical and nursing support was very positive, and the facilities were of very high quality. The transition tothe new facilities had been managed well with good patient input.The Day Care Unit provided an excellent service both for transfusedpatients and for patients needing acute pain relief. Despite the veryhigh numbers of thalassaemia patients attending for transfusion itoffered a service that was both efficient and personal. The introduction of a comprehensive red cell apheresis service had ledto significant service improvements and had good patient feedback.Good links were in place with all necessary specialist services andthe psychology provision was integrated into the service. Comprehensive thalassaemia and sickle cell patient leaflets wereavailable. A comprehensive work plan included innovative suggestions such as a video to support training for manual exchanges which could be a very useful resource if used nationally. “The review team also commented on a few issues that demonstrated “good practice”, these included:

• The cardiology clinic was unique and offered a very high qualityservice for patients. The integrated ‘one stop’ approach was supported by dedicated staff. This was a model which could beadopted by other services.

• The care of thalassaemia patients was exemplary and the patientprotocols and care pathways were very comprehensive. The management of iron overload in this centre guided UK practice andoffered support to other services across the UK.

• Research was an integral part of the service and there was evidence of an extensive research output

• The annual review process was integrated into clinic attendanceand there was a clear proforma. The availability of a data manager in clinic enabled this data to be collected and uploaded in real time.

The Joint Red Cell team.

Members of the Patient Support Group

4 Peaks ChallengeBy Russell Lee

In June ‘Reload’s Raiders’ (Ray Clark, Richard Flight, Russell Lee,Gary Sales and Steve Sampson) will be attempting to complete theFour Peaks Challenge. It comprises walking the tallest mountainsin Ireland (Slieve Donard 850m), Scotland (Ben Nevis 1,344m), England (Scarfell Pike 978m) and Wales (Snowdon 1,050m), within 40 hours.

We are doing this in memory of David ‘Reload’ Jacobs who at only22, sadly lost his four year fight with cancer. During his illness heand his family received the best possible care and support from The Leukaemia & Lymphoma Unit, UCLH.

If you would like to sponsor us please visit:www.virginmoneygiving.com/reloadsraiders

Our thanks to Russell Lee for organising the Four Peaks Challengeand wish them the best of luck.

Complementary TherapyBy Elaine Charlesworth, Senior ComplementaryTherapist

The complementary therapyteam would like to thank theLeukaemia and LymphomaUnit fund for enabling the team to purchasenew room diffusers for the therapy rooms. The diffusers help to create a lovely calming ambience in the rooms which is so important to patients coming down to have their therapy sessions.Many patients are surprised and pleased when they walk into thetherapy rooms for the first time and are greeted by the aromas of essential oils. Staff too always comment as they pass by the therapy rooms, the scent of orange, geranium, cedarwood or eucalyptus are not the usual ones people associate with hospitalsettings. The aromas of essential oils can instantly transport a person to another place in their minds. One rainy November day last year, one patient having a massage declared that they weredrifting away, imagining that they were in Bali. There are days when we could all do with feeling like that.

New Flow Cytometer A flow cytometer is the most commonly used analytical instrument in the research department of haematology,forming the heart of the laboratory, and our original modelwas ageing rapidly through very heavy use. The new machine will continue studying leukaemia, lymphoma andmyeloma cells in great detail and in addition, the effects of different drugs and treatments on these cells. This instrument is central to helping understand these diseasesand develop new treatments for them.

The Flow Cytometer works by analysing a large number ofcells rapidly and in great detail. Cells are stained with manydifferent coloured antibodies or dyes then fed into the instrument which “flows” them one cell at a time through anumber of lasers.

Different characteristics of the cell alter the colours of light coming from the cells as they pass through the lasers. The instrument then measures these different colours of light,with each colour giving us one piece of information abouteach individual cell as it passes through.

This new machine has been made possible by a donationfrom the Remembering Julia trust, a trust set up in memory of Julia Bayliss by her family. They held numerous events including Race Nights, a charity single, the annual BananaMan and a recent Golf Day to raise an incredible £100,000 inall. Since 2009 it has supported complementary therapy,medical equipment and amenities for T13, before donating an amazing £50,000 for the Flow Cytometer.

Our thanks also go to the family and friends of Phil Hammond who donated £3,530 towards the Flow Cytometer and important software.

Pictured are Lauren, Henry and Toby Bayliss, picture supplied by dad Warren,who set up the tRJt.

