hello to adults presented by joanne burke (rgn rscn) (anp for haemophilia) 11 th december 2015
TRANSCRIPT
HELLO TO ADULTSPresented by Joanne Burke (RGN RSCN)
(ANP for Haemophilia)
11th December 2015
PRESENTATION TITLE/DATE CAN GO HERE
Presentation Title/Date Can Go Here
Transition at OHTCComprehensive Care Centre1200 patients with bleeding
disorders Haemophilia, VWD, Rare Disorders
Children & Adults together at OHTC until June 2015
No formal transition process June 2015 commenced RSG &
Hello Programme
MULTIDISCIPLINARY TEAM: 3 Adut Consultants 2 Paediatric Consultants 1 Haematology SpR (on rotation) 1 FY2 (on rotation) 2.8 Adult nurse specialists 2 Children’s nurse specialists 1 Research Nurses 1 adult physio 0.6 children’s physio 0.8 Nursing Assistant Lab Staff
Staff Education Programme
Presentation to adult & children’s teams – Transition & RSG
Presentation to other nurses in the Trust
Adolescent Health Programme – RCPCH e learningwww.e-lfh.org.uk/programmes/adolescent-health/more-information
Dr. Deborah Christie - Consultant Clinical Psychologist in Paediatric & adolescent health
Presentation Title/Date Can Go Here
HELLO TO ADULTS QUESTIONNAIRE
Parents Hello to Adults Questionnaire
Progress Notes
Age 18 yrs. 7mnths
fXIII deficiency – diagnosed age 1/12
Lives with parents and younger brother
Treated monthly with fXIII concentrate
Transferred from DGH
Unable to self treat
Presentation Title/Date Can Go Here
Case Study 1
CASE STUDY 1 QUESTIONNAIRE
CASE STUDY 1 PARENT QUESTIONNAIRE
PROGRESS CASE STUDY 1
Age 20 yrs 6 mnths
Severe Haemophilia A – strong family history
Lives with girlfriend & her family
Self treats with fVIII concentrate daily
Care always at OHTC
Case Study 2
CASE STUDY 2 QUESTIONNAIRE
PROGRESS CASE STUDY 2
PATIENT EDUCATION
http://hemophilia.aboutkidshealth.ca/En/Pages/default.aspx
Keeping in Touch
Open access
Haemtrack
Telephone follow up between clinic appts.
Presentation Title/Date Can Go Here
QUESTIONS?