health indicators warehouse webinar

53
What Data is Available? An Introduc6on to the Data Sources at HHS Monday, January 23, 2012 11:00 am 12:30 PM EST

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US Department of Health and Human Services' Health Indicators Warehouse (HIW) Webinar

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Page 1: Health Indicators Warehouse Webinar

What  Data  is  Available?        An  Introduc6on  to  the  Data  Sources  at  HHS  

 Monday,  January  23,  2012  11:00  am  -­‐  12:30  PM  EST  

Page 2: Health Indicators Warehouse Webinar

 Arnaub  Cha:erjee  Special  Assistant  Office  of  the  Chief  Technology  Officer,  HHS  

Page 3: Health Indicators Warehouse Webinar

   1.   Welcome:  Todd  Park  (CTO,  HHS)    2.   Overview  of  Health  Indicators  Warehouse:  James  Craver  3.   CMS  Data  Update:  Niall  Brennan  4.   Features  of  MONAHRQ:  Carol  Sniegoski  5.   IOM  Perspec6ve:  Danielle  Turnipseed  6.   Q&A  (20  minutes)  

•  If  you  wish  to  ask  a  ques6on,  please  type  in  ‘chat’  window  and  click  on  ‘send  to  organizer’  in  the  drag-­‐down  menu  

•  Webinar  will  be  archived  

Agenda  

Page 4: Health Indicators Warehouse Webinar

 Todd  Park    Chief  Technology  Officer  U.S.  Department  of  Health  and  Human  Services        

Page 5: Health Indicators Warehouse Webinar

The Health Data Initiative:

Unleashing the Power of Open Data and Innovation to Improve Health

Page 6: Health Indicators Warehouse Webinar

The  Health  Data  Ini6a6ve:    turning  HHS  and  our  sister  agencies  into  the  “NOAA  of  health  data”      

• Weather  newscasts  • Weather  websites  • Weather  mobile  apps  • Weather  insurance  • And  more  

Weather  data  

FUELS  

Made  available  to  the  public  

Page 7: Health Indicators Warehouse Webinar

1.   Publish  brand  new  HHS  data  for  public  access  –  while  rigorously  protecNng  privacy  and  confidenNality  

2.   Make  exis6ng  HHS  data  much  more  accessible  -­‐-­‐  “machine-­‐readable,”  accessible  via  applicaNon  programming  interfaces  (APIs),  free,  much  easier  to  find  

3.   Energe6cally  publicize  our  data  to  innovators  -­‐-­‐  who  can  use  it  as  raw  material  to  develop  applicaNons  and  services  that  help  improve  health  and  health  care  

Health  Data  Ini6a6ve  core  ac6vi6es:    liberate  data  and  catalyze  innova6on  

Page 8: Health Indicators Warehouse Webinar

What  kinds  of  data  are  we  libera6ng?  

Community  Health  

Provider  Directories  &  Quality  

“Blue  Bu:on”  

Consumer  Product  

Informa6on  

Medical/  Scien6fic  Knowledge  

Govt  Spending  

Community  Health  Data  Example:  

 •  Health  Indicators  Warehouse,  at  healthindicators.gov  

•  1,170  metrics  of  community  health  and  health  care  performance  

•  Launched  2/2011  

HHS  Data  Being  Liberated  

Page 9: Health Indicators Warehouse Webinar

What  kinds  of  data  are  we  libera6ng?  

Provider  Directories  &  Quality  Data  Examples:  

 •  NaNonwide  directories  of  care  providers  

•  Provider  quality  COMPARE  APIs  at  data.medicare.gov,  launched  9/2010  

•  Medicare  claim  files  for  provider  quality  measurement,  coming  1/2012  

Community  Health  

Provider  Directories  &  Quality  

“Blue  Bu:on”  

Consumer  Product  

Informa6on  

Medical/  Scien6fic  Knowledge  

Govt  Spending  

HHS  Data  Being  Liberated  

Page 10: Health Indicators Warehouse Webinar

What  kinds  of  data  are  we  libera6ng?  

“Blue  Bu:on”  Data    

•  VA,  HHS,  DoD  joint  venture  

•  Allows  veterans,  Medicare  beneficiaries,  and  acNve  duty  military  to  download  their  own  claims  or  personal  health  informaNon  

•  Launched  10/2010  

Community  Health  

Provider  Directories  &  Quality  

“Blue  Bu:on”  

Consumer  Product  

Informa6on  

Medical/  Scien6fic  Knowledge  

Govt  Spending  

HHS  Data  Being  Liberated  

Page 11: Health Indicators Warehouse Webinar

What  kinds  of  data  are  we  libera6ng?  