Page 4: Ho ly Va ra l 23, is the rig a ge roup for the YAU. Pictu ... · event of the year, flyer inside. Lastly, if receiving Wardlines has inconvenienced you in any way, please accept our

6 • Spring 2013 •Wardlines Wardlines • Spring 2013 • 7

San Francisco Half Marathon 2012By Liam Lynch

I ran the US Half Marathon 2012in San Francisco because I hadnot run further than eight milesbefore and wanted to challengemyself. I believed that I shouldrun for a cause that I cared abouta great deal, and the Leukaemia & Lymphoma Unit inmemory of Ann Vautier was a fantastic cause to support. A veryclose friend of mine lost her mother, Ann, to cancer, and I wanted to raise money by doing something physically demanding.

I had an amazing experience and am incredibly grateful for all thesupport I received and hope to raise more in the near future.

Liam raised £834 for the Ann Vautier Fund, part of the Leukaemia & Lymphoma Unit.

British 10K UCLH teamClare Evans (pictured left), Ambulatory Care Sister, and Kat Parkin, Senior Staff Nurse join ward nurses Sebastien Cippe, Rob McDonnell taking part in the 2013 British 10K London Run raising funds for the Unit.

If you would like to sponsor them, please visitwww.justgiving.com/Katandclare. The two other runners who complete our team of six are Jessica Ashton and Claire Barton.Thank you and good luck to them all.

Barn Dance for the KSLFAlmost £3,000 was raised for the Kevin Steeds Lymphoma Fund at a recent Barn Dance. The KSLF donated £10,000 towards the Unit.

WeddingBellsOur congratulations toJohn and Jan Bowyer (pictured) who celebratedtheir marriage at Ware Priory on Friday 24 August2012. In 2006 John had a stem cell transplant for follicular Non Hodgkin’s Lymphoma (a sibling allograft from his sister, Marie) and has made a full recovery.John said ‘we were so lucky to be able to celebrate this day togetherand wanted to take this opportunity to thank all the staff of theUCLH Leukaemia and Lymphoma Unit for the excellent care we havereceived and to help support the work of the Unit and improve thelives of others’. Thanks to the generosity of their wedding guests,John and Jan raised over £1,400.

London 2 Brighton 100kmChallenge 2013By Charles Davie

On May 25th three brothers will be setting off for a 100kmChallenge from London to Brighton to raise money andawareness for the Leukaemia & Lymphoma Unit, UCLH.Charles, Ed and Thomson Davie will be running 100km afterthe diagnosis of Charles’s girlfriend Natalie Dokarry withChronic Myeloid Leukaemia in late 2012.

In Nat’s words:

“I’m currently being treated by the Leukaemia & Lymphomateam at University College London Hospitals. They havegiven me a truly wonderful standard of care, and as a Centreof Excellence, they are also funding research into new treatments, as well as state of the art medical equipment,free complementary therapy for patients and families andsupporting postgraduate education for nurses.

My boyfriend Charles and I wanted to find a way to say thankyou to them for helping me get back to my normal self and tohelp them continue the wonderful work they’re doing. He’sproven himself to be quite the madman as he and his brothers Ed and Thomson are completing a 100km run (yes,run!) from London to Brighton on May 25th to raise money for the UCLH unit. They’ve been training non-stop for the lastfew months, working really hard to get themselvesin shape in time forthe end of May.”

The three brothershave been trainingthrough the snowand cold spell sinceJanuary 1st and aim to raise over£2,000 for the Unit. Although never having run more thana marathon prior tothis event, the brothers are in highspirits and hope to complete the run in under 15 hours.

To have a look at their Justgiving page or to sponsor pleasevisit: www.justgiving.com/thedaviebrothers.

Charles and Natalie at the Lond

on Marathon

Tough Guy By Harvey Parsons

The Tough Guy was a really good day out - it wasn’t taken too seriously - and everyone was in good spirits even when freezing and suffering! Because of all the support I’d received from my friends, failing was never an option, so I just had a good time. I would like to think I’d do it again next year.

If you are interested visit www.toughguy.co.ukand sign up for the Unit.

Everest Base Camp 2012By Halit Karakaya

Regardless of how much you prepare, the idea of walking acrossthe Himalayas to Everest Base Camp will never seem any less scary.I tried to be focused and kept in mind the reasons I was doing this.Meeting the rest of the group at Heathrow on D-Day was even moredaunting as most were climbers, hikers, fitness instructors or ex soldiers, unlike me who was a little overweight guy who drove everywhere. But on the mountain all is equal, because it is altitudethat is king and regardless of fitness levels and experience we allbecame novices.

The landing at Lukla was more thrilling than the flight from Kathmandu. The walk started and we were transported to a differentworld where everything from the sights and sounds to the smellswas on a grand scale. The locals were very hospitable and honestand for the first time I met a people who were really in touch withtheir environment.  In total we walked 13 days and it was mostly exhausting. The only thing that pushed me was the view from thenext corner. It was just that the corners took hours to turn.

