health on the net foundation: assessing the quality of health web page all over the world
DESCRIPTION
Health On the Net Foundation: assessing the quality of health Web page all over the world. Antoine Geissbuhler, MD, President Celia Boyer, Executive Director. Information quality on the Web…. The New Yorker, 1993. - PowerPoint PPT PresentationTRANSCRIPT
www.hon.ch
1
Non Governmental Organization
Quality of health related information on the Web
Health On the Net Foundation: assessing the quality of health Web page
all over the world
Antoine Geissbuhler, MD, PresidentCelia Boyer, Executive Director
2
www.healthonnet.org
Cartoon by Peter Steiner has been reproduced from page 61 of July 5,
1993 issue of The New Yorker, (Vol.69 (LXIX) )
The New Yorker, 1993
Information quality on the Web…
3
www.healthonnet.org
Outline
Health website certification
The HONcode database
Search engine technologies of HON
Collaborations
Research and development
4
www.healthonnet.org
Importance of the Online Health and Medical Information
* http://www.internetworldstats.com/
** French National Health Authority
*** pewinternet 2007
Internet is a mainstream media
1,403 million users worldwide connected in 2008*
Importance of medical information on the Internet
1,200 million results for the search term, “health” on Google
One in five patients are looking for health information online**
46 million results for the search term, “health blog” on Google
Patients with chronic diseases more likely to use internet before
making treatment decisions***
5
www.healthonnet.org
Why should Health Information on the Internet be Quality Controlled?
BUT …. Just 15% of health seekers say they “always” check the source and date
53 % health information seekers report that the health information they
found had an impact on their own health care or the way they care for
someone else:
58% decision on how to treat an illness or condition.
55% changed their overall approach to maintaining their health
54% lead them to ask a doctor new questions or to get a second
opinion from another doctor.
35% say the information affected a decision about whether to see a doctor.
PewInternet Online health 2007
6
www.healthonnet.org
Created in 1995 under the auspices of the Geneva Ministry of Health and Social Affairs
Mission: to guide Internet users by highlighting reliable, comprehensible, relevant and trustworthy sources of online health and medical information
Since 1995, HON has been tackling the major obstacles of Internet usage: the overwhelming quantity of information and the uneven quality of health information available online
Non Governmental Organisation
7
www.healthonnet.org
… specific for health websites … applicable for all
sites
Various initiatives for controlling the quality
8
www.healthonnet.org
1995 UK OMNI* 19 themes–> 80 questions. A directory of unaudited sites.
1996 CH HONcode 8 principles – free online application with a simple questionnaire –> manual review and annual audit.
1998 UK Discern* 16 questions (unaudited self-evaluation)
1997/99 F Netscoring* 49 criteria, 312 points (French only)
1998/99 Es WebMedica Based on existing codes (Spanish only)
2000 D MedCertain* Level 1 –> 72 questions
2001 F Toucanomètre* French webmasters MD –> 17 items; 40 points
2001 US URAC 7 standards –> 52 questions. Cost $13’000.
2002 EU Guidelines* European Commission 6 directives. Created with participation of HON
2003 D AFGIS Code Membership fee (German only)
*little or no implementation
9
www.healthonnet.org
The HONcode
Sponsorship Clearly distinguish advertising from editorial content
Authoritativeness
Complamentarity
Privacy
Attribution
Justifiability
Transparency
Financial disclosure
Indicate the qualifications of the authors
Information should support, not replace, the doctor-patient relationship; Audience
Respect the privacy and confidentiality of personal data submitted to the site by the visitor
Cite the source(s) of published information and dating of medical and health pages
Site must back up claims relating to benefits and performance
Accessible presentation, identities of editor and Webmaster, accurate email contact
Identify funding sources
http://www.HON.ch/HONcode/
10
www.healthonnet.org
The Web publisher submits a request to be certified and to obtain the right to display the HONcode seal
The Web publisher fills in an online questionnaire
The HONcode review team conducts a thorough evaluation of the website
According to findings, website is:certifiedcertified under condition to modify/add some statement on the websitenot certified
If certified, a unique HONcode seal is granted
Each website is re-evaluated each year
The certified website is integrated into the database of HONcode certified websites, HONcodeHunt
HONcode certification protocol
11
www.healthonnet.org
The HONcode database: HONcodeHunt
+ 7,000 sites
118 countries
34 languages English: 51%French: 15% ; 830 HAS-HONGerman: 9%Italian: 7%
1,400,000 web pages certified in Google.com
The HONcode team: 8 MDs, 2 medical students, 1pharmacist, 2
licensed lawyers and 1 biologist
Examples:ClinicalTrials.gov
HealthInsite.gov.au
Health-EU Portal
The National Urban League
MEDLINEplus.gov
PubMed
Stop-tabac.ch
sprechzimmer.ch
patientenleitlinien.de
Hospital 12 de Octubre
Sociedad Argentina de Pediatría
Diabetes Netzwerk Deutschland
onmeda.de/
Santemagazine.fr
eurordis.org
12
www.healthonnet.org
Last HONcode certification activity
13
www.healthonnet.org
Search engine of HONcode certified sites
14
www.healthonnet.org
Active HONcode seals in Google (and Yahoo)
15
www.healthonnet.org
Collaborations
16
www.healthonnet.org
HON certification
Government-level collaboration in France: HONcode is the
official international standard for quality of health websites
in France since November 2007.