Consumer  Product  Informa6on  Example:  

 •  FDA  recall  (drugs,  devices,  food)  data  in  downloadable  XML  format    

•  Published  10/2010  

Community  Health  

Provider  Directories  &  Quality  

“Blue  Bu:on”  

Consumer  Product  

Informa6on  

Medical/  Scien6fic  Knowledge  

Govt  Spending  

HHS  Data  Being  Liberated  

Page 12: Health Indicators Warehouse Webinar

What  kinds  of  data  are  we  libera6ng?  

Medical/Scien6fic  Knowledge  Examples:  

 •  NaNonal  Library  of  Medicine  API  Portal,  deployed  9/2010,  including  ClinicalTrials.gov  and  Pillbox  APIs  

•  Medline  Plus  Connect,  launched  11/2010  

Community  Health  

Provider  Directories  &  Quality  

“Blue  Bu:on”  

Consumer  Product  

Informa6on  

Medical/  Scien6fic  Knowledge  

Govt  Spending  

HHS  Data  Being  Liberated  

Page 13: Health Indicators Warehouse Webinar

What  kinds  of  data  are  we  libera6ng?  

Govt  Spending  Data  Example:  

 •  Medicare  claims  “basic  standalone  files”  –  first-­‐ever  claim-­‐level  files  (“slimmed”  for  privacy  protecNon),  available  for  free  public  download  for  all  major  types  of  care  as  of  5/2011  

Community  Health  

Provider  Directories  &  Quality  

“Blue  Bu:on”  

Consumer  Product  

Informa6on  

Medical/  Scien6fic  Knowledge  

Govt  Spending  

HHS  Data  Being  Liberated  

Page 14: Health Indicators Warehouse Webinar

Bringing  it  all  together:    HealthData.gov,  the  one-­‐stop  place  to  get  all  of  our  free,  publicly  available  data,  launched  2/2011  

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Publicizing  our  data  to  innovators  across  America  

• Challenges  and  “code-­‐a-­‐thons”  (health2challenge.org)    • Many  innovator  “meetups”  and  conferences  • Annual  “health  datapaloozas”  

Page 16: Health Indicators Warehouse Webinar

The  goal:    a  self-­‐propelled,  open  “ecosystem  of  innova6on”  using  data  to  improve  health  (and  create  jobs  of  the  future)  

•  Help  consumers  take  control  of  their  health  and  health  care  

•  Help  employers  promote  health  and  wellness  

•  Help  care  providers  deliver  beeer  care  

•  Help  journalists  shed  light  •  Help  local  leaders  make  beeer-­‐informed  decisions  

•  Support  all  of  the  above  through  “data  intermediary”  services  

•  And  much  more  

A  Rapidly  Growing  Array  of  Innova6ve  Products  and  Services  That:  

Health-­‐Related  Data  from  

FUELS  

Page 17: Health Indicators Warehouse Webinar

•  This  year’s  Palooza  will  take  place  on  June  5-­‐6,  2012  at  the  Walter  E.  Washington  ConvenNon  Center  in  Washington,  DC.  

•  This  year’s  event  will  be  hosted  through  the  Health  Data  ConsorNum,  a  public-­‐private  partnership  between  the  InsNtute  of  Medicine,  Robert  Wood  Johnson  FoundaNon,  Consumers  Union,  Academy  Health,  InnocenNve,  Health  2.0,  the  Mayo  Clinic’s  Center  for  InnovaNon  and  several  other  organizaNons.  

•  Will  showcase  250  of  the  best  innovaNons  in  three  tracks:  consumer,  provider  and  community  apps  

•  Please  visit  www.hdiforum.org  for  more  informaNon  on  registraNon,  Nmelines  for  submission  and  details  about  each  submission  category.      

The  Third  Annual  Health  Data  Ini6a6ve  Forum  –  The  Health  Data  Palooza!          

Page 18: Health Indicators Warehouse Webinar

Examples:    helping  consumers  take  control  of  their  health  and  health  care  

 •  iTriage  

•  Healthline  

•  Castlight    •  Pa6ents  Like  Me    •  Asthmapolis    •  Food  Oasis  

Page 19: Health Indicators Warehouse Webinar

Examples:    helping  care  providers  deliver  be:er  care  (and  succeed  as  accountable  delivery  systems)  

•  Aetna  

•  Essence  Group/Lumeris    •  Doximity  

•  Press  Ganey  

•  Rise  Health    •  ElizaLIVE  

Page 20: Health Indicators Warehouse Webinar

Examples:    helping  communi6es  improve  health  

•  Ozioma    •  ESRI    •  Network  of  Care  for  

Healthy  Communi6es    •  Palan6r/CDC  

Page 21: Health Indicators Warehouse Webinar

•  EPA  challenge  •  Walgreens  2.0  +  challenge  •  Aetna  Founda6on  challenge  •  Sanofi  Aven6s  diabetes  challenge  •  NCIIA  Nursing  Home  of  the  Future  

