healthtalkonline.org - ann mcpherson
TRANSCRIPT
Objectives of this talk
• To demonstrate www.healthtalkonline.org
• Aims of www.healthtalkonline.org
• How we achieve our aims and why different from ‘standard’ case studies
• Why we present the studies in this way and ooutputs
Aims of www.healthtalkonline.org. are to………….
• identify the questions and problems that matter to patients when they are ill or have a health related problem using ‘case studies’ based on interviews
• provide support and information to patients, their family and carers.
Continued……
• be an educational resource for medical students, doctors in training, nurses and other health professionals
• promote a balanced encounter between patients and health professionals
• provide a patient centered perspective to researchers, managers and commissioners
How do we achieve this?
• Based on qualitative research• Advisory panel• For each condition -sample of 40-50 plus
patients from all over U.K from different backgrounds and with different experiences (maximum variation sample)
• Keep interviewing until no new themes, ideas, or experiences are voiced using thematic analysis
• Patients recruited via GPs, support groups, hospitals, media etc
• Narrative interviews -‘tell us your story’ unstructured and semi-structured interviews rather than ‘tick box questionnaire’
• Outputs as video, audio and written interviews (to avoid bias)
• Short summaries of main themes are written which include all experiences set with other research context
Presentation of results
• Research is presented on one website whether you are a patient, carer, doctor, researcher
• Links to other relative information• Fora for patient feedback• Freely available
Outputs
• 2000 interviews/patients case studies• 50 different illness and health issues available• 70+ peer reviewed papers• 1million hits a month
• www.healthtalkonline.orgwww.youthhealthtalk.org