Intended for ALL the health Web publishers
Voluntary initiative
For the citizen
For health care providers, pharmaceutical and the eHealth
industries
17
www.healthonnet.org
The French National Health Authority (HAS) chooses HON for the certification of French health websites
Article L 161-38 de la loi n° 2004-810 du 13 août 2 004 relative à l’assurance maladie :
La Haute Autorité de santé est chargée d’établir une procédure de certification des sites informatiques dédiés à la santé, et des logiciels d’aide à la prescription médicale ayant respecté un ensemble de bonnes pratiques.«À compter du 1er janvier 2006, cette certification est mise en oeuvre et délivrée par un organisme accrédité attestant du respect des règles de bonne pratique édictées par la Haute Autorité de santé.
Décret n° 2004-1139 du 26 octobre 2004 relatif à la Haute Autorité de santéArticle R 161-75La Haute Autorité de santé détermine les règles de bonne pratique devant être respectées par les sites informatiques dédiés à la santé et les logiciels d’aide à la prescription médicale pour lesquels la certification mentionnée à l’article L. 161-38 est demandée. Elle définit les modalités de cette certification.
The French bill 2004-810, 13th August 2004 regarding the health insurance, has mandated the HAS to define a certification procedure for health websites: the HAS chooses HON for the certifying French health websites
18
www.healthonnet.org
International activities
Partnerships with:
The World Health Organization
Local representation in:
Mali,
South Africa,
Spain
In a globalized world, HON aims to preserve local identities; therefore we think globally and act locally, establishing regional representations respecting social and cultural identities.
19
www.healthonnet.org
20
www.healthonnet.org
Regional services
http://www.SanteRomande.ch/
http://www.Provisu.ch/
Provisu (visual conditions)
Regional service: SantéRomande (directory for the French speaking Swiss)
Toxicologyhttp://www.SCAHT.org
Health topics:
21
www.healthonnet.org
Research and Development
22
www.healthonnet.org
Specialised search engine
23
www.healthonnet.org
24
www.healthonnet.org
Is quality of m-Health applications a problem?
Application stores for windows mobiles and iphone offering access to +1600 medical software for mobile devices *
Health benefits: efficiency, effectiveness and easy access to services and resources (“convenient medicine”)
Cost-effectiveness very high (low cost medical innovation)
What about the quality of m-health applications?
Privacy and security of personal healthcare information
Trustworthiness of the health and medical information offered
No verification nor certification of applications that can be found on applications store
HON tackles new Internet challenges by proposing a solution: the HONcode certification of mHealth applications
* PocketGear, AppleStore
25
www.healthonnet.org
Conclusion
Active for over 13 years
Educate citizens to efficiently use the medical information
Automatic tools developed in order to support human expertise and tackle the large number of existing Web pages
2001 eEurope Quality Criteria for Health Web sites is based on the HONcode principles
Collaboration with Google-Coop for Health
Collaboration with the French HAS to be the official certification body for all French health Web sites
Adherence to the HONcode enhances a website’s overall quality“More than just a mouse click: Research into work practices behind the assignment of medical trust marks on the World Wide Web”
Adams SA, de Bont AA. IJMI 2006