“invent-­‐a-­‐thon”  •  University  of  Michigan:    na6on’s  first  

consumer  health  informa6cs  masters  degree  program  

•  Startup  Health:    new  health  startup  “seed  accelerator/entrepreneurship  academy”  

•  New  “Health  Data  Consor6um”  

Selected  announcements  at  the  Forum  

Page 22: Health Indicators Warehouse Webinar

•  Academy  Health  •  California  HealthCare  Founda6on  •  Consumers  Union  •  ESRI  •  Gallup-­‐Healthways  Well-­‐Being  Index  •  Grantmakers  in  Health  •  Health  2.0  •  InnoCen6ve  •  Ins6tute  of  Medicine  •  Lucile  Packard  Founda6on  for  Children’s  Health  •  Mayo  Clinic  Center  for  Innova6on  •  Na6onal  Associa6on  of  Coun6es  •  O’Reilly  Media  •  Robert  Wood  Johnson  Founda6on  •  U.S.  Department  of  Health  and  Human  Services  

Founding  members  of  the  Health  Data  Consor6um  

Page 23: Health Indicators Warehouse Webinar

A  historic  moment  and  opportunity  

New  Incen6ves  

Informa6on  Libera6on  

Rocket  Fuel  for  Innova6on  

+  

=  

Page 24: Health Indicators Warehouse Webinar

   James  Craver    Public  health  analyst    Office  of  Analysis  and  Epidemiology  NaNonal  Center  for  Health  StaNsNcs  Centers  for  Disease  Control  and  PrevenNon.              

Page 25: Health Indicators Warehouse Webinar

   Niall  Brennan    Director,  Policy  and  Data  Analysis  Group  Center  for  Strategic  Planning  Centers  for  Medicare  and  Medicaid  Services              

Page 26: Health Indicators Warehouse Webinar

   Carol  Sniegoski    Center  for  Delivery,  OrganizaNon,  and  Markets  Agency  for  Health  Research  and  Quality            

Page 27: Health Indicators Warehouse Webinar

Agency for Healthcare Research and Quality Advancing Excellence in Health Care • www.ahrq.gov

Input Your Data. Output Your Website.

Carol Sniegoski Agency for Healthcare Research and Quality

monahrq.ahrq.gov [email protected]

Page 28: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website.

Input Your Data. Output Your Website.

Page 29: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website.

Input Your Data. Output Your Website.

MONAHRQ

Download MONAHRQ from monahrq.ahrq.gov

Page 30: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website.

Input Your Data. Output Your Website.

Input your local hospital

discharge data MONAHRQ

Download MONAHRQ from monahrq.ahrq.gov

Page 31: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website.

Input Your Data. Output Your Website.

Input your local hospital

discharge data MONAHRQ

Input Hospital Compare

measures*

* Available from HealthData.gov

Download MONAHRQ from monahrq.ahrq.gov

Page 32: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website.

Input Your Data. Output Your Website.

MONAHRQ runs on your desktop

Input your local hospital

discharge data MONAHRQ

Input Hospital Compare

measures*

* Available from HealthData.gov

Download MONAHRQ from monahrq.ahrq.gov

Page 33: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website.

Input Your Data. Output Your Website.

MONAHRQ runs on your desktop

Input your local hospital

discharge data MONAHRQ

Input Hospital Compare

measures*

Output a local healthcare

reporting website

* Available from HealthData.gov

Download MONAHRQ from monahrq.ahrq.gov

Page 34: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website.

Input Your Data. Output Your Website.

MONAHRQ runs on your desktop

Input your local hospital

discharge data MONAHRQ

Input Hospital Compare

measures*

Output a local healthcare

reporting website

You host, public or private

* Available from HealthData.gov

Download MONAHRQ from monahrq.ahrq.gov

Page 35: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

MONAHRQ: a free, downloadable software tool from AHRQ. Turns healthcare data into a website.

Input Your Data. Output Your Website.

MONAHRQ runs on your desktop

Input your local hospital

discharge data

MONAHRQ was a finalist in round 2 of the HHSinnovates competition.

MONAHRQ

Input Hospital Compare

measures*

Output a local healthcare

reporting website

You host, public or private

* Available from HealthData.gov

Download MONAHRQ from monahrq.ahrq.gov

Page 36: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care Who uses MONAHRQ?

Who uses MONAHRQ to build a website?