The Sherpa people, the scenery, the air and the team spirit of thegroup was exceptional. The tea houses homely, the food tasty andthe early mornings a real treat.

Halit trekked with actionchallenge and raised £3,515 for the Unit inmemory of his uncle, Osman Karakaya.

The Virgin London Marathon 2013By Tracy Bullot, Silver Bond Runner

I ran the London Marathon in order to raise as much money as possible for the outstanding Leukaemia and Lymphoma Unit at UCLH.

My reason for doing this is the excellent care and dedication that my very brave husband Adrian receivedwhen he was a long-term inpatient on the Unit in 2010.

His strength, courage and determination during his fightagainst Lymphoma will (fingers crossed) get me to the finish line on the 21st April 2013!

Thanks to Tracy and also to our four ballot runners, Beth Ettinger, Kevin Newman, Wayne Vallentine (for the second time!) and Sophie Ward.

Challenges and TreksThanks to all of you who have completed or are soon to partake inchallenges and treks to raise funds for the Unit.

Sara & Caroline Burns, Gavin Cooper, Daniel Culank with Colin Brimson, Ian Crawt & Miles Morgan, Charles & brothers Edward and Thompson Davie, Mark Fincher, Charlotte Gledhill, Emma Graham, Halit Karakaya, Russell Lee, Richard Flight, Steve Sampson, Gary Sales and Ray Clarke Liam Lynch, Lorraine Noone,Joanna Osborn, Harvey Parsons, David Peters, Michelle Reid, Andrew Rowan, Gaby Stace, David Stafferton and Andrew Wood.

Thanks to Vincent Harding, David Yems and staff team Jon Derbyshire, Clare Evans, Bethan Ingram and Gavin Cooper are cycling for us in the first Prudential Ride London-Surrey100 in August.

West HamAuctionThanks to Anthony Kaye fordonating a West Ham Unitedshirt signed by the wholeteam. It was auctioned inMarch and raised a fantastic£450 for the Unit. Anthony is gathering a collection ofsigned shirts for a SignedShirt Event coming soon.

Page 5: Ho ly Va ra l 23, is the rig a ge roup for the YAU. Pictu ... · event of the year, flyer inside. Lastly, if receiving Wardlines has inconvenienced you in any way, please accept our

Sara Goldman, Fundraiser LALU, UCLH Charity. 1st Floor Rosenheim Building, Grafton Way, London WC1E 6DBemail [email protected] / Tel 020 3447 9526 / mobile 07908 258272

Website www.uclh.nhs.uk/LLU Please pay cheques to UCLH Charity 0099

Editorial Board: Peter Brown, Sara Goldman, Mark Matharu, Steve Roper, Stephen Rowley

If you would prefer not to receive this newsletter or if it was sent to you incorrectly, just let us know - and please accept our apologies.

Donations made simpleThe Leukaemia & Lymphoma Unit fund 0099 helps improve the environmentand experience of our patients. We purchase amenities, support free complementary therapy for patients and families, postgraduate educationfor nurses, and where possible provide state of the art medical equipment.

To make a donation by cheque to the Leukaemia & Lymphoma Unit, pleasemake cheques payable to UCLH Charity 0099 to the address below. Gift aiding your donations, if you are a UK taxpayer, means we can claim back25% on your donation. Please ask for a gift aid form or enclose a note saying you gift aid your cheque adding your name and address.

To support us online please look for the Leukaemia & Lymphoma Unit, UCLH Charity at www.justgiving.com or www.virginmoneygiving.com. Those takingpart in challenges and sponsored events please set up your Justgiving or Virginmoneygiving pages as an easy way to let friends and family knowabout your event and support you with credit and debit cards. These sitesalso have easy guides to help fundraisers and donors and fundraising ideas.

To set up a fund in someone’s name, to request our current Wish List foritems from £25, or to find out more about how you can support the Unitplease contact Sara or visit our website, details below.

Donations to our Sickle Cell Anaemia Fund are made payable to UCLH Charity 0099 a/c 23032.

Foreign CurrencyPlease clear out your drawers and bring us your foreign currency including pre-euro currency (coins only, exceptItalian) and old UK coins to raise funds for the Unit.

Christmas Party 2012The Christmas party was another success, enjoyed by all. Thanks to Timothy Spall and all those who attended the evening.

Our thanks to the family and friends who supported the Unit in memory of:

Jeanette Andrews, Ruth Asquith, Julia Bayliss, Colin Craythorne, Rupert Greenhill, Philip Hammond, David Jacobs, Janet Jeffree, SteveMedhurst and Anne Vautier.

SPECIAL DONATIONS