•  Local data organizations •  Local public health departments

•  Hospital associations •  Community quality collaboratives

Page 37: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care Who uses MONAHRQ?

•  Local data organizations •  Local public health departments

•  Hospital associations •  Community quality collaboratives

Who can use MONAHRQ-generated websites? •  Consumers •  Providers •  Analysts •  Policy makers

Who uses MONAHRQ to build a website?

Page 38: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

The MONAHRQ-generated reporting website

Page 39: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

The MONAHRQ-generated reporting website

Local data

Local data Local data (AHRQ Quality Indicators: county level)

Local data (AHRQ Quality Indicators: hospital level)

Page 40: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care

The MONAHRQ-generated reporting website

Local data

Local data

Hospital Compare measures*

(patient safety, imaging use, mortality & readmissions, process of care,

HCAHPS patient experience survey)

Local data (AHRQ Quality Indicators: county level)

Local data (AHRQ Quality Indicators: hospital level)

* Available from HealthData.gov

Page 41: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care Hospital quality report

Select hospitals in your area

Select quality measures by health topic

Search page

Page 42: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care Hospital quality report

* Available from HealthData.gov

Classification

table

Friendly icons

Sortable columns

Choice of benchmarks:

local or national

Help popups

Drilldown to details

Page 43: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care Hospital quality report

Bar charts

Ordered from best to worst

Labeled with number showing rate

Local and national benchmarks in contrast

color

Page 44: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care County level quality report

Rates for counties in your data set

Colored by quintile

Maps

Drilldown to details

Includes estimated cost savings from

reducing hospitalizations

Page 45: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care Why MONAHRQ?

MONAHRQ helps make healthcare data useful

•  Input your data, output your reporting website •  Create friendly, usable reports that apply best practices in

reporting •  Report both local and national data, including benchmarks •  Report without reinventing the wheel

Page 46: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care Why MONAHRQ?

First released in June 2010, MONAHRQ is used for statewide reporting in several states

•  Nevada •  Hawaii •  Maine

•  Kentucky •  Arkansas •  Utah

•  Input your data, output your reporting website •  Create friendly, usable reports that apply best practices in

reporting •  Report both local and national data, including benchmarks •  Report without reinventing the wheel

MONAHRQ helps make healthcare data useful

Page 47: Health Indicators Warehouse Webinar

Advancing Excellence in Health Care Why MONAHRQ?

Learn more, visit live MONAHRQ reporting sites, or download MONAHRQ: monahrq.ahrq.gov

[email protected]

MONAHRQ helps make healthcare data useful

•  Input your data, output your reporting website •  Create friendly, usable reports that apply best practices in

reporting •  Report both local and national data, including benchmarks •  Report without reinventing the wheel

First released in June 2010, MONAHRQ is used for statewide reporting in several states

•  Nevada •  Hawaii •  Maine

•  Kentucky •  Arkansas •  Utah

Page 48: Health Indicators Warehouse Webinar

   Danielle  P.  Turnipseed    Program  Officer,  ExecuNve  Office    InsNtute  of  Medicine            

Page 49: Health Indicators Warehouse Webinar

The Institute of Medicine

Advising the nation. Improving health

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50

The Institute of Medicine asks and answers the nation’s most pressing questions about health and health care.

The IOM is an independent, nonprofit organization that works outside of government to provide unbiased and authoritative advice to decision makers and the public.

Established in 1970, the IOM is the health arm of the National Academy of Sciences, which was chartered under President Abraham Lincoln in 1863.

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The IOM serves as adviser to the nation to improve health.

§  Unbiased, authoritative advice §  Evidence-based recommendations §  Committees composed to avoid conflicts of interest §  Neutral venue for open dialogue and discussion §  Honorific organization

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§  Interdisciplinary teams of 2-5 students

§  Open to undergraduate and graduate students

§  Register by 2/10, submit app by 3/28

$18,000 IN PRIZES

Go Viral to Improve Health IOM-NAE Health Data Collegiate Challenge

Page 53: Health Indicators Warehouse Webinar

   1.   Welcome:  Todd  Park  (CTO,  HHS)    2.   Overview  of  Health  Indicators  Warehouse:  James  Craver  3.   CMS  Data  Update:  Niall  Brennan  4.   Features  of  MONAHRQ:  Carol  Sniegoski  5.   IOM  Perspec6ve:  Danielle  Turnipseed  6.   Q&A  (20  minutes)  

•  If  you  wish  to  ask  a  ques6on,  please  type  in  ‘chat’  window  and  click  on  ‘send  to  organizer’  in  the  drag-­‐down  menu  

•  Webinar  will  be  archived  

Agenda